REN - Living with M.E. - May is Lyme Awareness Month - 6th May 2016 - Ren is 26 here.

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  • Опубликовано: 31 дек 2024

Комментарии • 71

  • @somogyieva
    @somogyieva 3 месяца назад +10

    This video came up again and it broke my heart. I believed so much that everything was fine and the many medicines and treatments helped. As a layman, I think that a lot of stress upset his immune system and this is the cause of the relapse. The bacteria is still in Ren's body and attacks again. I'm so sorry, I think about him all day and hope he gets better.💔

  • @sammyd8860
    @sammyd8860 8 месяцев назад +37

    This guy is so impressive ! So passionate & driven, so articulate and so intelligent in his understanding of really complex subjects. He has a thirst for knowledge (not just about his medical condition) and he has taught himself so much. Even if he wasn't a creative genius at story telling, writing, song writing, singing, rapping, producing, directing, playing guitar, bass & piano ; even if he didn't display incredible tenacity, compassion and the overwhelming desire to support and lift up others ; this one video would have convinced me that he is a really remarkable person

  • @ClaireW-HippyHobbit
    @ClaireW-HippyHobbit 6 месяцев назад +17

    Ren fan and living with ME. It's taken stem cell transplants and huge cost and months at private clinic in Canada to get Ren well again. He is exceptional, and I'm glad that someone got out this living hell, and that it was him

  • @GarnetJ
    @GarnetJ 8 месяцев назад +12

    And this is why it meant everything when Ren got #1 on the UK charts with the Sick Boi album 💕 It was heartbreaking in this video when he thought any hopes of a music career were over 💔 But it’s incredible to see how far he has come!! He has stayed true to his promise of continuing to fight for awareness and more research funding.
    Ren is the voice for the voiceless and a ray of light in the darkness for many who are suffering every day. I’m glad he is sharing his story. I’m looking forward to the release of “Troubles.” It would be great if it hit the charts!

  • @iamsquatty
    @iamsquatty 8 месяцев назад +21

    Ren is such an amazing advocate for lyme disease and all the other mental and physical health issues he's experienced 💜💜🥹

  • @jasonklenetsky5687
    @jasonklenetsky5687 8 месяцев назад +17

    Ren is something else, I tell ya what. I really hope his recent success will bring more awareness to this cause. His voice is needed and so greatly appreciated by so many people still suffering. Thanks Pete, for posting this and being part of the solution.

  • @jodienaiburg4076
    @jodienaiburg4076 7 месяцев назад +7

    Ren is an real life Angel.

  • @mashr52010
    @mashr52010 7 месяцев назад +6

    Ren gave me hope again. I wanted to give up and then my friend shared Ren with me. Keep up the good work spreading awareness. We can unite and I’ll be sharing this with my doctor who actually listens and cares.

  • @SandraP3796
    @SandraP3796 8 месяцев назад +11

    You are one of the “But you don’t look sick”, sick people Ren ❤️
    Thanks for this Pete

  • @antonellacuscueta1034
    @antonellacuscueta1034 3 месяца назад +3

    Its so sad to see that 8 years later he is still suffering.

  • @terryolsson4145
    @terryolsson4145 5 месяцев назад +6

    Thank you so much Ren for being a voice for the people.

  • @Lozza2993
    @Lozza2993 7 месяцев назад +9

    I asked them to test for lymes and they refuse because I don't have an active bullseye rash. Diagnosed with fibro and cfs with no treatment/management plans, specialist appointments, nothing. Just left to deal with it alone.

    • @PeteFindsObscureStuff
      @PeteFindsObscureStuff  7 месяцев назад +2

      I'm so sorry to hear this. Did you ever have the 'bullseye rash' in the past?

    • @Lozza2993
      @Lozza2993 7 месяцев назад +1

      @PeteFindsObscureStuff no, but had bites from being in forests and long grass areas that hold wild animals associated with ticks and getting flu symptoms, etc. It's said that not all lyme cases present a bullseye rash 🤷🏼‍♀️. I don't think it's certain, but I do think enough of a possibility to at least check.

    • @lefantthepainter
      @lefantthepainter 7 месяцев назад

      I had the rash, and the doctor misdiagnosed it as tinia. A year later I could barely walk and had unbelievable panic and rage. Finally diagnosed and treated for 3 years, but now I have Parry-Romberg syndrome!😫

  • @dazsmith4958
    @dazsmith4958 3 месяца назад +3

    I have ehlers danlos syndrome, POTS and MCAS (which ik you have too) and I just wanna thank you so much for how much you raise awareness for mental health and chronic illness. You help me keep my hope.

  • @robingayle68
    @robingayle68 3 месяца назад +5

    God I love Ren ❤his passion for music 🎶 and for being a voice for the voiceless is amazing ❤ Renegade here showing up ❤

  • @DebiMaria_
    @DebiMaria_ 8 месяцев назад +9

    Who is this human!?! Man……. I am speechless

    • @JoRiceRenegade4Eva
      @JoRiceRenegade4Eva 8 месяцев назад +10

      A phenomenal human & the Artist of our time. Look into his story & musical journey, it is magical & uplifting in the most glorious way ❤

  • @belgand5555
    @belgand5555 8 месяцев назад +10

    It actually made me tear up to see Ren being so strong to get this across… thank you for being who you are Ren and thank you for never changing., ♥️♥️♥️ and thanks Pete 🙏🏻

  • @adamcoope8726
    @adamcoope8726 4 месяца назад +5

    I’d never heard of Lyme but contracted it a few months ago and it’s crippling me. I’m an instructor in the fire service and after 22 years might loose my job. I’m already living with depression and suicidal thoughts have been more intrusive than ever. My coping mechanism was walking my dog and going to the gym, neither of which I can do anymore 😢

    • @PeteFindsObscureStuff
      @PeteFindsObscureStuff  4 месяца назад +4

      So sorry to hear this. Stay strong my friend. My prayers are with you.

    • @horsnpony365
      @horsnpony365 4 месяца назад +2

      @adamcooper8726 go to RUclips channels: RenMakesStuff and watch the 8 videos Ren (this amazing human being in the video above) made called REN’s Life Story Chapters.
      Then check out RenMakesMusic - and the music he creates is an amazing lifeline for those of us who are feeling desperate.
      I hope you find a medical practitioner who can offer some new ideas and advice. Never quit searching. You are not alone.
      Lyme disease sucks, but there is hope. I even used acupuncture and traditional Chinese medicine for mine. It does help in some ways and helped me be able to get through the day.
      Hang on. This world needs you in it. ☮️

    • @Leanco1702
      @Leanco1702 3 месяца назад +2

    • @RhondaTomassi
      @RhondaTomassi 3 месяца назад +3

      Please don't give up.

    • @Threadbow
      @Threadbow Месяц назад +1

      You may be early enough still to get the right treatment.
      Recovery is still possible for you.
      How. There are c many Lyme groups that will have lots of advice and drs to talk to re treatment.
      Is there a group or union for firefighters?

  • @daniellelangille9947
    @daniellelangille9947 5 месяцев назад +3

    Many Prayers to all who suffer ❤ #sickboi #northernmaine 🇺🇸 ♥

  • @pammccoy3111
    @pammccoy3111 8 месяцев назад +11

    I have MS, and i will join you on this mission. ❤

    • @louisesnowdon7624
      @louisesnowdon7624 3 месяца назад

      @@pammccoy3111 I have M.E., Fibromyalgia and Bowel Disease.I join the mission.❣️

  • @docdurdin
    @docdurdin 5 месяцев назад +2

    7 years in at this point and he is still so brave facing this deadly illness. We are blessed that we found our way to his journey. I had asked him if he was ready for the miracle that was coming to him, that people would soon flood his world. That was when he introduced, Hi Ren.

  • @SD-uk1pp
    @SD-uk1pp 5 месяцев назад +2

    Always wise beyond his years

  • @sampanther8854
    @sampanther8854 8 месяцев назад +7

    Thank you so much Pete ❤️ sharing this can make a difference and I adore Ren's determination to fight this battle not just for himself but many others who feel lost in the dark 🙏🌟

  • @jonathanvince8173
    @jonathanvince8173 7 месяцев назад +3

    Lyme disease comes from a Tick bite that ticks were tested in a Laboratory in the area of Lyme in America they escaped ad ended up in countries around the world. It was supposed to be a Bio weapon as that laboratory was shut down and I think destroyed as belonged to certain weapons organization. I wonder if lab leaks cause other things to happen recently?

  • @fionaclark4346
    @fionaclark4346 8 месяцев назад +4

    Thank you so much Ren for putting this out again, on behalf of all those of us who feel forgotten, shut away behind closed doors, and desperately trying not to lose hope as the years slip through our fingers.
    Your lifeline of hope is a shining light in our world of darkness🕯️❤

  • @jenniferrivers969
    @jenniferrivers969 6 месяцев назад +3

    Ren you are amazing. Thank you for your good work in talking about this and advocating for solutions. I had Lyme Disease-which took almost three years to diagnose. It was the most debilitating thing I’ve ever experienced. I had many symptoms. As a holistic practitioner, I tried everything. And I sought out all the alternative practitioners. It was far too late for me to take antibiotics, but I was glad that I didn’t because I knew how it would wreck my immune system. What finally helped was biomagnetic therapy. Honestly, it was a miracle. Anybody who’s going through Lyme disease and wants to try something different, I highly recommend biomagnetic therapy.

  • @kevbruce9191
    @kevbruce9191 6 месяцев назад +4

    The answer is 💰 The Money Game.
    Because the numbers are not big enough the research doesn't get the funding. Very very sad 😔

  • @MustardMischief
    @MustardMischief 8 месяцев назад +4

    Ren ❤

  • @momishka7
    @momishka7 8 месяцев назад +2

    Our sweet boi ❤❤❤

  • @louisesnowdon7624
    @louisesnowdon7624 6 месяцев назад +2

    Ren you are a Very Special Guy.Thank You for your Amazing music and using your Platform to discuss these Long Term illnesses.

  • @charlesfeatherstone6196
    @charlesfeatherstone6196 2 месяца назад +2

    The lyme calf is now a bull and he is angry!

  • @HeatherElliott-y2q
    @HeatherElliott-y2q 4 месяца назад +1

    Such an inspirational guy
    Lyrical genius !
    Love you ren x

  • @robingayle68
    @robingayle68 3 месяца назад +2

    Just found your channel ❤ I love it ❤Liked and Subscribed for more Ren 🐇🕳️❤️

  • @superduper9900
    @superduper9900 Месяц назад

    Phage treatment doesn't cure you but it sure helps the immune system. I had it done in Tennessee. It gave me the whole summer almost symptom free. Unfortunately I have relapsed. 16 long years.

  • @libby215
    @libby215 7 месяцев назад +1

    Different clinical departments seem reluctant to communicate with eachother - and it's aways to the detriment of the patient - the people who they've done all their training to help in the first place, it doesn't make sense.

  • @momstin58
    @momstin58 8 месяцев назад +1

    Thank you Pete 💜

  • @primitivedogs4638
    @primitivedogs4638 8 месяцев назад +4

    ME diagnosis 1998! No different today.

    • @primitivedogs4638
      @primitivedogs4638 8 месяцев назад

      Yes, I had lymedisease. NO clue If still...

    • @alouise01
      @alouise01 8 месяцев назад

      That was all very well said Ren, THANK YOU! I didn't realize that May is ME and Lyme disease awareness month. I tested positive for Lyme disease way back in 2002. However, repeat tests were negative. A few years later, I was diagnosed with ME and Fibromyalgia. Back then it felt like no one had ever heard of either of these. In 09 I had some freaky shut happen with my vision, so I was given an MRI. That showed over 50 lesions on my brain and 3 on my spinal column. I was diagnosed with MS.
      I agree that when they find out how to cure one of these diseases, the cure for all or a lot of these other diseases will have a cure as well. The causes are connected and the treatments will be too. Living in the US, makes me feel like one huge reason we don't have more cures is because this country makes $ from the sick. The pharmaceutical industry is the mafia of today. My monthly medications cost $32,000!!!
      I agree that we need to rise, and band together if there's to be hope for future wellness and an end to the suffering that you, me, and millions of others are facing
      ♥️❤️‍🩹🧡❤️‍🩹🧡❤️‍🩹🧡❤️‍🩹🧡❤️‍🩹

  • @geverniveup
    @geverniveup 3 месяца назад

    I really believe it's his destiny to have...and still be going through what he's dealing with. I don't know if he would have been the truly 'one of a KIND' artist that he has become. It's really intense to think about

  • @jeanninegervais5874
    @jeanninegervais5874 8 месяцев назад +1

    Thank you Ren. ❤

  • @MrandMrsBurns
    @MrandMrsBurns 6 месяцев назад +1

    👏🏻👏🏻👏🏻

  • @ezrasace
    @ezrasace 7 месяцев назад +1

    Thank you for sharing, Pete! ❤❤❤

  • @hilarycharman-2924
    @hilarycharman-2924 8 месяцев назад +1

    Thank you Ren. I've shared that to my friend who has ME in the hope it may help. God bless you ❤

  • @susybetts3876
    @susybetts3876 7 месяцев назад

    You’re amazing Ren I hope this is heard and acted upon by the people who can find a cure. ❤

  • @AshleighJane-nd2qx
    @AshleighJane-nd2qx 8 месяцев назад +2

    Polycystic Ovarian Syndrome(PCOS), check out the similarities..

  • @kevingrover8316
    @kevingrover8316 Месяц назад

    Honestly the research community and the drug companies won't research it cause theirs not enough money in it for them yet. Unfortunately

  • @anetteandersson2778
    @anetteandersson2778 8 месяцев назад

    ❤❤❤

  • @kt_kroovy1031
    @kt_kroovy1031 8 месяцев назад +2

    🌹🦇🌹🦇🌹🦇🌹

  • @SonjainAfrica
    @SonjainAfrica 8 месяцев назад +1

    🪽🤍🪽

  • @LaurieToschi
    @LaurieToschi 2 месяца назад

    What does ME stand for

    • @PeteFindsObscureStuff
      @PeteFindsObscureStuff  2 месяца назад

      myalgic encephalomyelitis. Also known as chronic fatigue syndrome