What are the different stages of dementia? The 3 stage and 7 stage models explained
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- Опубликовано: 2 июн 2024
- Welcome to the place where I share dementia tips, strategies, and information for family members caring for a loved one with any type of dementia (such as Alzheimer's disease, Lewy Body dementia, vascular dementia, frontotemporal dementia, etc.)
Today’s video talks about the stages of dementia. There are different ways to determine dementia stages and several different models to describe the different stages. This video goes over the two most popular ways that the general population stages dementia. There is a 3 stage model of dementia staging and a 7 stage model. This video was made for Careblazer, Annette. I hope that you find it helpful and if you have any specific questions or topics you want to see featured, let me know by leaving a comment below any of my videos.
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In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
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Join our empowering Change Maker Community! Dive into discussions on navigating tough situations with a supportive network. Let's tackle challenges together at www.dementiacareclass.com/change
im 10 and my 80r old dad is suffering from it he is my best freind i have nothing else in life pls pray for him god bless you
Awww Baby,Praying for you and your father🙏🏾💪🏾
Poor you
Is he good now
Your 10?!
@@bernadette2722 IKR
The most difficult thing to handle is the anger & paranoia in some dementia patients. Maybe they are taking out their frustration in others, much like autistic individuals sometimes do as well
Thank you Dr.
My husband was 54 when he was diagnosed with dementia, he is 63,the first years were so difficult for me, now he doesn't talk, but he is able to walk with, he eats, but I noticed that he is having problems whe he drinks water, but I try not to think in what stage he is, today when I saw the video tears came to my face, because I know what stage he is, I pray to my heavenly Father, that don't let him suffer more. May the God bless and give strength to all the caregivers who take care of a love one.🤗
Take care of yourself as well as your husband. Big virtual hug coming your way!
Amen.
Sending love and light.
❤
Thanks for prayers, yes so heartbreaking and hard to watch. Some days makes me sicker than he feels. Hope your doing ok. Blessings 💖
Dear Doctor, I am caring for mom (91) and never worked with dementia before. I was shocked to find that I was doing everything wrong with her. Fortunately I found your series and they have truly been helpful. Thank you.
Dementia with Grace is another great channel.
My mom's dementia was first recognised at the moderate stage when she started hiding things because she did not know me. A lot of my caring was trial and error as I knew nothing about the condition. I found that it was easiest to enter into her view of the world, and not stress us both by trying to put her right about things. Distraction was a useful tool - for example, if she was up through the night and wanted to go out, "well, what about a cup of tea first?" After the tea, she would go back to bed content.
thank you Ms. Janette. i think i'm going thru the same taking care of my mother.
😅
So
I'm a senior and it's really sad to hear stories like this I'm grateful God has given me a sound strong mind as I get over and I would wish and pray that for others as well! 😊🙏😀
Nothing like this was available to me when my husband had dementia. He passed away five years ago. He seemed to be holding his own and doing pretty well at stage two or three until he had a quadruple bypass which then accelerated his memory issues. A year later he developed sepsis and he nearly died from it, although they were able to reverse it before it damaged his internal organs to the point where they would be shutting down. But his cognitive abilities really diminished quite a bit after that, and he was in a steady decline then for about a year and a half and then he suddenly had a shut down of his kidneys and he died. It was very frustrating, because the medical doctors were little to no help. And I found out after he died that he could’ve qualified for hospice many weeks before he went into kidney failure. But neither of his doctors told us, and one of his doctors was supposed to be a specialist in dementia issues. So it was very sad and very frustrating. I spent hours on the Internet on Alzheimer’s and dementia sites trying to figure out where he was in the staging and what I could do to help him, But he didn’t seem to fit into any of the stages, and the doctors kept telling me he could live for another 10 years. I wish that nobody had to watch their loved one go through this. It’s terrible.
I took care of my Mother from beginning to the end. She lasted 6 years. It’s was very hard but I’m honored to be able to be there for her.
a good daughter . bless you.
Becky Hopkins My grandma had Alzheimer’s for a few years and let me tell you one thing: It doesn’t seem like it, but they can hear you and their mind is still functionable, they just can’t express it. I hope you’re mother is healthy now wherever she is. God bless you.
May the Lord bless you deeply. I was honored to take care of both my parents, from cancer...however I was a pca for dementia man. It was my honor also. May people watch their own fan ly. The family could have done it but way too selfish...not cool at all. God forbid you die to self n serve others. Above self, just as Bible says!!!¡
Do me a favor and don't smile while your talking, very annoying! This is a very stressful time and we need someone who explains with sympathy. You may be a doctor, but unless you've been through this with a loved one you have no idea how heartbreaking this is!
Colleen Jackson, how do you know what her experience is?, we are all different and I think she demonstrates great respect and empathy. I wish you all the best.
My mother was on stage 7 for over 5 years. It was a strain on our whole family. She was trapped in her body and there was nothing we could do about it. The day she passed we felt a relief for her. We saw her suffering but, she lived it every day. It was not fair for her to suffer this way, nevertheless, this is a part of life that we need to face, REALTIY. Just be there no matter how long it takes and think only about today and focus on what needs to be done for that day and just do it. Worry about tomorrow, tomorrow.
Rafael Madrigal my mother is suffering also she lays in the bed at the nursing home with the IV she still recognizes me and my sister but she can’t swallow and has difficulty trying to talk physically there’s nothing wrong with her of course she can’t walk anymore it’s absolutely killing me to see her this way and she wants to die but God hasn’t taken her yet.
@@petermaz701 : To deal with the pain you are in, I made it a point to focus on today only, every thing that I needed to do for her today, I did today to the best of my ability. It is too much to think about tomorrow, tomorrow is not in my mind today. I want you to think and understand that this will not go on forever, there will be a time that will end, but, at least you will stand proud that you did your best at a time of need, you are a true hero. Remember that, no one else will understand but you and God. You reward will not be forgotten. And that is a great feeling.
Rafael Madrigal Thank you so much for your kind and inspirational words.
I really like what you have said here and agree 200%... although God is a faith in something unseen...
i just read your comment and it is so much like my experience which a am right in the middle of! Thank you for sharing!
How about tip number 4: Stop haranguing and harassing them with - Do you know who this is? Do you remember Uncle Bruce? Do you know me? Do you, do you, do you...??? It may make a difference to you, but it only stresses them out, because they probably don't remember, and your insistence tells them they should. Let them be calm and content and happy in their "new" world. Let them know you as a "new" friend. After all, you are not the one dying. Love them and keep them safe. That's all they need now on their last journey.
As a nurse on an Alzheimers unit for many years I so appreciate your comment. There is a woman on You tube who does seminars for caretakers and she is wonderful. It's the caretakers that really know their stuff.
@@bobbiewhitten1718 Well, more than one "caregiver" video shows how caregivers can deal with the "horror" of taking care of someone with a dementia. As a man who has MCI, which, heaven forbid, has a chance of turning into a dementia, please can the nonsense about how caregivers having it so bad. I can GUARANTEE after watching my Dad die of Dementia related pneumonia, I can say with 100% accuracy that NO CAREGIVER EVER ANYWHERE WENT THROUGH WHAT MY DAD DID AS HE WAS DYING.
Jim Gallagher I'm sorry for your loss. Sounds awful.
Who mentioned the "horror " of caregiving? I'm not sure what you're referring to there.
I agree with you, though. My dad died of cancer in 2015 (swift and painful decline) and my mum has moderate to severe dementia. Caregiving (for me) involves a steep learning curve and I get it wrong sometimes. However, I know that my occasional discomfort is nothing compared to my mum's, as she's horribly aware of her cognitive limitations and confusion.
I wish you well.
@@kyliejones8827 Thank you, Kylie. It was, and now, even worse, my wife may get to deal with it as I have been diagnosed with MCI which can (but doesn't always) go on to Alzheimers. My wife is a VERY caring, intelligent woman, and I hope for her sake and mine that the MCI stops at MCI. God bless.
Very good point Dian.....My sister, despite her love for our Dad, more than once when I was visiting got VERY angry at my father (Alzheimers). I DO understand that cleaning up after your father as if he was a baby is tough, but I got angry at her for not remembering that our Dad was out of it, and thus no more responsible for his actions than a newborn baby, who I am sure she wouldn't have yelled at if the baby fouled his diaper. I pray that my WONDERFUL, HARD-WORKING, LOVING AND LOVELY WIFE WON'T HAVE TO DO THE SAME FOR ME.
Thank you for this video, very informative.
I care for my mom 85, moderate 5-6. Very difficult no one to help, all my siblings have passed away already.
God give me the Grace I need.
How are you now Tina? We are in similar situations 🙏❤️
Me too n my father sometimes goes violent. Just last wèek he dun allow me to go out.accuse tat i took his gold necklace etc.
Patience and Love is what we need from everybody.
Creating funny situations out of difficult times helped me as a caregiver. In the last stages of dementia when I would walk him to the bathroom he would say this isn't the bathroom. Oh let's find it- I would open the refrigerator and say is it in here? "No he would respond as if it were absurd. So I did absurd things and we laughed. Then came bed and joking about the funny things said. I would make up funny stories about the few spoken words. It broke up the intense moments and we laughed.
Therese Ward such a wonderful way to deal with some of the difficult situations ! Thank you for sharing!
Beautiful, I like that.
Yes. I took care of my gma in hospice at home. I had no idea what I was doing except the few little tricks the nurses showed me so I wouldn't hurt her or myself moving her around. She was coherent but very weak & couldn't hear real well. We pretended to dance to the potty chair or recliner swaying back n forth. We laughed a lot at the dog acting silly, hiding bones in the couch cushions. Once she woke up to cushions flying 20 feet through the air & asked what was happening....the dog looking for bones she hid the day before. She said her foot was hurting so I rubbed her feet to get circulation going & I asked if that was "better". She squinted at my & said "butter?". I said, "bet-ter?" She said, "but-ter." I leaned over to her hearing aid on the opposite side & said, "bet-ter?" She said, "butter or better?" We laughed so hard we couldn't breathe. She ended with, "butter CAN be better sometimes." She patted my hand, looked me in the eyes, smiled & said, "thank you" as she closed her eyes & drifted away. She was a real live angel. I still smile when I think of that memory & am forever grateful she went peacefully & happy.
@@missyleatherwood3521 Jesus Christ....that is so sweet and touching....may she be in God's beautiful gardens rejoicing....
My dad and I had a great laugh over a rather funny phrase he said. Its ok to laugh its actually goid medicine for all involved
When my dad began experiencing dementia he refused to accept that he did not know things that he used to easily know, so in order to appease him my sister and I would play charades until he got the answer. This worked for a few weeks, but as the dementia worsened he became angry and belligerent. He, unfortunately, had other medical issues and as a result he did not live long enough to experience the final stages of dementia. Truly sad to experience all of this when the individual had always been a "take charge" person and able to do most anything whether physical or mental. Experiencing this has told me that it can happen to any of us, so it is helpful to know some of the things that any of us should do to help keep our minds healthy and, in particular as we age. I am 76 and retired a several years ago. I had been keeping physically active with part time work and have kept my brain active by helping my grand children with their school work assignments and to let them challenge me to things that they are doing in school that are unfamiliar to me. Also, staying both physically and mentally fit I am hoping will help keep me from any of the dementia stages, and thank you for your presentation.
My mom has dementia and is at 90 getting worse since having covid, breaking her leg, going to rehab, back in hospital for UTI, back to rehab now back in her Assistive Living place with a one on one caregiver. My husband had a stroke on the right side and memory he is worse than my 90 year old mother. He is at home with me. Boy I could go on and on. Just found you so I subscribed. Topic and the lingering effects.
It’s such a hard thing to live through as a caregiver and loved one. Your videos are very accurate. What I didn’t know was that losing my mom twice gutted me. I lost her to the dementia and then when I realized she was very close to death. It was like someone cut my heart out of my body, I didn’t know that it would be that hard when it got close to the moment of death I thought I was prepared but you never are I guess.
I’m sorry for your loss. I’ve been taking care of my mom with dementia for over 7 years and to this day it’s tearing me apart inside just seeing her fading away. All these years I’ve been able to handle whatever I’ve been dealt. But the issue that has been the most difficult for me to deal with is when I tell her that I love her and she doesn’t even say anything back.😢
I hear you. My mom knows mě as a person, but not as her Daughter. It's So sad. 😢
Thank you Dr. Natalie for these videos. I find them very helpful. I moved in with my Mother about 4 months ago. She's 102 and lives in her own home . It was time...I want her to be able to stay in her home. I'm 68 but I did work as a CNA for many years. I feel blessed I have the training to help me. Thank you again.
102 wow. Bless her!
I just lost my mom October 29th from Alzheimer’s/ dementia related falls.. I will miss her and love her forever
God bless you
I am sorry for your lost
So sorry for your loss.
I am so very sorry for your loss 🙏
Reading the comments is as helpful as the video. Thank you, everyone!
Yes, learning helpful bits of informative information,thank you everyone that is sharing, this will be helpful on my journey with mama
My husband has dementia - hardest thing in my life
My Dad has vascular dementia and is in Stage 7. He is getting weaker. I pray that this stage does not last long for him as I would hate to see him suffer. We have been taking care of him at home and it is a labor of love. Thank you for doing these videos. My sister and I are nurses so we have much experience in this matter. Nonetheless, it is difficult and my heart goes out to the many families and caregivers that are helping their loved ones transition from this one to the next. God bless and keep up the great work.
Your presentations are so helpful and informative. I have attended a number of caregivers' seminars/programs but never have I received the kind of information needed for me as I have received in your videos. Thanks for sharing your knowledge on this topic of dementia. I wish I had had the opportunity to view your videos a couple of years ago when my husband was diagnosed with Alzheimer's dementia. I had been so stressed trying to figure out what is going on and I would fight back with all my might and found myself taking revenge because of his behavior toward me. Now that I have become educated regarding the illness and living his "world," I am much more calm. After 62 years of marriage, my goal is to love him more and care for him to the best of my ability. THANKS AGAIN
Excellent video, thank you. A friend who worked as a nurse in a dementia ward said that dementia is not when you lose your car keys & have to try hard to remember where you put them. Dementia is when you find your car keys & wonder what the hell they're used for. Great analogy, I thought.
WOW! What a great explanation. Because of my mum's dementia we are all a bit worried now (know it's silly though) when we forget where we've put stuff. After reading this, I'm not worried anymore! Thanks a million for sharing.
So thankful for what you just said 🙏💯 God bless I was losing my keys so I thought I was losing my marble also lol
Love what you said, very helpful 🌹
@@marialock007 i
Thanks for this. I keep losing my glasses and wonder if I am in the early stages but my memory is good for the most part. I have to stay sharp to help my husband who can't remember what day it is or what we talked about a few hours ago.
Thank you so much for this video. My 75 year old mom lives with us now due to daily TIA’s and she has ICAD as well. No one sat the family down and explained to us the subjects that your video had covered. I feel so much more equipped to handle her care as the diseases progress. Thank you again! You are sooooo appreciated!
I'm glad you are finding the videos helpful. I wish you all the best as you continue to care for your mom.
By the 3 stage model my wife was in the early part of 3rd stage dementia before I finally decided to place her into a memory care facility. Although she could walk and speak at that time I was toileting her, bathing her, dressing her several times per day. She was easily agitated, frustrated and I believe she was and still is fearful. One of the cruelest aspects of dementia is the fact that the person with the disease is very much aware that "their lives are no longer normal" - I think of it as an a acute and very real (not abstract) condition of existentialism. The person with dementia quite literally is living in each moment with little or no sense of continuity. How terrifying this must be we can only imagine. - this was 27 months ago. Today my wife is well into the 3rd stage. Her ability to verbalize in any meaningful way is long gone. She can not stand nor walk. About the only "normal" function or behavior remaining is her appetite. Although she eats well, she is unable to use utensils (fork, spoon) - CNAs' - the caregivers - cut up her food and allow her to eat using her fingers. Also my wife is now on a "mechanical soft" diet. No more crunchy munchies for her. Her teeth are still ok but she has some difficulty chewing and swallowing - there is a risk that she will choke on solid foods and asperate liquids. We use a thickening agent in all her liquids. My wife no longer recognizes me. But she does still love to be directly engaged and she smiles brightly whenever anyone (especially a female) sits and talks or otherwise interacts with her directly. Her sweet disposition is still there and it comes out whenever she gets that special one on one attention. The reason I am telling these things is because I want to share my observations and experiences with others who have not yet reached the 3rd stage with their loved one in order to help them understand and to recognize the progression of dementia in their own loved one. There is so much more to it than I have described here but I think I hit the points that will be most recognizable. I hope this is helpful. God Bless.
Wow. Keeping you and yours in my prayers. I hate this disease more than anything on Earth.
51Dss i
Wish that we knew about memory care facilities.
@@MJLeger-yj1ww
My mother is not yet diagnosed with Dement. But i have read the symptoms online. You were the only one who had behaviour in your comments. My mother does behave like a child. Im constantly repeating my self and explaining things. She gets agitated quite easily; sleeplessness; excellent memories of the past and accused people of stealing things. Im not sure how to deal with this, because my siblings are all in denial.
51, THANK you for explaining your situation. I can draw on that for placing my friend in the right area of the progression. We all have to go through this if we live long enough. Understanding and knowledge helps me personally. Thanks.
i am watching from Nepal n my father is suffering from 3rd stage of dementia just pray for him god bless for him
Prayers are with you also, friend. God bless you. Watching a parent deal with dementia is one the toughest things a human can witness.
Coconut oil and Omega 3's will work better than prayer.
@@kyliejones8827 Assuming that there is someone in your life with this problem, please go to your nearest health food store and get some coconut and omega 3's. 1 coco and 3 omega's daily are a good dose. God makes those :)
@@kyliejones8827 There is no "god" as you wrote, only God. Surely, many people who read her request for prayer, will pray with her request in mind. The love that dwells within, the highest possible level of human response to another is God. Once you experience God, you will no longer write "if there was a god" but instead will keep God in your heart.
@@MrJeeves4me OK
I'm 48, and seeing dementia specialist. This video has frightened the life out of me
I lost one of my best friends recently, he was young. I feel playing music was helpful, you know, the music of our era. I could tell it brought him back, even for a while. Thank you for your videos.
My sister retired from NBC in Rockefeller center, after working there over 30 yrs. She retired in Ridgefield, CT, at 64. She started forgetting things very rapidly. 5 yrs later, she is wheelchair bound, diapers, spoon fed,and round the clock caregivers.She is almost non verbal. She was diagnosed with Lewy Bodies, which is part Parkinsons. Blessings and prayers to the medical people, who take care of the sick.
I'm so sorry to hear about your sister, Sally. It can be such a cruel disease. Wishing your sister all the comfort and peace possible during this stage of her life.
Thank you so much for your helpful informative videos. I care for, and help my mom at home. She has moderate stage 5-6 dementia. She was diagnosed 2 years ago and put on Aricept. But now we know that it started a couple years before. I am mostly done mourning the loss of the mom that I once had. Now I'm learning how to deal with and care for her as best that I can. I miss her and it gets really hard sometimes. But there are moments of peace and we love that time.
May you be given the strength as you care for your mom. Blessings
My husband is in first stage short term memory loss feels he can’t mix with people now neglecting himself a little can’t do anything that involves thinking but we go to the town he drives but I have to say some times Which turning to take because he has lost sense of direction so he wants to be with me but as long he is on familiar routes he’s ok and very careful but I know when he can’t drive he will deteriorate He has driven all his life competent on long journeys We have had a good life but this is the end and I’m so sorry for him
My friend is 57 years old and was diagnosed with Alzheimer’s and Dementia. I have worked with Alzheimer’s patients for a long time. This is breaking my heart. Thank you for your videos.😊
My mother passed in 2014 from dementia. It took 4 years from no longer being able to live on her own until death. First was not remembering bills, or upcoming events, etc. When she got lost driving, a neighbor alerted me. Then she lived with my sister for 2 years until long term care was needed for hygiene, etc. She quickly needed 24 hour care in the memory center as she completely lost her ability to communicate. I was able to take her to dinner for about a year while at the center but then her lack of mobility and ability to eat on her own ended that. She would still recognize me and other relatives even then. The end happened 6 months after that.
My father in law passed away from dementia but he knew who I was and could smile, so I'm thankful for that. There was a small piece of his soul still there. I'm missing him today. We used to talk about politics, I don't have any friends that dare talk about what is going on in the world. My father in law was a rare gem.
Sounds like you had interesting conversations with him! I'm sure you miss that and miss him. This horrible disease doesn't discriminate on whom it affects that's for sure! Sorry for your familys loss.
@@gloriamaryhaywood2217 I think about him every day.sometimes I feel him near and I feel like he's smiling.
I am taking care of my father now...hard to say where he is...no conversation, making up statements...thinks I have to make a payment...stares at me...starting to be a problem in the bathroom...a couple times waste in bed on sheet...little showering...no shaving...shuffles when he walks...very unsteady...thank you for your videos..I will tell you more soon...I am watching your videos and learning
I'm a daughter helping my mom take care of my dad, reading your comments sent chills down my spine as we are going through the same thing with my dad. My dad has been a well respected minister in our community so He has went from the Gospel to Gangster it seems it's better to Laugh not to cry. I pray God continues to be there for you and your family daily.
Same with my Mom 😞
One common element for all care givers and recipients is that it sucks for everybody..
Came across your comment ... it only suck for family or other loved one . To the dementia patient they are quiet normal
My mother has severe dementia & now that I'm older I think I may be getting it how do I know?
@@melindadobson109 i am an ex support worker . Make an appointment with your Dr . Discuss things and he will probably give you a cognitive test . Just because mum had dementia , doesn't mean you will ...
Indeed! No just or fair "god" would allow things like this to take a human. The pain, the dementia, the terrible ails of humanity will hopefully one day be dealt with more Humanely! Even our animals have a right to die w/dignity. Robin Williams saved himself from "Lewy Dem" What a brave man ! I am tired of hearing about suicides going to hell. Wrong! These people deserve an Out !
@@dejacavu6259 Stay away from the caffeine. You're a little too agitated.
Thank you so much for this video. My mother-in-law was diagnosed with dementia about two years ago now, but she is in full-on denial about it. She refuses any and all help from 'outside the family,' and when any of us family help her with anything we have to pretend we didn't afterwards, because if we don't she denies that we helped her at all, and accuses us of lying, because she's still perfectly capable of doing everything for herself, thank you very much... She HATES seeing the letter from the doctor that confirms her dementia diagnosis, rails at us for being the ones who 'made' her go through the process of being diagnosed at all, and is full-on abusive if any of us so much as mention her dementia in public, even discreetly, when she's struggling to deal with people in customer/service situations. Our house is way too small for her to come and live with us, (we literally don't have a room we could put her in,) and none of us live that near to her, but she won't even let us hire a care worker to come and visit her a couple of times a week. She's of a generation that's consumed with What People Might Think, and sees dementia as a huge social fall from grace that 'nice, middle-class ladies' like her should never, ever have. It makes it very hard for us to help her at all sometimes, with anything.
I hear ya.
My mom can be difficult.
Shes from the 1934 area.
Denial all the way.
We keep her as happy as we can.
Make jokes. Funny faces.
Comments of what she used on us kids.
Lol comes to bite her in butt.
She's quick with a come back.
So much fun.
We dont argue with her.
We have issues of over feeding her dog.
Her world is her dog.
Im thankful for this time. Its stress ful yea
But She raised 7 kids on her own.
Times were hard.
Bad times.
Good memories. Lol.
Charish this time with her.
My moms illness gets worse as time goes by.
Never know when, willbe their last day or night with us.
What a horrible situation for you. I hope that you have good stuff happening to keep you going.
My mil is mostly blind, deaf and on oxygen. She thinks she can do everything and never asks for help. It is more passive aggressive like”where did you hide the scissors?” Last night she couldn’t find the toaster on the counter. She wanted toast but won’t ask for it. And very vain in public. Her previous dr. didn’t know she was blind. She hides it well.
my mom died last year from dementia! still hurting .. loved her ..
God bless her,
My Mum died last year to from vascular dementia. First Xmas with out Her ,
Thank you for your words.
God bless
God bless you, natsrun, as my father died two years ago from this devil of a disease.
Well, Nats run, God bless you and your mom, as this is a horrible thing for your mom and for you. My mom died of COPD (smoker's disease) and it was horrible. My Dad died of a Dementia induced pneumonia, and while I wanted to be with my Dad every moment till he died it was the hardest thing I've ever done. God bless you.
@Donald J are you on crack?
Thank you~ Your input have helped me more than you know~ I care for my 96 year old mother~ I have learned what to say and what not to say~ How to deflect and change subject to lessen her anxiety ~ I’m still learning ~
Thank you very much for the 2 breakdowns. My parent is in the very early (mild) stage. Your videos are helping me be a better caregiver/child to my parent. I always say to my child, knowledge is power, ignorance is a choice
I’ve asked my children to put me in a nursing home if I cannot live independently, saves them from the guilt and emotional turmoil of making that decision.
You really are amazing for saying this to You're children ,
Incredible lady xxxxx
❤
You are an incredible unselfish person to do this for you children
They were gonna put you in a home anyway
The problem with homes with memory care is that they are $7,000 per month. I hope you all have the financial wherewithal to do that. God bless.
Who pays for nursing home?
Thank you for the video. I am trying to learn more about this. My dad was just diagnosed with vascular dementia and hes already on the second stage and rapidly approaching the third (using the 3 scale. 5 on 7 scale). Idk how much longer my mom can care for him on her own. Its a horrible illness 😞
Absolutely agree with one of the assessments here! They don't need to be harassed because it's not their fault that their mind is going they need compassion love and prayers and understanding! If we were in their position we would hope for the same thing as well! 😢🙏😢
Do some heavy metal detoxing. There are several ways to get the body to get rid of the metals. Also, read the ingredients in their medications, the fillers, many have aluminum flakes in them. Lots of meds manufactured and shipped from China and for some reason our oh so caring fda allows companies to use harmful substances as fillers in the pills. When doing brain scans they found patients with dementia and alzheimers had large amounts of aluminum in their brains. Thankfully my mom is more sensitive and kept having a metallic taste in her mouth. The pharmacy switched to a different generic of the same medication. She noticed the metallic taste, so she looked up the ingredients and then went to the pharmacy and made them swap it out with her original brand. They did not want to switch it out and my mom had to press the issue to get them to do it. I wish they'd stop telling people this is a progressive illness without any sort of improvement or coming back out of it and not even telling people what causes it and contributes to it getting worse. The very medications they give older folks is polluted with aluminum and other fillers which eventually find their ways to the brains. Apple pectin powder is said to help extract these metals from the body. Other foreign substances can be detoxed with activated charcoal capsules, just use the 2 hour rule.....do not take together with any medications or with any other supplements as activated charcoal will cancel them out. By using the 2 hour rule it helps to avoid issues.
My dad is stage 7 and my mom has been taking care of him since day one and my brother's and myself hired a caregiver for her so that she may have somebody to talk to and keep her co because it is going to get harder while my dad did not know what was happening to him my mom was getting tired and very frustrated caregiver was a lot of help for her...
As a caregiver I’ve noticed that the patients’ symptoms were also side effects of their medications. So these stages, could they also be related to the different meds given, some meds also being given to alleviate the side-effects of their other medications?
My Aunt Mary Ann has dementia. It's absolutely heart breaking for me to watch her go through this living hell. She's my favorite Aunt. I really do love her dearly. I pray that her son,Michael and her sister, Hannah will show her more patience and love. It's sad how they horribly disrespect her. There are healthy foods and healthy water, & sleep, moving around, music, pictures, times with their loved ones, talking about accurate loving memories they have with those around them, who truly love them.
My grandma is 86 and is just at the point she can’t medicate herself or cook and stresses about running errands and driving. This is the year she will need to get full time assistance. It’s sad to watch her struggle but I’m thankful she lived a very full and great life.
My father is 82 and appears to be in stage 5 of 7. Its very challenging for him because he is an amputee and blind. He is extremely resistant to going to a nursing home because he has gone to one for a year before the dementia started and he still remembers how horrible it was. He is single, so I hired a private caregiver for 3 hrs a day 5 days a week. He just recently lost the ability to remember how to find the places in his house. I've installed a web cam and an automated med dispenser and so far these devices are giving him the independence he desires, but I don't anticipate it will for very much longer. He's loosing the ability to use his cell phone properly and has occasional incontinence. He also gets delirious, talks about being somewhere else and doing things that are not even possible. He still thinks he can take the bus, but it is not safe anymore, and he gets very mad when I let him know that he needs to allow his caregiver to drive him. Any advice or tips is appreciated. He still has pride and is very defensive, I have to get very creative in conversations and then he will forget what we agreed to.
I am new to watching your videos. Did you do one on Lewy Body dementia? My late husband had this type of dementia and it manifested very differently than other types. The stages were very different. Up until a month before he died he still knew who everyone was and could remember past events. However he had a lot of problems with everyday tasks. The first thing I noticed was his problem with playing cards and board games. It progressed to where he couldn't dress himself, operate the remote or do anything where he had to figure out a process. Hallucinations came early and in the beginning he knew or suspected he was hallucinating and they were innocuous, mostly animals and children.. Once when a small dog approached he reached down to pet it and stopped half-way and turned to me to ask whether the dog was really there or not. We both laughed over this. Another time he was making himself a sandwich and I heard him say 'damn it' and when I asked what was wrong he said he dropped the lunch meat on the floor. I said 'don't worry the dog will get it' (we didn't have a dog) and he laughed at this. The point I am making here is that it is possible for someone to still have a sense of humor in the early stages. However, the hallucinations became very scary near the end and he didn't realize then that he was hallucinating. His behavior would be off the charts when he had a bladder infection due to problems in his kidneys, bladder and urethra.
Now, to some very important advice I can give anyone who is dealing with Lewy Body dementia. Get a wallet card from the Lewy Body Association. I cannot tell you how many times I had to explain to emergency room doctors, who had no idea what Lewy Body dementia was, that he couldn't have certain drugs and to not just ask him who I was or who was president was to determine if he were delirious. I trained him to say Roosevelt was president. This card was a godsend! Doctors would pay attention to that when they wouldn't pay attention to me. I wished I had known about it earlier.
I don't remember where I heard this but this metaphor stuck with me. Think of your brain's memory as a well organized file cabinet. With most types of dementia the files just start getting destroyed with the most recent ones first, making it at times actually easier to find those earlier ones. With Lewy Body dementia, the files aren't destroyed but just disorganized so it may take longer to find the one you want until they become so disorganized that you no longer can. I can't tell you how many times in the beginning friends and family would say something like 'Doug can't have dementia, his memory is better than mine,'
I am watching your videos because my sister has been diagnosed with MCI and am getting armed to deal with what is to come. I scouted around RUclips and found yours to be the best. THANK YOU
Hi first of all, I want to say thank you so much I personally think you’re one of the angels on earth. My mother is 91 years of age. It hasn’t been much like a pistol for most of our life, or Some would say spitfire. Seven years ago, my brother had Alzheimer’s he was 66 and I think we was watching him so hard we didn’t notice our recognize that my mom was going through her stages. My brother passed her first year of Covid. Removed from my home to take care of her. Because she kept falling I should have really educated myself before I moved. It has been whirlwind. I still would have move, but it would’ve been better to know. It just seems like soon as I get used to one thing a series of other things start happening. I am the only one taking care of her. Right now she’s at the stage where she don’t know what pants are are a shirt if I put her arms in the shirt she can put it on if I say pull the shirt down she don’t know what that means. I take care of my grandson through the daytime and it seems like she often gets jealous when he is eating even if she just ate before we got here what do I do?
Just discovered these videos tonight thanks to my uncle. Thank you.
My wife has dementia of 7th stage, she is just 41, not able to do anything on her own, needs help in toileting, bathing, etc. She progressed from stage I to stave 7 in just 4 years. Now a days, she is shouting a lot as well. It is really painful to see her suffer like this. I wish I could do something!
So my Dad is in his 80's he is in great physical health overall. He repeats the same 3 stories over and over again often asking"have I told you this before" is redirecting the only way to help. Yes he has been diagnosed with dimentia. I am trying to get my mom to go to classes to help her understand as well as get supported and encouraged.
I understand what you mean but, just change the subject, like would you like a cookie and milk, it might help. It's what I do and it works for me.
@@sheilasorrentino8922 very good
I'm helping care for my 62 year-old ex-wife with Frontotemporal dementia, and I'm finding your videos very helpful. Thanks for what you're doing here.
I’m the caregiver in my situation I’m taking care of a lifelong friends mom. By watching your videos I have opened up and soaked in as much info as I could however my friend before she leaves for work and as soon as she gets home from work the arguments start before I leave. Grammy had been in a rehab for months after about the fifth time falling and popping her hip out. We picked her up two weeks ago and brought her home and she’s living with my friend now. Her thing is she thinks she can live alone and harps over that I go along with her and tell her we can go look for apartments tomorrow and she’s fine. She is able to still do things but she will come out of the bathroom and leave water running asking same things over and over. There are days she will tell me stories and we laugh. I go into her world. Some of her over and over and over questions are. I can live by myself, I’ll do it I have to learn to do it myself, home health is coming by and home therapy she hates them coming in and thinks she is being charged for their services and she don’t need to pay them however she won’t do anything they show her to do. I will suggest we go over her exercises and her answer is I will trying to get her to take in water other sources of liquid she says oh well I gotta die someday I don’t care. She fidgets all day can not sit still and just relax. I just let her do as she wants she tells me all the time you don’t have to stay here I’m fine by myself. I will say what if I wanna stay. She is fine with that. My question is how can I get my friend to go into her mom’s world and not try and bring her back into ours. It hurts me seeing them argue and get to yelling at each other? Thank you for what you do
Having lost my wife to Alzheimer's in May after 14 years of care giving I find this video real close to being totally accurate. The thing to keep in mind is everyone progresses at a different rate. I wish I would have seen this video at the beginning.
Three stages. #1. You believe what politicians say. #2 The party you belong too is always right and never wrong. # 3. You complain about politicians and want term limits, yet you VOTE the same people into office over and over and over again because you vote strictly on party lines.
I am very sorry for your loss🙏
Sadly my brother got dementia in his early 50's and passed away in November 2018 at 59 in a nursing home. He was very conservative and astute as an engineer and completely changed once he got dementia. Very sad. I hope there is a cure one day soon. May my wonderful brother rest in peace finally after so much hardship with this ravenous disease.
I just found you in the comments. I was looking for dementia in a young person. My son is 59 and has be diagnosed with dementia. Last week we got the report from the neurologist about our son’s pet scan. In the last 9 months there is a big decline in the frontal part of his brain. I think up to now we were in denial. He looks good and is healthy up to now but his wife is noticing the decline more than us. We try to be a support to them. It is very hard to see him going down each day. Thank you again for sharing it has help me.
my mom went downhill fast after sundowners. its sad that my dad died quickly from cancer and told me all he wanted to do was to live to take care of my mom. i honored his wish and took care of her.
My MIL has dementia bad and has sundowners. I look after her 2 days a week (using the 7 stage model she's in between 5 and 6). Poor lady is progressing so fast. Any way you can give me a more detailed idea of what to expect based on your experience? I want to help best I can.
Dr. Natali, thank you SO MUCH for your videos! I just discovered them tonight, have already watched a half dozen, and shared some with friends and family. Your videos are a wonderful resource and I’m very grateful for your generosity in offering them freely. Many blessings!
Thank you for this. My mom is not doing well. I needed something to understand what is happening. You should do a video on how to respond to the anger and paranoia.
I too could use some help in understanding how I should respond to my brother that I am now taking care of; he has had dementia for a while, no one noticed or he hid it well and now that I am in the middle of this, I am trying my best. Sometimes I feel that I am doing great and other times I feel sorry for myself. I am wondering how to deal with the negative feelings because while others tell me what a good thing I am doing, sometimes I doubt myself and it stresses me out. Most of the time my brother is lovely but there have been times when he is angry himself over what he sees as his loss of autonomy. Most of the time he doesn't know who I am either, which is disheartening.
Change the topic of conversation. Reassure them everything is ok. Don't argue it is make them feel worse.
This past weekend I went to go visit my uncle's wife my uncle died 3 years ago... long story short she feels as though people are stealing from her! Mentally she remembers a lot short-term has become quite noticeable! I'm a nervous wreck right now just got home a few hours ago I feel distress right now! My uncle loved her and I loved my uncle! Forgive me for what I'm about to say.... she has always been a mean person my uncle on the other hand, the best person that you would ever want to meet generous kind sense of humor Charming! I am so sorry I just don't know where to turn right now!
I was diagnosed with dementia in nursing home, was really suffering from depression. Months ago, spoke to doctor, after several questions, he said my meds could be discontinued. I wasnt suffering from dementia, have a better memory than the doctor!
My husband was diagnosed with mild dementiaI a year ago. He also has one leg amputated. I have two sons, both with families and live out of town I truly believe I will need to place him in a home when the time comes. He is a big man and I am very small.
Thank you very much.
My Grandmother has symptoms in each stage. It's been 2 years now. A symptom that comes and goes a lot is "theres nothing wrong with me" this is still very difficult to deal with. One minute she'll say "nothings wrong with me" then 10 minutes later she'll ask for help. The symptoms of being angry and accusatory are there everyday, sad to say. She often yells at me when I show her stuff that she was dead set on being right, turns out to be wrong. In no way am I trying to show her up, or that I'm right. Every time I do that to help her remember, she says "I'm not stupid dammit, and nothings wrong with me" my Grandmother is really hard to handle, so I can use all the help I can get. Again, she's 2 years diagnosed...
Thanks again!
Hi Shelby, I'm including a link to a video I did on why people with dementia sometimes don't believe anything is wrong with them. I hope it can help you as you continue to care for your grandmother. Good luck! ruclips.net/video/SJegLeA4YTE/видео.html
same here. Her videos are very helpful. Dont argue with her. Agree and stay calm and loving. She can't help it.
Ask your doctor about anti psychotic medication that will help with the anger.
It is so tragic to watch someone you love gradually but steadily loose their mental faculties until in the end their personality is no longer there. It requires a boatload of love and patience to travel this road.
It's a hard road for sure my mum has Alzheimer's hovering between stage 4 & 5
My fiancee is showing signs of dementia, and he cannot manage or organize his life or anything anymore. He introduces me as his girlfriend, but he keeps forgetting my name. We have been in a relationship for 31 years and gotten engaged three years ago. We wish that we would have married when we were young, but now at our ages, it may be too late. We love each other so much, but he may have forgotten, and I find myself crying everyday. Thank you for sharing!
One of the most heartbreaking aspects is the good days in between.
These break my heart 😢
This.
Having lost my Mom to this terrible disease the three-stage model was dead on accurate and the timeline was about 10 years from disease recognition to expiration and passing. This is well done and a very accurate portrayal of the progression in the case of my loved one. Stage 3 was about 18 months for her.
It is unsettling to see someone you knew as a living functioning person turn into a feeble shadow of their original selves. It makes you ponder the nature of one's own consciousness and sense of identity, and how tied it is to memory, and the ability to actually comprehend what is happening around you.
Something to ask yourself is this: How much of your actions, moment by moment, are dictated by environmental clues? For example, if you are given some food, you will likely eat it. For a person with dementia, there will be an automatic assumption that it is meal time. In other words, they operate based on assumptions generated by the context within which they find themselves. And the scary thing is, we ALL do this. For example, you are driving home, and you recognise which turns to make because you are familiar with the road as you have seen it many times. How many times have you driven 'on autopilot', thinking about something else, only to realise you have taken a familiar route rather than the exceptional one you had intended but which would have required you to think about where you were going? So how do you tell if someone is acting volitionally, or just responding to contextual clues? It can be very confusing. You can end up not realising that a person is already suffering from an early stage of dementia.
The affected person appears to have a fragmentary consciousness, a succession of discontinuous moments. Their inability to remember things that have just happened turns out in some ways to be a blessing as what they forget includes things that have stressed them up. In a gathering, they might introduce themselves to someone, then do the same thing half an hour later, which makes you realise that, had that 2nd incident not have occurred, you would never have guessed that there is a problem, but now you absolutely definitely know there is, and it is serious.
At the same time, they may believe they are hungry, having no recollection of eating. Conversely, they may assume they have eaten, and be puzzled as to why food is being brought to them. It is also common to lose sync with the day and night cycle, so people can be up in the middle of the night, not realising they should be in bed. Which is a nightmare for their families in a home environment, as they could easily have a fall, or an accident in the kitchen, or accidentally set fire to something on the hob.
Muscle memory remains for a long time. For example, a long-known ability to make a perfect omelette. But then not understand who it is for. Or believe they can't have it because they believer they are not at home and do not want to take things to which they think they are not entitled or for which they feel they should be offering payment.
Older memories, such as those from childhood, come to the fore, as if layers of memory deposited in later years have unwound and been blown away. Traumas from those childhood times come to the fore too, although eventually even those fade.
Recognition of other people may take the form of a feeling of ease in the presence of family members, as if their is a perception that the person is not a threat, but no real idea of who they are. It is very distressing for family members who have not seen the person for some time, to suddenly find themselves being talked about as 'those people, what are they doing in my house?'.
In hospital a patient next to me was made to sit in a chair by the nurses because it was not healthy to spend the day in bed. His chair had a buzzer that went off to alert the nurses if he stood up and began to go walkabout. He would stand up, the buzzer would go off, and he would ask what the hell it was. He even asked me if my chair did the same thing. He also took my shoes, believing they were his. The silver lining, sad though it is, was that he forgot all about the incident, until, like a Groundhog Day, he repeated the same thing over again, with no awareness of it being a repeat.
Another patient was wearing an oxygen mask and was told not to take it off. But he would forget what it was for, and kept removing it. There is only so much that can be done. Forcing a patient to remain seated, or to wear a mask, is not really an option. Some patients panic because they do not understand what is happening and want to escape.
Another patient got up during the night, pulled out the drain tube from a surgical wound, and began getting dressed to leave. In the next ward there was a panic during the night as a female patient ran naked through the ward. These may sound comical or silly but they are very real problems.
Despite all the urgent research being done, there are no cures, and the medicines that can help are of only marginal benefit, eg they might slow down the onset for a while. This is becoming a major problem for societies as the demographic shift towards a higher average age in the population continues.
Yes, medical intervention is marginal at best with this disease.
It's sad that we really haven't progressed scientifically hardly any since many decades ago. It's also very Scary!!
Thank you. I am living this now with my wonderful mom. I appreciate your “heads up “, and will be brave
My mom is going thru this now, I am glad that I found this channel, sitting here reading thankful for them,so much information to understand, but I do thank you blessings to you all
Thank you very much
Thanks for the read. Blessings
Now I understand which stage my at dementia is.. This is very helpful information. My dad is 70 and had moderate dementia he is highly suspicious of my mum, think she cheat on him and he just can't get over it for a year now.. We're so depressed becoz he usually don't sleep and accusing all the time and becomes violent most times. How can I help him forget it or what to do to control his attitude towards her?
I have 3 sisters and all of them don't want to take responsibility of helping look after them. I'm the youngest and had 2 kids, no support from my family members but try to look after them and don't have a clue how to.. I cried alone most times in the night not knowing what to do. I sometimes just don't talk to him at all to avoid getting in an argument with him..
Thank you for being there. You are so informative
My mum god love her has had her wings for a year now, we had a beautiful anniversary on the 20th June 2020. We noted at the beginning of that year that she had “mild dementia” what we/she called “ momentary dementia” in great laughter, we have always been a very dry quick wit family since the beginning and it’s helped us cope with so many challenges in our lives and we continued so with our mum, she was diagnosed with bone cancer only a month before passing and had absolutely no pain until the last day of her passing, she was an absolute grace throughout it all. Thank you for sharing, I thought it rather insensitive to share outside my immediate family till I read these stories ... it felt wonderful to share my beautiful mums strength at her young age of 95 and was totally independent in her own home up until the year before her flight above.
I’m a live in caregiver for a 95 y/o woman & on the 7 step scale, this woman is in between 5 & 6, on the 3 step, in between 1 & 2, but moving closer to being more 2 lately. The aggressive behavior & even tantrums & name calling have been the most defining aspect
How are you doing 😊😊👋👋😊👋👋😊
Thank you very much for this information.
My 🙏🙏🙏🙏🙏🙏🙏🙏to everyone with dementia and the people that takes care of them
I just want to thank you for this channel. My wife of 48 years, just passed on. She had dementia. There were times I did not know what to do, where to turn to. Then I came upon your channel. It was an eye-opener, a mentoring source and a life-saver. Thank you very much. You have no idea what a great blessing your channel have been to us.
Thank you, I find your pieces so very helpful.
This is so wonderful! Thank you! ❤️
Thank you Dr. Natalie this was so helpful
Thank you, this helps.
Thank you! Great info and easy to understand.
Thank you for that.👍
Thank you so much for your info.!
Thank you. This is very helpful.
Thank you for sharing!
Thank you! Very helpful! God Bless you!
Thank you. You are an important person to my wife and I as we journey through the last stages of our mother’s’ lives. We deal as best we can and bask in their moments of joy. Again, thank you.
Excellent, easy to understand.
Thank you so much for the information.
Thank you! Very helpful.
Thank you for your video. It was well done, and covered a sensitive topic.
Very helpful information. I just wish the person I'm dealing with would accept the fact she needs help
Very helpful.
Thank you.
Thank you, your information is vital. Mary W
I want you to know that we are most grateful for you ❤️ when we first understood my mom and my children was told you're mother has damincha! I being a only son,I was at such a los for what too do,then I found your support system! Thank you Soo much! you are are light in this dark time.
This was so helpful and Thank You. I look forward to more videos.
Thank you for the information you have given us....
Thank you so much! This was very helpful and answered some of the questions I had.
Thank you so much it helps me a lot, to understand more about dementia.
Thank you for this helpful information. I learned a lot, as well as the things not to do. I appreciate the research you have done.
thank you so much for sharing this information
Thank you. Very informative.