I Almost Went Septic (AGAIN!) STORYTIME
HTML-код
- Опубликовано: 20 янв 2024
- GoFundMe: gofund.me/e7770786
Background and boarder by / beanzbby
If you like my content then consider joining any of the following :)
Patreon: / radpax
Ko-Fi: ko-fi.com/A044GYE
you can also find me on other sites
Instagram: / rad_pax
Twitter: / radpax
TikTok: www.tiktok.com/@radpax?lang=en
Discord: / discord 
Кино
![Sean Rii, Karyon, Sharzkii - Taungule [My Love] (Official Music Video)](http://i.ytimg.com/vi/eJoMuypbSzQ/mqdefault.jpg)
![I Almost Died [Storytime]](/img/1.gif)
When I was getting my wheelchair (ultralight with a smartdrive power assist) insurance fucked me over so much that i had to go through a charity. It took months upon months to get it sponsored/fundraised but thankfully i got it right after my eighteenth birthday. Insurance and trying to get things covered all while dealing with garbage health is literal hell on earth. Hoping you can get a good powerchair that fits you well and gives you your life back!
Whats worse too is WITH a wheelchair people will actually improve health wise. Heck even just their mental health doing better to GO OUTSIDE can help sooo much.
I just wanted to say I hope you’re doing alright and that your voice sounds really good I really like it! It’s so nice
thank youuuuuuu!
man it’s really terrible that you have to deal with so much. being chronically ill is horrendous and although i don’t have any immune system problems, i have a degenerative joint disability and some chronic pain that mean i’ll probably need a wheelchair around when i turn 20. i’m definitely not looking forward to trying to deal with insurance since i’ll still have the ability to be ambulatory and i know they won’t want to fund anything 😭 american health care sucks
Its so dumb. Oh you can KIND OF walk? Nah you're fine.
I'm so sorry you're going through that. Just do what you can for the inflammation that your disease can cause to help the pain. All any of us can do ♥️
I'm so sorry you're going through all of this... I'm also in Oregon, and my boyfriend has been dealing with similar insurance issues. He has crohn's and his medication is around $8000 per dose that he has to go in for (about an hour of infusion), his insurance (state insurance) has been fighting with the hospital so he's been getting his infusions late recently and they keep paying the wrong people somehow...
I really hope things get better for everyone. It's been really hard watching everyone around you getting screwed over not only by the system but by their own bodies...
Sounds like a nightmare. I hate fighting insurance. Last year had to fight them for one of the meds I been on for like 5 years. This year luckily they still letting me take it but it when up a lot. Even though it taking more out of my paychecks each week. -_-
I wish you the best insurance is so crazy and it sucks how much money you need to just keep your body going sometimes.
One of my close friends is in the process of getting diagnosed with FND. The US healthcare system is a joke and a disappointment, and us chronically ill folk go through soooo much shit. I hope you are able to receive the care and aids you need, and that you start to feel better soon. FND and ulcerative colitis absolutely suck and I hope that we can collectively kick its ass
No rush, take ur time health comes first just happy to know ur ok
dude you really won the genetic lottery
ANOTHER DAYYY, ANOTHER SLAAAY
I have an ex QPP who has ulcerative colitis and he told me how much food was terrible for him to eat.
He couldn't have been sprouts cuz you can get e coli from it if it's not properly handled, he can't have corn, he can't have so so so much and was in and out of hospitals.
I'm so sorry for this all. This is horrific and you health has been hell
i have rosacea, which causes a lot of acne. somehow, this also affects my eyes and causes an abominably large amount of irritation - i'm on a specific kind of eyedrops to treat the irritation in that eye, which has more or less been confirmed to be dry eye.
legit, don't worry too much about the skin.
I really wish you to be ok.
I am so sorry for you now knowing why you where gone
i'm doing better at least!! And finally getting work done >:)
The United States has the worst medical system in the world, and its appalling how its not been fixed. Thankfully I have insurance from having a life disability, and if I didn't have the insurance, some of the things I need such as an MRI once a year would cost thousands of dollars. I did the numbers once and found out that if I didn't have the insurance. That it would be cheaper to fly to Germany, have the MRI there (which is 300$ USD when last checked) and fly back, The cost of the MRI, round trip tickets, food and lodging would still be far cheaper than the cost of an MRI in the United States. For me it would be even less since, I have German cousins in Germany so staying with them would bring that cost down even more. I've been on chemo too, when I was 14, that stuff is a horrible experience to endure. I hope you can get the medical care you need. Sorry to hear its been so rough for you.
Hey Pax, I’m sorry your health hasn’t been great, honestly free healthcare should be mandatory in every country. Hope you’ll be able to afford the wheelchair.
For reaaal. Its insane that we have to pay just to be alive!
and I thought my medication side effects leaving me too nauseous to move was bad, eek! I'm sorry you've had to go through all that, and I really hope you're faring better.
As a fellow chronically ill person (I have Du henne Muscular Dystrophy), I hope that you feel better soon! 💜
Hey pax, hope things start looking up for ya soon, I believe in you dude. You've gone through a lot and I'm sure you'll be able to get through this too. You've got this!!
Hey, listen mate - I remember your previous videos, and I remember their tone. Sure your situation is far from good, and I can't even imagine how hard it must to be to juggle so many medical issues with what you already have on your plate... BUT: I also remember how back then you did not believed you'll ever be on testosterone, did not know how long you'll survive, was in messy relationship, and look at yourself now! Going closer to be who you want to be, in healthy relationship, even better artist than you've been before... there is nothing to be ashamed off. You are strong person. Looks? They are fleeting anyway and it won't be covered by a bit of red skin, or few wounds. You're strong person that might still be struggling to get on that mountaint but if you look below (don't, it's high and scary) you'll see one hell of a hard, steep way you already powered through! Get better mate, on your own pace, and do not focus on few mishaps along the way. You'll eventually get where you want to be.
Please take care, sadly I can't donate. I still hope your recovery will go well and can get all the health care you need
Its okay! Thank you for watching, that in its own way helps!
Iv not seen one of your videos iv 4 years apparently just to see this I hope you get stronger iv been thinking of your videof for about 2 years just couldn't find the channel
Hey Pax! I was just thinking about you and how much I missed your videos! I’m so glad you’re alive and….okay? Continue focusing on your health and make sure to stay hydrated and full! Don’t stress too much on putting out content or anything like that, we just want you to focus on yourself!^^
Thanks for being such an inspiration!
oh my gosh last time i saw ur channel i was in the laurenzside server when i was like..12! Im 18 now amd im so excited for you and finally getting on T!
My fiance has FND! I'm glad you're talking about it, people get easily confused by literally everything you say when you're trying to explain what it is and what it does 😑. The second you say it has to do with the brain but you don't have brain damage, people are like "oh, hypocondria!" "-no, nope. Different thing entirely, like not even in the same family, completely unrelated"
Brain had decided to do its own thing and my pathetic meat suit can only obey as I seiz on the floor LOL
@@RadPaxOfficial your brain and body are just that scene from I.S.S when Gordan has to go fix the attena, lol
Hi Pax! I'm sorry your health has been bothering you. Take care!
i started thinking about your intro a few weeks ago and started addresing my friends as "qt's"
Omg cute!
Hey rad. ive only recently started watching you but i really like your content. hope things get better for you, my man
Thank youuuuuuu!
You got any docs willing to investigate and potentially prescribe bios like Risankizumab? It's pricey but like if ur immune system is being a fucker but there's some routes through medicaid
Currently on Stelara so now gotta hope it works or I'll need to change again or possibly get surgery 😔
Omg you finally got T didn’t you! When did that happen im so happy for you!
Edit: omg it happened 2 years ago?? Where have i been- i guess i lost tabs on you? Last i remember hearing about T from you was when you said you couldn’t get on it because of medical reasons (i think?)
My body is still struggling some on T but I have a specialist montoring me and getting regular blood work to make sure I'm okay. If at any point my body says "nope!!" We will stop. Which would suck but id rather be safe and healthy than pass more.
I'm taking it all one day at a time with life
@@RadPaxOfficial plus, i mean, i doubt your body is just magically gonna revert to how it started out, you’d still have certain changes like your voice as far as im aware, those are like physical changes to the vocal chords- so even if you do have to go off at one point, its not a complete loss…
I do hope everything works out fine though! Its been ages since i watched your content tho!! So its nice to catch up! Your voice sounds so good!
Nurgle's Bravest Soldier o7
On a more serious note, hope things will become better for you .
They slowly are. I'm glad my skin isn't making me look like Red Skull 🤣
Damn , I'm sorry about that man. I hope you're health gets better and improves. Here for you dude. 🏳️⚧️
first!!!
edit: I was thinking about you the other day, nearly forgot your username but then I had to look you up cuz I thought maybe something happened to you. been a fan since 2018 ❤ so glad you're back and doing somewhat okay
My body decided to give me the middle finger for a bit but slowly doing a bit better :) !
@RadPaxOfficial oh no 😭 mine too, don't feel bad. hope u get well soon 🙏
Hugs
I am very sorry this is happening to you. Also, just definetly, FUCK the american healthcare system, thats disgusting and you deserve so much better.
I'm glad I have insurance and can get help but good lord do I wish I could afford the RIGHT care 😭
Hey Pax would it be alright if I sent your link to my lgbtq+ discord server? I unfortunately do not have any money to give, but I can at least try and spread your reach a little bit
Of course! Even just viewers help! ♥️