I’ve had Crohn’s disease for 47 years, have three children (two born after my diagnosis), nine grandchildren and none have Crohn’s or any type of IBD. Also have had many different medications but Humira has been the most effective (1st injection July 2008) and still working! Best wishes to you and your beautiful family!!!
O Maggie, it is always a gamble because the parents can be both very healthy and the baby can still have something wrong! You 2 are going to be great parents!
Hi Maggie, I have Crohn's disease, my husband is healthy. And my doctors said it was a low chance of passing Crohn's to my kids. I have 2 kids, who are 3 years apart from each other, and both kids have Crohn's. My youngest is severe. Life changing, it's hard, but at least we have each other, and I completely understand what they are going through, and I am here for them. Maggie you have done a lot of research regarding this topic, I always say that knowledge is Power. Maggie, it feels like your pregnancy is going so fast. Enjoy every moment she will be here before you know it. Thank you for sharing. Have a great day ❤
Maggie you were my saving grace when at 63 my colon ruptured. Watching your videos helped me more to change my bag and keep things clean. I was so freaked out!!! I was able to get things reversed but still fighting the other bowel issues. You have no idea what a blessing you were to me. TY
We can pass down so many things... My half brother has spinal bifida. 3 blood siblings and grandchildren later, none of us have it. It's all a gamble. You choose a wonderful man to be a Father... That's the most important decision!!!
I admire your perspective on life and appreciate your vulnerability. This baby is going to be so incredibly lucky to have you as a mother. Pregnancy suits you and motherhood already looks SO good on you!! As an ostomate, it’s fascinating to follow along on your journey. Much much love to you and your growing family!
I have worried about that for years. My kids are 23 and 19 now and so far so good. I pray they never have to put up with what I have the last 30 plus year. The good news is that the detection and treatment are so much better now. Crohn's is a lot more manageable than it use to be.
Hi Maggie. Love your content! Back in the 80s when my husband was diagnosed with Crohn's disease, your channel would have been so helpful. Thanks for doing what you do. My husband's journey with Crohn's is too long to tell, but ended up with terrible effects from long term steroid use and a colectomy (no biologics back then) and permanent ileostomy. We have six kiddos, now ages 20-34. We didn't really know about the hereditary thing back then and I'm kind of glad because I wouldn't trade any of them. Two have Crohn's. I was so devastated when my son was diagnosed at age 20, but he's done super well with biologics. His sister is also doing well. Three things we didn't have for husband back in the day are biologics, a top Crohn's specific doctor in a major teaching medical system, and the internet (including your channel). Gotta say, all three of those things make a HUGE difference. Doc tells me that early intervention with biologics makes a huge difference in the course of the disease all your life and they are now doing that routinely instead of requiring the step up therapy you received. So now, having a child with the potential to inherit the disease is not nearly as terrifying as it was before treatments. You are so right that you are well placed to be your child's advocate should she develop Crohn's, because you know so much. Keep up the good work!
I don't have Crohn's but I do have chronic illness, and I do understand not wanting to pass it down but I also can see how a parent with a chronic illness would probably be the best advocate for a kiddo with a chronic illness. And the best ally/confidant/support system. Who better to commiserate with than someone who knows exactly what you're going through.
Maggie, thank you for your bravery in tackling tough topics. You help so many people, in so many ways. Life is a crap shoot-we just have to do the best we can, and roll with whatever comes! You're a great role model, and educator, and you will be wonderful parents!
There is so much out of our control, even with 2 healthy parents. If this baby or another has Crohn’s you’ll be the best advocate. And there are a lot more worse things that could happen to a child in his or her life. Either way your child or children will be incredibly loved, and that’s a lot more than many kids get unfortunately. Life is hard, and you never know what’s coming, but be hopeful and onward and upward!!❤❤
Maggie, I also had a hard childhood that ended up with my mom losing custody of us. In her case it was due to severe mental health issues (bipolar type 1). I developed severe anxiety disorder and later became a heroin addict, I know was an attempt at self medicating. Luckily I’m now 6 years in recovery and a parent and a nurse :) I just wanted to acknowledge that when I was pregnant it made me think about my mom A LOT and my childhood and what was lacking. Be gentle with yourself as these feelings can come up. My mom is still alive (miracle really) and I’ve chosen to try and fix our relationship… though I will always be cautious of being too attached.
I’m the third person in our family to have IBD. My Grandad (my mums dad) had UC, my mum has Crohns and I have Crohns. I have two children and I dread them having IBD 😢 I spent a lot of time researching how best to raise my child to lower the chances of them developing IBD. So, I breastfed them both, waited until they were 6 months old to wean them on to solids (when their bowel is fully developed) and I try to keep them as happy and healthy as possible. It is a gamble but all we can do is our best xx
I wanted to add…I am so grateful to my mum for the way she advocated for me. She knows what I’m going through and I know how she feels. Our bond is stronger because of IBD (even though we’d both love not to have it 😂)
There is heart disease, hypertension in my family, but I was still able to have 2 healthy children. As for Crohn's, knowing a little about Maggie's turbulent childhood and the less than competent early medical care, there are so many factors that happened to her that will never happen to her children no matter what genetics they inherit. These updates are enjoyable. I thank, what must be a very fatigued Maggie these days, for vlogging these updates.
My doctors in RI stated the same thing to me so far as giving my mom a name of a Psychologist for eating disorders! When I went down to 110 lbs (I'm 5'9") I went to Boston, went immediately into surgery! The doctors in Boston were willing to testify against the RI doctors as evidence of issues were clearly on the X-Rays from RI. BTW the testing in 1980 did not include any drugs, just one bent over the table with the apparatus stuck up where the sun don't shine - that's why I'll never have another - it's been 45 years! I was at my best health during my pregnancy and had only gained 17 lbs! Had an argument with a husband while waiting to be induced (due to diabetes) whether or not I was pregnant! The good Lord blessed me with a wonderful daughter with no sign of this wretched disease!
When a parent dies, when you talk about it, you go back to the age you were. My dad died when I was 18 and mom when I was 38. It’s harder to talk about dad’s death because I was so much more immature. I knew my mom so much more (after all, we had 38 years together) and she was my best friend. Still, at 54, I feel like that jipped teenager who didn’t have the chance to know my dad as an adult.
You are going to be a great mom! Medicine is constantly making huge strides in treatments. Way different than when I was diagnosed 50+ yrs ago. Unfortunately I was never blessed with any kids of my own .
Maggie you are an Extremely Amazing woman that has gone through hard times living with a mother that was an alcoholic and being diagnosed with IBD and Crohn’s thank you for sharing your story and your journey with us it truly means a lot I suffer with RSD AND FIBROMYALGIA plus constipation I think I have IBD but haven’t had a diagnosed yet but I have so many symptoms of IBD and it really is painful so my heart goes out to you ❤❤❤
You will do a great job advocating for your child if necessary, I pray not for you and your child but the silver lining is you! You are a very strong young woman. I have IBS and mine started after the birth of my first child at age 24 and it is nothing compared to what you've been through, so I can sort of understand the frustration and overall pain you go through! God Bless you! xo
Positivity and gratitude: you showed both in abundance with this video. Both a great lesson to learn (and even greater to pass on) when life can be very difficult and/or traumatic. Good for you for posting this, and I'm hoping you were able to reach others who watched, as you reached me. ❤
Maggie, try not to worry ...I have experienced that it skips a generation or two ...... God will take care of y'alls baby and children .... Just pray 🙏📖🙏 ..... Your both gonna make great parents 💞💗👣
My great niece has really chronic Crohn's. She is in her early 20's. I was not aware that it ran in her mother's side of the family until she ended up in hospital. I was quite surprised. She has suffers terribly. She has gone on to have a baby. I think it is a personal choice when it comes to having children. I do have some genetic ailments in my family, nothing serious, but I know what it was like, and for me, I didn't want my children to suffer the same way. It all worked out, we adopted and they are now adults and amazing. It seems to me that you have done all your research. You just don't know. Regardless, you will make an amazing mother, and medical treatments and technologies have come a long way and are still progressing.
@ xoxo - I mean we all have our challenges and yes his and yours have been hard but he is 64 had two grown daughters and we have had an amazing life. Love watching you and have from the beginning as a silent viewer 💕
My mom had Crohn’s. She wasn’t as young as you. She was in her 50’s when diagnosed. But 4 kids, none of us have Crohn’s. You look so happy with that baby growing in your belly.
Maggie, you are a true Mother Warrior! I have watched your channel for many years, and this video is my new favourite. Thank you so much for addressing this delicate subject. Your grace and compassion comes shining through, as always, but this one was very special. As someone who battled Crohn's throughout childhood, while being gaslit by family and doctors, your words brought tears. But it is so very important to discuss our fears openly. You are providing that to others who may not have a support system. I am a very proud mum today, and a fellow Mother Warrior! Thank you so very much for your wisdom, and your gift of this beautiful IBD support network. Much love to you and your family. 💗
You are so very inspirational and positive with all you have gone through. Prayers that your daughter does not develop Crohn's. But if she does you will be the best most supportive mother there is!! I think you are absolutely lovely and amazing 💗💗💗
I agree with all of the encouraging words so many have expressed. I want to add that your mom being an alcoholic during the pregnancy with YOU could also have been a big factor in your disease presenting so young. But your early IBD care (non-care!) is absolutely horrifying. The kind, strong, responsible and delightful adult you've become continues to bring so much joy. You really inspire me in the most down-to-earth, let's-face-facts kind of way in my daily life - thank you. PS - the second Crohn's patient I knew of was the author Dr. Rachel Naomi Remen. Very little was known about the disease at the time - she was born in 1942 and had her first catastrophic symptom (internal bleeding that led to a coma) when she was 16 - so, in the 50s. But as time and her treatment went on, she was told, unfortunately, very authoritatively by various doctors that "of course" she would not be able to have children. This turned out not to be true, but it had a big impact on her life. She has continued to be a doctor and healer to many, many people throughout her life and is still going today. One reason I am inspired by you Maggie is by your ability to share accurate and nuanced (and important) information. Another reason this video and your experience are so valuable.
Love this video. I have microscopic colitis and it sometimes really sucks, but neither of my children have any gut issues. Also, if you think pregnancy is joyful, OMG, are you in for some more joy real soon ;) You can't even imagine how much joy children are or how much love you can feel. I'm a grandma now and that's even MORE joyful!!!
Maggie, life....,... My son has had epilepsy due to spinal meningitis at age 5. He is now 54. He has had 6 brain surgeries and been on many meds. He also has had many injuries, stitches and broken bones. I have had 2 brain surgeries due to a recurring tumor.. People ask me how did I get through it all.? My answer ". It's not what you get in life, it's how you deal with what you get."
Maggie, I've been watching your channel because it appeals to me on many levels. I am a nurse so the functioning (and non functioning) of the human body interests me and I like both your clinical and personal approach. Also, my daughter is due in July to have my first grandbaby. My career began in OB, so maternal/child and OB nursing has a special part of my heart and I am beyond excited to be a Mimi and watch/help my daughter as she goes through her pregnancy. And lastly, I have autoimmune diseases that have become severe enough that I had to retire early due to my numerous symptoms. I just wanted to say that your channel and your videos are going to help so many people. I feel like you answer the tough questions even before they are asked. I just wanted to let you know that you shine a bright and loving light on such important topics. Before you know it, you and your husband will be holding your baby in your arms🩷 Sending hugs
Thank you for baring your sou, I think you did so with utmost kindness and insight. No guarantees in life and the joy this pregnancy has brought you and the love that is so apparent will help overcome any hardships of any kind in the future.
Maggie, 1st of all you are going to be an excellent mother! I see you being so compassionate and loving. You have been through so much and you will teach your child from your experiences. Even if your child would have Crohn’s, your child will already be ahead because they have you to advocate for them! I love your attitude and outlook on life. No point in dwelling on things you can’t change and you don’t.😊 I also find this very fascinating as I’m currently learning all about IBD in nursing school. I’m looking forward to being able to help people. I’m also 24 weeks pregnant with my 4th.
I'm 100% with you. We can be the voice of our children. And the medications are so much better. I also had a TERRIBLE experience with mercaptopurine, I was anemic and I ended up with pancreatitis in the ER even thought I stopped it 1 month before ! I only started to get better when I went on biologic.
Fresh air, clean water, exercise, rest and natural foods. Genes may load the gun, but not pull the trigger. Cause and effect. I believe that you will have a beautiful baby 😊
You are such an inspiration to so many with how you have coped with Crohn’s disease. Your positivity is amazing. You and Zack will make wonderful parents. ❤
Hi Maggie, I really appreciate you sharing your personal life. I have learned so much from you. I was diagnosed with IBS last year after suffering all my life with loose stools, constipation, gas, bloated stomach, ect. I thought it was a Me problem and I have always felt embarrassment. I’m 65 years old. There’s a reason for everything!! Especially you popping up on my feed a few years ago!! Thank You You’re glowing. Congratulations to you and Zack, you are going to be great parents.
Maggie you and Zach are going to be great parents, you aren't crazy if you want children people need to shut their big mouths, I am so happy for you, keep looking at that beautiful BABY belly, have a great day!
They’ll have your eyes, hair, physical attributes… trust me as a mum of an 11 and 15 year old. They have good and bad from both of us (and that’s personality) you don’t know what or if they will inherit an illness. Our family have severe debilitating migraines (apparently not heritable) myself, my mum and 2 siblings, my daughter is also now experiencing severe awful migraines… you have no control with genes, just support ❤
Look into vitamin B2! We have migraines too! I was having 4-5 actual complex migraine days. Had atleast one hemipalegic migraine. Possibly two, Dr's disagreed if second tia or second hemipalegic migraine. 400mg b2 (forest leaf brand is what I use) and 1000 mcg B12 the natural methylcobalamin (horbaach brand is what I use) unnatural version doesn't work and is nasty anyway. Took me down to only hormonal migraines. Once in a blue moon I will get a mild headache not full migraine. Mid February 2022 is when I started b2, week later b12, 2 weeks after starting B2 migraines were gone. My neuro told me she couldn't suggest B2 to me but is glad it's working and that I found it. 😢🤬 So many in my family have found it works.
Lol my ex husband & i both were diagnosed with crohns disease( but ive been in remission for many years except 4 the rare flare up when i get really stressed), & we had 2 daughters, neither of which seem to have any stomach issues so far praise God 🙌 altho theyre only 5 & 9 rn lol but i wouldn't wish having crohns on even my worst enemy 💯👌 ☹️
Thank you for sharing your experiences. I have learned so much from your channel. You are going to be a wonderful mom and a great advocate for your child and any further kids
I have Crohn's and have literally zero family history of IBD, so statistics are statistics but I think sometimes the cards are just dealt for seemingly no rhyme or reason. Thanks for being vulnerable and sharing this! ❤️
Whoever wrote that crazy comment about your body had to be a teenager that doesn't want kids... totally naive. You are beautiful and you are going to be a wonderful mother!
We are two healthy people and have a daughter that has had two strokes and a son that had an intestinal blood clot, both before age 30. Life is unpredictable. My children are both healthy adults in their 40’s now. Both on blood thinners. Right now one grandchild might have colitis. Please pray for Harper. We are praying she will outgrow this.
I have had Crohn's for 31 years now. Just recently they added Stage IV Colon Cancer. Quick background I was adopted so I did not have the options for breast feeding. Doctors then told me that being breastfed would have eliminated my chances to develop Crohn's. I have 3 daughters and none have Crohns.
I was breastfed and have Crohn's so being breastfed certainly doesn't eliminate it completely. It may play a part but it looks like research on this is limited.
@@LetsTalkIBDI was told it skips a generation. This actually fits my family history as my Grandmother on Father's side had 2 siblings who died of what was called then lock bowel. None of my Father or his siblings had it. Then was told it usually effects half your kids. 2 out of 4 of my Father's kids have it. 2 out of my Fathers brothers 5 kids have it. My aunt and uncle have 1 kid each and neither have it. I have it and my Brother. So far none of our kids have it and they are all adults. My brother who didn't have Crohn's has a dtr with it, he only had 2 kids but the other doesn't. I was part of research years ago. So I don't know bc they seem to change what they think.
Oh....I meant to also say I was breast fed by a very healthy mother. Everyone in my Mothers family lives very long lives with hardly any diagnosis or problems. Her grandmother my great grandmother lived to be 116 and never diagnosed with anything or took any prescribed meds. She did however use her own home remedies.
Different disease, different out-come but also a victim of horrid DRs as teen. I had stage 4 endometriosis (before surgery), I spent 20 years with it unchecked and it just ruined my insides and spread all over. There was a lot of gaslighting about maybe I just didn't have a good tolerance for pain or I was being dramatic about my period hurting so much etc. But like you, there is no time machine. I will never be able to have kids of my own anymore and its a weird place.. finding peace with an outcome that wasn't your choice but is the reality. I also feel like my disease is being taken more seriously and I see more people posting about get treatment much earlier or surgery intervention early. I can totally relate to how you would feel like the next generations outcomes would be way better.
My husband has Crohn’s disease but our daughter doesn’t have it. My husband’s brother doesn’t have Crohn’s disease but one out of his four children does have it…you just never know where it might pop up but you shouldn’t worry because we are never sure what might come up but yet we still go on living the best life we can.
Every day with your child will be like opening a new present every day… But work on your marriage as a priority, because children tend to Do well has not put on a podium, and indulged in too much and they grow up and grow away, even though our lovers at its peak… It is for God and for our husband as well, and that will keep the child happier too.
Hey maggie, i dont have chrones/ibd so this is from a perspective of someone who doesn't understand 100% but i would like to say firstly im really sorry for everything you went through but honestly i think that made you who you are today and your just a wonderful person, your so positive and you deal with everything well, as far as you passing on your conditions to your child/children, i understand your concerns but honestly you could be 100% healthy and your child could still be born with a health condition, obviously it needs to be considered before pregnancy the impact it could have but honestly i don't think its a big deal, not in your case anyway, alot of the time its a roulette, no one knows, you will be an amazing mum and zach will be an amazing dad, you will navigate whatever happens but most of all you will love your child and thats the most important, enjoy parenting and don't go worrying. ❤
It is a possibility but I want to tell a little story of mine so I have Two children ok I have always been healthy with no health problems but in (2014) I was diagnosed with type 1 diabetes so in (2016) is when I had my son and to this day he is still healthy you know I pray everyday and keep my kid's name's in my bible too I do not have a family history of that disease I was so lost for a long time I had to definitely learn how to live with it
Your description of not doing taken serious really resonated with me. I have crohns, and went to the doctor for years. I too had a hard and bloated stomach, that made me look pregnate (I'm a man, though).
What an amazingly astute reply, thank you so much for phrasing it that way. I will definitely remember this response in the future to address those who criticize and judge others.
I have the same liver troubles as my mom did.but none of my brothers and sisters do. But a lot of my family has had trouble with IBD. A few of my family from my mom's side had Crohn's.but don't lot it bug you till it happens.just enjoy your new baby
My dad has schizophrenia i was terrified that one of my kids would have something.. turns out my dad isnt biologically my dad so now who knows what i have to pass on.. but i having babies is gamble as others say, a combination of genes we never saw, something that isnt genetic can pop up.. a big traumatic event, god forbid.. all we can do is love them, treat them with respect and pray for the best 😊
When I had both my children, I hadn't been diagnosed with any genetic illnesses, nor was I told that getting pregnant would be hard because I have PCOS. Getting pregnant wasn't hard. I learned about my PCOS diagnosis once I was in my 40's, and that the diagnosis was made around the age of 19. I was 46 when I was diagnosed with hEDS (hypermobile Ehlers-Danlos Syndrome). My youngest son has had all the same symptoms I had growing up. It all made sense once I was diagnosed. I still would've chosen to have kids if I'd known I had EDS earlier in my life. My oldest has a child, yet my youngest has decided not to have children. For him, it's more than just not wanting to possibly pass EDS to his children though. Every person who has an illness that can be passed to children, will make their own decisions, based on facts of the genetic condition, if they want to have children or not. It's not a "one size fits all" type of decision, and I think people who don't have any genetic illnesses are the ones primarily telling us that we shouldn't have children. Our illnesses aren't who we are, they helped shape us, educate us, and I think in many cases, give us the ability to be empathic.
Omg, just researched the increase in Chrohns disease since the 70s. Research it, we talk about better care but the increase in incidence is mind blowing.
Nothing in life is guaranteed. Not one person is guaranteed perfect health I have Undiagnosed GERD, suffered got an endoscopy at 22 they just told me it’s acid reflux cause I’m fat. Now being 26 I’ve read so much about gut health and i started taking gut biome supplements and not i can eat pain free and do my best to eat as clean as possible
I worried about my kids getting Crohn’s too. My brother and I both have it, our 2 other sibs have type 1 diabetes. Research is looking at genetic mutations as a cause for both diseases. I have two children, one was diagnosed with Crohn’s. However, I knew what to look for, and she has a much less severe manifestation than I do, so far. Delayed diagnosis caused me to loose a lot of my intestines. But so much more is known about IBD now, and treatment options are better! I did feel bad when my daughter was diagnosed, like I had given her this terrible disease. But I recall telling my sister when her son was diagnosed with type one diabetes, that she gave him life, she didn’t give him a disease. And he has had a much healthier life due to having more knowledge about diabetes. So I don’t blame myself for my daughter’s diagnosis. I had no control over that. But I did teach her how to live a full life with a chronic disease. And she has told me how my attitude helped her to not feel sorry for herself. Everyone has struggles in life. I’m just thankful for her, and I’ll be here to help her through any challenges she may have. And I know that you‘ll be the same way with your daughter, maggie, if she has Crohn’s.
My nephew was diagnosed at 13 and he gets an infusion every 8-9 weeks. Crohns is very different now. Interesting my nephew lost his mother as a child too, but he definitely had issues as a baby and young child.
HI MAGGIE I HAVE A DIFFERENT DISEASE BUT THEY HAVE SOME OF THE SAME SYMPTOMS YOUR A VERY WONDERFUL PERSON HUBBY IS A DEFLENT KEEPER A MECH IN YIDDISH A GOOD PERSON IN HEART WITH GOLD I HAVE BEEN SICK. SINCE I WAS BORN I AM 63YEARS OLD MARRIED 43YEARS WE ARE VERY LUCKY WOMEN HUGS AND KISES LOVE TINA FROM CALIFO
I've had psoriasis since I was 11. (Not the same as Crohn's, but I can relate). For a long time I said that I would never want to have kids and pass that on. Over time my opinion changed. My husband (who has an uncle with psoriasis) and I are currently trying. I know there is a chance my child will have psoriasis, but there's also a chance they won't. If they do there are people on both sides of the family to help advocate for them, which is more than I had.
Hi, IBCLC here- please please I encourage all pregnant women with any autoimmune type illnesses to do their research into the benefits of breastfeeding your baby. Connect with resources in your area and create a plan with your doctors, partner and family to support breastfeeding...before the baby is born. Breastfeeding is often challenging but support is all around you- and the benefits for you and your baby are SO worth it.
Under 10% is very low. Even if she did have it, she has a nurse mother who is a complete expert on it. That would be entirely different than what your experience was, with a far more advanced medical system than you had as well. ❤❤ Also, any person who feels a body is "ruined" by pregnancy probably has never experienced motherhood and doesn't have a clue. 🤱🏻
When I was in high school I didn't wanna have children because of my health and the posibility that I would pass it on to my child. Now that I'm 28 I changed that opinion and hope its possible in the near future. Eventhough the change is 50 procent, it's also 50 procent that it wouldn't. Health care is much progressed in the last 20 years and I know what it's like to have it and I can better advocate than my parents back than. And its also my own happiness, allthough that might sound a bit selfise.
It might be good to get genome testing to clarify if any of the known gene mutations are involved. This is not only helpful for you, but would be a gift for your kid if they got the illness in the future. There may be future treatments that are specific for specific gene mutations in the future. I know that genome testing really helped me.
HI MAGGIE I HAVE A DIFFERENT DISEASE BUT THEY HAVE SOME OF THE SAME SYMPTOMS YOUR A VERY WONDERFUL PERSON HUBBY IS A DEFLENT KEEPER A MECH IN YIDDISH A GOOD PERSON IN HEART WITH GOLD I HAVE BEEN SICK. SINCE I WAS BORN I AM 63YEARS OLD MARRIED 43YEARS WE ARE VERY LUCKY WOMEN HUGS AND KISES LOVE TINA FROM CALIFORNIA
![Seungmin "그렇게, 천천히, 우리(As we are)" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/kAzmhLHePqU/mqdefault.jpg)
I’ve had Crohn’s disease for 47 years, have three children (two born after my diagnosis), nine grandchildren and none have Crohn’s or any type of IBD.
Also have had many different medications but Humira has been the most effective (1st injection July 2008) and still working!
Best wishes to you and your beautiful family!!!
O Maggie, it is always a gamble because the parents can be both very healthy and the baby can still have something wrong! You 2 are going to be great parents!
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Maggie, you will always be there for your daughter. Don't spend time worrying.
Every child is a gamble.. we provide love and care and pray a lot! All we can do!
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Hi Maggie, I have Crohn's disease, my husband is healthy. And my doctors said it was a low chance of passing Crohn's to my kids. I have 2 kids, who are 3 years apart from each other, and both kids have Crohn's. My youngest is severe. Life changing, it's hard, but at least we have each other, and I completely understand what they are going through, and I am here for them. Maggie you have done a lot of research regarding this topic, I always say that knowledge is Power. Maggie, it feels like your pregnancy is going so fast. Enjoy every moment she will be here before you know it. Thank you for sharing. Have a great day ❤
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So sorry
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Maggie you were my saving grace when at 63 my colon ruptured. Watching your videos helped me more to change my bag and keep things clean. I was so freaked out!!! I was able to get things reversed but still fighting the other bowel issues. You have no idea what a blessing you were to me. TY
Don’t worry little momma, she is going to be perfect 💖
You and Zac are going to be great parents ❤❤❤
Good for you
That's a 90/93% chance she won't get it, those are great odds!!❤️❤️❤️❤️
You both are amazing!
We can pass down so many things... My half brother has spinal bifida. 3 blood siblings and grandchildren later, none of us have it.
It's all a gamble.
You choose a wonderful man to be a Father... That's the most important decision!!!
Be thankful for the little blessings.👶🍼 Only happy thoughts allowed. One day at a time.
Now you know what to do and what not to do pertaining to Crohns. You've got this.
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I admire your perspective on life and appreciate your vulnerability. This baby is going to be so incredibly lucky to have you as a mother. Pregnancy suits you and motherhood already looks SO good on you!! As an ostomate, it’s fascinating to follow along on your journey. Much much love to you and your growing family!
Thank you so, so much!! 💓
I have worried about that for years. My kids are 23 and 19 now and so far so good. I pray they never have to put up with what I have the last 30 plus year. The good news is that the detection and treatment are so much better now. Crohn's is a lot more manageable than it use to be.
Hi Maggie. Love your content! Back in the 80s when my husband was diagnosed with Crohn's disease, your channel would have been so helpful. Thanks for doing what you do. My husband's journey with Crohn's is too long to tell, but ended up with terrible effects from long term steroid use and a colectomy (no biologics back then) and permanent ileostomy. We have six kiddos, now ages 20-34. We didn't really know about the hereditary thing back then and I'm kind of glad because I wouldn't trade any of them. Two have Crohn's. I was so devastated when my son was diagnosed at age 20, but he's done super well with biologics. His sister is also doing well. Three things we didn't have for husband back in the day are biologics, a top Crohn's specific doctor in a major teaching medical system, and the internet (including your channel). Gotta say, all three of those things make a HUGE difference. Doc tells me that early intervention with biologics makes a huge difference in the course of the disease all your life and they are now doing that routinely instead of requiring the step up therapy you received. So now, having a child with the potential to inherit the disease is not nearly as terrifying as it was before treatments. You are so right that you are well placed to be your child's advocate should she develop Crohn's, because you know so much. Keep up the good work!
Exactly!
I don't have Crohn's but I do have chronic illness, and I do understand not wanting to pass it down but I also can see how a parent with a chronic illness would probably be the best advocate for a kiddo with a chronic illness. And the best ally/confidant/support system. Who better to commiserate with than someone who knows exactly what you're going through.
Maggie, thank you for your bravery in tackling tough topics. You help so many people, in so many ways. Life is a crap shoot-we just have to do the best we can, and roll with whatever comes! You're a great role model, and educator, and you will be wonderful parents!
There is so much out of our control, even with 2 healthy parents. If this baby or another has Crohn’s you’ll be the best advocate. And there are a lot more worse things that could happen to a child in his or her life. Either way your child or children will be incredibly loved, and that’s a lot more than many kids get unfortunately. Life is hard, and you never know what’s coming, but be hopeful and onward and upward!!❤❤
They will have your love and support and care
Maggie, I also had a hard childhood that ended up with my mom losing custody of us. In her case it was due to severe mental health issues (bipolar type 1). I developed severe anxiety disorder and later became a heroin addict, I know was an attempt at self medicating. Luckily I’m now 6 years in recovery and a parent and a nurse :)
I just wanted to acknowledge that when I was pregnant it made me think about my mom A LOT and my childhood and what was lacking. Be gentle with yourself as these feelings can come up.
My mom is still alive (miracle really) and I’ve chosen to try and fix our relationship… though I will always be cautious of being too attached.
I was diagnosed at 40 with UC and it hit me because of a heavy nickel poisoning exposure. I pray my kids never have to lose their colon like I had to.
Such an informed mama. You’re good and prepared just in case and baby has a 90% chance she won’t have it. ❤
No matter what happens, you are going to be an amazing mommy and advocate for her.
I’m the third person in our family to have IBD. My Grandad (my mums dad) had UC, my mum has Crohns and I have Crohns. I have two children and I dread them having IBD 😢 I spent a lot of time researching how best to raise my child to lower the chances of them developing IBD. So, I breastfed them both, waited until they were 6 months old to wean them on to solids (when their bowel is fully developed) and I try to keep them as happy and healthy as possible. It is a gamble but all we can do is our best xx
I wanted to add…I am so grateful to my mum for the way she advocated for me. She knows what I’m going through and I know how she feels. Our bond is stronger because of IBD (even though we’d both love not to have it 😂)
There is heart disease, hypertension in my family, but I was still able to have 2 healthy children. As for Crohn's, knowing a little about Maggie's turbulent childhood and the less than competent early medical care, there are so many factors that happened to her that will never happen to her children no matter what genetics they inherit. These updates are enjoyable. I thank, what must be a very fatigued Maggie these days, for vlogging these updates.
You and Zac are gonna be amazing parents! ❤❤❤
You did a perfect job explaining your decision. You are who you are because of where you’ve been. You’ll be a great mom no matter what.
My doctors in RI stated the same thing to me so far as giving my mom a name of a Psychologist for eating disorders! When I went down to 110 lbs (I'm 5'9") I went to Boston, went immediately into surgery! The doctors in Boston were willing to testify against the RI doctors as evidence of issues were clearly on the X-Rays from RI. BTW the testing in 1980 did not include any drugs, just one bent over the table with the apparatus stuck up where the sun don't shine - that's why I'll never have another - it's been 45 years! I was at my best health during my pregnancy and had only gained 17 lbs! Had an argument with a husband while waiting to be induced (due to diabetes) whether or not I was pregnant! The good Lord blessed me with a wonderful daughter with no sign of this wretched disease!
When a parent dies, when you talk about it, you go back to the age you were. My dad died when I was 18 and mom when I was 38. It’s harder to talk about dad’s death because I was so much more immature. I knew my mom so much more (after all, we had 38 years together) and she was my best friend. Still, at 54, I feel like that jipped teenager who didn’t have the chance to know my dad as an adult.
Maggie your baby is going to be so loved by both you and Zac and I know you both will be wonderful advocates for your baby in life and health ❤❤❤❤
You are going to be a great mom! Medicine is constantly making huge strides in treatments. Way different than when I was diagnosed 50+ yrs ago. Unfortunately I was never blessed with any kids of my own .
Maggie you are an Extremely Amazing woman that has gone through hard times living with a mother that was an alcoholic and being diagnosed with IBD and
Crohn’s thank you for sharing your story and your journey with us it truly means a lot I suffer with RSD AND FIBROMYALGIA plus constipation I think I have IBD but haven’t had a diagnosed yet but I have so many symptoms of IBD and it really is painful so my heart goes out to you ❤❤❤
You will do a great job advocating for your child if necessary, I pray not for you and your child but the silver lining is you! You are a very strong young woman. I have IBS and mine started after the birth of my first child at age 24 and it is nothing compared to what you've been through, so I can sort of understand the frustration and overall pain you go through! God Bless you! xo
They’ll have love…
Positivity and gratitude: you showed both in abundance with this video. Both a great lesson to learn (and even greater to pass on) when life can be very difficult and/or traumatic. Good for you for posting this, and I'm hoping you were able to reach others who watched, as you reached me. ❤
Maggie, try not to worry ...I have experienced that it skips a generation or two ...... God will take care of y'alls baby and children .... Just pray 🙏📖🙏 ..... Your both gonna make great parents 💞💗👣
I have had RA since I was 8 and have three kids and 8 grands. So far none of them have it. Can't wait to meet your bundle of joy ❤
My great niece has really chronic Crohn's. She is in her early 20's. I was not aware that it ran in her mother's side of the family until she ended up in hospital. I was quite surprised. She has suffers terribly. She has gone on to have a baby. I think it is a personal choice when it comes to having children. I do have some genetic ailments in my family, nothing serious, but I know what it was like, and for me, I didn't want my children to suffer the same way. It all worked out, we adopted and they are now adults and amazing. It seems to me that you have done all your research. You just don't know. Regardless, you will make an amazing mother, and medical treatments and technologies have come a long way and are still progressing.
YOU JUST BE HAPPY GOS IS LOOKING ALWAYS FOR US❤❤❤
The love of my life has a j-pouch and UC and he had an ostomy as well. I can’t imagine world where he wasn’t here ❤
And support from people like you are why many with IBD are grateful for life! 🩷
@ xoxo - I mean we all have our challenges and yes his and yours have been hard but he is 64 had two grown daughters and we have had an amazing life. Love watching you and have from the beginning as a silent viewer 💕
Aww, such a sweet comment! I love your attitude ❤
@@Lisa.Halloran 💕💕
My mom had Crohn’s. She wasn’t as young as you. She was in her 50’s when diagnosed. But 4 kids, none of us have Crohn’s. You look so happy with that baby growing in your belly.
Maggie, you are a true Mother Warrior! I have watched your channel for many years, and this video is my new favourite. Thank you so much for addressing this delicate subject. Your grace and compassion comes shining through, as always, but this one was very special. As someone who battled Crohn's throughout childhood, while being gaslit by family and doctors, your words brought tears. But it is so very important to discuss our fears openly. You are providing that to others who may not have a support system. I am a very proud mum today, and a fellow Mother Warrior! Thank you so very much for your wisdom, and your gift of this beautiful IBD support network. Much love to you and your family. 💗
You guys will be great parents!
Hi Maggie, you are so brave making this video, stay strong and enjoy your time being pregnant and being a mum, it's the most important job ever. ❤
You are so very inspirational and positive with all you have gone through. Prayers that your daughter does not develop Crohn's. But if she does you will be the best most supportive mother there is!! I think you are absolutely lovely and amazing 💗💗💗
I agree with all of the encouraging words so many have expressed. I want to add that your mom being an alcoholic during the pregnancy with YOU could also have been a big factor in your disease presenting so young. But your early IBD care (non-care!) is absolutely horrifying.
The kind, strong, responsible and delightful adult you've become continues to bring so much joy. You really inspire me in the most down-to-earth, let's-face-facts kind of way in my daily life - thank you.
PS - the second Crohn's patient I knew of was the author Dr. Rachel Naomi Remen. Very little was known about the disease at the time - she was born in 1942 and had her first catastrophic symptom (internal bleeding that led to a coma) when she was 16 - so, in the 50s. But as time and her treatment went on, she was told, unfortunately, very authoritatively by various doctors that "of course" she would not be able to have children. This turned out not to be true, but it had a big impact on her life. She has continued to be a doctor and healer to many, many people throughout her life and is still going today. One reason I am inspired by you Maggie is by your ability to share accurate and nuanced (and important) information. Another reason this video and your experience are so valuable.
Pregnancy agrees with you, you're glowing ❤
Love this video. I have microscopic colitis and it sometimes really sucks, but neither of my children have any gut issues. Also, if you think pregnancy is joyful, OMG, are you in for some more joy real soon ;) You can't even imagine how much joy children are or how much love you can feel. I'm a grandma now and that's even MORE joyful!!!
Maggie, life....,... My son has had epilepsy due to spinal meningitis at age 5. He is now 54. He has had 6 brain surgeries and been on many meds. He also has had many injuries, stitches and broken bones. I have had 2 brain surgeries due to a recurring tumor.. People ask me how did I get through it all.? My answer ". It's not what you get in life, it's how you deal with what you get."
This video made me cry thank you so much for sharing such a personal thing god bless
Maggie, I've been watching your channel because it appeals to me on many levels. I am a nurse so the functioning (and non functioning) of the human body interests me and I like both your clinical and personal approach. Also, my daughter is due in July to have my first grandbaby. My career began in OB, so maternal/child and OB nursing has a special part of my heart and I am beyond excited to be a Mimi and watch/help my daughter as she goes through her pregnancy. And lastly, I have autoimmune diseases that have become severe enough that I had to retire early due to my numerous symptoms. I just wanted to say that your channel and your videos are going to help so many people. I feel like you answer the tough questions even before they are asked. I just wanted to let you know that you shine a bright and loving light on such important topics. Before you know it, you and your husband will be holding your baby in your arms🩷 Sending hugs
Thank you for baring your sou, I think you did so with utmost kindness and insight. No guarantees in life and the joy this pregnancy has brought you and the love that is so apparent will help overcome any hardships of any kind in the future.
Maggie, 1st of all you are going to be an excellent mother! I see you being so compassionate and loving. You have been through so much and you will teach your child from your experiences. Even if your child would have Crohn’s, your child will already be ahead because they have you to advocate for them! I love your attitude and outlook on life. No point in dwelling on things you can’t change and you don’t.😊
I also find this very fascinating as I’m currently learning all about IBD in nursing school. I’m looking forward to being able to help people. I’m also 24 weeks pregnant with my 4th.
I'm 100% with you. We can be the voice of our children. And the medications are so much better. I also had a TERRIBLE experience with mercaptopurine, I was anemic and I ended up with pancreatitis in the ER even thought I stopped it 1 month before ! I only started to get better when I went on biologic.
I can feel from you this was a hard video to make Thankyou for addressing all of these facts and questions with honesty
Fresh air, clean water, exercise, rest and natural foods. Genes may load the gun, but not pull the trigger. Cause and effect.
I believe that you will have a beautiful baby 😊
well your a positive young lady i had it but it was very difficult i had surgey and it wasbetter but it was hard to deal with
I’m really glad you made this video and all the others. I’m learning how to save my own ass. Thank you so much 🙏🏻❤️
You are such an inspiration to so many with how you have coped with Crohn’s disease. Your positivity is amazing. You and Zack will make wonderful parents. ❤
Hi Maggie..you are amazing...you have coped so well!!!...xxx
Hi Maggie, I really appreciate you sharing your personal life. I have learned so much from you. I was diagnosed with IBS last year after suffering all my life with loose stools, constipation, gas, bloated stomach, ect. I thought it was a Me problem and I have always felt embarrassment. I’m 65 years old.
There’s a reason for everything!! Especially you popping up on my feed a few years ago!! Thank You
You’re glowing. Congratulations to you and Zack, you are going to be great parents.
Maggie you and Zach are going to be great parents, you aren't crazy if you want children people need to shut their big mouths, I am so happy for you, keep looking at that beautiful BABY belly, have a great day!
Thanks Maggie, always informative & honest❤️
They’ll have your eyes, hair, physical attributes… trust me as a mum of an 11 and 15 year old. They have good and bad from both of us (and that’s personality) you don’t know what or if they will inherit an illness. Our family have severe debilitating migraines (apparently not heritable) myself, my mum and 2 siblings, my daughter is also now experiencing severe awful migraines… you have no control with genes, just support ❤
Look into vitamin B2! We have migraines too! I was having 4-5 actual complex migraine days. Had atleast one hemipalegic migraine. Possibly two, Dr's disagreed if second tia or second hemipalegic migraine.
400mg b2 (forest leaf brand is what I use) and
1000 mcg B12 the natural methylcobalamin (horbaach brand is what I use) unnatural version doesn't work and is nasty anyway.
Took me down to only hormonal migraines. Once in a blue moon I will get a mild headache not full migraine.
Mid February 2022 is when I started b2, week later b12, 2 weeks after starting B2 migraines were gone.
My neuro told me she couldn't suggest B2 to me but is glad it's working and that I found it. 😢🤬
So many in my family have found it works.
Lol my ex husband & i both were diagnosed with crohns disease( but ive been in remission for many years except 4 the rare flare up when i get really stressed), & we had 2 daughters, neither of which seem to have any stomach issues so far praise God 🙌 altho theyre only 5 & 9 rn lol but i wouldn't wish having crohns on even my worst enemy 💯👌 ☹️
Wishing the very best for your daughter, you and Zach. 👶🏼💞
Thank you Maggie, you are amazing! ❤ This was such an important video ❤
Thank you for sharing your experiences. I have learned so much from your channel. You are going to be a wonderful mom and a great advocate for your child and any further kids
Great job Maggie! This video is honest, informative and to the point. Excellent job!
May your lives be blessed, now and always.
You are happy and Zac is to I love watching you be so excited about your princess 👑
I have Crohn's and have literally zero family history of IBD, so statistics are statistics but I think sometimes the cards are just dealt for seemingly no rhyme or reason. Thanks for being vulnerable and sharing this! ❤️
I’m so sorry, you are amazing!❤
Whoever wrote that crazy comment about your body had to be a teenager that doesn't want kids... totally naive. You are beautiful and you are going to be a wonderful mother!
Life’s a gamble, your baby is meant to be here, I’m a great believer in what’s meant to be . Your baby will be just fine I’m sure of it ❤❤❤❤❤❤
We are two healthy people and have a daughter that has had two strokes and a son that had an intestinal blood clot, both before age 30. Life is unpredictable. My children are both healthy adults in their 40’s now. Both on blood thinners. Right now one grandchild might have colitis. Please pray for Harper. We are praying she will outgrow this.
What a lovely video. Thank you Maggie
I have had Crohn's for 31 years now. Just recently they added Stage IV Colon Cancer. Quick background I was adopted so I did not have the options for breast feeding. Doctors then told me that being breastfed would have eliminated my chances to develop Crohn's. I have 3 daughters and none have Crohns.
I was breastfed and have Crohn's so being breastfed certainly doesn't eliminate it completely. It may play a part but it looks like research on this is limited.
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@@LetsTalkIBDI was told it skips a generation. This actually fits my family history as my Grandmother on Father's side had 2 siblings who died of what was called then lock bowel. None of my Father or his siblings had it. Then was told it usually effects half your kids. 2 out of 4 of my Father's kids have it. 2 out of my Fathers brothers 5 kids have it. My aunt and uncle have 1 kid each and neither have it. I have it and my Brother. So far none of our kids have it and they are all adults. My brother who didn't have Crohn's has a dtr with it, he only had 2 kids but the other doesn't. I was part of research years ago. So I don't know bc they seem to change what they think.
Oh....I meant to also say I was breast fed by a very healthy mother. Everyone in my Mothers family lives very long lives with hardly any diagnosis or problems. Her grandmother my great grandmother lived to be 116 and never diagnosed with anything or took any prescribed meds. She did however use her own home remedies.
We need to live regardless of our fears or assumptions about the future.
Different disease, different out-come but also a victim of horrid DRs as teen. I had stage 4 endometriosis (before surgery), I spent 20 years with it unchecked and it just ruined my insides and spread all over. There was a lot of gaslighting about maybe I just didn't have a good tolerance for pain or I was being dramatic about my period hurting so much etc. But like you, there is no time machine. I will never be able to have kids of my own anymore and its a weird place.. finding peace with an outcome that wasn't your choice but is the reality. I also feel like my disease is being taken more seriously and I see more people posting about get treatment much earlier or surgery intervention early. I can totally relate to how you would feel like the next generations outcomes would be way better.
My husband has Crohn’s disease but our daughter doesn’t have it. My husband’s brother doesn’t have Crohn’s disease but one out of his four children does have it…you just never know where it might pop up but you shouldn’t worry because we are never sure what might come up but yet we still go on living the best life we can.
Every day with your child will be like opening a new present every day… But work on your marriage as a priority, because children tend to Do well has not put on a podium, and indulged in too much and they grow up and grow away, even though our lovers at its peak… It is for God and for our husband as well, and that will keep the child happier too.
Hey maggie, i dont have chrones/ibd so this is from a perspective of someone who doesn't understand 100% but i would like to say firstly im really sorry for everything you went through but honestly i think that made you who you are today and your just a wonderful person, your so positive and you deal with everything well, as far as you passing on your conditions to your child/children, i understand your concerns but honestly you could be 100% healthy and your child could still be born with a health condition, obviously it needs to be considered before pregnancy the impact it could have but honestly i don't think its a big deal, not in your case anyway, alot of the time its a roulette, no one knows, you will be an amazing mum and zach will be an amazing dad, you will navigate whatever happens but most of all you will love your child and thats the most important, enjoy parenting and don't go worrying. ❤
It is a possibility but I want to tell a little story of mine so I have Two children ok I have always been healthy with no health problems but in (2014) I was diagnosed with type 1 diabetes so in (2016) is when I had my son and to this day he is still healthy you know I pray everyday and keep my kid's name's in my bible too I do not have a family history of that disease I was so lost for a long time I had to definitely learn how to live with it
Everything will be ok!
Your description of not doing taken serious really resonated with me. I have crohns, and went to the doctor for years. I too had a hard and bloated stomach, that made me look pregnate (I'm a man, though).
Anyone that judges you for your choice to have a baby has a problem with themselves, not you.
What an amazingly astute reply, thank you so much for phrasing it that way.
I will definitely remember this response in the future to address those who criticize and judge others.
I have the same liver troubles as my mom did.but none of my brothers and sisters do. But a lot of my family has had trouble with IBD. A few of my family from my mom's side had Crohn's.but don't lot it bug you till it happens.just enjoy your new baby
My dad has schizophrenia i was terrified that one of my kids would have something.. turns out my dad isnt biologically my dad so now who knows what i have to pass on.. but i having babies is gamble as others say, a combination of genes we never saw, something that isnt genetic can pop up.. a big traumatic event, god forbid.. all we can do is love them, treat them with respect and pray for the best 😊
When I had both my children, I hadn't been diagnosed with any genetic illnesses, nor was I told that getting pregnant would be hard because I have PCOS. Getting pregnant wasn't hard. I learned about my PCOS diagnosis once I was in my 40's, and that the diagnosis was made around the age of 19. I was 46 when I was diagnosed with hEDS (hypermobile Ehlers-Danlos Syndrome). My youngest son has had all the same symptoms I had growing up. It all made sense once I was diagnosed. I still would've chosen to have kids if I'd known I had EDS earlier in my life. My oldest has a child, yet my youngest has decided not to have children. For him, it's more than just not wanting to possibly pass EDS to his children though. Every person who has an illness that can be passed to children, will make their own decisions, based on facts of the genetic condition, if they want to have children or not. It's not a "one size fits all" type of decision, and I think people who don't have any genetic illnesses are the ones primarily telling us that we shouldn't have children. Our illnesses aren't who we are, they helped shape us, educate us, and I think in many cases, give us the ability to be empathic.
Omg, just researched the increase in Chrohns disease since the 70s.
Research it, we talk about better care but the increase in incidence is mind blowing.
I wonder how much food additives and preservatives have increased our health outcomes. More than we know I'm sure.
Nothing in life is guaranteed. Not one person is guaranteed perfect health
I have Undiagnosed GERD, suffered got an endoscopy at 22 they just told me it’s acid reflux cause I’m fat.
Now being 26 I’ve read so much about gut health and i started taking gut biome supplements and not i can eat pain free and do my best to eat as clean as possible
I worried about my kids getting Crohn’s too. My brother and I both have it, our 2 other sibs have type 1 diabetes. Research is looking at genetic mutations as a cause for both diseases. I have two children, one was diagnosed with Crohn’s. However, I knew what to look for, and she has a much less severe manifestation than I do, so far. Delayed diagnosis caused me to loose a lot of my intestines. But so much more is known about IBD now, and treatment options are better! I did feel bad when my daughter was diagnosed, like I had given her this terrible disease. But I recall telling my sister when her son was diagnosed with type one diabetes, that she gave him life, she didn’t give him a disease. And he has had a much healthier life due to having more knowledge about diabetes. So I don’t blame myself for my daughter’s diagnosis. I had no control over that. But I did teach her how to live a full life with a chronic disease. And she has told me how my attitude helped her to not feel sorry for herself. Everyone has struggles in life. I’m just thankful for her, and I’ll be here to help her through any challenges she may have. And I know that you‘ll be the same way with your daughter, maggie, if she has Crohn’s.
My nephew was diagnosed at 13 and he gets an infusion every 8-9 weeks. Crohns is very different now. Interesting my nephew lost his mother as a child too, but he definitely had issues as a baby and young child.
HI MAGGIE I HAVE A DIFFERENT DISEASE BUT THEY HAVE SOME OF THE SAME SYMPTOMS YOUR A VERY WONDERFUL PERSON HUBBY IS A DEFLENT KEEPER A MECH IN YIDDISH A GOOD PERSON IN HEART WITH GOLD I HAVE BEEN SICK. SINCE I WAS BORN I AM 63YEARS OLD MARRIED 43YEARS WE ARE VERY LUCKY WOMEN HUGS AND KISES LOVE TINA FROM CALIFO
I've had psoriasis since I was 11. (Not the same as Crohn's, but I can relate). For a long time I said that I would never want to have kids and pass that on. Over time my opinion changed. My husband (who has an uncle with psoriasis) and I are currently trying. I know there is a chance my child will have psoriasis, but there's also a chance they won't. If they do there are people on both sides of the family to help advocate for them, which is more than I had.
Hi, IBCLC here- please please I encourage all pregnant women with any autoimmune type illnesses to do their research into the benefits of breastfeeding your baby. Connect with resources in your area and create a plan with your doctors, partner and family to support breastfeeding...before the baby is born. Breastfeeding is often challenging but support is all around you- and the benefits for you and your baby are SO worth it.
Under 10% is very low. Even if she did have it, she has a nurse mother who is a complete expert on it. That would be entirely different than what your experience was, with a far more advanced medical system than you had as well. ❤❤ Also, any person who feels a body is "ruined" by pregnancy probably has never experienced motherhood and doesn't have a clue. 🤱🏻
When I was in high school I didn't wanna have children because of my health and the posibility that I would pass it on to my child. Now that I'm 28 I changed that opinion and hope its possible in the near future. Eventhough the change is 50 procent, it's also 50 procent that it wouldn't. Health care is much progressed in the last 20 years and I know what it's like to have it and I can better advocate than my parents back than. And its also my own happiness, allthough that might sound a bit selfise.
It might be good to get genome testing to clarify if any of the known gene mutations are involved. This is not only helpful for you, but would be a gift for your kid if they got the illness in the future. There may be future treatments that are specific for specific gene mutations in the future. I know that genome testing really helped me.
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HI MAGGIE I HAVE A DIFFERENT DISEASE BUT THEY HAVE SOME OF THE SAME SYMPTOMS YOUR A VERY WONDERFUL PERSON HUBBY IS A DEFLENT KEEPER A MECH IN YIDDISH A GOOD PERSON IN HEART WITH GOLD I HAVE BEEN SICK. SINCE I WAS BORN I AM 63YEARS OLD MARRIED 43YEARS WE ARE VERY LUCKY WOMEN HUGS AND KISES LOVE TINA FROM CALIFORNIA