What a great panel! 😃 I just found out that I'm a carrier for LHON, and I'm starting to research what this condition looks like for other people who live with it. I, myself, have Stargardt's Eye Disease, so I'm no stranger to visual disability. However, I have 2 young kiddos (a boy and a girl) and I just learned the statistics of how likely each of them are to have this gene express itself in each of them. It's amazing to hear all of these panelists speak about their individual experiences... to compare them to my own experience as a blind person... and to know that IF my kids were to develop this condition, it's NOT the end of the world. ;-) Thank you VERY MUCH!!!
What a great panel! 😃
I just found out that I'm a carrier for LHON, and I'm starting to research what this condition looks like for other people who live with it.
I, myself, have Stargardt's Eye Disease, so I'm no stranger to visual disability. However, I have 2 young kiddos (a boy and a girl) and I just learned the statistics of how likely each of them are to have this gene express itself in each of them. It's amazing to hear all of these panelists speak about their individual experiences... to compare them to my own experience as a blind person... and to know that IF my kids were to develop this condition, it's NOT the end of the world. ;-)
Thank you VERY MUCH!!!
Wow, you carry a LHON mutation AND have Stargardt's? I'd love to hear more. Please contact me via www.LHON.org/register and let's connect!
Hi, I'm from Brazil, do you have the Nicolas´s email?
I do! Please send the request here, and I'll send it to you.
www.lhon.org/register
Hi, Im from Indonesia . Can I get Lissa email ? Thankyou