Another Milestone! Spring Break & Jack Starts OT!

Woa-oh! Tennis Racket! We hit 500 subscribers!Thank you so much for joining us on this journey! To celebrate, we're kicking off spring break with a park day! Join us as Jack starts his occupational therapy journey (we're so excited!), explore the park with the kids, hit Costco for some fun finds, and even have a family bowling night! Mom also shares some updates on the week's happenings.
Hey, seriously, Thank you for all your support!
Remember- Kick Today's Butt!
The Muscular Dystrophy community mentioned 👉🏻 MDA.org
Here's the actual Gene Therapy Treatment that we reference in the video: • 5 Syringes, Infinite H...
Disclaimer: This is not medical advice. These videos simply serve as documentation surrounding this treatment and decisions we've made, as parents, to potentially better the lives of our children.
====================
What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy.
====================
Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this RUclips channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy.
For our first 7 days, we posted one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy.
You can watch that here ➡: • Mason's Gene Therapy
====================
We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to RUclips to help spread the message and raise awareness of this rare disease.
You can follow us here 👇
/ bafusfamily
/ @bafusfamily
#duchenne #duchennemusculardystrophy #dmd #musculardystrophy #occupationaltherapy #familyvlog

[@jessicachacon]

Oh my goodness your kiddos are too cute!! You mention that Jack is a little behind in his motor development. I wanted to recommend looking into a PX Doc Chiropractor. I think it could be super beneficial for even both kiddos. You guys are amazing parents!!!!

[@BafusFamily]

Thank you so much for the suggestion. We will look into this!