early onset dementia
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- Опубликовано: 25 янв 2020
- Welcome to the place where I share dementia tips, strategies, and information for family members caring for a loved one with any type of dementia (such as Alzheimer's disease, Lewy Body dementia, vascular dementia, frontotemporal dementia, etc.)
In today’s video, I’m talking about early onset dementia. People who get dementia younger than age 65 years old technically have early onset dementia and this type of dementia presents differently and has some unique challenges that other dementias don’t necessarily have.
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CHECK OUT MY POPULAR PLAYLISTS
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In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
#careblazer #dementia #dementiacare
Although my husband passed away with Vascular Dementia on Thanksgiving day 2019, I'm still watching this series and I find it helps me tremendously to understand now what I didn't understand then. Looking back I can see the odd behaviors for what they indeed were, and I urge ANYONE with older parents, spouses, loved ones, etc., to learn all you can from this series. The information Dr Natali gives us has been and is tremendously helpful. I recommend going back and viewing all the videos in this series. Thank you again, Dr Natali for your professionalism and wonderful caring.
marie teresa thank you, Marie. I hope you are doing well in this next chapter of life. 💕
Dr. Natali, Thank you so much for posting this video. My husband, age 58, was diagnosed with Vascular Dementia last year. The Geropsychologist feels that he's had it for quite some time. After reviewing all of his other health issues along with a very extensive Neuro-Psych test, he diagnosed him with Major Neurocognitive Disorder (Vascular Dementia). It is a bit more challenging having to deal with his diagnosis at such an early age. Most people don't understand Dementia anyway, and then to have someone who's younger with it, throws a whole other variable into the mix. We just do the best that we can. I appreciate you and your videos so very much. They're always so informative and helpful. The Careblazer support group has really helped me, as well. It helps to know that we're not alone in our struggles. We all lean on each other and help each other through this long, heart-breaking journey that we're all traveling. Thanks again for all that you do to help us. I appreciate you, more than you could ever know! Also, Congratulations on your new little fur baby, Nico! He's absolutely precious! I'm so glad that you rescued each other! I hope you have a long and happy life together! Take care.
I'm sorry to hear about your husband, but glad to hear he has an official diagnosis so you know what you are dealing with. The videos and support group are here for you! And Niko certainly did rescue me! I love him so much!
In a few weeks, I'll be hosting a live care class on coping with dementia caregiver stress. I hope you'll be able to make it. You can click the link to see the days/times: www.careblazers.com/careclass
As a nurse, I'm familiar with the signs of early onset dementia, and even more so after noticing them in a CNA I work with. Other people at work have noticed issues in her, but they make fun of her and think she's "crazy." I tried to discuss my concerns with her in a caring, nonconfrontational way, but she became angry and upset with me and accused me of being "mean and coldhearted," when that is the exact OPPOSITE of the truth! She lives alone and has no family living nearby, so there is really no one else in a position close enough to her to notice these issues or try to help her. Working with her requires a LOT of reminders/patience, but I've become used to it. I plan on looking for a new job soon though, so I'm afraid where that will leave her. I don't think others would be as understanding or willing to work with her as I am. The problem has been getting worse, to the point where I'm afraid it will start to negatively affect ME at some point, since she works under MY license. She has been having increased difficulty with following instructions and frequently forgets to tell me when patients report problems or ask for pain medication. This creates more work and stress for me and poses a risk to my license/career. Anyways, I've written a whole essay here so I'll wrap it up... What can I do to help her (and me)?
LOVE NICO! So happy for you both! Thanks for being there for us. I look forward to Sundays! You are a blessing to me.
I am just starting this journey and am glad I was referred to your channel. Very helpful and well done - THANK YOU !
Awww, he's a beauty! Congratulations, Natali! Thanks for the introduction.
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Your Survival guide is awesome! I recommend it whenever I can. I shared it with my caregiver support group, and have mentioned your videos as well. Educating yourself is so important! Thank you for making these!
Congratulations on your new addition to your family! He is adorable!
Cathy P. Thank you! 💕
Thank you for the work you do.
Dr Natalie thank you for your video
Congratulations on your new puppy. So happy for you😉
Your pup is so adorable!! Sorry to hear about the loss of the other. It is so heartbreaking.
It is so heartbreaking, but I feel so lucky I had him for as long as I did. I am full of love for my new, Niko. He has some of the same qualities as Guinness and loves laying under my desk as I work. :) I'm sure he will be making more appearances in future videos.
Thank You for sharing
I'm so pleased you have a new furry sweetie. He looks like a great addition.
Thank you, Fawn. I love him so much!
Bayyybeee Nico!!!💕🤗
So glad you found a new dog for your household. Looks perfect!
Thank you, Ruth!
He's so adorable!
Looking to hear about more information in 2023, I can't find new stories, I'm 58, my husband was diagnosed a year ago he is 65, he is now in the middle stages of ftd , this so hard, nobody seems to know what I'm going thru, there needs to be more support for spouses,, I'm living with this, my husband does not seem to or understands how bad this is getting , his family and friends do not spend enough time with him to see how bad he is declining , his behavior with anxiety, grooming, and losing everything , constantly blaming me for everything he does wrong. he can't even keep a discussion going without trying to figure out his words. I'm trying to learn how to live with him and this disease, its not fun, I will never give up, its sad when there is no help for either one of us,
Someone commented that I may be “Sun downing” I work a lot but once 5-6 pm hits I lose all focus and memory. I start wandering around.. and really worried something deeper is going on. I’m 29 yrs old and concerned
Lindsay Hargrave: You're kind of young, but you should see your doctor. Get a check up. Could be thyroid issues, stress, not sleeping enough, etc. Good luck.
I am happy to find your channel. Your video is so helpful and easy to understand. My friend's wife has early onset Alzheimer in her 58. she was diagnosed 1 year ago and her condition has go a little downturn. She seems afraid to be alone by herself at home but she refused to have any hired care worker staying with her. Now she is riding the car and following her husband to work everyday. It is difficult for her husband and been very stressful with that. I tried to find some counselling center for her to see if she will accept some care worker with her. But couldn't find any help. I read somewhere that some later stage of Alzheimer will make the person retrieved and scared of her surrounding and strangers. Is that the unavoidable truth? How I can help her and her husband dealing with that?
Have you done any videos on Parkinsons dementia? I know its quite similar to lewy bodies dementia but it does have differences. My mother was diagnosed with Parkinsons in 2008 and started to devolop Parkinsons demntia in 2012 when she started getting audio and visual hallucinations and I looked after her from then whilst working. There were several progressions in both her parkinsons and parkinsons dementia every six months until 2017 when I was made redunadnt where the progressions went to every 8 weeks. When I was made redundant I decided to look after her full time however in september 2019 she had to go into a home due to several incidents where she wanted to cut a prolapse off with a pair of scissors and several falls which resulted ina fractured hip. I would be grateful if you would do a video on parkinsons dementia.
I am so thankful that you have new furry friend!
Thank you! Me too!!
Aw💓Welcome to Nico!
Loe the new puppy! He seems to like snuggling. My question is: my husband was diagnosed by our family dr as having early onset dementia. My husband at the time was 68 at the time. Is that accurate? We also went to a nueropsycolgist and she wasn't sure what type of dementia he has but is leaning towards lewy body dementia. We will go back in 6 months and do a retest and see if there are any changes. He has no dementia in his family that we know of. He had esophageal cancer (18 yrs out,Yeah!) but we wonder if that could be the cause of his dementia, meds and other factors that he has dealt with. We have been told that that is a possibility. Thanks for yor shows! They have really helped me to understand my role in this and what i need to do for myself. Thanks again!
He is beautiful, there is nothing like the love of a dog. I am happy for you.
Thank you, Jack. I totally agree...dogs bring so much happiness.
What do you suggest about my mom's constant phone calls (10-20 a day). She is in an assisted living home and I told them to disconnect the phone because she also called 911 one early morning and her 84 year old sister while my mom cried and asked her sister to come get her. I've asked them to disconnect her phone and she never talks about it not working. My mom had a stroke 4 years ago and seems to be going through vascular dementia. What do you suggest
Is there any kind of diet and lifestyle changes/ advice you suggest to people who seems to have been suffering from dementia symptoms, please?
Obviously avoiding sugar, maybe adding regular small amount of caffeine, regular exercise, having human interaction and positive reinforcement,
reminder notes, supportive regimen for the person, who is the patient… etc.
I’m a wife, caregiver of my husband, who is a retired veteran, multiple past surgeries,
I’m trying to support him, and concerned about his mental health, requested a full
cognitive evaluation, to make sure, we close out any other options.
We already know about the severe ptsd, childhood trauma, and some degree of depression he is dealing with.
Thank you!
Nico is amazing!!!
We have collies to support us and they are doing great to help!
😆😆😆
When would we refer or signpost a client as a counsellor who has onset dementia
Congratulations on your new addition, lucky pup!
Thank you for what you do, you have helped me so often!
I have one question often times I will ask my hubby, were do we live, what town, the street address, what number, what are phone number, when your birthday! No pressure on him and most time he answer with some thinking! With the phone number if I say the are code he then can repeat our number. My question is am I harming him doing this? I was told let him be don’t ask him questions!
Melinda OLaughlin if you’re husband doesn’t seem bothered by all your questions, then it’s probably okay. In general, “testing someone’s memory” often creates frustration and tears away at the relationship. I did a video on this question a while ago. I’ll link it below.
Here is the video link ruclips.net/video/2g1NHb1Oe84/видео.html
Thank you so much, there are times he just says I don’t know and other times you can see him thinking. If he says I don’t know we just move on. Thank you I will be watching the video this after noon! Thank you
I wouldn't make it a habit to keep asking him questions, just to ask him questions. Try to keep conversations normal. 😊
Congratulations, he is too cute!😁
Thank you, Renee! I love him SO much!
Nico is beautiful thanks for sharing ..
How can you tell how long they have in the last stage?
Was this intended to be an expanded definition for medical students? I just came for some coping strategies and to better understand what I'm up against.
I am 17 and I forget things that happened 5 minutes ago and i cant focus as I used to , I have been like this for more than one year. I went to many doctors and they told me that everything is normal although my symptoms are getting worse. I also noticed a tremor in my hands and tingling in my feet . My mri is normal .
Check your thyroid??
I think MS can cause cognitive disabilities, but I’m not sure. I think it could at least explain your physical symptoms.
Sounds like you have ADD (Attention Deficit Disorder) or something else?
@@honeyspoonbeewrangler4550 I did blood tests including my thyroid and it was normal too
@@nooralshehabi5487 هذا قسم خاص childhooddementia و التشخيص بالبحث في البول والدم عن سكريات و بروتينات معينه ثم المسح الجيني والنتيجه ثم اسم نوع الخرف بالتحديد
What kind of Dr should I see? I believe I have early onset. Possibly connected to tinnitus. I have seen Ents with zero help. My tinnitus is pretty bad.
I thank you so much for your great video. I am 62 years old. I have no problem with my memory what so ever. (It's my speech.) I am always saying the wrong word for something. For example : Every time I want to say " MY husband " I say my " Son " Sometimes in a middle of a conversation I may say the wrong word ... just today I was speaking with my girl friend and I wanted to say " Gulf Cart " But instead I said " Gulf corse "
I have been under a lot stress and it happens much more when I am tired and stressed out or annoyed about something. My husband has been doing the same thing. I heard him say " the dogs" instead of the " cat's " He mentioned to me that he does this all the time for years now.
I heard of a dementia called primary progressive aphasia . Could we both be starting this type of dementia " primary oppressive aphasia " ?
Cute dog
How long can I expect to be well with early onset Alzheimer’s.
When visiting my wife dr. And she in the room she take offense to my answer. How should I handle this situation.
Is changing one's mind back and forth frequently a sign of dementia? I am 81 years old, and have this problem. I am also very antisocial, because others complain too much, and this bothers me, so l prefer to be solitary, however, l am lonely. Any suggestions, Natalie? Suzi Q.
( Natali), sorry.
Antisocial does not mean that somebody is not socialising
How long do people live with dementia at 39
I have one concern about caregivers more likely to get fomenting. I really don’t agree that you t relates. I think what ever the reason be it stress or genetics but not because being a caregiver makes you more likely to eventually have this illness
Congrats he is beautiful..I would like for information on sexual make behavior..if possible thankyou God bless
Hii mam, I am from India. i can relate to every single word from 4:30 minutes in your video. But unfortunately i am just 24. My office colleagues instructs me to do something in a particular way, and i keep on saying "yes sir i got it yes sir" but trust me nothing goes into my brain. My productivity is nil. I forget things which was told to me yesterday. But more than forgetfulness, its confusion. I irritate myself and also everyone around me.
PS - I am a software developer.
Feels like my brain cannot connect one thing to another anymore.
I don't know if i have dementia or not. But it is something which is not right.
Divyani Singh: Are you under a lot of stress? Being a software engineer sounds technical. I'm sure you're good at your job. Look up ADD (Attention Deficit Disorder) resources, take notes to help you remember, develop routines, and see if that helps your forgetfulness. Good luck!
Have you done a video on alcohol-induced dementia, aka Wernicke-Korsakoff Syndrome? My mother has this. She's 58, has no health insurance, is ineligible for govt. aid, and it's HORRIBLE. No one can or will help. She has a memory span of about two minutes, is always confused, confabulates, doesn't bathe, etc. She can't work, yet cannot get disability. Our system in the US is broken
Even though your mother is younger than 65, she should qualify for Supplemental Security Income, or SSI. Once accepted into SSI she will automatically receive Medicaid health insurance from your home state. If your mother's assets are over the limit permitted by the program then her personal belongings and/or property can be sold in order to allow her to become eligible. Countable resources must not be worth more than $2,000 for an individual or $3,000 for a couple. Visit SSA.ORG for more information.
ALSO NOTE: "If you are enrolled in Medicaid, Supplemental Security Income (SSI), or a Medicare Savings Program (MSP), you automatically qualify for Extra Help regardless of whether you meet Extra Help’s eligibility requirements. You should receive a purple-colored notice from the Centers for Medicare & Medicaid Services (CMS) informing you that you do not need to apply for Extra Help."
When applying for SSI it is extremely important to have your mother’s doctor(s) submit a letter to SSA specifically stating her diagnosis, or diagnoses, and the test results used to come to this conclusion, her physical restrictions (for example, unable to toilet herself or eat without assistance) or mental limitations, how her condition causes these restrictions and limitations, and a prognosis (how long the impairments or limitations are expected to last). With cooperation from her physicians she should be able to qualify without the aid of an attorney on the first try even if she has resources over the allotted amount at the time of application.
Yeah...what? Can't get medicare? Cant get disability,? What did they say when you tried?
Oh congrats!!! I knew your surprise was going to be a dog!
My Mom has early onset dementia. She was first "diagnosed" at 63. They believe it is likely early onset Alzheimer's. She has deteriorated rapidly. She is 65 now. She also has evidence of past stoke. She is the youngest of 4 sisters and has no family history of dementia of any kind. I worry constantly about what this means for my risk of developing it. Did I hear you correctly that only 1% of people with early onset, have been linked to the 3 genes you mentioned? Or is it 1% of all people with dementia? The genetic component really concerns me. Her Neurologist said that if there is a strong genetic link to the condition, they tend to see it in multiple family members. That isn't the case with my Mom's family. She is the only case in her family. Although I often wonder if it isn't linked to new genetic mutation specific to her. Her Neurologist advised my brother and I against genetic testing.
More puppy, less talk!