Wheelchairs are Used for Many Different Reasons ♿ (5/6/17)
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- Опубликовано: 5 окт 2024
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All About My Chronic Illnesses - • All About My Chronic I...
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All About My POTS Infusions - • All About My POTS Infu...
Judd and Jaq Relationship Q&A Vlog - • Valentine's Day Relati...
--- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
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--- I wear the mask due to my Angioedema and Immunodeficiency, it filters allergens and germs. Learn more in my “All About My Chronic Illnesses” video!
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I can't believe you have negative comments❤️ you're such an inspiration!
It is bound to happen, but I just ignore it :)
H
CanteringClare if she can handle her body trying to shut her down, haters don't even phase her 😂
Those pendejos are wasting their time
I really enjoy watching your videos. It makes me feel like I'm not alone with my chronic illnesses. I feel like no one truly understands an illness that cannot be seen. Thank you for being an inspiration!
I am so happy that you feel less alone
Hey Jaquie I want to thank you so much. I love your videos. I don't have chronic physical illnesses but I do deal with chronic depression and anxiety and seeing you and how strong you are. And to me what's more amazing is how informational and open you are with your chronic illness. Thank you so much for just being you ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Depression and anxiety are still considered chronic illnesses. Mental health is just as important as physical health! I am so happy you can take something positive away from my channel, and I am so happy to have your support!
This grandma sends much love and prayers. ❣️👍🏼
I am so thankful for my university that people understand that some days are better than others. Where on bad days I need to use the wheelchair. I graduated last night and throughout the ceremony I used the chair, but I walked across the stage (I was determined to). When I started to use the chair again I was so scared being at a new school people would stare at me during the moments of standing to get something, like they did in high school. I am so thankful for you that you have this platform and talk about invisible disabilities. I can wait for you to go back to school! My friend and I both have POTS and graduated last night. If we can do it I know you can!
SO proud of you for graduating, that gives me so much hope! Thank you for sharing your success with me
SO proud of you for graduating, that gives me so much hope! Thank you for sharing your success with me
Your such a wonderful women. Your so brave everyday. Harlow is great. I am also use a. Hair for severe arthritis as you said Hidden handicap. I also don't hear voices well. I get people who want me to move and speak behind my back. They take it as I am being rude and ignoring them. Been pushed, almost in a fight because they don't know didn't hear them.
What I am trying to say keep up videos. Makes me feel like I am not alone in dealing with events.
Omg Jaquie I did not expect you to post all of your informational videos at once I was so excited to have so much content to watch! They were very educational & well done! Hopefully now you won't have to answer the same questions over and over and over again! I love your videos so much, I'm so happy you're willing to share with those who don't have anyone to guide them through their illnesses!
I am happy you like them, and that is one big reason I do this. I went through it on my own. I want people to have somewhere to go for guidance, so maybe my videos can help them!
Your positivity is such an inspiration! With my own chronic illnesses I understand how draining they can be and how hard it is to keep a positive outlook on life. I'm sorry you had an attack last night and I'm so glad that Judd was there to save you! I love your vlogs so much! They give me something to look forward to every day!
You are such an inspiration! I'm 24 and was diagnosed with a kidney disease in march and have been trying to adjust to the struggles that comes with it. The symptoms make it really hard to walk and the medication I'm talking makes me dizzy, light headed and weak a lot so I've considered getting a wheelchair. I'm just worried about the the judgmental looks I'll get because I don't look "sick."
I personally do not mind the looks I get (I do not usually notice them due to my autism). I would rather ease my symptoms, but of course we all deal with things in different ways!
Hi! I loved watching your information videos, they were so well made. As you continue to enhance your RUclips channel, you may want to consider adding the feature that allows your viewers to write out the captions to your videos so that those who can't hear as well can enjoy them too. Although I don't need captions to watch your videos, I'd be more than happy to write them out so that everyone can watch them. :)
A few people have mentioned this to me and I am trying to figure out how to do this. I would love to have people caption my videos. Unfortunately I do not have the time to do so myself, but if others could help make my videos more accessible it would be amazing. Especially since my father is nearly completely deaf - He would benefit a lot from this. I have been looking at my creator studio thoroughly and I guess I still am missing the option to turn that on. :/
Chronically Jaquie I'm a transcription/captionist by trade so I love properly captioning my favorite you tubers on my free time while I'm watching! would love this feature for you to be added
+Chronically Jaquie, does this link help? support.google.com/youtube/answer/6052538 I'm not too strong with technology, but this seems to explain how other people can add captions to your videos.
YES! I think that is exactly what I needed. I was looking in creator studio when I needed to look in advanced setting of video manager. Let me see if I can turn it on for this Vlog right now.
I just found the option and turned on community contributions! Let me know what happens on your end! Can you submit subtitles now?
Jaq made a joke!! Yay 🙂 loved seeing you and Harlow play today
Thanks so much for being so positive in your vlogs! Luckily your Benadryl worked, yay no hospital trip!
You are so great! I love that you have perfect examples and explain what an invisible disability is. I had a doctor say she couldn't help me because I was not using a cane or walker so she couldn't see my need. I should say I have fibromyalgia and osteoarthritis degenerative disc and joint disease and unknown circulatory inflammation I'm 52 so my age may factor
I've found a rollator good for POTS fatigue and joint pain for OA and CPPD.
You and Harlow's Namaste made the front page of Reddit earlier! Wasn't expecting to see you guys when I logged in there! haha. Glad you're doing better today. I also use a wheelchair sometimes, and it's old people that tend to be really rude, at least near me. Not all of them, but my worst experiences have been with the over-70 set. Had an eighty-something full on yell at me in a grocery store once. I don't use it just to annoy you, I use it because I literally can't walk more than a few feet at a time. Grah. Anyway, thanks for the little wheelchair PSA. Hopefully it'll help people think before judging/being rude. Keep up the vlogs- you brighten our day every time. :D
Hi . I just want to say thanks for you're Chanel . I really like all of you're videos .
I myself and my 14 year old daughter is both chronic I'll . I have hEDS . Arthritis and chronic migraine . My daughter hair hEDS . Pots and fibromyalgia . We have be talking about getting a service dog for a while now . And thanks to you we are now 100% sure that a service dog is the right assistance for us .
So happy you have found it all to be helpful!
Hi Jaquie! Thank you so much for always posting here and on social media, I have Gastroparesis as well and A few other chronic illnesses including a conversion disorder and PNES . There were a lot of times that I was getting so frustrated and wanted to give up, that is until I found you guys on social media. You and Harlow are actually the ones who helped me figure out that I could have a service dog. Harlow showed me what I wanted in a service dog and all of the things a service dog could do for me. My family also got on board with the idea of a service dog after showing them your instagram and youtube. Disney (my service dog) has since been my lifeline and my best friend. My quality of life has improved tremendously and I really wanted to thank you for that
I watched all four of your videos and I learned so much! I'm in for my tilt table test this Thursday, thanks to you! Hopefully I get answers soon!
So happy to know that sharing my story may help you get answers, I really hope your TTT brings you what you need!
How did it go? Im hoping to get my TTT soon!
Your informational videos are great. The table of contents is really helpful, too. I also have Epilepsy that is too deep within my brain to show up on an EEG. I did a 4-day EEG at Yale hospital, and had a lot of seizures (I get simple-partials), but they only detected a few of them on the EEG. I'm so glad that you've been 2 years seizure-free and were able to wean off your meds!
Hi! I absolutely loved all the videos yesterday! I watched them all from start to finish and they kept me company while I worked on chores and with my dogs yesterday. Thank you for all the helpful information and for being so open about your journey! Hoping you've recovered more from Friday night's attack!
Judd's dancing skills... 👌🏼 On point. If there's anything that just aggravates me, it's the response and assumptions that come from adults, you can't blame kids because they just have to learn. I'm sorry you get so much crap, because you don't ask about anything they go through so it's none of their business. I hope you had a great day, and please be careful not eating. No feeding tubes!
You should see the views on the "all about you" videos! Love the blanket, and you! ❤️
I am just so glad that you have so many people that take care of you
Dear Jaquie, i havent watched your new videos as i haven't had a chance just yet. I know you would've done a great job! So so sorry you had a bad attack last night. Great idea to turn off comments , just to many questions to answer and you have enough to deal with. I understand chronic illness and how it requires so much strength on the part of the person and it requires much love and support from those around them. Love Judd too and his lovely personality. Lots of big hugs to you Jaquie ! :)
Thank you so much for sharing you life with us❤ you've really opened my eyes about chronic Illness and disability in general. I learn so much from you and love how positive you stay even on the bad days. I know that if you can stay positive every day, then I definitely can. Thx
Thank you for putting yourself out there! You truly inspire me! Can't wait for new uploads everyday.
Your viewers really appreciate every video you made ❤️ I enjoyed watching them so much!!
You're doing a great job sharing the ins and outs of dealing with chronic illnesses.
Hey Girl! I wanted to tell you how amazing your video's turned out! You can tell you worked so hard on them and took alot of time to make sure they are well informed and for all that I really appreciate you and everything you do to bring awareness to chronic illness and service dogs! You rock Jaquie!!!
Thank you! I did work really hard on them, and I also learned a lot about editing lol. I am so happy you enjoyed them!
i have eds, and i love watching the chronic illness vloggers because it makes me feel less alone in this battle. love you guys!
I couldnt fall asleep last night so i marathoned some of your old videos to catch up on how far you have come this year. It is inspiring how strong and positive you are in the face of trials. I have been feeling bad for having to rely on daily medication to feel normal, but You've shown me that it is about making life easier to live and not about a cure. I do not feel ashamed to rely on medication as you have no fear to rely on your wheelchair when you need it. Thank you, jaquie.
I watched the Harlow and chronic illness videos last night and I'll be watching the port and infusion videos tonight! Thank you so much for putting in all the time and effort to complete these videos. They answer so many questions, are incredibly detailed and are organized in such a great manner. Keep up the vlogs, they're wonderful as well!! - Shelbi :)
So happy you like them!
I watched the first two videos and was shocked when I heard what you have. I was also amazed at how well-spoken and formatted they are. I cannot say half of them let alone explain it. Thank goodness for Mayo Clinic. Your perseverance and resilience are amazing. Judd and Harlow seem to be a great support system. Hope the eating and pain get better. My thoughts are with you Jaquie (you and your name are beautiful).
I am so glad you like the videos :)
I like the subtitles at the bottom of the screen for your vlogs. This is the first time that I have seen anyone do that. Thank You so much.
I loved your chronic illness video! My mom and I have been curious about all of your illnesses and that made it so easy to learn about your life and to understand each of them! Your Harlow and Port videos seem great as well (but I haven't finished them yet haha!) and I love the table of contents! It makes it so easy to show my mom what each of your illnesses are. Thank you!
I absolutely LOVED the Harlow montages in your bonus videos!! I was smiling the entire time. Thanks for putting so much time and effort into those videos. They were very well done and extremely informative.
I think you did a great job on all your videos! I am so grateful that you are sharing what life with chronic illness is like and advocating for us and yourself. You are doing wonderfully and I am proud of you.
Thank you so much for posting. I'm being tested for numerous autoimmune diseases. I'm going to have to be in a wheelchair soon. Thank you for giving me the confidence.
Thank you for making this video on the wheelchair aspect. I have been having bad Fibromyalgia Flares, along with an inflamed disc in my back, and bad hip. Some days I can be super fine, but there are a lot of days where I need extra help. I get looks when I am in Walmart, when I use one of those electric cart things. I feel so ashamed at times, but most days I am too tired to care. Much love xoxoxo.
Chronically Jaquie thank you for mentioning the blanket that you received in the mail I'm going to mention it to my parents as a birthday gift it will help me up at school with my panic attacks from the alarms that I have because of my autism. Also thank you for sharing your story, much love from Michigan!☮️💗
thank you beyond words for all your videos!! My kids and I have a lot of the same chronic illnesses as you. and I know my daughter was feeling very alone and isolated because she hasn't worse out of all of us and your videos have helped greatly and also given us several ideas on how to better take care of her so thank you beyond words I would really love to be able to get you to to communicate I think you could be a great support to each other
I just want to say your such an inspiration I have anxiety and I get really sad about how it rules my life but you always smile and keep going x
I absolutely love your videos! I'm also super thankful for the captions and stuff too cause I have like. Sensory issues and like. Thank you so much! Also, Harlow is adorable- I might be getting an emotional support dog for my mental issues (I have a personality disorder and issues with depression, it's been pretty bad recently.) and seeing other people handle service dogs and hearing their stories about having service dogs is really helping me judge wether or not it's a good idea, I'm pretty positive about it though. Once again, thank you lots!
Jaquie - you amaze me every day. I found your account because of my interest in Service Dogs. Like so many of your viewers, I discovered that your current situation with health issues resonates so deeply with my own life. I am so proud of the way you (and Judd) handle all the challenges, and that your "service dog" is part of the family!!!. What a great job you are doing!!! You have a maturity far beyond your years (speaking as a 50-year old who has dealt with chronic illness and surgery since I was born). I'm sorry that you have all this going on in your life , but I am SO APPRECIATIVE of all the helpful information your share with us. Thanks for all the hours of work on the videos. Can't wait to see them. You mentioned in yesterday's blog using a program to combat the shakiness when you film. Where do I find that info? My strange heartbeat makes my hands shake too much to take a decent picture!
You inspire me so much! I myself also live with multiple chronic illnesses and you inspire me to focus on the positive and to never give up. I really look up to you.
You, Jaquie Blake, are my idol❤️
I just love you! And I really want you to know!🌈😘
You did such a good job on the Harlow video, (I haven't had time to watch the other yet) but I just wanted to say you're so strong and you just make my days better.
So happy you're doing okay Jacquie! The videos you put up yesterday were so well put together 😊 also congrats on 14k!You'll be at 100k before you know it!
Jaquie girl you did a phenomenal job with your chronic illness video! I too have IBS and also GERD/Acid Reflux. Triggers are mainly stress and nervousness. But they are not as bad as I used to have them back in the day. My gut is also extremely sensitive to spices/herbs and condiments. For anyone reading this if you have GERD or Acid Reflux I highly recommend you get off PPI's as they will mess around with your body. They never did an ounce of work for me. I am taking a tea called "cuatchalalate" otherwise known as Juliana Adstringes. You can find this at a local hispanic market or on amazon. Boil the tree bark for 4-6 hours till crimson red. Consume on an empty stomach first thing in the morning and dear lord I can not express how much relief I received. A burning sensation in my esophagus was always present but it finally went away.
I same the same problem
Hi! I watched all for video that you posted and they were very helpful. I was recently diagnosed with Selective Iga Deficiency, and when I was diagnosed my doctor explained it as the military as well. Keep making video your such an inspiration.
So true about wheelchairs. On a day to day basis. My mom and sister don't use them. I have a SD and only deal with the daily stares. But when we decide to go to Disney or universal. My sister gets a scooter and I get my mom a wheelchair. My sister has arthritis and mom is diabetic the long lines can really drain their energy and strength levels. But here are 3 women having a good time not looking sick with wheelchairs and a SD. Also sometimes I'll use the scooter and let my sister walk some since any position for a long time hurts her joints. We get the see their fine just trying to play with the system. Once my sister was even told you know those are for people with disabilities.
"Treat yoself" 😆 Judd knows what's up. The blanket looks great 👍🏼. I'll need to watch your longer videos bit by bit but thank you for putting them together! And I hope the gastroparesis settles down.
I love your videos! I have no illnesses (besides celiacs but that doesn't affect me unless I eat gluten) but I am a huge advocate for spoonies and the disabled community (especially deaf and hoh people). I'm extremely glad you make these awesome videos educating people.
You are fabulous! The bravery you show and positive attitude and loving caring relationship with you beautiful family is so inspiring!!!! Love y'all so much! Keep sharing
Even though this is like, a year old, I really appreciate what you said in this video about wheelchairs and chronic illnesses. I have fibromyalgia and joint hypermobility syndrome and they both really make it hard for me to do even simple tasks. I’ve been contemplating a wheelchair for it. That, and for the most part I can’t walk more than 20 minutes without being in so much pain.
I love your channel Jaquie! Judd is so sweet and Harlow is a little goofball! Love your leggings,I wish I could fit into the kids ones
You're awesome, Jaquie! I'm a new follower and I really enjoy your vlogs 😀
You're new informative videos are great! I LOVE the table of contents, I can skip around to the part I need or want to get to
So happy you like the TOC, I thought it would be a great tool :)
Nice work on the chronic illnesses video. Really interesting 🙂
You are amazing. You manage so many things in your life and you still find time to make videos you are definitely one of my favorite vlogers keep up the good work. ♥️
I use a 3-wheel electric scooter that I use for transportation as I cannot walk long distances. I also sometimes have to wear a mask when out in public. I use the paper kind which are so uncomfortable, make my face very hot, fog up my glasses, and are just plain uncomfortable. Yours looks like you may not have some of those patterns. Would you please share with those of us who sometimes need a mask where you got yours. It not only look more comfortable but also is so cute! I am currently recovering from a 5-week respiratory failure that started out with an allergy attack, progressing to exacerbated asthma, and then into bronchitis. Thank you for all your videos and for help with the mask! God bless you and that wonderful guy of yours. I'm 74 and have been married to the same wonderful man for 56 years. The good ones are sometimes hard to find. Didn't we get lucky! 💞
venomouskissx
Yes, I found them. Thank you so much!
3:35 Well, he did as you asked, Jaquie. :-)
4:33 I had a hard time trying to understand you at this point.
5:53 His being a Jaws fan explains why he scared your socks off in a video I watched earlier.
7:16 This reminds me of when my dearest Cori mentioned how much she likes Disney and she said, in response, she was reminded that she's an adult now. When I heard this from her, I was like "So...?".
8:11 I like that pun so much!
11:15 I do not understand why anyone would post negative comments about a video in which you explain about yourself.
12:14 Thank you for sharing as much as you do.
They sell silicone trays on amazon that would be super easy for you! I bought some for my dog and they work really well! The ones I got are little bones which make it even more fun. But the ice cubes just come out and you don't have to crack the tray
We hate silicone haha because they flop all over the place and the water spills out!
They also make plastic ones with a silicone bottom that acts like a "button" that you can press and it gets the cubes out pretty easily!
Oh, that would be perfect! I will have to find some of those.
Chronically Jaquie this is the one I have m.bedbathandbeyond.com/m/product/zing-1-inch-round-pop-out-ice-cube-trays-set-of-3/1060880253?skuId=60880253&mcid=PS_googlepla&gclid=Cj0KEQjwi7vIBRDpo9W8y7Ct6ZcBEiQA1CwV2OPpO_vUICPWjH2HYTnOpFD-U_-saQJ2gm_9rxWhD-saAsvB8P8HAQ
Thank you so much for all the hard work you put into your video's they are so good. Harlow is so cute and you have done so well in training her.
Your vlogs brighten my day!!! and I love that blanket as well !
That shark was so cool ☺ ill have to see if they ship to Australia and good job on the videos I love finding out new information on different illnesses and it was very informative and I learnt alot of new stuff!
I use and electric wheel chair cause I can't walk very far and it can be rather painful to walk but when I do to reach something or going down an aisle where my wheelchair won't fit people are like Hallelujah it's a miracle or you don't need that chair you're perfectly fine so on and so forth. Thanks for spreading awareness for people like me. Love your videos:-)
Came to like this video even though I can't watch until a bit later ❤️💕 love your videos
hey Jaquie, i've been watching your videos for a while now and i think you are so brave, no matter what, you upload videos and talk about it, and i wanted to thank you, keep up with the good work :) i know you can do it :)
Hi Jaquie! You did a great job with your videos, they were very informative. As a spoonie myself, I love watching videos like yours from other spoonies because it helps to know I'm not in this fight alone. I was just curious, does your doctor also have you take steroids with IV Benadryl for your Angiodema Attacks?
I am so glad you liked the videos! I do not take steroids unless I am hospitalized. I react very negatively to them with side effects.
I have crps which is bad enough, but I think I'm going to have to talk to my doctor. In somewhat recent history, I've been randomly flop sweating horribly so, to the point my hair will look like I've shampooed it. Without warning, but then I get so dizzy and faintish. My blood does pool in my legs, that's a symptom of crps too. my central and autonomic nervous systems are compromised. It just sucks. And yes! just because you can't see someone's disability, doesn't mean they're not disabled. I made a video semi talking about that. judgements are not nice. anyways, hope you're having an ok day. much love xoxo
I loved the informative videos. Thank you for putting them together. Great work Jacquie!
Get well soon jaquie
Thank goodness Judd was there!
Love his dancing 🎶💃 in the store 😂. I have recipes for your own empanadas and homemade Spanish rice that are amazing!
Jaquie you are such a great person and you push through even though you have many chronic diseases. I also have a lot of chronic diseases and it seems like I am a normal person but I actually have many chronic diseases but they don't rule my life. I go about my daily life just like a normal person would but I just do a couple things differently. I have god allergies, allergies to insects, asthma, hypoglycemia (sometimes), and chronic allergies. These conditions don't define me. I take action to prevent flare ups and do everything I can to keep myself healthy.
Great videos! Well done. Very informative and hopeful. You have great personality for vlogging.
Jaq: You wanna say hi to the people?
Judd: Hi to the people.
Never gets old.
I think I've figured out what's causing your illnesses! You're body can't tolerate so much PINK!! :P
hahaha jaquie it's so funny to see you at bravo with all that reggaeton playing in the background! hope your processing disorder wasn't affected by that loud music!
I just thought about this, when I'm too weak to shower I usually reach for the dry shampoo, but as a cosmetologist I know that too much dry shampoo in the hair drys up the scalp and it gets to the point where it feels kinda gross. Lately I have been using no rinse shampoo caps and it actually cleans my hair! It helps so much when you just want to feel clean but it's too difficult to take a shower.
They had those in the hospital but they do not work well with how long my hair is. I stick with dry shampoo and it does well for me! :)
Try getting silicone ice cube molds for Harlow's Veggie/Fruit Cubes. It will make it a lot easier to get the cubes out of the tray. I love you videos!
your Harlow video is awesome ! love all the information
hope youre having a good sunday today!
I have fibromyalgia, and quite a few other illnesses. I tend to use a wheelchair when I'm in a severe flare up. I thankfully have a family that will rent a wheelchair at the mall, etc. when I need one. Using the wheelchair is a last resort for me, and I have to feel pretty poorly to do it. I hate getting those looks.
bwahaa We're gonna need a bigger boat!!!! my all time favorite movie too Judd... I love Old Navy
I just watched a video on Facebook on the page adorable animals and it was all about Harlow.
Just watched all your new videos back to back, I loved them an and they were so SO helpful to me I can't thank you enough.
I have some questions if you have a moment to answer any time soon.
Firstly could you do a video about your experience of Mayo Clinic? What to expect, your experience, tests you did there ect.
Also at what point do you think a port is a good choice? How long do you think you should have been having IV treatment for a port to be a good choice?
How do you deal with brain fog? With all your appointments and keeping track of daily training, infusions, dr's, Harlow's diet and just regular cleaning. Do you have calendars/diary?
And do you use a spoonie binder? With all your symptoms, appointments and dr's so it's all in one place. If so could you do a video on how you put it together/what you keep in there/dr's response to it ect.
Thank you for reading this and I hope you can manage some answers. Thank you again for all the videos and for how much they help me ❤❤❤
So glad you liked the videos! Here are the answers to your Qs in order:
1) I probably will not make a Mayo vid because I had some bad experiences and I do not want people deciding not to go just because I had a bad time. Just because it did not work for me, does not mean it won't work for someone else. I did have a lot of great experiences too, but some bad ones.
2) Brain fog - no magical way to deal except manage as best I can. Sorry, I do not really have an answer for this one!
3) I have a portfolio with all my important medical records. Eventually I will make a vid about how to get answers when you are chronically ill, and I will include info on that. That video will not be happening soon though.
Hey Jaquie! I was just wondering what type of wheelchair do you have?
Thanks for your videos, they make me feel not so alone.
It is a simple transport chair. I do not remember where we got it from though.
I just want to say, your an inspiration. My niece also has autism, and an unknown cause for her seizures (she has about 100 a day without medication, but with medications she has about 40-60. *Its a staring spell seizure*.)
I want to talk my sister into getting a dog to be trained for a service dog. I'm just scared that she will say its way to much money, or that it is no use because of how many seizures my niece does have a day, any advice?
It is really up to your sister, you can't force this choice on anyone because getting a SD is a BIG life change. Maybe try watching my All About Harlow video and my Service Dog 101 video with her? It gives out a lot of good SD info :)
Thank you that really did help, I emailed her the links!
love your videos !
Judd: wait, you're not healthy?
Jaquie: shut up Judd!
I have a wheelchair because I tried out to quickly and I have neurofibromatosis and three inoperable brain tumours!
I loved the videos you put out. Now I understand more about you. ❤️❤️❤️
I have an invisible illness that does not impact my mobility. I use q wheelchair when at the airport. I become overwhelmed & overcome with anxiety. Getting q wheelchair allows me to be taken through security quickly & delivered to ,
Delivered to my gate without a panic attack :)
Hi, I love your videos you uploaded yesterday they are so helpful! Do you think you'll ever put captions in your videos,? The auto generated ones often don't make sense 😂 sorry if you've already answered this question too. Love and spoons!
I am so glad you like them! I honestly just do not have the ability/time to caption my own videos between the videos I am working on now, my daily vlogs, and dealing with my health/life in general. It would be putting too much on me. But just today I discovered how to let people from the RUclips community contribute captions! So hopefully people will do that to make my videos more accessible. It would be awesome for my family too, as my dad is nearly completely deaf. So I hope people contribute! :)
Chronically Jaquie I hope so!! It would really help me and all the other HoH people out there❤️
I actually just turned on the option for all my videos and I am going to include the link for people to click on in order to contribute in my descriptions! :D Hopefully people do. Tomorrow I will be sure to mention it when I record!
Chronically Jaquie yay that's so good!! Thank you so much! I think all vloggers and youtubers should turn feature on as it really helps with accessibility!
I agree! I did not even know about it until some people mentioned it to me. Then someone helped me figure out how to do it (it was a little tricky to figure out lol). I hope by announcing it, lots of people will actively contribute!
I love that you share your story! I find it very inspiring and it helps me be motivated. I just wanted to ask you something about being a girl. Hw do you deal with your period? Thank you and I hope you have a good week!
I do not have my period, I skip it and have it about 2 or 3 times a year. It is much safer for me that way!
Do you think the nausea last night had anything to do with the impending angioedema attack?
It could have but no way to tell. I have so many illnesses that could cause my nausea.
Me and my family like bravo but they don't have diet mountain dew for my mom lol, I am sorry you had an attack , Harlow is awesome
Hey Jaquie, I really think I could benefit from a wheelchair but I really don't know how to bring up the subject which my parents. I have POTS and its has become so disabling that some days I can't sit up without passing out. I tried to bring it up but I i freaked out and changed the subject about the wheelchair. Any tips on bringing up the subject?
Best wishes from the UK xxx
Hey, we are working on "clean up" right now with my service dog in-training! :) Is Harlow still in-training?
I wish old navy had fun leggings for adults. Walmart has some but not here in Canada. I get my USA buddies to get me some.
Pots infusion question: why not infuse overnight?
PotsAndPups I'm pretty sure she has to switch the bags out after a few hours, so it'd probably wake her up!
I do not like being hooked up to tubing at night.