Living with and Managing Sickle Cell Disease
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- Опубликовано: 8 сен 2024
- Tiffany was born with the most severe form of sickle cell disease, sickle cell anemia. She has lived with the symptoms and complications of sickle cell disease her whole life. She was hospitalized multiple times after giving birth to her daughter, when she began treatment with a medicine called hydroxyurea. Although her brother had experienced side effects with hydroxyurea, Tiffany had success with the treatment. By following her treatment plan and living a healthy lifestyle, Tiffany has a happy, full life.
This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH).
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45 year old sickle cell survivor!!!!! We are a Strong, Blessed, Group of People. Everyday, I wake up and thank my Heavenly Father, for one More Day!!!! Be Encouraged!!!
It really hurts when people think your faking. Or they think that you are not as sick as you say you are. Sometimes the emotional pain can hurt worse that the physical.
I understand firsthand what Sickle Cell pain can feel like. I'm 20 and I have SS disease as well. Sometimes I feel like my mom doesn't even understand, let alone the doctors. Bottom line is that you can't comment on somebody's struggle unless you felt their pain. I thank you for your courage to raise awareness for Sickle Cell Disease.
I KNOW YOUR PAIN. I HAVE THE DISEASE. I JUST GOT OUT THE HOSPITAL, WHEN I GET SICK IT BE REAL BAD. I BE IN SO MUCH PAIN. I BE FEELING LIKE DON'T NOBODY CARE CAUSE THEY DON'T UNDERSTAND MY PAIN. ONLY MY BROTHER UNDERSTANDS BECAUSE HE HAS IT. BUT I'M REALLY GLAD I WATCH THIS VIDEO. NOW I KNOW IT'S MORE PEOPLE THAT UNDERSTANDS THE PAIN I BE IN.
It's good to see alot of people doing very well with the sickle cell disease,because my teacher assigned my partner and I to this disorder,and just a few minutes ago,I was crying,looking how people can struggle with tht everyday,but now it seems like the more videos I click on,the more I see healthier lives with the sickle cell disorder !
She is such an inspiring individual.
The brave heart is the first remedy of this like dreaded disease.The video remembering us this truth once again. Thanks for this great effort!
I am happy to here.. i friend his sickel cell and i am so sad for him
Wow. I'm researching this for biology and this is truly amazing. I had no idea how severe this was with the crisis and treatment on how it changes your whole life.
Bless you sweetie!
Thanks very much for your comments and for sharing your story. Please note that as a federal research institute, the NHLBI cannot provide referrals or recommendations to doctors nor counsel individuals on specific medical problems. Advice on treatment or care should be obtained through consultation with your physician.
Awareness...great job.
Such an inspiring and uplifting video!
in 21 with sickle cell beta thal & in expecting my first child in happy to i don't have them pains like i use to
@PreciousMe03 I feel you bro... i have the same disease and it's really painful but no1 knows how painful it is... to be honest it is as painful as the time i got my leg's muscles ruptured... even more painful, but i feel comfortable in the hospital more than my house because the atmosphere there is so nice :) only if there's internet in the hospital i'd prefer staying there more than my house.
Mash'allah