Sickle Cell Disease Can’t Stop Alliyah

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  • Опубликовано: 16 дек 2018
  • Since birth CHaD patient Alliyah has had to overcome the devastating symptoms of living with Sickle Cell Disease. After two years in a wheelchair she now looks forward to the opportunity to try out for her school’s track team.

Комментарии • 52

  • @cewkie
    @cewkie 4 года назад +25

    I have the same disease :) i searched this up to find other people like me.

  • @MissKiwiPlace
    @MissKiwiPlace 5 лет назад +31

    I wish adult care was as good as pediatric care.

  • @emmanuelhaastrup
    @emmanuelhaastrup 5 лет назад +9

    Well done and proud of you.

  • @JaniqueLalor
    @JaniqueLalor 3 года назад +6

    My son is five they say he have Sickle Cell Disease. He had no crisis's. The doctor told me he had the worse causes of sickle cell Disease. When he was one he would be very sick. I reject every bad report. I only believe the report of the Lord. My son is healthy. Just turn five over the weekend. I gave a testimony on my channel. To show of God goodness and grace on our life. I feed him healthy, I pray and I fast.

    • @ddotdollaz
      @ddotdollaz 2 года назад +1

      I am 33 years old turning 34 this year. I have sickle cell anemia. I want to tell you this, not to doubt your faith but just as information. As a baby/infant our fetal hemoglobin is pretty high. This is the reason we did not suffer crisis at such a young age, however as we grow older our fetal hemoglobin declines. I have a particularly high fetal hemoglobin for my age, but recently I started to experience more and more crisis. I am bless to have made it through the experiences that I've been in and I hope your son does the same or better than I. Here are some things I have done to manage: hydration, water is important. Excercise, I workout 4-5 times a week, be sure to rest as long as needed as we have trouble transporting oxygen but excercise has done wonders as long as its done at your pace. Hot showers whenever a crisis comes along, also some pain medicine because it is very strong. And this is embarrassing but must be talked about. If your son ever experiences priaprism, have him excercise. Doing push ups/pull ups are a great way to redirect the blood flow. My mom put all her faith in God when I was young, and still does to this day. I'm not particularly religious, but maybe in some strange way, that continued to give me the strength to carry on. If you ever need advice, reply to this comment. I don't wish this disease on anyone but if someone has it, I will share as much as I know. Take care and God Bless.

    • @JaniqueLalor
      @JaniqueLalor 2 года назад

      @@ddotdollaz My son fetal hemoglobin decrease he will be six. His body start to make some Hemoglobin A. Fasting and prayer break every yoke. I feed him healthy alot of blending up smoothie and green juice. He is very active.

    • @ddotdollaz
      @ddotdollaz 2 года назад

      @@JaniqueLalor Thats very good. Keep it up, seems like he's in good hands.

    • @JaniqueLalor
      @JaniqueLalor 2 года назад +1

      @@ddotdollaz These sickness are generational curse. They are from our bloodline. Our ancestors sin against God. Worshipping idols and blood sacrifice. It fall on the 1-3 generational. We have to break the curse. By doing warfare burning the ancestors altars. Breaking the covenant setting it on fire. Aggressive warfare prayers. This might be too much for you. I just went deep into spirtual things. I didn't go too deep though. I pray someone will take this and put it to use.

  • @arnettawest3976
    @arnettawest3976 3 года назад +3

    You go girl!

  • @MsBlackmon6783
    @MsBlackmon6783 4 года назад +2

    Keep running!!

  • @iziahhooks2597
    @iziahhooks2597 5 лет назад +4

    I can't be stopped either but I am always being home just because of my grandmother. I hate being home ALL DAY long EVERYDAY LONG!!!!! My own mother doesn't want to put up with me and my dad's in prison my grandma took me in but I'm now a grown behind man, man. I'm a 20 year old man, man and I just can't get out of this dog own house. And yes, it sucks that I can't get out.

    • @mikhisky
      @mikhisky 4 года назад +2

      Same I have kids now I feel like I can't even car for them the way I want

  • @Sunday_Onwuka
    @Sunday_Onwuka Год назад

    I work at the Sickle cell foundation Nigeria and I wish to play this video for our Sickle cell champions here in Nigeria

  • @_SIBBSTRADES_
    @_SIBBSTRADES_ Год назад

    I have sickle cell since I was 3 months as well and now as I speak I'm on a crisis It hurts a lot

  • @nileshrobert5674
    @nileshrobert5674 4 года назад +2

    Silence is my tribute.

  • @gwendloynwilliams3047
    @gwendloynwilliams3047 Год назад

    Amen

  • @Flex_movie
    @Flex_movie Год назад

    I have the same disease

  • @diamondprincessqueen523
    @diamondprincessqueen523 5 лет назад +3

    I'm Anemia to but I keep going my Anemia is so bad that I have to go to the blood doctor at the cancer center I no how she feel

    • @Certified_001
      @Certified_001 5 лет назад

      Diamond princess Queen HOW I GOT CURED FROM HERPES VIRUS..I was diagnosed of HERPES virus and i have tried all I can to get cured but all to no avail,,until I saw a post in a health forum about an herbal doctor who prepare herbal medications to cure all kind of diseases including HERPES virus,at first I doubted if it was real but decided to give it a try,when I contacted this Dr via his email and he prepared a HERPES herbal cure and sent it to me via UPS delivery company service, when I received this herbal medicine, he gave me step by direction on how to apply it,after applying the way I was instructed,I was totally cured of this virus called HERPES, all thanks to DR ABUMERE..contact this great herbal doctor via his email drabumere17@gmail.com or call or WhatsApp him on his mobile number +2348102743287
      He can also cure so many sickness
      {1}HIV And AIDS
      {2}Diabetes
      {3}Epilepsy
      {4} Blood Cancer
      {5} HPV
      {6} ALS
      {7} Hepatitis
      {8}Love Spell
      {9} Sickle cell anaemia

    • @plugthesnippet6583
      @plugthesnippet6583 4 года назад +3

      Williams sasha please no one fall for this scam

    • @quotesinspire76lilly.02
      @quotesinspire76lilly.02 4 года назад

      @@plugthesnippet6583 👏

    • @shayplayz9262
      @shayplayz9262 Год назад +1

      Drink beets juice formula blood

  • @jonc8845
    @jonc8845 4 года назад

    They can treat it with crisper

  • @r_a_a985
    @r_a_a985 3 года назад

    Not only i suffer from this pain also pneumonia last for me 2 months

  • @iziahhooks2597
    @iziahhooks2597 5 лет назад +2

    Oh and one more thing I don't have ANY friends. Nope, none at ALL. AND IT GETS SO SO FRUSTRATING THAT I, IZIAH HOOKS, CAN'T GET OUT THERE IN THE WORLD. I MEAN, HOW AM I GONNA LEARN TO LIVE ON MY OWN IF I CAN'T EVEN GET OUT THERE TO DO SO!!!!!!!????!!!!!!!!!!!

    • @rose968
      @rose968 4 года назад +1

      I don’t know you or anything but you say you’re 20. I’m not sure if it’s a comfort thing but it sounds like you need to just get out there and go do it. Your life isn’t going to change unless you start making changes for yourself. Good luck on your journey.

    • @WaTuR
      @WaTuR 4 года назад +1

      become a vegan- no meat, eggs, or dairy and your life will change for the better. I guarantee it. I can help you

    • @TheWoodland12
      @TheWoodland12 4 года назад +2

      Iziah Hook's I’ll be your friend.

  • @fsshockwave2519
    @fsshockwave2519 4 года назад +3

    shes running in jordans...