Strategies that Freed Jackie Baxter from the 3-Year Long Covid Nightmare
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- Опубликовано: 1 июн 2024
- In this video, Jackie Baxter shares her personal journey with long COVID and the three most important tools she used to overcome the illness and fully recover.
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CONNECT WITH JACKIE BAXTER:
💻 Jackie's Website - www.LongCovidPodcast.com
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Breathing info - linktr.ee/longcovidbreathing
Breathing RUclips - / @longcovidbreathing
FB support group - / 226205049688480
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RECOVERY STORIES SUMMARISED:
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TIMESTAMPS:
00:00 - 🔊 A Special Announcement
00:57 - ⭐ Meet Jackie Baxter
02:24 - 🌟 Jackie's Lifestyle Before Getting Ill
04:04 - 😷 How She Caught COVID
05:42 - 💔 Getting Some Bad Advice
11:11 - 💑 How It Impacted Her Relationships
17:45 - 🛑 Unsuccessful Recovery Attempts
22:26 - 🔄 Recovery Strategies that Worked for Jackie
26:21 - 🧘♀️ What Kind of Meditation Helped Her
30:47 - ❄️ The Third Thing of Massive Help
36:50 - 💚 Why Addressing Mental Health Is Crucial
41:50 - 🤕 The Unexpected Challenges When Recovering
48:39 - 🌬️ Why She Started a Podcast
53:27 - 🌊 How to Contact Jackie
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#longcovid #longhaul #recoverystory
Thank you Raelan for having Jackie.. I came down with Covid January 9, 2020.. and am still struggling with symptoms now.. Just to know we're not alone helps so much.. again Thank you So Much ❤
I empathize cus I am going through the same 😢 I wish you to get well soon!❤
Im heading into year 3 LC, and had very mild ME for 14 years prior unknowingly. Sending love, we can recover.
Same here. I have have been sick 4 years this coming March. Still handicapped with low threshold for PEMs. Nothing has worked for me.
wow her story her is like mine. I guess my personality and constantly pushing, always made my body weak but I didn't know it. When I got covid November 2022, after a week I decided to run like I normally did. I ended the run feeling like my lungs were closing and my heart was going to explode. From that point I was completely stuck in fight or flight for a year. It took ice baths, breathing training , and relaxation to take me out of the worst of it. Unfortunately the people with the personality like me and her suffer from this because mentally the idea of being down is not acceptable and the answer is pushing yourself harder. They tried to diagnose me with ADHD when I was younger but I realized later on im just high strung. I especially like athletic goals like marathons or ultras and weight lifting. This is probably why we suffer from this. The intense pressure on the nervousystem.
I'm in year 4, and I agree. Every time I started to improve a little, I'd use that 'opportunity ' to get any type of workout in, and getting setback after setback...
@@aprilgarnett55 it’s so hard to just accept the idea of not doing much for a while to let the body recover. That’s what makes this disease so difficult. My advice is don’t push at all. If your feeling good, don’t work out or walk or anything like that. Unfortunately it’s the nature of the beast
❤
Same time line and pretty much same story. I'm improving. However, flares became less and less. After covid again in Aug 2023, I made the most improvement. Which is odd. I've also added mitochondrial supports, as well. Graduated walk and run
@@oliviaelliott4623 what are you taking for mitochondria?!
Long Covid is not just depression and anxiety. I lost my ability to be happy or be able to handle even the joy of my boisterous grandkids. I was such a lost soul that no one could be around and I couldn’t have handled anyway. It was the disease. That’s all gone now as I continue exercise, sauna, sunrise as often as possible (this has been invaluable at teaching my nervous system when sleep and wakefulness should occur. My autonomic nervous system is so much better than before COVID and long COVID. I never realized what a stressed life I had.
What kind of exercise?
Very similar story to me. Thanks Jackie your channel also has been helping me a lot. I bought a plunge pool 4 days ago. I'm at 2.5 years and going in the right direction. Having my health back will be like winning the lottery, meeting my perfect woman and finding my dream job all at once. It is going to be f#####g incredible!!!!! Thank you both for your help so far on my recovery.
I’m also 2.5 years in. What are your symptoms? I have chest tightness and shortness of breath
@@nahidtahira9900 I have a lot more than that 😏. But I don’t want to list them all. They’re all caused by an unbalanced autonomic nervous system. I’m doing the work daily. Ever hour on the hour I stop what I’m doing/watching/listening to and I do either a John Sarno writing exercise, yoga nidra, breath work, laughing yoga, EFT, cold plunge or a mediation in any order until I have done them all. I am also walking as much as my body will allow at the moment and upping it when I feel I can do more. I expect to be 100% healthy in the next 6 months.
The point about being *afraid* to talk about mental health because doctors etc would DISMISS your Long COVID symptoms... yes! This has been huge for me. I don't have any history of depression or anxiety, but having my life shut down (and having to deal with the US medical system) has definitely increased my levels of anxiety, or left me feeling very depressed some days. I've found ways to address mental health challenges, but I feel like it's been often hard to even admit it to myself in the first place. We need to change this!
I have the same issues since my covid infection. Intense anxiety and depression. This doesn’t feel like me at all. I’m assuming it’s the virus that did it but still it needs to be addressed. I’m against taking meds because I know I’m not actually depressed but this virus changed my brain. It’s scary. I’m hoping it will end soon
@@joealitz4157 I'm so sorry to hear you've been suffering like this, but it's heartening to know we are not alone in this. All of us will grow through this together!
I've found my syptoms are much easier to live with when I approach them with a non-judgemental mindset, noting them, accepting the sensations. I agree that the symptoms of depression/anxiety aren't you (or me), but I also personally found it helpful not to resist the sesnations they produce, or react with fear. Perhaps you already know this, but this way of approaching it was not intuitive to me and has helped me a lot.
I find it useful to try to see if I can notice the difference between circumstantial anxiety (ie I need to do X, but feel to fatigued to, and worry something bad will happen but don't feel control), vs what I'd call "ambient" anxiety, or anxiety just coming from my nervous system without a specific prompt. Of course, these two amplify and swirl together. But just noticing the triggers is helpful, not trying to change, but saying, "Ahh, thoughts about a future project I feel behind on are causing my heart rate to increase and my chest to feel tightness. I observe that thought isn't too useful to me right now, but I accept my body's responce as its own misguided way to help me. I also want to gently remind my body it is safe."
That makes a surprisingly big difference for me!
Agreed. The USA health care system is a sham. Most practitioners don’t care or are told to only do X amount for a patient. Insurance, money driven mess. Definitely a large part of my stress with chronic unknown issues a year and a half and counting.
I hate how doctors ignore symptom causes being from the infection or bad vax reaction. I’m visiting their offices looking for help not getting hooked on antidepressants.
@@dot1910 I know! I'm so glad we have each other and the ability to share what we've learned online.
I absolutely love yoga nidra and it has been HUGE in my recovery from long covid. So easy. So simple. So healing ❤️🙏🏽
Thanks for sharing! I'm 11mo in. I was recovering after 6-7 months but then got Diverticulitis, likely as a result of covid damage, but who knows. It made things worse... then I got a bug over xmas and it made things worse yet again. I've also used Wim Hoff breathing and cold exposure with some decent results but not addressing the issues with oxygen utilization directly. I still have horrible endurance and poor recovery from activity. My VO2 Max went from about 52 to about 36! Then about 10 days ago I tried Ivermectin... it was pretty bad at first, could feel my body tingling and got a headache. Next day was the best in months though! It made a night and day difference. My Garmin sleep scores and HRV massively improved overnight! Now I just started on methylene blue, we'll see... I think the main goal for recovery is to relieve enough stress on your body so it can heal. You get into this feedback mechanism where it's just not possible and you get stuck. Wim Hoff and Ivermectin have been two things that give space, but for me at least Ivermectin has been a miracle.
Almost a dead ringer for my own experience. Three years of a roller coaster of waxing and waning symptoms, some relief and then horrific relapses. Being afraid to go to sleep thinking I would die, then going to sleep and hoping I would! On MANY occasions thinking I would drop dead in the next five seconds. It all started 36 months ago to this very day, and is less but not gone. Awful.
not a doc. but I suggest you check out FULL MEASRE w/ Sharyl Attkisson's program about COVID CLOTS (google it), Walt
Wow I felt this😢
I will add to what she is saying a few things that were just as invaluable. I was very strict about going outside for sunrise and sunset. Light is critically important for getting my nervous system back on track. The next thing was sauna at my gym. I had never used it but I felt at least I had that control. (I felt horrible anxiety being stuck at home or trying to nap. )
Breathing, yoga nidra, cold showers. Thank you so very much. In the LC journey.
Yoga Nidra and Nonsleep Deep Rest (see Andrew Huberman) were lifesaving for me. Guided meditation of all sorts helped too. I could never have slept otherwise. Waking up in the night multiple times due to losing circadian rhythm of my brain was relieved by having several RUclips guided meditation videos ready. (I would also recommend a very dark eye mask)
🌍 I just LOVE the way you show the globe and photos of your guests’ locations. It’s so fun and creative!!
Reagan I'd like to understand how those in recovery manage employment? no one talks about this.....i really live to hear peoples experiences managing employers, support, or financial management as this us huge especially if you are solo and recovering with CFS
Yeah really. All the people you see on these videos have some sort of financial stability beyond their job, partner, already wealthy etc. it’s possible that those that don’t end up homeless and dead so we don’t hear about them.
@@Richexperience1infected oct 2020. Lost job house car. And everything I ever had. Baby books photos. I’m sick and begging strangers for help. I’ve been assaulted physically and sexually. Attempted suicide in November. Lost all hope.
Another wonderful interview! Jackie articulated the social struggles living with chronic illness so well; I appreciate her giving voice to that. I would love to hear more discussions about how people handle concerns about getting back into the world as they get further along in their recoveries. Personally, the idea of putting myself at risk of getting sick even just with a run-of-the mill cold is still pretty scary, and that limits my ability to do things that I am otherwise well enough for.
thank you, thank you so much ....all this knowledge has helped me come out of LC after a grueling 3.5 years...I love you all...Blessings, Eileen Harris.
So great to see this. Jackie's journey was one of the first I came across when i first for LC/CFS 16 months ago. Seeing her thrive is inspiring.
I appreciate hearing stories about those who are healing. It’s been tough but I will get there. Unfortunately, my partner was not as supportive.
I find this such a harmful narrative, "the story didn't start when I got sick, the story started long before". It's simply not true. A lot of people live like this, stress doesn't give you ME/CFS, nor does it prime you for ME/CFS. Stress is not good for our body, obviously, but you can get ME/CFS without being stressed.
Couldn't agree more otherwise everyone going through war would end up with ME/CFS!! I get very annoyed with this narrative too. Most people feel as though their lives are crazy busy and they don't do enough self care but they are not all developing ME/CFS after infections.
There's nothing harmful about this "narrative". Stress is extremely harmful for brain health, including the hippocampus where most cognitive functions are regulated. I feel that the immense prolonged stress I had been under contributed to my severe long covid.
Of course not every stressed person will get these conditions, and vice versa, in the same way not everyone will be symptomatic with an acute covid infection. However, those who have had the condition have the best insight into some of the vast range of peculiarities of long covid and this cannot be minimalised.
@@granitesevan6243 the narrative is harmful because it's faulty. Spreading misinformation is harmful. Misinformation that made it possible that no one is researching ME/CFS, because doctors and scientific community think it's a made up condition. Well of course, because people like you push the narrative that it's stress related 🤦
Plenty of people who have ME/CFS had normal stress levels before getting the illness.
Prove that there's correlation, otherwise I'll keep calling bиIIshit.
Note that no one said stress is good for you. The only thing I'm saying, stress doesn't cause ME/CFS.
So pleased to come across this today, long covid since June 2022 & you've explained it spot on,thank you for the great advice ❤
Sixteen months ago, with no warning,' I came down with viral pneumonia at 79. Home from hospital I expected maybe a week to be ready to continue my life. What was this debilitating fatigue that held me in what felt like mud? I saw an internet talk on Chronic Illness. And thought, that's what I have. That began my search which brought me to ME/CFS And to Realan. I bought her Finding Freedom book, am still watching her interviews and felt I'd found my "tribe"..Not recovered yet, lots of mountains and valleys, and loved this interview with Jackie from Inverness. (I'm not any Gen, just WW2 baby from England, so don't know how to begin my comment with @...
only email.....Could someone in a younger Generation please help me. I'm open to learning.)
Wow, Vera! You've totally got this ❤️ Wishing you all the best on your recovery journey, may it be soothing and rewarding!
This helped me a lot. Thank you.
I've been binging on what I missed while away on holiday for 3 weeks! Some great videos, Raelan. I love how Jackie verbalised the social struggles we had while ill. The feeling that others don't understand, the fear, the black dog of mental ill health that plagued us when we were sick. Good on you, Jackie, for giving back to those in need.
I follow Jackie Long Covid story since from the beginning till today. Thank you Jackie for giving me hope and realan too thank you very much.
This is SO GOOD! Much like me. I’m still at the bottom of my long COVID (3 years now…) I am going to try her advice!😊
Wonderful story! Love the long COVID podcast Jackie🎉
So glad! ❤️
Great chat as always. Love the “ I’m my worst enemy” , so very true. We need to take deep care of ourselves and stop putting ourselves last regardless of people understanding or not.
I found Ally Boothroyd on RUclips fantastic for deep rest yoga nidra 🥰
Wow, so happy to hear this, Nola! ❤️❤️❤️
I love Ally’s yoga nidra recordings 💕
Another great interview. Thank you Raelan!
49M - suffering from LC since June last year. I have weeks where I feel nearly normal followed by weeks or months of symptoms. Some symptoms are really odd and last only a day or two. My body is a wreck!
Awesome interview, thank you!
Glad you enjoyed it! ❤️❤️❤️
I definitely have the covid toes!! I instantly knew exactly what she was talking about. 😂
Thank you for Sharing ❤ good News are Welcome for all who still suffer
Thanks for this interview. You two have helped me a lot!
Thanks! It means a world to me! ❤️❤️❤️
Awesome interview Raelan! I'm a year into long covid, after having had Lyme disease for 10 years. But, after watching your channel these past few months I'm really starting to see progress! Thank you so much for all your effort on putting this information out there❤ And thank you Jackie for sharing your story, so incredibly helpful💕
Great interview! I liked how Jackie synthesized her experience and the things that worked into 3 main buckets so the takeaways are easier to apply for anyone listening!
Totally agree, Yumzsid! ❤️❤️❤️
Thank you for answering my question about cold plunges. Thankful to know I can do a cold shower.....as much as I hate it now that I'm older. My mom was a believer in the powers of cold water and ended all of our baths with cold water. I was doing cold showers until I hit my 70's and I just couldn't tolerate it any more. But I'm desperate so back to the cold. 🥶
Can't thank you enough for your work ❤
Much appreciated! ❤️❤️❤️
This is great how she explained one by one what helped and what made it
Worse!! Thank you. More details like this is great help!
Glad it was helpful! ❤️❤️❤️
This was a really meaningful conversation and I'm glad I got to hear it. I've found a lot of parallels with my own journey and took a lot of positivity from this video. Thanks for arranging this and putting this out there Raelan and thanks to Jackie for sharing her experience.
I'm so glad it was helpful, Lizzie ❤️❤️❤️ All the best to you!
My dream since having LC (also GI major symptoms) is to spend time in Inverness. Love it. Never thought of swimming in Loch Ness. Wow.
Great interview! WIm Hoff inspired me to do cold showers and I echo her in that it feels
Like being “plugged back in to a socket.” So amazing! And then swimming in the cold California ocean is literally life giving.
Wondering when your brain retraining program will be ready?
Love that!
Brain retraining 101 - hopefully next week! I've just added the link under the video - you can sign up to get notified about the course! Thanks so much! ❤️
Thanks for this video, first time watching your video, thanks Raelan! Thanks Jackie for the heart felt sharing. It's really helpful for my recovery, calming my growing depression. Wish you all continue to stay healthy. Love!
Much love to you, Jake!
That sounds a lot like me. The breathing and nidra yoga have been most helpful. I started cold water swimming before covid and haven't really done it since. Maybe it's time to restart... Other things that have helped are an eye mask for sleeping, sleep stories and calming music on the calm app, counselling, yoga, proper hydration...
Keep it up, Lyn! ❤️❤️❤️
TOES?! what about daily idiopathic anaphylaxis and severe food reactions causing worsening POTS completely bedridden unable to stand gastroparesis and excruciating electrical pain and still being gaslit by doctors and forced to eat only three foods for 2yrs and counting just to avoid death? Can we talk to someone who has recovered from THAT? DO they even exist?! It seems to be more common to be worse in long vax, which is my case, but no one wants to interview us.
It's horrendous, and I'm sorry to hear that you have to go through this. There are many recovery interviews on the severe ME/CFS recovery playlist on the channel. I hope they will be helpful.
Sorry to hear about your health. Have you tried ivermectin?
Look up Kimberly Harter, she was interviewed by Raelan and others. She also has a YT channel. She had severe anaphylaxis, she could only eat veggies and some meat, and severe POTS. Bedridden and couldn’t stand light/sound. Hopefully that offers some hope for you.
I am as severe as you. Major focus on nervous system regulation as it affects all of these things.
So sorry, I’ve been on a similar path and I did a lime disease test with Armin labs they send kits
I have an important question that I hope you’ll be able to answer. Since Cold water is so helpful, are saunas and hot tubs a bad idea when you have long Covid? Thank you so much.
Ok I have long covid but I wanna extra talk about the cold water thing. My father never allow me to take hot baths so all my life I take cold baths even if is cold weather. I don't know when I started to notice that if didn't take my morning cold water baths I couldn't beggin my mornings, I have always been a lower energy person always, so the cold baths it gets me alive, now I have long covid I certantly don't know if it's helping but I still feel the energy the cold water gaves me all the way every day so I agree Im the proof.
Lol I always say version 2.0 is developing 💜 I was in the music industry so I relate to the perfectionist issue.
Hey,..great interview interesting,..cold plunges in lochness ,when i understood that right, that is so cool, i take cold showers almost everyday ,wane go in a lake here in Berlin soon ,..but i feel i have to be a little bit more " fit" or feeling better for that ,..i will definitely follow Jackie ....anyway maybe i am a little dumm but could nt find the link for your new brain retraining program???? Maybe you can help ,.. totally wanne check it out,.....❤😊
Glad you enjoyed the interview, Emanuel! I've just added the link under the video - you can sign up to get notified about the course! Thanks ❤️
Hi Raelan! When your brain retraining course will be available?What is price of it?Thank you!
Hi Marijana, thanks for asking! You can find the info under my latest video. ❤️
people don’t get it, they most often don’t want to hear about it. I have been shunned by people if I tell the truth of how I’m doing.
How do you determine that you no longer have long-covid?
Doing beureyko breathing was part of a healing journey for me but it does eventually lead to embracing other spirituality and I really wanted modalities that didn’t embrace any backbone of spirituality to allow choice in that area and so I did find ways to implement the breathing techniques and the way to calm the mind that did not include the spiritual aspects because they were critical to healing the nervous system that has been thrown out of whack and correcting the breathing was a big part of it and calming the mind but it doesn’t need to be linked and sync to a spiritual practice such as yoga or beureyko breathing. So many other options out there to reach the same goal.
And yes doing ice immersion especially over the back of the neck OK with something that was very helpful but it doesn’t have to be a big thing you just figure out what works for you and what doesn’t work for you like Rylan has described
Basically in the end I learned that the inappropriate breathing and very active mine keeps the nervous system stimulated obviously as we know that’s not good on the parasympathetic and sympathetic roller coaster and then that can turn on the mass cells to be active all the time which then leads to things like lupus and other autoimmune disease such as mass cell activation syndrome so embrace the good healthy practices anyways that align with whatever spiritual journey you yourself are on but I never compromise your conscience Seeking healing.
But I will caveat that all of these techniques are managing symptoms of a underlying condition and trying to micromanage and turn off that signaling and it can have a huge impact and allow the body to heal but you do also need to make sure there’s not any underlying infection or genetic conditions such as hypermobility EDS that might be driving the whole thing that’s not addressed because infections such as giardia klebsiella pneumonia need to be treated along with allowing the body with these types of practices to calm and heal.
It’s a combination of things sometimes.
I wouldn’t be surprised at all to find out if she doesn’t made a profile for hypermobility and potentially my cell activation connective tissue Ehlers-Danlos syndrome and I’m not saying that they can’t be healed but that rash across her face shows that she is still activated she’s not fully healed that’s for sure.
I’m fully healed but now we plan our hikes around a place to swim is not fully healed but it is definitely a much better state of living in life!
Seek the final answers that allow you to hike and it have to ice plunge. Then you are fully healed. Hugs ❤️
I love that you share your story keep seeking all of the answers eventually we might all get to the fullness of what’s driving all of these symptoms.
Being able to re-enter a scene socially where there is acceptance and you’re not always talking about the illness and condition is critical these are all excellent components of a bigger picture that’s being laid out but you can find these things in so many different modalities.
That’s so often and there’s so much to be able to sell in the platforms of these techniques you need to know them and understand them and why they work and then figure out how to make that practice or process something that actually aligns and works for you as long as you understand why and how it works and then coaching could be excellent but tying it to a specific type of practice or spot or place or person or police system may not be the answer for you but it may be the answer for someone out there.
So is someone young who is doing all of these remedies and practices to keep a balance and potentially not pursuing maybe some genetic under liars of auto immune susceptibility if you add a stressor like children to that dynamic and the children are not going to do all of these practices and yet they have the same underlying condition could tell the whole thing and so I say this with love and yes these are wonderful practices and I congratulate her and thank her for sharing the journey but there’s still something missing here based on the physical presentation that potentially needs to be medically addressed Such as a genetic susceptibility to connective tissue disorder hypermobility autoimmune such as lupus I would definitely go the full gamut especially if considering having children
On the food intolerance tests:I've wondered about that also. The fact that seemingly everyone comes back positive for soany food intolerance, when they previously weren't....leads me to believe it might be a sham
😮oh! Breathing! Now WHY didnt *I* think of that?!😂😂😂
OK I couldn’t help but notice because I have the same type of butterfly rash across my face especially when I am put on point in front of a camera or an audience potentially and must speak but it’s also the same sign and symptom of lupus mast cell activation connective tissue disorder.
Covid toe sounds like the Psoriatic Arthritis “Sausage Toe” and combined with Chilblains autoimmune response. It is miserable.
Cold water causes crashes for me
Have you started slow? Some people might need to work up to it. So cold water on the face first, then maybe turn the shower cold at the end for a few seconds, etc etc - then if you go for the immersion, go in just your feet, then next week your knnes, then waist, etc? And remember you only really need to stay in about 90 seconds to get the full benefits. YOu can stay in longer if you want, but remember that the longer you stay in, the more energy you will need to warm up. Less than 90 secs you'll still get benefits, so just do what you can do :)
This is how I healed from fibro in the early 90s.
Has anyone had a rapid heart beat in the middle of the night due to long Covid?
Yes and it's terrifying. I had this, and see it alot with clients too. Down-regulating before bed helps, improving breathing during sleep helps. But it doesn't always prevent it completely, in my experience anyway. But I do know what to do when it does happen now!
Yes. I’m on a med prescribed by a cardiologist. It helps some, but I have been doing meditation, breathing, and vagus nerve massage. Along with acupuncture, chiropractic adjustments and physical therapy involving massage. It’s all a process and I’m 9 weeks in with long covid. Some days are better but still have a long way to go. Palpitations only happen maybe once a week now where it was every night a few weeks ago. I’ve learned to breathe through them and let it pass, knowing it won’t kill me.
Yes
Did anyone recover and get reinfected?
one of my colleagues has had it three times
@@astrothsknotdid they have long covid 3 times?
When I didn’t fully understand the working of the autonomic nervous system (doing meditation, breathing exercises, pacing) the vaccine put me back to square one, stuck in bed again for months. A good 2 years in, understanding the nervous system and no longer in the fear mode, I got covid again and this time round I had no set back. 😅
@@harriet4451 that’s great to hear!!
breathing and meditation!? really?
Or long covid vaccine syndrome?
She got sick in the beginning of 2020...no vaccines were available then...