What Does It Mean If My Family Has A History Of Brain Aneurysms? | BAF Webinar
HTML-код
- Опубликовано: 18 окт 2024
- If you or a loved one has a family history of intracranial aneurysms, it's important to know what this means for you and other family members. In this video, Christine Buckley, Executive Director of the Brain Aneurysm Foundation talks to Dr. Alejandro Spiotta from MUSC Health about the risks associated with familial aneurysms and what can be done to help prevent them from rupturing. Brain aneurysm survivors Diann Harrell and Debra Taylor are sisters who join the conversation with their personal experiences, journey through treatment and recovery and struggles to get other family members scanned.
Thank you for watching! Please share and subscribe for more videos about brain aneurysms, support, and ways to advocate with BAFound.
Follow the Brain Aneurysm Foundation:
•Website: bafound.org
•Facebook: / bafound
•Instagram: / bafound
•Twitter: / bafound
•LinkedIn: / the-brain-aneurysm-fou...
•Donate: bit.ly/bafound_...
#BrainAneurysm #webinar #Scan2Save
I found out 3 year's ago that I had a brain aneurysm, size 8ml in my right temple lobe. I had to have immediate surgery. I had a problem with severe headaches for years that wouldn't go away. I told many doctors about my headaches but they all said that my headaches were most likely from pinched nerve in my neck. Thanks to the good lord, I changed doctor's and the day that I told her that I had a headache all the time, she immediately sent me to have an MRI of my brain. If she hadn't taken my headaches seriously, I don't think that I would be here today. If you are having headaches all the time, take it seriously and find a doctor that will take them seriously too.
It is so important to be an advocate for your own health. So glad you took the initiative to switch doctors when you knew something was just not right. Thank you for sharing!
My 17-year old daughter had a craniotomy as she suffered an aneurysm on the left side in December of 2021. She also has two smaller ones on the right side but the doctors have opted not to treat as they are very small and therefore she is being monitored. Her fraternal twin sister has not been checked but thanks to this video, I will be having her screened. Thank you for this informative video.
So glad you watched the video and found it helpful. Your daughter should definitely get scanned.
I was adopted and had no symptoms, mildly high blood, pressure. Out of the blue one burst, rush to surgery. Careflight we to Neuro specialist in Ft worth, Endovascular Immediate coiling and stent procedure saved my life. So yeh there are 2 more aneurysms. I did have paralysis on right side. Leg and arm! Took couple weeks to recover in hospital. Two weeks in rehab facility. Now I am set for blood work. EDS, and angiogram at six months. Exceptional medical team, and will hope the other 2 haven’t grown. Watching this video makes me wonder, because I was adopted,no record of family history!!
Going through this now, I have had headaches and migraines from a young age. I had a TIA and they found a left carotid artery aneurysm. This was back in Sept of 23 I just got in for a Cerebral Angiography this past Monday and they found another on my right side. I have familiy history of aneurysms but when I was a young adult they never asked those questions or maybe I would have asked my familiy sooner. The wait game now is one waiting for them to schedule to take care of the first one... and go back for the second. I am just scared for my children to have to deal with this as they deal with headaches and migraines like me. I was 39 when they found the first one 40 the second in a matter of two months.
Thank you for your work. After a sibling had a rupture in 2016, we were not aware of the need to be screened. Another sibling had a rupture in August of this year. Thanks to scans, we have discovered 4 more siblings with aneurysms. This was incredibly informative.
Thanks for sharing!
Awesome! 4/18/24 listened
Thank you! I really appreciate it! And yes, despite the fact that mine is small and has a lower rupture rate, it is a bit scary...
I never knew I had an aneurysm till it ruptured. It was 18mm ..I was in coma right away when it ruptured. I did not have that severe headaches that people talk about when rupture happens. instead, I lost consciousness, I had coils and stent.
Whoever discovers an aneurysm, please educate yourself, monitor it and have it treated ....this is not a joke,,
I'm planning to be screened. Parent and sister. Nothing to mess around with. Better safe than sorry.
Diann how do I get in touch with the dr you saw! I am also in the Greenville area and been hard to find a good dr. I am 71 years old an have 4 aneurysms on my brain. I have no insurance except Medicare!
Diann's doctor was Dr. Alex Spiotta who was in the video as well. He is at MUSC and his email address is spiotta@musc.edu
I've had one copied 4yr ago... Small one left... Couldn't take out at the time.. Being monitored as its small.. Still wish it wasn't there... Next scan in a year
Thank you for sharing. Glad you are being monitored!
How small? May I know the size?
@@kapra5643 original one was 12mm +the remaining one about 2mm next scan Sept this year... Hopefully it never changes still wish it weren't their.. Still have migraines but they say its not that causing them☹️
I had a craniotomy. I had an AVM which had an aneurysm attached and my mother in law had a few (ruptured and one inoperable). I’m worried for my two kids- 4 and 2. How do I bring it up with their doctor and having them take me seriously. I tried once and it was dismissed.
Thank you for watching the video. Though we are not medical professionals, seeing that your children have two relatives with brain aneurysms, it makes sense that they should be scanned. Probably best to bring it up with their doctors again. The best thing you can do is be an advocate for your children.
For my wife, she had had coiling & stenting done for her aneurysm. What are the post operation symptions these patients experience ? And what are the treatments ? Thank you for your comments.
Thanks for asking. We have a great webinar that goes over some of these questions. Feel free to check it out here ruclips.net/video/cy0tCSAoqk4/видео.html
We hope this helps!
My wife had a left cranial anuerysm in Oct 2019. My 2 daugthers are about late 20s. When do you think my daughters should go have a CT scan ? and how regularly done in their later years ?
Though we are not medical professionals, we would suggest your daughters get scanned as soon as they can. The neurologist would be able to let you know how regularly they should get scanned in the future.