Why Nursing Was HARD with a Chronic Illness | Let's Talk IBD
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- Опубликовано: 11 сен 2024
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#ostomy #ibd #chronicillness
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Hey, I’ve been in a phase of watching your videos in the background of working lately and I’ve been skipping back and forth over videos through the years. I’m sure the last ~18 months must have been a lot to deal with medically, but I just want to say that there is such a noticeable difference in how healthy, vital and strong you seem now compared to years past. I know the inside doesn’t always match the outside, but I hope you are feeling that as well :). It is really something to be proud of considering how much you’ve been through.
My daughter who has very active Lyme was an O.R. nurse and then homecare nurse until she couldnt do much at all, but work a day, recover 2 days, exhaustion and illness.Maggie thank you, you're so helpful, kind, strong, wise and insightful..you get it. Encouraging others!!
I know what you mean, I'm nursing staff as well and work at a psychiatric hospital. I have epilepsy, and SLE with heart, lung and liver involvement. Thankfully, my unit leader has been amazing and so understanding. She always sends me a text to check that I'm still doing okay, but also does check-ins when other unit staff (some of whom also have chronic illness). It's really discouraging how many people don't care about their staff, and just think of them as "bodies" at their disposal. Unfortunately, it's reaching the point that I don't think I can do it much longer, I'm getting hospitalizations more frequently, and it's just getting harder on my system (thankfully, I have IT to fall back on).
I give chronically ill workers kudos, it's not easy to deal with.
I was a floor nurse for about 4 years then I transferred to pediatric intensive care and that was my calling I worked at Sacred Heart Children’s hospital in Florida for about 12 years. I am doing medical transcription from home now because my dad just turned 79 and I had to move back to my hometown to be closer to him to help make sure he had someone close I am the baby I have 1 older brother he is a very successful district manger medical sells representative for Abott Laboratories so he has to travel a lot. Love your videos!
How do you get a job as a medical transcriptionist?
Im a nurse with RA... I was an oncology nurse for years and I could no longer handle being a floor nurse. Now im a case manager for hospice patients. I love it, no direct care, but i still get to take care of ppl. I see 7 patients a day.
You’re lucky I fantasize about quitting nursing every day I am exhausted burned out but in my city there are no good nursing jobs unless you know someone...I also don’t know what to do I’m almost 40...Suffering from chronic illness and nobody cares.
As a disabled person who was and is extremely concerned about the physicality of nursing, this gave me hope!
I just recently took the teas exam and applied for nursing school. This has been my dream since I was diagnosed with ulcerative colitis at age 12. But as it is approaching I’m getting so scared of even making it through nursing school, let alone working as a nurse. So this was really helpful, thank you for talking about it.
Don’t do it you will regret it...please don’t
Thanks for making this video!! I am a RN and have spina bifida. Currently going through the (very long) process of figuring out if I need an ostomy and what kind. I’m in grad school right now going for my PhD but I did work a year in the NICU when I started in 2018. Bedside nursing with a chronic condition is soo challenging. Thanks for the reminder of everything we CAN do with our license. Your videos are super uplifting and help me have hope when I am struggling. 💕
Thank you Maggie. I’m a retired nurse and didn’t get my surgery until after I retired. I had other health issues as well. Thankfully I’m more stable now with fewer GI issues. Best of wishes for the both of you...
Hey Maggie
Stories are always good!!!
I wish to hear everything!!!
Knowing your nursing background, this channel is even better.
Nursing is a hard job (been one for 25 years) when you are healthy. My health suffered. I have congenital flat feet and eventually had my posterior tibial tendon rupture which required major foot surgery. I kinda knew my feet weren’t going to last so I started working on my masters in education. So now I am in an administrative/education position which is more conducive to my feet
I'm so looking forward to this video!🙂I've only recently found your videos, and I've been wondering how long you actually got to practice as a nurse, and in what capacity. Thanks for keeping your videos professional, yet with your personal touch added in! I would have loved to be able to learn about Crohn's in this manner back when I was diagnosed 27 years ago (via emergency surgery for a bowel perforation.) What a huge help you are to so many that are searching for info on IBD! 👍
I'd personally live to hear more about your hospital nursing career. Much blesssings from ex RN South Africa ("ex" RN cause we just don't have many options here...😢)
Did you guys not do a placement in your last year of school where you were buddied with a nurse on a unit of your choice and you followed their schedule for like 12 weeks?? It was so helpful to let us see what a full time nursing schedule is like. I’m a nurse with chronic illness and recently had to leave my job... my job of 15 yrs.... was so hard and it still doesn’t seem real.... I’m so stuck with what to do next when I am feeling better
We did something similar, but it was only 8 hours shifts we were allowed to stay (our clinical instructor had to be within the hospital for us to be allowed there). It was super helpful and the best way to learn!
I had to leave the medical field as an ODP due to my disability and deteriorating health. It was heartbreaking to leave my dream behind.
I am a nurse...have AS and fibromyalgia. For years I would work and then come home and crash. My poor kids had to do a lot themselves. Now I can only work part time and only a few types of jobs. Its not worth killing oneself for work.
This was a really helpful video. I actually recently started writing down things I need to talk to my doctor about like recently it looks like my cervix is starting to fall out of me. Before I Forget the rash I told You about a few weeks ago cleared up. I was put on antibiotics for a uti And it cleared up Also pretty dress
No ostomy but my worst working schedule was in Thailand with the Air Force - 10 hours on duty and 12 hours off - repeated for months. A normal day is of course is 24 hours but 10 + 12 = 22 which meant every day I was working different clock time and rest time. Really confused me until I got into the swing of things.
I nursed till my fibromyalgia was just too much and I worried about my memory! Think it made me a better nurse I had more empathy with patient but I agree physically it was a challenge
Central Texas here! Roads are impassable due to ice. We're currently getting snow with a forecast of up to 4-7 inches of snow by the time this one storm passes... wind chill warning issued for the first time in history, with wind chill temps dipping near -15°f. Texas has been declared to be in a state of disaster. I'll be posting pictures on my IG tomorrow of what our yard looks like.... IG @Chronic_butterfly
Central Arkansas pretty much the same, 12°f and snowing, they are predicting somewhere between 12 and 16 in. when it's all done.
Hope you guys stay safe and warm! Be careful.
I feel you, it's pretty back in this part of Kansas. 3-6 inches of snow, it's -17F outside, wind chill of -28 and have been without power for the last two hours (inside of the house is 40 degrees, thankfully we have a fueled heater as a backup, probably the only thing keeping it in the 40s in here).
Wecome to NY weather,,that's Upstate. We love our snow, but always prepared for that emergency power outage coming!
There was snow where I live too, I live in the desert so it doesn't snow very often.
I worked in a hospital as a CNA for four years on the medical floor I have spina bifida and ostomies and boy was it hard
👋 Hi Maggie!! Would like to hear the stories because it would offer hope to people that are struggling to find their way with a chronic illness with working. Have a family member that is struggling and think that they can't hold a job because of their illness and I tell them that they CAN do anything they want as long as they are upfront with their employer. Some things may need adjusting OR tweaked in the job, but as long as theirs a dialogue & communication, things will be easier. Realize in ideal workplace that would be great and their's going to be some employers not-so-understanding and moreso demanding, but I would think if their is dialogue and communication, things will be better for all. Don't want my family member to believe that because of their illness, their unable to do anything. Did you ever feel that way? Or had patients feel this way? If so, how did you build yourself up or your patients?
Hi Maggie... Where have you been? I’ve watched nearly all of your videos, perhaps I missed one of your latest ones that’s why it seems such a long time between videos. 🤔. 🐨 🦘
Maggie answer my Q FROM TODAY 2/11...thanks