This disease is heartbreaking enough when I see older people being diagnoses but this young mother, who look like she is 18 even though she is much older, just makes me want to cry. Especially seeing her with her children. You are in my prayers.
How could such a cruel disease target such a lovely young woman? I almost wish I could trade places with her. She seems so much more deserving than me.
There is no good life with this disease, you lose all abilities, dignity, you end up Almost a vegetable, only awake,stuck in your head unable to communicate, eat,laying their in diapers until you die it's terrible
What happened in the space of a year! There has to be an answer. ALL information should be pooled so that sufferers can compare notes. From vitamin/mineral supplements to oils used to botox to exercise levels (can high levels of chronic exercise damage a certain part of the brain) to whatever; everything should be noted. The answer must be in there somewhere!
I was diagnosed with ALS in February 2021 and have been searching for exactly what you are talking about. Knowledge is power but having to sift through the hundreds of videos is draining and not efficient. Since being diagnosed I have always wondered what other people are doing or taking to help them through this horrific disease. It would be nice if everyone could compare notes and put them in one centrally located place as far as what helps them versus what helps someone else. I know not everybody is the same but what works for one person might work for someone else and help them.
@@carriedomerchie5705 It must be frightening for you. It might be worth suggesting a centrally located place/channel for pooled information to ALS associations.
Life can be so cruel. I feel for this family.
So unfair it is so tragic.
This disease is heartbreaking enough when I see older people being diagnoses but this young mother, who look like she is 18 even though she is much older, just makes me want to cry. Especially seeing her with her children. You are in my prayers.
I feel so sad for this beautiful family
Im so sorry for this young mother and her family.
Such a beautiful young woman. Such a cruel disease the way it robs you of movement and breathing. I pray for her and her family
How could such a cruel disease target such a lovely young woman? I almost wish I could trade places with her. She seems so much more deserving than me.
This is absolutely awful,So young, so beautiful. My thoughts & prayers are with her & her family. I pray they find a cure for this horrific disease.
You are beautiful and you have a wonderful family!
MND is so miss understood... my mum and brother had this terrible desese . Hopefully One day they will make a break through
Thanks for your message, and thoughts go out to you and your family with your tragic loses. Fingers crossed they can find treatment or a cure for MND
God bless you and your family. I hope you live for many years to be with your bueatiful children. It really is a cruel disease x
Beautiful young lady. ❤ god love you and your family bless her. X
This evil disease stole my Mother from me. I hope one day soon a cure will be found :-(
Devastating for you and your family 😢
Heartbreaking. This is the cruelest disease.
Truly heartbreaking for this beautiful, brave family and her beautiful family xxx 🥰❤
God Bless You xoxo Thank you for sharing your story xoxo
So much love to you and your beautiful family.
Enjoy every precious minute.
Heartbreaking
Lord have mercy...
I really hope Adena is still being able to lead a good life with this awful disease.
There is no good life with this disease, you lose all abilities, dignity, you end up Almost a vegetable, only awake,stuck in your head unable to communicate, eat,laying their in diapers until you die it's terrible
Sending 🤗 and 💕 from Denver Colorado!
I will pray for you beautiful young lady...
I think it’s the first time i saw a female with MND and one so young it’s heartbreaking.❤️
God bless you and your family! 🙏
I Wish MND Didn’t Exist!
My mum had MND I feel for you all.❤️
Know your loved❤Bless you.
So sorry my love
WarmHugs
Beautiful Family
39 and im also unlucky . Als will take my future and it will take every bit of who iam
I m just 20 and it is devastating to me and wanted my mom dad a better life
Do you have als?
God bless u all
🙏🙏🙏🙏🙏🙏
Stay strong
I’ll be praying for you and a cure 🙏
Prayer
BAYILDIM
🌹🌹🌹
heartbreaking
I hope a breakthrough
Dr. Craig Oster, a 26 year survivor of ALS.
How did you get cure Mam information please
Is there any update??
Because she prob passed away and her family doesn't wanna sit here and respond to everyone
@@jayg-lg2otI don’t think she’s passed away.
@@50sRockChick3 year old video is pretty likely she did
This disease rips through your body fast most of the time
No, her name is Adena Rochelle Savva and her RUclips channel is still being updated.
🙏🙏🙏
why no update?
What happened in the space of a year! There has to be an answer. ALL information should be pooled so that sufferers can compare notes. From vitamin/mineral supplements to oils used to botox to exercise levels (can high levels of chronic exercise damage a certain part of the brain) to whatever; everything should be noted. The answer must be in there somewhere!
I was diagnosed with ALS in February 2021 and have been searching for exactly what you are talking about. Knowledge is power but having to sift through the hundreds of videos is draining and not efficient. Since being diagnosed I have always wondered what other people are doing or taking to help them through this horrific disease. It would be nice if everyone could compare notes and put them in one centrally located place as far as what helps them versus what helps someone else. I know not everybody is the same but what works for one person might work for someone else and help them.
@@carriedomerchie5705 It must be frightening for you. It might be worth suggesting a centrally located place/channel for pooled information to ALS associations.
Nope they are absolutely nowhere
It's voltage gated potassium channels glutamate and astrocytes.thats how ALS happens
😭
Yes its the wrost, xx