I am 71. I've been diagnosed with CFS, Fibromyalgia, AND MS. I believe now, that I also have some form of EDS, at the very least the Hypermobile type, from early childhood. I also now suspect Behcet's. Hearing this beautiful lady's story has me with my chin on the floor, identifying with her experiences. I also have this crazy fantasy going on in my mind while watching, of sharing this with my PC, and having her actually show interest. Oh, well.....I can dream......and pray. Thank you to you both for sharing with us!
I’m dealing with this right now. Not diagnosed, although I have repeatedly shown my doctor that I meet all of the diagnostic criteria. Cutoff of long term disability, so I have had no income since March. The insurance company thinks I should be able to work full time. Now I have to fight my employer, which involves having actual “hearings” where I will be questioned about my condition. Waiting to hear about three other potential sources of disability support, but without a diagnosis of ME (I do have a FM diagnosis), it’s possible I will be denied. My doctor keeps pushing graded exercise on me. 😢
Sometimes I think that the "sleepy" kind of ME is just a subset of people. I am completely opposite. I sleep poorly and barely 4-6 hours a day, I am always wired and have horrible adrenaline surges. Yet, I am so weak I barely walk or lift my hands. I wish I could sleep more😢
I am 71. I've been diagnosed with CFS, Fibromyalgia, AND MS. I believe now, that I also have some form of EDS, at the very least the Hypermobile type, from early childhood. I also now suspect Behcet's.
Hearing this beautiful lady's story has me with my chin on the floor, identifying with her experiences.
I also have this crazy fantasy going on in my mind while watching, of sharing this with my PC, and having her actually show interest.
Oh, well.....I can dream......and pray.
Thank you to you both for sharing with us!
So pleased it's been helpful for you!
Thanks Dan and Anneke! (And AI Dan!)
I’m dealing with this right now.
Not diagnosed, although I have repeatedly shown my doctor that I meet all of the diagnostic criteria. Cutoff of long term disability, so I have had no income since March. The insurance company thinks I should be able to work full time. Now I have to fight my employer, which involves having actual “hearings” where I will be questioned about my condition.
Waiting to hear about three other potential sources of disability support, but without a diagnosis of ME (I do have a FM diagnosis), it’s possible I will be denied. My doctor keeps pushing graded exercise on me. 😢
So sorry you're going through such a difficult time. Really hope you get the outcome you need and deserve! (Dan)
👍
Sometimes I think that the "sleepy" kind of ME is just a subset of people. I am completely opposite. I sleep poorly and barely 4-6 hours a day, I am always wired and have horrible adrenaline surges. Yet, I am so weak I barely walk or lift my hands. I wish I could sleep more😢
😔💙