I did not think my first week with a new leg would go like this!!
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- Опубликовано: 27 сен 2024
- We've just reached the end of WEEK ONE with my prosthetic leg! It has been amazing - overwhelming - exciting - painful - and everything in between.
#amputation #amputee #prostheticleg
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Fourteen years of pain and failed ankle surgeries brought me to 2018, when I made the difficult decision to become a twenty-seven-year-old below-the-knee elective amputee. This channel is to document my journey of amputation surgery, recovery, and reclaiming my life.
MY LEG:
I use the Ossur ProFlex XC Torsion foot/ankle with a direct socket with passive vaccum suction.
Why Did I Lose My Leg? • HOW I BECAME AN AMPUTE...
How I Said Goodbye To My Leg: • COME WITH ME ON A GOOD...
Seeing My Amputated Leg for the First Time: • Seeing my amputated le...
Day in the Life of an Amputee: • A Day in the Life of a...
Your partner should treat you to a day at the spa, just a day for you where people cater to you instead of examining you or cutting on you. You look happy. You hide your pain well.
The last statement sounds very threatening
@@kelvisaisawesome Your last statement sounds silly Karen
I’m sorry you’re having pain but you have come a long way in a short time and thank you for the videos sharing important moments with us.
It makes me so happy seeing how confident you look with your leg and how confident you are with your leg and yourself now. 💕💕
All of your videos have been soo helpful for me to learn about below the knee amputations and prosthetics. My boyfriend got in a motorcycle accident and got a below the knee amputation last week and it means so much that you have documented your journey for others to learn from!
You look like your feeling good about your future. I had a big smile watching this video, except for the migraine part. And maybe the Nick pillow looking at me. Physical therapy is tough, I’m sore right now from it. Looking forward to what tomorrow has for you.
You look gorgeous jo you dont need makeup to make better i hope things are going well with your new leg love you jo your awesome iam so proud of you
I just wanted to thank you for posting these videos. I was injured on Aug 4, and your videos have really helped me through all of the doctors visits, PT, and insurance chaos. Our stories are extremely different, but it is comforting to know someone else who can understand the stress that these situations cause. So Thank you.
OMG, CONGRATULATIONS! Sometimes those small outward steps are giant internal steps. We are all celebrating this victory with you.
Hey Jo, just remember you know about your body and how much in can do in one day, and it is okay to be a bit of a SloJo until you get all of your MoJo back, then you will be a GoGoJo. All in good time. You are doing great for one week. I get it that you want to just be able to do all that you once did, and with time you can!! You have so much support . . . So I am sending love and light to you as you are now walking a new path in life. Keep up the good work!! It will definitely pay off, and some days will be worse than others as you already know. Take those days and allow yourself to do as A Dillpickle just suggested - make it a spa day if you are able. Or do the thing that works best for you!! I love it that you have Brian in your life and the fur babies. Be well, and keep on getting stronger!!
Jo - I’ve been following your story for awhile now and it is so so amazing to see this smile on your face and the hope in your eyes. You’re incredible and you deserve this!!! Keep kicking ass!!!
You’re bursting with hope Jo - love it 👌🏻🥰 Having to relearn to walk and having to concentrate on every step will trigger migraines. The extra energy you now use, concentration levels, change of alignment, plus being stood tall is a shock to the system. I had to increase my water intake due to sweating more and slightly change what I eat to. I also didn’t know how to swing my arms when walking 😂 as I had been using crutches for so long. Your physiotherapist will help iron out your new walking gait which should help the migraines. Be careful changing different shoes as it will change your alignment which can cause sores and can hurt your knee (your prosthetist can add foam inserts into different shoes to help) ps you can get invisible zippers added to the inside seam of trousers/jean/leggings so you can still take your leg off 🤗🥰🤗
You're doing great on your progress! Wish videos like this were around when mine happened all the way back in 2008. These videos are going to help a lot of new amputees more than you can possibly imagine! Keep sharing the ups and downs of your journey. Post a few of these to the amputee Facebook groups because there are tons of people who could benefit from watching. Keep up the great attitude!
Ok, a bit unrelated, but I'm always so impressed when someone talks and films themselves while having a violent migraine. When I do, I just need to be in a 100% black room and not talk and not move. So yeah. I'm impressed. Congrats on your ability to "function" while in a big migraine!
This is what I needed to get through my midterms!!!! Thinking of you!!’ 😘😘😘
I am so happy for you. I don't quite understand why it matters so much to me, but it made my miserable day bearable seeing you so happy. Thank you for that.
I hope you can see how you’re changing people’s lives for the better. Your honesty in the good and the bad is giving voices to those who were unsure of what to say. Thank you for that. 🥰
You have such a positive attitude to new leg. I am totally amazed with you. I watch you everytime and it benefits me aswell. I only suffer from osteoarthritis and suffer pain daily. You have taught me that I should stop moaning about my knees. Focus on sometime I'd like to do again. I have. I took the dogs out and everytime I felt myself going downwards I had Jo on my shoulder telling me one of her stories. I would push on. So thank you for being you. Good days and bad. You give me optimism on how thinks are going to work out.
Keep going. Well done. You are absolutely amazing.
Take care and stay safe 💖💖💖
This is great Jo. I’m so glad that things really seem to be getting better, and I hope these victories keep stacking up for you.
When you mentioned how scary the outside world was when going on your first walk alone I thought of SpongeBob and the episode where he broke his butt 😂
I still really need buy one of your shirts
This is really really awesome it's amazing how far you've come since I started watching your channel
Good stuff! Definitely a learning curve but sounds like you're getting through it. What happens with your calf muscle? Is it possible to strengthen it or are the attachment points now gone? I'm sitting here trying to tense it without moving my ankle and foot. It can be done but not really. Also hoping you will do a video about how you relearn balance and overcome pronation of your right foot. Looks like you're doing great!
Great you are doing well with your prosthetic leg and you accept it Jo!
Wow I love that you’re starting to your self confidence back. You’re an amazing person. Sharing every step of your journey takes a lot of courage. You seem so much happier with sunshine. I pray your days get easier and are full of new adventures.
You are doing so well. It’s bound to take time and be a big adjustment but you’ve got this and we are here for you every step of the way x
Some times I desire to reduce visibility of a bandage I touch it up with makeup. It is not perfect but it helps me. I don't know what materials make up your foot skin but check it out, could help. The best of luck to you.
I’m so delighted that you are experiencing progress! Hold on to that feeling of hope and keep moving forward with kindness (to yourself) and patience.
Pacing is a real skill and it’s okay to get it wrong sometimes. And it’s okay to choose to push it, knowing the consequences and what it takes to deal with them. I definitely find it worth a few days of pain and fatigue to do something that brings me joy and a sense of achievement. What I have to watch is that the frustration of being stopped doesn’t spiral into depression and/or anxiety. That takes self care, acceptance, and learning to rest effectively.
Good luck!
Look into getting a daith piercing. It can help with migraines. I’ve had my daith for two years and my migraines have been significantly reduced. And I think you’re awesome!
I am just incredibly happy, and just smiling for you and your happy moments. (Sorry for migraines and trapped feelings.) 💜
The smallest things are the biggest victory's 😊 Keep up the great progress.
I understand that whole thought process of having to assembling to be able to start the day. I work full-time and tried wearing pants but I caused my stump to blister and I couldn't wear my leg for 6 weeks; so now I wear shorts all the time. I know you will find what works for you
interesting about your body relearning your balance and pressure, but it makes perfect sense!
So glad to hear things are going well, Jo, you rock!
Thank you for sharing your lows and highs. ❤️
You're so strong! I honestly think you should think of your leg as just another thing to put on in the morning, it's not assembly, you're already a whole person no matter what! We all change our clothes and put on outfits everyday for the most part, not because we have to, but because it makes life easier and more comfortable!
Sending you all my love Jo ❤️❤️❤️
This is awesome! You are getting closer to where you want to be every day. You clean up pretty good. I'm sorry about the migraine.
Chills down my spine. So awesome
Jo! How happy I was to see you in dress and going out to be professional, you deserve all of it and get out and about again, I am shedding a few tears of happiness tonight seing you return to a traditional life (i abstain from using "normal" as normal could be taken wrongly). Then onwards to migaine, the third and forth day of vacation I have had the last say thirty years have been in migraine as I was relaxing, I seriously cross my fingers that your brain and body slowly get into a relaxed state and that you might have to go through as few attacs more to be able to "wind down" to your natural self again. Cross my fingers harder than ever!
I'm glad you're doing a lot better dear I've had my prosthesis for about a year now still in a lot of pain I was outside cutting firewood today couldn't take it more than an hour had to go back in the house I live in Southern California so it ain't that cold yet I'm glad you went to a meeting with two legs deer you have a blessed day looks like you're doing a lot better
So glad that re amputation worked and you are finally back on track!
woohoo. looks like everything is coming together - slowly but surely :)
It's so nice to see you that happy!❤
I cannot imagine having to literally assemble my leg.....
Uh it's more like putting on complicated boots than assembling something. Takes time but some girls spend hours in the bathroom in the morning
Not saying it doesn't suck ass
Yeah... I’m not an amputee but getting my wheelchair out of the car is kind of like putting on shoes
You could look into Uppercervical Chiropractic. Helped my mom and grandmother with their consistant migraines
This makes me so happy!
You, and your body are learning a new normal which will take time and you can only do it a day at a time. "The rest of my life" will consist of a bunch of one day at a times. And on some days you'll look back and realize that you've come a long way, a day at a time.
I'm so awful at doing things a day at a time. It's like being told not to read something right in front of you. I can sorta squint and cross my eyes for awhile and be like "Yay, living for the moment!" And then realizing I'm living in the moment takes me out of that and I go back to analyzing the next week to a year to end of all things and the heat death of the universe 😂
Killin the game!
Now that you mention it, walking differently does add quite a few aches and pains. I seriously am sitting so much just to avoid my other knee replacement for as long as possible so the crps doesn't spread. I notice when I do have to walk further my body definitely lets me know. I'm really happy that things are progressing with you.
I am so happy to see you out and about ! Keep up the practice and keep us in the loop ! Btw , you looked beautiful In your professional outfit ! You clean up real nice !
OH JO LOOK AT YOU GO!
I get my first prosthetic leg in December, I’m excited
I’m a migraine sufferer too, and I just wanted to offer a fist bump of support 👊
Right back at you my friend! 👊🏻
4:08 That clip is funny 😂😂😂 I love how you have a name and a gender for your prosthetic leg.
OMG good stuff girl!! Well done!!
Oh hope... it’s a beautiful scary thing!!! I’m so thrilled for your first week. So sorry about the migraine...so much empathy for you there. Can you handle/ do you like massage? What about a chiropractor. I know it’s contraindicated for some neck instability/ Chiari but maybe without the neck adjustment? I can’t remember if you’ve said if it works for you. Oh man am I being that annoying person whose always trying to “fix” us? I’m sure you’ve thought of/ tried all of these things. Ignore all that. I just hate to see you suffer because I know how it feels (having similar neck issues/migraines) and I want it to be painless for you. Can anyone tell me (whose had an amputation and uses a prosthetic) if there’s a time frame for about how long it takes for it the residual limb to adjust and become less painful? I know it probably varies vastly for each person since there are so many different variables. But can anyone tell me how long it took for them maybe? Does it ever become completely painless or is there always some pain or discomfort? I can’t imagine how it must feel and I’ve always thought it seemed like it might be uncomfortable. I hope I’m not offending anyone by asking. Jo I hope you continue to have forward progress! Oh btw, I saw you use silicone ointment on your scars. Do you think it’s helping? I just had cancer removal surgery on my face which ended up leaving like a 6 inch scar going from above my lip, all th way around the side of my lip to under my bottom lip. My dermatologist (surgeon) has me using the gel religiously twice a day, especially because of my EDS that causes hypertrophic scars. I think it’s working. Anyway sorry for the book as usual. I was excited to see you smiling in your thumbnail, I’m still just hoping so so hard for you!! Much love!!!❤️❤️❤️❤️
*GOOD ON 'YA, JO!!!!*
Thank you so much!!!!
EDSer/ Fibro person who battles constant muscle spasms and tension (yes, I’m a dichotomy of too tight and too loose). If I don’t have KT tape on neck / shoulder areas, my life would be a constant headache. (To keep the skin from getting irritated, we cycle a variety of tape methods...kind of like crop rotation.)
Used to get migraines all the time. Some of it was hormonal, but a fair chunk was and is tension from muscles that are over stressed.
KT help won’t end your migraines, given the Chari (sp?). But it could help with the muscle spasm / tension aspect.
Have you ever done or been suggested traction? Because I just bought a neck hammock, and stretching out all those squished nerves and tight muscles and getting oxygen to it, feels like heaven
Uhuuuull!!! We’re happy for u Jo!
Success
Oh boy! So happy for you!❤❤❤ Glad your migrane is gone, too.
pacing will definitely be the challenge!!! one day at a time!
I love this sooooo much jo
Really happy for you!!
Before we were saying "don't give up Jo, things will turn around". Now we are just saying "slow down Jo! Your body can't keep up". Pace yourself buddy, you will be physically as strong as you were before you know it, and then some.
WALKING! Wahooo! congrats to you!
Congrats xxx so glad you got to this point now xx luv u xxxxx
My Physiatrist is key to managing my Ehlers Danlos Syndrome
Karin Ross I just started seeing an amazing osteopath as my PCP. I feel like I found the Holy Grail - she’s very knowledgeable about EDS and comorbidities, plus she likes complex patients that other docs dismiss as “attention seeking”, and playing detective to put my puzzle pieces together. I’m curious though - I don’t know anything about physiatrists. What is their focus and how do they help you?
@@carasachs4004 A Physiatrist is a Physical Medicine and Rehabilitation doctor. They look at everything from a functional perspective. When I moved cross country 5 yr ago, a spine surgeon I saw here recommended I see a Physiatrist to kind of "quarterback" my care and coordinate anything I may need. My PCP is good too. I meet w/Physiatrist 1-2x/yr to discuss head to toe EDS issues for his input and review. He'll also Rx PT anytime I think I need it. Some do pain mgmt as well, I see a separate pm doc.
Love the pillow
An idea for the stuck with one crutch situation. Stick a spare pair of crutches in the car boot just in case.
I’m so happy for you jo so so happy! Congrats on the shoehorn lol. I know you’ll face your next challenges with your head held high. Thank you for sharing this honestly, good and bad. Thinking hopeful thoughts for u
I am so happy for you! Not for the migraines, never for the migraines. But it is good to see you getting used to the leg. Yeah, there will be bad days, but you have been working towards this for so long and you deserve this a hundred times over.
Also, about the vampire foot. Hasn't that one been seeing more Sunshine in the last week? ;P
You go girl
I am so glad to see that you are up and moving again!! Side note: Have you considered getting one or both daiths pierced to help your migraines? I have one side done and its helped me tremendously!! Much Love
My vote for a Jason Alexander pillow.
You are my super hero you are so beautiful I love your Energy stay strong I love you so much and I love your video’s ❤️❤️❤️❤️❤️❤️❤️
I am proud of you 😘
Oh, Good Gawd NO on the John Travolta pillow!!!
Shall we burn it!? Lol
Okay you need to involve (in some way) the song "You Are My Sunshine" in a video. Please.
Omg I'm so so so excited to see you walking 😍😍😍😍😍 on a different note, burn that pillow 🤣🤣🤣🤣
Hahahaha I have quite a few votes for “burn it” 😆
I recently discovered your two RUclips channels and wanted to thank you for sharing your experiences. I am 5 months into recovery from damaging my left ankle - with a severe dislocation and a fractured fibula that required a plate and screws. Still no where near normal function - and most likely will always be weakened - but such is life. Also watched a couple of your Trauma Talk videos - too few people talk about depression as frankly as you do - it is still a big taboo. I have suffered episodes most of my life - going all the way back to 8 years old - and been through multiple therapy groups which most likely saved my life.
So you mentioned in the video that you had not been getting any sun this past year - you should seriously consider taking Vitamin D - as you will be deficient if you are not getting any sun. It is impossible to get enough from your diet - the body is designed to make Vitamin D3 in the skin using the energy from UV sun exposure.
Most people know Vitamin D is important for good bones but it is also vital for your immune system - everything from fighting off viruses (Colds & Flu) and bacteria (TB) to preventing cancer (breast, colon, prostate). There is a mass of info available both online and in books - all very confusing and some way over the top - so I made a website to point people in the right direction www.stargateuk.info/vitamind All the best from a fellow human.
I got a migraine saturday through too monday am that Sunday night was a real bitch and i couldnt sleep.. like you i have many things that leave me very prone to frequent and severe migraines
I have chronic migraines and chronic back pain! So stress on my body is bad
I have a Nicholas Cage shower curtain. It is art. My favorite thing is not telling people it is there and scaring them when they go to the bathroom.
Oh. My. Gawd. I need that! 😆
Jo, don't worry, your metal goes great with that dress 👌🏻
You look like you're doing better with Sunshine every day! Keep it up! 🥰
0:32 any Good Mythical Morning fans out there?
Hey Jo
I was just wondering, when you went to your business meeting wearing a dress and having both of your legs for the first time in a year, did it give you more confidence during your meeting ? I would think that it would.
You should be proud you are making such great progress keep up the good work. 👍
Louie
IL. USA 🇺🇸
I’m sure you’ve heard this before but just in case, concerning your muscle aches and migraines, I think you would benefit from a regular yoga practice. That will help you stretch those unused muscles that are now compensating and help you avoid straining them. Also it will help your core become more balanced. It should help in preventing a migraine from triggering. Sure, you will have to modify some postures but I don’t think it will be too much for you given your athletic background.
Good luck as you sort all this out.
You have a nice smile
this is so cool🥺
Lookin' good Jo!
Never underestimate the power of a nice morning walk!
Nicolas Cage is Hollywood royalty!! As is John Travolta!! Did you ever get that pillow??
Grasias
Jo, have you looked into Aimovig, Emgality, or Qudexy? Every time I see one of these adverts I think of you, because some adverts are only shown in parts of the country where Big Pharma can sell the most units. So therefore, I might see an advert that you don't. I also wanted to be sure I spelled them all right, when ypu talked about them to your physician he/she could research them correctly. Just trying to help.
@jo, you kept joking about your lack of sun (and therefore subsequent paleness) and I just wanted to Let you know your not alone. I'm from Florida (born and raised) and my friends constantly joke about how pale I am (like I am 'glowing' or 'translucent'). So at least you have the excuse of Colorado bringing you cold weather which means pants and jackets 😂.
So awesome to see you walking, but sorry about your migraines. The first one I had at age 14 I went blind for two hours...truly scary!
So do you not have to wear the socks, just the liner? And yours is a suction one right? Mine will be a pin lock
Omg, you look stunning in that dress! :o 👗👠💄
Awww thank you so much!!!!
Omg, then 2020 came. Nobody saw the sun like we used to.
Okay- this is kinda odd starting question- but as a kid- did you ever have overalls or pants that had a zipper at the knee that you could turn pants into shorts? Would modifying some of your clothes like that help for when you need to get your leg off? (So you don’t have to take everything off it’ll come off in one piece ? )
who else loves this girl?!
ps im a youtuber too!
Why would you mention you are a youtuber too?
Need subs
@@kashibk great awareness tactic!
@@TinaMarieVlogs better than your tactic atleast dont do this on her channel!
I am a total nerd so this might not be surprising. But: I think that showing off the metal makes professional Jo look even more hot :D