An inside look at Young Onset Parkinson's Disease (YOPD)
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- Опубликовано: 25 фев 2014
- A rough cut look on the positive effects of my Parkinson Disease Medication "Cocktail"
www.cno.parkinson.ca/site/c.jf...
www.michaeljfox.org/
@ultimatemp @beatparkinsons @AlexFlynn01 @teamfox
Hi Martin. I was just diagnosed yesterday with Parkinson’s it’s good to see that this disease is able to be managed with the proper medication. I’m still trying to wrap my head around all this. I’m trying to learn all I can about our disease.
Dude you're handeling it well.
Keep it up bro!!
RGL )
As a graduate student in Cognitive Science (studying the basal ganglia and PD's effects on it) I thank you for the courage to post this! We'll figure it all out soon!
I, too, am a graduate of cognitive science and I am thankful for Mr. Parker's video. I remain optimistic about ability of cog sci to continue to help improve the lives of people that have been dealt an unlucky deck of cards in life. Prayers and thoughts to Mr. Parker.
When you people gonna find the fucking effective treatment if not a cure 😠😠😡😡
GOD I hope so JJ
Don't make promises like this, you give false hope and open yourself up for lawsuits.
I am 23. I've had sleep problems for years, drops in blood pressure, extreme tremors in my right hand, have trouble opening bottles and jars, always tripping, have lost my sense of smell, have had sleep paralysis, my legs fall asleep a lot, mood swings, monotone, bad hand writing, stiff joints and dragging feet when I walk. This explains everything that is going on with me. Almost excited that this might the the answer I've been looking for for years. Thank you for this video.
How are u doing today?
sometimes that can be linked to other neurological conditons . I have all that(except sleep paralysis, though i had trouble saying a sleep for hours at a time)) and my doctor said it was just depression and stress.
thank you for your video. I am 45 and saw a nuerologist today and he believes I have Parkinson's. God bless you and thank you.
Every time I inquire about a cure I get the answer "Maybe next decade" That's not good enough. Even the extended release is not a cure. Thank you Martin for this video. I wish you well.
Honey it breaks my heart seeing you go through this. I’m 65 years old and have Rheumatoid Arthritis really bad but it’s nothing compared to what you are living with. My prayers are with you and your family. I will start making donations in hopes research will find a cure soon.
God bless you for putting up this video! Wish you all the very best in life.
As a nursing student, I really appreciate you putting up video. Book learning is so different than visual. Thank you for teaching me to be a better nurse.
Just keep looking for the silver lining :) Keep up your strength and courage!
A million thanks for making and posting this video Martin Parker. Sharing, as you , and your wife, have done, is vital to living.
Thank you for having the courage and taking the time to do this. You're helping those of us who need to understand more about YOPD. I have a loved one who was just diagnosed recently (he also happens to be a Canadian hockey fan). I hope you and your family are doing well.
What an eye-opener! Thank you for posting this video. And I wish you all the best on your way forward.
Thank you so much for posting this! I'm a student of Occupational Therapy and this is a real eye-opener. I know it probably wasn't easy for you to do this so thank you so much! You are helping a lot of people.
That took a lot of courage and feeling raw to do this! Thank you so much. I have an aunt who has this desease at 98 and has had it for years. My mother had it for years also except it went undiagnosed untill shortly before her transendance.
Now I am being watched and tested for it. I applaud you in your efforts to bring light and help for all who are effected by this. Not just the people with it but to bring understanding to the loved ones who are also effected.
Thank you for posting Martin. What a great way to take something terrible and use it to help others.
this was a brilliant, brave idea. thank you for helping me understand Parkinson's in a way I never have before and for showing everyone just how critical the research is. you look great and it seems like you have a wonderful family. cheers!
I'm praying for you, bud. And donating. Thanks for your courage, inspiration and contributions.
You are pure inspiration! - Thank you for being a light in the world.
I'm praying for you Martin my mother battled with PD for 5 years it was tough for me and even tougher for her. God bless you for sharing with us.
Michael Williams: cast out the spirit ... there is a testimony and book re hopelessness ... be set free and made whole in Jesus name 👐👐👐💖
Thank you so much for this video! We need more awareness about Parkinson's Disease. Stay strong. You are awesome, and I can tell you have a wonderful wife and little kids.
your making me cry man. I wish the best to you!
Martin, first I would like to thank you for your video. My father was diagnosed with Parkinson's disease this morning and I was immediately upset, worried, but mostly unaware of the disease's symptoms. After watching your video, I can now help my father so much better, since your video gave me a great understanding and brought awareness to my attention . Good luck and all the best to you and your family. God bless you!
you are a brave young man. My father has Parkinson's but he is 88 years old. My prayers for you and your family.
Thank you for trialling without medication and sharing your experience.
I will be sure to make a donation
Hi Martin, I just wanted to say thanks for taking the time to post this up. I am a medical student and it was enlightening and humbling to be able to get a glimpse into your life. Your strength of spirit shines through and is truly inspiring! Wishing you the best in your continued battle against Parkinson's.
Thanks for sharing Martin! I'm a medical student, and it makes it big difference to see the person beyond just the disease we're studying
it is always good to keep people with similar illnesses well informed of symptoms and medications that worked for others so we know we have more options. thank you for posting.
Thank you. Your sincerity is refreshing.
way to go brother.. live your life to the fullest.
Your raw honesty is very brave. Thank you.
Thank you for posting!
I'm glad your wife stuck with your through this. Mine dropped me after 8 years of marriage when I had my most issues. I lost everything.
you had PD so she dumped you? atleast thats what you make it look like which its hard to believe you, if she really did love and care for you she wouldnt exatcly walk out on you over it
FISHY STABS YOU That's what happened. No money=no honey. Pretty common with women these days. I see it a lot, unfortunately.
FISHY STABS YOU Yes, she worked. I paid for her university education when we first got married. And no, I'm not "hot" just average. She simply took advantage of me when I had money. Once the money stopped coming in, she left. It's actually worse than that, once the money stopped she found another guy, got pregnant by him, then told me she wanted a divorce on my birthday.
I swear, you can't make this shit up.
In sickness and in health, that sucks. Good luck though and I hope a cure is found during your lifetime !!
Pumpkin True. Sad, but true.
Thank you for sharing this. Bless you!
Thanks for sharing, I have days like that whilst on my meds! Keep strong, good luck with your fundraising xx
Good video man thanks for raising awareness
Thank you for sharing your story. Very inspiring to see your meds working so well, hopefully they find a cure.
Be strong and positive!!! U r strong and the thing that prove that is that u recorded how u deal with this💙💙staay saafeee!! Proud of u
Thanks for sharing this. I just got diagnosed today with Young Onset Parkinson's Disease. Your video gives me a lot of hope. Thanks again for sharing this.
Thank you for sharing your story. Wish you all the best
thank you for posting this. you are a very very strong person and your wife is super strong as well. thank you for this information and visuals,highly informative. thank you for your positivity. 😊
thank you for sharing this video, it has helped more than you can imagine.
thank you for posting this video. it's very informative. i wish you all the best.
Thanks for the video. You're incredibly brave and I really hope they find a cure soon. It must be incredibly frustrating living with it 24/7. You certainly can't catch a break. Glad the meds help somewhat.
God bless you sir I hope you recover from this horrible disease and your life gets easier .
I am in an occupational therapy program and am thankful for this informative video. Seeing the contrast in quality of movement and its impact on your activities of daily living helps me understand the nature of the condition better than any of my textbooks can. That was a brave move going off the meds to show us how your motor control changes. Thank you and best wishes.
I admire your strength!!! Be strong! you are doing very good!!!!
thank you for sharing this ~ im a nursing student and I learned alot by looking at this video. I was really humbled by this video.
Thankyou so much for sharing this with us...God bless you and make your life best....much love and prays
Thank you for sharing that very personal video!
future OT here. graduate august 2016. your video has and will help me help others. THANK YOU!
Bless you for going public and educating us about it.
my heart goes out to you..that has to be exhausting...thanks for sharing your experience and putting urself out there. you look like u keep urself in tip top shape considering all u go through just to get through a day. very inspirational...Jesus bless you and may he be your strength.
Never quit never surrender! Thank You for showing us what u have to go threw with Parkinson's.
Thanks for sharing -- Prayers are with you.
you're brave man
Marc Williams
@@krishnaKumar-cx7oe You are a jerk!
Thanks for making this video. I'm a med student and I was having trouble understanding how Parkinson Disease presents. I don't think I'll ever forget this and I hope that it'll help me better understand where people are coming from when I see them in the hospital.
thank you for your video & sharing your experiences to raise awareness! best wishes 💗
God bless you man. I don’t know you but I really hope you keep a positive mind. You’re a really strong dude by the looks of things. 💪🏼
You kick ass mate. Seriously, you're brilliant and your family seem lovely.
I have been dx with PD about two years, but was symptomatic for about five years. I just want to say thank you for making a great video. I know how hard it is off your meds. Like you I also suffer from Dystonia as well. Again thank you and I hope all is well.
Thank you for sharing this video. I have been effected by Parkinson's my whole life- my maternal grandfather was diagnosed with it when I was young and my father was diagnosed with early onset in 1997. My parents run the local Parkinson Support Group and I have noticed that the best way to cope with this disease is through sharing stories, experiences, and information since there is such a wide array of symptoms for this disease. Happy to see you have found a medication regime that works so well for you. Best wishes to you.
regimen*
Thank you a lot for sharing this personal experinece!
Thank you for posting my father was diagnosed and I am trying too understand it more
I appreciate that you did this and *actually* posted it. I have learned much about this illness just on RUclips alone. Alex is right though, the sleeve button is always pain and even the needed movement for putting on a shirt can be akward for anyone, actually.
Thank you for sharing this.
Good luck to you, and what a great video. Hang in there buddy, you are doing a great job of handling this.
Thank you for posting. May God help you and your family thru this. I have a client either severe case of PD. He takes meds every 3 hours in order to function. He’s unable to work. May you you have a miraculous healing bro 🌺
Just got diagnosed Dec 2018 at 38. Thank you for your courage! Helps me, feel so alone at 38. Look into restore gold and b1, I feel better today than I have in years. Only take MAO-B inhibitor. All the best!
Thank you. Despite the fact you made me tear up a little. Not because I'm feeling sorry for you rather how impressed I was with your character.
My stepmother walked away yesterday and was found 15 miles from home... She doesn't know me sometimes, my dad is too proud to ask for help, so I'm watching videos trying to understand what my wife and I can do for them. Had no idea it could hit so young.
My father was the dearest father to all of his 11 children.He taught us so much.he passed at 74. For 17 years he had Parkinson's. Parkinson's doesn't get in the way of love. If you are a loving man then those around you will always respond.so happy you gain alot
Of freedom from meds.
Thank you for sharing this which cant be easy, especially skipping the meds! It seems to also affect mood and personality? Which seemed quite flattened. Helping to try to get my brother a diagnosis. It was a relief to hear him laugh and see you feel better after the meds. You're incredibly strong
Aloha Martin, im glad that you've shared this video, i was just diagnosed with parkinson just a month ago, my whole left side got it, first from a stroke, and afterwards, a week after then parkinsons. Im lost but watching you gives me strength. But God bless you and your family. Take care mahalo from Hawai'i Ne'i, aloha🤙🤙🤙
Well I can totally relate with you mate!! Good news your meds work. Keep fighting it, you re not alone!!
Bud, I hope all is going well as can be for you. I was really moved by your video.
My husbands first symptoms were loosing his balance. I used to get so mad at him” I would say” nobody falls of the floor. I thought he was being careless he would fall a lot
And I would be so mad at him next symptom was the way he walked He would drag his feet. Your video was the first video I watched after my husband got diagnosed
thank you for sharing your story. for 2 years I've struggled with shaking, speech and it became progressively worse.
Thank u for this video really taught me not to take things for granted
Thank you for sharing! helped in understanding parkinson's
Thank you for that insight.
God Bless, Keep going!
I am 31 and was just diagnosed with pd 5 days ago, thank you for posting this
Thank you for this video. I will donate..
Appreciated this video, thanks!
Keep strong..my mom has PD for a little over 7yrs.. I pray for a cure.. Meds are very important just keep doing what u have to do..praying for u..keep ur chin up..Gods on ur corner!!
Thank you for this video. My mom just got back from the doctor and he said he's 90% sure she has early stages of parkinsons. Which i have only minor knowledge of, This video is very informative
why would anyone dislike this.?.I've nursed all sorts of dementia,Alzheimer's, Parkinson's...all so cruel.wish you well young man .some do not know these illnesses can strike any age
Thanks for making this. Very decent of you. I hope you're doing ok.
I hope you make a full recovery.
Thank you for sharing your current struggles. I'm currently in medical school and you definitely do show what early Parkinson disease look like. Mr. Lay here below has the more common Parkinson's disease that begins around 65 years of age and is much worse. Nonetheless, I thank you as this video brings the medications to life for us.
Thank you for this video. I hope you're doing fine. I had to look up a video demonstrating what Parkinson's Disease actually does to a person in order to better understand it for an assignment. I wish you and your family the best. Godspeed.
Hope you are doing well. Thanks for sharing.
Thank you for the vid. I've recently been seeing someone with PD. Sweetest man I've ever met, but I've never seen him off meds, must be hard. I love helping when he needs it though :)
Good luck to You.Got diagnosed 5 y ago at 35.trying to go through this crap like nothing happened.even all my things got f.up.all the best for You and God bless.Grets from Ireland
WOW ! great attitude thanks for sharing I too have the same issue with my left side still waiting to see a neurologist :( going on 7 months.
oh that was so painful to watch! Thank you for showing me what other people see when I am off my meds.
That sleeve button is hard for everyone lol #manproblems
LOL yeah you're not the only one I've heard that from
Martin Parker wow! I have to give to u martin it takes guts to post a vid like this on line. my name is Christ and I to been diagnose with young onset Parkinson's back in 2008 and it really isn't easy. the stiffness on your toes is called eagle claw.. better as dystonia. I know exactly wat your going through I have a son of 6 years old and wen they diagnose me I felt like my whole fuking world was taken from me ..I went through depression and extreme anger, and the only thing I can do is fight Parkinson's for me and my family. I don't know wat kind of man you u r but I can tell u this for sure your not alone. if you need any advise or answers which I know you will be curious just hit me back.
+THEBOXINGTRUTH IN ADVANCE. Does it hurt when u freeze up?
I know XD
Alex Garcia especially for him tho
Thanks for sharing. Informative and interesting. This kinda gives me more of an insight then just doctors talking about it. Best of luck and so on :) .
Martin- first, thank you for sharing your fight against Parkinson's this really helps me to understand the disease on a day to basis. I love your awesome sense of humor too! I am in the research field and I'm luckily to be part of a team studying this disease. How are you today? And can you give us another update? Take care!
Best Wishes. I have PD, and am grateful I stiil walk and talk. I want to tell you you are doing great.