I have bulbar onset ALS also. I can no longer move my tongue at all or seal my lips. The breathing exercises are difficult too because my throat spasms when I do them
Hi Kelly! Thanks for watching. My public Facebook group is under the same name name "Got bALS". When was your onset? And when did you finally get your diagnosis?
You are the sweetest ! Hugs
Thanks for sharing! Very interesting. "Sock puppet tongue" LOL
❤️❤️❤️❤️
I have bulbar onset ALS also. I can no longer move my tongue at all or seal my lips. The breathing exercises are difficult too because my throat spasms when I do them
Hi Kelly! Thanks for watching. My public Facebook group is under the same name name "Got bALS". When was your onset? And when did you finally get your diagnosis?
@@gotbals-bulbarals5528 noticed symptoms September 2015, diagnosed December 2016