She Has Dwarfism But She is Not Short.... HUH?

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I'm Joe Sooch. I have Fibrodysplasia Ossificans Progressiva(FOP) where my muscles, tendons, and ligaments turn into bone. I get flares/swelling all over my body that can last a month to 2 years and bones will form thus locking my body into place. It is extremely rare with about a thousand cases on the planet. I am basically 95% disabled and permanetely in a wheelchair.