Thank you for sharing your story. Well done, so much more helpful to hear you describe your personal symptoms than watching corporate videos. Appreciate it. Hope you are feeling better.
Thank you for sharing this… going through what my doctors think may be EGPA. Lots of allergic rhinitis I had growing and adult onset asthma… followed by frequent episodes of eosinophilic pneumonia… now dealing with sudden occurrence of neuropathy/body numbness and stiffness. It seems like EGPA presents in a lot of different ways. All the best to you, thank you again for sharing! There is not a lot that I can find online by those diagnosed with it/personal accounts and experiences.
Thank you so much. My mom has lived with this for 20+years. Her rheumatologist is using Nucala to hopefully get her off steroids. So glad you are working with one. Some states have Vasculitis centers with knowledge of EGPA. take care❤
Hi Rita Marie - I was diagnosed with EFPA in August this year. Your story is very familiar - lots of disbelief, wrong diagnosis etc. I hope you are feeling better and have found a treatment that is keeping it all under control.
My rheumatologist place me back on prednisone. I am also going to nursing school. Very hard indeed. The neuropathy in my feet and the bone pain plus extreme fatigue is the worse!
Wow, I have EGPA as well, and I know the feeling and what you are going through.. it is indeed a invisible illness.. I hope you have a treatment that will keep it onder control! :)
Hi! I’m doing a lot better now. With flare ups in I contact my rheumatologist and let them know my symptoms and then depending on the severity of it they may have me take lab work or certain tests to see what’s going on or they may just prescribe me with something to help.
Thank you for sharing your story. Well done, so much more helpful to hear you describe your personal symptoms than watching corporate videos.
Appreciate it. Hope you are feeling better.
Thanks so much!
Thank you for sharing this… going through what my doctors think may be EGPA. Lots of allergic rhinitis I had growing and adult onset asthma… followed by frequent episodes of eosinophilic pneumonia… now dealing with sudden occurrence of neuropathy/body numbness and stiffness. It seems like EGPA presents in a lot of different ways. All the best to you, thank you again for sharing! There is not a lot that I can find online by those diagnosed with it/personal accounts and experiences.
So sorry you’re going through that. EGPA is very strange and uncommon. All the best to you as well!
Thank you so much. My mom has lived with this for 20+years. Her rheumatologist is using Nucala to hopefully get her off steroids. So glad you are working with one. Some states have Vasculitis centers with knowledge of EGPA.
take care❤
I hope she can get off the steroids soon! Long term it’s hard. And thank you, you as well 🙏🏾
Hi Rita Marie - I was diagnosed with EFPA in August this year. Your story is very familiar - lots of disbelief, wrong diagnosis etc. I hope you are feeling better and have found a treatment that is keeping it all under control.
Hi Matt, wow that’s crazy that you have a similar story. Thank you for the kind words and I hope you’ve found a good long term treatment as well 🙏🏾.
That’s so crazy! I’m so sorry you went through that and I’m happy you’re feeling better now.
Thanks girl!
Hi There, I have Vasculitis as well. I am dealing with so much pain now. 😢
I hope you’re able to find the right treatment for your pain soon! 🙏🏾
My rheumatologist place me back on prednisone. I am also going to nursing school. Very hard indeed. The neuropathy in my feet and the bone pain plus extreme fatigue is the worse!
Wow, I have EGPA as well, and I know the feeling and what you are going through.. it is indeed a invisible illness.. I hope you have a treatment that will keep it onder control! :)
Thank you, and you as well!
Thank you for that. Im going through something similar and it is good to know your not alone.
Most definitely 🙏🏾
I live with this for 4 years now. I also have RA and severe neuropathy.
I am so sorry you’re going through that. 🙏🏾
Hey i just recently just got diagnosed with egpa how are you doing now ? And how do you handle flare ups?
Hi! I’m doing a lot better now. With flare ups in I contact my rheumatologist and let them know my symptoms and then depending on the severity of it they may have me take lab work or certain tests to see what’s going on or they may just prescribe me with something to help.