My 3 yr old grandson was born with hemimegalacephaly. He had to have surgery at 3 months or he would have died because his one side which was causing the seizures would have damaged the healthy side of his brain. It broke my heart when he was in his punkin seat and I would see him seize up before the surgery. His body got so tense and his eyes would roll up. He doesn't talk yet, and is able to stand up with help, but he is usually very happy. We love him a lot.
Imagine hearing doctors suggest that your precious child needs an entire half of her brain cut out. Her parents must have been terrified - and then to find it didn’t work and she’d have to back to surgery, and then again. I hope they had & have lots of support, both from those around them and professionals to deal with that. Such traumatising decisions to have to make.
Thank you for sharing your story. It is inspiring and demonstrates the highest level of selflessness for your daughter. Your bravery and faith will surely inspire hope in other parents around the world.
This talk was poignant. funny at times. emotionally raw. Jennifer delivered a strong message above unconditional love and the power of belief and having faith. You don't have to see the entire staircase or the road ahead...you just have to take the next step. No matter how dark it seems. I was sitting on the edge of my chair the whole time.
My daughter is also seziering after first left hemispherectomy.But my family denied for one more brain surgery suggested by the neurosurgeon.what should i do?
@Life with Special Child , I don't know your struggles, but I sincerely believe that G-d only gives the very best people the children that He knows will need the most love and care. How is your journey going?
My 3 yr old grandson was born with hemimegalacephaly. He had to have surgery at 3 months or he would have died because his one side which was causing the seizures would have damaged the healthy side of his brain. It broke my heart when he was in his punkin seat and I would see him seize up before the surgery. His body got so tense and his eyes would roll up. He doesn't talk yet, and is able to stand up with help, but he is usually very happy. We love him a lot.
Imagine hearing doctors suggest that your precious child needs an entire half of her brain cut out. Her parents must have been terrified - and then to find it didn’t work and she’d have to back to surgery, and then again. I hope they had & have lots of support, both from those around them and professionals to deal with that. Such traumatising decisions to have to make.
Thank you for sharing your story. It is inspiring and demonstrates the highest level of selflessness for your daughter. Your bravery and faith will surely inspire hope in other parents around the world.
Powerful testimony. Thank you for sharing your family's story.
This talk was poignant. funny at times. emotionally raw. Jennifer delivered a strong message above unconditional love and the power of belief and having faith. You don't have to see the entire staircase or the road ahead...you just have to take the next step. No matter how dark it seems. I was sitting on the edge of my chair the whole time.
Powerful, Inspiring, and Heartwarming. God bless Joscelyn, you and your family.
Best wishes.
Beautifully done!!!
Bravo!
Can you share Jennifer's blog link? I am a parent of a child with intractable epilepsy, my child just had right frontal lobectomy surgery.
if you search jocelyn's journey it comes up
My daughter is also seziering after first left hemispherectomy.But my family denied for one more brain surgery suggested by the neurosurgeon.what should i do?
Love and prayers for you!
@@happyme3376 Thank you
@Life with Special Child , I don't know your struggles, but I sincerely believe that G-d only gives the very best people the children that He knows will need the most love and care. How is your journey going?
@@happyme3376 Struggling to make her seizer free... And Definately we will win...🤞🏻
@@lifewithspecialchild3591 , 💕 💖 ❤️ 💓