#RareDisease

Rare diseases, though affecting a small percentage of the population, represent a significant public health challenge in India. The Indian Organisation for Rare Diseases (IORD) has been at the forefront of advocating for policies, raising awareness, and improving treatment access. Rare diseases not only lead to the loss of human productivity but also place a heavy financial and emotional burden on families. To combat these challenges, IORD works tirelessly to bring together policymakers, patient groups, healthcare providers, and industry stakeholders to create sustainable solutions.
IORD’s advocacy and initiatives are paving the way for better rare disease management in India, but significant hurdles remain. Addressing these challenges requires a collaborative effort between the government, healthcare providers, pharmaceutical companies, and patient groups. With sustained focus on innovation, awareness, and efficient policy implementation, the vision of accessible care for rare disease patients in India can become a reality.
Visit us: www.raredisease...
Call us: 9666438880
Email Enquiries: [e-mail] Facebook Page: IndianOrganizationForRareDiseases
RUclips: / indianorganizationforr...
/ rarediseases_in
www.linkedin.com/in/indian-organisation-for-rare-diseases/
Rare Disease Registry: bit.ly/IORD_Pa...
IORD Form for Volunteers, Docs, Counsellors: bit.ly/Form_fo...
IORD Form for RD NGOs/ Patients' Orgs: bit.ly/Form_fo...
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#rarediseaseawareness
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