Thanks for this video. It was exactly as you talked and I went for a mastectomy after a lumpectomy of a small lump of papillary carcinoma with micro invasion of less then .5 mm. Yes, no lymph nodes were removed and although adviced for a low grade tamoxifen for 5 years, I refused the therapy due to its low probability of reuccerance and remote chances of far place metastasis. I am nearly 70 and rather live the remaining life with quality of life than quantity. Thanks for giving your perspective in this video.
Very sound information in all your videos. Thank you for that. My question is: is the biology of the cancer (receptor status, HER2 status) important in determining risk of recurrence for DCIS? I am ER/PR negative. The HER2 wasn’t done so i don’t know if I have a triple negative cancer, and I’m not sure why the pathologists chose not to do it. Any light on the subject would be appreciated! So far, I had 2 breast surgeries for a 5 cm multifocal tumour and should be starting radiation in a few weeks.
I had DCIS stage 3. I had a lumpectomy 1cm. Clear margins. 19 sessions of radiation. My last session was on January 20th 2025. I have horrible burns from the radiation. My skin under my breast split open from one side across to the other side. Also split open under my armpit. Very painful. I have been doing Domeboro soaks and my doctor prescribed a burn cream. This has helped but still open under my breast. I see my doctor mid next week. I can’t wait for the burns to heal up. Thank you for all your information.
I had DCIS, 2cm tumor high grade, with lymph node removal 5/11. Had 15 sessions of radiation, no chemo. Have just completed endocrine therapy of 2 years. Continuing with letrozole for another 3 years. Will do everything possible within my control to never get back to this topic.
I had DCIS. I had a lumpectomy, removal of 2 lymph nodes, and 20 sessions of radiation. Lymph nodes were negative for cells. They did push for this and radiation. I did have micro invasion but very small lump. I think they removed about 1.8 cm. I do have BRCA2 mutation gene and a very high family of breast cancer and ovarian cancer. I do take tamoxifen. I have side affects of being fatigued and joint pain.
Thanks for the explanation. I'm 3 days post-op for a 5cm, high-grade dcis. I should have radiotherapy in a few weeks. But, as you said, we are waiting for the final pathology report for any possible invasion, even though both pre-op biopsies did not show any invasion.
I had a lumpectomy removal in November 2024 for DICS of 30mm with multifocal invasive carcinoma 8:5 & 5mm. Currently going through radiation for 16 sessions. Also had 1 lymphnode removed and will be going through hormonal treatment with the possibility of going on Zoladex and Letrozole once done with radiation.
So much coming out with this. I’m 46 and had low grade DCIS removed with lumpectomy July 2024. Had 16 rounds whole breast radiation with 4 boost doses to the incision site. On tamoxifen 5mg daily for the next 5 years. I’m hoping I can get there with the tamoxifen. Even at low dose having some weight gain and moodiness. I miss my normal body. Not the breast stuff- just pre-tamoxifen. ❤
Does the stage of DCIS matters. With necrotic pathology. My lesion was big too 7:5 but clear margins with 16 sessions of XRT Also I was extremely miserable on AI therapy to the extent that I had multi system issues involving frozen shoulder, bone spur, diastolic dysfunction, pre diabetes, memory problems, in addition to fatigue night sweats etc They stopped it for a month. My quality of life is getting better. I think I am free at last from the estrogen blockade, but feel guilty for not taking AI to decrease the recurrence rate
Dr. Griggs, do you have any insights into the differences between tamoxifen and raloxifene in terms of prevention of invasive breast cancer after DCIS is detected? When the STAR trial showed that tamoxifen and raloxifene were equally effective in preventing invasive breast cancer but raloxifene had no effect on DCIS, this was a little confusing. One researcher (can't remember name or journal) said that 1. raloxifene may only delay breast cancer development, as opposed to true prevention with tamoxifen or 2. DCIS -> invasive disease may not actually be a "continuum" at all but rather two clinical entities.
Thank you, this is very helpful. Not everyone can tolerate the many terrible side effects of Tamoxifen and the like. I've already had a double mastectomy. I am doing my own research so i can at least ask the right questions. I was given a Occotype score, I had to ASK if and what it was, I was all lined up for 25 sessions of radiation and my Dr never told me that the risks of radiation (for my specific case) outweigh the benefits of treatment.
Ihave invasive dcis and dcis.I am going through chemo right now. Then Iwill have a double mastectomy. I know they want to do radiation but I am probably not goting to. I think it only keeps the cancer from coming back by 2%, not sure. I'll cross that bridge when I get there.
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Thanks for this video. It was exactly as you talked and I went for a mastectomy after a lumpectomy of a small lump of papillary carcinoma with micro invasion of less then .5 mm. Yes, no lymph nodes were removed and although adviced for a low grade tamoxifen for 5 years, I refused the therapy due to its low probability of reuccerance and remote chances of far place metastasis. I am nearly 70 and rather live the remaining life with quality of life than quantity.
Thanks for giving your perspective in this video.
Very sound information in all your videos. Thank you for that. My question is: is the biology of the cancer (receptor status, HER2 status) important in determining risk of recurrence for DCIS? I am ER/PR negative. The HER2 wasn’t done so i don’t know if I have a triple negative cancer, and I’m not sure why the pathologists chose not to do it. Any light on the subject would be appreciated!
So far, I had 2 breast surgeries for a 5 cm multifocal tumour and should be starting radiation in a few weeks.
I had DCIS stage 3. I had a lumpectomy 1cm. Clear margins. 19 sessions of radiation. My last session was on January 20th 2025. I have horrible burns from the radiation. My skin under my breast split open from one side across to the other side. Also split open under my armpit. Very painful. I have been doing Domeboro soaks and my doctor prescribed a burn cream. This has helped but still open under my breast. I see my doctor mid next week. I can’t wait for the burns to heal up. Thank you for all your information.
I had DCIS, 2cm tumor high grade, with lymph node removal 5/11. Had 15 sessions of radiation, no chemo. Have just completed endocrine therapy of 2 years. Continuing with letrozole for another 3 years. Will do everything possible within my control to never get back to this topic.
Thank you, Dr Griggs, for promoting and supporting breast cancer (health) awareness.
Thanks ❤
I had DCIS. I had a lumpectomy, removal of 2 lymph nodes, and 20 sessions of radiation. Lymph nodes were negative for cells. They did push for this and radiation. I did have micro invasion but very small lump. I think they removed about 1.8 cm. I do have BRCA2 mutation gene and a very high family of breast cancer and ovarian cancer. I do take tamoxifen. I have side affects of being fatigued and joint pain.
Thanks for the explanation. I'm 3 days post-op for a 5cm, high-grade dcis. I should have radiotherapy in a few weeks. But, as you said, we are waiting for the final pathology report for any possible invasion, even though both pre-op biopsies did not show any invasion.
I had a lumpectomy removal in November 2024 for DICS of 30mm with multifocal invasive carcinoma 8:5 & 5mm. Currently going through radiation for 16 sessions. Also had 1 lymphnode removed and will be going through hormonal treatment with the possibility of going on Zoladex and Letrozole once done with radiation.
So much coming out with this. I’m 46 and had low grade DCIS removed with lumpectomy July 2024. Had 16 rounds whole breast radiation with 4 boost doses to the incision site. On tamoxifen 5mg daily for the next 5 years. I’m hoping I can get there with the tamoxifen. Even at low dose having some weight gain and moodiness. I miss my normal body. Not the breast stuff- just pre-tamoxifen. ❤
Does the stage of DCIS matters. With necrotic pathology. My lesion was big too 7:5 but clear margins with 16 sessions of XRT
Also I was extremely miserable on AI therapy to the extent that I had multi system issues involving frozen shoulder, bone spur, diastolic dysfunction, pre diabetes, memory problems, in addition to fatigue night sweats etc
They stopped it for a month. My quality of life is getting better. I think I am free at last from the estrogen blockade, but feel guilty for not taking AI to decrease the recurrence rate
Dr. Griggs, do you have any insights into the differences between tamoxifen and raloxifene in terms of prevention of invasive breast cancer after DCIS is detected? When the STAR trial showed that tamoxifen and raloxifene were equally effective in preventing invasive breast cancer but raloxifene had no effect on DCIS, this was a little confusing. One researcher (can't remember name or journal) said that 1. raloxifene may only delay breast cancer development, as opposed to true prevention with tamoxifen or 2. DCIS -> invasive disease may not actually be a "continuum" at all but rather two clinical entities.
Thank you, this is very helpful. Not everyone can tolerate the many terrible side effects of Tamoxifen and the like. I've already had a double mastectomy. I am doing my own research so i can at least ask the right questions. I was given a Occotype score, I had to ASK if and what it was, I was all lined up for 25 sessions of radiation and my Dr never told me that the risks of radiation (for my specific case) outweigh the benefits of treatment.
Ihave invasive dcis and dcis.I am going through chemo right now. Then Iwill have a double mastectomy. I know they want to do radiation but I am probably not goting to. I think it only keeps the cancer from coming back by 2%, not sure. I'll cross that bridge when I get there.