We are claiming 100% health over you in Jesus' name! No dementia or tumor befall you. You're a living testimony and will continue to be! Stay strong and courageous!
Yep, it's highly recommended that you just stay at home and pray about this. No need for those silly science-doctors! If Jesus wants you to die, you'll die. If he doesn't, you won't. It's as simple as that!
Hi Lucy! 👋 I’m a Communicative Disorders Assistant (1/2 and 1/2 speech-language pathology and audiology) I do speech therapy with people who have brain injuries and dementia. I would be more than happy to send you some compensatory strategies for memory issues or to give you any information that might help guide your research. You’re describing “word-finding” difficulty and there are some things you can do in the moment like 1) Describe the word i.e. (spoon) category: it’s a utensil, action: you use it to eat soup, made of: it’s metal etc. Also other compensatory strategies for memory can be put into place like “external memory aids” using calendars, whiteboards, writing things down, using voice memos at dr’s appointments etc. I’m happy to be a resource if you ever want someone to talk to!
I have Hashimoto’s and when my thyroid levels are all out of sorts my memory is the first thing to go. Finding words, forming sentences, saying it in my head but literally can’t get the sound out of my mouth. Sending you love 💕
Stress can make your brain “fall down” like you describe, too. And you have tons of it. Recent childbirth, baby with DNA issues, your own health problems, having 8 children, etc, etc. I think if you are not already doing it, you need to establish a self-care routine including a daily period of totally uninterrupted quiet for 15-20, maybe even 30 minutes. If you can’t do 30, maybe 2 15-minute sessions would work. You could have some quiet music you like- it doesn’t have to be silence. You could even have a quiet time for all the kids at once, coloring, reading, drawing, writing, etc. Get the kids to help declutter by going through “public” rooms (like living rooms and hallways) putting things in a laundry basket and then putting them away twice a day. Assign someone to unload /load the dishwasher, so when it’s time to cook, the kitchen looks more peaceful. If cleaning gets put off a bit, it’s ok, but de-cluttering will help your brain. It’s not a cure but you will cope better. Just some ideas for stress reduction.
I am sorry you are having pain. My son also has NF1. He has inoperable tumors all over. His brain, spine, pelvis, and his legs. He has been on chemo for a long time. The only treatment for him is to make him comfortable. He has memory issues, as well as autism. The tumors in his brain cause seizures, but he also has a TBI. I will show him this video, so he knows he isn't alone. Prayers for you and your journey as you find what works for you.
I was having all these problems for such a long time .. until my doctor said you have fibromyalgia.. I know I’d had never heard about this.. and she did say that its not a uncommon illnesses and having bloods it don’t show. But thank god by her examination finally she explained to me how to managed ,and relieve and help me out with and What I needed to do.everything started to more sense with all these symptoms I was having ..I just wanted to share this with you as I think it’s something you could ask you doctor about to rule it out.wishing you all good health and take care ❤️❤️❤️x
My mother in law had a series of unnoticed small strokes, they estimate she may have had up to 10 and she started losing her memory as well. She is now 3 years past this and she is doing amazing! They stated it was because her blood wasn’t pumping correctly to her brain, she wound up getting a stint in one artery around her heart and has not had any issues since. There are so many things that can cause this type of thing. Praying you find the answers you are looking for! You have quite the community cheering you on! 😉
@@LucyABE84 she struggled really bad with Bolemia on and off from the time she was a teenager to when she was 47 years old so being her body had suffered on and off from malnutrition it caused lots of other issues within her body that were unseen for many years until she started having the memory issues as well as falling down. They thought it was just anemia for a long time, but discovered the strokes after a lot of testing. Another sign of the strokes/ blood flow issues that was unnoticed was the fact her nostrils were always dry or feeling infected, doctors for years told her she had nose infections when in reality her blood vessels were not working correctly in her nostrils. So the feeling of pain was not that she needed antibiotics they kept giving her but that she needed blood flow. Crazy how she could be misdiagnosed for so long. Continuing to pray you find the right answers very quickly and there will be no waiting!
I had the same thing happen to me before I was diagnosed with hypothyroid/Hashimotos. I believe B1 is the vitamin (or nutritional yeast) helps with memory. I remember I would try to say things to my daughter like- put this in the garbage. I could picture the garbage but I couldn’t remember what it was called. It was rough when I would try to talk to patients in pediatrics, I would stumble on my words. Then it would be okay- and then another episode would come. I switched my diet to keto 3 years ago and it’s really helped.
Once they remove my thyroid I'm told I'll no longer have to worry about Hashimotos at least. Right now they've taken me off all my supplements, and its definitely so much worse than before. Hugs!
GOD BLESS YOU DEAR I will.put you in my prayers . I have the same you talked about I look at something and can't spit out the word what did the doctor call it signs of dementia ??
So they didn’t link memory issues to your thyroid? I’ve been having the same memory issues. I have not mentioned it to anyone, not even my husband because I feel stupid. I thought it was linked to my hypothyroidism because that’s when it started.
Girl, I have Hashimoto's, and my memory is so bad; I used to remember everything, and now not so much. After tons of research and listening to other people with Hashimoto's I have found that memory loss is quite common
I had a brain mri few years back because I was shaking all the time so they checked for ms and Parkinson’s and other stuff I was only like 23-24! I had mentioned I was dropped on my head as a 2 week old and again when I was around 4 and I hit my head in the railing as a toddler when my mom opened the door I was behind it she didn’t know and the wind blew it from her hands and I was sent flying and hit my head in the medal railings! And when I was a toddler I put the key in the socket and electrocuted myself and they couldn’t tell if I had any injuries from then or if I had a stroke and never knew about it causing the shaking and memory problems! I have clonus and hyperreflexia but doesn’t mean I didn’t have a brain injury and never knew this was the 90s it all happened and I have vision problems that could be from hitting my head many times! I hope it’s nothing serious for you!!
I'm not sure how it works with the cancer but the symptoms you've just described are pretty consistent with b12 and/or Iron deficiency. Have you ever had any of them checked?
Prayers and good thoughts for you on your journey! We are struggling to get my son seen by a neurologist. We had a car accident back at the end of october and he developed tics and its like pulling teeth to get in anywhere. Do you have and tips and tricks to get seen sooner rather than later?
Once I saw my surgeon things got going quickly. Couldn't have my surgery until I had clearance so once that was notated, every office miraculously had openings immediately. I am sorry you are frustrated! I was there for several months a couple months ago. No one wanted to get me in or do anything because of covid and insurance and now that covid is at a high again and insurance is still the same, like I said they had openings. Try to find a Dr who will push!
Hey Tami! As a life long patient of numerous doctors due to having a critical progressive and degenerative disease that I have had since birth, I share your frustrations when it comes to getting into new doctors! The biggest piece of advice when it comes to what you have the power to do yourself is to ask the neurologists office if they have a cancellation list. Most offices have one, and it essentially means that if someone cancels their appointment (which often happens), they consecutively call the patients on that list to see if they can fill that spot. Unfortunately there isn’t much more that you as the patient (or mother of the patient) have the power to do to get the neurologists office to get you in sooner, however, your son’s primary doctor (or other referring physician) often CAN. Your best bet is having your primary call the neurologist’s office and stress the importance of getting your son in sooner. Doctors often listen to other doctors. It’s not a guarantee, but if you can get your primary (or other doctor involved in your son’s case) to do it and be persistent about it, you have much better luck getting an earlier appointment. All that said, unfortunately some offices are just genuinely booked solid, and because new patient visits typically take longer, they can only schedule so many per week or per month. Neurologists also deal with a lot of complex and time critical cases as well, making it even harder to get an appointment or be seen as a priority, it’s just not feasible to schedule them everyday. COVID has also complicated things and made it even harder, and doctor’s offices are even more overbooked, understaffed and overwhelmed as a result. The only time I have been able to get into a new specialist quickly is either if I had the persistence of a referring physician who took the initiative to call and get me in sooner, or if I had been seen by that specialty during a recent hospital stay. I have also had success with the cancellation list on occasion. Basically, unless a condition is very evidently life or death, it’s like pulling teeth to get in on your own accord without help. I know how difficult and frustrating it can be to feel like you aren’t being taken seriously enough, but just keep trying your best! I hope that you are able to get answers soon and that whatever your son is dealing with is easily treatable. God bless! 💕🌻
Im not sure how old your son is, but I have an 11yo with a tic disorder. We have been with our neurologist for five years and even we struggle to get appointments. The best thing you can do is to get an appointment on the books, then ask to be put on the cancellation list and make sure you let them know if you can be a stat fill. At our office that means you are willing and usually able to take an appointment with as little as 1 hour notice. Not all offices have that but its good to ask. His started when he was 6, when he got lyme disease. We have been down the neurology path since then and have learned a lot about tics. The main one being that they are really common, most kids will out grow them and are very likely to start following high stress or traumatic incident. My son's tics started as eye movements and have (and will continue to) evolve into facial and limb movements. He is also now getting vocal tics. They only consider tics to be Tourette syndrome if they have the motor and verbal tics for over a year. Most kids will out grow them by age 12, unless its TS which is a different timeline. I know it can be really hard to see them suddenly shift and change. The best advice his neurologist gave us was to not bring attention to the tics, don't talk about it in front of them, if they are having a lot while talking don't acknowledge its happening unless they say something. His school, friends, family etc all know this as well. Its not been an issue at all with kids at school. I hope you get answers and an appointment soon!
Thyroid brain fog....Brain fog may occur in hypothyroidism because your brain requires sufficient levels of thyroid hormone to function correctly. ... Brain fog may involve: Difficulty concentrating. Short-term and long-term memory problems. Forgetfulness. Lack of focus. Feeling "spaced out" Confusion. Difficulty thinking clearly.
Maybe you hit your head in that spot hard enough to cause an injury but at the time it was like “oh man that hurt!” And you moved on without thought. The body is very resilient.
We are claiming 100% health over you in Jesus' name! No dementia or tumor befall you. You're a living testimony and will continue to be! Stay strong and courageous!
Amen
Yep, it's highly recommended that you just stay at home and pray about this. No need for those silly science-doctors! If Jesus wants you to die, you'll die. If he doesn't, you won't. It's as simple as that!
Yes, I agree in Jesus Mighty Name 🙏🏼✝️❤️
@@tessa3236 Amen!
Hi Lucy! 👋 I’m a Communicative Disorders Assistant (1/2 and 1/2 speech-language pathology and audiology) I do speech therapy with people who have brain injuries and dementia. I would be more than happy to send you some compensatory strategies for memory issues or to give you any information that might help guide your research. You’re describing “word-finding” difficulty and there are some things you can do in the moment like 1) Describe the word i.e. (spoon) category: it’s a utensil, action: you use it to eat soup, made of: it’s metal etc. Also other compensatory strategies for memory can be put into place like “external memory aids” using calendars, whiteboards, writing things down, using voice memos at dr’s appointments etc. I’m happy to be a resource if you ever want someone to talk to!
I have Hashimoto’s and when my thyroid levels are all out of sorts my memory is the first thing to go. Finding words, forming sentences, saying it in my head but literally can’t get the sound out of my mouth. Sending you love 💕
I have Hypothyroidism and same exact thing
I get these symptoms when I’m getting a migraine
It’s frustrating isn’t it?
Stress can make your brain “fall down” like you describe, too. And you have tons of it. Recent childbirth, baby with DNA issues, your own health problems, having 8 children, etc, etc. I think if you are not already doing it, you need to establish a self-care routine including a daily period of totally uninterrupted quiet for 15-20, maybe even 30 minutes. If you can’t do 30, maybe 2 15-minute sessions would work. You could have some quiet music you like- it doesn’t have to be silence. You could even have a quiet time for all the kids at once, coloring, reading, drawing, writing, etc.
Get the kids to help declutter by going through “public” rooms (like living rooms and hallways) putting things in a laundry basket and then putting them away twice a day. Assign someone to unload /load the dishwasher, so when it’s time to cook, the kitchen looks more peaceful. If cleaning gets put off a bit, it’s ok, but de-cluttering will help your brain. It’s not a cure but you will cope better.
Just some ideas for stress reduction.
But you are so articulate and bright and you describe a situation and remember details! I couldn’t do what you do if my life depended on it! xx
Glad your cleared for surgery and they will keep a eye on the cysts and memory issues. U do have a lot on your plate. 🤗🤗🙏🙏
Prayers for You, Lucy.xx
He's ABLE, praying sister for supernatural health!!🙏❤️
Continued prayers for you and your family!! ❤
Sending you Strength.... Prayers and Healing
Prayers..I'm only 37 and have memory issues that scare me as well. I've found that doing memory games seems to help somewhat.
I am sorry you are having pain. My son also has NF1. He has inoperable tumors all over. His brain, spine, pelvis, and his legs. He has been on chemo for a long time. The only treatment for him is to make him comfortable. He has memory issues, as well as autism. The tumors in his brain cause seizures, but he also has a TBI. I will show him this video, so he knows he isn't alone. Prayers for you and your journey as you find what works for you.
I was having all these problems for such a long time .. until my doctor said you have fibromyalgia.. I know I’d had never heard about this.. and she did say that its not a uncommon illnesses and having bloods it don’t show. But thank god by her examination finally she explained to me how to managed ,and relieve and help me out with and What I needed to do.everything started to more sense with all these symptoms I was having ..I just wanted to share this with you as I think it’s something you could ask you doctor about to rule it out.wishing you all good health and take care ❤️❤️❤️x
My mother in law had a series of unnoticed small strokes, they estimate she may have had up to 10 and she started losing her memory as well. She is now 3 years past this and she is doing amazing! They stated it was because her blood wasn’t pumping correctly to her brain, she wound up getting a stint in one artery around her heart and has not had any issues since. There are so many things that can cause this type of thing. Praying you find the answers you are looking for! You have quite the community cheering you on! 😉
I see a cardiologist tomorrow. 🤍 I’m glad she’s doing amazing 3 years later. Heart issues are so serious. I can’t imagine!
@@LucyABE84 she struggled really bad with Bolemia on and off from the time she was a teenager to when she was 47 years old so being her body had suffered on and off from malnutrition it caused lots of other issues within her body that were unseen for many years until she started having the memory issues as well as falling down. They thought it was just anemia for a long time, but discovered the strokes after a lot of testing. Another sign of the strokes/ blood flow issues that was unnoticed was the fact her nostrils were always dry or feeling infected, doctors for years told her she had nose infections when in reality her blood vessels were not working correctly in her nostrils. So the feeling of pain was not that she needed antibiotics they kept giving her but that she needed blood flow. Crazy how she could be misdiagnosed for so long. Continuing to pray you find the right answers very quickly and there will be no waiting!
I had the same thing happen to me before I was diagnosed with hypothyroid/Hashimotos. I believe B1 is the vitamin (or nutritional yeast) helps with memory. I remember I would try to say things to my daughter like- put this in the garbage. I could picture the garbage but I couldn’t remember what it was called. It was rough when I would try to talk to patients in pediatrics, I would stumble on my words. Then it would be okay- and then another episode would come. I switched my diet to keto 3 years ago and it’s really helped.
Once they remove my thyroid I'm told I'll no longer have to worry about Hashimotos at least. Right now they've taken me off all my supplements, and its definitely so much worse than before. Hugs!
Love you Lucy! You are in my thoughts
GOD BLESS YOU DEAR I will.put you in my prayers . I have the same you talked about I look at something and can't spit out the word what did the doctor call it signs of dementia ??
I will continue to keep you in my prayers Lucy. The episode with the ringing in your ear sounds like menieres disease.
So they didn’t link memory issues to your thyroid? I’ve been having the same memory issues. I have not mentioned it to anyone, not even my husband because I feel stupid. I thought it was linked to my hypothyroidism because that’s when it started.
We love you! Trust the Lord
Girl, I have Hashimoto's, and my memory is so bad; I used to remember everything, and now not so much. After tons of research and listening to other people with Hashimoto's I have found that memory loss is quite common
get well soon I love you so much
I had a brain mri few years back because I was shaking all the time so they checked for ms and Parkinson’s and other stuff I was only like 23-24! I had mentioned I was dropped on my head as a 2 week old and again when I was around 4 and I hit my head in the railing as a toddler when my mom opened the door I was behind it she didn’t know and the wind blew it from her hands and I was sent flying and hit my head in the medal railings! And when I was a toddler I put the key in the socket and electrocuted myself and they couldn’t tell if I had any injuries from then or if I had a stroke and never knew about it causing the shaking and memory problems! I have clonus and hyperreflexia but doesn’t mean I didn’t have a brain injury and never knew this was the 90s it all happened and I have vision problems that could be from hitting my head many times! I hope it’s nothing serious for you!!
My multiple sclerosis causes memory loss. I have so many times I'll be in the middle of doing something and I forget what I am doing.
I'm not sure how it works with the cancer but the symptoms you've just described are pretty consistent with b12 and/or Iron deficiency. Have you ever had any of them checked?
🤗BIG HUGS 🤗
Prayers and good thoughts for you on your journey! We are struggling to get my son seen by a neurologist. We had a car accident back at the end of october and he developed tics and its like pulling teeth to get in anywhere. Do you have and tips and tricks to get seen sooner rather than later?
Once I saw my surgeon things got going quickly. Couldn't have my surgery until I had clearance so once that was notated, every office miraculously had openings immediately. I am sorry you are frustrated! I was there for several months a couple months ago. No one wanted to get me in or do anything because of covid and insurance and now that covid is at a high again and insurance is still the same, like I said they had openings. Try to find a Dr who will push!
Hey Tami! As a life long patient of numerous doctors due to having a critical progressive and degenerative disease that I have had since birth, I share your frustrations when it comes to getting into new doctors! The biggest piece of advice when it comes to what you have the power to do yourself is to ask the neurologists office if they have a cancellation list. Most offices have one, and it essentially means that if someone cancels their appointment (which often happens), they consecutively call the patients on that list to see if they can fill that spot. Unfortunately there isn’t much more that you as the patient (or mother of the patient) have the power to do to get the neurologists office to get you in sooner, however, your son’s primary doctor (or other referring physician) often CAN. Your best bet is having your primary call the neurologist’s office and stress the importance of getting your son in sooner. Doctors often listen to other doctors. It’s not a guarantee, but if you can get your primary (or other doctor involved in your son’s case) to do it and be persistent about it, you have much better luck getting an earlier appointment. All that said, unfortunately some offices are just genuinely booked solid, and because new patient visits typically take longer, they can only schedule so many per week or per month. Neurologists also deal with a lot of complex and time critical cases as well, making it even harder to get an appointment or be seen as a priority, it’s just not feasible to schedule them everyday. COVID has also complicated things and made it even harder, and doctor’s offices are even more overbooked, understaffed and overwhelmed as a result. The only time I have been able to get into a new specialist quickly is either if I had the persistence of a referring physician who took the initiative to call and get me in sooner, or if I had been seen by that specialty during a recent hospital stay. I have also had success with the cancellation list on occasion. Basically, unless a condition is very evidently life or death, it’s like pulling teeth to get in on your own accord without help.
I know how difficult and frustrating it can be to feel like you aren’t being taken seriously enough, but just keep trying your best! I hope that you are able to get answers soon and that whatever your son is dealing with is easily treatable. God bless! 💕🌻
Im not sure how old your son is, but I have an 11yo with a tic disorder. We have been with our neurologist for five years and even we struggle to get appointments. The best thing you can do is to get an appointment on the books, then ask to be put on the cancellation list and make sure you let them know if you can be a stat fill. At our office that means you are willing and usually able to take an appointment with as little as 1 hour notice. Not all offices have that but its good to ask.
His started when he was 6, when he got lyme disease. We have been down the neurology path since then and have learned a lot about tics. The main one being that they are really common, most kids will out grow them and are very likely to start following high stress or traumatic incident. My son's tics started as eye movements and have (and will continue to) evolve into facial and limb movements. He is also now getting vocal tics. They only consider tics to be Tourette syndrome if they have the motor and verbal tics for over a year. Most kids will out grow them by age 12, unless its TS which is a different timeline. I know it can be really hard to see them suddenly shift and change. The best advice his neurologist gave us was to not bring attention to the tics, don't talk about it in front of them, if they are having a lot while talking don't acknowledge its happening unless they say something. His school, friends, family etc all know this as well. Its not been an issue at all with kids at school. I hope you get answers and an appointment soon!
Please read your bible and pray to God, you are in my prayers. God bless you!
Thyroid brain fog....Brain fog may occur in hypothyroidism because your brain requires sufficient levels of thyroid hormone to function correctly.
...
Brain fog may involve:
Difficulty concentrating.
Short-term and long-term memory problems.
Forgetfulness.
Lack of focus.
Feeling "spaced out"
Confusion.
Difficulty thinking clearly.
I’m curious to see if it will change after surgery.
The word finding problems are a side effect of my brain injury…. It’s Very frustrating
ماشاءالله عليك...اني نحبك أميرة من ليبيا
Early also I’m sorry to hear you have cancer I’m kinda new here
Has your intracranial pressure been checked?
Just subscribed 😀
Maybe you hit your head in that spot hard enough to cause an injury but at the time it was like “oh man that hurt!” And you moved on without thought. The body is very resilient.
Pon los subtítulos en español
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🙏🏿♥️
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What?
put the subtitles in spanish please
Ami apnar satya farant korta chi
I am Indian🇮🇳
My language tamil
I like your video
Waterboth birth