Elliot Langstaff - My Experience with Gamma Knife Surgery

Elliot Langstaff one of our CaverFamilies young members shares his positive experience with Gamma Knife Surgery.
As a result of his cavernoma bleeding, Elliot was left with severe stroke symptoms at a young age; he lost most of his hearing and sight, his speech was slurred and he lost most use of his arm and leg on one side.
Two years after diagnosis, Elliot and his family decided to go ahead with Gamma Knife surgery in Sheffield. Throughout this webinar he will share his experience of the procedure, and how it has led to him making a wonderful recovery allowing him to lead a much improved life.
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people - enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
For more information about Cavernoma Alliance UK, please visit cavernoma.org.uk/
This is a recording of one of our webinars given by our members, guests and medical experts throughout 2020.

[@michaelfozzard4122]

Hope you’re treatment has gone well Elliot! Thanks for your video , good luck for the future young man👍

[@michaelfozzard4122]

I had a eye melanoma treat with gamma knife at Sheffield teaching hospital.The staff there were really the best I could have asked for , I was also worried about the frame fitting and injections around my eye before the frame fitting,but have to say that out of ten I had given it in my own mind it was all more like a two.I know it’s not a nice procedure but not as bad as what I thought it was going to be So thanks to all the staff you were all very professional and caring

[@Wyn50]

Thanks for the info that fear of the frame is the worst of it. I think my Neurosurgeon is about to recommend Gamma Knife. I'm already afraid - good to know it's not that bad.

[@saracopper1867]

I had this done a week ago the frame is not that bad at all the Team at Sheffield hospital in the UK was amazing only fault a scratch when having the frame fitted

[@deeshelton7010]

My daughter just had the surgery Friday September 24, 2021 and her face is so swollen I can’t recognize her. Is this normal? We are both worried. She is 49 years old.

[@sandiriffic]

Did she take steroid given by the doctor? Is she ok now

[@michaelfozzard4122]

Hope you’re daughter has recovered bless her