Ocrevus Infusion Day (Vlog): What to Expect
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- Опубликовано: 8 мар 2024
- If your Ocrevus infusion treatment plan is anything like mine, the first dose is split into two appointments where you will receive 1/2 dosage each time. The intention is to introduce the medication to your body and see how it will react. After that, you’ll have appointments every 6 months. Questions? Leave me a comment below. :)
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I am sharing my story with the intention of helping someone that was diagnosed with MS and may want to hear a similar story or see someone that looks like them. When I was doing research, I found a lot of people that had lesions on their brain or lesions on both their brain and their spine, but not a lot of cases where only spinal lesions were indicated. MS is often referred to as the "snowflake" illness where no two cases are the same, and while I believe this is true, I know how comforting it can be to hear a story that may sound like your own.
If you're reading this, I want you to know that healing is not linear but with the right medical care, lifestyle changes and faith, anything is possible. When I was at my WORST in 2020, I didn't see myself being "me" again. I recovered then and that gives me faith that I will get through the toughest of times ahead. Not all of my journey has been scary and I've really learned a lot about myself and how my body operates, and for that I am grateful. I am living and learning everyday, with so much motivation to do all the things (in moderation) lol. I also want you to know that you are NOT ALONE! You are stronger than you realize, and you’re still fully capable of living a whole and beautiful life. I hope that you see that within me because I will be out here LIVING LIFE, and doing all the things, okay? LOL.
Warriors aren’t worriers, now go out there and create the beautiful life that you deserve. ✨🫶🏾
Tags: MS symptoms, Multiple Sclerosis symptoms, MS patient, MS diagnosis, living with MS, MS treatment, Ocrevus, Ocrevus infusion, Ocrevus infusion experiences, Ocrevus MS, Ocrevus reviews, Ocrevus infusion vlog, Ocrevus symptoms, Ocrevus infusion symptoms
I was shocked when I saw the title about you having the ocrevus infusion. For some reason, I haven’t been receiving your vlogs even though I subscribe to your channel. I had to go back to look back at your old vlogs. I live in London, UK. I was diagnosed with MS over ten years - 13/7/93. I am black from an Afro Caribbean heritage. I have lesions on my spine & a large lesion load on my brain. It hasn’t been an easy road but I remain positive and I put my trust in God 🙏🏽 I know you don’t want to focus on your MS diagnosis, but I just felt I needed to share. I tried the Ocrevus infusion on three occasions but unfortunately, it didn’t work for me. I hope & pray it works for you 🙏🏽. Having a positive mindset really does help. I’ve found that high stress levels is a big factor with my relapses. I will keep you & your family in my prayers.
Hi Myrlyn! That is so weird that my videos don’t show up in your algorithm anymore. Hopefully now that we’ve engaged in the comments, RUclips keeps doing their thing and showing my new videos to you. Have you tried clicking the bell and turning on notifications too? I appreciate you for letting me know. 🫶🏾🫶🏾 I’m so sorry to hear that you have to deal with this illness too, how are you feeling now? Do you feel comfortable sharing how Ocrevus didn’t work for you? I’ve only had one dosage so far (the two half doses, 2 weeks apart) so it’s hard to say how it’s affecting my body. It’s also hard to gauge because if I do experience any new symptoms, I wouldn’t know if it’s because of the Ocrevus or if it’s something that would have happened even if I didn’t do the infusions. There are so many unknown factors and questions about MS, it really is a mysterious illness. I’m definitely keeping you in prayer too, let’s stay in touch, okay? ❤️❤️❤️
@@JenFindsGems Good morning Jen, My name is not Myrlyn it’s Michelle. I probably wasn’t seeing your new videos as I didn’t turn my notifications on but I will do. I’m happy to share my experiences with the Ocrevus infusion. Although, I don’t want to put you off. Everyone’s body reacts differently. It was my second treatment with MS disease modifying therapy. My first being Tecfidera but I had an episode whilst I was on it. It gave me an awful lot of side effects which they attempted to counteract with other meds. After Tecdifera the MS consultant & MS nurse, encouraged me to try another MS disease modifying treatment, but my white blood levels were too low for Fingolimod. My MS specialist nurse & consultant made several attempts to get me to take it even though my blood levels remained too low. I refused as I was given conflicting information about the medication, so I didn’t trust the advice. God is good all the time🙏🏽 as I now see it has life threatening risks. It was 2020, before I agreed to try Ocrevus on the advice on my MS consultant and my 1st cousin who had recently been diagnosed with MS. She tried it but it didn’t work for her. I was hopeful and I also felt pressured by my family to take something to stop the progression of this disease. To be honest, I wasn’t entirely convinced. However, I gave into the pressure and started the treatment. To begin with everything was fine. Two weeks after having the infusions I started having Vertigo. I had never had it before. I also felt awful every morning and I struggled to get out of bed. Despite that my MS nurse encouraged me to soldier on, which I did. However, the goal post kept changing. I was told by my MS nurse that maybe by the 2nd infusion my symptoms would improve. The goal post kept changing but every time I took the infusion I would have vertigo after two weeks. It would eventually subside after a few weeks but it was one of most debilitating symptoms I’ve experienced. The infusion also set off Neuralgia which is still ongoing. I really hope & pray that you have a more positive outcome with Ocrevus. They say no two MS patient is the same. It’s a very complicated disease. I’m sorry that my message is so long. By the way it’s Mother’s Day in the UK 🇬🇧 Happy Mother’s Day to you! Like myself, you’ve been blessed with a daughter & a son but my children are grown. I’m grateful that I didn’t get this condition when my children were young as I’m a single parent. They were going into their teens. Blessings up to you & yours!
Get a homeopath.
It’s nice that you had a room to yourself, the place that I go is a open room with probably 15 sections
I wish I had a room to myself! It’s a room with about 6 chairs/recliners in it. I set my appointments for early in the morning so I’m usually one of the first people there, but even when there is another patient or two I try not to film them since I don’t have their consent. I thought that being in a room with other people would make me feel weird but it’s not as bad as I expected. I can’t imagine a room of 15 people though, do you feel comfortable and have a good distance between you and the other people?
Thanks for taking us along I’m thinking about using okervist it’s so nice to see what to expect thank you
Aww thanks for coming with me (hehe)! Lmk if you have any questions, here for you!
Please stay positive as this will release the good hormones. I know its hard but you will get through.
Your words mean everything, thank you! 💕
Hi beautiful, tell more about how you felling after the first dose ? Do u feel something better ?
Hello Love! I will be making a video about this, this week!
Please just get a homeopath.
Looking into this! Can you share more about how this works or your experience with this?
@@JenFindsGems I will be censored if I tell you more, so take that as a good sign.
Keep in mind that naturopaths and homeopaths are different. You can see a naturopathic doctor as well if you want at some point because knowledge and options, but definitely get a homeopath.