I don't remember much of my early experiences how other people reacted to my eating habits. It's interesting to hear your story. What I can say for sure is that this thought of being different and odd, that you talked about, is still with me today and it's probably mostly because of my early experiences with others and being treated differently because of Pku.
Thank you for sharing your story, I'm 27 and have PKU and have a lot of similar experiences thay you, have, it's tough having PKU and no one never really understands how hard it is.
Thank you so much for sharing this. I'm a fairly new PKU mom, so keep the good information and insights coming! One question for you: Did you have any friends with PKU? It sounds like you had a small town/school, so perhaps not in your town, but did your clinic connect you with anyone else who was going through what you were going through somehow? If not, do you think that would have helped you feel less "different"?
I’ve been off diet for a long time too, I’m 24, but I’m trying very hard to make changes. I started small with my changes since my diet hasn’t been pku friendly at all.
I have a four year old son and two year old daughter with PKU. Thank you for sharing your experiences and making these videos ❤️
I don't remember much of my early experiences how other people reacted to my eating habits. It's interesting to hear your story. What I can say for sure is that this thought of being different and odd, that you talked about, is still with me today and it's probably mostly because of my early experiences with others and being treated differently because of Pku.
Thank you for sharing your story, I'm 27 and have PKU and have a lot of similar experiences thay you, have, it's tough having PKU and no one never really understands how hard it is.
I'm just here for my brother...
Thank you so much for sharing this. I'm a fairly new PKU mom, so keep the good information and insights coming! One question for you: Did you have any friends with PKU? It sounds like you had a small town/school, so perhaps not in your town, but did your clinic connect you with anyone else who was going through what you were going through somehow? If not, do you think that would have helped you feel less "different"?
Great question! I actually think I will follow it up with a video:)
I don’t remember much of my childhood but I went off diet at 13 and I’m 18 now still struggling with getting back on diet. Any tips? I could use them
I’ve been off diet for a long time too, I’m 24, but I’m trying very hard to make changes. I started small with my changes since my diet hasn’t been pku friendly at all.
I have pku
I hace pku