Thank you Kandi and Fatum for bringing this up. My daughter was diagnosed with hydrocephalus at age 19. Her symptoms were really strange: headache, walking off balance, writing off balance etc. long story short the most scary time of our lives Dr did surgery in her head!! Took it out but could not find the nodule so he said he’d have to go back into her head and get the nodule out. OMG!! So she went through surgery once more and thank God he did get the nodule out. My daughter is 24 now doing so fine now she went on to get her nursing license and now is a nurse and has her own cleaning company. Praise God
I’ve had Hydrocephalus since birth I’m 34. My last VP shunt surgery was 2012 and I’m so blessed to have not had one since then. I also have strabismus (lazy eye) in my right eye which came with my Hydrocephalus. I give myself grace and stay as healthy as possible and educated on my condition because it can be challenging at any time. Thank you Kandi for this💙
Awesome show! My son has had over 24 surgeries due to hydrocephalus and revisits. I have a lot of experience with this issue and was a strong advocate for my son’s healthcare.
Thank you so very much!!! My brother has the same since his 3rd stroke and it's been in for 10years no complications and he is almost 60!!! God is Great!!!
I took my daughter for a 6 month checkup and after measuring her head, the doctor informed me that it was larger than normal for her age. We were sent to LeBohneur Children’s Hospital for a CT scan and they discovered fluid on her brain and thought that she had hydrocephalus. She was admitted into the hospital and for a few weeks they ran more test, while draining fluid daily. They went in to drain fluid for a few weeks, discovered that the fluid was old, probably from something that happened during delivery, but decided that they still needed to insert a VP shunt, which would allow the fluid to drain. It was a very tough experience, but I’m glad that they found the problem and were able to correct it.
I'm so glad this is being talked about. My son was diagnosed with hydrancephaly, which is a more severe form of hydrocephalus. With hydrancephaly, part of the brain doesn't develop. They think this is caused by a stroke in utero and can be hereditary. My son was a fighter, he did a lot of things doctors said he would never do but still had a lot of challenges. He was never able to sit up on his own , walk or talk but he had the biggest, brightest smile in the world and brought me a lot of joy. My son passed away in 2006 at the age of ten. There is still so much we don't know about the brain. Hopefully, more research and medical advancements will yield more treatment options and awareness.
I have that thank god my mother caught mine in time thank you Kandi for sharing I really appreciate this story I have the surgery twice at 2 and again at 13 for revision
Praise God i am a 2x brain surgery survivor due to Hydrocephalus 🙏🏼God sent my angels by way of my excellent brain surgeons at Age 19 & 28... I am so happy to see someone finally SPEAK ON IT❤ they removed cyst praising God it was benign😢thank you Fatum and Kandi!!!! I speak on it on my podcast #CreativeCollectionNyc because i developed epilepsy from my second brain surgery and life hasnt been the same. Although i am greatFULLL, so many just cannot understand the pain we can be in on daily basis and survival is a process... please keep us in prayer and continue to share about this rare condition👑
Thank you so much for doing this and for sharing this platform for hydrocephalus which is not made aware of too often. I was diagnosed with this last year at the age of 46. It has been a life changing process for me. I would love to tell my story on your platform.
I was gonna say, I coach gymnastics, and Ive had a lot of students with physical setbacks who end up gaining sooo much more strength and confidence than they began with. It's really fulfilling to witness and be a part of. Congrats to Nadia, Fatum and the family.
This is amazing! Sooo many ppl and families deal w things that make them feel isolated on a daily basis, simply because of the lack of awareness and exposure. Thankfully that other mom had Fatum. People knowing they aren't the only ones is so important. I had never heard of this, but my now deceased uncle whod be like 80 by now, used to talk about a childhood friend of his who had 'water on the brain'. That's the language they had for it at their time. Advances in medicine is an amazing thing.
Thanks for this discussion. I have hydrocephalus due to having been born with spina bifida. Thankfully I never needed a shunt and have rarely any issue pertaining to this condition.
Thank you for this because a lot of people don't know about this condition. I was diagnosed at 40 with adult hydrocephalus and had brain surgery the following year. #hydrocephalusawareness
Well take us to school then!!! I see a whole Dr/Educator of some form in this young lady! God is sooooo guuuud y'all! Thanks ladies for the great info.
This was sooooooo good and not much keeps my attention. So I'm very proud of you for even wanting something like this On your channel. I'm proud of the lady and her daughter for being brave enough to talk about it. This was so good.
I was the legal guardian for my nephew from the age of 2 years old. His father was raising him alone and passed away. My nephew was diagnosed with Chiari 1 Malformation and can have complications of hydrocephalus, syringomyelia, and tethered cord syndrome. He had surgery on his skull to relieve the Chiari so that his brain sits properly in the skull, he had shunts to help with draining the syringomyelia from his spine and hydrocephalus from his brain, and he his spinal cord was surgically detached so that it can float freely in the spine as it should. The fluid is in the brain and spinal canal to protect and nourish the brain and spinal cord. He is now 21 years old and so far still doing well. My son’s condition is different but somewhat the same. His health is followed closely by his neuro surgeon. I pray for his health every day. Thanks for bringing this topic to the forefront.
People don’t really know about hydrocephalus and even while pregnant sometimes we don’t recognize it. if your baby and end up having health issues, they may not check them for hydrocephalus so definitely bring that up. Thank you so much for sharing this story and information.
My niece was born with this condition and she as well is a perfectly fine teen she had her challenges as my brother and her mom had to navigate and learn the condition I believe she underwent one surgery to replace the stint when she grew up as well but she's just fine Blessing to everyone
i too was born with this thank god my parents caught it at an early age i was diagnosed with this when i was an infant & when i tell you growing up with it is not easy the many surgeries the many headaches & sickness you also have trouble remembering things at times i get mad at myself for having trouble forgetting but in all honesty i can not help it
You are right 😅 I should have, my bad. I couldn’t help my protective instincts 😅. Will try to let her speak next time. Thank you for your honest feedback ❤
So amazing that she came to America not knowing English.. icldnt imagine moving to a Spanish speaking country not knowing Spanish.. And itook a Spanish class 2x in high school and 2x in college.. Hell, ithink itook it once or twice in middle school too.. Lmaooo to hell with it! 🤷🏾♀️😂
Kandi, this interview on Fatum & Nadia really opened my eyes on this topic being discussed. I’m always interested on what’s important about anyone’s conditions going on. This made me more opened to spreading the word on what can happen to anybody in their family dynamics. Please, keep putting out this incredible subject matters for “Speak On it”; which has inspired me to be a better interviewer!! ❤🫶🏽🙌🏾🥂💐🌹👊🏾👍🏾
Thank you Kandi and Fatum for bringing this up. My daughter was diagnosed with hydrocephalus at age 19. Her symptoms were really strange: headache, walking off balance, writing off balance etc. long story short the most scary time of our lives Dr did surgery in her head!! Took it out but could not find the nodule so he said he’d have to go back into her head and get the nodule out. OMG!! So she went through surgery once more and thank God he did get the nodule out. My daughter is 24 now doing so fine now she went on to get her nursing license and now is a nurse and has her own cleaning company. Praise God
🙌🏽🙌🏽🙌🏽
@@pamford3882 so sorry to hear. I am glad she is doing well and accomplished so much. Thank you for sharing ❤️
My granddaughter passed away from ancephalus where she just had fluid and no brain...but thank you for the awareness.
@@rhondacoleman7686oh no, I am so sorry to hear that.
Thank you Kandiband Fatum. I learnt so much, I had no idea about this condition. Fatum daughter is so sweet I wish her all the best
I’ve had Hydrocephalus since birth I’m 34. My last VP shunt surgery was 2012 and I’m so blessed to have not had one since then. I also have strabismus (lazy eye) in my right eye which came with my Hydrocephalus. I give myself grace and stay as healthy as possible and educated on my condition because it can be challenging at any time. Thank you Kandi for this💙
I just love Speak On It. Always delivering real and heartfelt conversations and I just love this show.
This was truly informative. Thanks Kandi and Fatum for this info. Blessings to all of you. ❤
I literally JUST found out what this was a few days ago. Thxs for enlightening us! 💯🙏🏽
Awesome show! My son has had over 24 surgeries due to hydrocephalus and revisits. I have a lot of experience with this issue and was a strong advocate for my son’s healthcare.
Hey Kandi! My favorite RHOA queen gone miss you on the new season! Finally been waiting on this new speak on it! I love you family! 👩🏾🍫🥰❤️🌹
My son has Hydrocephalus. Was diagnosed and had brain surgery at 4 months old. He's 16yrs.old now. Thank you for this video! Just amazing!!
Thank you so very much!!! My brother has the same since his 3rd stroke and it's been in for 10years no complications and he is almost 60!!! God is Great!!!
Fatum and Nadia, thank you for bringing awareness
Kandi! I love these interviews so much. These are becoming my comfort shows
Great Interview Miss Kandi Yam's ❤😊
Thank you Kandi for giving Fatume and her daughter the platform to share their story. This was a great sit down ❤❤
❤
I took my daughter for a 6 month checkup and after measuring her head, the doctor informed me that it was larger than normal for her age. We were sent to LeBohneur Children’s Hospital for a CT scan and they discovered fluid on her brain and thought that she had hydrocephalus. She was admitted into the hospital and for a few weeks they ran more test, while draining fluid daily. They went in to drain fluid for a few weeks, discovered that the fluid was old, probably from something that happened during delivery, but decided that they still needed to insert a VP shunt, which would allow the fluid to drain. It was a very tough experience, but I’m glad that they found the problem and were able to correct it.
Great informative interview 🥰
Thank you guest for informing the public!! 🙏🏾
I'm so glad this is being talked about. My son was diagnosed with hydrancephaly, which is a more severe form of hydrocephalus. With hydrancephaly, part of the brain doesn't develop. They think this is caused by a stroke in utero and can be hereditary. My son was a fighter, he did a lot of things doctors said he would never do but still had a lot of challenges. He was never able to sit up on his own , walk or talk but he had the biggest, brightest smile in the world and brought me a lot of joy. My son passed away in 2006 at the age of ten. There is still so much we don't know about the brain. Hopefully, more research and medical advancements will yield more treatment options and awareness.
I have that thank god my mother caught mine in time thank you Kandi for sharing I really appreciate this story I have the surgery twice at 2 and again at 13 for revision
I’m 38 now
I’m so happy to hear that you are doing well. 2 revisions in 38 years is such a blessing. Hope that you don’t experience another one ❤
@@Fatumhalford thank you me too fingers crossed
@@latiek2018 all praises be to Allah. the ENEMY didn't have his way with your life.💙
My little cousin has this condition. He is almost 30
This is such an amazing and informative interview. Thanks for sharing Kandi.
Glad you enjoyed it!
Praise God i am a 2x brain surgery survivor due to Hydrocephalus 🙏🏼God sent my angels by way of my excellent brain surgeons at Age 19 & 28... I am so happy to see someone finally SPEAK ON IT❤ they removed cyst praising God it was benign😢thank you Fatum and Kandi!!!! I speak on it on my podcast #CreativeCollectionNyc because i developed epilepsy from my second brain surgery and life hasnt been the same. Although i am greatFULLL, so many just cannot understand the pain we can be in on daily basis and survival is a process... please keep us in prayer and continue to share about this rare condition👑
Amen 🙏🏾 Amen 🙏🏾 Amen 🙏🏾
Thank you so much for doing this and for sharing this platform for hydrocephalus which is not made aware of too often. I was diagnosed with this last year at the age of 46. It has been a life changing process for me. I would love to tell my story on your platform.
Thank you to your guests for educating us and please continue to use your platform for topics similar to this one. Siyabonga🙏
Loveddd this interview!! Kandi we need more ❤
Kandi is a great interviewer
Yeah Kandi is deffintly on it.
Great interview with Fatum & Nadia. ❤❤
Thank you ❤
I was gonna say, I coach gymnastics, and Ive had a lot of students with physical setbacks who end up gaining sooo much more strength and confidence than they began with. It's really fulfilling to witness and be a part of. Congrats to Nadia, Fatum and the family.
Nadia…What a BLESSING! 🙏🏽 She is PERFECT Fatum. Beautiful young lady. Thx u Kandi for bringing awareness! ❤️💯
Thank you ❤
Thanks for this interview for awareness with this. Thanks Ms. Fatum for using the Milestones to compare your growth of the child.
That was know body but God he’s a healer and a miracle worker 🙌
Amen 🙏🏾 Amen 🙏🏾 Amen 🙏🏾
This is amazing! Sooo many ppl and families deal w things that make them feel isolated on a daily basis, simply because of the lack of awareness and exposure. Thankfully that other mom had Fatum. People knowing they aren't the only ones is so important.
I had never heard of this, but my now deceased uncle whod be like 80 by now, used to talk about a childhood friend of his who had 'water on the brain'. That's the language they had for it at their time. Advances in medicine is an amazing thing.
Thanks for this discussion. I have hydrocephalus due to having been born with spina bifida. Thankfully I never needed a shunt and have rarely any issue pertaining to this condition.
Thank you for this because a lot of people don't know about this condition. I was diagnosed at 40 with adult hydrocephalus and had brain surgery the following year. #hydrocephalusawareness
My continued prayers are for Nadia, may God cover her throughout the year and her journey of Life. 🙌🏽🙌🏽🙌🏽
Amen 🙏🏾 Amen 🙏🏾 Amen 🙏🏾
Fatum is aging backwards! Slay 💫
I love this episode… my daughter has hydrocephalus and shes now 12 ❤❤❤
Well take us to school then!!! I see a whole Dr/Educator of some form in this young lady! God is sooooo guuuud y'all! Thanks ladies for the great info.
❤
Thank you for sharing was also very educational
Alhamdulillah 🤲🏽
Wow, you learn something new everyday.
Very informative
Fatum is very relatable ❤ Great interview!
❤
@@Fatumhalford ❤️❤️❤️
Thank you for sharing this information ❤❤❤❤❤
Glad it was helpful!
This was sooooooo good and not much keeps my attention. So I'm very proud of you for even wanting something like this On your channel. I'm proud of the lady and her daughter for being brave enough to talk about it. This was so good.
Enjoyed this show and the information that was given. Thanks, Fatum, Nadia and Kandi!
Thank you 🙏
My daughter has it at birth and she 34 now. Praise God
Amen 🙏🏾 Amen 🙏🏾 Amen 🙏🏾
We all have angels
Thank you for this episode because my daughter is now pregnant and I will be talking to her about this.
I was the legal guardian for my nephew from the age of 2 years old. His father was raising him alone and passed away. My nephew was diagnosed with Chiari 1 Malformation and can have complications of hydrocephalus, syringomyelia, and tethered cord syndrome. He had surgery on his skull to relieve the Chiari so that his brain sits properly in the skull, he had shunts to help with draining the syringomyelia from his spine and hydrocephalus from his brain, and he his spinal cord was surgically detached so that it can float freely in the spine as it should. The fluid is in the brain and spinal canal to protect and nourish the brain and spinal cord. He is now 21 years old and so far still doing well. My son’s condition is different but somewhat the same. His health is followed closely by his neuro surgeon. I pray for his health every day. Thanks for bringing this topic to the forefront.
Looks like her mom ❤❤
She’s beautiful 😊
I’m miss seeing Kandi on my screen. She’s a really good interviewer and I’ve missed ‘Speak On It’ and this was a great interview with Fatum.
Thanks for the information about this condition. I knew nothing about it. It was a learning for me
People don’t really know about hydrocephalus and even while pregnant sometimes we don’t recognize it. if your baby and end up having health issues, they may not check them for hydrocephalus so definitely bring that up. Thank you so much for sharing this story and information.
💜❤thank you for the information. Bless🙏🏾
Hello there, Kandi! Great to notice for sure thing for lovely ladies like you. ❤️💖🩷
Nadia you're Beautiful
Thanks for educating about this condition
My niece was born with this condition and she as well is a perfectly fine teen she had her challenges as my brother and her mom had to navigate and learn the condition I believe she underwent one surgery to replace the stint when she grew up as well but she's just fine
Blessing to everyone
My first child is a hydrocephalus and she had a revision at 9 and then again @34 yr old
i too was born with this thank god my parents caught it at an early age i was diagnosed with this when i was an infant & when i tell you growing up with it is not easy the many surgeries the many headaches & sickness you also have trouble remembering things at times i get mad at myself for having trouble forgetting but in all honesty i can not help it
Would like to hear Daughter describe her walk of life... Mom let her talk ❤...I Love Your Protective Parenting, Strong Women Raise Stronger Women..
You are right 😅 I should have, my bad. I couldn’t help my protective instincts 😅. Will try to let her speak next time. Thank you for your honest feedback ❤
I wish Fatum stayed longer she looks so healthy and happy now 😍
When Kandi be "mmhmm, mmhmm"..
She be all into the interview. 😅
So amazing that she came to America not knowing English..
icldnt imagine moving to a Spanish speaking country not knowing Spanish..
And itook a Spanish class 2x in high school and 2x in college..
Hell, ithink itook it once or twice in middle school too.. Lmaooo
to hell with it! 🤷🏾♀️😂
Mu Uncle Lawrence (RIP)..They didnt think he would live past 1 yr and actually lived a long time.
I’m in L.A & my daughter was born prematurely with hydrocephalus & has a vp shunt. She’s 14 now
My fellow Taureen Kandi can do no wrong, I don't care, I don't care, I don't care.....I SAID WHAT I SAID!!!!!
Really,, OMG OMG,, 🫡🫡🫡🍑🍑🍑🫵🏿🫵🏿🫵🏿🫵🏿🧏🏿♂️, Girl, this can not be you, deja vu.
Love the pants
PEACE AND PEACE WITH BLESSINGS TO YOU AND YOUR FAMILY #NOT A DAY WITHOUT JESUS 🙏
Amen 🙏🏾 Amen 🙏🏾 Amen 🙏🏾
she is fine she looks normal she is lucky.
Does she know who she’s named after and why?
Who are they🤔
Like where you been at lol?
I understand while she was pregnant
Want the world 🌎 to know I care
I myself had a gestational pregnancy.......
🌚 Love the facelift, Botox ,& fillers,Fatum. You look great,Darling. 👍🏾 😉 🌚
Thank you! I never did a facelift before but plan on getting one soon 🤪
I understand
hi
I care
It’s not god it’s just nature
My son is the opposite he has microcephalus
Wow - never heard of microcephalus. I will read up on it. Hope your son is doing well 🙏
She’s so Annoying, Fatum is just one of those lost Somali freshy woman who came to western world and got lost!
Kandi, this interview on Fatum & Nadia really opened my eyes on this topic being discussed. I’m always interested on what’s important about anyone’s conditions going on. This made me more opened to spreading the word on what can happen to anybody in their family dynamics. Please, keep putting out this incredible subject matters for “Speak On it”; which has inspired me to be a better interviewer!! ❤🫶🏽🙌🏾🥂💐🌹👊🏾👍🏾
KANDI 🧏🏿♂️🧏🏿♂️🧏🏿♂️🫵🏿🫵🏿🫵🏿🌹🌹🥲
I know yo Guess Host, if I am not mistaken 🤔
Hi