Nancy Frates: Why my family started the ALS Ice Bucket Challenge. The rest is history
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- Опубликовано: 18 ноя 2014
- When 27-year-old Pete Frates injured his wrist in a baseball game, he got an unexpected diagnosis: it wasn’t a broken bone, it was ALS. Better known as Lou Gehrig’s disease, ALS causes paralysis and death-there is no cure. And still, Pete saw an opportunity to drive awareness about the disease. In a brave talk, his mom Nancy Frates tells the story of how the family developed the ALS Ice Bucket Challenge and took great pleasure in seeing everyone from Justin Timberlake to Bill Gates take part. If you accepted the challenge, please take the next step: share this talk as you did your challenge video.
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I've come to realise charity isn't about solving the world's problems.
Its about people applauding each other and feeling good about themselves.
well said
Exactly. The only people who don't recognise this are the narcissists who thought they could get away with it (and even they recognise it, but pride stops them from saying so)
what an amazing lady.. love her passion in delivering a very emotional speech..!
Wow! I am embarrassed to read so many idiotic comments full of negativity and hate. Moving on.......Thank you, Nancy Frates, for sharing this video!!! I loved it! I flew home from California to Texas for Labor Day weekend and knew my family was planning to get together for the holiday. So, I posed the challenge, and despite some of the "scaredy-cats," ten of us were bathed in ice that day. I was so proud to see my family members be part of something important and meaningful, and I was honored to be able to participate as well. Again, thank you for your presentation! I learned from it and found it touching.
RIP Pete Frates. 34 -
December 9, 2019
ice bucket challenge
Lou Gehrig ALS
I found this video very inspirational! Thank you Nancy Frates.
after wiping the tears from my eyes I noticed that this is in Faneuil Hall
i love this, it's informative for me and inspirational. I'm writing a one-act play about a person diagnosed with ALS and her mother's experience with losing her child
Surprisingly, this video has so few view counts that almost any one of the ice busker challenge videos would have more than that. A family's heartbreaking story starts the famous trend and this tough mother's speech is really inspiring. Best wishes to all ALS patients and hope there will be cures invented in the future.
wow beautiful speech. Very inspiring.
Wow!!! What a family. I so admire her and her family. What a Mother Bear.!!!
amazing lady who made a difference
this is...it's amazing dude
The Chancelor of Germany is 'Angela Merkel', not Andrea. We thank you for not being ignorant about the actual names of people who are using for name-dropping.
Mother is always the world's number one woman in our heart.
My only regret is, yes, I took it...but too late. As by last August and after a couple years of initial opposition to it, the campaign was LONG out of its heyday. Also, I feel I sent in too little money and the people I nominated either didn't want to or were unable to accept it.
This a very nice story with lots of personal background but sometimes it felt like my ears were in a maze.
14:30 Zooooooooooooom
I hate to be trivial but when people applaud themselves / applaud with everyone else when they're applauding the person on stage, arrrgghh so annoying. Not even if they're doing it arrogantly/narcissistically it still annoys me. Anyone else agree?
No, the person on stage applauds themselves
yes.
yep, totally agree.
interesting~
Might have been a good idea to tell those lucky people not from the US what ALS is.
I'm just wondering... how much of that 100+ million will actual go to good use. How much will get lost in organization overhead, personal expenses and what not. Don't get me wrong, I think that it is great that there will be a surge in the effort to understand ALS better, but as with most (hyped) charities and 'good causes', I just keep my fingers crossed and hope that we're not going to learn that millions turn up either missing or misused. Because as with any place where there is a large amount of money, vultures are never far away. Charities and 'good causes' are by no means an exception.
Bingo. This is what happened.
One thing i cant help but wonder is what kind of pay the family drew from their philanthropic work.
Everyone knows that there are various ways that people involved in charities get paid generously to "spread awareness".
The other thing that is interesting is that it seems a majority of the money winds up in the hands of the private sector. Who does the research? The private sector and the universities which are for profit. So the money winds up being part of the companies equity. Money coming in from the public means they can spend less of their own profits on research.
Wait a sec.
Did I just see the female Steve Jobs of ALS Ice Bucket Challenge?
Impressed.
#AlsIceBucketChallenge
Don't know what is with all the hate for the ALS challenge. Yes some took it too far and had to make stupid spectacles of themselves but it is a disease that could use some more publicity. Cancer is never in danger of losing money, but ALS is seldom thought of. If this brings at least a small percentage of help, then it is worth it. Those stating it was a waste of water, look at it like this, the amount wasted is no different than the water you waste every day waiting for the shower to warm up, and if done outside, water for plants, when was that a bad thing.
That's not why. More like the obnoxiousness of it is why smart people hate it. Also the fact that it killed one person and paralyzed another. Believe it or not, there are better ways to help your fellow human than to create some stupid, media-driven fad. Start with someone on your street.
Michael Lawrence
But without this would we even be talking about ALS in the frame of the average person? I think not. It is disturbing that two people were tragically hurt but it is not as bad as people are making it out to be. The best way to gain momentum is to reach the average person is through the media. You aren't going to get the attention needed with small moments, you have to make it big.
who is als , and what did he do now ?
Taiya001 So talk about ALS somewhere else. There's a lot of needy causes out there, a lot of problems afflicting mankind. They obviously can't all get their own unique internet fad or they would all cancel each other out for our attention.
Michael Lawrence
Not quite, each person can choose which one to pay attention to. As far as I am concerned I think each big problem needs a big response. The average person wont find out about it without having some precursor to go research some more. The attention span of people is shrinking so we need these kinds of "fads" to gain attention,
They started it to make money and donate very very little.
This will become the most disliked Ted talk.
Too bad it isn't, but nice try.
And I still don't know what ALS is. This entire campaign was done the same way: Raise awareness about ALS! ..and then they poured ice buckets over their heads. Most people just did it because they have this herd instinct to just do whatever others are doing mixed with desire for attention and boredom. Nobody actually spread awareness about ALS. It was just a campaign that ran out of control. Even more ironic was that you were suppose to donate money OR pour ice water over you head, but dummies totally missed the point. I only saw one guy who donated first and then took the bucket regardless. Some of the idiots out there even failed at the ice bucket challenge and managed to hurt them selves. Raising money - yes, going viral - yes, raising awareness - no. People will forget about it as soon as it goes out of fad.
what? what??? 125 mio dollars with probably 100 million people doing that challenge?!
The challenge was put an ice bucket over your head OR donate.
KerbalEssences You were still supposed to donate (a less amount) if you accepted the challenge.
Zane Anderson Right, I forgot about that one :-)
Thank you for wasting millions of liters of clean drinking water, while half of the population are dying because of a lack of said drinking water.
Haha 14:26
125 million dollars damn that's a lot of shekels
Dude
Total waste of water! It was disgusting to watch that fad. .
Imagine all that rain thrown away every day ... all wasted and gone for ever. It disapears in the outer space.
How was it a waste of water?
How is it wasted water? All wasted water gets recycled in one way or another. If you want to talk about wasted water theres a million other things that waste a bazillion percent more water then this did. And mind you what wasted water there was with this at least made money.
Also what about rain? Do you hate rain for wasting alot of water? What about those who take long showers? Or most of us 1st world people that waste water by flushing it or washing our dishes or even clothes? Sounds silly maybe but fact is this is not a big deal.
QUIT WASTING WATER!
It must have been embarrassing when she realized that she got Angela Merkels name wrong. But I guess that might help to raise awareness and money for ALS in Germany even more :P
Angela Merkel didn't even do the Ice Bucket Challenge.
Mariciella I know. That's kind of why it's so funny and that was the joke I implied about it now possibly having a larger impact in Germany. Unfortunately Frates didn't know her facts and the person or source that told her that Merkel did the challenge failed to inform Frates properly of Merkels given name, which Frates sadly doesn't seem to know herself, or the fact that she didn't even do it at all.
Ah, sorry. I thought, it was all about the wrong name.
Well... we'll see. Unfortunately, there is only a limited budget so it is technically impossible to run a maximum of research for all possible diseases :/
No worries. Jokes don't come across on the internet and in text. Especially not jokes as cryptic as the one I wrote last night.
I'm very aware of that unfortunately as I'm a medical scientist myself. It's always about money, and not always in the sense of profit but in actually securing funds for the research itself. Something which is hard for diseases such as ALS with no treatment, a small group of patients and little knowledge of it in the general public.
what a waste of water and money spent on the water
Als can be genetic...I hope Petes daughter doesn't have it.
This was the longest most boring talks ever. Or at least the longest intro into getting to the point of them starting the challenge. Not to mention is it me or does she seem a bit egotistical... like why would you even talk about this. All I hear is "Me, me and me!". Or I could be wrong and just in a grumpy mood.
You asked, so I'm gonna say you're just grumpy. ^_^ I hear a proud mother and somebody trying to inspire others to be active, to never give up, and to choose happiness when they can. Is there vanity and selfishness in this talk? Sure. But I think it's directed positively, and you certainly can't blame her for being proud of herself, her family, and especially her son.
oohhhh clap clap clap crap crap crap ....
I always thought pouring that bucket over your head prevents ALS. I am very confused now, and disappointed at the same time. Its just a tricky way to raise money? For real?
It actually stimulates for a few seconds what ALS is.
Brett Babec wow, my uncle had ALS (or MND as it is called over here in the UK - he is dead now) and he would be quite offended (as am I) at you reducing the suffering to that of having some ice cold water poured over your head.
If you saw what he went through I think you may change your mind.
"80 year old fathers" don't get ALS. If they do it's extremely rare. ALS is not old people's disease. So, I don't know where she got this from.