In the architecture world there is something we call "the curb cut effect", where stuff made to help people with some sort of disability ends up helping everyone, like curb cuts being useful for moms with strollers, bikers, the elderly, blind people, etc
In the disability work, we call stuff like this "prioritizing accessibility over accommodation." No design is capable of meeting the needs of every single person, but instilling accessibility into the initial design lets you meet a wider range of needs from the get-go. :)
@@FoxMoon89 This holds true on Software Engineering as well, specially front-end development which is my area of expertise. If you adhere to some accessibility guidelines you automatically write better code, better performant code, code that is easier to write automated tests for, code that is more easily indexable by search engines, and many more benefits, including making some stuff (like dealing with dates and timezones for instance) easier to deal with. It's beautiful.
@@FoxMoon89 The focus on accommodation, to the detriment of accessibility, is often the bane of my existence. Thus far I can manage without a wheelchair or a mobility scooter - though I think the clock is ticking on that - but my mobility impairment makes it so painful the moment I am on my feet, that fatigue sets in immediately. 30 seconds on my feet feels like I've been walking for hours. So, when the "accessible" parking space is the furthest one away from the doors, because that was the easiest place to cut the curb, it makes things challenging for me. But to complain about that implies I don't think that making a location accessible for wheelchair users should be a higher priority than making it accessible for someone in my position. Obviously, I don't. I just wish they could consider finding a way to make places more accessible for those people 'on-wheels' as it were, without making it less accessible for those of us with canes, walkers, crutches, etc. Similar to what I've been dealing with at my local medical center, where all registration is now handled at the front desk - a stand-up desk. And when I complain about them getting rid of the labs registration desk, where I could sit while checking in (and while waiting in line), I get asked if I want a wheelchair - and they don't even have self-propelled chairs at the front door, just ones that require a staff member to push you everywhere you need to go. That's not being "accessible," it's being "accommodating" in ways which I personally find pretty friggin' patronizing. I won't pretend to understand the experience of people who are more dependent upon wheeled conveyance that way, but the notion that what tools an individual relies on needs to be their choice, is already a lived experience I'm working with.
It even helps my dog! Shes very small and at risk of spinal issues (IVDD) and is not supposed to jump, so steps are not great for her. But with curb cuts and ramps we can avoid her having to jump so much and hopefully keep her spine healthy! 😊
Once I went to a Deaf church with a friend who works as an interpreter. There was so much conversation with NO NOISE. With sign language, people could converse from across the auditorium, converse thru glass windows, and cross-talk in ways that would have been a cacophony if they had been speaking vocally. Having that experience for the first time was, frankly, euphoric for me as a hearing person who happens to be sensitive to noise.
Yeah. That's one highlight... But think about things, that deaf people will not experience in full. All that music, all that sound. Birds singing, wind rustling leaves, water running. All this world of "noises" and all that "cacophony" of sound.
@@Theeight8b You can't miss what you don't know. Do not look down on their quality of life because it's different from yours. Yes, deafness is a disability, but being Deaf is a beautiful thing and wouldn't exist if no one "missed out" on sound
There was a woman that went to my church she was good friends with my grandma and I asked my grandma one day cuz I saw the woman and she was moving around weird and she said she's doing sign language she used to be a sign language interpreter my grandmother introduced me to her and she taught me a couple things in sign language but yeah she was a nice lady.
The thing I love about Hawkeye having hearing aids and being HoH is the story of why it's that way - a little boy who had bright blue hearing aids and didn't like wearing them was a massive Hawkeye fan, his parents wrote to the writers of the comic and they made Hawkeye HoH specifically to help the little boy learn to love his hearing aids
Nnnnno, they made an original hero (Blue Ear) for him. That was about 10 years ago, and Hawkeye has canonically had hearing loss since about 30 years ago. The people who made Blue Ear for him did also make artwork of the kid himself as Blue Ear teaming up with Hawkeye, though!
@@timosteinsteiger7289 That is assuming those pieces of infrastructure are not useful for the common person. Ramps are useful for moms with a stroller, people with bikes, the elderly etc. too. Street lights with auditory signals generally just helps everyone, considering it stops people wasting time standing at a green light, etc. These pieces of infrastructure cost very little for significantly improving accessability and the quality of life of everyone.
@@timosteinsteiger7289 Also consider cost and accessibility. That's one of the major reasons I don't find it unbelievable for disability to exist in, for example, advanced sci-fi settings. You can have as advanced technology as you want, but you'd need a perfect utopia for everyone to reasonably access it. I mean, we have neural interfacing cybernetic limbs, but many people still can't get something as simple as glasses. Even if they technically have the money for the "fix", there are other things to spend money on (e.g. food, rent, entertainment/luxuries) instead. If the person is okay with how they are, what incentive do they have to spend their money on a "fix" they don't want when they could spend it instead on other things they want or actually need? And why should they be expected to?
@@timosteinsteiger7289that is assuming everything can be fixed which I don’t believe depending on the type of disability or injury that caused it treatment might not work for everyone. We will become better and much will be able get fixed or mitigated but we are no gods and never will be it’s impossible to fix everything unless we can do brain transplants and just use a new body so if we stop making accessible infrastructure there will always be some we discriminate against
"Noone should have to feel like a failure just because they can't live up to expectations that were designed without them in mind." Somehow, this feels lifechanging to hear. This has been characterizing my life and I just really needed to hear that. The video is amazingly well-written. Thank you.
I injured my shoulder in a fall under the effects of sleep meds. I wasn’t able to lift my arm behind my back or over my shoulder… now I can get my arm half way up my back and a.ll the range around my shoulder. Which is amazing… full upper rotation movement after an injury is amazing! PT is incredible.
I just wanted to say that deaf doesn't mean cannot hear at all. That is actually called profoundly deaf. Some people like to identify specifically as hard of hearing, but largely they are also considered deaf. Deaf means that you have lost part of your hearing. My brother only lost hearing in one ear, but he is still as deaf as my cousins, whom have lower percentages of hearing in both ears.
My dad is very hard of hearing in one ear, and I've never even really thought about how much it actually effects him. I can't think of many times where I've noticed him having issues.
Fairly obvious. Same with "blind". but unless that situation comes up, when someone just says "deaf" they usually mean total or almost total loss of hearing unless context specifies otherwise. There's no need to get into specifics everytime.
It would be especially useful in military scenarios or private conversations. Communication without sound or electronics would be OP. We would need to have a universal sign language taught though, since there are many different types.
I really didn't knew hearing implants were so complicated like that. Also I agree here, why SHOULDN'T a child learn both Sign and Verbal language? why not? The way I see it, the more languages, the more ways to communicate, the better.
As a Deaf Educator and Itinerant teacher, I was cast aside or asked to leave my job because I thought the child should have both languages (ASL/Eng). But they simply shrugged their shoulders and said "She can learn later". Whatever that meant...
Honestly I'd love to learn, but the biggest thing that holds me back is how divided sign language is. When speaking/writing, a British, Australian and American can communicate without issues. Unfortunately, each is effectively a different language in sign language. It's always seemed messed up to me that such an isolating disability is further segregated that way. We had a chance to create a unified language even across conventual languages, and threw it away.
There are studies that show teaching hearing babies sign language actually helps them pick up verbal language better and quicker. Plus it might be easier for a distressed child to sign instead of speak if overwhelmed.
Sounds like the propaedeutic effect that is also well documented when learning Esperanto. I would probably say that children are already taught too many things that are hardly relevant, with the result that they remember barely any of them. But personally, I think plenty of educational content in schooling systems would lose against the usefulness of leaning sign language in a direct comparison.
Yes! It’s sometimes used for autistic children who are struggling to pick up verbal communication. There’s a great article by Ralph Moller published in Jan 2024 that explains the many benefits of teaching autistic kids sign language, highly recommend
Man, that kid on the ‘House’ episode looked like a teenager. Teenagers aren’t geniuses, but they sure as heck can decide if they don’t want a machine stuck in their brains. The idea of a parent making that decision for an older kid who can clearly express that they don’t want that is _horrifying_ .
It's not that atypical, unfortunately, either. My older child went through a pain rehabilitation experience as a teen (but of majority, of her own free will), and there were kids that tried to escape when we were there.
House is constantly a jerk to his patients, stop defending that portrail Also, they wrote the story, if they made a character that had a more exploitable argument, then it's their falta to write a straw man
@@yurineri2227 I think you may have accidentally responded to the wrong comment, as mine is not defending House at all. In fact, it’s calling attention to how horrifying one of the plotlines of an episode is.
I really loved Hawkeye as a person who is also somewhat newly hearing impaired. I especially loved the conversation between Clint and Maya about being "hard of hearing" vs "Deaf." I am less impaired than the character Clint, but I very proactively tell people that I am deaf, and I really appreciated how these distinctions were shown in the series. I'm often told that I should get hearing aids, and even though this comment almost always comes from a place of love it also usually makes me angry. I also found the interactions between Clint and Kate to be very relatable and funny in a way that most people probably didn't. In most of my conversations (especially at work where there is a lot of background noise) I have to do a significant amount of guessing to figure out what the other person is saying. I'm not always right...
To deaf people , hearing impairment is an offensive word because the medical authorities decided on that word without consulting deaf or hard of hearing people.
Sorry to reply in an old comment, is it okay to ask why hearing aids make you angry? Genuinely curious. My guess is it's either expensive & has to change frequently, difficult to do maintenance, or just not work on all issues.
@@onebear6504 I feel like this guy just wants to feel special for an inherently defective trait, they're disabilities for a reason, they don't make you more human, they detract from the fullness of what the human experience is, and it's sad to see the coping mechanisms of some people of wanting to feel this "pride" about who they are, yet this just isn't who they are, and has nothing to do with who they are, you can live a dignified life as a human being while also acknowledging your birth didn't go as intended, it's just life, don't glorify it as if it's something that should be praised because it isn't.
@@anthony64632 While I get the dislike of patholizing the condition, hearing impairment is an accurate term. Is there some other term that's less offensive while still being accurate?
@lilowhitney8614 unfortunately medical authority made this decision to use hearing impairment without consulting the deaf community, hard of hearing community.
Oh gods, I needed to watch this. I'm a 55 year-old guy who has finally realised the probability of my being ADHD/autistic. Up til now - well, a few years ago when everything just collapsed - I'd managed to pass myself off as 'normal', with a bunch of 'quirks' that were assumed by everybody (me included) to be "that's just the way he is." I'm now finally on a waiting list to be officially tested and diagnosed, and still it's difficult for people to adjust their mindsets and grasp what this new information means to me. Even my GP got the wrong end of the stick when she told me that there is no cure for it. I know that, and I don't want one. I just want some help to live with it in a new kind of normal.
@killuanatsume The mistake you're making here is taking your preference and thinking that others have to express their identities the same way you've chosen for yourself. Yeah, I get that ableds tend to choose labels ~for~ us that make ~them~ less uncomfortable, rather than what we would choose for ourselves and that ableism sucks, but ~neither~ do we get to tell someone else how to identify. I am physically disabled, a proud wheelchair user and also have various other conditions such as ADHD. My being disabled is a large part of ~my~ identity. Most things in my life are defined by it. My identity is not a negative thing. It is my physical/mental reality and accepting the things that I need to, help me to not waste what little energy I have trying to be something that I am not (or finding fault with it) and instead find ways to be who I want. We all have personal autonomy and we all get to identify as we choose, which can change in any given moment. My identity does not negate yours and yours does not negate the person you are responding to in this thread. You have no knowledge of where people are in their lives and often forming our identities and coming to terms with them is an on-going process. It sounds as though you had a knee jerk reaction based on your own experiences. We're not a monolith. I think your message could have been gentler, with less of an implication that how he was choosing to express himself was wrong. Chit can be clunky sometimes. Peace.
Me no word very good - I think I was trying to say that my whole life has been one of trying to conform to other peoples' ideals, and thinking that I was broken because I couldn't keep up the pretence any longer. Nothing is black and white, and I know that broad generalisations are never really a good thing. It was simply a case of the video hit home at that particular moment. I mean, if I watch it now, it'd probably have a totally different effect.... It doesn't help when subtleties are often lost on me and end up flying over my head.
as someone who has a disability and has been actively told just to not have it infront of someone? that kind of thing does hurt and i like having disability representation and acceptance like this even if its not the same stuff i have most the time
i personally would be HAPPY to get rid of my disability but accepting that it probably wont ever happen and having other people being accepting aswell can help a lot and if other people dont want to get rid of a disability it really shouldnt be forced just like whats said in this video
How culturally illiterate does someone have to be to say "Y'know, just... don't have that thing that's messing up your life." "Oh yeah! You know what? I NEVER THOUGHT ABOUT THAT."
What I hate the most is when people say "oh this character is an awesome empowering disabled rep!" and then show me a character who's an amputee with a cybernetic prostethic that makes them even stronger than average human. The robo arm/leg is ofcorse 100% functioning like an organic limb making them just "look edgier and cooler". So I'm just annoyed with using disability as an aesthetic choice.
I feel like you'd love Fullmetal Alchemist then, one of the main characters is a double amputee and while there are some fantastical features to his prosthetics, they aren't treated as cures. There is a big focus on maintaining his prosthetics, and his mechanic actually gets mad at him because he treats them like super limbs when they aren't so he keeps breaking them.
To be fair - most of the time stories themself don't treat this kind of characters as disabled. They have "What makes a human?" themes (Cyborg from DC, or characters from various cyberpunk media), or they are about corporation treating living person as a tool or a weapon (Robocop, Deus Ex, cyberpunk stuff again) or both.
I fell like media like that is what being ‘differently abled’ kinda comes from, you aren’t disabled by your disability silly, it gives you superpowers from prosthetics that aren’t real or echolocation from fake chemicals or super intelligence from autism somehow
@@andyglobe8179 Latest Ratchet and Clank fell sooooo flat on its face trying to have some disability rep that it became ableist like all hell with not only a character who built HERSELF a cool robo arm after loosing one (she's right handed and made herself a right hand) but also making the other "disabled" character the robot that gets fixed at the end while during the story they tried to push the message with him that "no you're not broken! No matter what!"... only to fix him in the end... not to mention they compared the two disabilities where one had a fully functional super strong mechanical arm and the other lost the ablity to walk... It's 2024 and we still make stuff like that...
I have a cybernetic amputee, but I never treat it as a disability or compare it to one. It's more a connection to their past. How they got the limb is important. It doesn't make them stronger. It does come with some limitations and some tech features, but for multiple reasons, losing their arm was never really a major moment of difficulty for them. Extra: They are actually probably literally differently abled, in that they are a separate species to humans and have sense and abilities they do not, but also cannot do some things humans do, and have difficulty comprehending them sometimes. Actually, they have trouble with verbal languages! And written languages. Some of it is based on my own difficulties with language, despite being fully hearing.
I think Daredevil does a really good job showing the issues of hypersensitivity. Like, he has to learn to process even more information and it's brutal for him. As someone with a sensory processing issues, it was great to see that covered
Honestly, that's... a great way of putting it. Now that you mention it, I seem to be in a similar boat myself. Autistic, mildly deaf, and bordering on legally blind, yet I have allodynia (and the misfortune of it being paired with hyperalgesia) and my sense of smell is unusually powerful. Honestly, I'm kind of a mishmash of medical anomalies and unfortunate combinations.
They have to sign contracts to not teach sign language? Oh my god that is SO predatory. They're basically signing them to a forced prescription. In my opinion everyone should learn sign language, not just hearing impaired people, EVERYONE. It should be a required subject in schools.
@@albnoel It's 15% of the population. A percentage you might join as you get older. We teach English to speak to a majority of the population. "Responsibility". As if they're a wounded dog that needs to be taken care of. Hearing impaired people aren't an "Other". They're your nan and pop, as well as a kid down the street with hearing aids.
@@albnoel One day, it might be What if you go deaf tomorrow? What if your child is born deaf What if your parents or siblings go deaf What if you meet someone, and they’re your best friend And they’re deaf Wouldn’t it be nice to already be able to speak to them Or to communicate in general? I mean Sure it’s not mandatory to know sign language But considering it can happen to ANYONE at any time Shouldn’t it at least be mandatory in school? Taking Spanish was mandatory in my school And that’s awesome and all But we had three Spanish students And they already spoke English And ya It’s helpful when you meet someone who only speaks Spanish But a Spanish person can learn English Just like someone who speaks English can learn Spanish You should totally learn Spanish It’s a cool language But it being required made no sense Because a Spanish speaker Can learn to communicate in English Just like I can learn to speak Spanish Someone who uses sign language Cannot learn English No matter how hard they try They’ll never be able to magically understand words they cannot hear At most they can read lips But that’s not a very exact way to understand people It should be mandatory to learn sign language Even if you never use it In my preschool, we teach the kids basic sign language “Love you” “Help” “My name is” “All done” “More” “Please” “Thank you” The basic stuff you need to communicate immediate needs We also teach them all the ABCs So they can spell out what they need
Thank you so much for this!! Disability in the media always seems to need something done to it. It either needs fixing or to be twisted into an advantage and if you can’t make the most of your disability then you’re not trying hard enough. While I definitely can’t speak on deafness, the story of the Bell family is…a lot. I’m autistic and so is my mum and while she recognised that in me as a kid, she didn’t tell me or anyone else, stopped me stimming etc. She decided I should learn to mask to appear normal like she had to do, and while I used to resent that a lot, now that I’m older it makes me so upset that she thought that was the only option. I also didn’t know she was autistic because she tried so hard to blend in. The only image I had of autism from the media was either the child savant or kid having a screaming meltdown so naturally I never made the link. Representation is so important!
It's sad just how many of us can probably relate to that story. Feeling forced to mask is so destructive! I hope you and your mom have felt more free in recent years. Thank you so much for such a lovely comment, I'm glad this resonated with you 💜
Every story about disabled characters seems to revolve around either a)Becoming tragically disabled, b)heroically overcoming disability, or c) tragically dying for the sake of non-disabled people, with overtones of "they were too pure for this sinful earth". There's so little about disabled characters just being disabled and having normal stories like everyone else. It's so ingrained that people often just assume that if a disabled character appears, people often react with surprise or even anger if the character isn't cured, inspirationally overcame the disability, or dead at the end.
Solidarity! I found out at 40 that I have ADHD, after my firstborn was evaluated for same, and at 53 my neuropsychologist confirmed that I am also autistic. My parents were both medical doctors and researchers. My mother was almost certainly autistic (and in full denial about it) and my father self-diagnosed with Seasonal Affective Disorder, and he was likely also some other kind of neurodivergent, maybe AutDHD (but in full denial). They never mentioned even the SAD in front of us children. After I came home from kindergarten, my first or second week there, and asked my mother why one of the teachers had so angrily insisted that a boy look her in the eye, my mother started to secretly and intensively train me in how to convincingly fake eye contact. She said that eye contact was "something unimportant that some people were too insistent on," and that it was "easy to fake - she had always done it." Her training repeated often until I was 12 or 13 and for the first time asked *why* I needed this training. She didn't answer and never brought the subject up again. My father yelled at me, threatened me with severe health problems and finally, when I was 9 or 10 beat me to stop me toe walking. There were plenty of other things that they criticized me for, too, which could be summarized as "Why can't you just be normal, like other girls?!" (I am agender and was a tomboy growing up, before I knew a word for my identity or that there are others like me) Thankfully, I had one grandmother who loved me unconditionally, so I never really deeply felt that *I* was wrong, but the experience of "Could I please find someone else, too, to accept me!" was very lonely, at times desperate. In my teens I finally found a group of fellow misfit geeks, and things started to slowly improve. Today both my children (now in their 20s) have neurodivergent diagnoses and I am married to an introvert fellow engineer. My five other closest friends are also all various kinds of neurodivergent. It took a long time but life is good now. I even have a dog, which I had wanted since I was five and finally got a few years before turning 60. People who don't want disabled (or queer, or otherwise different) kids should not have kids at all.
@robokill387 in the same vein when a character you root for dont succeed. Like you will be pretty pissed about it right? Even though day to day life most people will be met with failure than success but in movies we would rather them succeed rather to mimic real life and fail. I find the idea where characters need to be relatable is a very odd thing especially since we are talking about a super hero fantasy.
This was eye-opening. A high school friend of mine who ended up studying at the same music school and being my roommate in college was deaf in one ear. I asked her if she’d ever considered a cochlear implant. She said no, she’d lived her whole life without it and wanted it to stay that way. As a fellow musician, I’ve always been perplexed by this, and I’m ashamed to say that I judged her a little bit. That was 15 years ago. This video helped me crack what felt so off about that judgment. Thank you. 🙏
Hearing with two ears affects the way the brain interprets the sound. The interpretation of sound is important to a musician. Using a new aid could completely wreck her progress in music school. Imagine suddenly hearing everything as overlapping echoes without stop, or clashing sounds.
The rebuttal to "Echo's" argument in chastising Hawkeye for over-rely on technology as a crutch to bypass his disability; even to the point of being hostile because of it. Is not up to her to decide what's best for him (even if it's done for dramatic effect).
Disabilities should be fixed or at the very least be made less of a burden. I get the learning to love you as you are and learning to enjoy live. But in what sane mind can you chastise someone for wanting to be able to use one of their possible senses or functions? In this case Hawkeye has the actual opportunity to be able to enjoy music, the voice of the people he loves and every other magnificent sound that exists in the world. Why does he have to prevent himself from that? It is also very hypocritical of Echo to say that when she has super powers that make her deafness a non-factor? that is no representation for people with disabilities, because they can't have that, and they will never have it unless they use the very same technologies that Echo shames. Even more, didn't she get a new leg with weapons and more features that make fighting better for her? How is that any different?
5:35 Lmfao the subtitles said "WAH LAA" instead of voila which is just peak considering the context of the video As someone with basically half a face (hard of hearing and only peripheral vision on the left), I appreciate this video :) Also these musical based transitions. Yes.
I love the Kindergaten in my hometown with hearing and not hearing children. They teach every child and, if they want to, the adults sign language. I think it is a good skil to have.
also ASL is so useful for situations where you cant talk, or have to stay quiet. gossip in class? sign. need to communicate plans with someone across the room? dont get up, just sign. lost your voice due to sickness? sign. im HOH and ive used ASL in all of these situations and it makes my life super convenient.
I was following a series where someone was a professional tester for disability products. He'd like oil up his non dominant hand and try to use the product again to simulate joint problems. But one time I lost my mind when he rated an egg cracker one star because he forgot people with only one hand exist
i'm sorry, but what i get from this is that people supposedly crack an egg with two hands? i mean egg cracker does make sense if you have problems with both of your thumb, but i refuse to beloeve people usually crack egg with both hands
As someone with ADHD I love how I view the world, the things I notice and can find beautiful that my NT friends overlook. Often when I point those things out, specially in hikes and nature in general they appreciate those things as well, and are thankful I was there to bring attention to them. What makes my life harder most of the time isn’t my ADHD it self, but how I am expected to function in a society and environment that are not meant for someone like me.
It's the same for me and my autism. I function fine with a bit of help. But then you got teachers and people that either expect a stereotype of autism, which I am definitely not, or they expect someone with lesser intelligence even though I made it to higher education in the first place on my own strength. Literally got told I ain't cut out for a job cause I got autism. Even though I had 70% on my exam at the time. And I got kicked out of school. I wasn't welcome in regular school but I also wasn't welcome in the special needs schools cause my autism isn't bad enough to be accepted. You sure feel included then. xD And then comments on not stimming, to work full time and do things normally like other people when I literally can't do those things in general is a struggle. But when people disregard the piece of paper and they just get to know me for me I feel all warm and bubbly because we're all equal then. There's nobody patronizingly telling me what to do. We just a bunch of friends switching up meeting places so one time it's good for them and one time it's good for me.
I have mixed feelings about this. I have BPD, which mirrors a lot of symptoms of ADHD, and I've closely known people with ADHD. I'm very divided on where these should fall either side of the "cure" mentality, especially where functioning in a job and interpersonal relationships are concerned. In a work setting, t's harder to justify not completing that task because your emotional state is such that you can't focus, or that your impulsivity leads to an inappropriate or problematic interaction with a coworker. It's certainly hard to argue that the latter behavior should be accommodated and doesn't need to be fixed. The former is also a difficult one to evaluate because at the end of the day you are being paid to complete a task, and you and your disorder alone are responsible for the negative situation you find yourself in. Contrasted to something like being deaf or being paralyzed, where much of the world is an external obstacle for you to overcome. Most, if not all, negative situations people with those disabilities find themselves in aren't caused by them, it's caused by a world designed to not allow them to function. Whereby if we look at ADHD and BPD, that inherent dysfunction present for other disabilities, isn't built into a job or relationships held by people with ADHD and BPD. More often than not, we are the architects of our own destruction. And it's really hard to say that it doesn't need corrective behavior or modification.
@@F9109-r1e Sure it depends on a case by case situation. But the choice should be for the person in question in the end. Personally though I believe that even if people had ADHD and struggle to finish tasks. I've noticed that with the right approach from the environment they're more likely to stay on track and manage to do the things they wish to do. For example I shorten my boyfriend's study time with more breaks and I actively encourage the use of fidget toys. He's not on any medication cause he feels bad when he's on it. So I work with what works for him. Same way he adjusted his talking for me having autism and needing a more direct approach. By testing how long he can keep his attention. I can make study blocks and breaks based on that. And by making the room a more isolated place with some music on (gonna say that works for him) He's improving his studies in leaps and bounds. So I'd say that a lot of the time for these people it's the environment that causes the self destruction. Because people don't listen to their needs or adjust to them either. It's a lack of support that does them in. And a lack of understanding from the general population too. I've also noticed that a majority of the people I befriend later turn out to have some mental health issues themselves that share symptoms with my disorder. Because we unconsciously accomodate to what we need ourselves. It's why making friends with neurotypical people is so much harder. It's like being separated by a different dimension. Or like speaking an entirely different language.
@@F9109-r1e You say "Most, if not all, negative situations people with those disabilities find themselves in aren't caused by them, it's caused by a world designed to not allow them to function." about people with physical disabilities, but I want to remind you that the world is definitely also not designed for people with mental* disabilities. In a work setting, if you can't finish your task because you keep getting distracted, that may be because you have no access to a quiet working space for example. A person with a disability can't just 'turn it off'. One can't really force themselves to not get distracted as it's literally an involuntary process in the brain. Sure you might be able to train your focus but that's limited and if you're not careful you may end up forcing yourself to mask just to please the neurotypical environment around you. Which is inherently harmful for a person (trust me, as an autistic person who masked their whole life and had an autistic burnout as a result of that. It harmed me severely. I am now even more disabled simply because I tried to force it all to go away. I basically kept walking on my broken leg because I was expected to walk, and now my leg will never heal again). Yes inappropriate or problematic interactions are something that should be avoided. BUT it's not all up to the disabled person. If the coworker triggers the interaction, on purpose or not, the disabled person can't always help what their brain does. The coworker should be educated to help (!!!!) avoid situations like those. And if they insist on crossing boundaries or triggering the disabled person then that's a harmful environment for the disabled person to be in. Even if they train to avoid problematic interactions, the environment still plays a huge role in it. Imagine a workplace with only neurodivergent people, where there are accomodations for every need. Quiet work places, headphones, non-bright lights, few social expectations, work to the best of your ability but listen to your disability, good mutual understanding of each other's disabilities, etc. I can assure you the output of such a workplace would still be very good, for sure better than if all those accomodations weren't present. Cause burnt out workers don't have much output. (If you're forced to work 12 hours a day every day you'll be exhausted most of the time, right? And when you're exhausted you can't really work well. Forcing people with mental disabilities to work without accomodations in the same workspace designed for abled people, expecting the same results, is going to exhaust them just like that. Needs not met = exhaustion = low output. That's not because the person isn't trying, it's cause the environment does not accomodate their needs. Which is the case because the world is not designed to allow them to function.) What I'm trying to say is that maybe it could help if you saw mental disabilities as a kind of physical disability too, as it's literally the brain being structured differently. You wouldn't force an ambulatory wheelchair user to stand the whole day, right? Cause in theory they could, but it would harm them severely. Then why force another disabled person to work against their disability instead of with it? Not mad whatsoever, just trying to share my view on the matter! :) Everyone is entitled to their own opinions, I just hope yours isn't caused by internalised ableism because I wouldn't wish that upon you
I mention the idea of superheroes being "differently abled" in my video about superheroes and disability! It does get really awkward when they're both disabled and super-abled-- or similarly, when I mentioned somewhere how Damian Wayne gets more compelling when he's autistic (and therefore Bruce might even be???) someone said that, while they see that and get it, it does then kind of feed into the concept of "Hollywood Autism," because they're portrayed as extremely intelligent/talented/prodigious and it feeds into this idea that all so-called "high functioning" autistic people are savants (which some are! or some like me might be, which can cause its own issues bc my mother was told that I was just super smart and that's why I couldn't relate to the other kids, but then I had anxiety about my social struggles making me appear less intelligent so I put in so much effort to learning that stuff that I ignored growing other intelligences and for a long time ignored being kind because I'd rather be seen as smart and mean than well-intentioned but socially incompetent and now I feel relatively average because of my weird priorities but also what is intelligence etc etc blah blah). Also as an autistic person, I can absolutely get Deaf Gain and why Deaf people would prefer to stay deaf. I struggle to sleep without a ton of white noise to drown out every little sound that will jolt me up. Not to mention auditory sensory overload, or even just the little things like being able to communicate through windows or if there's a sound issue in zoom etc. Again, gotta get caught up on Marvel and check this out, it looks like finally a good disability and superheroes show!!! Also, Aranock has such a nice old-timey woman quote voice? That sounds backhanded or something, I mean it as a compliment omg. She's so good at voices I could listen to her read a phone book omg
There's so many fascinating layers with disability and superheroes! I feel like I keep thinking of more angles to look at these things. The Boys has got me thinking about it again as well. I relate to a lot of what you're saying with intelligence too. It was really hard to tackle some of that because it was one area where I could maybe pull off "praise" which made it feel more important to lean into. And Aranock's reading was so good! It was actually incredibly hard to pick which take to use. She is incredibly talented at voices
While I doubt Damien or his father is autistic, you can totally have disabled superheroes that are disabled while being competent superheroes. Real Life autistic people often present with a thing called an "uneven cognitive profile". This means that individuals with ASD can have their skills and capabilities vary widely between people, across domains, and even across circumstances. Basically, two individuals may not necessarily have the same skills, an individual may be talented in one skill while being deficient in another at the same time, and an individual who is normally experienced at a certain skill may at times become incompetent. Intuitively, disability and superpowers shouldn't necessarily contradict because superpowers are a work of fiction and do not exist meaning the two are completely independent from each other. However, in a broader narrative and realistic sense, disabled superheroes can exist and their unique experiences can extend well into the superhero genre. So long as it fulfills the promise of accurately portraying the experiences of the disabled. Otherwise, there really wouldn't be a point. Instead of kryptonite, their weakness would be overstimulation for example. There shouldn't be a problem having a disabled superhero. Their disability shouldn't interfere with their ability to be a competent crimefighter so long as you are willing to engage with the premise. You could always set things up so that the disability contradicts the superpowers from the beginning. Like having a paraplegic speedster, a mute sonic scream, or if Hellen Keller had xray vision and super hearing. One of the things I don't think contradict however are super smarts and genius intellect with intellectual disability.
Recently I discovered that savant doesn't actually fit the criteria of highly skill neurodivergence, because the overall IQ of the person is bellow 70 points, making them completely dependable on other for mundane tasks but incredibly versed in very specific areas, where even a non verbal autistic person with a high degree of support can score really high on IQ tests. Is like the savant's brain is a tree with no leaves and a single very beautiful flower, while the neurodivergent is just a tree with different leaves than one would expect but still works all the same
As someone who was born complitely deaf in one ear. That one scene in Hawkeye where he moved Kate to his other side so he can hear her better (ep2) , meant the WORLD to me. I have never felt more seen in my life, especially by any kind of media. And it feels so crazy, because it's just a short scene mainly for a joke that most people won't remeber. But for me it was everything, I remeber rewinding serval times to watch it over and over again. That show will now for ever have a spot on my heart ❤ I do think it's important to have repesentation for both hearing aid/implant users and non. I personnally use hearing aid, but not all the time. The noice can just become too much sometimes. Something that sometimes makes me upset is the fact that as a kid I was just given a hearing aid and never was taught any kind of sign language. Personnally I think it would have been an important and useful tool to have. Also intrestingly enugh I remeber when I first wached Hawkeye. Echo "bashig" Clint for wearing hearing aid made me a bit annoyed. Because there is a massive difference between being born deaf and losing your hearing later in life. But it's comolitely understandable for Echo not to like hearing aids/implants and for Clint to want to use them. As Echo (I believe) was born deaf and Clint not.
Echo was born deaf. Her signing was a connection to her father we see in this show and echos. She likely only uses tech as far as she absolutely needs like her leg but she wants to prove she is still good enough on her own merits
My daughter is almost 2. She is not deaf or hard of hearing, neither is our entire household. We are teaching her, and in turn ourselves, asl to make it easier to communicate with her as she's behind on speech milestones. We started learning when my wife was pregnant just in case she was deaf. This not only helps us short term, but may allow her to communicate with deaf friends or classmates later in life. I think ASL should be a mandatory class in school. I wish I had taken it
Sign language should be universally taught in schools alongside reading and writing... We never know when we'll need to use it. Not just because of hearing issues, but also on noisy places and used at a distance when you don't want/ can't go on yelling.
Another great example is in sicario 2. And it actually really added to the art of it. At one point in the film the use of sign language really personalized and connected two characters in a unique and powerful way
The fun thing about sign language is that it's now being used by parents of fully hearing children in early childhood because knowing multiple languages in early life is beneficial and it's easier for children just learning to communicate past simply calling for attention to sign their needs while still learning how to form words verbally.
Doctor strange is still entirely as disabled as he was at the start of the movie. His entire arc is him choosing between fixing his hands or becoming a sorcerer and he chooses sorcery. There is even a scene where he complains that he can't cast spells with his hands shaking and the ancient one introduces him to a sorcerer who doesn't even have hands and can cast just fine and he realises that his hands aren't holding him back, his mindset is, and he is just blaming his hands to protect his ego.
Yeah, he’s still disabled because he can’t do the thing he actually wanted to do and based his entire life around up to that point: surgery. Sorcery is something he likes and rolls with, but it’s really more of a consolation than anything else. MCU Strange seems very much like he’d rather be a surgeon and have had the woman he loved, but he has an obligation and duty now that he has to prioritize.
The problem with Dr Strange is that he never learned to live with his disability, but was given an unrealistic power that made his disability something he could ignore, in effect removing it. Not exactly representative, you know?
@borkabrak You are so wrong about that. Dr. Strange is still disabled and can never again do what he wanted to do, be a surgeon. You missed the point entirely, but the other comments already explained it. Read those.
I’d also like to point out that, even if he did go back to being a doctor, he can never be a surgeon again. Especially considering he was a neurosurgeon (working with the brain requires such a fine control of your hands that ANY shaking could be disastrous). He, even if he used his sorcery to keep his hands steady, can never do neurosurgery again. It’s still there and still a part of his life and to claim that sorcery (which is something anyone can learn through dedication and practice, not an innate ability that only some people have) removes his disability is actually really disrespectful. And I say that, while I personally have never had a surgery of any kind (especially not one that would affect how I move), I do have Tourette’s and have incredibly shaky hands as a result (to the point where I can’t even hold a knife to make food with sometimes), but I would never choose to use magic of any kind to remove it. It is a part of who I am and to remove something that I’ve had since I was about 4 would feel like removing a part of myself (for context, I was diagnosed officially at 16 and am currently 19. I’ve had it since I started schooling). It’s been such a major part of my life for so long that I would have no idea how to function properly if it changed. Even if he used magic to keep his hands steady, that also still doesn’t remove the experience he had with his damaged hands. That’s like saying that, if someone broke a bone but it healed correctly, that they were never disabled to begin with. It’s incredibly disrespectful and really disgusting behaviour to claim that about someone you do not know and especially if you yourself don’t experience anything like it. Apologies, I just find it really rude that people would try and talk about subjects that have zero knowledge of or experience with.
I have a friend who has a CI and it worked out for her so I never put much thought into it. I still think the technology itself is amazing. But manufacturers forbidding parents to teach sign language to their child in a contract... WHAT?!??! This HAS to be illegal in one way or the other.
A couple things I should have noted is that not all Deaf people consider their deafness a disability. Which is quite similar to neurodiversity in that not everyone who is neurodivergent considers themselves disabled (it's one of the ways I find them so similar, but I should have noted this specifically). Also, deaf doesn't necessarily mean cannot hear at all, deaf means you lost part of your hearing. Some people like to identify specifically as hard of hearing, but largely they are also considered deaf. Thanks to Bread in the comments for pointing out my mistake! Hope you all enjoy the video otherwise and if you're curious about more aspects specifically related to the Deaf representation in Hawkeye I really recommend watching this video by Jessica Kellgreen-Fozard: ruclips.net/video/LPNIxPagHEA/видео.html
Can't speak for anyone else, but I feel like my disabilities are only "disability" because of how society is set up and the systems and expectations put in place.
If you want to see a decent representation of deaf-acceptance on a TV show, check out Gil Grissom from the original "CSI: Crime Scene Investigation" show. I believe that his mother was Deaf, so the character will use ASL when encountering deaf witnesses, suspects and such.
Thanks for making this great video! I haven't watched Hawkeye yet (been kinda burned out on Marvel) but it is nice to hear it has some decent deaf representation
I took a very brief sign language course as part of my teaching degree qualifications. The thing I was most intrigued was how sign operates as a complete language, with toning, accents, dialects, colloquialisms and cadance, but is always adapted to the hearing majority for us to understand and pretty much ignore what works for deaf people. The way ideas work is much more intuitive to them when expressed by signing, they have to adapt for our benefit, like people hosting foreigners who can't speak the language of the country they are in and have to accommodate them by doing the switch instead of the guest learning how the natives do
As an aitistic human with adhd I am aware of a lot of privileges I have. But I am disbled. I developed depression as a result from struggling with all the demands from society. I would not want to change my adhd or autism, I would mike to not be depressed anymore though. But this idea of "being differently abled" or "see, you achieved stuff, it's getting better" hurt a lot. I got adhd medication now: that I am "suddenly" able to do more things and achieve more stuff, does not result of some mindset or whatever. And my depression got worse, because I still can't keep up with all demands but people get so easily used to me now "achieving", they assume I'm all good now and ready for an increase in demands... Being able to do more things also made me painfully aware of a lot of barriers I couldn't even see before. It's never "phew, done the disadvantage-climb to catch up, now it's fine". I once saw an analogy somewhere that it's more like I have my oldtimer that has a new issue, a new blinking light every week. And some other people drive by in their Tesla. And when I got a month without the car breaking down, they suddenly assume the car magically transformed into a Tesla? Yeah maybe in some aspects I have some "different abilities" but they are not the ones that are part of the core demand in society. In my little bubbles they help. In everyday life I am disabled.
This is my experience aswell. I stopped taking meds for a decade becouse for me the meds didnt agree with me after a while. And due to the studies i picked it wasnt realy an issue for a long long time. But now im in adult life, i see my neurotypical sister doing good and being a normal person and i just cant. Im only able to manage to do chores for one day every other month or so. After work im too exausted to even care for myself. Let alone long term projects or long future planning. I just cant. But everyone my age is shooting past me, hitting milestones. Its honestly realy depressing.
What aggravates me is the amount of parents in real life who will deny live saving medical intervention for things like cancer and taking the choice itself away from the child who’s battling the illness and the same thing can be said about children who are tired of fighting yet their parents are too selfish to see that and would rather continue to torture their child in hopes of some miracle instead of listening to their child I swear some parents are selfish and only think of how they feel instead of their child!
I got lucky that mine always listened to me about medical stuff - except when I didn't want to take antibiotics because they tasted gross, but even then my mom bluntly informed me I would probably get brain damage from the high fever or possibly die if I didn't so I would unlock the closet and crawl out on my own. And yes I did literally lock myself in the closet to hide from medicine. In my defense, I was 5, and it tasted horrible. Was the incident somewhat traumatic? Yes, but it needed to be done. For instance when I got appendicitis in 4th grade, the doctors caught it really early - I wouldn't have even had noticeable symptoms yet if I hadn't been hit really hard in the stomach with a basketball during gym class. So, the doctor said they could try putting my on antibiotics instead of surgery since oftentimes appendicitis is caused by the appendix getting infected, so if you treat the infection before it ruptures it can go away on its own. I asked the doctor if there were any long-term consequences of losing an appendix, and he said there weren't (which was thought to be the case at the time, though we now know appendictomies increase your risk for irritable bowel syndrome and some other gastrointestinal issues - but that wasn't known yet, so he gave the best info he could.) Based on this, I decided I wanted to go ahead and have the surgery anyway, as I figured it was better to just get it over with rather than risk having it rupture later, so my parents told the doctors to do it, since 4th graders can't legally decide that themselves. This turned out to be the right call, as my appendix turned out to have been inflamed due to extremely early cancer, which antibiotics would not have fixed. (As I understand it, the inflammation was from my immune system trying to kill the cancer cells. I don't remember tge details very well, as I was on a lot of meds and not fully coherent, and the doctor was explaining it to my mom, not me. I don't think he knew I was awake actually, now that I think about it...)
congratulations to conflated two different groups of people as one and the same. NO the parent who DO gives such hearing devices to their kids would NOT squander on other means of medical aid.
That second point is terrible. "We should let all suicidal people kill themselves, and whoever wants to help them obviously doesn't understand their suffering and is an a**hole"
I have a friend who was born with a hearing disability, but they have an implant to hear. They still struggle very much with spoken language, and the day I brought my ASL flash cards over to teach her she broke down crying because nobody ever taught her, and now in her 40's she can finally communicate clearly. Sign language is helpful in many situations for many people, and not only for the hearing disabled. I have ASD and verbal communication is not easy for me even though I hear just fine, and especially out in public if I need to communicate with my child but don't want to speak out, here comes ASL for another win.
10:05 did the dude just compare indigenous people to primates. So not only was he offending the deaf community he was actively being offensive to native Americans
"Anything I can simulate with a ear plug is not a culture" Earplugs do not "Simulate deafness" you're not deaf because you're wearing one, you can still hear, the most they do is muffle the noise around you.
@@QuestingRefuge And they made a black character say this. What if someone had suggested the black culture can be simulated by doing black face? Everyone would see how wrong that is, and it's just as wrong when it comes to deaf culture or any other culture.
this means that the ear plug is not sufficiently efficient. replace it with a better noise protection and that statement is valid. this is a non-argument.
@@mchobbit2951 because deaf "culture" isn't a culture. being deaf is not a sufficiently complex and different social experience, where there is much greater difference between the social experience of being african american and being some other ethnicity and nationality.
Hi, this is 2 years late but better late than never. I'm a late diagnosed autistic, and I'm still trying to be okay with it. All of these pressures of trying to fit in to the rest of society have weighed me down for years, and I still haven't thrown them off yet, but I'm working on it. I live with a bunch of my neurodivergent friends and my family is coming around to the idea of being neurodivergent themselves (slowly but surely, lol). I was absolutely terrified to not be masking my college courses earlier in this week, but I did it somehow, and I'll keep doing it if it means I'll stop being afraid and trying to pretend to be someone I'm not. This video was excellent. I will for sure watch the Hawkeye series now.
Considering the number of people who are deaf or hard of hearing, how people tend to lose their hearing as they get older, and just the sheer usefulness of being able to communicate without speaking - - sign language should be a mandatory class in all schools. Our school used to teach sign language as one of the language electives, but had to stop when the teacher developed severe arthritis in her wrists and hands and had to quit and the school couldn't find another teacher for the position.
Scrubs is also awful about autism. The episode with Dr. Cox's friend, wherein his son being autistic is treated as a horrible tragedy he wants to ignore, fills me with rage every time I see it. Although, again, it and garbage like "The Good Doctor" are just being consistent with the medical community's actual attitude towards the disabled. I've had professors who were *way* too enthusiastic about "genetic screening" as the "future of disability."
@@QuestingRefuge I'm in med school and autistic. The professor who gave our introductory lecture on the topic cited A$ as a valuable resource and described ABA as the "gold standard for treatment." (We also had a horrifyingly ableist lecture on cochlear implants.) Thanks for the Jessica Kellgren-Fozard link, by the way. I've been trying to learn more about other disabled communities, particularly Deaf communities, in recent months. (I just finished Katie Booth's biography of A.G. Bell.)
"but but but muh eugenicism bad!!" pause and think about whether you can actually find some flaw in it, or its bad just because you can attach the bad-sounding label of "eugenicism" to it.
My husband has two cochlear implants: one that works beautifully, and one that has never worked well at all. This surgery for the second one damaged his sense of balance, a problem that lasted for 12 years, until we discovered that physical therapy could help. But even though his first cochlear implant works so well, he still needs to be able to read lips to understand the speech of people that he doesn't interact with on a regular basis. The lockdown in 2020 was particularly difficult for him because of the mask mandates -- everyone's mouth was covered, and he couldn't read anyone's lips.
One of my favorite things to point out to people is that if they have glasses or contacts, they're technically disabled. I was talking to my boss recently about disability advocacy and he was talking about how nobody at our job is disabled, I pointed out to him that he has eye sight so bad he can't see without assisting tools. I also was pushing for us to label the colors on our blueprints, and everybody was like "Why should we do that? That's just an extra step." I pointed out that if anybody whose color blind works here , they won't be able to tell the difference between certain things on our blueprints. And literally two weeks later, We hired a new engineer and a turns out He is color blind And greatly benefits from the labels. This is an example of when you pre-plan for disabilities the disabilities aren't an issue later.
You know I wear contacts and glasses all my life and never thought about that. I grew up thinking that disabilities were blind or deaf people, wheelchair users, or people with a strong mental impairment. Putting on glasses or contacts is barely an inconvenience for me that I never counted myself as disabled. It’s alway why I have anxiety but it’s so situation specific that i don’t count myself as neurodivergent. I feel like I’m cheapening the label.
I want to use this as an example of how I see Cochlear Implants/Hearing Aids as a Deaf person who uses Cochlear Implants. They’re like prescription glasses. You can see with them, but without them, you’re as blind as a bat. It’s the same with Cochlear Implants. You’re still deaf without them on. That’s why I don’t see them as a fix.
I've worn glasses since I was 4, & though IRL glasses are everywhere, especially as you age, in media, the trope is, you're old, a nerd, or ugly. To the point Not Another Teen Movie had its lead girl take her glasses off as her "makeover", & NATM is a spoof film of teen films, so it just showcases the "glasses = ugly" trope. Like, NOPE. Let's have gorgeous people, doing fun, not nerdy stuff, wearing glasses please. And then we can move on to other ability aids
Princess Alice of Hesse the mother of the late Prince Phillip was born deaf. The courtiers around Queen Victoria thought that she was stupid and defective. She was married off to a philanderer who used her for four living kids until she had a son then dumped her in a mental institution. She had the unfortunate honor of being mentally and physically tortured in that institution by Freud and his cronies. This woman faced down Nazis. Thank you for discussing this. We need it.
It might be a small thing, not really a disability, but being Left-Handed makes you see how many things are normalized and optimized for Right-Handed People.
Most of my left-handed relatives have essentially trained themselves to be ambidextrous out of necessity. It took a right-side wrist injury for me to realize how impressive that is. Turns out I don't even know how to whisk properly with my left.
12:04 I think another aspect that’s interesting, whether Bell’s prejudice was genuine or not, is that the expansion of ASL would hurt the profits of his telephone patent, because after all the USA runs on money
Thank you! Moon Knight and DID is definitely something I'm considering covering! Would also give me an excuse to talk about Doom Patrol as well which I absolutely love.
Im going to say this having worked with the disabled, having a disabled mother, and the rest: It isnt the "curing" that's the issue. There is NO ONE confined to a wheelchair thay wouldnt rather have the use of their legs. The issue comes from how society TREATS the disabled, and no, its not just one crowd. From my own life, at 19 I was told that if I stayed on ships, I would be crippled by 25. Two camps emerged from those thay found out: Those who thought I was made of glass, and those who thought I was malingering. Believe it or not, I liked being around the malingerers more. Why? Because at least they believed I was *capable*, and werent ready to just commit me to a wheelchair. The disabled don't want to be called "strong" or "brave" for their disability. Mainly because its like, "Look dude, can I just have my fucking coffee without being your inspirational moment?" The issue in media with "curing" disability is that its pretty much just everything is magically better and there's no effect after the fact (i.e. Person bound to wheelchair for years just gets up and walks away) and if it's not that, then it's the "magical inspirational disabled" trope with no middle ground. The other side is dumb too, though: If we're at a level of society as nd tech where we can easily fix most.disabilties, why are we leaving them without help? This is most sci-fi where we've got some insane medical capability.
I actually live with a third category. The empathetic group. My mom actually let's me work things out, helps brainstorm with me to figure out how to work with my disability so I can still be independent. I think society should be more accepting in general. Yeah this person is handicapped but they're not entirely incapable. I mean look at Stephen Hawking. He still managed to achieve so many things. Despite at the end just being entirely wheelchair bound. Just cause you detoriarate different from normal people aging doesn't mean you're unable to ever be independent.
The only issue I see with your comment is that you speak of 'fixing' disabilities and leaving people without help. That's a very able-bodied centered view I think with maybe some hints of savior complex. It tastes the same as the people who baby disabled people, who think they are fragile or who pity them just because they are disabled. Yes disabled people may fare better in the world with those things, but I'd encourage you to use the word 'accomodation' instead maybe...? Because the word 'fix' means something is/was broken. And arguably disabled people of any kind are not broken, they are just differently abled. We should help disabled people by offering them accomodations. But like with the cochlear implant there's a lot more to it than what meets the eye. There's communities for example, and a long-term disability becomes intertwined with the very being of a person (at least in my experience with autism). So people not wanting the help are valid too. We should always consider the reason why we are helping, do we help for their sake or ours? Do we get mad if they don't want to take the help? Does it then not mean we're doing it for our own sake and not theirs? As long as we avoid that and help while listening to them very well it's very good to help yes and we should keep developing accomodations to do so! :)
@@Catsgirl32 I have bad knees, a spinal injury, and limited range of motion on my left arm. I'm left-handed. I've worked and lived with the disabled for most of my life on top of my neurodivergnce. Able-bodied I am not, and I would like all of that fixed. The 14-year old girl I was monitor for that lost her eyesight and got confined to a wheelchair would love to be able to paint and draw again. Yes, the term is fixed. No it isn't 'ableist', it's reality.
@@Catsgirl32 Accommodations are a temporary FIX. It helps those with issues such as disabilities, which are called disabilities because it negatively impacts a persons life (therefore means they are broken) and therefore FIXES those problems for a time. Would you say that someone born with half of their brain is perfectly healthy? Saying someone with a disability has something that needs to be fixed is entirely accurate because the majority of people with disabilities DON'T WANT THEIR DISABILITIES because they're limited by it in some form and actively ruin that person's quality of life.
@@astraamarante6233most chronic conditions can't be "fixed" or "cured"; they can only be managed. I probably wouldn't get rid of my autism; if only because it's always been a part of who I am. Sure, I would love to get rid of the inconvenient parts and be able to live a normal life. But I ultimately can't separate myself from it. In my experience, having Autism is quite different from dealing with chronic illness. I would sell my soul to have a functional body and not be mentally ill. Partially because I developed most of those issues later on. It's a lot easier to imagine life without something like joint pain or stomach problems.
This video got recommended to me by the algorithm at this moment in time for some reason. I'm leaving this comment in support for your work on this video and also to share my perspective on the concept presented here. I used to be paralyzed. Fully. Barely able to breathe on my own. It was hell day in, day out, week after week after week. I was given the option of continuing to be in hell and accept hell as normality, to slowly trick myself into thinking this was OK, or I could go for a treatment that's possible and mostly effective, thanks to humanity not living in the stone age anymore. It's been almost 10 years since then. I've participated in 2 half-marathons since then. Because of my experience, I personally find the concept of "Disabilities don't need a cure" to be abhorrent and their proponents more interested in leading their own insular communities, clutching onto a division that makes them feel special, rather than embracing the whole breath of society. They are no different than Alexander Graham Bell and his weird views on humanity.
As someone with glasses, I feel this. That said, I probably will never get LASIK nor use contacts, despite my glasses getting spoiled by the rain, because I can get around without glass and I'm happy keeping my cure minimally invasive. And I can see why someone might similarly not get a surgery to cure their disability because it is invasive, and they can get by without it.
Difference is you couldnt live a life (according to you) and was in pain. Most deaf, blind etc people arent. When they use prosthetics or implants they could be. Why then if they have a perfectly good quality of life would they gamble with a big pricey change that could improve their life in only 1%. Some do some dont. Would you tell a short person to get leg lenghtening surgery so they can reach too shelves by themselves wothout asking for help or using stools? I dont think so. All of us have some 'defects' we arent perfect.
Some "disabilities", like autism mentioned in the video are incurable. The only way to "cure" for it is Eugenics, which may ultimately end up screwing over society. I strongly suspect that autistic people are selected for because society needs people to be able to call neurotypical people on their bullshit, regardless of social consequences. Neurotypical people have a strong deference to social hierarchy. While this facilitates a larger group size: it also has the potential to lead to collapse if the people in charge surround themselves with "yes" people.
@@majakukulska7650 weird how you dismiss all who DO use it and to does this video. you all just want to special because you have nothing else in your life to BE special. this level of narcissism that permeates in race, sexuality and now disability. EVEN FATNESS. its disgustingly dividing. GET CURED
@@majakukulska7650 I can see where you're coming from, and I can see where the original commenter is coming from. Here's my two cents and why I sort of agree with them in a way. The general sentiment here might mostly be that it's more complicated than, "Disabilities don't need to be cured because there's nothing wrong with them and they make us who we are." With some disabilities that don't dramatically impact someone's ability to have a good quality of life, this may be true, but the bulk of the video and most of the comments here seem to ignore or even shame the other side of the spectrum: where a person is truly suffering because of their disability and wants to be able to live life without having to suffer anymore. Just as it can hurt to be told that you should fix your disability because it makes you defective, it can also hurt to constantly hear that you should just embrace it and all the pain it comes with, and that you shouldn't want to fix it for a better quality of life. That mindset falls right back into the "differently abled" argument that seems to be criticized yet simultaneously encouraged by the latter part of the disabled community quite a bit. It can be frustrating to hear constantly, as it's invalidating and puts our experiences through a sugary, rose-tinted glass. While deafness is the primary disability talked about in this video, it is largely being used to refer to disability as a whole. And with that, there are two sides of the coin here. Nobody should be shamed or told that they are morally inferior for wanting to wear implants, or get corrective surgeries, or take medications to let them have the experience of being as fully abled as possible. But that take is seemingly considered problematic here, even if just in the undertone. I'm also disabled with a few illnesses. There are days where I can't walk, can't speak properly, can't form memories, can't eat most foods that would allow me to have a balanced diet, experience heaps of pain, among other symptoms. Am I ashamed that I have to get around with crutches and wheelchairs or otherwise not leave my bed sometimes? No. Am I ashamed that I'm hard to understand verbally and have to find other ways to communicate sometimes? No. Am I ashamed that I can't eat everything that a normal person would be able to? No. Do I wish it were different? Yes. Would I give anything to be able to not have to live like this? Yes. And I'm not ashamed of that, either. And I don't want to be told that there's something wrong with me for thinking that, or that I just need to be proud of it and find self acceptance to live a good life. It's not a matter of not being proud of who I am, it's a matter of wanting a better quality of life. It doesn't have to be either/or. Both sides need to be respected as nothing more or less than the wishes of the individual who makes them. But it can sometimes feel like the pendulum of public opinion swings too far to one side or the other for the sake of acceptance and inclusivity, largely ignoring and even oppressing a huge demographic of people in the process of its sweeping generalizations. It's okay to not want to be disabled and get medical intervention, even if your disability is seen as a "community" more than a disability, like being deaf. There is nothing wrong with it and nothing more frustrating than having that agency constantly criticized and even taken away by those who don't take you seriously or put their morality over your health. Just as the points that this video makes need to be said, so does the point that this comment makes. We, as a society need to be able to recognize both sides as valid and a choice left for the individual, not the masses, to make. Otherwise, something that starts out as good intentioned can swiftly and sneakily become harmful once again. Sorry for the short essay here, but after reading some toxicity in the comments of this video that seem to be taking things in a far too generalized, politicized, black-and-white manner, I thought I'd just leave this here.
I was concerned about how to handle disability in the series I'm writing, because a critical plot point is a character seeking to change the effect to which he is crippled. I questioned whether that was okay, and concluded that this struggle is important to address head on. Where his family simply accepts a hereditary disease as fate, he risks his life to change his. Even though he gains some increased mobility, he continues to have his disability and the pain and complications resulting from that for the rest of his life. I felt this was most realistic. It turned out to be a personal story for me, because although I did not even realize at the time that I was autistic, I knew I was ADHD and I knew how it affected me. Disability, culture, and the neurodivergent conversation is very much needed. Thank you for this video.
I liked this scene with Hawkeye too. The system insists in speech for anyone with a disability that makes speech difficult. My son started learning ASL only for ASL to be denied him in the school setting because 'speech' is whats proper. He is autistic and struggles with pronunciation and speech in general. We often revert to bits and pieces of ASL even as we speak to each other. We shouldn't treat differences as things to be eliminated.
I really appreciate this video. I’d also like to mention that the less harmful rhetoric that we have regarding/surrounding Disability, the better it is for everyone because becoming disabled is one of the easiest things a person can become. And the more support that we have around disabilities the easier it’s gonna be for everyone.❤
Talking about misconceptions about disabilities. I ride a motorbike. A regular motorbike. So often, when somebody finds out I am disabled, and I ride, they question how it is I can ride I motorbike. I tell them, "I am disabled, not dead!" I then explain, that I can ride sometimes, not all the time, due to my disabilities. If they say, "But you don't look disabled?" I like to reply, "Yeah, sorry, I didn't put the uniform on today." I think what you said in your video essay, really sums it up well, about the difference between right, and misguided representation. Hopefully the right representation will better inform people about what it means to be a disabled person. I am not overly hopeful, but hopeful never the less.
As a young disabled person who is still discovering their disability and dealing with the world around me including my family being ablelist this meant so so much Thank you for posting this
At work I’ve worked with someone who is deaf but since I don’t know sign language I have to be sure they are reading my lips to know what I’m saying and they have a hard time speaking correctly but it’s enough I can figure out what they want. Heck sometimes I’ll use general gestures as part of the communication like gesturing drinking for drink or beverage related stuff. I don’t treat this as a lesser thing, more on the same level as communicating with someone who’s not a native speaker but is at least coming across enough to understand what they’re saying.
I sometimes daydream about how much of life would be easier/safer if accommodations were more baked into daily life. Like learning sign and spoken language side by side in school, or allowing fidgets or headphones.
The thing I don't understand about the disability conversation, specifically disabilities that limit physical capabilities, is when some sci-fi tech comes up to fix some disability, and it is rejected specifically on the grounds that people that have that disability are actually doing quite fine, and have created a culture that accounts for that disability. Perhaps fix is the wrong word, but I think "accounts for" would mean a ramp for the wheelchair instead of mechanical legs. Now I grant that this may come from not knowing anyone who is considered disabled, but part of my confusion comes from the fact that I technically have a disability: I'm near sighted, and can't read or make out faces of anything outside of arms reach. But I can and do fix it with glasses, as do all the other people I know who are similarly disabled. I don't know of anyone who sticks with being nearsighted, nor why they would if they can afford it. And yes, I can see why someone might not get something that fixes the disability if the fix is invasive, costly, or is a hassle to maintain. But saying that people with access to a fix that is none of those things wouldn't take advantage of it runs counter to the one example of a cheap, noninvasive, low maintenance fix to a disability we do have.
I mean yeah I think movies should focus more on actually showing how people work with their disability. Because I call getting glasses to work with your near sightedness and cover the weakness, just working with your disability. You fully accept you have it. You just make your life easier and safer by wearing the glasses. It's the same way I work around issues related to my autism. I have a different learning curve for housechores. It's literally training. I do it cause I can't always rely on my mom or aid outside of the family. That stuff's too expensive. I got some crazy work arounds to problems I face. Like with cooking. I will usually focus on one pan meals. xD
Especially in action, a major impactful disability can really trap the writer in a lot of situations. Take Toph from avatar, who's beloved mind you, we can make a huge compilation of things she shouldn't be able to "see". Often times this becomes such an issue that they just ended up getting workarounds to their disabilities, like daredevil's super color touch that negates pretty much his only real disability of not being able to read. Imagine having a one armed character, you have to remember they can't open jars or you have to let them open jars in a super unrealistic way with a sword or whatever. Makes sense that most people are afraid to use disabled characters.
Huh. I would’ve thought not being able to read would be a pretty easy thing for the writers to work around? I just finished reading the Cassandra Cain Batgirl run, and she’s severely dyslexic for the entire 70 issue series. It’s a plot point occasionally, and she often visits other heroes to get them to read her things. Pretty sure Daredevil works a lot more solo, but surely it wouldn’t be that hard for them to let him not read?
@@thatonepossum5766I've seen writers do stupid stuff with Cass when she appears in other titles. I think her Batgirl run was the most consistent in considering her canon language abilities. I love her but she's only been learning English for a few years. So many writers do not know what that actually means in terms of vocabulary, sentence complexity, and use of idioms. Robin 149 (1993 run) says Bruce taught her Navajo. Because obviously someone learning their first language as an older teen due to magical influence is going to pick up a second language with limited opportunity for immersion or practise. My eyes rolled so hard they almost fell out of my head.
@@tomorrow4eva yeah, I’ve been learning the… less well-written appearances of Cass since writing that comment. And discovering just how annoyingly common it is to fully erase her dyslexia (I’ve seen more than one “bookworm” Cass? Like, doesn’t struggle at all?). The main Batgirl run does still demonstrate what I meant though. 😅 I’m super new to superhero comics (basically only read the Cassandra Cain stuff), so I’m kind of playing catch-up on the information. Almost seems like the newer the iteration the less disabled Cass is. Except in Wayne Family Adventures, which handles her so perfectly that it sent me down the rabbit hole of reading the rest of the stuff she’s in. Except the evil arc. I will not be reading the evil arc.
"You shouldn't have to live up to expectations that were designed without you in mind," not me tearing up over this. It's so hard and I try my hardest but often times that makes me worse. I always feel bad saying no when someone needs my help because I do so little compared to abled people and I end up making myself worse. I just wanna nap without feeling bad, it's not my fault I need to nap.
as someone who's been forcing myself to function like a normal person (not deaf, just... it's hard to walk, bend over, lift, etc. on top of adhd i can't afford the medication for) I really needed to hear this. It's okay to need accommodation. I shouldn't be trying to cure something that can't be cured. I shouldn't be ashamed of needing a cane, of needing someone else to pick up whatever I dropped, or of being unable to work the 9-5 5 days a week. Thank you.
My favourite movie portraying disability has to be forest Gump not only because of his journey but also because Lieutenant Dans despised being disabled and thought death would have been a better choice but in the end finds a way to enjoy life anyway through Forest
I plan on teaching my children sign language even if there hearing is fine. There only seems to be benefits to doing so as it encourages both lanuage and motor skills, and will even be good thing for when they interact with the deaf community. Also if they end up being on the Autistic spectrum like me it gives them a way to communicate in any non-verbal moments.
I am so glad the RUclips distribution system led me to your content. I am a hobby writer with a character who is injured as a toddler and loses part of one leg. I wasn't sure how the culture of their world, set a 1000 years from now, would view their situation. Now I do. A society is not advanced merely by technology if it does not also mature socially.
A disability is having less ability, so whith full respect to the vulture of deaf people, I think if a person is getting hard pf hearing but technology can assist in their help, i disagree with the idea that the technology is holding them back in some way. The tech is literally preventing them from losing a useful ability, something that not all people with disability can have but is a great help the ones that do. Thats said, it is always a choice someone has to make for themselves.
Imagine being in a cave, trapped underground. No light. Over the next 3 days, your eyes have greatly adjusted to the darkness. And then suddenly, without warning, a portion of the cave collapses and your eyes, that have adjusted to so much darkness, get blasted with pure sunlight. The pain of the sudden exposure, the blinding light, the way you'd immediately cover your eyes and recoil into the darkness to protect your eyes from that burning feeling. Now imagine not hearing anything for YEARS, so used to pure silence... and one day, suddenly you can hear everything. A whole host of new sounds you've never heard before such as car horns, tires screeching, people yelling, machines beeping. It can more often than not be overwhelming and no-one likes risking being overwhelmed. And then there's the cost. Not everyone wants to be put in severe debt for something they can AND HAVE lived without for years.
There is a bit of disconnected within disabled communities on "how disabled are you" if you heard then went deaf or are partially deaf then you can be discriminated against because you arent fully deaf or if you have friends who arent deaf, just like any group there are sadly these people too
After my studies in Deaf History while learning ASL, I really liked what your video had to say about different media's presentation on deaf culture and audism. Thank you for warning on that House episode, the messages in those clips look awful. I also didn't know of some those darker quotes from Alexander Graham Bell.
To be fair to the House episode, House and Foreman are both a*holes who are used to display the wrong opinions of society in almost every episode. They are not the voice of the author. Note how House playing God repeatedly results in significant harm to the patient (as you can SEE in the clips she showed!), and the only reason he gets away with it is because the patients are already desperate for any help and by the end of the episode he figures out the "real problem". I can't recall whether the mother here is portrayed as right, but I do believe there was a border implication about what role do adults have in making medical decisions for teens. The show does not often provide a prescriptive answer as much as a broad discussion. I think the essayist does not understand this about the show.
ASL has been recognized as a language officially since 1960, but even back during the 1800s Abe Lincoln recognized it as a language. ASL uses the same part of the brain as spoken language and has grammar, syntax and tone. As well as different dialects and regional differences just like spoken language because I is a language! (Love this look at disability in media as a part of the Deaf community I think we need more representation like this)
I've had hearing issues my whole life and I will most likely need hearing aids within the next decade. I was so happy that Hawkeye represented the hard of hearing community. It was wonderful seeing that part of my identity represented and validated.
So happy you made this video. I always try to explain this to people and they just don’t get it. My dad wanted to be in the Air Force and he couldn’t because he is deaf. I was telling this to a military recruiter and he said “oh I bet he got some nice hearing aids, eh?” And that was really the straw the camels back. Love the video but also there are some other downsides to cochlear implants that I’d like to bring up. 1-older versions rust over time and are very expensive and painful to remove. 2-they create a very fragile part on one whole side of your head. My dad was second person in his state to get a cochlear inplant and went to school with the first one. One day, according to my dad, in gym he got hit right where his cochlear implant was and died. So yeah not the best Anyway, thank you for making this video
If you’ve never seen it, Mr. Holland’s Opus is a wonderful movie dealing with a music teacher whose son is born deaf. It shows his struggle to connect with his son, and how they both find their connection through music. It’s beautiful!
I love how Hawkeye showed the deaf community and learning to live with hearing loss. I also love CODA and I’m really happy you’ve used clips from it in this movie. (Personal context - my brother is deaf and my family and I have taken several different Auslan courses) Also I recommend looking at Eileen from Supernatural, she is a deaf character played by a deaf woman, and she’s never treated any differently than you would treat a ‘normal’ person (obv with adjustments) and instead of ignoring her disability, Sam tries to communicate with her through ASL, and learns more throughout the show. I think it was only once it was used as a ‘superpower’ but it was mostly just in the case of lip reading (which was not accurate at all 😂)
I’m neurodivergent/mentally disabled (I don’t care for what people call me) and this video was super helpful in exposing me to more of the deaf culture. I try and understand other perspectives as much as I can so I can get a better grasp on how to effectively communicate with people of those perspectives. It’s hard because often I can’t relate to those people which is the best way to understand perspectives but knowing what and how they feel is a good second option. Thank you for helping me do so.
I took ASL in college and, in doing so, learned about the cochlear implant controversy within the community. Your video helped me understand it a bit more, but I still don't think I'll ever fully understand that position, but I don't have to fully understand it to accept that they have a better perspective than I do on the matter.
The big issue with some of the deaf community is pride. It is objectively better to hear than to be deaf as was meant to be. It's one of the 5 fucking senses. It's needed. Not being able to hear is a DISABILITY. There are ways to work around it. Sign language. There's calm and peacefulness to it. And there are drawbacks to hearing after already living deaf. But that doesn't mean that being born deaf in the first place wasn't unfortunate. It's unfortunate because now they either have to be deaf or get help that allows them to hear only for it to be very uncomfortable, difficult or harmful. Situations you'd never deal with if you were born hearing to begin with. Your voice is also natural, where sign language can actually lead to wearing out your joints and if that happens to limit your ability to sign, then you're screwed. Struggling with hearing after already being deaf is only due to being born deaf to begin with. Similarly, a deaf person WOULDN'T be happier deaf if they were actually born hearing and then LOST it. They'd struggle because it's not what they were born with. Being deaf, you don't have to be defenseless or helpless or treated like lesser as a person. So I can understand where the pride comes from. Of course the community is going to encourage themselves and each other to not wallow in pity and instead embrace it. That's fine. But when the pride comes to a point where they want to claim that deafness is just overall superior and become prejudice to all hearing people just because some people are jerks (as if they don't also live in this world and see that there are jerks in every category for any subject matter), then it's delusional. If someone doesn't want the hearing aid because they get along better with what they're used to, then so be it. It's their choice. If someone wants hearing aids, stop trying to tell them they don't need it. It's their choice. They'll decide if they like it or not.
As an adult with ADHD who got diagnosed as a teenager and does not like taking medication, this really spoke to me. I know there are some people with ADHD who swear by medication and feel they need it to function and that is their choice, but for me, the side-effects were so much worse than how they helped me, I would still constantly forget to take them, and keeping up with filling prescriptions was stressful, so I stopped. I do struggle a lot in my day-to-day life because I choose to remain unmedicated, but I still prefer it this way. It’s frustrating when other people with ADHD try to shame me for it or claim I don’t really have it because I don’t want to be medicated. Yeah, sure, maybe it would make some things easier, but it made a lot of other things harder, and I also felt it changed the way I interacted with the world in a way that was off-putting. On the flip side, you have people now claiming people who take stimulants are addicts and they should be able to function fully without medication and it’s their fault if they can’t because “ADHD isn’t real.” It’s become a big problem in some countries and could become bigger with time.
I taught in Spain and made friends with their version of a special Ed teacher. Apparently, there's the belief that teaching sign language so young would inhibit any verbal language skills the child has. luckily the teacher didn't agree, and during break taught Spanish sign language. Which as someone who knows a little ASL and decent Spanish, was flipping weird! There's a channel about a little boy named cooper who got cochlear implants. His mom talks about this controversy. They still sign, like if he's in the bath, or she's changing the batteries, or he just needs a hearing break. Very interesting and funny. Hes a cute kid
But we’ve known sign doesn’t inhibit verbal language for like 2 decades! My mom did “baby sign” with me when I was (duh) a baby. The goal? Get me communicating and talking at an earlier age. The result? I was communicating and eventually talking at a young enough age that people would stop just to talk to me, because it was a novelty to communicate clearly with someone that young. (Note: I am not deaf)
I've been physically disabled my entire life, although it was one that started mild and increased as I aged. I've never had an issue with how disability is portrayed in movies/on tv. Nor have I ever wondered why there weren't more disabled people in media. I do have issues with non disabled people being disability activist, on either side of the line. I always had issues with people acting like I was less than because I was disabled. I never wanted special treatment and did everything I could not to draw attention. I always feared my disability would worsen and I'd end up in a wheelchair. If there had been a medical way to help I'd have jumped on it. When I finally got my leg braces I was ecstatic... I could walk without fear again. I never had kids, because I don't want to pass on my disability(a genetic condition)...
I suffer from incredible ankle pains. While I can walk sorta fine (with a limp), climbing stairs is excruciatingly painful to me. Ramps and elevators help me even tho I'm not on a wheelchair.
As someone who has been visually impaired and autistic since birth, I 100% agree! I want to point out something related: how much of a disability is medical vs social (biological vs built environment) I have been vehemently supporting more non car oriented designs in the US with transit friendly intercity trains/buses. I have a huge horse in that race, as my disability cannot be debated as being a real issue in that regard. Additionally, as I am immediately given more freedom to travel independently without anxiety. If I were to have my vision fixed one day, that horse goes away and my message would hold far less water. When you think about it, there’s a reason you don’t hear as much about blindness as a disability in other parts of the world outside of the United States or under developed countries, as in a lot of places it’s not as big of a deal.
Not entirely sure they are any more enforceable than a "please don't sue" clause. Are they going to pull a twitter and sue you for not replacing the implant when it breaks?
I was diagnosed with Tourette’s at 16 but have had painful tics since I was about 4 years old. I’ve always had anxiety about being out in public because people stare at me when I tic (both verbally and physically), especially since they are both loud and violent. I consider myself incredibly lucky that only 1 person ever made fun of them while I was in school and I never really liked that kid to begin with so I could easily ignore him, but being out in public (especially in restaurants and places like that) make me so anxious that I tic more and then it becomes a cycle. I have had several panic attacks when out with just family, even in a private room, because people stare. All I could ever hope for is for people to just not stare at me when I move or make a sound (I’ve never said a full word as a tic. It’s only ever been sounds that actually borders on sounding impossible for a human to make). I was called a pterodactyl for the last couple years of school and, while I can laugh it off sometimes, it still hurts. People are still people, no matter their age, gender, race, sexual orientation, or disability (or lack there of) so treat them with respect. Everyone deserves basic human decency until (unless) they prove that they don’t through their actions towards others. People are people so treat them like people. Apologies for this kind of off topic rant, I can’t speak these words aloud without a mental breakdown so this is kind of my only outlet.
I watched a show a couple months ago and it was one of the first times I’d seen wheelchair users as background characters and nobody in the show mentioned it or anything and then when Percy Jackson came out they added a camper who was in a wheelchair (which wasn’t in the books) and as a wheelchair user myself this made me really happy that people like me are being put in more movies (even if it’s only as background characters)
Fantastic video. I'm in a class about Disability studies right now and this stuff is exactly what we're learning about. The social model of disability, intersectionality, etc.
![What Hawkeye gets right about Deafness [CC]](http://i.ytimg.com/vi/LPNIxPagHEA/mqdefault.jpg)
![What Hawkeye gets right about Deafness [CC]](/img/tr.png)
In the architecture world there is something we call "the curb cut effect", where stuff made to help people with some sort of disability ends up helping everyone, like curb cuts being useful for moms with strollers, bikers, the elderly, blind people, etc
In the disability work, we call stuff like this "prioritizing accessibility over accommodation." No design is capable of meeting the needs of every single person, but instilling accessibility into the initial design lets you meet a wider range of needs from the get-go. :)
@@FoxMoon89 This holds true on Software Engineering as well, specially front-end development which is my area of expertise. If you adhere to some accessibility guidelines you automatically write better code, better performant code, code that is easier to write automated tests for, code that is more easily indexable by search engines, and many more benefits, including making some stuff (like dealing with dates and timezones for instance) easier to deal with. It's beautiful.
@@FoxMoon89 The focus on accommodation, to the detriment of accessibility, is often the bane of my existence. Thus far I can manage without a wheelchair or a mobility scooter - though I think the clock is ticking on that - but my mobility impairment makes it so painful the moment I am on my feet, that fatigue sets in immediately. 30 seconds on my feet feels like I've been walking for hours. So, when the "accessible" parking space is the furthest one away from the doors, because that was the easiest place to cut the curb, it makes things challenging for me. But to complain about that implies I don't think that making a location accessible for wheelchair users should be a higher priority than making it accessible for someone in my position. Obviously, I don't. I just wish they could consider finding a way to make places more accessible for those people 'on-wheels' as it were, without making it less accessible for those of us with canes, walkers, crutches, etc.
Similar to what I've been dealing with at my local medical center, where all registration is now handled at the front desk - a stand-up desk. And when I complain about them getting rid of the labs registration desk, where I could sit while checking in (and while waiting in line), I get asked if I want a wheelchair - and they don't even have self-propelled chairs at the front door, just ones that require a staff member to push you everywhere you need to go. That's not being "accessible," it's being "accommodating" in ways which I personally find pretty friggin' patronizing. I won't pretend to understand the experience of people who are more dependent upon wheeled conveyance that way, but the notion that what tools an individual relies on needs to be their choice, is already a lived experience I'm working with.
I'm dyspraxic and I hate stairs. So, they help me too.
It even helps my dog! Shes very small and at risk of spinal issues (IVDD) and is not supposed to jump, so steps are not great for her. But with curb cuts and ramps we can avoid her having to jump so much and hopefully keep her spine healthy! 😊
Once I went to a Deaf church with a friend who works as an interpreter. There was so much conversation with NO NOISE. With sign language, people could converse from across the auditorium, converse thru glass windows, and cross-talk in ways that would have been a cacophony if they had been speaking vocally. Having that experience for the first time was, frankly, euphoric for me as a hearing person who happens to be sensitive to noise.
Yeah. That's one highlight...
But think about things, that deaf people will not experience in full. All that music, all that sound. Birds singing, wind rustling leaves, water running.
All this world of "noises" and all that "cacophony" of sound.
@@Theeight8byes, and? the comment was about how using sign language could be beneficial to hearing people as well
Closed captioning is incredibly nice. I don't always use it, but sometimes the TV is just too hard to hear for whatever reason.
@@Theeight8b You can't miss what you don't know. Do not look down on their quality of life because it's different from yours. Yes, deafness is a disability, but being Deaf is a beautiful thing and wouldn't exist if no one "missed out" on sound
There was a woman that went to my church she was good friends with my grandma and I asked my grandma one day cuz I saw the woman and she was moving around weird and she said she's doing sign language she used to be a sign language interpreter my grandmother introduced me to her and she taught me a couple things in sign language but yeah she was a nice lady.
The thing I love about Hawkeye having hearing aids and being HoH is the story of why it's that way - a little boy who had bright blue hearing aids and didn't like wearing them was a massive Hawkeye fan, his parents wrote to the writers of the comic and they made Hawkeye HoH specifically to help the little boy learn to love his hearing aids
That is the most wholesome thing ever!
Nnnnno, they made an original hero (Blue Ear) for him. That was about 10 years ago, and Hawkeye has canonically had hearing loss since about 30 years ago. The people who made Blue Ear for him did also make artwork of the kid himself as Blue Ear teaming up with Hawkeye, though!
@@zapheil I didn't think my heart could melt more tbh!!!🥰😍💕
"Where does the suffering come from? If it's society, we should fix that" PREACH
Should be so simple, but alas...
Le crossover.
Society and made for minorites
Oh yes, what's easier: getting hearing aid or changing the entirety of mankind. Man, you ppl don't really think, do ya?
@@RedDragonLVSSRS you don't have friends
No one should be shamed for wanting to stay the way they are and no one should be shamed for wanting to change
@@timosteinsteiger7289 That is assuming those pieces of infrastructure are not useful for the common person.
Ramps are useful for moms with a stroller, people with bikes, the elderly etc. too.
Street lights with auditory signals generally just helps everyone, considering it stops people wasting time standing at a green light, etc.
These pieces of infrastructure cost very little for significantly improving accessability and the quality of life of everyone.
@@timosteinsteiger7289 Also consider cost and accessibility. That's one of the major reasons I don't find it unbelievable for disability to exist in, for example, advanced sci-fi settings. You can have as advanced technology as you want, but you'd need a perfect utopia for everyone to reasonably access it. I mean, we have neural interfacing cybernetic limbs, but many people still can't get something as simple as glasses. Even if they technically have the money for the "fix", there are other things to spend money on (e.g. food, rent, entertainment/luxuries) instead. If the person is okay with how they are, what incentive do they have to spend their money on a "fix" they don't want when they could spend it instead on other things they want or actually need? And why should they be expected to?
@@timosteinsteiger7289that is assuming everything can be fixed which I don’t believe depending on the type of disability or injury that caused it treatment might not work for everyone. We will become better and much will be able get fixed or mitigated but we are no gods and never will be it’s impossible to fix everything unless we can do brain transplants and just use a new body so if we stop making accessible infrastructure there will always be some we discriminate against
Exactly!!
@@timosteinsteiger7289 So that's eugenics. That is literally eugenics. Please do some research.
"Noone should have to feel like a failure just because they can't live up to expectations that were designed without them in mind." Somehow, this feels lifechanging to hear. This has been characterizing my life and I just really needed to hear that.
The video is amazingly well-written. Thank you.
I love that! Thank you for sharing such wisdom and those words. Speaking truth of truths here ✊️
I'm deaf in my left ear but I am not a part of the Deaf community.
I injured my shoulder in a fall under the effects of sleep meds. I wasn’t able to lift my arm behind my back or over my shoulder… now I can get my arm half way up my back and a.ll the range around my shoulder. Which is amazing… full upper rotation movement after an injury is amazing!
PT is incredible.
I just wanted to say that deaf doesn't mean cannot hear at all. That is actually called profoundly deaf. Some people like to identify specifically as hard of hearing, but largely they are also considered deaf. Deaf means that you have lost part of your hearing. My brother only lost hearing in one ear, but he is still as deaf as my cousins, whom have lower percentages of hearing in both ears.
Thank you for pointing this out!
My dad is very hard of hearing in one ear, and I've never even really thought about how much it actually effects him. I can't think of many times where I've noticed him having issues.
Youll see deaf people call complete deafness as capital D deaf too
Fairly obvious. Same with "blind". but unless that situation comes up, when someone just says "deaf" they usually mean total or almost total loss of hearing unless context specifies otherwise. There's no need to get into specifics everytime.
It would be especially useful in military scenarios or private conversations. Communication without sound or electronics would be OP. We would need to have a universal sign language taught though, since there are many different types.
I really didn't knew hearing implants were so complicated like that. Also I agree here, why SHOULDN'T a child learn both Sign and Verbal language? why not? The way I see it, the more languages, the more ways to communicate, the better.
As a Deaf Educator and Itinerant teacher, I was cast aside or asked to leave my job because I thought the child should have both languages (ASL/Eng). But they simply shrugged their shoulders and said "She can learn later". Whatever that meant...
@@joshsherk1402 By later, they probably meant "never".
I have a friend with CI, and I must say, it’s much easier for both of us to communicate with ASL.
@@joshsherk1402 Best to ask others if they are deaf or not, if they are not deaf, then they must keep quiet
Honestly I'd love to learn, but the biggest thing that holds me back is how divided sign language is. When speaking/writing, a British, Australian and American can communicate without issues. Unfortunately, each is effectively a different language in sign language.
It's always seemed messed up to me that such an isolating disability is further segregated that way. We had a chance to create a unified language even across conventual languages, and threw it away.
What's funny about sign language is that it uses the same section of the brain as verbal language.
language is language!
Because it's language.
i mean it's communication im sure vocalasation registers differentaly
i'm willing to bet you do the same with code when programming
It's a language. Of course it does
There are studies that show teaching hearing babies sign language actually helps them pick up verbal language better and quicker. Plus it might be easier for a distressed child to sign instead of speak if overwhelmed.
Also helps is the surroundings are really loud
Sign language also helps mute folk and in many cases non-cerbal patients of autism.
Sounds like the propaedeutic effect that is also well documented when learning Esperanto.
I would probably say that children are already taught too many things that are hardly relevant, with the result that they remember barely any of them.
But personally, I think plenty of educational content in schooling systems would lose against the usefulness of leaning sign language in a direct comparison.
@@Pikeya it's definitely easier to move your hands than speak when you're crying really hard
Yes! It’s sometimes used for autistic children who are struggling to pick up verbal communication. There’s a great article by Ralph Moller published in Jan 2024 that explains the many benefits of teaching autistic kids sign language, highly recommend
Man, that kid on the ‘House’ episode looked like a teenager. Teenagers aren’t geniuses, but they sure as heck can decide if they don’t want a machine stuck in their brains. The idea of a parent making that decision for an older kid who can clearly express that they don’t want that is _horrifying_ .
And is having litteral bleeding as a result, **WTF**
It's not that atypical, unfortunately, either. My older child went through a pain rehabilitation experience as a teen (but of majority, of her own free will), and there were kids that tried to escape when we were there.
House is constantly a jerk to his patients, stop defending that portrail
Also, they wrote the story, if they made a character that had a more exploitable argument, then it's their falta to write a straw man
@@yurineri2227 I think you may have accidentally responded to the wrong comment, as mine is not defending House at all. In fact, it’s calling attention to how horrifying one of the plotlines of an episode is.
@@thatonepossum5766 sorry dude my bad, I misunderstood your comment at first reading it, I apologize
I really loved Hawkeye as a person who is also somewhat newly hearing impaired. I especially loved the conversation between Clint and Maya about being "hard of hearing" vs "Deaf." I am less impaired than the character Clint, but I very proactively tell people that I am deaf, and I really appreciated how these distinctions were shown in the series. I'm often told that I should get hearing aids, and even though this comment almost always comes from a place of love it also usually makes me angry.
I also found the interactions between Clint and Kate to be very relatable and funny in a way that most people probably didn't. In most of my conversations (especially at work where there is a lot of background noise) I have to do a significant amount of guessing to figure out what the other person is saying. I'm not always right...
To deaf people , hearing impairment is an offensive word because the medical authorities decided on that word without consulting deaf or hard of hearing people.
Sorry to reply in an old comment, is it okay to ask why hearing aids make you angry? Genuinely curious. My guess is it's either expensive & has to change frequently, difficult to do maintenance, or just not work on all issues.
@@onebear6504 I feel like this guy just wants to feel special for an inherently defective trait, they're disabilities for a reason, they don't make you more human, they detract from the fullness of what the human experience is, and it's sad to see the coping mechanisms of some people of wanting to feel this "pride" about who they are, yet this just isn't who they are, and has nothing to do with who they are, you can live a dignified life as a human being while also acknowledging your birth didn't go as intended, it's just life, don't glorify it as if it's something that should be praised because it isn't.
@@anthony64632 While I get the dislike of patholizing the condition, hearing impairment is an accurate term. Is there some other term that's less offensive while still being accurate?
@lilowhitney8614 unfortunately medical authority made this decision to use hearing impairment without consulting the deaf community, hard of hearing community.
Oh gods, I needed to watch this.
I'm a 55 year-old guy who has finally realised the probability of my being ADHD/autistic. Up til now - well, a few years ago when everything just collapsed - I'd managed to pass myself off as 'normal', with a bunch of 'quirks' that were assumed by everybody (me included) to be "that's just the way he is." I'm now finally on a waiting list to be officially tested and diagnosed, and still it's difficult for people to adjust their mindsets and grasp what this new information means to me. Even my GP got the wrong end of the stick when she told me that there is no cure for it. I know that, and I don't want one. I just want some help to live with it in a new kind of normal.
You aren't being ADHD you HAVE ADHD. I am a person with autism. I am NOT being autistic. And I have ADD I am not ADD. We are NOT our diagnosis.
@killuanatsume The mistake you're making here is taking your preference and thinking that others have to express their identities the same way you've chosen for yourself. Yeah, I get that ableds tend to choose labels ~for~ us that make ~them~ less uncomfortable, rather than what we would choose for ourselves and that ableism sucks, but ~neither~ do we get to tell someone else how to identify.
I am physically disabled, a proud wheelchair user and also have various other conditions such as ADHD. My being disabled is a large part of ~my~ identity. Most things in my life are defined by it. My identity is not a negative thing. It is my physical/mental reality and accepting the things that I need to, help me to not waste what little energy I have trying to be something that I am not (or finding fault with it) and instead find ways to be who I want. We all have personal autonomy and we all get to identify as we choose, which can change in any given moment.
My identity does not negate yours and yours does not negate the person you are responding to in this thread. You have no knowledge of where people are in their lives and often forming our identities and coming to terms with them is an on-going process. It sounds as though you had a knee jerk reaction based on your own experiences. We're not a monolith. I think your message could have been gentler, with less of an implication that how he was choosing to express himself was wrong. Chit can be clunky sometimes. Peace.
Me no word very good - I think I was trying to say that my whole life has been one of trying to conform to other peoples' ideals, and thinking that I was broken because I couldn't keep up the pretence any longer.
Nothing is black and white, and I know that broad generalisations are never really a good thing. It was simply a case of the video hit home at that particular moment. I mean, if I watch it now, it'd probably have a totally different effect.... It doesn't help when subtleties are often lost on me and end up flying over my head.
@@SpikeMatthews I personally did not see a problem with how you expressed yourself.
@@killuanatsumeI prefer to think of myself as autistic, and I'm definitely not the only one.
as someone who has a disability and has been actively told just to not have it infront of someone? that kind of thing does hurt and i like having disability representation and acceptance like this even if its not the same stuff i have most the time
i personally would be HAPPY to get rid of my disability but accepting that it probably wont ever happen and having other people being accepting aswell can help a lot and if other people dont want to get rid of a disability it really shouldnt be forced just like whats said in this video
How culturally illiterate does someone have to be to say "Y'know, just... don't have that thing that's messing up your life."
"Oh yeah! You know what? I NEVER THOUGHT ABOUT THAT."
@@astraamarante6233 youd think its common sense but some people dont aperantally 😭
@@Just_a_rabbit24Ironically. Common sense actually isn't so common. 😅
@@thelovelyredbones6364 sadly 😭💀
What I hate the most is when people say "oh this character is an awesome empowering disabled rep!" and then show me a character who's an amputee with a cybernetic prostethic that makes them even stronger than average human. The robo arm/leg is ofcorse 100% functioning like an organic limb making them just "look edgier and cooler". So I'm just annoyed with using disability as an aesthetic choice.
I feel like you'd love Fullmetal Alchemist then, one of the main characters is a double amputee and while there are some fantastical features to his prosthetics, they aren't treated as cures. There is a big focus on maintaining his prosthetics, and his mechanic actually gets mad at him because he treats them like super limbs when they aren't so he keeps breaking them.
To be fair - most of the time stories themself don't treat this kind of characters as disabled. They have "What makes a human?" themes (Cyborg from DC, or characters from various cyberpunk media), or they are about corporation treating living person as a tool or a weapon (Robocop, Deus Ex, cyberpunk stuff again) or both.
I fell like media like that is what being ‘differently abled’ kinda comes from, you aren’t disabled by your disability silly, it gives you superpowers from prosthetics that aren’t real or echolocation from fake chemicals or super intelligence from autism somehow
@@andyglobe8179 Latest Ratchet and Clank fell sooooo flat on its face trying to have some disability rep that it became ableist like all hell with not only a character who built HERSELF a cool robo arm after loosing one (she's right handed and made herself a right hand) but also making the other "disabled" character the robot that gets fixed at the end while during the story they tried to push the message with him that "no you're not broken! No matter what!"... only to fix him in the end... not to mention they compared the two disabilities where one had a fully functional super strong mechanical arm and the other lost the ablity to walk... It's 2024 and we still make stuff like that...
I have a cybernetic amputee, but I never treat it as a disability or compare it to one. It's more a connection to their past. How they got the limb is important. It doesn't make them stronger. It does come with some limitations and some tech features, but for multiple reasons, losing their arm was never really a major moment of difficulty for them.
Extra:
They are actually probably literally differently abled, in that they are a separate species to humans and have sense and abilities they do not, but also cannot do some things humans do, and have difficulty comprehending them sometimes. Actually, they have trouble with verbal languages! And written languages. Some of it is based on my own difficulties with language, despite being fully hearing.
I think Daredevil does a really good job showing the issues of hypersensitivity. Like, he has to learn to process even more information and it's brutal for him. As someone with a sensory processing issues, it was great to see that covered
Honestly, that's... a great way of putting it. Now that you mention it, I seem to be in a similar boat myself. Autistic, mildly deaf, and bordering on legally blind, yet I have allodynia (and the misfortune of it being paired with hyperalgesia) and my sense of smell is unusually powerful.
Honestly, I'm kind of a mishmash of medical anomalies and unfortunate combinations.
Also, his hypersensitivity to sound is both strength AND weakness. Bullseye throws him off by using very loud noise, which floods & overwhelms him
They have to sign contracts to not teach sign language? Oh my god that is SO predatory. They're basically signing them to a forced prescription.
In my opinion everyone should learn sign language, not just hearing impaired people, EVERYONE. It should be a required subject in schools.
It's honestly disgusting. Monitizing disabilities should be illegal.
No. Not my problem. Not my responsibility.
@@albnoel It's 15% of the population. A percentage you might join as you get older.
We teach English to speak to a majority of the population.
"Responsibility". As if they're a wounded dog that needs to be taken care of. Hearing impaired people aren't an "Other".
They're your nan and pop, as well as a kid down the street with hearing aids.
@@albnoel
One day, it might be
What if you go deaf tomorrow?
What if your child is born deaf
What if your parents or siblings go deaf
What if you meet someone, and they’re your best friend
And they’re deaf
Wouldn’t it be nice to already be able to speak to them
Or to communicate in general?
I mean
Sure it’s not mandatory to know sign language
But considering it can happen to ANYONE at any time
Shouldn’t it at least be mandatory in school?
Taking Spanish was mandatory in my school
And that’s awesome and all
But we had three Spanish students
And they already spoke English
And ya
It’s helpful when you meet someone who only speaks Spanish
But a Spanish person can learn English
Just like someone who speaks English can learn Spanish
You should totally learn Spanish
It’s a cool language
But it being required made no sense
Because a Spanish speaker
Can learn to communicate in English
Just like I can learn to speak Spanish
Someone who uses sign language
Cannot learn English
No matter how hard they try
They’ll never be able to magically understand words they cannot hear
At most they can read lips
But that’s not a very exact way to understand people
It should be mandatory to learn sign language
Even if you never use it
In my preschool, we teach the kids basic sign language
“Love you”
“Help”
“My name is”
“All done”
“More”
“Please”
“Thank you”
The basic stuff you need to communicate immediate needs
We also teach them all the ABCs
So they can spell out what they need
@@albnoel L mindset, get out there and be a better person.
Thank you so much for this!! Disability in the media always seems to need something done to it. It either needs fixing or to be twisted into an advantage and if you can’t make the most of your disability then you’re not trying hard enough. While I definitely can’t speak on deafness, the story of the Bell family is…a lot. I’m autistic and so is my mum and while she recognised that in me as a kid, she didn’t tell me or anyone else, stopped me stimming etc. She decided I should learn to mask to appear normal like she had to do, and while I used to resent that a lot, now that I’m older it makes me so upset that she thought that was the only option. I also didn’t know she was autistic because she tried so hard to blend in. The only image I had of autism from the media was either the child savant or kid having a screaming meltdown so naturally I never made the link. Representation is so important!
It's sad just how many of us can probably relate to that story. Feeling forced to mask is so destructive! I hope you and your mom have felt more free in recent years.
Thank you so much for such a lovely comment, I'm glad this resonated with you 💜
Every story about disabled characters seems to revolve around either a)Becoming tragically disabled, b)heroically overcoming disability, or c) tragically dying for the sake of non-disabled people, with overtones of "they were too pure for this sinful earth". There's so little about disabled characters just being disabled and having normal stories like everyone else. It's so ingrained that people often just assume that if a disabled character appears, people often react with surprise or even anger if the character isn't cured, inspirationally overcame the disability, or dead at the end.
Solidarity! I found out at 40 that I have ADHD, after my firstborn was evaluated for same, and at 53 my neuropsychologist confirmed that I am also autistic. My parents were both medical doctors and researchers. My mother was almost certainly autistic (and in full denial about it) and my father self-diagnosed with Seasonal Affective Disorder, and he was likely also some other kind of neurodivergent, maybe AutDHD (but in full denial). They never mentioned even the SAD in front of us children.
After I came home from kindergarten, my first or second week there, and asked my mother why one of the teachers had so angrily insisted that a boy look her in the eye, my mother started to secretly and intensively train me in how to convincingly fake eye contact. She said that eye contact was "something unimportant that some people were too insistent on," and that it was "easy to fake - she had always done it."
Her training repeated often until I was 12 or 13 and for the first time asked *why* I needed this training. She didn't answer and never brought the subject up again.
My father yelled at me, threatened me with severe health problems and finally, when I was 9 or 10 beat me to stop me toe walking. There were plenty of other things that they criticized me for, too, which could be summarized as "Why can't you just be normal, like other girls?!" (I am agender and was a tomboy growing up, before I knew a word for my identity or that there are others like me)
Thankfully, I had one grandmother who loved me unconditionally, so I never really deeply felt that *I* was wrong, but the experience of "Could I please find someone else, too, to accept me!" was very lonely, at times desperate. In my teens I finally found a group of fellow misfit geeks, and things started to slowly improve.
Today both my children (now in their 20s) have neurodivergent diagnoses and I am married to an introvert fellow engineer. My five other closest friends are also all various kinds of neurodivergent. It took a long time but life is good now. I even have a dog, which I had wanted since I was five and finally got a few years before turning 60.
People who don't want disabled (or queer, or otherwise different) kids should not have kids at all.
@robokill387 in the same vein when a character you root for dont succeed.
Like you will be pretty pissed about it right?
Even though day to day life most people will be met with failure than success but in movies we would rather them succeed rather to mimic real life and fail.
I find the idea where characters need to be relatable is a very odd thing especially since we are talking about a super hero fantasy.
@@ronjaj.addams-ramstedt1023 I completely agree! If you want kids,you'd better be eager to love and support whatever kid you have!
This was eye-opening. A high school friend of mine who ended up studying at the same music school and being my roommate in college was deaf in one ear. I asked her if she’d ever considered a cochlear implant. She said no, she’d lived her whole life without it and wanted it to stay that way.
As a fellow musician, I’ve always been perplexed by this, and I’m ashamed to say that I judged her a little bit. That was 15 years ago. This video helped me crack what felt so off about that judgment. Thank you. 🙏
Hearing with two ears affects the way the brain interprets the sound. The interpretation of sound is important to a musician.
Using a new aid could completely wreck her progress in music school. Imagine suddenly hearing everything as overlapping echoes without stop, or clashing sounds.
The rebuttal to "Echo's" argument in chastising Hawkeye for over-rely on technology as a crutch to bypass his disability; even to the point of being hostile because of it. Is not up to her to decide what's best for him (even if it's done for dramatic effect).
Echo is awful, period.
Disabilities should be fixed or at the very least be made less of a burden. I get the learning to love you as you are and learning to enjoy live. But in what sane mind can you chastise someone for wanting to be able to use one of their possible senses or functions?
In this case Hawkeye has the actual opportunity to be able to enjoy music, the voice of the people he loves and every other magnificent sound that exists in the world. Why does he have to prevent himself from that?
It is also very hypocritical of Echo to say that when she has super powers that make her deafness a non-factor? that is no representation for people with disabilities, because they can't have that, and they will never have it unless they use the very same technologies that Echo shames. Even more, didn't she get a new leg with weapons and more features that make fighting better for her? How is that any different?
@@yiledute yeah like in the snow white movie instead of hiring dwarf people they animated them
@@shwethapollali3020 echo in Hawkeye was honestly pretty great. They completely ruined her character with her series though imo
Echo just (ironically) echoes alot of the toxic parts of the Deaf community that bully Hoh and cochlear users. It's a really toxic "culture."
5:35 Lmfao the subtitles said "WAH LAA" instead of voila which is just peak considering the context of the video
As someone with basically half a face (hard of hearing and only peripheral vision on the left), I appreciate this video :)
Also these musical based transitions. Yes.
LOL I can't believe I missed that - and thank you!
I love the Kindergaten in my hometown with hearing and not hearing children. They teach every child and, if they want to, the adults sign language. I think it is a good skil to have.
also ASL is so useful for situations where you cant talk, or have to stay quiet. gossip in class? sign. need to communicate plans with someone across the room? dont get up, just sign. lost your voice due to sickness? sign.
im HOH and ive used ASL in all of these situations and it makes my life super convenient.
I was following a series where someone was a professional tester for disability products. He'd like oil up his non dominant hand and try to use the product again to simulate joint problems.
But one time I lost my mind when he rated an egg cracker one star because he forgot people with only one hand exist
OMG I wish I could say I was surprised. I love how we create industries of "professionals" over actually paying attention to people's experiences.
I mean it's pretty easy to crack an egg with one hand? I was like 10 when I thaught myself to do it and I still do it
i'm sorry, but what i get from this is that people supposedly crack an egg with two hands? i mean egg cracker does make sense if you have problems with both of your thumb, but i refuse to beloeve people usually crack egg with both hands
@@hasanmuttaqin464 I keep trying to use one hand and it breaks the yolk almost every time
@@absolutelynobodycares what if someone is old AF when they lose one hand? What if someone with only one hand has dyspraxia or Parkinsons?
As someone with ADHD I love how I view the world, the things I notice and can find beautiful that my NT friends overlook. Often when I point those things out, specially in hikes and nature in general they appreciate those things as well, and are thankful I was there to bring attention to them. What makes my life harder most of the time isn’t my ADHD it self, but how I am expected to function in a society and environment that are not meant for someone like me.
Exactly!
It's the same for me and my autism. I function fine with a bit of help. But then you got teachers and people that either expect a stereotype of autism, which I am definitely not, or they expect someone with lesser intelligence even though I made it to higher education in the first place on my own strength.
Literally got told I ain't cut out for a job cause I got autism. Even though I had 70% on my exam at the time. And I got kicked out of school. I wasn't welcome in regular school but I also wasn't welcome in the special needs schools cause my autism isn't bad enough to be accepted. You sure feel included then. xD
And then comments on not stimming, to work full time and do things normally like other people when I literally can't do those things in general is a struggle.
But when people disregard the piece of paper and they just get to know me for me I feel all warm and bubbly because we're all equal then. There's nobody patronizingly telling me what to do. We just a bunch of friends switching up meeting places so one time it's good for them and one time it's good for me.
I have mixed feelings about this. I have BPD, which mirrors a lot of symptoms of ADHD, and I've closely known people with ADHD. I'm very divided on where these should fall either side of the "cure" mentality, especially where functioning in a job and interpersonal relationships are concerned.
In a work setting, t's harder to justify not completing that task because your emotional state is such that you can't focus, or that your impulsivity leads to an inappropriate or problematic interaction with a coworker.
It's certainly hard to argue that the latter behavior should be accommodated and doesn't need to be fixed. The former is also a difficult one to evaluate because at the end of the day you are being paid to complete a task, and you and your disorder alone are responsible for the negative situation you find yourself in.
Contrasted to something like being deaf or being paralyzed, where much of the world is an external obstacle for you to overcome. Most, if not all, negative situations people with those disabilities find themselves in aren't caused by them, it's caused by a world designed to not allow them to function.
Whereby if we look at ADHD and BPD, that inherent dysfunction present for other disabilities, isn't built into a job or relationships held by people with ADHD and BPD. More often than not, we are the architects of our own destruction. And it's really hard to say that it doesn't need corrective behavior or modification.
@@F9109-r1e Sure it depends on a case by case situation. But the choice should be for the person in question in the end.
Personally though I believe that even if people had ADHD and struggle to finish tasks. I've noticed that with the right approach from the environment they're more likely to stay on track and manage to do the things they wish to do.
For example I shorten my boyfriend's study time with more breaks and I actively encourage the use of fidget toys. He's not on any medication cause he feels bad when he's on it. So I work with what works for him. Same way he adjusted his talking for me having autism and needing a more direct approach. By testing how long he can keep his attention. I can make study blocks and breaks based on that. And by making the room a more isolated place with some music on (gonna say that works for him) He's improving his studies in leaps and bounds.
So I'd say that a lot of the time for these people it's the environment that causes the self destruction. Because people don't listen to their needs or adjust to them either. It's a lack of support that does them in. And a lack of understanding from the general population too.
I've also noticed that a majority of the people I befriend later turn out to have some mental health issues themselves that share symptoms with my disorder. Because we unconsciously accomodate to what we need ourselves. It's why making friends with neurotypical people is so much harder. It's like being separated by a different dimension. Or like speaking an entirely different language.
@@F9109-r1e You say "Most, if not all, negative situations people with those disabilities find themselves in aren't caused by them, it's caused by a world designed to not allow them to function." about people with physical disabilities, but I want to remind you that the world is definitely also not designed for people with mental* disabilities.
In a work setting, if you can't finish your task because you keep getting distracted, that may be because you have no access to a quiet working space for example. A person with a disability can't just 'turn it off'. One can't really force themselves to not get distracted as it's literally an involuntary process in the brain. Sure you might be able to train your focus but that's limited and if you're not careful you may end up forcing yourself to mask just to please the neurotypical environment around you. Which is inherently harmful for a person (trust me, as an autistic person who masked their whole life and had an autistic burnout as a result of that. It harmed me severely. I am now even more disabled simply because I tried to force it all to go away. I basically kept walking on my broken leg because I was expected to walk, and now my leg will never heal again).
Yes inappropriate or problematic interactions are something that should be avoided. BUT it's not all up to the disabled person. If the coworker triggers the interaction, on purpose or not, the disabled person can't always help what their brain does. The coworker should be educated to help (!!!!) avoid situations like those. And if they insist on crossing boundaries or triggering the disabled person then that's a harmful environment for the disabled person to be in. Even if they train to avoid problematic interactions, the environment still plays a huge role in it.
Imagine a workplace with only neurodivergent people, where there are accomodations for every need. Quiet work places, headphones, non-bright lights, few social expectations, work to the best of your ability but listen to your disability, good mutual understanding of each other's disabilities, etc. I can assure you the output of such a workplace would still be very good, for sure better than if all those accomodations weren't present. Cause burnt out workers don't have much output. (If you're forced to work 12 hours a day every day you'll be exhausted most of the time, right? And when you're exhausted you can't really work well. Forcing people with mental disabilities to work without accomodations in the same workspace designed for abled people, expecting the same results, is going to exhaust them just like that. Needs not met = exhaustion = low output. That's not because the person isn't trying, it's cause the environment does not accomodate their needs. Which is the case because the world is not designed to allow them to function.)
What I'm trying to say is that maybe it could help if you saw mental disabilities as a kind of physical disability too, as it's literally the brain being structured differently. You wouldn't force an ambulatory wheelchair user to stand the whole day, right? Cause in theory they could, but it would harm them severely. Then why force another disabled person to work against their disability instead of with it?
Not mad whatsoever, just trying to share my view on the matter! :) Everyone is entitled to their own opinions, I just hope yours isn't caused by internalised ableism because I wouldn't wish that upon you
I mention the idea of superheroes being "differently abled" in my video about superheroes and disability! It does get really awkward when they're both disabled and super-abled-- or similarly, when I mentioned somewhere how Damian Wayne gets more compelling when he's autistic (and therefore Bruce might even be???) someone said that, while they see that and get it, it does then kind of feed into the concept of "Hollywood Autism," because they're portrayed as extremely intelligent/talented/prodigious and it feeds into this idea that all so-called "high functioning" autistic people are savants (which some are! or some like me might be, which can cause its own issues bc my mother was told that I was just super smart and that's why I couldn't relate to the other kids, but then I had anxiety about my social struggles making me appear less intelligent so I put in so much effort to learning that stuff that I ignored growing other intelligences and for a long time ignored being kind because I'd rather be seen as smart and mean than well-intentioned but socially incompetent and now I feel relatively average because of my weird priorities but also what is intelligence etc etc blah blah).
Also as an autistic person, I can absolutely get Deaf Gain and why Deaf people would prefer to stay deaf. I struggle to sleep without a ton of white noise to drown out every little sound that will jolt me up. Not to mention auditory sensory overload, or even just the little things like being able to communicate through windows or if there's a sound issue in zoom etc.
Again, gotta get caught up on Marvel and check this out, it looks like finally a good disability and superheroes show!!!
Also, Aranock has such a nice old-timey woman quote voice? That sounds backhanded or something, I mean it as a compliment omg. She's so good at voices I could listen to her read a phone book omg
and when I start uploading again shout me out lol
You know I will 💜
There's so many fascinating layers with disability and superheroes! I feel like I keep thinking of more angles to look at these things. The Boys has got me thinking about it again as well.
I relate to a lot of what you're saying with intelligence too. It was really hard to tackle some of that because it was one area where I could maybe pull off "praise" which made it feel more important to lean into.
And Aranock's reading was so good! It was actually incredibly hard to pick which take to use. She is incredibly talented at voices
While I doubt Damien or his father is autistic, you can totally have disabled superheroes that are disabled while being competent superheroes.
Real Life autistic people often present with a thing called an "uneven cognitive profile". This means that individuals with ASD can have their skills and capabilities vary widely between people, across domains, and even across circumstances. Basically, two individuals may not necessarily have the same skills, an individual may be talented in one skill while being deficient in another at the same time, and an individual who is normally experienced at a certain skill may at times become incompetent.
Intuitively, disability and superpowers shouldn't necessarily contradict because superpowers are a work of fiction and do not exist meaning the two are completely independent from each other. However, in a broader narrative and realistic sense, disabled superheroes can exist and their unique experiences can extend well into the superhero genre.
So long as it fulfills the promise of accurately portraying the experiences of the disabled. Otherwise, there really wouldn't be a point. Instead of kryptonite, their weakness would be overstimulation for example.
There shouldn't be a problem having a disabled superhero. Their disability shouldn't interfere with their ability to be a competent crimefighter so long as you are willing to engage with the premise. You could always set things up so that the disability contradicts the superpowers from the beginning. Like having a paraplegic speedster, a mute sonic scream, or if Hellen Keller had xray vision and super hearing.
One of the things I don't think contradict however are super smarts and genius intellect with intellectual disability.
Recently I discovered that savant doesn't actually fit the criteria of highly skill neurodivergence, because the overall IQ of the person is bellow 70 points, making them completely dependable on other for mundane tasks but incredibly versed in very specific areas, where even a non verbal autistic person with a high degree of support can score really high on IQ tests. Is like the savant's brain is a tree with no leaves and a single very beautiful flower, while the neurodivergent is just a tree with different leaves than one would expect but still works all the same
As someone who was born complitely deaf in one ear. That one scene in Hawkeye where he moved Kate to his other side so he can hear her better (ep2) , meant the WORLD to me. I have never felt more seen in my life, especially by any kind of media. And it feels so crazy, because it's just a short scene mainly for a joke that most people won't remeber. But for me it was everything, I remeber rewinding serval times to watch it over and over again.
That show will now for ever have a spot on my heart ❤
I do think it's important to have repesentation for both hearing aid/implant users and non. I personnally use hearing aid, but not all the time. The noice can just become too much sometimes. Something that sometimes makes me upset is the fact that as a kid I was just given a hearing aid and never was taught any kind of sign language. Personnally I think it would have been an important and useful tool to have.
Also intrestingly enugh I remeber when I first wached Hawkeye. Echo "bashig" Clint for wearing hearing aid made me a bit annoyed. Because there is a massive difference between being born deaf and losing your hearing later in life. But it's comolitely understandable for Echo not to like hearing aids/implants and for Clint to want to use them. As Echo (I believe) was born deaf and Clint not.
Echo was born deaf. Her signing was a connection to her father we see in this show and echos. She likely only uses tech as far as she absolutely needs like her leg but she wants to prove she is still good enough on her own merits
My daughter is almost 2. She is not deaf or hard of hearing, neither is our entire household. We are teaching her, and in turn ourselves, asl to make it easier to communicate with her as she's behind on speech milestones. We started learning when my wife was pregnant just in case she was deaf. This not only helps us short term, but may allow her to communicate with deaf friends or classmates later in life. I think ASL should be a mandatory class in school. I wish I had taken it
This is beautiful! Great job dad
ASL shouldnt be mandatory
I don't like to shout so if i could aggressively sign that would be nice. Did you ever saw deaf people arguing? It's life changing for me.
"...you can't advocate getting rid of something universally and ignore the impact it has on everyone else."
Very, very true. Well said.
Sign language should be universally taught in schools alongside reading and writing...
We never know when we'll need to use it.
Not just because of hearing issues, but also on noisy places and used at a distance when you don't want/ can't go on yelling.
Another great example is in sicario 2. And it actually really added to the art of it. At one point in the film the use of sign language really personalized and connected two characters in a unique and powerful way
Going to have to add this to the list to check out!
Do be warned: it is only a small, mid point tension release, section in the middle of the film; the rest is a gritty mexican cartel inspired thriller.
@@massjammster7986 Haha appreciate the warning! I'll check out the trailer. Worst case I can look for specific scene
The fun thing about sign language is that it's now being used by parents of fully hearing children in early childhood because knowing multiple languages in early life is beneficial and it's easier for children just learning to communicate past simply calling for attention to sign their needs while still learning how to form words verbally.
1:59 he is still somewhat disabled
He can move his hands
but its ambiguous if he can be surgeon again
MCU had no idea what it was doing in begining
Doctor strange is still entirely as disabled as he was at the start of the movie. His entire arc is him choosing between fixing his hands or becoming a sorcerer and he chooses sorcery. There is even a scene where he complains that he can't cast spells with his hands shaking and the ancient one introduces him to a sorcerer who doesn't even have hands and can cast just fine and he realises that his hands aren't holding him back, his mindset is, and he is just blaming his hands to protect his ego.
Yeah, he’s still disabled because he can’t do the thing he actually wanted to do and based his entire life around up to that point: surgery.
Sorcery is something he likes and rolls with, but it’s really more of a consolation than anything else. MCU Strange seems very much like he’d rather be a surgeon and have had the woman he loved, but he has an obligation and duty now that he has to prioritize.
The problem with Dr Strange is that he never learned to live with his disability, but was given an unrealistic power that made his disability something he could ignore, in effect removing it. Not exactly representative, you know?
@borkabrak You are so wrong about that. Dr. Strange is still disabled and can never again do what he wanted to do, be a surgeon. You missed the point entirely, but the other comments already explained it. Read those.
I’d also like to point out that, even if he did go back to being a doctor, he can never be a surgeon again. Especially considering he was a neurosurgeon (working with the brain requires such a fine control of your hands that ANY shaking could be disastrous). He, even if he used his sorcery to keep his hands steady, can never do neurosurgery again. It’s still there and still a part of his life and to claim that sorcery (which is something anyone can learn through dedication and practice, not an innate ability that only some people have) removes his disability is actually really disrespectful.
And I say that, while I personally have never had a surgery of any kind (especially not one that would affect how I move), I do have Tourette’s and have incredibly shaky hands as a result (to the point where I can’t even hold a knife to make food with sometimes), but I would never choose to use magic of any kind to remove it. It is a part of who I am and to remove something that I’ve had since I was about 4 would feel like removing a part of myself (for context, I was diagnosed officially at 16 and am currently 19. I’ve had it since I started schooling). It’s been such a major part of my life for so long that I would have no idea how to function properly if it changed.
Even if he used magic to keep his hands steady, that also still doesn’t remove the experience he had with his damaged hands. That’s like saying that, if someone broke a bone but it healed correctly, that they were never disabled to begin with. It’s incredibly disrespectful and really disgusting behaviour to claim that about someone you do not know and especially if you yourself don’t experience anything like it.
Apologies, I just find it really rude that people would try and talk about subjects that have zero knowledge of or experience with.
I have a friend who has a CI and it worked out for her so I never put much thought into it. I still think the technology itself is amazing. But manufacturers forbidding parents to teach sign language to their child in a contract... WHAT?!??! This HAS to be illegal in one way or the other.
A couple things I should have noted is that not all Deaf people consider their deafness a disability. Which is quite similar to neurodiversity in that not everyone who is neurodivergent considers themselves disabled (it's one of the ways I find them so similar, but I should have noted this specifically).
Also, deaf doesn't necessarily mean cannot hear at all, deaf means you lost part of your hearing. Some people like to identify specifically as hard of hearing, but largely they are also considered deaf. Thanks to Bread in the comments for pointing out my mistake!
Hope you all enjoy the video otherwise and if you're curious about more aspects specifically related to the Deaf representation in Hawkeye I really recommend watching this video by Jessica Kellgreen-Fozard:
ruclips.net/video/LPNIxPagHEA/видео.html
Can't speak for anyone else, but I feel like my disabilities are only "disability" because of how society is set up and the systems and expectations put in place.
If deaf people dont consider deaf as disability, then they are stupid because they have to rely on disability discrimination laws
Unfortunately Deaf should accept their deafness as disability because they can use disability legislation as there are hardly laws for deaf people.
Ahh just Woah
If you want to see a decent representation of deaf-acceptance on a TV show, check out Gil Grissom from the original "CSI: Crime Scene Investigation" show. I believe that his mother was Deaf, so the character will use ASL when encountering deaf witnesses, suspects and such.
Thanks for making this great video! I haven't watched Hawkeye yet (been kinda burned out on Marvel) but it is nice to hear it has some decent deaf representation
Thank you! Can definitely understand needing a break, there's a lot haha. I've missed some recently as well.
This entire video was so fantastically put together. Looking forward to seeing what you do in the future.
Thank you so much!
I took a very brief sign language course as part of my teaching degree qualifications. The thing I was most intrigued was how sign operates as a complete language, with toning, accents, dialects, colloquialisms and cadance, but is always adapted to the hearing majority for us to understand and pretty much ignore what works for deaf people. The way ideas work is much more intuitive to them when expressed by signing, they have to adapt for our benefit, like people hosting foreigners who can't speak the language of the country they are in and have to accommodate them by doing the switch instead of the guest learning how the natives do
As an aitistic human with adhd I am aware of a lot of privileges I have. But I am disbled. I developed depression as a result from struggling with all the demands from society. I would not want to change my adhd or autism, I would mike to not be depressed anymore though. But this idea of "being differently abled" or "see, you achieved stuff, it's getting better" hurt a lot.
I got adhd medication now: that I am "suddenly" able to do more things and achieve more stuff, does not result of some mindset or whatever. And my depression got worse, because I still can't keep up with all demands but people get so easily used to me now "achieving", they assume I'm all good now and ready for an increase in demands... Being able to do more things also made me painfully aware of a lot of barriers I couldn't even see before. It's never "phew, done the disadvantage-climb to catch up, now it's fine". I once saw an analogy somewhere that it's more like I have my oldtimer that has a new issue, a new blinking light every week. And some other people drive by in their Tesla. And when I got a month without the car breaking down, they suddenly assume the car magically transformed into a Tesla?
Yeah maybe in some aspects I have some "different abilities" but they are not the ones that are part of the core demand in society. In my little bubbles they help. In everyday life I am disabled.
This is my experience aswell. I stopped taking meds for a decade becouse for me the meds didnt agree with me after a while. And due to the studies i picked it wasnt realy an issue for a long long time. But now im in adult life, i see my neurotypical sister doing good and being a normal person and i just cant. Im only able to manage to do chores for one day every other month or so. After work im too exausted to even care for myself. Let alone long term projects or long future planning. I just cant. But everyone my age is shooting past me, hitting milestones. Its honestly realy depressing.
What aggravates me is the amount of parents in real life who will deny live saving medical intervention for things like cancer and taking the choice itself away from the child who’s battling the illness and the same thing can be said about children who are tired of fighting yet their parents are too selfish to see that and would rather continue to torture their child in hopes of some miracle instead of listening to their child I swear some parents are selfish and only think of how they feel instead of their child!
I got lucky that mine always listened to me about medical stuff - except when I didn't want to take antibiotics because they tasted gross, but even then my mom bluntly informed me I would probably get brain damage from the high fever or possibly die if I didn't so I would unlock the closet and crawl out on my own. And yes I did literally lock myself in the closet to hide from medicine. In my defense, I was 5, and it tasted horrible. Was the incident somewhat traumatic? Yes, but it needed to be done.
For instance when I got appendicitis in 4th grade, the doctors caught it really early - I wouldn't have even had noticeable symptoms yet if I hadn't been hit really hard in the stomach with a basketball during gym class. So, the doctor said they could try putting my on antibiotics instead of surgery since oftentimes appendicitis is caused by the appendix getting infected, so if you treat the infection before it ruptures it can go away on its own. I asked the doctor if there were any long-term consequences of losing an appendix, and he said there weren't (which was thought to be the case at the time, though we now know appendictomies increase your risk for irritable bowel syndrome and some other gastrointestinal issues - but that wasn't known yet, so he gave the best info he could.) Based on this, I decided I wanted to go ahead and have the surgery anyway, as I figured it was better to just get it over with rather than risk having it rupture later, so my parents told the doctors to do it, since 4th graders can't legally decide that themselves. This turned out to be the right call, as my appendix turned out to have been inflamed due to extremely early cancer, which antibiotics would not have fixed.
(As I understand it, the inflammation was from my immune system trying to kill the cancer cells. I don't remember tge details very well, as I was on a lot of meds and not fully coherent, and the doctor was explaining it to my mom, not me. I don't think he knew I was awake actually, now that I think about it...)
congratulations to conflated two different groups of people as one and the same.
NO the parent who DO gives such hearing devices to their kids would NOT squander on other means of medical aid.
@@MikePhantom the point stands whether you see it or not!
That second point is terrible.
"We should let all suicidal people kill themselves, and whoever wants to help them obviously doesn't understand their suffering and is an a**hole"
I have a friend who was born with a hearing disability, but they have an implant to hear. They still struggle very much with spoken language, and the day I brought my ASL flash cards over to teach her she broke down crying because nobody ever taught her, and now in her 40's she can finally communicate clearly. Sign language is helpful in many situations for many people, and not only for the hearing disabled. I have ASD and verbal communication is not easy for me even though I hear just fine, and especially out in public if I need to communicate with my child but don't want to speak out, here comes ASL for another win.
10:05 did the dude just compare indigenous people to primates. So not only was he offending the deaf community he was actively being offensive to native Americans
yeah he was a real POS
Considering the context , maybe he was just referring to how the American society treated the native Americans
@@hemantsingh7316 Almost certainly referencing the fact that ASL was based on plains hand talk.
"Anything I can simulate with a ear plug is not a culture"
Earplugs do not "Simulate deafness" you're not deaf because you're wearing one, you can still hear, the most they do is muffle the noise around you.
great point!
More kind of hard of Hearing but that if barley counts
@@QuestingRefuge And they made a black character say this. What if someone had suggested the black culture can be simulated by doing black face? Everyone would see how wrong that is, and it's just as wrong when it comes to deaf culture or any other culture.
this means that the ear plug is not sufficiently efficient. replace it with a better noise protection and that statement is valid. this is a non-argument.
@@mchobbit2951 because deaf "culture" isn't a culture. being deaf is not a sufficiently complex and different social experience, where there is much greater difference between the social experience of being african american and being some other ethnicity and nationality.
Hi, this is 2 years late but better late than never. I'm a late diagnosed autistic, and I'm still trying to be okay with it. All of these pressures of trying to fit in to the rest of society have weighed me down for years, and I still haven't thrown them off yet, but I'm working on it. I live with a bunch of my neurodivergent friends and my family is coming around to the idea of being neurodivergent themselves (slowly but surely, lol). I was absolutely terrified to not be masking my college courses earlier in this week, but I did it somehow, and I'll keep doing it if it means I'll stop being afraid and trying to pretend to be someone I'm not.
This video was excellent. I will for sure watch the Hawkeye series now.
Considering the number of people who are deaf or hard of hearing, how people tend to lose their hearing as they get older, and just the sheer usefulness of being able to communicate without speaking - - sign language should be a mandatory class in all schools. Our school used to teach sign language as one of the language electives, but had to stop when the teacher developed severe arthritis in her wrists and hands and had to quit and the school couldn't find another teacher for the position.
Scrubs is also awful about autism. The episode with Dr. Cox's friend, wherein his son being autistic is treated as a horrible tragedy he wants to ignore, fills me with rage every time I see it. Although, again, it and garbage like "The Good Doctor" are just being consistent with the medical community's actual attitude towards the disabled. I've had professors who were *way* too enthusiastic about "genetic screening" as the "future of disability."
Ohh yeah I hate that whole episode so much! And yes the whole screening and "early intervention" stuff that is pushed causes a lot issues.
@@QuestingRefuge I'm in med school and autistic. The professor who gave our introductory lecture on the topic cited A$ as a valuable resource and described ABA as the "gold standard for treatment." (We also had a horrifyingly ableist lecture on cochlear implants.)
Thanks for the Jessica Kellgren-Fozard link, by the way. I've been trying to learn more about other disabled communities, particularly Deaf communities, in recent months. (I just finished Katie Booth's biography of A.G. Bell.)
@@KyleRayner12 of course they did... Ugh!
Glad to hear the links have helped! Her channel is fantastic covering so many things
“Genetic screening?” That’s literally eugenics. Holy shit.
"but but but muh eugenicism bad!!" pause and think about whether you can actually find some flaw in it, or its bad just because you can attach the bad-sounding label of "eugenicism" to it.
My husband has two cochlear implants: one that works beautifully, and one that has never worked well at all. This surgery for the second one damaged his sense of balance, a problem that lasted for 12 years, until we discovered that physical therapy could help. But even though his first cochlear implant works so well, he still needs to be able to read lips to understand the speech of people that he doesn't interact with on a regular basis. The lockdown in 2020 was particularly difficult for him because of the mask mandates -- everyone's mouth was covered, and he couldn't read anyone's lips.
One of my favorite things to point out to people is that if they have glasses or contacts, they're technically disabled. I was talking to my boss recently about disability advocacy and he was talking about how nobody at our job is disabled, I pointed out to him that he has eye sight so bad he can't see without assisting tools. I also was pushing for us to label the colors on our blueprints, and everybody was like "Why should we do that? That's just an extra step." I pointed out that if anybody whose color blind works here , they won't be able to tell the difference between certain things on our blueprints. And literally two weeks later, We hired a new engineer and a turns out He is color blind And greatly benefits from the labels.
This is an example of when you pre-plan for disabilities the disabilities aren't an issue later.
You know I wear contacts and glasses all my life and never thought about that. I grew up thinking that disabilities were blind or deaf people, wheelchair users, or people with a strong mental impairment. Putting on glasses or contacts is barely an inconvenience for me that I never counted myself as disabled. It’s alway why I have anxiety but it’s so situation specific that i don’t count myself as neurodivergent. I feel like I’m cheapening the label.
I want to use this as an example of how I see Cochlear Implants/Hearing Aids as a Deaf person who uses Cochlear Implants. They’re like prescription glasses. You can see with them, but without them, you’re as blind as a bat. It’s the same with Cochlear Implants. You’re still deaf without them on. That’s why I don’t see them as a fix.
I've worn glasses since I was 4, & though IRL glasses are everywhere, especially as you age, in media, the trope is, you're old, a nerd, or ugly. To the point Not Another Teen Movie had its lead girl take her glasses off as her "makeover", & NATM is a spoof film of teen films, so it just showcases the "glasses = ugly" trope. Like, NOPE. Let's have gorgeous people, doing fun, not nerdy stuff, wearing glasses please. And then we can move on to other ability aids
Princess Alice of Hesse the mother of the late Prince Phillip was born deaf. The courtiers around Queen Victoria thought that she was stupid and defective. She was married off to a philanderer who used her for four living kids until she had a son then dumped her in a mental institution. She had the unfortunate honor of being mentally and physically tortured in that institution by Freud and his cronies. This woman faced down Nazis.
Thank you for discussing this. We need it.
It might be a small thing, not really a disability,
but being Left-Handed makes you see how many things are normalized and optimized for Right-Handed People.
Most of my left-handed relatives have essentially trained themselves to be ambidextrous out of necessity. It took a right-side wrist injury for me to realize how impressive that is. Turns out I don't even know how to whisk properly with my left.
It took society way too long just to invent left-handed scizors.
12:04 I think another aspect that’s interesting, whether Bell’s prejudice was genuine or not, is that the expansion of ASL would hurt the profits of his telephone patent, because after all the USA runs on money
This was awesome. I'd love to see you do a follow up with DiD and moon knight
Thank you! Moon Knight and DID is definitely something I'm considering covering! Would also give me an excuse to talk about Doom Patrol as well which I absolutely love.
Agreed
I feel sign language should be required learning for hearing and deaf people
Im going to say this having worked with the disabled, having a disabled mother, and the rest: It isnt the "curing" that's the issue. There is NO ONE confined to a wheelchair thay wouldnt rather have the use of their legs.
The issue comes from how society TREATS the disabled, and no, its not just one crowd. From my own life, at 19 I was told that if I stayed on ships, I would be crippled by 25. Two camps emerged from those thay found out: Those who thought I was made of glass, and those who thought I was malingering. Believe it or not, I liked being around the malingerers more. Why? Because at least they believed I was *capable*, and werent ready to just commit me to a wheelchair.
The disabled don't want to be called "strong" or "brave" for their disability. Mainly because its like, "Look dude, can I just have my fucking coffee without being your inspirational moment?"
The issue in media with "curing" disability is that its pretty much just everything is magically better and there's no effect after the fact (i.e. Person bound to wheelchair for years just gets up and walks away) and if it's not that, then it's the "magical inspirational disabled" trope with no middle ground.
The other side is dumb too, though: If we're at a level of society as nd tech where we can easily fix most.disabilties, why are we leaving them without help? This is most sci-fi where we've got some insane medical capability.
I actually live with a third category. The empathetic group. My mom actually let's me work things out, helps brainstorm with me to figure out how to work with my disability so I can still be independent. I think society should be more accepting in general. Yeah this person is handicapped but they're not entirely incapable. I mean look at Stephen Hawking. He still managed to achieve so many things. Despite at the end just being entirely wheelchair bound.
Just cause you detoriarate different from normal people aging doesn't mean you're unable to ever be independent.
The only issue I see with your comment is that you speak of 'fixing' disabilities and leaving people without help. That's a very able-bodied centered view I think with maybe some hints of savior complex. It tastes the same as the people who baby disabled people, who think they are fragile or who pity them just because they are disabled. Yes disabled people may fare better in the world with those things, but I'd encourage you to use the word 'accomodation' instead maybe...? Because the word 'fix' means something is/was broken. And arguably disabled people of any kind are not broken, they are just differently abled.
We should help disabled people by offering them accomodations. But like with the cochlear implant there's a lot more to it than what meets the eye. There's communities for example, and a long-term disability becomes intertwined with the very being of a person (at least in my experience with autism). So people not wanting the help are valid too. We should always consider the reason why we are helping, do we help for their sake or ours? Do we get mad if they don't want to take the help? Does it then not mean we're doing it for our own sake and not theirs? As long as we avoid that and help while listening to them very well it's very good to help yes and we should keep developing accomodations to do so! :)
@@Catsgirl32 I have bad knees, a spinal injury, and limited range of motion on my left arm. I'm left-handed. I've worked and lived with the disabled for most of my life on top of my neurodivergnce.
Able-bodied I am not, and I would like all of that fixed. The 14-year old girl I was monitor for that lost her eyesight and got confined to a wheelchair would love to be able to paint and draw again.
Yes, the term is fixed. No it isn't 'ableist', it's reality.
@@Catsgirl32 Accommodations are a temporary FIX. It helps those with issues such as disabilities, which are called disabilities because it negatively impacts a persons life (therefore means they are broken) and therefore FIXES those problems for a time. Would you say that someone born with half of their brain is perfectly healthy? Saying someone with a disability has something that needs to be fixed is entirely accurate because the majority of people with disabilities DON'T WANT THEIR DISABILITIES because they're limited by it in some form and actively ruin that person's quality of life.
@@astraamarante6233most chronic conditions can't be "fixed" or "cured"; they can only be managed.
I probably wouldn't get rid of my autism; if only because it's always been a part of who I am. Sure, I would love to get rid of the inconvenient parts and be able to live a normal life. But I ultimately can't separate myself from it.
In my experience, having Autism is quite different from dealing with chronic illness.
I would sell my soul to have a functional body and not be mentally ill. Partially because I developed most of those issues later on. It's a lot easier to imagine life without something like joint pain or stomach problems.
This video got recommended to me by the algorithm at this moment in time for some reason. I'm leaving this comment in support for your work on this video and also to share my perspective on the concept presented here. I used to be paralyzed. Fully. Barely able to breathe on my own. It was hell day in, day out, week after week after week. I was given the option of continuing to be in hell and accept hell as normality, to slowly trick myself into thinking this was OK, or I could go for a treatment that's possible and mostly effective, thanks to humanity not living in the stone age anymore. It's been almost 10 years since then. I've participated in 2 half-marathons since then. Because of my experience, I personally find the concept of "Disabilities don't need a cure" to be abhorrent and their proponents more interested in leading their own insular communities, clutching onto a division that makes them feel special, rather than embracing the whole breath of society. They are no different than Alexander Graham Bell and his weird views on humanity.
As someone with glasses, I feel this. That said, I probably will never get LASIK nor use contacts, despite my glasses getting spoiled by the rain, because I can get around without glass and I'm happy keeping my cure minimally invasive. And I can see why someone might similarly not get a surgery to cure their disability because it is invasive, and they can get by without it.
Difference is you couldnt live a life (according to you) and was in pain. Most deaf, blind etc people arent. When they use prosthetics or implants they could be. Why then if they have a perfectly good quality of life would they gamble with a big pricey change that could improve their life in only 1%. Some do some dont. Would you tell a short person to get leg lenghtening surgery so they can reach too shelves by themselves wothout asking for help or using stools? I dont think so. All of us have some 'defects' we arent perfect.
Some "disabilities", like autism mentioned in the video are incurable.
The only way to "cure" for it is Eugenics, which may ultimately end up screwing over society.
I strongly suspect that autistic people are selected for because society needs people to be able to call neurotypical people on their bullshit, regardless of social consequences.
Neurotypical people have a strong deference to social hierarchy. While this facilitates a larger group size: it also has the potential to lead to collapse if the people in charge surround themselves with "yes" people.
@@majakukulska7650 weird how you dismiss all who DO use it and to does this video.
you all just want to special because you have nothing else in your life to BE special.
this level of narcissism that permeates in race, sexuality and now disability. EVEN FATNESS. its disgustingly dividing.
GET CURED
@@majakukulska7650 I can see where you're coming from, and I can see where the original commenter is coming from. Here's my two cents and why I sort of agree with them in a way. The general sentiment here might mostly be that it's more complicated than, "Disabilities don't need to be cured because there's nothing wrong with them and they make us who we are." With some disabilities that don't dramatically impact someone's ability to have a good quality of life, this may be true, but the bulk of the video and most of the comments here seem to ignore or even shame the other side of the spectrum: where a person is truly suffering because of their disability and wants to be able to live life without having to suffer anymore.
Just as it can hurt to be told that you should fix your disability because it makes you defective, it can also hurt to constantly hear that you should just embrace it and all the pain it comes with, and that you shouldn't want to fix it for a better quality of life. That mindset falls right back into the "differently abled" argument that seems to be criticized yet simultaneously encouraged by the latter part of the disabled community quite a bit. It can be frustrating to hear constantly, as it's invalidating and puts our experiences through a sugary, rose-tinted glass.
While deafness is the primary disability talked about in this video, it is largely being used to refer to disability as a whole. And with that, there are two sides of the coin here. Nobody should be shamed or told that they are morally inferior for wanting to wear implants, or get corrective surgeries, or take medications to let them have the experience of being as fully abled as possible. But that take is seemingly considered problematic here, even if just in the undertone.
I'm also disabled with a few illnesses. There are days where I can't walk, can't speak properly, can't form memories, can't eat most foods that would allow me to have a balanced diet, experience heaps of pain, among other symptoms. Am I ashamed that I have to get around with crutches and wheelchairs or otherwise not leave my bed sometimes? No. Am I ashamed that I'm hard to understand verbally and have to find other ways to communicate sometimes? No. Am I ashamed that I can't eat everything that a normal person would be able to? No. Do I wish it were different? Yes. Would I give anything to be able to not have to live like this? Yes. And I'm not ashamed of that, either. And I don't want to be told that there's something wrong with me for thinking that, or that I just need to be proud of it and find self acceptance to live a good life. It's not a matter of not being proud of who I am, it's a matter of wanting a better quality of life. It doesn't have to be either/or.
Both sides need to be respected as nothing more or less than the wishes of the individual who makes them. But it can sometimes feel like the pendulum of public opinion swings too far to one side or the other for the sake of acceptance and inclusivity, largely ignoring and even oppressing a huge demographic of people in the process of its sweeping generalizations. It's okay to not want to be disabled and get medical intervention, even if your disability is seen as a "community" more than a disability, like being deaf. There is nothing wrong with it and nothing more frustrating than having that agency constantly criticized and even taken away by those who don't take you seriously or put their morality over your health.
Just as the points that this video makes need to be said, so does the point that this comment makes. We, as a society need to be able to recognize both sides as valid and a choice left for the individual, not the masses, to make. Otherwise, something that starts out as good intentioned can swiftly and sneakily become harmful once again.
Sorry for the short essay here, but after reading some toxicity in the comments of this video that seem to be taking things in a far too generalized, politicized, black-and-white manner, I thought I'd just leave this here.
I was concerned about how to handle disability in the series I'm writing, because a critical plot point is a character seeking to change the effect to which he is crippled. I questioned whether that was okay, and concluded that this struggle is important to address head on. Where his family simply accepts a hereditary disease as fate, he risks his life to change his. Even though he gains some increased mobility, he continues to have his disability and the pain and complications resulting from that for the rest of his life. I felt this was most realistic.
It turned out to be a personal story for me, because although I did not even realize at the time that I was autistic, I knew I was ADHD and I knew how it affected me.
Disability, culture, and the neurodivergent conversation is very much needed.
Thank you for this video.
I liked this scene with Hawkeye too. The system insists in speech for anyone with a disability that makes speech difficult. My son started learning ASL only for ASL to be denied him in the school setting because 'speech' is whats proper. He is autistic and struggles with pronunciation and speech in general. We often revert to bits and pieces of ASL even as we speak to each other. We shouldn't treat differences as things to be eliminated.
I really appreciate this video. I’d also like to mention that the less harmful rhetoric that we have regarding/surrounding Disability, the better it is for everyone because becoming disabled is one of the easiest things a person can become. And the more support that we have around disabilities the easier it’s gonna be for everyone.❤
Talking about misconceptions about disabilities. I ride a motorbike. A regular motorbike. So often, when somebody finds out I am disabled, and I ride, they question how it is I can ride I motorbike.
I tell them, "I am disabled, not dead!"
I then explain, that I can ride sometimes, not all the time, due to my disabilities. If they say, "But you don't look disabled?" I like to reply, "Yeah, sorry, I didn't put the uniform on today."
I think what you said in your video essay, really sums it up well, about the difference between right, and misguided representation. Hopefully the right representation will better inform people about what it means to be a disabled person. I am not overly hopeful, but hopeful never the less.
As a young disabled person who is still discovering their disability and dealing with the world around me including my family being ablelist this meant so so much
Thank you for posting this
At work I’ve worked with someone who is deaf but since I don’t know sign language I have to be sure they are reading my lips to know what I’m saying and they have a hard time speaking correctly but it’s enough I can figure out what they want. Heck sometimes I’ll use general gestures as part of the communication like gesturing drinking for drink or beverage related stuff.
I don’t treat this as a lesser thing, more on the same level as communicating with someone who’s not a native speaker but is at least coming across enough to understand what they’re saying.
Lipreading is a guessing game
You have NO IDEA how much I appreciate your use of the Dyslexie font in a video about disability. Thank you!
I sometimes daydream about how much of life would be easier/safer if accommodations were more baked into daily life. Like learning sign and spoken language side by side in school, or allowing fidgets or headphones.
The thing I don't understand about the disability conversation, specifically disabilities that limit physical capabilities, is when some sci-fi tech comes up to fix some disability, and it is rejected specifically on the grounds that people that have that disability are actually doing quite fine, and have created a culture that accounts for that disability. Perhaps fix is the wrong word, but I think "accounts for" would mean a ramp for the wheelchair instead of mechanical legs.
Now I grant that this may come from not knowing anyone who is considered disabled, but part of my confusion comes from the fact that I technically have a disability: I'm near sighted, and can't read or make out faces of anything outside of arms reach. But I can and do fix it with glasses, as do all the other people I know who are similarly disabled. I don't know of anyone who sticks with being nearsighted, nor why they would if they can afford it.
And yes, I can see why someone might not get something that fixes the disability if the fix is invasive, costly, or is a hassle to maintain. But saying that people with access to a fix that is none of those things wouldn't take advantage of it runs counter to the one example of a cheap, noninvasive, low maintenance fix to a disability we do have.
I mean yeah I think movies should focus more on actually showing how people work with their disability. Because I call getting glasses to work with your near sightedness and cover the weakness, just working with your disability.
You fully accept you have it. You just make your life easier and safer by wearing the glasses. It's the same way I work around issues related to my autism. I have a different learning curve for housechores. It's literally training. I do it cause I can't always rely on my mom or aid outside of the family. That stuff's too expensive. I got some crazy work arounds to problems I face. Like with cooking. I will usually focus on one pan meals. xD
Especially in action, a major impactful disability can really trap the writer in a lot of situations. Take Toph from avatar, who's beloved mind you, we can make a huge compilation of things she shouldn't be able to "see". Often times this becomes such an issue that they just ended up getting workarounds to their disabilities, like daredevil's super color touch that negates pretty much his only real disability of not being able to read.
Imagine having a one armed character, you have to remember they can't open jars or you have to let them open jars in a super unrealistic way with a sword or whatever. Makes sense that most people are afraid to use disabled characters.
Huh. I would’ve thought not being able to read would be a pretty easy thing for the writers to work around? I just finished reading the Cassandra Cain Batgirl run, and she’s severely dyslexic for the entire 70 issue series. It’s a plot point occasionally, and she often visits other heroes to get them to read her things. Pretty sure Daredevil works a lot more solo, but surely it wouldn’t be that hard for them to let him not read?
@@thatonepossum5766I've seen writers do stupid stuff with Cass when she appears in other titles. I think her Batgirl run was the most consistent in considering her canon language abilities.
I love her but she's only been learning English for a few years. So many writers do not know what that actually means in terms of vocabulary, sentence complexity, and use of idioms.
Robin 149 (1993 run) says Bruce taught her Navajo. Because obviously someone learning their first language as an older teen due to magical influence is going to pick up a second language with limited opportunity for immersion or practise. My eyes rolled so hard they almost fell out of my head.
@@tomorrow4eva yeah, I’ve been learning the… less well-written appearances of Cass since writing that comment. And discovering just how annoyingly common it is to fully erase her dyslexia (I’ve seen more than one “bookworm” Cass? Like, doesn’t struggle at all?). The main Batgirl run does still demonstrate what I meant though. 😅
I’m super new to superhero comics (basically only read the Cassandra Cain stuff), so I’m kind of playing catch-up on the information. Almost seems like the newer the iteration the less disabled Cass is. Except in Wayne Family Adventures, which handles her so perfectly that it sent me down the rabbit hole of reading the rest of the stuff she’s in. Except the evil arc. I will not be reading the evil arc.
"You shouldn't have to live up to expectations that were designed without you in mind," not me tearing up over this. It's so hard and I try my hardest but often times that makes me worse. I always feel bad saying no when someone needs my help because I do so little compared to abled people and I end up making myself worse. I just wanna nap without feeling bad, it's not my fault I need to nap.
as someone who's been forcing myself to function like a normal person (not deaf, just... it's hard to walk, bend over, lift, etc. on top of adhd i can't afford the medication for) I really needed to hear this. It's okay to need accommodation. I shouldn't be trying to cure something that can't be cured. I shouldn't be ashamed of needing a cane, of needing someone else to pick up whatever I dropped, or of being unable to work the 9-5 5 days a week.
Thank you.
My favourite movie portraying disability has to be forest Gump not only because of his journey but also because Lieutenant Dans despised being disabled and thought death would have been a better choice but in the end finds a way to enjoy life anyway through Forest
I plan on teaching my children sign language even if there hearing is fine.
There only seems to be benefits to doing so as it encourages both lanuage and motor skills, and will even be good thing for when they interact with the deaf community.
Also if they end up being on the Autistic spectrum like me it gives them a way to communicate in any non-verbal moments.
That is a great idea!
The show “switched at birth” has lots of characters who are deaf and they tackle so many of these issues.
This video made me learn some things. Thanks for it, dude. I never knew.
Thank you! Really glad to hear
I am so glad the RUclips distribution system led me to your content. I am a hobby writer with a character who is injured as a toddler and loses part of one leg. I wasn't sure how the culture of their world, set a 1000 years from now, would view their situation. Now I do. A society is not advanced merely by technology if it does not also mature socially.
A disability is having less ability, so whith full respect to the vulture of deaf people, I think if a person is getting hard pf hearing but technology can assist in their help, i disagree with the idea that the technology is holding them back in some way. The tech is literally preventing them from losing a useful ability, something that not all people with disability can have but is a great help the ones that do. Thats said, it is always a choice someone has to make for themselves.
Imagine being in a cave, trapped underground. No light. Over the next 3 days, your eyes have greatly adjusted to the darkness. And then suddenly, without warning, a portion of the cave collapses and your eyes, that have adjusted to so much darkness, get blasted with pure sunlight. The pain of the sudden exposure, the blinding light, the way you'd immediately cover your eyes and recoil into the darkness to protect your eyes from that burning feeling.
Now imagine not hearing anything for YEARS, so used to pure silence... and one day, suddenly you can hear everything. A whole host of new sounds you've never heard before such as car horns, tires screeching, people yelling, machines beeping. It can more often than not be overwhelming and no-one likes risking being overwhelmed. And then there's the cost. Not everyone wants to be put in severe debt for something they can AND HAVE lived without for years.
@demongoddess2012 just as someone who wants to use thee tech available to them so that they can live their life exactly how they want to. ❤
There is a bit of disconnected within disabled communities on "how disabled are you" if you heard then went deaf or are partially deaf then you can be discriminated against because you arent fully deaf or if you have friends who arent deaf, just like any group there are sadly these people too
The problem with any group of people is that it's a group of people.
Spiderman and Daredevil would be a pretty cool team up. I'd watch that.
However Hawkeve and Daredevil! YES! Blind Ninja and Deaf Archer join forces!
After my studies in Deaf History while learning ASL, I really liked what your video had to say about different media's presentation on deaf culture and audism. Thank you for warning on that House episode, the messages in those clips look awful. I also didn't know of some those darker quotes from Alexander Graham Bell.
To be fair to the House episode, House and Foreman are both a*holes who are used to display the wrong opinions of society in almost every episode. They are not the voice of the author. Note how House playing God repeatedly results in significant harm to the patient (as you can SEE in the clips she showed!), and the only reason he gets away with it is because the patients are already desperate for any help and by the end of the episode he figures out the "real problem". I can't recall whether the mother here is portrayed as right, but I do believe there was a border implication about what role do adults have in making medical decisions for teens. The show does not often provide a prescriptive answer as much as a broad discussion. I think the essayist does not understand this about the show.
ASL has been recognized as a language officially since 1960, but even back during the 1800s Abe Lincoln recognized it as a language. ASL uses the same part of the brain as spoken language and has grammar, syntax and tone. As well as different dialects and regional differences just like spoken language because I is a language!
(Love this look at disability in media as a part of the Deaf community I think we need more representation like this)
I've had hearing issues my whole life and I will most likely need hearing aids within the next decade. I was so happy that Hawkeye represented the hard of hearing community. It was wonderful seeing that part of my identity represented and validated.
So happy you made this video. I always try to explain this to people and they just don’t get it. My dad wanted to be in the Air Force and he couldn’t because he is deaf. I was telling this to a military recruiter and he said “oh I bet he got some nice hearing aids, eh?” And that was really the straw the camels back.
Love the video but also there are some other downsides to cochlear implants that I’d like to bring up. 1-older versions rust over time and are very expensive and painful to remove. 2-they create a very fragile part on one whole side of your head. My dad was second person in his state to get a cochlear inplant and went to school with the first one. One day, according to my dad, in gym he got hit right where his cochlear implant was and died. So yeah not the best
Anyway, thank you for making this video
If you’ve never seen it, Mr. Holland’s Opus is a wonderful movie dealing with a music teacher whose son is born deaf. It shows his struggle to connect with his son, and how they both find their connection through music. It’s beautiful!
Thank you for creating this. I really appreciate it.
Glad you enjoyed it!
I love how Hawkeye showed the deaf community and learning to live with hearing loss. I also love CODA and I’m really happy you’ve used clips from it in this movie.
(Personal context - my brother is deaf and my family and I have taken several different Auslan courses)
Also I recommend looking at Eileen from Supernatural, she is a deaf character played by a deaf woman, and she’s never treated any differently than you would treat a ‘normal’ person (obv with adjustments) and instead of ignoring her disability, Sam tries to communicate with her through ASL, and learns more throughout the show. I think it was only once it was used as a ‘superpower’ but it was mostly just in the case of lip reading (which was not accurate at all 😂)
I’m neurodivergent/mentally disabled (I don’t care for what people call me) and this video was super helpful in exposing me to more of the deaf culture. I try and understand other perspectives as much as I can so I can get a better grasp on how to effectively communicate with people of those perspectives. It’s hard because often I can’t relate to those people which is the best way to understand perspectives but knowing what and how they feel is a good second option. Thank you for helping me do so.
I took ASL in college and, in doing so, learned about the cochlear implant controversy within the community. Your video helped me understand it a bit more, but I still don't think I'll ever fully understand that position, but I don't have to fully understand it to accept that they have a better perspective than I do on the matter.
The big issue with some of the deaf community is pride.
It is objectively better to hear than to be deaf as was meant to be. It's one of the 5 fucking senses. It's needed. Not being able to hear is a DISABILITY.
There are ways to work around it. Sign language. There's calm and peacefulness to it.
And there are drawbacks to hearing after already living deaf. But that doesn't mean that being born deaf in the first place wasn't unfortunate. It's unfortunate because now they either have to be deaf or get help that allows them to hear only for it to be very uncomfortable, difficult or harmful. Situations you'd never deal with if you were born hearing to begin with.
Your voice is also natural, where sign language can actually lead to wearing out your joints and if that happens to limit your ability to sign, then you're screwed.
Struggling with hearing after already being deaf is only due to being born deaf to begin with. Similarly, a deaf person WOULDN'T be happier deaf if they were actually born hearing and then LOST it. They'd struggle because it's not what they were born with.
Being deaf, you don't have to be defenseless or helpless or treated like lesser as a person. So I can understand where the pride comes from. Of course the community is going to encourage themselves and each other to not wallow in pity and instead embrace it. That's fine. But when the pride comes to a point where they want to claim that deafness is just overall superior and become prejudice to all hearing people just because some people are jerks (as if they don't also live in this world and see that there are jerks in every category for any subject matter), then it's delusional.
If someone doesn't want the hearing aid because they get along better with what they're used to, then so be it. It's their choice.
If someone wants hearing aids, stop trying to tell them they don't need it. It's their choice. They'll decide if they like it or not.
As an adult with ADHD who got diagnosed as a teenager and does not like taking medication, this really spoke to me. I know there are some people with ADHD who swear by medication and feel they need it to function and that is their choice, but for me, the side-effects were so much worse than how they helped me, I would still constantly forget to take them, and keeping up with filling prescriptions was stressful, so I stopped. I do struggle a lot in my day-to-day life because I choose to remain unmedicated, but I still prefer it this way. It’s frustrating when other people with ADHD try to shame me for it or claim I don’t really have it because I don’t want to be medicated. Yeah, sure, maybe it would make some things easier, but it made a lot of other things harder, and I also felt it changed the way I interacted with the world in a way that was off-putting. On the flip side, you have people now claiming people who take stimulants are addicts and they should be able to function fully without medication and it’s their fault if they can’t because “ADHD isn’t real.” It’s become a big problem in some countries and could become bigger with time.
Theo in Only Murders in the Building is also a great example on how to treat disability in media.
i literally just write a term paper on this lmao, youtube algorithm goes wild. Love your video btw!
I taught in Spain and made friends with their version of a special Ed teacher. Apparently, there's the belief that teaching sign language so young would inhibit any verbal language skills the child has. luckily the teacher didn't agree, and during break taught Spanish sign language. Which as someone who knows a little ASL and decent Spanish, was flipping weird!
There's a channel about a little boy named cooper who got cochlear implants. His mom talks about this controversy. They still sign, like if he's in the bath, or she's changing the batteries, or he just needs a hearing break. Very interesting and funny. Hes a cute kid
But we’ve known sign doesn’t inhibit verbal language for like 2 decades! My mom did “baby sign” with me when I was (duh) a baby. The goal? Get me communicating and talking at an earlier age. The result? I was communicating and eventually talking at a young enough age that people would stop just to talk to me, because it was a novelty to communicate clearly with someone that young.
(Note: I am not deaf)
God, its been a long time since I've watched, let alone ENJOYED a video essay. This was amazing.
I've been physically disabled my entire life, although it was one that started mild and increased as I aged. I've never had an issue with how disability is portrayed in movies/on tv. Nor have I ever wondered why there weren't more disabled people in media. I do have issues with non disabled people being disability activist, on either side of the line.
I always had issues with people acting like I was less than because I was disabled. I never wanted special treatment and did everything I could not to draw attention. I always feared my disability would worsen and I'd end up in a wheelchair. If there had been a medical way to help I'd have jumped on it. When I finally got my leg braces I was ecstatic... I could walk without fear again.
I never had kids, because I don't want to pass on my disability(a genetic condition)...
I suffer from incredible ankle pains. While I can walk sorta fine (with a limp), climbing stairs is excruciatingly painful to me. Ramps and elevators help me even tho I'm not on a wheelchair.
The jerma clip at 4:03 caught me off guard
I WAS JUST ABOUT TO COMMENT THIS LMAOO
I can’t believe that Jerma finally gained hearing 😊
As someone who has been visually impaired and autistic since birth, I 100% agree! I want to point out something related: how much of a disability is medical vs social (biological vs built environment)
I have been vehemently supporting more non car oriented designs in the US with transit friendly intercity trains/buses. I have a huge horse in that race, as my disability cannot be debated as being a real issue in that regard. Additionally, as I am immediately given more freedom to travel independently without anxiety. If I were to have my vision fixed one day, that horse goes away and my message would hold far less water. When you think about it, there’s a reason you don’t hear as much about blindness as a disability in other parts of the world outside of the United States or under developed countries, as in a lot of places it’s not as big of a deal.
6:59 how the fuck are those contracts legal? A company doesn't have the right to police what someone does eith their own free time like that
I was surprised as well, but I realised there's the USA.
Not entirely sure they are any more enforceable than a "please don't sue" clause.
Are they going to pull a twitter and sue you for not replacing the implant when it breaks?
I was diagnosed with Tourette’s at 16 but have had painful tics since I was about 4 years old. I’ve always had anxiety about being out in public because people stare at me when I tic (both verbally and physically), especially since they are both loud and violent. I consider myself incredibly lucky that only 1 person ever made fun of them while I was in school and I never really liked that kid to begin with so I could easily ignore him, but being out in public (especially in restaurants and places like that) make me so anxious that I tic more and then it becomes a cycle. I have had several panic attacks when out with just family, even in a private room, because people stare.
All I could ever hope for is for people to just not stare at me when I move or make a sound (I’ve never said a full word as a tic. It’s only ever been sounds that actually borders on sounding impossible for a human to make). I was called a pterodactyl for the last couple years of school and, while I can laugh it off sometimes, it still hurts.
People are still people, no matter their age, gender, race, sexual orientation, or disability (or lack there of) so treat them with respect. Everyone deserves basic human decency until (unless) they prove that they don’t through their actions towards others. People are people so treat them like people.
Apologies for this kind of off topic rant, I can’t speak these words aloud without a mental breakdown so this is kind of my only outlet.
I watched a show a couple months ago and it was one of the first times I’d seen wheelchair users as background characters and nobody in the show mentioned it or anything and then when Percy Jackson came out they added a camper who was in a wheelchair (which wasn’t in the books) and as a wheelchair user myself this made me really happy that people like me are being put in more movies (even if it’s only as background characters)
This is such an amazing video. Made me emotional. I know this is 2 years old now but wow. Thank you for this video.
Nah, I want a robotic exoskeleton when my legs stop working
Fantastic video. I'm in a class about Disability studies right now and this stuff is exactly what we're learning about. The social model of disability, intersectionality, etc.