Wow. My husband in the US is just starting on this journey at a severe level (and already has had symptoms for years). He is 70. I so appreciate your candor. It will help me to deal with how our life has already and continue to change.
I have ASD, ASD and PH are like best friend. I got the asd diagnosed and PH at the same time, no need long time. But i already felt it about 7 years ago bcs when i feel tired/ less breath, i think i need a moment to break then i back to normal and think i'm getting older, it's normal right when u are getting older you are easily tired
My symptoms began 5 years ago and was told I had asthma. This week a CT scan revealed pulmonary hypertension as possible lung cancer (I have never smoked) - I have to wait 6 weeks before my next CT scan. I went 5 years without knowing I had this!
@@CiniMini69 Dry cough with no blood or phlegm. I was diagnosed with asthma and GERD back then and a nodule was found on my upper right lung that is still benign. But now something is showing on that same lung. I am a lifetime non smoker although my father smoked heavily. My right neck and shoulder were hurting and thenwent away. Idid not cough one time at the hospital when they kept me overnight for evThe doctor said I had pneummonia and did a COVID test that came back negative. If I had pneumonia with no fever it would be a miracle. I am on a journey that has consumed my emotions. I did not have pneumonia. If I did it was strange.
Got diagnosed in October 2018 . Getting viagra for treatment and some inhaler . But I feel fine. Luckily the v.a pays for all my medical bills. Been on ssdi since 45. I’m 52 now . On top off this I have chirosis if the liver. But I’m ok with death .
Hi my wife is in hospital in papworth just diagnosed with polmonary hypertension veinal in her lungs and is being put forward for a transplant. We are all as a family devastated and absorbing the news as we were told today I just wondered if foods can help with her condition of were to look as we are completely ignorant of this dessert and don’t know were to turn to feeling very lost ❤️
Sadly no, but they can help a little like not having much salt as it will make the fluid retention that comes with right heart failure. Obviously weight control is important as you need to retain a healthy weight. That is very difficult when you can’t breathe well enough to exercise. However there are special exercises you can do but it’s not the same as what a normal person would do
My age is 24 Iam suffering from primary PAH Plz tell me the permanent treatment which hospital is best for this Plzz tell Mee solution It's a difficult situation in my life😭😭
I was diagnosed this year with PAH and my life changed forever, I though 6 months was harsh but you say 8 years? I can't even imagine a life with these horrible symptoms for 8 years. sorry your symptoms are still harsh. are you doing Tyvaso? you can pro with echo eamination,CT etc....
This disease is so horrible and so tragic. my heart goes out for all the people who have PH. We need to find a cure.Sarah is an inspiration.
My wonderfully brave and inspirational daughter-in-law.
Shes truly amazing, Im a medical student, my sister died of PH, I heard they dont last long max 5 years, hows she doing now?
@@wenjingsaf People are living longer these days _(10-20yrs)_ with proper treatment, depending on the underlying cause of their PAH.
@Valerie O'Brien How are you today? You should find a PH specialist and insist on tests.
Can i get her email ?
People think you can keep up with them and you cant so I don't bother anymore , your lucky you have someone who cares.
Wow. My husband in the US is just starting on this journey at a severe level (and already has had symptoms for years). He is 70. I so appreciate your candor. It will help me to deal with how our life has already and continue to change.
This is so touching, may Allah heal you, believe and trust Him, He is the universal healer, we will pray for you Inshaallah
She aint muslim
I have ASD, ASD and PH are like best friend. I got the asd diagnosed and PH at the same time, no need long time. But i already felt it about 7 years ago bcs when i feel tired/ less breath, i think i need a moment to break then i back to normal and think i'm getting older, it's normal right when u are getting older you are easily tired
Thanks for sharing this ..! I’ve also been diagnosed with…!
My symptoms began 5 years ago and was told I had asthma. This week a CT scan revealed pulmonary hypertension as possible lung cancer (I have never smoked) - I have to wait 6 weeks before my next CT scan. I went 5 years without knowing I had this!
Hi, you never had symptoms in 5 years?
@@CiniMini69 Dry cough with no blood or phlegm. I was diagnosed with asthma and GERD back then and a nodule was found on my upper right lung that is still benign. But now something is showing on that same lung. I am a lifetime non smoker although my father smoked heavily. My right neck and shoulder were hurting and thenwent away. Idid not cough one time at the hospital when they kept me overnight for evThe doctor said I had pneummonia and did a COVID test that came back negative. If I had pneumonia with no fever it would be a miracle. I am on a journey that has consumed my emotions. I did not have pneumonia. If I did it was strange.
@@NoodlesEaton Hope you'll be good. But did you have chronic fatigue or dizziness in all these years? Or just the cough?
Hi, what were ur symptoms?
Got diagnosed in October 2018 . Getting viagra for treatment and some inhaler . But I feel fine. Luckily the v.a pays for all my medical bills. Been on ssdi since 45. I’m 52 now . On top off this I have chirosis if the liver. But I’m ok with death .
U r ok with death?
Hi my wife is in hospital in papworth just diagnosed with polmonary hypertension veinal in her lungs and is being put forward for a transplant. We are all as a family devastated and absorbing the news as we were told today I just wondered if foods can help with her condition of were to look as we are completely ignorant of this dessert and don’t know were to turn to feeling very lost ❤️
Sadly no, but they can help a little like not having much salt as it will make the fluid retention that comes with right heart failure. Obviously weight control is important as you need to retain a healthy weight. That is very difficult when you can’t breathe well enough to exercise. However there are special exercises you can do but it’s not the same as what a normal person would do
How is your wife doing? Did the transplantation go well?
Seems like doctors want to wait for the worse to happen...almost death, and then they want to diagnose.
Cos y not?
They always try to say that most any problem is fro anxiety or just being unfit, if you are a woman…not the way most men are treated
My age is 24
Iam suffering from primary PAH
Plz tell me the permanent treatment which hospital is best for this
Plzz tell Mee solution
It's a difficult situation in my life😭😭
How r u now
Going thru the same thing ... I’m to the point where I dread walking to the bathroom
How r u now?
@@NitrogenOxygen-ey7wk I'm alot better I've found out by changing my diet has done wonders. I'm doing the keto diet
@suprarace diet is the key I'm almost totally carnivor I also followed intermittent fasting keep the belly empty and avoiding carbs works well for me
Shame on that benefits system 🤔
I was diagnosed this year with PAH and my life changed forever, I though 6 months was harsh but you say 8 years? I can't even imagine a life with these horrible symptoms for 8 years. sorry your symptoms are still harsh. are you doing Tyvaso?
you can pro with echo eamination,CT etc....
Think positive be thankful for everyday keep strong exercise is my saviour fatigue is a big part of this illness but believe me u will get used to it