Thank you! I'm much better now is the good news, still worry about it like anybody would but I've had 2 follow up scans and I'm fit as a fiddle now apparently 🙂
2 года назад+1
Perdón si hablo español but i will try to speak your langague. I had the same problem on may 27 in this year. I was very afraid but i am almost fine. I can't run but in can walk and do everything. I am happy for your recovery.
Im sorry you had to go through this too! I hope you can run again some day too, always on here or twitter if you ever need someone to talk to that gets it. 💜
So felt what you’ve been through.my daughter had VAD and was on life support for 4 days.Her brain swelled and she had to have a craniotomy.we didn’t know if she would survive.my grandson was only 7 months old..She came through it and recovered amazingly.I hope you you get better and stay well.
Im so sorry your family had to go through that too, though im chuffed shes recovering so well too! Sending all my well wishes to your daughter and family :-) x
I had a vertebral artery dissection in 2006, fortunately mine was diagnosed quickly, I had an MRI that day. I spent years searching the internet for another live human that had a similar experience with no luck. I stopped searching when Dr Google informed me that they are most commonly diagnosed in an autopsy. 😬 I wish all doctors would take the time to truly listen to every patient and not dismiss them when something isn’t right. How are you doing now?
Yeah doc google is rarely a person of joy for me lol. Im good thanks, i had a follow up mri scan just before xmas gone and they said its like 99% healed with a small irregularity left (scar tissue). The mental scars and like ptsd i guess are the worse part, im still ultra careful with my neck to an obsessive amount sometimes. Hope you are good now too and nice to meet you 🙂
@@RachaelRLE It hasn’t happened again and I didn’t have a stroke. It would have been nice to get a better answer than “sometimes they just happen spontaneously” as an explanation as to why it happened. I believe I actually felt it happen when getting something off a high shelf, I few hours later I was on the floor crying in pain. I’ve had a lot of neck pain in my life but that was unlike any of it. Every time you mentioned your vision problems in the video, I was trying to figure out why that wasn’t triggering the doctors into action. Intermittent vision problems are not normal and the disconnect with the closing of the laptop would have really freaked me out.
Yeah like i say they just seemed to think well im young and trans so meh the hormones are to blame.. i did complain to pals but doubtful anything will come of it. The freaky thing is i used to get 4 to 5 migraines a week for like 15 years straight no lie. Once i had the strokes they have vanished, not a single one in nearly a year now.
I have severe stenosis of V4 ..so sorry this stuff is happening to you… I have history of severe menstral migraines and high Bp caused by 6cm adrenal tumor, migraines gone after adrenalectomy. Newly diagnosed with FMD of carotids and also MALS. Thanks for sharing your story.
Thank you for sharing your experience. 💓 I was diagnosed with vad, 4/03/21. Don't know what caused it. I found your video through looking on how to recover from vertebral artery dissection... Therapeutic for me.
Your comment was lovely to wake up to but im sorry you had to have this happen too! The truth is you may never know what caused it to happen, Use that energy to be grateful for still being here and be careful with your neck for 3-6 months id say 💖
I feel like you encountered something very common among cis women.... the medical staff did not believe you and minimized yr symptoms. Loads of us go through this. .
Just found your vid. So sorry you had to go through that nightmare. Wishing you all the best for your health and life.
Thank you! I'm much better now is the good news, still worry about it like anybody would but I've had 2 follow up scans and I'm fit as a fiddle now apparently 🙂
Perdón si hablo español but i will try to speak your langague.
I had the same problem on may 27 in this year. I was very afraid but i am almost fine. I can't run but in can walk and do everything. I am happy for your recovery.
Im sorry you had to go through this too! I hope you can run again some day too, always on here or twitter if you ever need someone to talk to that gets it. 💜
So felt what you’ve been through.my daughter had VAD and was on life support for 4 days.Her brain swelled and she had to have a craniotomy.we didn’t know if she would survive.my grandson was only 7 months old..She came through it and recovered amazingly.I hope you you get better and stay well.
Im so sorry your family had to go through that too, though im chuffed shes recovering so well too! Sending all my well wishes to your daughter and family :-) x
I had a vertebral artery dissection in 2006, fortunately mine was diagnosed quickly, I had an MRI that day. I spent years searching the internet for another live human that had a similar experience with no luck. I stopped searching when Dr Google informed me that they are most commonly diagnosed in an autopsy. 😬 I wish all doctors would take the time to truly listen to every patient and not dismiss them when something isn’t right. How are you doing now?
Yeah doc google is rarely a person of joy for me lol. Im good thanks, i had a follow up mri scan just before xmas gone and they said its like 99% healed with a small irregularity left (scar tissue). The mental scars and like ptsd i guess are the worse part, im still ultra careful with my neck to an obsessive amount sometimes. Hope you are good now too and nice to meet you 🙂
@@RachaelRLE It hasn’t happened again and I didn’t have a stroke. It would have been nice to get a better answer than “sometimes they just happen spontaneously” as an explanation as to why it happened. I believe I actually felt it happen when getting something off a high shelf, I few hours later I was on the floor crying in pain. I’ve had a lot of neck pain in my life but that was unlike any of it.
Every time you mentioned your vision problems in the video, I was trying to figure out why that wasn’t triggering the doctors into action. Intermittent vision problems are not normal and the disconnect with the closing of the laptop would have really freaked me out.
Yeah like i say they just seemed to think well im young and trans so meh the hormones are to blame.. i did complain to pals but doubtful anything will come of it. The freaky thing is i used to get 4 to 5 migraines a week for like 15 years straight no lie. Once i had the strokes they have vanished, not a single one in nearly a year now.
I have severe stenosis of V4 ..so sorry this stuff is happening to you…
I have history of severe menstral migraines and high Bp caused by 6cm adrenal tumor, migraines gone after adrenalectomy. Newly diagnosed with FMD of carotids and also MALS.
Thanks for sharing your story.
That sounds like you have really been through the mill youself with all that going on. I'm sorry you are having to deal with it all ❤️.
Thank you for sharing your experience. 💓 I was diagnosed with vad, 4/03/21. Don't know what caused it. I found your video through looking on how to recover from vertebral artery dissection... Therapeutic for me.
Thanks again and God bless you 🙏💓
Your comment was lovely to wake up to but im sorry you had to have this happen too! The truth is you may never know what caused it to happen, Use that energy to be grateful for still being here and be careful with your neck for 3-6 months id say 💖
I'm here after I started reading Sharon Stone's biography. She had like a 9 day brain bleed...
.
Good video.... fascinating
I'm glad yr okay
Had my last scan yesterday so looking good fingers crossed! 🙂
Re anxiety... I suggest meditation called TM
Done by Jerry Seinfeld for example
I will check that out! Ive been using sleep talk downs and they are pretty useful I will say.
Goodness!
Damn definitely getting screwed around by haters!
Sharon Stone said she was freezing on the floor wrapped in a blanket. I just read stroke can causes you to lose yr temperature.
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I have had people say that too but for me I was in a very warm bath at the time and it was a block not a bleed so slightly different for me 🙂
Omg what a horrific story!!!!! Re diet... low carbs, high fat
#lchf
I feel like you encountered something very common among cis women.... the medical staff did not believe you and minimized yr symptoms. Loads of us go through this.
.