This is exactly the reason why I cant ever believe in any kind of "god" or "protector". With all the injustice in this world, all the evil people being perfectly fine and at the same time the most kind and good hearted people have to deal with the most pain. If there actually was a god who CARED about the people, it wouldnt be like this.
I understand that your angry & upset, with pain & suffering in this world & it really does suck. But the context is because of sin at the BEGINNING of mankind, came into the world through the first man Adams disobedience/rebellion against the LORD G0D. In the garden east of Eden God gave Adam trees to eat from & to his wife Eve, who was created FROM Adam being younger than Adam. He was the one who knew better & had more knowledge & understanding than she did. You see, satan knew Eve was younger & naive to things. So he knew he could approach her & deceive her telling her they won't die, if they eat from the tree, that GOD told them NOT to eat from( they could eat the fruit from every other tree planted there, for them, but that one tree of the knowledge of good & evil, they were not to eat the fruit, if they did they would die( which meant eternally & physically) Satan( taking on the form of a serpent, lied & said they wouldn't die, but would be like God, knowing good & evil, GOD is more than just this. Eve ate & encouraged her husband Adam to. But Adam wasn't decieved like Eve, but he disobeyed God & ate from the tree. Yes, their eyes of understanding EVIL & good, were opened, but because of their sin, it bought death into their bodies. They would DIE both spiritually( separated from God) & physically (death, sickness, disease would enter their bodies) From my understanding Death didn't exist until Adams sin. Before this they were able to eat from the tree of life & live forever. Sin & death came into mankind's flesh through Adam Sickness, death & suffering. They were given free will by GOD, but also Eve was decieved( the result was sin) & Adam disobeyed GOD. ONLY way for man to be REDEEMED & SAVED from sin & death, ultimately was GOD, coming into the world in the flesh( sinless) through the man Jesus Christ & Him paying the price for our sin debt. For the wages of sin is DEATH. But through the sacrificial Love of God, Jesus willingly laid down His life & took death from us & gave us his life, salvation & eternal life. Through HIS sinless blood, shed for us, we have forgiveness of sins. Now the relationship has been restored between man & GOD the father, Jesus Is that mediator. We are all Still to die physically( because death is in the flesh), but we NOW can have, forgiveness & ETERNAL LIFE promised by GOD through Jesus Christ. And the sting of death was broken, because it ISN'T permanent death, only of the flesh. We have Victory over sin through the blood of Jesus. If we want this, all we do is believe & trust in Jesus Christ, we confess with our mouth & believe with our heart the Jesus came in the flesh & died for our sins &, rose again on the third day. He went to prepare a place for us in His Father's house, He's seated at the right hand of the father in Heaven.. If we confess our sins to God, he is faithful & just to forgive our sins & cleanse us from ALL Unrighteousness. Yes Jenny died & that was awful way to suffer & die. But only her flesh died & she's NO longer having to live in this world of suffering & pain. She's FREE of it. She knows no pain or suffering anymore. She's In paradise, WAITING for her family, to join her. And we who believe, will be resurrected to life with them, in our new glorified bodies, like Jesus has. It WON'T be corrupted by sin. WE WILL BE FREE & WHOLE.. Sorry this was long, i just wanted to give you context. God didn't create sin, but made a way out, through Christ. You are loved, this is the TRUTH.
I am re watching Jenny’s journey all over again. It breaks my heart seeing the roller coaster ride she was on for so long!! I don’t know how she fought for so long through treatments, tests, clinical trials, etc. I just admire her bravery so much. And Kyle, what an amazing and supportive husband! My heart breaks that she is gone. ❤❤
That doctor is an absolute monster for putting you through so much pain!!! He knows better!!! I’m sorry but we as a medical community must do better for our patients!!! That’s what these meds are for!!!
I'm a breast cancer survivor and this makes me so angry. Jenny could have been spared some of this pain. They promised her an IV during the procedure. There is no other way to say it- its unnecessarily CRUEL to withhold those meds! These doctors need to communicate and PREPARE to keep their patients as comfortable and informed as possible! Praying hard for you Jenny!
Amen! I agree 💯 and just commented on it. There is no excuse! It kills me she was in pain for no reason whatsoever. She needs a patient advocate to help her and Kyle. I’m a two time breast cancer survivor and have learned you have to advocate for yourself but sometimes you’re too exhausted and overwhelmed. A patient advocate could really help. Her video broke me down and I cried for her. 💔 So unnecessary.
How DARE THEY LET HER BE IN PAIN?!!!!! I have been a nurse for 30 years and have taken care of cancer patients. Pain control was ALWAYS the first priority in their care! Shame on that staff! Kyle and Jenny need to go directly to the Medical Director at that hospital. They also need to speak with the Risk Manager and fill out a serious complaint !!!!!!!
I am so pissed off!!! FUCK CANCER!!!!!!!! I don’t understand why the good die young. Jenny’s and Kyle’s souls are meant to find each other. You can see the love they have for each other. I do believe that they will find each other in the next life
Why in the WORLD did someone NOT hit her IV with Fentanyl??? I am a breast cancer survivor, an my pain was SO EXCRUCIATING, the nurse hit me with Fentanyl in my IV and within 30 seconds it was GONE.
A lot of hospitals are absolutely terrible with pain meds these days due to restrictions. Most medical professionals, especially doctors, don't even know what pain is. That being said their hands are also tied.
Honestly her cancer care was atrocious. That's the main thing. Horrible horrible medical care is the most glaring thing out of this whole entire channel. Innocent sweet people tortured literally tortured. Atrocious
This!!!! Everyone here needs to see this!!!! I hope she and her loved ones see THIS!!!!! Its scary to know this is going on- how do they not know she is documenting everything and he perhaps just opened a door he could regret- thats my honest opinion here! Shame on this doctor!
Questions for the nurses if she had spoken up and demanded the I V pain meds could they have refused her the procedure on the ground of her demands? Just wondering
@@braxlucky5718 reschedule if that is what needed to be done- it was ordered as an emergency, if someone comes in that had been in a car accident and needed fluid extracted- they either came with Iv pain meds that was placed on scene or during transport or was placed when they arrived in the ER.
@@braxlucky5718 they can’t deny her the procedure. If anything they may have had to delay the procedure in order to get the meds. Perhaps even postpone for a different day. Sounds like her reaction was very unusual and took the pulmonologist by surprise. He doesn’t sound like a bad doctor at all.
Nurse here and I can't tell you how pissed off this makes me!! Too many doctors are so afraid of prescribing pain medications for fear of addiction, but you are dealing with cancer!!! There is no reason why you should be in so much agony!! Call your team and tell them what happened! This is beyond terrible!!
That pulmonologist should be held accountable for not letting you have the iv pain meds. Your team needs to have better communication with the hospital as well, seems like a miscommunication somewhere. No one should ever be in that much pain during or after a procedure and I'm SO SORRY this happened to you and your dealing with all this.
She wasn’t in any pain during her procedure she said. Pain meds during her procedure would have not done anything to help the pain she was feeling afterwards. It took the ER 6 hour to get her pain to a manageable level which I’m sure was with heavy duty IV pain meds.
@@Craftygirl56 I disagree. Pain meds during the procedure would've headed off the pain afterwards, or at lease made it more bearable. Regardless, her wishes and the promise she'd been given by her team about getting them was ignored, for whatever reason. That is unacceptable.
@@Craftygirl56 it would because it takes a while to wear of, I have had multiple surgeries on my feet and a wisdom tooth extraction which was done under local kept me pain free for a few hours afterwards
Have to agree. They shouldve had her well medicated to the point she didn't care. To put her thru all that pain. I think the hospital is wonderful but when someone's terminal they're suffering enough.
We must always bow to and trust the will of God regardless of whether or not things go our way. This is why our prayers MUST always end with "Thy will be done." Indeed, nothing is impossible for God; however, our will and ways are not His🙏
Me too l miss her too l had the privilege of finding her channel amd texting and things like that before she past l miss her ❤❤❤hope Winnie and Ellis okay ❤❤❤❤
I am a former nurse who dealt often with cancer patients and I am shocked and upset that Jenny did not get the pain medication that she was told she would get. Our healthcare system seems unkind and brutal in the face of such severe discomfort! There is no reason for her to have experienced this type of pain. I am hoping and praying that Jenny can get through this and rest. I would definitely speak to the doctors about what happened.
❤ Jeg blir så trist når du må gå gjennom den grusomme behandlingen uten smerte lindring !!!!!!Det går ikke ann å utsette pasientene med de smertene , det er vel nok smerter som du har hele tiden . Du er så sterk og flink , jeg ber for at det skal gå bra med deg og din canser diagnose love you for your opening in your canser , love you and your loving family ❤
I am a former RN and I am concerned that the pulmonologist didn't follow the plan of care and didn't have IV pain meds at the ready. When you see your regular doctor, have your chart flagged, that states that you MUST receive analgesic for any and all procedures. Im not happy that he didn't provide that care to you. ♡♡♡♡
As a nurse with 30+ years experience this is absolutely UNACCEPTABLE!! I'm so sorry you are going through all this and having to deal with uncaring MDs is beyond cruel!!
@@mynameismyname17 it’s so fucked up the world we live in now. Those doctors took an oath! Yet a man walks in wanting to become a female they’re all for it! This is what leads people to seek out the guy on the street corner. I know I would if it meant going through what you are! At the very least, have you thought about possibly Xanax? Arguably worse than opiates, but will provide relief.
I’ll never forget this day. I was seething for Jenny. Most of us were. I know she hopped on the day after and expressed she didn’t appreciate the negative backlash from us over the doctors not providing her pain relief, and at the time I became frustrated. But now I understand that she would have been concerned over damaging her relationship with the doctors that were responsible for trying to keep her alive, and she she didn’t like confrontation, she was gentle, and it would’ve made things very uncomfortable for her to have to face them after they got wind of the backlash. It just sucks so much. I can’t stand it when doctors or nurses dismiss a patients pain. This crap about addiction is not necessary when we’re dealing with something possibly killing you off. You need all the rest you can get and you don’t get any when you’re in chronic intolerable pain that prevents you from sleeping. Not to mention the detrimental effect on your mental state. I know there’s no point bringing this up now that Jenny has passed. Maybe there is a point. Maybe it’s so others who watched her go through this can push back when doctors gaslight and tell them they’re not really in pain.
I feel Jenny was used as a guinea pig experiment during her clinical trials and there was absolutely NO NEED for the full brain & spine radiation! The Dr's helped kill her faster! I am MAD!
As a nurse I am absolutely horrified that they didn't give you the I. V. that was promised, so unnecessary! Please in future don't be so nice and sweet considering the staff but put yourself first and insist on getting what you know you need. It's bad enough you having to deal with cancer you should definitely not have to suffer extra suffering. My heart goes out to you and to you Kyle who has to watch this very distressing situation. 💞
I’m so upset that U were that kinda of pain. Had to go thru that when u weren’t suppose to , and he’s asking you “what happened “ as of why are u back, 🤷🏻♀️ cause u did not give me pain med like u were suppose to. Ugh
@@dsemich Yes, but also the doctors need to better communicate with each other. She shouldn't have to ALWAYS be fighting like this; it's unnecessary. The doctor should have had the notes and should have followed them.
It is infuriating that a doctor clearly sees you’re in such severe pain and says “no we’re not going to do IV pain meds.” You have stage 4 cancer!!!! There is absolutely NO REASON in this day and age that you should be in pain. I know Jen is currently in hospice but seeing this video makes me so angry. Doctors not treating pain adequately is beyond frustrating. I’m so sorry she had to go through this. There’s just absolutely no reason she should.
It makes you wonder why they even develop these pain killing meds. if they refuse to use them. They often say they CAN'T when in reality they CAN they just won't. Or they come with the nonsense about opiate meds. being addictive. When you have stage 4 cancer pain, possible dependence has to be the last of your worries. It's heartbreaking and completely unesessary.
I agree k pain management is essential for a patient, you never deny a patient pain management, I’m literall chocked, I understand they don’t want to subscribe opioids unnecessarily but she has stage 4 cancer ! What’s the reason for pain medication if no one is allowed to use them , ridiculous, cancer pain is exactly why opioids exist , cuz they are so effective dealing with pain,
I am so sorry they are putting you through this horrible pain. As a Dr myself, I am livid that there is such a reluctance to adequately treat pain. I would call administration or the “header” of your team. They promised you pain control and failed miserably. No amt of gratitude should prevent you from demanding you get proper care.
I can’t agree more. Effective medications exist to control pain. Doctors are super stingy about using them, even in appropriate situations, because of abuse and addiction concerns. My mom was prescribed only 3-4 days of pain meds after open heart surgery. I had to act a plum fool to get her more pain meds for at least a full week. They’d just sawed her chest open!
@@ocky88Wow! I can’t believe doctor’s would do such a horrible inhumane thing. They used to keep you in the hospital for a week or more after heart surgery, now they throw you out as quick as possible and don’t give you pain meds? What? That’s insane and it ticks me off! This opiate crisis has gotten ridiculous! People in chronic pain aren’t addicts! I’ve been on meds for 15 years and I never take or seek more than the doctor gives me. The one’s OD’ing are the one’s using street drugs and not pain patients. Maybe they should stop letting illegals in with Fentanyl? Just a thought!!!🥴🤷🏻♀️ As a pain nurse, I have to ask you, do you think that they are stingy with actual pain patients, on the meds, because they are trying to push people into taking the newer drugs that are much more expensive, like Suboxone? I have been pushed by my pain doctor to try it, but I need long acting meds. I’ve seen videos of patients that take it and say that it is so much more addictive than the cheaper ones, and extremely hard to try to get off of, so I’ve stayed away from it and others like it. But, I hate that pain patients suffer because of this stupid fake crisis. Druggies will always find a way to get their next hit, but us patient’s rely on the doctor. I think they are pushing or forcing people to find a dealer, or commit suicide, by not helping them. It makes me very angry😡🤬
Jenny, I’m at a loss for words seeing you in so much pain. I’m a Registered Nurse and I’ve spent my entire career, so far 29 years, in End of Life and Hospice Nursing. There is no reason for you to be experiencing so much pain. We have so many meds available now for this exact reason. Our mission is comfort and dignity. I would love to reach through my phone and give you the biggest hug ever. Why they didn’t follow through with pain medication during your thoracentesis really baffles me. Don’t let them off the hook. I know you love them and they’ve been wonderful, but every single one of them has to be on board in order for all things to run smoothly. You are very strong, I can tell, but sometimes, like now, you don’t always have to be the hero. Let them know this was not okay. We love you 🥰.
I was an End of Life RN too. There is absolutely not reason for you to be in so much pain. Please communicate how you are feeling to your team. This should not have happened to you.
Oncology RN here. Completely!! Agree. You need more pain meds. Ask for a consult to their Pain Management team!! That will put the right people in your loop.
Jemny i would have brought my pain meds with so you can take them NOW. They should Have given you pain medication with that procedure. Im sure if it was one of their family they would have gotten it. Sorry but not sorry for saying this...Ugh!
Jenny, this is the time when you have to put all of your kindness and compassion for others up on a shelf in a pretty box and then you have to loudly voice your needs without worry about stepping on toes because this is a time when you must shout for your cares! I would’ve slapped that doctor when he said “WHY?”
Wow, watching this now, I truly see what an Angel of a person Jenny was to everybody she came in contact with. She apologized for being in pain to the specialist who drained her fluid without pain management hooked up. We can all learn from her. She treated everyone so kindly. She was truly an Angel on earth. Beautiful soul you are Jenny Appleford, beautiful, beautiful, beautiful. Continued prayers for Kyle and y'all's beautiful baby's. You really touched alot of people who didn't even know you, me included. I feel as though I've lost my best friend. Kyle hug those baby's tight because they are part of Jenny too. You took so great care of Jenny and your children. Its time to take care of yourself and do the things Jenny asked you to do. Jenny would want that for you. Much love to you and your kids and Jenny's family as well as all whom loved her.
Dearest Jenny. It was so difficult to watch you in so much pain. As nice as the pulmonologist might have been, he should have listened to you when you asked for extra meds. If you have to do this again, please know that it’s ok to stand your ground at moments like this. Meanwhile … Kyle, what an extraordinary man you are. The way you support Jenny is so inspiring. You don’t try to fix things you can’t fix. You just witness, advocate and love. It’s a beautiful thing.
I remember my mother in laws laryngeal cancer battle, they actually were removing her ocycontin so she didn't get addicted and she wasn't getting better, she had less than a year so what difference would it make if she got addicted?
I am a retired nurse, and I get so frustrated with the medical system. The first time, I had real hope when hospice became a reality. There have been other improvements, especially in surgery. But pain medication is moving backward.
I used to have thorentesis. I hated them so much. There were always a few moments that were especially unpleasant.. I’m a Stage four girl too. I’m so sorry you are going thru this. I’m praying for you Jenny!
The concern around pain meds and that doctors don’t want to subscribe because they’ll loose their license has GOT to stop. Jenny is not a drug seeker and should never be denied. Some doctors need there butts kicked. Jenny should always have pain meds with her. She shouldn’t have to keep asking. I’m a two time breast cancer patient and this is inhumane. Kyle you need to get angry. No more mister nice guy. Jenny needs you to be her advocate NOW!!!!!
Yeah, the health dept in Australia is the same. It's bcos these young people who are poly drug users, sadly have overdosed & found to have opiates & Benzo's in their system. They've usually had alcohol & pot & anything else they can & not just that day, they've likely binged for days til their bodies gave up. So due to cases like that health depts are coming down on what they deem to be overprescibing & it's managed to affect even terminal patients. Why are govt depts so black & white? What about grey?, like terminal patients, they should be exempt from this sometimes cruel policy.
Jenny your pulmonologist was lazy ! They don’t want to give pain meds because it slows things down. Never never let them say you don’t need pain medication. Stand your ground, don’t be nice. I mean it ! I’m a RN and it’s ridiculous they don’t accommodate you. I feel so angry !
I'm so scared of this I've had a horrific procedure that I was supposed to be put out and he lied they physically held me down for it , I've had the same procedure 7 time and was out for the other six thank you for yr honesty I will fight for my self after that and your engagement is everything thankyou ❤❤
That's what they do in the UK when you book in for an epidural for childbirth. They're really cheerful at the time of booking it on your records, but come the day they say not yet, you're not ready yet. Then when the pain is unbearable they say oops, too late, might as well give birth naturally now.
In the US it’s so anti-pain medication it’s ridiculous. I had an Endometrial biopsy a week and a half ago and no pain meds are offered or given. It’s excruciating pain during and afterwards. It’s so frustrating. 😢
Baby Girl, You are no longer in pain, you are laughing and singing. I’m so happy for you. I can’t stand to watch you in so much pain. We love you Jenny. ❤❤❤❤
My mother worked in the medical industry for 30 years and she always says you have to stand your ground. Even if you have to fight with your doctor, you have to fight for yourself
Oh Jenny, I know this video is now a couple day past in real time but what a jerk the doc was who wouldn't premeditated you for a painful procedure. You are so sweet, I am just so sorry. Continue to do your best and never be afraid to put your foot down and say "NO", not till pain is addressed. God bless you and Kyle.
Jenny and Kyle, What that pulmonologist didn't do for you to keep you from having this horrible pain is something that needs to be addressed with your care team. Someone dropped the ball. That pulmonologist, with his line of questioning, " What happened? Why are you in pain. He could have had a lot more empathy. He should have called your care team when your care you were supposed to get, didn't match up with what he was going to do. when you told him you were supposed to be getting IV pain meds and he said, " no, we're not doing that. " That's why you need Kyle with you. I know you don't like making waves but this pulmonologist failed you and that angers me. This should not have happened like this. You're over the worst of it. Rest, take your meds for pain on time and don't let the pain get to the point that it's intractable. It's been tough but you are tough. Praying for you, Kyle Little Miss Winny and that sweet young man Ellis. Just rest and regain your strength and equilibrium. You got this and GOD has all of you. ❤
@@queenbuzybee4074 the doctor didnt knowingly hurt her like that. If every procedure caused the patient that much pain they would not do them awake or with out pain management. Every person is different and every doctor should know this already. That said nothing in the video gave information to assume anything was done on purpose to traumatize her. I understand feeling for her. How can a normal person not? Wanting to lay blame on someone or thing is okay too but this is all cancers fault.
I’m so sorry sweetheart! I can’t imagine allowing someone to hurt like that when u can do something to prevent it! As a retired RN, it makes me furious! I was a chemo nurse, so my heart is more tender for cancer patients 🥲🙏🏻❤️
I'm bawling! As a Respiratory Therapist of 38 yrs...... this broke my heart to pieces!! I understand in certain situations they dont like to give the meds , and i literally get faint and nauseated watching these procedures. It's the only thing in my field that REALLY bothers me. I've always said that I'd be up a creek if I had to have this procedure done. God bless you and I pray things get better soon. 🙏
I'm so so sorry that you had to go through this, Jenny. Nobody should have to suffer this much. It's over now & you will always be remembered for being the fighter that you were and the most wonderful wife & Mom. It's so unjust that such a wonderful person should have to go through this.
I felt so helpless watching Jenny in so much pain. I can’t imagine how you feel, Kyle. Jenny I am just so sorry that you have to constantly having more and more medical trauma. I want to thank you for not showing a sanitized version of what you guys are going through. I think having a real, raw and honest look at what having cancer is like. I think that what you are sharing is really valuable for so many of us.
My beautiful brave 15 yr old son had 1 liter removed from around his heart with no medication because they had to do it quickly. They said he did an amazing job. I was so proud of him. He fought metastatic osteosarcoma for a yr before he passed. He had an upper thigh amputation and two lung surgeries plus the myocarditis. I was a beast when it came to his pain control and his pain care team. You have to scream loudly if you need too. Demand your support person always be with you. Covid rules are ridiculous when it comes to our loved ones. My son and I were in covid isolation for 14 days because they had a positive test once but then never again on multiple retests. It was ridiculous. I am so so sorry you are going through this. You are in my prayers. We all have to demand better care from our healthcare systems. The so called opioid crisis has caused so much unnecessary pain and torture to all with chronic pain conditions and other ailments. It is inhumane! 🙏💛🙏
You're so right about the opioid situation. My mum was in an incredible amount of pain following this procedure and went into hospice care and passed away 6 days later. We asked for pain meds for her and they said "we can only give paracetamol as they are addictive". Addictive... Does it matter if you need them irrespective of how long or little you have left. It makes me so sad. Xx
Ummm I’m a nurse who used to do a LOT of thoracenteses. Some people can do them no problem with zero pain. Great. Some people NEED pain medication. And we give it! Because it’s humane! I’m so sorry Jenny, you were desperately failed. Shame on those who denied you the pain control you deserved.
Dearest Jenny, as an RN and now breast cancer patient, I feel so bad for you. There is NO reason for you to be in pain - NONE. Please don't ever suffer like this again, please. You are right to be concerned for your children - and SAY THAT to those doctors. Bless you, Kyle. Jenny, love and prayers always.
With a 20 year history of chronic pain, I don’t think it’s ever possible to alleviate all pain, especially nerve pain, which is very hard to control, at least in my case. But, that doesn’t mean they shouldn’t try! It’s inhumane; they’d treat your dog better🤬😡
Doctors are allocated a set amount of painkillers they can prescribe before the doctor looses their prescription license and the patient is restricted or cutoff. this is current DEA policy. they are also responsible for production cuts ensuring shortages. So NO doctors cannot prescribe amounts necessary to control pain only enough to take the edge off. As for fentanyl they caught a guy in town with 95lbs of it .What else can you do when the DEA cuts you off from legal painkillers
I hope there are at least a few medical professionals reading this because this comment is for all of you. Medical PTSD is a real thing. It doesn't happen to us because of what we have to go through with our illnesses and injuries. It happens because of the callous treatment we far too often have to endure from the people "helping us". When we are terrified, in agony, feeling like we may die at any moment, and otherwise at some of the very lowest points of our lives, your actions and words matter far more than you can possibly imagine. If you are ever tempted to allow a patient to suffer in any way while you possess the means to ease that suffering even a little, you are causing them pain far worse than anything their bodies can manage. From a suffering patient's perspective, being denied relief by the very people who you have litterly handed ultimate control of your body, while knowing they have the ability to reduce your suffering, has no less emotional impact than actual torture. I can't begin to tell you how many times I was forced to endure horrific "procedures" while fully awake and alert because, and I quote: "If I sedate you, I'll have to arrange for nurses to monitor you afterward." I know you believe that's a justifiable reason but nothing you can possibly say will ever get me to agree with you on that issue. It seems that hospitals have become so preoccupied with doing everything possible to prevent physical harm to their patients that they have completely lost sight of the fact that the mental damage they cause by doing so is equally, if not more, harmful and dangerous.
If anything happened to you and a nurse wasn't there, the hospital could blame it on the doctor who the hospital believed to not have called attention for your care. So, I get what you mean, but it's also a double edge sword. Maybe, I am wrong though and the doctor was lazy about it.
This is absolutely heartbreaking to watch. I can’t believe they failed you regarding managing your pain throughout your treatment. Bless you sweetheart you are a true warrior ❤️❤️❤️
Oh, Jenny! It’s just not right! I see people like you suffering from cancer when the monsters of this world are fine to go out and destroy! Hang in there, you’re a brave woman and have shown nothing but courage and grace! You need to be your own advocate! You know what your body needs better than the doctors no matter how nice or how good they are! When the doctor asked what happened that’s when you should have said I told you I needed pain meds before this procedure! I hope by now you’re much better! Kyle, be strong! You’re her rock as I’m sure you know! It must be so hard to watch her go through this! Praying, sending hugs! ❤️🙏
@@HL-qv3yd Sometimes I get so upset by people suffering from this disease I actually start to think that cancer is a conspiracy! Too many people are getting rich off of cancer! I wonder if they know the cure but are too greedy to share it! Call me weird!
@@Dranma51 no I agree with you, care has gone, whether it was ever there.Who knows, I doubt it.Not letting Kyle support her is so cruel, one follower has even suggested she should get counselling so she can support Kyle as Nd the children. Looking what she is going through makes me weep.
@@Dranma51 You are described exactly my thoughts, I think exactly same as you lots of time, it's sounds like a big business, they found out how to go space, found vaccine for covid in a short time because of their economy, it feels like they don't wanna found a cure, it's a big money earning, it makes me angry so many people loosing their life precious life's suffering.
I’m so angry and disappointed at the lack of pain management. Jenny you should never have to be in that much pain. I think you hit the nail on the head, you’re worried about hurting the doctor’s feelings or “failing” but please please remember, they don’t have to go home after the procedure and sit in agony. Doctors are consultants that we hire to perform a service. You never have to go through a procedure without pain meds, or in general. You are the boss of your care and you know you best. I am so, so sorry you had to go through this. Sending prayers and healing hugs ❤
I agree. Jenny please never worry about hurting a dr's feelings because you need to ask for pain medicine. Managing your level of pain is paramount. Dr's won't know unless you speak up. I don't like feeling like I'm causing waves or inconveniencing someone, but keeping your pain low is so important. That doctor wasn't thinking. If he had seen what happened with your last one then he would have understood more why you were supposed to get the meds before so you wouldn't have this level of pain again. 😭😭😭😭
That upsets me he said, "No, we're not doing that today.". I totally understand you not wanting to push it. At the very least you guys, meaning Kyle, should contact her main dr to share what happened and that it needs to not happen again. Let them handle it. I'm so sorry you are going through all this. You are doing great. You are so brave and strong. I know, it's not like you have a choice but just hanging on takes so much strength & bravery. You deserve a fantastic treat. We are all out here rooting for you♥️
What ticks me off the most is that same sadist Dr went to her in the ER and asked, "WHAT HAPPENED? I DRAINED THE FLUID TO HELP YOUR PAIN"! As if he never heard her say she was supposed to get IV sedation before the procedure. Until he goes through that with no pain relief, he should judge a patient he just met and caused to have this pain!
Jenny, you never EVER have to feel guilty or stupid about your pain, and you certainly don’t have to apologize to anyone! I also feel Pulmonology needs to touch base with your pain management team and get on-board with your pain management protocol as this shouldn’t have to happen! Sending you lots of prayers and hugs daily. I know cancer totally sucks as I was diagnosed with breast cancer in 2021. Keep fighting girl….you are one tough cookie and have lots of people praying for you! Here’s a virtual hug for you! ❤
Jenny, I am not a cancer survivor, but I was my brother's caregiver, who was diagnosed with stage 4 lung cancer. Your husband is doing a great job! Just make sure to always share everything with him, he can help! I hate cancer, but I love that you two are so close. Always praying for you!!
Nice doctor or not- if you have an arrangement of any kind, make sure it is honored! It was ridiculous that the pulmonologist rejected your statement. He had an ethical obligation to at least take 5 minutes to verify what you said. I hope you’re feeling better Jenny and I’m sorry you went though such agony unnecessarily.
@@MegglesEST1983Oh, come on! Be a little more caring. She didn’t think it was going to be so bad and it sounds like they were rushing her. Doctor’s have a way of making you think that they no what they’re doing, but they are just practicing on you. Next time I hope she will remember this, chastise the doctor and get whatever relief is possible. We’re both just viewing her life through videos, which isn’t the best way, so have some mercy. Remember that the mercy you give, is the mercy you’ll receive!
I am appalled that they can’t keep Jenny out of pain. There is no reason she should be made to suffer like this. Where are her doctors and why aren’t they helping her.😢
I cant believe Jenny had so much pain, spoken to like she was, handled like she was, she was really hurted by some idiot woman, she is the sweetest girl in the world, im watching kyle now, love how he is doing
Just watched this late at night in bed. Heart rending, I am angry they did not give you the pain meds, he made a big mistake. A friend always reminds me we need to be our own advocates, speak up and insist you get what you need or don't go ahead with it. This tore me up just watching this, I hope for any future tests You demand all the help you can get. I hope your better now and home resting. This was 2 days ago, take care of yourself and put your foot down next time and speak up for yourself. I am praying for peace and rest for you, these Drs do not know everything, they make mistakes too. Sleep well. God be with you all.
I’m outraged with the care you and so many are receiving. The needless suffering is horrible. Doctors promised to do no harm and every day I’m hearing of more and more patients suffering. Love and prayers always
I am so sorry Jenny. We all just want to reach through our screens and hug you, rub your back, and tell you it will be better. You are so sweet and thoughtful to keep us posted even as you suffer that terrible pain. I was so happy at the beginning of your video that COH was getting you in to get going on your tests but crying along with you at the end. Stay strong sweet Lady. We are all praying and standing beside you and Kyle. Much love…..
I am so sorry that you are having to go through all of this. The next time if you should require a thoracentesis, do not allow them to do it without the IV pain management as planned by your team. It's completely OK and acceptable to advocate for yourself and it isn't going to hurt anyone's feelings. Just let them know that IV pain management during the thoracentesis is a part of your treatment plan and is not optional. I will continue to lift you, and your precious husband, Kyle, and all of your family up in prayer.
I am so sorry for your pain Jenny and I couldn’t help but cry with you and for you! Please, don’t be shy about insisting on IV meds for procedures. That is just cruel that you were not given pain meds during this procedure!! Do not worry about anyone’s feelings!! You know your own body!! Sending love and prayers to you!!❤
Jenny needs to learn how to FIRMLY advocate for herself . Even she admits she is a people pleaser. You absolutely need a patient advocate and should talk to one at City of Hope because they should know how poorly the physician tended to your pain.
Jenny was so blessed to have a wonderful husband supporting her throughout the struggles and pain. You are an amazing husband and dad! Jenny passed away knowing how much you loved her. Prayers and blessings to you and children.
Jenny, "May the force be with you" I would be crying too. You are such a brave young soul, as an RN I know how it is for you. Keep up the pain meds, you will be surprised how much easier it will be to breathe. NEVER EVER say that you are stupid. Oh, Kyle, you are such a brave man, it must be so frustrating for you. Prayers going your way.
This is beyond heartbreaking…and inexcusable behavior by that doctor. I saw my mom go through this with zero pain meds and it was agony. Sending you so much love and prayers ❤️❤️
I can not believe they would let someone be in this much pain. Oh, sweetheart, I wish that doctors would communicate and make it all go away. I am praying for you Jenny. You have a wonderful support and a wonderful husband. Keep up the good fight.
Jenni, I feel GUILTY for saying but at the same time, I feel the need to express that you are the reason along with our lord almighty and my children why I gave up smoking. I feel such a huge guilt for smoking and your going through this as a non smoker. It breaks my heart. You are being inspirational now and even after you have gone to heaven. Bless you and love you ❤
I think, with as much tragedy as this is, and all the pain that was put on her and her family, a number of things from this effect a lot of people for good- if one gets my meaning.
Dear Jenny and Kyle, just happened upon you and your story. City of Hope caught my ear because my mother was a patient there in the days when it was a tuberculosis sanitarium. She was in her early thirties when TB got her. She was an inpatient for three years! My two older sisters were placed in foster care because in those days they removed children from the home if TB was involved. The authorities meant well. They felt my mother could not care for the girls, then 5 and 2. The trauma of that separation permeated my family. My mother survived, and she was reunited with her children and my father. I was a total surprise seven years later. We heard about City of Hope as I was growing up but I never went there. However, my mother contributed to it all her life. She lived to be 96! And she was a wonderful mother like you are, Jenny. Miracles still happen and I pray for one for you. You are both just beautiful and despite the sadness, there are moments you get me laughing. The kids are darling. God bless you in your fight and may you win like my mom did. There was no real treatment for TB back then . Just bed rest. She told me that when she had "pleurisy" the doctor came and just stuck a knife in her ribs and twisted it to drain the pus and fluid out. Can you imagine that? I can't. She couldn't even touch her babies but they would come and visit her by playing on the sidewalk and she would look out her window and wave to them from her second floor room. She had a "window bed". That is pain I can't imagine either. I'm watching your video of you lying flat. What a brave girl you are to face your fears. Keep pushing through the fear. Courage is not the absence of fear, but the ability to push through it. You got it going on!
I have been following your journey, although I have never commented on a video before. I happened to see your video right before my family went to church this morning and I was incredibly moved by your perseverance and grace while in so much pain. Both you and your husband handle things with more grace than most of us will ever understand. I just wanted you to know that our pastor asked if there was anyone in our lives who needed healing or God's provision, and your beautiful face flashed before my eyes. I prayed for you and your family today, and I hope that you somehow felt the love and peace that I asked God to bestow upon you. I will continue to pray for you and for your sweet family. ❤
As an understanding and fellow professional patient (not cancer but chronic pain and nausea, etc). I am so sorry the (not YOUR) pulmonologist didn’t listen and denied you the meds (sadly I have been in the same boat many times). For the past 33 years, I have had 45-50 brain surgeries due to a chronic condition with more to come. Within the span of a year I had 30 surgeries, along with many infections. I ended up badly malnourished, unable to walk unassisted, keep any food down requiring a permanent feeding tube. My pain is completely disregarded (by most ER and providers who don’t know me), I get accused of faking and just being there for the opioids. My nausea is also 24/7 (if I bother going to the ER, any oral meds definitely a NO! I have to puke to appease them before they listened). I hear all the excuses: too young, don’t seem that sick (when I worked, I faked until I made it through the day). I understand and hear your frustration. I’m thinking of you and rooting for you! YOU GOT THIS! ❤
My friend, I so feel ya. ☹️ chronic pain- sometimes they call us Warriors- - but I never feel like a warrior. I feel like a sufferer. I have fibromyalgia, osteoarthritis and controls, etc. etc. I’ve had two hip replacements and a revision and my knees are totally gone and I’ve needed them replaced five years but I don’t honestly feel like I’m up to that rehab because I am not very well. I think we knowing as much as we do about the struggle we have getting pain meds, that it takes us off even more seeing Jenny in this much pain when she didn’t have to be. It just sickened me. Yeah I’ve been called a drug seeker … all the things. That was back in 2008 after my 2007 hip replacement that went bad. The doctor didn’t believe that my hip hurt me because the “x-ray is perfect”. Then I got the “you’re just here seeking drugs” line. Ugh. It sure looks like you’ve been through the mill, and then again. I’m so sorry 😞 Take care of yourself, as best you can. (((hugs))) nan❤️❤️✌🏻
I feel bad ‘liking’ your post but I’m sending you lots of love. I am retired now but after over 40 yrs as a nurse I’ve seen so many things like this and have had so many arguments with Drs over issues like this. It’s not what should happen. I’ve also been a cancer patient and been on the end of long waits, over dosing of epidural drugs and over loading of fluids. I believe I’m only still here because of my training and another patient telling me in my semi conscious state that I was blowing up like a balloon= I stopped the drip and but the emergency button! Even after one team stopped the fluids and got me on diuretics another team did a ward round and tried to restart the drip 🙄. As much as we are all so appreciative of our healthcare, too many things go wrong for many.
This just popped on my feed and as much as I miss seeing Jenny, but hearing her say that “She can’t do this anymore”. Makes feel comfort in knowing she is not in pain anymore. She won cancer! Our Jenny is at peace and pain free🙏. She is a beautiful angel watching over her precious family ❤❤❤
Former oncology nurse: You were right not to take pain meds due to the fact that you were assured that you would get IV pain meds. If a thoracentesis needs to be done again your doctor needs to write a note to give IV pain meds no matter what. You have the right to insist on the pain meds. You can even refuse a treatment if they are not going to properly medicate you. This will not make you a difficult patient. This will make you an advocate for yourself. You guys are both so nice that no one will ever think you are a “problem patient”. Also, if the pain doctor is difficult to get a hold of, you can still get a hold of your NP or your nurse and they can page the pain doctor. This is one of those situations in which your pain doctor will want to be notified.
WHAT????? Did you see her last lung draining procedure????? I can’t, just can’t!!!! My brother was in MISERABLE pain untilI I had to scream like a lunatic to get his pain under control…and guess what, it worked.
Hi ,,, pancake day4866 ,,, I was diagnosed 2019 ,, with MDS ,, I have a cancer Dr & her assistant ( Dr ) she told me it is probable ,, she was just gonna watch it ,, I have anemia bad ,, always has but goes away ,, well the other Dr came in said yes it’s MDS give me paper on it ,, told me to research it ,, we’ll need to say I’m having all kinds of problems ,, do you have any ideas ,, I could ask when I go back in January ,,, thanks
Comment #2 after watching. My heart is broken 💔 that this was so terribly painful. I do so appreciate you working so hard to share this journey with us. I have multiple myeloma…. and honestly cannot imagine how hard it must be to record and edit these videos to share with us. But it means a lot. 🙏🏻
Rest in peace. It broke my heart to see what u want through. Really, they worry about addiction!!! She went through hell because of this harsh pain, poor woman.
Jenny, I am so sorry you weren’t pre medicated for the pain. As a retired nurse I get upset when this happens. If there is a next time, stand up for yourself even though it’s extremely difficult. Make sure it’s ordered with pre and post medication. The protocol and amount of staff is different. That does not matter as much as what you have to go thru. Sending lot’s of love and gentle hugs your way. Prayers for all of you continue.
I am so sorry Kyle, and all family members and friends who have anyone sick with cancer. Yes it’s hard for the patients, really hard. But speaking as a family member of someone who had stage 4 lung cancer, it’s extremely hard, I felt so helpless. So praying for all of you. Bless your sweet heart Jenny.
Thanks for speaking up. I was thinking that it wouldn't hurt to let the kid's stay overnight with the relatives ( or even a few days if possible ) because it's hard seeing their mom in pain and just as stressful for them.
I just watched the new video and went through these comments. First the video was so heartbreaking for everyone to watch. I think all of the comments are coming from a place of caring for you and that they, as a cancer center, have a responsibility to follow through with OV pain meds with this procedure with you no matter what. This is the second time you have gone through excruciating pain and that is not acceptable whatsoever. I would articulate it to them that you are not doing this without proper pain management ever again. Advocate for yourself and have Kyle do it too. This is unacceptable. We all love you and care about this pain that you are enduring. It’s not negative, but it is upsetting that a cancer center did this without proper pain protocol. Unacceptable
This is so incredibly unbelievable. As a nurse, I wish someone in the procedure could have been your champion. Someone should have clarified the orders for your pain meds during your procedure. I’m so sorry that you are unnecessarily going through extra pain.
Jenny I am sorry for your pain and Unnecessary traumatic stress. You need to know that you can refuse treatment until the doctor listens and pre-treats with iv pain medication. As a transplant nurse I stopped a doctor from doing a bone marrow biopsy when he refused to premedicate and thankfully my medical director backed me up. You and Kyle and the entire family are in my daily prayers.💕💕💕🙏🙏🙏
Jenny, please don’t give up! My brother in law is recuperating from lung cancer. He’s also had lymphoma and colon cancer. He just finished his chemo and radiation. He’s doing well, I’m sure you will as well. We’re all praying for you!!
I have endured a plural effusion and could not catch my breath. I’m also a lung cancer survivor so I can truly understand some of the pain that goes along with this path. I’m so sorry that you had to endure this.
With her in so much pain I wanted to scream “Give her the pain medication….NOW!!!” Like Shirley McLaine in Terms of Endearment. They have the ability to alleviate all her pain, JUST GIVE HER THE PAIN MEDS!
The specialist should have given you something for the pain either before and/or after the procedure, Jenny. This was not necessary and you are incredibly strong. Sending you love and prayers for you and Kyle. ❤️🇨🇦🙏🙏🙏
Jenny, regardless of what is going on, you are always Lady Courage! So brave, yet also completely honest. That combination is what we love about you. Being vulnerable is a mark of great strength. Never fear the unknown. Allow God to take care of that. He sees and knows everything that we don't. That's why we need to trust Him 100 percent with the present, and the shifting outcomes of our lives and future. May His will be done in your life. Much love and many bear hugs from Michigan❤️💐🙏
Elizabeth I'm crying too ..ur words are my words in Ireland 🇮🇪 as a cancer patient I'm angry at the doctors fir jenny .them pain meds shoukd have been given
It doesn’t help she’s going to die in a few weeks. Her family is what matters not strangers. Think she’d rather stay for her babies and husband than ‘touch’ a bunch of strangers.
The longer I listen to you describe what’s happening the madder I get! I am a nurse, and I am outraged at how our patients her being treated in critical tests and procedures
I am a retired nurse and the politicians are in control of how doctors treat pts. It’s disgusting. I bet if they are in pain all rules are out the window.
I absolutely hate how YT flagged this for c0vid misinformation.. From one oncology patient to another, I'm sending you SO much love Jenny, all the way from New Zealand xx
I agree with you. It is ridiculous how they claim "trust the science" and then go against it! YT has been banning and shadow banning for a long time. It is pure censorship and info manipulation. I am not sure you will even see this. Blessings and God's justice and mercies to NZ.
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There is no reason a person should suffer needlessly 😢
Jenny was the sweetest soul. She didn’t deserve any of this crap. She should’ve been able to watch her babies grow up.
This is exactly the reason why I cant ever believe in any kind of "god" or "protector". With all the injustice in this world, all the evil people being perfectly fine and at the same time the most kind and good hearted people have to deal with the most pain. If there actually was a god who CARED about the people, it wouldnt be like this.
I understand that your angry & upset, with pain & suffering in this world & it really does suck. But the context is because of sin at the BEGINNING of mankind, came into the world through the first man Adams disobedience/rebellion against the LORD G0D. In the garden east of Eden God gave Adam trees to eat from & to his wife Eve, who was created FROM Adam being younger than Adam. He was the one who knew better & had more knowledge & understanding than she did. You see, satan knew Eve was younger & naive to things. So he knew he could approach her & deceive her telling her they won't die, if they eat from the tree, that GOD told them NOT to eat from( they could eat the fruit from every other tree planted there, for them, but that one tree of the knowledge of good & evil, they were not to eat the fruit, if they did they would die( which meant eternally & physically) Satan( taking on the form of a serpent, lied & said they wouldn't die, but would be like God, knowing good & evil, GOD is more than just this. Eve ate & encouraged her husband Adam to. But Adam wasn't decieved like Eve, but he disobeyed God & ate from the tree. Yes, their eyes of understanding EVIL & good, were opened, but because of their sin, it bought death into their bodies. They would DIE both spiritually( separated from God) & physically (death, sickness, disease would enter their bodies) From my understanding Death didn't exist until Adams sin.
Before this they were able to eat from the tree of life & live forever.
Sin & death came into mankind's flesh through Adam Sickness, death & suffering. They were given free will by GOD, but also Eve was decieved( the result was sin) & Adam disobeyed GOD. ONLY way for man to be REDEEMED & SAVED from sin & death, ultimately was GOD, coming into the world in the flesh( sinless) through the man Jesus Christ & Him paying the price for our sin debt. For the wages of sin is DEATH. But through the sacrificial Love of God, Jesus willingly laid down His life & took death from us & gave us his life, salvation & eternal life. Through HIS sinless blood, shed for us, we have forgiveness of sins. Now the relationship has been restored between man & GOD the father, Jesus Is that mediator.
We are all Still to die physically( because death is in the flesh), but we NOW can have, forgiveness & ETERNAL LIFE promised by GOD through Jesus Christ. And the sting of death was broken, because it ISN'T permanent death, only of the flesh. We have Victory over sin through the blood of Jesus. If we want this, all we do is believe & trust in Jesus Christ, we confess with our mouth & believe with our heart the Jesus came in the flesh & died for our sins &, rose again on the third day. He went to prepare a place for us in His Father's house, He's seated at the right hand of the father in Heaven..
If we confess our sins to God, he is faithful & just to forgive our sins & cleanse us from ALL Unrighteousness.
Yes Jenny died & that was awful way to suffer & die. But only her flesh died & she's NO longer having to live in this world of suffering & pain. She's FREE of it. She knows no pain or suffering anymore. She's In paradise, WAITING for her family, to join her. And we who believe, will be resurrected to life with them, in our new glorified bodies, like Jesus has. It WON'T be corrupted by sin. WE WILL BE FREE & WHOLE..
Sorry this was long, i just wanted to give you context. God didn't create sin, but made a way out, through Christ.
You are loved, this is the TRUTH.
Paradise may be boring
I am re watching Jenny’s journey all over again. It breaks my heart seeing the roller coaster ride she was on for so long!! I don’t know how she fought for so long through treatments, tests, clinical trials, etc. I just admire her bravery so much. And Kyle, what an amazing and supportive husband! My heart breaks that she is gone. ❤❤
That doctor is an absolute monster for putting you through so much pain!!! He knows better!!! I’m sorry but we as a medical community must do better for our patients!!! That’s what these meds are for!!!
I'm a breast cancer survivor and this makes me so angry. Jenny could have been spared some of this pain. They promised her an IV during the procedure. There is no other way to say it- its unnecessarily CRUEL to withhold those meds! These doctors need to communicate and PREPARE to keep their patients as comfortable and informed as possible! Praying hard for you Jenny!
Bunch of jerks. I am livid. I am a retired RN and cancer x2 survivor. This did not need to happen.
I agree it’s inhumane to let someone suffer like that !
Totally agree with you,it’s barbaric in this day and age.😢
Amen! I agree 💯 and just commented on it. There is no excuse! It kills me she was in pain for no reason whatsoever. She needs a patient advocate to help her and Kyle. I’m a two time breast cancer survivor and have learned you have to advocate for yourself but sometimes you’re too exhausted and overwhelmed. A patient advocate could really help. Her video broke me down and I cried for her. 💔 So unnecessary.
I agree! 👍
She just suffered SO MUCH the last year. It breaks my heart they could have done more to make her comfortable
How DARE THEY LET HER BE IN PAIN?!!!!! I have been a nurse for 30 years and have taken care of cancer patients. Pain control was ALWAYS the first priority in their care! Shame on that staff! Kyle and Jenny need to go directly to the Medical Director at that hospital. They also need to speak with the Risk Manager and fill out a serious complaint !!!!!!!
I am so pissed off!!! FUCK CANCER!!!!!!!!
I don’t understand why the good die young. Jenny’s and Kyle’s souls are meant to find each other. You can see the love they have for each other. I do believe that they will find each other in the next life
She NEVER should have had to endure so much pain throughout her horrendous journey!
Why in the WORLD did someone NOT hit her IV with Fentanyl??? I am a breast cancer survivor, an my pain was SO EXCRUCIATING, the nurse hit me with Fentanyl in my IV and within 30 seconds it was GONE.
A lot of hospitals are absolutely terrible with pain meds these days due to restrictions. Most medical professionals, especially doctors, don't even know what pain is. That being said their hands are also tied.
Honestly her cancer care was atrocious. That's the main thing. Horrible horrible medical care is the most glaring thing out of this whole entire channel. Innocent sweet people tortured literally tortured. Atrocious
As a nurse, I am APPALLED! I’m so sorry Jenny! I’m
So sick of doctors withholding HUMANE treatment!
This!!!! Everyone here needs to see this!!!! I hope she and her loved ones see THIS!!!!! Its scary to know this is going on- how do they not know she is documenting everything and he perhaps just opened a door he could regret- thats my honest opinion here! Shame on this doctor!
Yes I too am a nurse and a patient and a mother who has seen these types of things happen more often than they should, here in Australia.
Questions for the nurses if she had spoken up and demanded the I V pain meds could they have refused her the procedure on the ground of her demands? Just wondering
@@braxlucky5718 reschedule if that is what needed to be done- it was ordered as an emergency, if someone comes in that had been in a car accident and needed fluid extracted- they either came with Iv pain meds that was placed on scene or during transport or was placed when they arrived in the ER.
@@braxlucky5718 they can’t deny her the procedure. If anything they may have had to delay the procedure in order to get the meds. Perhaps even postpone for a different day. Sounds like her reaction was very unusual and took the pulmonologist by surprise. He doesn’t sound like a bad doctor at all.
Nurse here and I can't tell you how pissed off this makes me!! Too many doctors are so afraid of prescribing pain medications for fear of addiction, but you are dealing with cancer!!! There is no reason why you should be in so much agony!!
Call your team and tell them what happened! This is beyond terrible!!
IT MAKES ME FURIOUS THE WAY THEY MADE HER WAIT!😡😢
That pulmonologist should be held accountable for not letting you have the iv pain meds. Your team needs to have better communication with the hospital as well, seems like a miscommunication somewhere. No one should ever be in that much pain during or after a procedure and I'm SO SORRY this happened to you and your dealing with all this.
well said..
I agree!
She wasn’t in any pain during her procedure she said. Pain meds during her procedure would have not done anything to help the pain she was feeling afterwards. It took the ER 6 hour to get her pain to a manageable level which I’m sure was with heavy duty IV pain meds.
@@Craftygirl56 I disagree. Pain meds during the procedure would've headed off the pain afterwards, or at lease made it more bearable. Regardless, her wishes and the promise she'd been given by her team about getting them was ignored, for whatever reason. That is unacceptable.
@@Craftygirl56 it would because it takes a while to wear of, I have had multiple surgeries on my feet and a wisdom tooth extraction which was done under local kept me pain free for a few hours afterwards
Literally hours of pain.. that’s so ridiculous and uncalled for, especially in a patient with limited life expectancy. What the hell.
Have to agree. They shouldve had her well medicated to the point she didn't care. To put her thru all that pain.
I think the hospital is wonderful but when someone's terminal they're suffering enough.
Exactly the hospital wrong for that
RIP Jenny 😢 . You were a warrior. Gone too soon.
I have you continuously in my prayers….As a nurse I can tell you that I have seen miracles. Nothing is impossible for our Lord Jesus!
100%
We must always bow to and trust the will of God regardless of whether or not things go our way. This is why our prayers MUST always end with "Thy will be done." Indeed, nothing is impossible for God; however, our will and ways are not His🙏
Amen 🙏 🙏
🥰🥰🥰
❤
Rewatching videos, I miss you Jenny.
Same
Me too l miss her too l had the privilege of finding her channel amd texting and things like that before she past l miss her ❤❤❤hope Winnie and Ellis okay ❤❤❤❤
I am a former nurse who dealt often with cancer patients and I am shocked and upset that Jenny did not get the pain medication that she was told she would get. Our healthcare system seems unkind and brutal in the face of such severe discomfort! There is no reason for her to have experienced this type of pain. I am hoping and praying that Jenny can get through this and rest. I would definitely speak to the doctors about what happened.
Keep the faith! Your a true Warrior!
They don't care. How many are they k! L.ling by their ba.j
❤ Jeg blir så trist når du må gå gjennom den grusomme behandlingen uten smerte lindring !!!!!!Det går ikke ann å utsette pasientene med de smertene , det er vel nok smerter som du har hele tiden . Du er så sterk og flink , jeg ber for at det skal gå bra med deg og din canser diagnose love you for your opening in your canser , love you and your loving family ❤
I have lost all faith in the medical professionalm
I am a former RN and I am concerned that the pulmonologist didn't follow the plan of care and didn't have IV pain meds at the ready. When you see your regular doctor, have your chart flagged, that states that you MUST receive analgesic for any and all procedures. Im not happy that he didn't provide that care to you. ♡♡♡♡
As a nurse with 30+ years experience this is absolutely UNACCEPTABLE!! I'm so sorry you are going through all this and having to deal with uncaring MDs is beyond cruel!!
Yes. Stage 4 cancer it’s disgusting. Hand over the damn fentanyl doc
@@mynameismyname17 it’s so fucked up the world we live in now. Those doctors took an oath! Yet a man walks in wanting to become a female they’re all for it! This is what leads people to seek out the guy on the street corner. I know I would if it meant going through what you are! At the very least, have you thought about possibly Xanax? Arguably worse than opiates, but will provide relief.
Where do you live? It doesn't make sense ,the treatment your getting!
I’ll never forget this day. I was seething for Jenny. Most of us were. I know she hopped on the day after and expressed she didn’t appreciate the negative backlash from us over the doctors not providing her pain relief, and at the time I became frustrated.
But now I understand that she would have been concerned over damaging her relationship with the doctors that were responsible for trying to keep her alive, and she she didn’t like confrontation, she was gentle, and it would’ve made things very uncomfortable for her to have to face them after they got wind of the backlash.
It just sucks so much.
I can’t stand it when doctors or nurses dismiss a patients pain. This crap about addiction is not necessary when we’re dealing with something possibly killing you off. You need all the rest you can get and you don’t get any when you’re in chronic intolerable pain that prevents you from sleeping. Not to mention the detrimental effect on your mental state.
I know there’s no point bringing this up now that Jenny has passed. Maybe there is a point.
Maybe it’s so others who watched her go through this can push back when doctors gaslight and tell them they’re not really in pain.
I feel Jenny was used as a guinea pig experiment during her clinical trials and there was absolutely NO NEED for the full brain & spine radiation! The Dr's helped kill her faster! I am MAD!
@@kristietaylor7954yeah, you clearly don't know about LMD
@@kristietaylor7954I feel that too, all conventional cancer treatment seems to do is cause pain and suffering before death
@@V3ganBr33IM 😡IN 😡PAIN 😡 they force cancer patients to be in pain, and we have to suffer until death
AMEN & AMEN👏🏻
As a nurse I am absolutely horrified that they didn't give you the I. V. that was promised, so unnecessary! Please in future don't be so nice and sweet considering the staff but put yourself first and insist on getting what you know you need. It's bad enough you having to deal with cancer you should definitely not have to suffer extra suffering. My heart goes out to you and to you Kyle who has to watch this very distressing situation. 💞
Yes, you need to advocate for yourself.
I’m so upset that U were that kinda of pain. Had to go thru that when u weren’t suppose to , and he’s asking you “what happened “ as of why are u back, 🤷🏻♀️ cause u did not give me pain med like u were suppose to. Ugh
@@dsemich Yes, but also the doctors need to better communicate with each other. She shouldn't have to ALWAYS be fighting like this; it's unnecessary. The doctor should have had the notes and should have followed them.
Yes, soo agree!!
@@heatherbukowski2102 yes! 😩
It is infuriating that a doctor clearly sees you’re in such severe pain and says “no we’re not going to do IV pain meds.” You have stage 4 cancer!!!! There is absolutely NO REASON in this day and age that you should be in pain. I know Jen is currently in hospice but seeing this video makes me so angry. Doctors not treating pain adequately is beyond frustrating. I’m so sorry she had to go through this. There’s just absolutely no reason she should.
It makes you wonder why they even develop these pain killing meds. if they refuse to use them. They often say they CAN'T when in reality they CAN they just won't. Or they come with the nonsense about opiate meds. being addictive. When you have stage 4 cancer pain, possible dependence has to be the last of your worries. It's heartbreaking and completely unesessary.
I agree k pain management is essential for a patient, you never deny a patient pain management, I’m literall chocked, I understand they don’t want to subscribe opioids unnecessarily but she has stage 4 cancer ! What’s the reason for pain medication if no one is allowed to use them , ridiculous, cancer pain is exactly why opioids exist , cuz they are so effective dealing with pain,
🙏
🙏
I am so sorry they are putting you through this horrible pain. As a Dr myself, I am livid that there is such a reluctance to adequately treat pain. I would call administration or the “header” of your team. They promised you pain control and failed miserably. No amt of gratitude should prevent you from demanding you get proper care.
She said she was in worst pain the time before this. This is crazy!
As a nurse I 100% agree. Hospitals are just plain cruel now!!
Nurse as well and this is repulsive! Sometimes I'm so embarrassed to be called a nurse at the hsp I work for..this makes NO SENSE!!
I can’t agree more. Effective medications exist to control pain. Doctors are super stingy about using them, even in appropriate situations, because of abuse and addiction concerns. My mom was prescribed only 3-4 days of pain meds after open heart surgery. I had to act a plum fool to get her more pain meds for at least a full week. They’d just sawed her chest open!
@@ocky88Wow! I can’t believe doctor’s would do such a horrible inhumane thing. They used to keep you in the hospital for a week or more after heart surgery, now they throw you out as quick as possible and don’t give you pain meds? What? That’s insane and it ticks me off! This opiate crisis has gotten ridiculous! People in chronic pain aren’t addicts! I’ve been on meds for 15 years and I never take or seek more than the doctor gives me. The one’s OD’ing are the one’s using street drugs and not pain patients. Maybe they should stop letting illegals in with Fentanyl? Just a thought!!!🥴🤷🏻♀️
As a pain nurse, I have to ask you, do you think that they are stingy with actual pain patients, on the meds, because they are trying to push people into taking the newer drugs that are much more expensive, like Suboxone? I have been pushed by my pain doctor to try it, but I need long acting meds. I’ve seen videos of patients that take it and say that it is so much more addictive than the cheaper ones, and extremely hard to try to get off of, so I’ve stayed away from it and others like it. But, I hate that pain patients suffer because of this stupid fake crisis. Druggies will always find a way to get their next hit, but us patient’s rely on the doctor. I think they are pushing or forcing people to find a dealer, or commit suicide, by not helping them. It makes me very angry😡🤬
Poor Jenny didn't deserve any of this. Life is cruel man So sorry you had to suffer. Fly high and pain free now 🕊️
AMEN ❤❤❤❤
Dear God, please take this pain from Jenny. 🙏🙏💙💙🦋🦋Give her peace, courage and strength.
Amen. 🙏🏼💗✨
Amen
Jenny, I’m at a loss for words seeing you in so much pain. I’m a Registered Nurse and I’ve spent my entire career, so far 29 years, in End of Life and Hospice Nursing. There is no reason for you to be experiencing so much pain. We have so many meds available now for this exact reason. Our mission is comfort and dignity. I would love to reach through my phone and give you the biggest hug ever. Why they didn’t follow through with pain medication during your thoracentesis really baffles me. Don’t let them off the hook. I know you love them and they’ve been wonderful, but every single one of them has to be on board in order for all things to run smoothly. You are very strong, I can tell, but sometimes, like now, you don’t always have to be the hero. Let them know this was not okay. We love you 🥰.
AMEN 🙏❤
I was an End of Life RN too. There is absolutely not reason for you to be in so much pain. Please communicate how you are feeling to your team. This should not have happened to you.
Oncology RN here. Completely!! Agree. You need more pain meds. Ask for a consult to their Pain Management team!! That will put the right people in your loop.
No excuse to deny you rx. You are a strong soul. KYLE is an angel
Jemny i would have brought my pain meds with so you can take them NOW. They should Have given you pain medication with that procedure. Im sure if it was one of their family they would have gotten it. Sorry but not sorry for saying this...Ugh!
My heart is breaking for you, I hate to see you cry in pain, I pray that you're ok now ❤❤
Yes
Jenny, this is the time when you have to put all of your kindness and compassion for others up on a shelf in a pretty box and then you have to loudly voice your needs without worry about stepping on toes because this is a time when you must shout for your cares! I would’ve slapped that doctor when he said “WHY?”
And then you'd be arrested for assault. How would that help the situation?
Wow, watching this now, I truly see what an Angel of a person Jenny was to everybody she came in contact with. She apologized for being in pain to the specialist who drained her fluid without pain management hooked up. We can all learn from her. She treated everyone so kindly. She was truly an Angel on earth. Beautiful soul you are Jenny Appleford, beautiful, beautiful, beautiful. Continued prayers for Kyle and y'all's beautiful baby's. You really touched alot of people who didn't even know you, me included. I feel as though I've lost my best friend. Kyle hug those baby's tight because they are part of Jenny too. You took so great care of Jenny and your children. Its time to take care of yourself and do the things Jenny asked you to do. Jenny would want that for you. Much love to you and your kids and Jenny's family as well as all whom loved her.
Dearest Jenny. It was so difficult to watch you in so much pain. As nice as the pulmonologist might have been, he should have listened to you when you asked for extra meds. If you have to do this again, please know that it’s ok to stand your ground at moments like this. Meanwhile … Kyle, what an extraordinary man you are. The way you support Jenny is so inspiring. You don’t try to fix things you can’t fix. You just witness, advocate and love. It’s a beautiful thing.
I remember my mother in laws laryngeal cancer battle, they actually were removing her ocycontin so she didn't get addicted and she wasn't getting better, she had less than a year so what difference would it make if she got addicted?
I am a retired nurse, and I get so frustrated with the medical system. The first time, I had real hope when hospice became a reality. There have been other improvements, especially in surgery. But pain medication is moving backward.
I used to have thorentesis. I hated them so much. There were always a few moments that were especially unpleasant.. I’m a Stage four girl too. I’m so sorry you are going thru this. I’m praying for you Jenny!
May God heal both of you
Praying for you too!
Dear Helen ..praying for you too... hugs
Crackers and ginger ale 🫶🏻
Helene, is one laying down when they do the procedure? Did you have pain meds at any time? TIA ❤️🇨🇦
Watching back to see Jenn’s beautiful face. Hate seeing her cry so much. Breaks my heart
Unbelievably cruel treatment of a cancer patient to leave them in this much pain. Lucky he doesn’t get sued.
Right ❤
The concern around pain meds and that doctors don’t want to subscribe because they’ll loose their license has GOT to stop. Jenny is not a drug seeker and should never be denied. Some doctors need there butts kicked. Jenny should always have pain meds with her. She shouldn’t have to keep asking. I’m a two time breast cancer patient and this is inhumane. Kyle you need to get angry. No more mister nice guy. Jenny needs you to be her advocate NOW!!!!!
They’re way too nice
🙏
Loosing the license? Lol
Yeah, the health dept in Australia is the same. It's bcos these young people who are poly drug users, sadly have overdosed & found to have opiates & Benzo's in their system. They've usually had alcohol & pot & anything else they can & not just that day, they've likely binged for days til their bodies gave up.
So due to cases like that health depts are coming down on what they deem to be overprescibing & it's managed to affect even terminal patients. Why are govt depts so black & white? What about grey?, like terminal patients, they should be exempt from this sometimes cruel policy.
RIP Jenny I’m glad you’re not suffering anymore. God bless your family.🙏🏻🙌🏻🙌🏻🌸❤️
Jenny your pulmonologist was lazy ! They don’t want to give pain meds because it slows things down. Never never let them say you don’t need pain medication. Stand your ground, don’t be nice. I mean it ! I’m a RN and it’s ridiculous they don’t accommodate you. I feel so angry !
Wpw thats an absolute diagrace
I'm so scared of this I've had a horrific procedure that I was supposed to be put out and he lied they physically held me down for it , I've had the same procedure 7 time and was out for the other six thank you for yr honesty I will fight for my self after that and your engagement is everything thankyou ❤❤
👆🏼👏🏼👏🏼👏🏼👏🏼
That's what they do in the UK when you book in for an epidural for childbirth. They're really cheerful at the time of booking it on your records, but come the day they say not yet, you're not ready yet. Then when the pain is unbearable they say oops, too late, might as well give birth naturally now.
In the US it’s so anti-pain medication it’s ridiculous. I had an Endometrial biopsy a week and a half ago and no pain meds are offered or given. It’s excruciating pain during and afterwards. It’s so frustrating. 😢
So much respect for this incredibly strong woman.
Baby Girl,
You are no longer in pain, you are laughing and singing. I’m so happy for you. I can’t stand to watch you in so much pain. We love you Jenny. ❤❤❤❤
My mother worked in the medical industry for 30 years and she always says you have to stand your ground. Even if you have to fight with your doctor, you have to fight for yourself
Oh Jenny, I know this video is now a couple day past in real time but what a jerk the doc was who wouldn't premeditated you for a painful procedure. You are so sweet, I am just so sorry. Continue to do your best and never be afraid to put your foot down and say "NO", not till pain is addressed. God bless you and Kyle.
*THIS* I feel the same way, maybe she should of rescheduled until the pain meds issues were addressed
Jenny and Kyle, What that pulmonologist didn't do for you to keep you from having this horrible pain is something that needs to be addressed with your care team. Someone dropped the ball. That pulmonologist, with his line of questioning, " What happened? Why are you in pain. He could have had a lot more empathy. He should have called your care team when your care you were supposed to get, didn't match up with what he was going to do. when you told him you were supposed to be getting IV pain meds and he said, " no, we're not doing that. " That's why you need Kyle with you. I know you don't like making waves but this pulmonologist failed you and that angers me. This should not have happened like this. You're over the worst of it. Rest, take your meds for pain on time and don't let the pain get to the point that it's intractable.
It's been tough but you are tough. Praying for you, Kyle Little Miss Winny and that sweet young man Ellis. Just rest and regain your strength and equilibrium. You got this and GOD has all of you. ❤
I really despise when doctors traumatize patients. It’s so unnecessary. WTF!
@@queenbuzybee4074 the doctor didnt knowingly hurt her like that. If every procedure caused the patient that much pain they would not do them awake or with out pain management. Every person is different and every doctor should know this already. That said nothing in the video gave information to assume anything was done on purpose to traumatize her. I understand feeling for her. How can a normal person not? Wanting to lay blame on someone or thing is okay too but this is all cancers fault.
Yeah it almost seemed like that doc gaslight her afterwards too
I’m so sorry sweetheart! I can’t imagine allowing someone to hurt like that when u can do something to prevent it! As a retired RN, it makes me furious! I was a chemo nurse, so my heart is more tender for cancer patients 🥲🙏🏻❤️
I'm bawling! As a Respiratory Therapist of 38 yrs...... this broke my heart to pieces!! I understand in certain situations they dont like to give the meds , and i literally get faint and nauseated watching these procedures. It's the only thing in my field that REALLY bothers me. I've always said that I'd be up a creek if I had to have this procedure done. God bless you and I pray things get better soon. 🙏
I wish you would wait to film this the next day. Trying to talk seems stressful and painful.
I'm so glad she no longer faces anything like this anymore.
I'm so so sorry that you had to go through this, Jenny. Nobody should have to suffer this much. It's over now & you will always be remembered for being the fighter that you were and the most wonderful wife & Mom. It's so unjust that such a wonderful person should have to go through this.
I felt so helpless watching Jenny in so much pain. I can’t imagine how you feel, Kyle.
Jenny I am just so sorry that you have to constantly having more and more medical trauma.
I want to thank you for not showing a sanitized version of what you guys are going through. I think having a real, raw and honest look at what having cancer is like. I think that what you are sharing is really valuable for so many of us.
I feel just like everyone else who’s watched this… sending you prayers and love!
🥺🙏🏼❤️
Agreed.
I agree, just to see how
Their family works! So
Kind to each other!
(I ‘d say hold each other and cry, God gave us that
Gift when we need it!)🙏🕊
My beautiful brave 15 yr old son had 1 liter removed from around his heart with no medication because they had to do it quickly. They said he did an amazing job. I was so proud of him. He fought metastatic osteosarcoma for a yr before he passed. He had an upper thigh amputation and two lung surgeries plus the myocarditis.
I was a beast when it came to his pain control and his pain care team. You have to scream loudly if you need too. Demand your support person always be with you. Covid rules are ridiculous when it comes to our loved ones. My son and I were in covid isolation for 14 days because they had a positive test once but then never again on multiple retests. It was ridiculous. I am so so sorry you are going through this. You are in my prayers.
We all have to demand better care from our healthcare systems. The so called opioid crisis has caused so much unnecessary pain and torture to all with chronic pain conditions and other ailments. It is inhumane! 🙏💛🙏
You're so right about the opioid situation. My mum was in an incredible amount of pain following this procedure and went into hospice care and passed away 6 days later. We asked for pain meds for her and they said "we can only give paracetamol as they are addictive". Addictive... Does it matter if you need them irrespective of how long or little you have left. It makes me so sad. Xx
I am so so sorry about your son.
Ummm I’m a nurse who used to do a LOT of thoracenteses. Some people can do them no problem with zero pain. Great. Some people NEED pain medication. And we give it! Because it’s humane! I’m so sorry Jenny, you were desperately failed. Shame on those who denied you the pain control you deserved.
I'm an endoscopy RN and our department does thoracenteses. We give IV Fentanyl and Versed. I feel so bad seeing her in so much unnecessary pain.
so sorry darling
You are Soo brave. Love and light
I agree..So unnecessary to make her suffer like that..
Dearest Jenny, as an RN and now breast cancer patient, I feel so bad for you. There is NO reason for you to be in pain - NONE. Please don't ever suffer like this again, please. You are right to be concerned for your children - and SAY THAT to those doctors. Bless you, Kyle. Jenny, love and prayers always.
I do hope you’re doing okay!❤❤❤✌🏻🕊️
Prayers
Either get pain mèds or don't do it
With a 20 year history of chronic pain, I don’t think it’s ever possible to alleviate all pain, especially nerve pain, which is very hard to control, at least in my case. But, that doesn’t mean they shouldn’t try! It’s inhumane; they’d treat your dog better🤬😡
Doctors are allocated a set amount of painkillers they can prescribe before the doctor looses their prescription license and the patient is restricted or cutoff. this is current DEA policy. they are also responsible for production cuts ensuring shortages. So NO doctors cannot prescribe amounts necessary to control pain only enough to take the edge off. As for fentanyl they caught a guy in town with 95lbs of it .What else can you do when the DEA cuts you off from legal painkillers
I hope there are at least a few medical professionals reading this because this comment is for all of you.
Medical PTSD is a real thing. It doesn't happen to us because of what we have to go through with our illnesses and injuries. It happens because of the callous treatment we far too often have to endure from the people "helping us".
When we are terrified, in agony, feeling like we may die at any moment, and otherwise at some of the very lowest points of our lives, your actions and words matter far more than you can possibly imagine. If you are ever tempted to allow a patient to suffer in any way while you possess the means to ease that suffering even a little, you are causing them pain far worse than anything their bodies can manage. From a suffering patient's perspective, being denied relief by the very people who you have litterly handed ultimate control of your body, while knowing they have the ability to reduce your suffering, has no less emotional impact than actual torture.
I can't begin to tell you how many times I was forced to endure horrific "procedures" while fully awake and alert because, and I quote: "If I sedate you, I'll have to arrange for nurses to monitor you afterward."
I know you believe that's a justifiable reason but nothing you can possibly say will ever get me to agree with you on that issue.
It seems that hospitals have become so preoccupied with doing everything possible to prevent physical harm to their patients that they have completely lost sight of the fact that the mental damage they cause by doing so is equally, if not more, harmful and dangerous.
A-freaking-men!! very well written and well said. so sorry you had to endure all of that.. sending hugs ❤
So we’ll said ❤️
If anything happened to you and a nurse wasn't there, the hospital could blame it on the doctor who the hospital believed to not have called attention for your care. So, I get what you mean, but it's also a double edge sword. Maybe, I am wrong though and the doctor was lazy about it.
Exactly. The dr being nice is not good enough in this case.
This is absolutely heartbreaking to watch. I can’t believe they failed you regarding managing your pain throughout your treatment. Bless you sweetheart you are a true warrior ❤️❤️❤️
Oh, Jenny! It’s just not right! I see people like you suffering from cancer when the monsters of this world are fine to go out and destroy! Hang in there, you’re a brave woman and have shown nothing but courage and grace! You need to be your own advocate! You know what your body needs better than the doctors no matter how nice or how good they are! When the doctor asked what happened that’s when you should have said I told you I needed pain meds before this procedure! I hope by now you’re much better! Kyle, be strong! You’re her rock as I’m sure you know! It must be so hard to watch her go through this! Praying, sending hugs! ❤️🙏
I m so agree with you, it's so upsetting they still didn't found a cure for this terrible disease.
@@HL-qv3yd Sometimes I get so upset by people suffering from this disease I actually start to think that cancer is a conspiracy! Too many people are getting rich off of cancer! I wonder if they know the cure but are too greedy to share it! Call me weird!
@@Dranma51 no I agree with you, care has gone, whether it was ever there.Who knows, I doubt it.Not letting Kyle support her is so cruel, one follower has even suggested she should get counselling so she can support Kyle as Nd the children. Looking what she is going through makes me weep.
Thank you Kyle for being so supportive and loving to your beautiful wife.
@@Dranma51
You are described exactly my thoughts, I think exactly same as you lots of time, it's sounds like a big business, they found out how to go space, found vaccine for covid in a short time because of their economy, it feels like they don't wanna found a cure, it's a big money earning, it makes me angry so many people loosing their life precious life's suffering.
I’m so angry and disappointed at the lack of pain management. Jenny you should never have to be in that much pain. I think you hit the nail on the head, you’re worried about hurting the doctor’s feelings or “failing” but please please remember, they don’t have to go home after the procedure and sit in agony. Doctors are consultants that we hire to perform a service. You never have to go through a procedure without pain meds, or in general. You are the boss of your care and you know you best. I am so, so sorry you had to go through this. Sending prayers and healing hugs ❤
I agree. Jenny please never worry about hurting a dr's feelings because you need to ask for pain medicine. Managing your level of pain is paramount. Dr's won't know unless you speak up. I don't like feeling like I'm causing waves or inconveniencing someone, but keeping your pain low is so important. That doctor wasn't thinking. If he had seen what happened with your last one then he would have understood more why you were supposed to get the meds before so you wouldn't have this level of pain again. 😭😭😭😭
THIS 🔺️🔺️🔺️🔺️🔺️🔺️🔺️
I’m watching this again. I miss your gorgeous smile and laugh and your sense of fun. No more pain, no more treatments. RIP dear Jen. ❤❤❤❤
That upsets me he said, "No, we're not doing that today.". I totally understand you not wanting to push it. At the very least you guys, meaning Kyle, should contact her main dr to share what happened and that it needs to not happen again. Let them handle it. I'm so sorry you are going through all this. You are doing great. You are so brave and strong. I know, it's not like you have a choice but just hanging on takes so much strength & bravery. You deserve a fantastic treat. We are all out here rooting for you♥️
Yep. I would have collected my shit and said we’re not doing this today then either. Bye. Poor, poor planning on that docs part. You’re just too kind.
She should 100% take this back to her team. It's not right that this was denied when they told her she would get pain meds.
What ticks me off the most is that same sadist Dr went to her in the ER and asked, "WHAT HAPPENED? I DRAINED THE FLUID TO HELP YOUR PAIN"! As if he never heard her say she was supposed to get IV sedation before the procedure. Until he goes through that with no pain relief, he should judge a patient he just met and caused to have this pain!
@@lisagrafton2529 exactly,i agree totally with you.
@@lisagrafton2529 agree
Jenny, you never EVER have to feel guilty or stupid about your pain, and you certainly don’t have to apologize to anyone! I also feel Pulmonology needs to touch base with your pain management team and get on-board with your pain management protocol as this shouldn’t have to happen! Sending you lots of prayers and hugs daily. I know cancer totally sucks as I was diagnosed with breast cancer in 2021. Keep fighting girl….you are one tough cookie and have lots of people praying for you! Here’s a virtual hug for you! ❤
Jenny, I am not a cancer survivor, but I was my brother's caregiver, who was diagnosed with stage 4 lung cancer. Your husband is doing a great job! Just make sure to always share everything with him, he can help! I hate cancer, but I love that you two are so close. Always praying for you!!
Nice doctor or not- if you have an arrangement of any kind, make sure it is honored! It was ridiculous that the pulmonologist rejected your statement. He had an ethical obligation to at least take 5 minutes to verify what you said. I hope you’re feeling better Jenny and I’m sorry you went though such agony unnecessarily.
She's a liar. She decided not to take pain medication cause it was faster.
@@MegglesEST1983 how do you know that?
@@MegglesEST1983Oh, come on! Be a little more caring. She didn’t think it was going to be so bad and it sounds like they were rushing her. Doctor’s have a way of making you think that they no what they’re doing, but they are just practicing on you. Next time I hope she will remember this, chastise the doctor and get whatever relief is possible.
We’re both just viewing her life through videos, which isn’t the best way, so have some mercy. Remember that the mercy you give, is the mercy you’ll receive!
I am appalled that they can’t keep Jenny out of pain. There is no reason she should be made to suffer like this. Where are her doctors and why aren’t they helping her.😢
Cancer patients should never have pain. Address it (or lose ur license)
I cant believe Jenny had so much pain, spoken to like she was, handled like she was, she was really hurted by some idiot woman, she is the sweetest girl in the world, im watching kyle now, love how he is doing
Unfortunately, cancer IS painful.
Just watched this late at night in bed. Heart rending, I am angry they did not give you the pain meds, he made a big mistake. A friend always reminds me we need to be our own advocates, speak up and insist you get what you need or don't go ahead with it. This tore me up just watching this, I hope for any future tests You demand all the help you can get. I hope your better now and home resting. This was 2 days ago, take care of yourself and put your foot down next time and speak up for yourself. I am praying for peace and rest for you, these Drs do not know everything, they make mistakes too. Sleep well. God be with you all.
She is so blessed to have Kyle. Have to count your blessings.
I have no one because he died.
I’m outraged with the care you and so many are receiving. The needless suffering is horrible. Doctors promised to do no harm and every day I’m hearing of more and more patients suffering.
Love and prayers always
I am so sorry Jenny. We all just want to reach through our screens and hug you, rub your back, and tell you it will be better. You are so sweet and thoughtful to keep us posted even as you suffer that terrible pain. I was so happy at the beginning of your video that COH was getting you in to get going on your tests but crying along with you at the end. Stay strong sweet Lady. We are all praying and standing beside you and Kyle. Much love…..
I am so sorry that you are having to go through all of this. The next time if you should require a thoracentesis, do not allow them to do it without the IV pain management as planned by your team. It's completely OK and acceptable to advocate for yourself and it isn't going to hurt anyone's feelings. Just let them know that IV pain management during the thoracentesis is a part of your treatment plan and is not optional. I will continue to lift you, and your precious husband, Kyle, and all of your family up in prayer.
I agree 💯 as a RN!!!
@@cerorchid I am an RN for 30 years as well
I am so sorry for your pain Jenny and I couldn’t help but cry with you and for you! Please, don’t be shy about insisting on IV meds for procedures. That is just cruel that you were not given pain meds during this procedure!! Do not worry about anyone’s feelings!! You know your own body!! Sending love and prayers to you!!❤
Absolutely! Just refuse until they looked at the notes from your treatment team. This is not optional.
Jenny needs to learn how to FIRMLY advocate for herself . Even she admits she is a people pleaser. You absolutely need a patient advocate and should talk to one at City of Hope because they should know how poorly the physician tended to your pain.
Jenny was so blessed to have a wonderful husband supporting her throughout the struggles and pain. You are an amazing husband and dad! Jenny passed away knowing how much you loved her. Prayers and blessings to you and children.
Jenny, "May the force be with you" I would be crying too. You are such a brave young soul, as an RN I know how it is for you. Keep up the pain meds, you will be surprised how much easier it will be to breathe. NEVER EVER say that you are stupid. Oh, Kyle, you are such a brave man, it must be so frustrating for you. Prayers going your way.
This is beyond heartbreaking…and inexcusable behavior by that doctor. I saw my mom go through this with zero pain meds and it was agony. Sending you so much love and prayers ❤️❤️
Poor Jenny, so sorry for your ordeal. Fly free beautiful angel.
That they drained about 3/4 of a liter of fluid blows my mind.
No wonder she was hurting.
Dear girl, seeing you in such pain is heartbreaking, you are so loved❤, healing hugs.
Why aren’t they controlling this pain, oh my word. I know they don’t want to depress respirations. Oh, honey.😢 As an ER nurse this makes me so upset.
I'm so happy that you're not in pain anymore.
I know I thought the same thing. It’s so sad that she went through all the pain and still passed it’s awful .
I can not believe they would let someone be in this much pain. Oh, sweetheart, I wish that doctors would communicate and make it all go away. I am praying for you Jenny. You have a wonderful support and a wonderful husband. Keep up the good fight.
Jenni, I feel GUILTY for saying but at the same time, I feel the need to express that you are the reason along with our lord almighty and my children why I gave up smoking.
I feel such a huge guilt for smoking and your going through this as a non smoker.
It breaks my heart.
You are being inspirational now and even after you have gone to heaven.
Bless you and love you ❤
I think, with as much tragedy as this is, and all the pain that was put on her and her family, a number of things from this effect a lot of people for good- if one gets my meaning.
@@andygossard4293 very true. 🤍
Dear Jenny and Kyle, just happened upon you and your story. City of Hope caught my ear because my mother was a patient there in the days when it was a tuberculosis sanitarium. She was in her early thirties when TB got her. She was an inpatient for three years! My two older sisters were placed in foster care because in those days they removed children from the home if TB was involved. The authorities meant well. They felt my mother could not care for the girls, then 5 and 2. The trauma of that separation permeated my family. My mother survived, and she was reunited with her children and my father. I was a total surprise seven years later. We heard about City of Hope as I was growing up but I never went there. However, my mother contributed to it all her life. She lived to be 96! And she was a wonderful mother like you are, Jenny. Miracles still happen and I pray for one for you. You are both just beautiful and despite the sadness, there are moments you get me laughing. The kids are darling. God bless you in your fight and may you win like my mom did. There was no real treatment for TB back then . Just bed rest. She told me that when she had "pleurisy" the doctor came and just stuck a knife in her ribs and twisted it to drain the pus and fluid out. Can you imagine that? I can't. She couldn't even touch her babies but they would come and visit her by playing on the sidewalk and she would look out her window and wave to them from her second floor room. She had a "window bed". That is pain I can't imagine either. I'm watching your video of you lying flat. What a brave girl you are to face your fears. Keep pushing through the fear. Courage is not the absence of fear, but the ability to push through it. You got it going on!
I have been following your journey, although I have never commented on a video before. I happened to see your video right before my family went to church this morning and I was incredibly moved by your perseverance and grace while in so much pain. Both you and your husband handle things with more grace than most of us will ever understand. I just wanted you to know that our pastor asked if there was anyone in our lives who needed healing or God's provision, and your beautiful face flashed before my eyes. I prayed for you and your family today, and I hope that you somehow felt the love and peace that I asked God to bestow upon you. I will continue to pray for you and for your sweet family. ❤
❤Such kind words for Jenny, thank you!
That’s sweet keep praying so will I breakthrough coming !
Sorry but God doesn’t exist, this cancer will kill her. Save your nonsense prayers.
As an understanding and fellow professional patient (not cancer but chronic pain and nausea, etc). I am so sorry the (not YOUR) pulmonologist didn’t listen and denied you the meds (sadly I have been in the same boat many times). For the past 33 years, I have had 45-50 brain surgeries due to a chronic condition with more to come. Within the span of a year I had 30 surgeries, along with many infections. I ended up badly malnourished, unable to walk unassisted, keep any food down requiring a permanent feeding tube.
My pain is completely disregarded (by most ER and providers who don’t know me), I get accused of faking and just being there for the opioids.
My nausea is also 24/7 (if I bother going to the ER, any oral meds definitely a NO! I have to puke to appease them before they listened). I hear all the excuses: too young, don’t seem that sick (when I worked, I faked until I made it through the day).
I understand and hear your frustration. I’m thinking of you and rooting for you!
YOU GOT THIS! ❤
Omg I'm so sorry for your suffering.
How awful you have been through so much.
Sending you my prayers 🙏 ❤️
I’m so sorry for all you’ve went and continue to go through ❤️🩹 Sending hugs and spoons your way xx
Sending you love and light❤❤❤ so sorry you are going through this!! Prayers and hugs for you. Sorry.
My friend, I so feel ya. ☹️ chronic pain- sometimes they call us Warriors- - but I never feel like a warrior. I feel like a sufferer. I have fibromyalgia, osteoarthritis and controls, etc. etc. I’ve had two hip replacements and a revision and my knees are totally gone and I’ve needed them replaced five years but I don’t honestly feel like I’m up to that rehab because I am not very well. I think we knowing as much as we do about the struggle we have getting pain meds, that it takes us off even more seeing Jenny in this much pain when she didn’t have to be. It just sickened me. Yeah I’ve been called a drug seeker … all the things. That was back in 2008 after my 2007 hip replacement that went bad. The doctor didn’t believe that my hip hurt me because the “x-ray is perfect”. Then I got the “you’re just here seeking drugs” line. Ugh. It sure looks like you’ve been through the mill, and then again. I’m so sorry 😞 Take care of yourself, as best you can.
(((hugs))) nan❤️❤️✌🏻
I feel bad ‘liking’ your post but I’m sending you lots of love. I am retired now but after over 40 yrs as a nurse I’ve seen so many things like this and have had so many arguments with Drs over issues like this. It’s not what should happen. I’ve also been a cancer patient and been on the end of long waits, over dosing of epidural drugs and over loading of fluids. I believe I’m only still here because of my training and another patient telling me in my semi conscious state that I was blowing up like a balloon= I stopped the drip and but the emergency button! Even after one team stopped the fluids and got me on diuretics another team did a ward round and tried to restart the drip 🙄. As much as we are all so appreciative of our healthcare, too many things go wrong for many.
This just popped on my feed and as much as I miss seeing Jenny, but hearing her say that “She can’t do this anymore”. Makes feel comfort in knowing she is not in pain anymore. She won cancer! Our Jenny is at peace and pain free🙏. She is a beautiful angel watching over her precious family ❤❤❤
Former oncology nurse: You were right not to take pain meds due to the fact that you were assured that you would get IV pain meds. If a thoracentesis needs to be done again your doctor needs to write a note to give IV pain meds no matter what. You have the right to insist on the pain meds. You can even refuse a treatment if they are not going to properly medicate you. This will not make you a difficult patient. This will make you an advocate for yourself. You guys are both so nice that no one will ever think you are a “problem patient”. Also, if the pain doctor is difficult to get a hold of, you can still get a hold of your NP or your nurse and they can page the pain doctor. This is one of those situations in which your pain doctor will want to be notified.
WHAT????? Did you see her last lung draining procedure????? I can’t, just can’t!!!! My brother was in MISERABLE pain untilI I had to scream like a lunatic to get his pain under control…and guess what, it worked.
@@pjl92668 I’m so sorry your brother had that experience. I’m glad he had you to advocate for him! I absolutely hate seeing people in pain.
Unfortunately this happens to a lot of cancer and chronic disease patients all the time.
Hi ,,, pancake day4866 ,,, I was diagnosed 2019 ,, with MDS ,, I have a cancer Dr & her assistant ( Dr ) she told me it is probable ,, she was just gonna watch it ,, I have anemia bad ,, always has but goes away ,, well the other Dr came in said yes it’s MDS give me paper on it ,, told me to research it ,, we’ll need to say I’m having all kinds of problems ,, do you have any ideas ,, I could ask when I go back in January ,,, thanks
Comment #2 after watching. My heart is broken 💔 that this was so terribly painful. I do so appreciate you working so hard to share this journey with us. I have multiple myeloma…. and honestly cannot imagine how hard it must be to record and edit these videos to share with us. But it means a lot. 🙏🏻
Rest in peace.
It broke my heart to see what u want through.
Really, they worry about addiction!!! She went through hell because of this harsh pain, poor woman.
Jenny, I am so sorry you weren’t pre medicated for the pain. As a retired nurse I get upset when this happens. If there is a next time, stand up for yourself even though it’s extremely difficult. Make sure it’s ordered with pre and post medication. The protocol and amount of staff is different. That does not matter as much as what you have to go thru. Sending lot’s of love and gentle hugs your way. Prayers for all of you continue.
And also DEMAND that Kyle is in there with you! You need an advocate and they took that away from you. This was a complete failure of the system.
I am so sorry Kyle, and all family members and friends who have anyone sick with cancer. Yes it’s hard for the patients, really hard. But speaking as a family member of someone who had stage 4 lung cancer, it’s extremely hard, I felt so helpless. So praying for all of you. Bless your sweet heart Jenny.
Thanks for speaking up. I was thinking that it wouldn't hurt to let the kid's stay overnight with the relatives ( or even a few days if possible ) because it's hard seeing their mom in pain and just as stressful for them.
I just watched the new video and went through these comments. First the video was so heartbreaking for everyone to watch. I think all of the comments are coming from a place of caring for you and that they, as a cancer center, have a responsibility to follow through with OV pain meds with this procedure with you no matter what. This is the second time you have gone through excruciating pain and that is not acceptable whatsoever. I would articulate it to them that you are not doing this without proper pain management ever again. Advocate for yourself and have Kyle do it too. This is unacceptable. We all love you and care about this pain that you are enduring. It’s not negative, but it is upsetting that a cancer center did this without proper pain protocol. Unacceptable
This is so incredibly unbelievable. As a nurse, I wish someone in the procedure could have been your champion. Someone should have clarified the orders for your pain meds during your procedure. I’m so sorry that you are unnecessarily going through extra pain.
You can do this!! We are praying for you!
That doctor should be ashamed. There’s no reason he couldn’t have given her the pain meds.
Oh Jenny - I wish I could take away your pain. I’m so sorry.
Jenny I am sorry for your pain and Unnecessary traumatic stress. You need to know that you can refuse treatment until the doctor listens and pre-treats with iv pain medication. As a transplant nurse I stopped a doctor from doing a bone marrow biopsy when he refused to premedicate and thankfully my medical director backed me up. You and Kyle and the entire family are in my daily prayers.💕💕💕🙏🙏🙏
Thank you for standing up for your patient
Why would they refuse to medicate their patient. 🤷🏻♀️
I don’t understand why that would not be a priority.
Too much effort or saving on meds .bloody disgraceful. You poor girl. Next time insist !
I will always remember
Jenny’s sense of humor. Such an amazing warrior, she will not be forgotten ❤
Jenny, please don’t give up! My brother in law is recuperating from lung cancer. He’s also had lymphoma and colon cancer. He just finished his chemo and radiation. He’s doing well, I’m sure you will as well. We’re all praying for you!!
Prayers
I have endured a plural effusion and could not catch my breath. I’m also a lung cancer survivor so I can truly understand some of the pain that goes along with this path. I’m so sorry that you had to endure this.
With her in so much pain I wanted to scream “Give her the pain medication….NOW!!!” Like Shirley McLaine in Terms of Endearment. They have the ability to alleviate all her pain, JUST GIVE HER THE PAIN MEDS!
The specialist should have given you something for the pain either before and/or after the procedure, Jenny. This was not necessary and you are incredibly strong. Sending you love and prayers for you and Kyle. ❤️🇨🇦🙏🙏🙏
Jenny, regardless of what is going on, you are always Lady Courage! So brave, yet also completely honest. That combination is what we love about you. Being vulnerable is a mark of great strength. Never fear the unknown. Allow God to take care of that. He sees and knows everything that we don't. That's why we need to trust Him 100 percent with the present, and the shifting outcomes of our lives and future. May His will be done in your life. Much love and many bear hugs from Michigan❤️💐🙏
I’m so sorry you have to go through this, Jenny. Not sure if this helps, but you have touched millions of people and we are praying for you!
Elizabeth I'm crying too ..ur words are my words in Ireland 🇮🇪 as a cancer patient I'm angry at the doctors fir jenny .them pain meds shoukd have been given
It doesn’t help she’s going to die in a few weeks. Her family is what matters not strangers. Think she’d rather stay for her babies and husband than ‘touch’ a bunch of strangers.
The longer I listen to you describe what’s happening the madder I get! I am a nurse, and I am outraged at how our patients her being treated in critical tests and procedures
I am a retired nurse and the politicians are in control of how doctors treat pts. It’s disgusting. I bet if they are in pain all rules are out the window.
Me too. Outraged.
Me too !! I’m so pissed. She should have been admitted 24 hour obs in my opinion
I couldn't watch this without crying. Kyle you did great holding it together. Bless you.
Dearest Jenny you have no more tears !! Really miss you but grateful you are pain free now !! I know you are a beautiful angel !!
I absolutely hate how YT flagged this for c0vid misinformation.. From one oncology patient to another, I'm sending you SO much love Jenny, all the way from New Zealand xx
Why does it bother you ?
I agree with you. It is ridiculous how they claim "trust the science" and then go against it! YT has been banning and shadow banning for a long time. It is pure censorship and info manipulation. I am not sure you will even see this. Blessings and God's justice and mercies to NZ.
@@lmrharper3586 Why wouldn't it.
@@lmrharper3586 well what misinformation was there?
I agree! And I'm sure they flagged it because Kyle said he couldn't go into the procedure because he needed a C test first.