How do you give the radiation over three days when you have to screw that metal "halo" into the patients head with screws, like you do with the Gamma Knife radiation??
I just want to know why I'm still having severe symptoms and it's almost been two months since my radiation treatment. Most of the really bad symptoms disappeared but the only thing that stayed behind are the severe dizzy spells and nausea that accompany it. They get really bad at work from too much motion and even from just standing still. It seems like they're getting much worse as time goes on and I'm getting very worried that something is wrong. There's no way to tell if the radiation treatment actually work because it's too early to tell. Even when I get my MRI done in August it will be too soon to tell because there may be exteme swelling. It won't be till I can get another one after that so that the two can be compared. I'm worried something else is going on and nobody can tell me what's going on and there's no way to measure that. I'm at a loss of what to do and my doctor can't tell me anything except for the fact that everybody feels differently and everybody's body is different. To me that's just a bunch of bs. I need some real answers and I'm sick of getting the same bs all the time. I made this comment before watching the rest of the video and then I saw the list of reasons against getting radiosurgery and I didn't know any of those things. My doctor never gave me that info. So basically my jaw just dropped to the floor and I'm totally devastated. I'm just worried that the symptoms are going to get worse and then I'm going to have to put up with them for the next 2 years. I'm going to have to go on to the major disability cuz I can't work like this. I don't know what to do 😭 my tumor is small I'm basically too small for regular surgery. But it was too large to just be monitored. It's only a little bit over 1cm. And I did not have the type of radiation that is described in the video nor did I have gamma knife. It may have been photon or something like that. The table was stationary and the machine moved around me.
@marciwhitman3513 Where did you have your surgery? What type did you have. My Mother had the Gamma Knife surgery and it continued to grow afterwards, which they said it probably would. Not long after she lost her hearing in the ear on the side with the "Acoustic Neuroma". She also had trigeminal nerve pain. I wish she didn't have it. She was unsteady when walking especially as she got older. And got a disability card to ride public transportation and was supposed to have someone accompany her. Hope you feel better, try not to worry too much, remember they are slow growing tumors. (Eventually it started to shrink a bit a few years later. But she did go deaf in that ear. 😢)
@@ed7519 I didn't have surgery. I had a radiation treatment. That was back in May. Flare-ups happen occasionally and they can reoccur for up to two years. I get bouts of dizziness and nausea and headaches. I'm due for my follow-up MRI in August. My tinnitus has still not returned to normal. It's still much louder and somewhat higher pitched. Not sure if it affected my hearing or not.
How do you give the radiation over three days when you have to screw that metal "halo" into the patients head with screws, like you do with the Gamma Knife radiation??
I just want to know why I'm still having severe symptoms and it's almost been two months since my radiation treatment. Most of the really bad symptoms disappeared but the only thing that stayed behind are the severe dizzy spells and nausea that accompany it. They get really bad at work from too much motion and even from just standing still. It seems like they're getting much worse as time goes on and I'm getting very worried that something is wrong. There's no way to tell if the radiation treatment actually work because it's too early to tell. Even when I get my MRI done in August it will be too soon to tell because there may be exteme swelling. It won't be till I can get another one after that so that the two can be compared. I'm worried something else is going on and nobody can tell me what's going on and there's no way to measure that. I'm at a loss of what to do and my doctor can't tell me anything except for the fact that everybody feels differently and everybody's body is different. To me that's just a bunch of bs. I need some real answers and I'm sick of getting the same bs all the time. I made this comment before watching the rest of the video and then I saw the list of reasons against getting radiosurgery and I didn't know any of those things. My doctor never gave me that info. So basically my jaw just dropped to the floor and I'm totally devastated. I'm just worried that the symptoms are going to get worse and then I'm going to have to put up with them for the next 2 years. I'm going to have to go on to the major disability cuz I can't work like this. I don't know what to do 😭 my tumor is small I'm basically too small for regular surgery. But it was too large to just be monitored. It's only a little bit over 1cm. And I did not have the type of radiation that is described in the video nor did I have gamma knife. It may have been photon or something like that. The table was stationary and the machine moved around me.
@marciwhitman3513 Where did you have your surgery? What type did you have. My Mother had the Gamma Knife surgery and it continued to grow afterwards, which they said it probably would. Not long after she lost her hearing in the ear on the side with the "Acoustic Neuroma". She also had trigeminal nerve pain. I wish she didn't have it. She was unsteady when walking especially as she got older. And got a disability card to ride public transportation and was supposed to have someone accompany her. Hope you feel better, try not to worry too much, remember they are slow growing tumors. (Eventually it started to shrink a bit a few years later. But she did go deaf in that ear. 😢)
@@ed7519 I didn't have surgery. I had a radiation treatment. That was back in May. Flare-ups happen occasionally and they can reoccur for up to two years. I get bouts of dizziness and nausea and headaches. I'm due for my follow-up MRI in August. My tinnitus has still not returned to normal. It's still much louder and somewhat higher pitched. Not sure if it affected my hearing or not.
@@ed7519 I had the radiation treatment done Einstein main hospital in Philadelphia PA