Hi, I have pulmonary sarcoidosis and COPD, I have been told by a pulmonary consultant, when I informed them of extreme fatigue ‘you look ok’ . During this C.19 pandemic anxiety levels are in the stratosphere! (U.K. )
This has hit the spot for me. Currently going through this in a pandemic. I have sarcoidosis of eyes and skin! Already had 6 eye surgery and that just to keep my eye sight for a few more years! My Sarcoidosis is chronic! It is always there!
Hi can I ask where you got the rash was in around your eyes? I have granulomas under my eyes bad this past winter I was so depressed. I am wondering if that is what is causing vision loss for me.
I've told myself "you're just getting older." For the past 5 years. Then abdominal and back pain started. Long story short, I had to have a spleenectomy because of this disease and still have the majority of the pain. My eyes are experiencing issues now. At least I have a answer as to what I have. Still sucks, though.
This is awesome for those of us that have very little information. Thanks for the share it so needed for those of us that are effected. Thanks
Hi, I have pulmonary sarcoidosis and COPD, I have been told by a pulmonary consultant, when I informed them of extreme fatigue ‘you look ok’ . During this C.19 pandemic anxiety levels are in the stratosphere! (U.K. )
yes, i’ve had ‘you look well’ 😏
This has hit the spot for me. Currently going through this in a pandemic. I have sarcoidosis of eyes and skin! Already had 6 eye surgery and that just to keep my eye sight for a few more years! My Sarcoidosis is chronic! It is always there!
Hi can I ask where you got the rash was in around your eyes? I have granulomas under my eyes bad this past winter I was so depressed. I am wondering if that is what is causing vision loss for me.
I've told myself "you're just getting older." For the past 5 years. Then abdominal and back pain started. Long story short, I had to have a spleenectomy because of this disease and still have the majority of the pain. My eyes are experiencing issues now. At least I have a answer as to what I have. Still sucks, though.
Thanks 😊