My LUPRON Side Effects were Life Altering | Hormone Therapy Treatment | Breast Cancer Journey
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- Опубликовано: 7 янв 2023
- Hormone therapy has been a very challenging part of my cancer journey. In this video I'm sharing the side effects I experienced from ovarian suppression (Lupron or Zoladex) with an aromatase inhibitor (anastrozole or letrozole) that lead me to needing a change. I hope this helps someone in some way🙏🙏.
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Thank YOU so much for being here with me! It is my honor to share my experiences with the purpose of supporting you, and creating a space where we all feel less alone💕
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Thank you again for being here with me🕊.
You've got this!
Sincerely,
Chelsey
#breastcancerjourney #hormonetherapy #ovarian suppression
*The content of this video simply shares my personal experience and what I've learned through it; therefore it should in NO WAY be substituted for any medical or professional advice.
I highly recommend doing your own research, and following the recommendations of your personal medical care team *
My dad was on Lupron and Casadex for prostate cancer with no surgery or chemotherapy, Thank God he didn’t experience too much other than swelling of his ankle for about a year. I’m sorry that you had a rough time but I hope every day is a better day for you 😊
I can sure relate to this. 69 year old male here, prostate cancer. The Lupron, Eligard side effects can be bad. Body aches, fatigue, just a general weird feeling, and some hot flashes. With those I get a tingly feeling all over! No fun. I can sure sympathize. Hope by now you feel better.
I'm so sorry you can relate! Thank you for sharing your experience. I hope over time your side effects improve as well🙏🙏. Take care of yourself.
It's so unfair that any woman of any age gets this horrible cancer I feel like we're all just 1 mammogram away thanks for sharing your journey with us and my heart and prayers go out to you.
I totally agree, it's so scary these days. Thank you so much for your support and prayers, I really appreciate it💕. Wishing you much health and happiness.
I was put on tamoxifen after my lumpectomy and did fine, then for some reason my oncologist decided to switch me to Arimadex. In the first week of Arimedex my jointed were so inflamed I could hardly walk. I had to go back to my oncologist to get changed back to Tamoxifen. JoInt pain went away shortly thereafter. At the time, 2005, Arimidex was new. The doc didn’t believe me when I told him of the pain I was in on Arimidex, but he did change me back. You know your body better than anyone, including you doctor, never be afraid to speak up. Some of these drugs have terrible side effects and can do a lot of damage.
Yes! That was one of the big lessons I learned through this... I know my body better than anyone else, AND I must speak up if I believe something is wrong and keep speaking up until I'm heard. Thank you for sharing a peice of your story🙏🙏
I want to thank you so very much for sharing! I am a 60 year old male that has been taking Lupron for a while and noticed my joy changing like a dark cloud. This has helped me so much. I will be seeking a better choice for myself. Thank you again.
I'm so happy this video was helpful for you🙏. Joy changing to a dark cloud definitely resonates with my experience. I hope you are able to find a better fit for yourself. Take care.
I'm on lupron for prostrate cancer. Your discussed symptoms I can relate to....the lowering of my PSA is the only positive affect. Blessings
Interesting, I hadn't considered how the medication would effect men... Thank you so much for sharing your experience! I am sorry you having to deal with the negative side effects. Wishing you all the best🙏💫
Thank you for your help! I just finished my last chemo and will be starting radiation soon and then hormone therapy. As someone who has delt with depression in the past and already has lots of joint pain, I'm very anxious about starting Lupron and AI. I'm premenopausal and was diagnosed Nov 2022.
Hi Marci, I hope the video was helpful for you🙏🌷. I know everyone's experience is different so keep that in mind. I hope that when you come to this phase in your journey you don't feel any of the side effects. Thinking of you and sending positive vibes as you begin your radiation... You've got this💪💪!!!
After aggressive, prostate cancer, I’ve been on Lupron for 3 years, its been awful, but GOD helps me get through it 😢
I'm so so sorry😟. Thank you for sharing, know that you aren't alone. I have heard of a number of men saying the side effects are very challenging. Sending many prayers and positive vibes your way🙏💫.
Al and I prob stopping by later
Oh fun!
Lupron is an aggressive treatment, with serious and numerous affects. If you add treatment duration, I understand your need for a change. Today offers us the opportunity to manage illness, quality of life also needs to be sought.
Yes it is. I totally agree, it's a challenging decision to choose one or the other in some situations.
I survived prostate cancer and had similar results from Lupron. The hot flashes were horrible, and the other effects will shorten life and make one miserable. Against med advice, I got off Lupron after only one year of the three years the oncologists wanted. So far, cancer free for a year. I would not take Lupron again.
Thanks
Thanks for watching!
Just had my last injection of lupron and it's been a horrible ride and feel so sick and the hot flashes and night sweats were unbearable. I decided when I finished my Chemo I will be off it permanently. I'm depressed as all hell and no happiness to wake up in the morning.I was advised to go on hormone blockers for 5 plus years and I said no due to I have so much time in my relationship I invested in and I am not going to loose myself and what we have worked so hard for. I want to be happy and live and not block myself out. Those are horrible things to put on a woman's body. Chemo plus hormone blockers plus radiation is as far as I agreed to do during treatments not after so I can get back to my happy again which iv been longing for. Iv been so depressed and upset and so sick throughout this journey.
I resonate so so much with what you are saying! Thank you so much for sharing your experience. I found the medication so challenging! With that being said I would like to wish you a MASSIVE CONGRATULATIONS for finishing chemo and having your las Lupron injection! That is seriously so huge! I'm excited for you and the next phase of your life rediscovering yourself and your happiness. Wishing you all the best!
@@ChelseyTarnow i was wondering bc I can't find the answer and I know ppl are different but from when you stopped hormone blockers and after chemo when were you able to feel a libido again or a period?
@@BridgetMoranCacheDesign29 as you mentioned it is so different for everyone. However, after stopping my chemo hormone blockers my menstrual cycle came back after 3.5 months. It didn't take long for me to feel better in general from this shorter stint of medication (definitely faster than after being on it for 2 years later on). I hope you feel better asap!
I was on Lupron and it was horrible!! I have to go back on it today 😭
I'm sorry, these decisions and side effects are so challenging! I hope this time is better for you🙏❤
I felt horrible I began having headaches that turned to migraine I was even waking up with them terrible joint pain could hardly walk first thing on a morning these drugs can be horrific for some women people just don’t get it my is a anatrazole I think I’m going to stop it awful decision 😢I’m on a 2 week break and my headaches have stopped
I'm so sorry you are having such a hard time! I experienced the aching too! It was so painful! I'm glad your migraines have stopped! I hope with some tweaking of meditation you can begin to feel better all around. Sending positive healing vibes your way🙏💫🌱.
I’m supposed to go on Lupron & Anastrazole until I remove my ovaries then just Anastrazole and now I’m reconsidering doing hormone therapy at all
Hormone therapy is such a hard decision. I hope you find clarity in what's right for you🙏💕
I'm dealing with the horrible side affects now. I am in extreme pain from head to toe. Horrible 24hour headaches. Can't sleep or eat due to cold/hot sweats. This was only my first shot. I will NEVER do this again!
Oh no! I'm so sorry, that sounds truly unbearable! I hope in the last couple days the side effects have eased up on you🙏🙏
@@ChelseyTarnow - I started taking Magnesium for the headaches on day 5. It's bringing some relief. But I'm still experiencing residual joint pain. I was finally able to eat a full meal so that's good. I'm probably going to opt for surgery instead of taking more shots.
Thank you for asking🌸💕🌸
@@calvthomas6153 Thank you for updating me, I am happy to hear you have experienced a little relief and eating a fully meal is huge! Hoping it continues to get better and better for you
@@calvthomas6153 what surgery will you get would you explain please,,
Hi, I'm on Zoladex and felt dizzy 2 weeks after taking it. Been dizzy lightheaded for 4 days now. What could this be?
Wheres ding 🛎 🦦
Lol she chose to nap in her bed instead of recording with me😆
I on my first dose and 20 days passed by. Dose was 3.75
I m facing hairfall, Acne and thin scalp hair.
Doctor started me for Gender change.
Does this thin hair thing stays forever ?
Honestly, not sure🤔. The first time I was on the medication I was bald from chemo ans the second time my hair was just growing back after treatment so I was gaining it not losing it at the time. I hope it doesn't last for you🙏. Wishing you all the best on your journey💫
Looking forward to the comparison video between AIs & tamoxifen. I'm on zoladex/ tamoxifen now but I was on letrozole first. They switched me to tamoxifen because the gnawing bone pain was terrible. I'm considering an oophorectomy now partly because I want off these drugs & don't want to go through menopause again later.
Hi Melissa, thank you for sharing. I'm so sorry you are having such a hard time as well. I'll have the comparison video done for next weekend. May I ask... did your bone pain go away with the switch?
@@ChelseyTarnow Hmm... it's hard to explain. The gnawing pain is gone so I'm sleeping a little better. However, I still wake up most mornings feeling like an 80 year old woman. Now the pain feels more achy. Thankfully once I get out of bed & moving around it gets much better. It'll be 1 year in April since I started hormone therapy & 5 years seems like an eternity. I'll watch for the video. Thanks for responding! 💖
@@melissabrown3976 Of course! I don't know how your medical team feels about a collagen supplement (I would check with them first if interested) but I found it drastically reduced the aches and pains for me. I hear you, 5 years feels like such a long time. I'm only 2 years down.
@@ChelseyTarnow So funny you mention collagen because I just got the ok from my oncologist to take a collagen protein supplement. Excited to hear it helped you! Hopefully it's the same for me.
@@melissabrown3976 That is so awesome! It was like night and day for me. I sincerely hope it is the same for you!