Unexplained Nausea & Vomiting | Let's Talk IBD
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- Опубликовано: 12 мар 2023
- Today I am sharing an experience of last week that included a lovely morning of throwing up! Thankfully, it didn't last long, but it was a great reminder that I don't aways get to know why I feel sick. Sometimes it just happens!
I know many others experience nausea and vomiting like this when it comes to GI illnesses like Crohn's Disease, so I thought I would share this.
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ostomy #ibd #chronicillness
Most people will disagree but nausea for me can be worse than vomiting. Hope you are ok ❤️
Vomiting is worse when the nausea doesn’t go away and you have nothing left to throw up but blood
You don't have to defend yourself to anybody. You are doing us a favor by presenting your channel & it's contents...
I have lupus and am on chemo and plaquenil and I vomit way too often...zofran has rarely helped me so I did talk to my gastro about it and he helpfully gave me phenergan instead. It has given me so much more effective relief with the added benefit of helping me rest when I'm sick as well. I pray that your Dr will listen and help you too🙏 happy st Patrick's 🍀 and hope you recover quickly.
Omg, I was on chemo drugs for my lupus last year and I STILL haven’t stopped throwing up! And Zofran never does much. Compazine suppositories help a bit. Last weekend I was at an urgent care and they prescribed me Diclegis. I have yet to try it, though, because it requires a prior authorization. Ugh!
You should try a Ketogenic diet to put your Lupus in remission
This has been happening to me too on and off since October. It's so weird. Zofran is a hit or miss with me too. Unfortunately most other antiemetics are contraindicated for me as many give me seizures. Ginger candies seem to help a bit though. So far I haven't been able to find an answer as to why this is happening. I'm glad you're feeling better! People really need to stop asking about pregnancy. I'm so sorry you have to deal with that.
I have A.S. since 17. Had thyroid cancer 7 years ago at 55 and was recently diagnosed with Chrones.
About two years ago I started having sudden onset of projectile vomiting and daihorea. It usually started in the middle of the night. I would also have severe stomach cramps which would last up to 17 hours. It wasn't until the third or fourth time that I also noticed that maybe six hours prior, it would be preceded by a rush of what felt like going into shock. It would last maybe 5 seconds and then disappear. It was a feeling I knew from years of having migraines.
So, next time I experienced that shock rush, I did what I had learnt to do when feeling a migraine coming on, and that was to take two Benadryl and go to bed. Since this realization, I have managed to stop the whole cramp, vomiting, diarrhea episodes all but twice in the last year. I keep meaning to contact a migraine research center and ask them about stomach migraine, but ....
Anyway it's something to think about...
I've had Crohn's Disease for over 40 years and an ileostomy for about 32 years now. I know exactly what you're talking about, as I've probably dealt with just about every issue you can think of. After all of that, I was in a very bad car accident about 6 years ago where my seatbelt saved my life, but also caused enough damage to my abdomen where I almost died of septic shock multiple times. I was kept in an induced coma for 3 weeks while the GI surgeon took me into the OR every other day for a total of 8 surgeries to keep fixing the leaks. After all of that, I have a lot of internal scar tissue with a partial obstruction due to a herniation that happened in a final reconnection surgery. My point is that I have a pretty difficult gut and situation at this point in my life, but in time have found a way to work with it and still have what I consider a good life experience most days. Good luck to you and all the other folks out there dealing with these types of issues!
Oh my...so sorry for all the crap you have been through...I've had crohns for about 25 years now and I guess I have been lucky to not have surgery...but the stomach pain is rough....wishing you better health and hugs 🤗
When I was younger and still had my period, I used to have situations like this. I usually got so dehydrated that I wound up in the ER. It turns out for me that it was caused by HORMONES. it usually happened a day or two before my period. I totally sympathize. It sucks.
Glad you are feeling better. ❤️
It’s terrible you have to feel bad asking for a good drug that will help you. I’m a couple decades older than you and can tell you that sometimes there is no explanation for feeling sick. I would sometimes think I would never feel well again and would despair. But I did get better and I think you will too.sending you lots of prayers and warm wishes. You are such a vibrant girl and I love your chats! Hang in there!
I have to take an interesting accumulation of vitamins and meds. Sometimes it makes me nauseous, sometimes it doesn't. I get frustrated because I always say that I do not mind making mistakes in anything as long as I can learn something to improve future outcomes. A nice mission statement, but sometimes the universe just chooses chaos. Good there is an upcoming medical appointment, definitely add recent event to the list of discussion points, plus mention the recent air travel and hotel stay.
Good to see that you are feeling better!
So sorry you felt so bad. Happy to hear you are feeling better. You know, I trust that you and Zak will know the right way and time to grow your family. It will happen in the time and way it's meant to.
Sorry to hear of your situation but really glad that you're feeling better. You are one of the greatest inspirations I have come across!
I’m so sorry for the nausea. When I was undergoing chemo, Zofran lost effectiveness for me. It was given intravenously along with my chemo and I was sent oral tabs home after my infusions…but I understand you when you say it just isn’t working for you-it stopped for me as well. I hope your doctor prescribes you an alternative to try. Do your best to stay hydrated. I know it all sucks. 😢
Ugh I sure hope you don’t have a partial blockage. I will keep you in my thoughts and prayers Maggie as we both know, the little things sometimes end up being bigger things.😔🙏🏻🙏🏻🙏🏻
I’m sorry you weren’t feeling good. I’ve been having a week a month where I can’t really eat because of the pain and I’m so nauseous. I had a colonoscopy last Thursday and the only thing they saw was scar tissue from my colectomy in 2014. It’s so frustrating when we feel bad but my new GI says nothings wrong. I’ve had to take Oxy for the pain because over the counter stuff isn’t helping. Hopefully we both can get some answers soon.
i commend you on being brave enought to talk about this your my hero lady .i beat cancer twelve years ago so i had my own journey of suffering bt cant imagine how yours was and is ,many happy returns .take care.godbless you.😢😢😢
Hope you're feeling better Maggie that wad awful to go through 💜
Thanks for sharing this with us. Maggie I can so relate to being ill and at times not knowing why. Having a chronic illness means there will be down days and we don't always know the cause, i.e., was it something I ate, drank, didn't eat, exercise, lack thereof, not enough sleep and on and on. I know with me if I am eating too much junk (which is rare these days) I will have a bad couple of days. Other times no explanation whatsoever. When I first was diagnosed with Type 1 diabetes when I was 16, there were times I got really frustrated with doing everything I was supposed to and still not getting good results. Turns out I am brittle which is rare but happens. I have been diagnosed with this which means no explanation for highs and lows (not occasional like some people) but often. So I am learning to go with the flow and just take it as it is. Loved your analysis of ostomy patients on TikTok and how to treat yourself when you have a bad day. Self-care is so important. 💗
Glad you are feeling better ☺️
It took us 8 years of trying to get our son. We gave ourselves until I turned 32 to conceive. Still enough time to go through IVF and not be a geriatric patient. We found out on the eve of our 10th wedding anniversary. Shocked the hell out of us! I had been really sick but had taken a test that came back negative. I finally went to the doctor and she said it was negative too, but she went back to check it one more time and it had turned positive. Not only that, but I was almost 3 months along. Greatest surprise I've ever gotten! I get the not wanting intervention. We have spent so many years being a patient and wish that one thing could just go normally. You'll know if and when you're ready to take the next steps. We'll be rooting you and Zak on!
I swear stomach pain is THE WORST!!! I am so sorry you have to live like this!
I'm so sorry you got those inappropriate comments. I think that's right up there with asking an overweight woman when she's due. I'm also very glad you're feeling better! I was feeling off Thursday and Friday. Friday was the worst day. Stomach/abdominal pain, achy, headaches, and many trips to the bathroom. I can deal with all those things on a daily basis, except the abdominal pain and nausea. Note if I could just get one of my medical team to prescribe IV fluids, I'd be great! Your fur baby has also proven yet again, to be an excellent ESA for you💜🐶
Lots of love. I suffer from celiac disease and Ménière’s disease and the nausea that randomly hits is the worst. The blue hospital barf bags are my friend.
Thanks for the video, I'm certain these aren't easy to make.
Nonetheless, you were here for me & this video offered me some resolution. I ate some leftovers & wound up with food poisoning. Needless to say, after removal, the Dryheaves were nonstop.
It's amazing how we can visualize our own problems we're dealing with.
Again, thanks for the confirmation 🙋♂️
Feel better soon
Phenergan is the only medication that stops my nausea cold-turkey. Zofran gives me severe headaches and constipation.
Zofran also gives me terrible headaches 😳 the doctor told me that was very rare😒
Yes...Phenergan is the best!
Same, but they don’t give it as much. My doctor said it’s linked to tardive dyskinesia. The nausea is so frequent and bad I’d prefer someone shatter my knee caps.
Its contagious if its the noroviris soooo if Zack gets sick then you'll definitely know. Hope you keep feeling better🎉❤
3:16 VERY TRUE!🎉 we got a few small after socks & I live in Wyoming❤🎉❤ YOU GO GIRL!
AYYY I KNEW YOU WAS FROM NEAR PHILLY! GOD BLESS!
Healing loves your way. Amen
Hello, and I hope you are doing well now and want to thank you for sharing. It is funny how it just hits you from nowhere as I get gas pain and don't have to eat much at all ...crazy..Take care and all the best.
Gas and reflux and anxiety makes me feel nauseated and I have a vomit phobia take care x
I chew dried pineapple the enzymes help with stomach upset, also Canada dry ginger ale, Walmart has store brand that's the only thing that helps with my upset, haven't used zofran forever, also yogurt helps with upset, I can't stand my stoma I'm getting ready for my reversal surgery soon, sending blessings to you to start feeling better.🙏✝️
I wish I didn’t completely understand 😞 glad you’re giving it a voice❤️
Just glad you are feeling better. Hope they give you a plan B to work with.
Reching... I feel for you. Since my throat surgery I dread the sickies as my windpipe feels too small to let the sick out.. Awful.
I live with constant sore thoarts /ear pains and drowning sensation and they say.. We don't know what's wrong.. 9 weeks continues of deep ear pains and sinuses.
I guess my operation caused all these symptoms.
I enjoy the vlogs.?? . Love FROM SCOTLAND. 💐
Bad episode for us with emetaphobia. Lol. I’m glad you are feeling better. I can’t take anti nausea meds with my antidepressant.
I'm watching this of all things to relax. I don't even know why.
I was hurling the other side of the pond. Called the emergency doctor out and was given a shot of Ondansetron (Zofran). I have Cyclizine tablets, but just couldn't keep anything down. My family complain about the dreadful noise I make! I'm also starting out with a new consultant. I have hepatobiliary disease, and after hysterectomy and ovary removal at 27 I've had major surgeries for bowel obstruction, with a malignancy. No ostomy but I love your upbeat channel and tips for survival. Definitely need a new vomit bowl as I get a gross reflection on the shiny surface of mine.....!!
I have UC and am also on chemo treatment. I’ve been getting this over the last couple of months and like you say mad retching but not bringing anything up. It comes from nowhere and I have no warning. I don’t know whether I should contact my GI as everyone is saying it’s my cancer treatment but I don’t think it is and no anti emetics work. So I hear ya girl, it’s horrible xxx
Glad that you are feeling better.Did you try plain old here forever gravel with ginger in it? Sometimes old treatments are as good or better than the newer stuff.Hope your GI doctor can explain why this happens intermittently.
The outfit you wore going out was so cute!
how frustrating not to know why it is happening. whenever i dont know why my body does something i get scared that it could be some underlying thing that i do not treat and then it becomes a threat. i am always paranoid about this stuff.
Feel better
This has happened to me before and I have gone to the hospital they have done testing and they said it was because I was severely dehydrated. Once I got fluids and IV I was so much better.
Zofran doesn't always work for me either. Phenergan and the other antiemetics that for work are contraindicated for me. I've had 75 years at least of gastric problems and using those meds all those years I began to notice some hand twitchiness. Norovirus is going around. I'm terrified I'm going to get it. I can't tell the difference between irritable bowel nausea or norovirus nausea. Whatever the reason, I just hate it and I panic when it happens. With all my heart I hope you are really o.k. and it doesn't come back...ever!
❤ Ask your doctor for the med you need. Don’t worry about the reaction that is on them.
Hey Maggie,
Have you heard of compazine??? I have both and I like compazine better than Zofran...it takes my abdomen pain away too!!!
I hope you get Phenergan, I have never even heard of it...have a great st. Patty day!!!
Maggie l have vomit phobia listening to you l felt so sorry for you. Xx
its always funny when you mentioned big events so casually like st patricks day or the timechange. because where i live... the time chinge is in 2 weeks and there is no st patricks day i dont even know when that is. and it... kind if feels strange but mystical to know we all live in different worlds and perceive time quality different, because for me its just a week. for you it is filled with specials. thats so interesting.
I have chronic nausea, have a PICC so I use IV Zofran, double dose. Sometimes I still throw up. It's common..at least once a wk even though I use the Zofran daily. Yes it socks. Feel better
So glad you’re feeling better Maggie! Just a well meaning word of advice from an Irish person- we hate hate hate when Americans mispronounce it as St Pattys- it’s actually St Paddy’s! Have a great one! ☘️
Sorry if my D's come off like T's - I am aware! As a person with a big Irish family and working with an Irish company, I think it wouldn't end well for me if I said/wrote Patty! 🤣
I've had U.C. for 37 years now, & I periodically have unexplained nausea. It's HORRIFIC, because I am COMPLETELY PHOBIC about anybody vomiting, or if it's me! It's SOO embarrassing!!
I've just had a lot of nausea over the weekend, & was having to use my Zofran regularly.
Once, about 2 years ago, I had uncontrollable vomiting, & went to the E.R. They gave me I.V. Zofran, which didn't stop it, then they gave me I.V. Kytril, & I still kept vomiting. Then they gave me another bag of Zofran & I finally stopped vomiting. That was a truly awful day for somebody with emetophobia!! I would be known to run away when I was growing up if somebody was going to get sick!!
I could of been writing this awful when I was younger l use to say ld sooner die than be sick stay well x
I have severe emetophobia too and get nauseated often. I'm in the UK and GP will only prescribe cyclizine which isn't affective, in hospital I'd get ondansetron/zofran but I live in fear of feeling or being sick or indeed anyone else. I grew up in a large family and would quarantine myself when a bug went round. No idea what to do.
@@gemmi1 Oh my goodness, so I'm not the only person who has emetophobia! It has terrified me my entire life, and is embarrassing. My big brother used to fake like he was going to be sick to scare me..... maybe that's why I have this phobia.
I have emetaphobia too. It’s awful.
@@stacyvakassian2334 I know, right?? I get a panic attack...it's so embarrassing, but it's terrifying!
This happens to me with all my abdominal scar tissue inside.
Hope you're better now. It's so sh*tty to be having nausea or pain and guessing what went wrong...had some episode of really bad stomach cramps over the weekend but lucky me they have gone away. Having Colitis Ulcerosa and I have not been able to have good response to no other pills but cortisone. I am thinking to have the colon cut off and having a stoma but I have a doubt still and not done it 🤔
Have you ever tried using seasickness wrist bands? They have helped a family member who is a cancer patient.
Three of my kids are home with Norovirus this week. Lots of nausea and vomiting here. One child needed IV fluids, and we have Zofran prescribed. Always put a bag over the throw up bowl. It makes clean up much easier.
Aww man I'm sorry! I actually don't do the trash bag liner because my dogs have a fine taste for all things throw up, meaning if it goes in the trash, they are interested 🤣
I am an old man. A few years ago I had surgery removing a section of my colon. I was initially on the bag for three months, but again had surgery to get connected back up and things went really wrong where the connection leaked and was back on it for more months. The infections caused more surgeries and two years of a tough time. Luckily I am in good shape today and no bag. After seeing a few of your videos I feel so badly for you. More especially because of the other illnesses. You are a beautiful and good young lady. I hope and pray that the cause of your illness will be found and will have no more feeling sick and what comes with it. Take care and God bless.
My Gastroenterologist told me ALWAYS eat something, it doesn't matter if you don't feel like it. My intestines will cramp from my Ulcerative Colitis, if I don't eat something at least every 4 hours.
Does eating help your cramping? I have not been diagnosed with UC. I have an ileostomy because of diverticulitis and experience debilitating abdominal cramps that prevent me from standing for more than a minute or two and cause me to walk bent over.
I tend to get unexplained nausea and have ended up in the ER, best thing that they used that was not drug related and the doctor was not sure why it works but is to sniff alcohol wipes
Hey Maggie. I feel nausea when stomach is completely empty. When had you last eaten before to woke up sick?
I get nauseous with my IBS it’s very frustrating I just try to stay positive
Could have been gastro or a stomach bug…
I’ve been having unexplained nausea and fatigue since March of 2021, and I’ve gone through dozens of tests and checks and still don’t know what’s causing it. I feel like it’s chronic fatigue, but until then my stematil is working fine.
Does Phenergan work for you?
I usually get scared when I puke it's a not a happy feeling I have a conduct just like you did I made a mistake of getting it done
The hard thing about having digestive problems is that when you get nauseated you never know why you feel like dirt. Sometimes norovirus is the culprit and sometimes it's food, but really most of the time it's just a miserable mystery.
Sounds like a stomach bug, some are severe some are not. I realise you have to be super careful, but sometimes we just catch ordinary bugs. I remember bugs when I threw up every 20mins others times I would be like every hour or so. I always find when it's a bug my anti nausea meds don't work. So sorry it's a horrible feeling. I'm noisy too, it's so embarrassing. Sympathy vote. 😘
I’m so careful with my meds especially pain meds, zofran is a life saver, I used to take Phenergen and stopped a few years back I had no idea it could be used inappropriately! I don’t have crohns or IBD I have gastroparesis and repaired esophageal Atrisa unltra long gap (I had almost no esophagus at birth) chronic pain and many other issues.
Are you perhaps near the end of your Humira cycle? This sounds to me like when I come to the end of my biologic coverage and my CRP (C reactive protein) elevates. I always get nauseous for a couple of days then it goes away after my next infusion. Sometimes I even have to take Prednisone for a couple of days so I don't get dehydrated and get kidney stones. I hope you get some answers soon 🤞
I have been throwing up and watery diarrhea at the same time, just had an ultrasound they thought it was gallbladder. Nope... its been a year at first I did that every month or so, now it was 3 weeks in a row last. 2 to 3 days each week. Labs were not good Tuesday during episode, now today at ER. Labs ok except alkaline tests higher than normal. Same here zofran, dosent work because this comes on so fast no warning. Too late to take it
I have vomiting and throwing up periodically for over a year. , seeing gastro Dr. , did scopes.....etc. thinks it's anxiety , cyclic vomiting syndrome ???
I am so sorry to hear this. I say what I am going to say as a UC patient who also suffers from GAD. I do not want to minimize your physical issues in any way, shape, or form. Could your nausea and vomiting be caused by stress at all? I know that nausea and vomiting come with both conditions for me and nausea and vomiting are my bodies way of expressing stress. Maybe I never caught a video of it, will search. Regardless, feel better and know it will pass one end or the other, one way or the other!
Is a "throw upper" a new medical term? I know of terms like reverse peristalsis, vomiting, puking, and up-chucking.
Yes, yes... a very medical, scientific term indeed.
Dummie
I have had that recently. Why? Who knows . 😦
Sometimes I wonder when after I eat, and then I have these bouts of "tossing," many hours after eating, if it my intestines rebelling due to the scar tissue? Maybe that is your case as well. Who knows? Apparently scar tissue doesn't show up on CT scans.
Remember, sickness and disease is initiated by the body, in response to internal and external conditions, to correct and repair. You may never know why you vomited, but the body knows.
Glad you are better
❤️
I have a question but if it's too personal I'm so sorry...
When you puke does the cramping of your stomach muscles make your stoma more active? Does it get sore from the muscles around it being tightened if you puke/dry heave for a long period of time?
Glad you're feeling better. Hope your icky days are limited❤️
They do! I've never heard someone else describe it but yes - it's a hard abdominal workout 🤣
Zofran does not work for me either
I also want to be pregnant so bad and I'm 37 there's still a little time but I hate it when people ask me because it's painful. And bad enough to be sick for no reason
Maggie, how often do you get IV fluids. Also, what medication are you on that leaves you immune compromised? I used to be on a monthly Benlysta infusion for my Lupus. It worked SO well. But I’ve moved and the continuation of care is not great. I have the option of driving 2 hours both ways to start it again in Los Angeles, but with the cost of gas (and the HORRENDOUS housing prices) out here, I can’t afford to.
Right now I get IV fluids every 2 weeks! I'm on Humira!
That is so tough!! That was one of the reasons I chose the medication I did - I was offered this (an injectable) or an infusion medication and chose Humira because I knew it would be tough getting somewhere to get my infusion. Now I'm laughing because I go to get fluids far more often than I would have gotten remicade, but at least Humira works for me and is easy to take!
@@LetsTalkIBD yeah. They have an injectable version of Benlysta which I want to try. My Dad had Crohn’s and he took Humira. His Crohn’s wasn’t diagnosed until he was 60, but I think he had it A LOT longer than that. It was pretty much refractory to medicine and biologics, but because he had a heart condition, he could only have one surgery to treat it. I wish they’d caught the Crohn’s earlier (he died of AFib sudden;y, right before Christmas in 2016, three hours after we left his cardiologist’s office, where he was told that he was doing better than he had in 18 months…not so much!). Fully 75% of my Dad’s side of my family have autoimmune diseases. Crohn’s, Scleroderma, Ankylosing Spondylitis, Lupus, and I’m sure I’m forgetting some. I’m hesitant to stop the infusions because I have chronically low potassium (usually critical low when I get there), due to two GI conditions caused by Lupus that make me nauseous any 🤮 all the time. They always catch it and treat it immediately when I go. I also have reactive hypoglycemia (Lupus sucks, as do Crohn’s and all the others). I’ve also got chronically low protein and low calcium. Saline infusions don’t help with that, do they? I’m afraid I’m going to end up on a feeding tube, as I’ve lost 80 lbs in the last year, unintentionally.
@@LetsTalkIBD btw, Zofran doesn’t work for me either. Have you ever tried Diclegis? I just found out about it’s existence last week, but I haven’t tried it yet (waiting for a prior auth. So fun! 😂). If I couldn’t laugh at these things, I’d never stop crying.
Nausea and vomiting is the worst!
Does Zack work outside of the home??
☀️
Could it be hormonal? I often get nauseous due to hormonal changes
no! not the sink!!!
Zofran doesn’t help my daughter either. Phenagran is our go to
Now the random Facebook story makes sense!
🙏❤️🌷
sad..
4:03 - Brawndo has electrolytes. It's the thirst mutilator. :P
I'm nauseous all the time and the doctors in sweden don't know wtf is wrong with me. It's hard not to give up on life sometimes.
Edit: I have been sick since I stopped breastfeeding (age 1), nausea, pain, vomiting, diarrhea, constipation etc. The past few months it has been non-stop nausea and I am so tired.
Happened since I was 15 nearly 10 years now it’s horrible makes life so miserable :(
Why does this channel cost to become a member? But anyway, I have nausea issues, I take compazine, works perfect for me.
This could seem extremely ignorant whats not intentional. But could relief band help at all? Not as a solution but more to help with the nausea. I'd advise watching a RUclips short but tbh spending 250 on something you don't no is garunteed to help a little might be a disappointment. Maybe ask the doctors what they think of using a relief band in your position because it's not cheap and I wrote this comment to help last thing I want is you spending money on something that won't help at all. But anyways you wear it like a watch, and it stimulates the nerve on your wrist by sending pulses to the stomach helping with travel and morning sickness. Anyways there's a RUclips short on it.
I Are you feeling better?
My sister who was 36 no children was having this problem regular periods by the time they found out what was wrong she was 5 mos pregnant
Stop with the pregency crap that is so insensitive really
You're not pregnant are you...? Hope you feel better. I can only imagine the stress that your condition can cause, even if you don't notice it amongst normal life. 🙏❤️
You are such a creep why would you say something like that to her
@@karenneal5172 I think you've read my comment wrong. I have known and followed her and Zak for years, and I know they're contemplating kids. The pregnancy part was only in jest, I'm pretty sure she understands that. I am a colostomy patient, so I have some sense of what she deals with, and that's how I found her pages.
Not funny to someone trying to have a baby but can’t…
Hi I have bad IBS etc always nauseus. If I don't have zofran. Dramamine can help sometimes.