Living with Scleroderma: How to Beat the Daily Struggles!

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  • Опубликовано: 6 фев 2025
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    In this video, Dr. Girnita interviews one of the world renowned rheumatologists, Dr. Daniel Furst regarding systemic sclerosis, also known as scleroderma. They discuss what are the signs and symptoms, the diagnosis challenges, the types of antibodies related to this disease and the newest options to treatment, but also appropriate lifestyle changes that you can make to live better with this disease.
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    ⚠️ Disclaimer: This video and its content are for general informational purposes only and should not be considered a substitute for professional medical advice, diagnosis, or treatment.
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    Consult Your Doctor:
    It is crucial to always consult your doctor or healthcare professional before making any decisions regarding your health. The information provided in this video and its content is not intended as medical advice. Every individual's situation is unique, and what works for one person may not work for another. Therefore, it is essential to seek personalized medical advice from a qualified healthcare provider.
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    👩🏻‍⚕️ About Me: Dr. Diana Girnita is a distinguished, double board-certified physician specializing in Rheumatology and Internal Medicine. Holding a Ph.D. in Immunology and having completed rigorous training at Harvard and other top-tier institutions, her expertise in rheumatology is unparalleled. 🎓🏥
    #rheumatology #sclerosis #medicalknowledge #patienteducation #patientcare

Комментарии • 28

  • @annalucinda8273
    @annalucinda8273 5 дней назад

    This has to be one of the top, most uplifting and positive video clips on You Tube on this topic. Most sincerely appreciated - so thank you both. 🌹🌹

  • @danieltait8564
    @danieltait8564 7 месяцев назад +4

    Fantastic talk! Thank you for giving patients a lot of optimism.

  • @karmarya
    @karmarya 6 месяцев назад +3

    I am so grateful for this interview - I live in South Africa, born in USA - diagnosed with Cerebral Lupus Vasculitis in 2007 - treated in 2011 at USC by Proff Weiner - 2 years of Rituximab, got covid and long covid with small fibre neuropathy & Dysautomia - suffering so badly and became bed-ridden of late - blood tests came back with Your blood tests showed a high-level positivity for ANA (ANA TITRE IIF 320) with an anti-centromere pattern. On ENA testing the tests also picked up anti-centromere antibodies at lowish positive level of 12.0 U/ml (Normal < 10 U/mL) - final diagnosis of limited Scleroderma - started Plaquanil along with treatment for GI tract. It has been a horrific 17 years - this has helped me tremendously. Thank you.

    • @rheumatologistoncall
      @rheumatologistoncall  6 месяцев назад +1

      Thank you for following

    • @vickyho1
      @vickyho1 2 месяца назад

      Thank you Dr Diana and Dr Daniel very much ❤

  • @ClaraMyles
    @ClaraMyles 25 дней назад +3

    I was just diagnosed with CREST syndrome and you explained this very well to me I started taking Plaquanil almost 2 weeks ago and I am already noticing much less swelling I hope that is a good sign.

  • @tanyajones5070
    @tanyajones5070 3 месяца назад +1

    Thank you both so very much for all your work 🙏🌷

  • @shawnas7747
    @shawnas7747 4 месяца назад +1

    So do you guys think it would be a good idea for me to take the trial shot?

  • @islandgal1187
    @islandgal1187 5 месяцев назад +2

    Hi Dr Diana, Have you come across cases of Limited Systemic Sclerosis that were triggered by trauma? Or Raynauds (not primary)? I fell and fractured my finger, and within a month I had a new onset of severe Raynauds, skin hardening, ulcers, pitting, one index finger almost gangrene. I was diagnosed with Limited Systemic Sclerosis 4 months after the trauma. (+centromere) Thank you for the video!

  • @tanyajones5070
    @tanyajones5070 3 месяца назад

    4 yrs ago i was diagnosed with "diffuse cutaneous systemic sclerosis scleroderma" can you do a video on just that subject?

    • @rheumatologistoncall
      @rheumatologistoncall  3 месяца назад

      Thank you for sharing your experience! I appreciate your suggestion and will definitely consider making a video on diffuse cutaneous systemic sclerosis scleroderma.

  • @nenaluna2954
    @nenaluna2954 7 месяцев назад +1

    Doctor could you please let me know what is the natural alternative to hydroxychloroquine?

    • @laurielaurie8280
      @laurielaurie8280 7 месяцев назад

      My Rheumatologist put me on that. I could only take it for 6 days. It made my heart beat faster, my mouth really dry and irritated my stomach. She just put me on another medication called Sulfasalazine. I haven't started taking it yet. I really don't like taking these medications. The side effects seem worse than the cure.

    • @rheumatologistoncall
      @rheumatologistoncall  7 месяцев назад

      there is none!
      Thank you for watching my channel!

  • @vishnum4497
    @vishnum4497 11 дней назад

    Dr. I am living in india in tamilnadu i have ssc ild pulmonary hypertension . 15 yrs. Mmf prednisoline. Bosentas 62.5 sildenafil 20.Nintena 150.calcium. doxyflying 200Mg. Rebeprazole domperidone .i feel sad always .i am 48 yrs old my name is latha . U r vedio very super mam. Ifeel better in mind tq

  • @edzkieverdidaromero671
    @edzkieverdidaromero671 7 месяцев назад

    Hi. Is multiple rib pain also a symptom of fibromyalgia?

    • @rheumatologistoncall
      @rheumatologistoncall  7 месяцев назад +1

      Yes, multiple rib pain can be a symptom of fibromyalgia. It's always best to consult with a healthcare professional for a proper diagnosis and treatment plan.

    • @karmarya
      @karmarya 6 месяцев назад +1

      I was rushed to ER a few months ago with what felt like sharp pain in my chest - they said it was Tietze syndrome and must rest. A few months later - my back collapsed - another ER emergency - now found multiple bulging disc's by Neuro surgeon - home to rest. Finally my Professor of Rheumatology was called in and immediately did bloods and video called with me to explain all previous symptoms coming down to lImited Scherodoma - so yes, my chest presented with pain - but it came back to this - so much confusion and a hard way to have gone to get to this point

    • @edzkieverdidaromero671
      @edzkieverdidaromero671 6 месяцев назад

      @@karmarya so how are you now? What did you do to lessen the pain? How about your complete blood count is it normal?

  • @davidbell7094
    @davidbell7094 7 месяцев назад +1

    Just like the Union Jack,those colours!

  • @markoembarko9045
    @markoembarko9045 Месяц назад

    Hello! I have Scleroderma. I was diagnosed in middle school, at the time much wasn't known so I didn't receive treatment. Now as an adult, I still haven't received treatment due to no health insurance. It has now spread to the back of my neck along my spine and is going up my skull. It impacts my life everyday and I pray that I will be able to receive treatment one day. I live an active life the best I can, but due to it being in my upper neck/spine, I worry that I will become a quadriplegic in my future. Any suggestions?! Thank you!