I appreciate your honesty and openness on this subject. You are very talented and it is obvious your spirit is much stronger than your body with its restrictions. Y our video describing your symptoms and how they affect you will help others to identify this problem that was not easily recognized years ago. I am sorry for the humiliation you have suffered as a result of others not being compassionate or having understanding, you didn't deserve that. Can you explain more of your symptoms and how you dealt with them? Your personal testimony carries authenticity. With so many complications in your life, to do a video takes a strong character and vision beyond yourself. Thank you so much for sharing.
May I know how is he today? I hope everything is good with him. This week, my lovely 15 months daughter is diagnosed with Pachygyria and my family are very sad now. I cannot imagine how she will be
@@tuannguyenthanh9329 Hi! He is almost 6. He is on an IEP. His education is age appropriate. He can walk, and he can speak well. Our major challenges are behavioral. No seizures so far. He can eat independently.
My daughter 1.5 year old... Her suffering of pachygyria... anybody know about the treatment plz tell me about the same help me... ma'am please help me...
There is little treatment such as anti-seizure medication. There is also speech therapy that might help. If possible lots of vitamins and minerals. Hang in there.
Thank you for this video. I just had a baby who is diagnosed. You are an inspiration and give me hope for his future 💕
My 15 months baby got Pachygyria. I hopes she will not too bad in the future. How is your baby today?
@@tuannguyenthanh9329 how he was diagnosed?
Sue here. Watched both of your videos on this condition. Good explanation. You are a strong woman. Thank you.
Thank you :)
I appreciate your honesty and openness on this subject. You are very talented and it is obvious your spirit is much stronger than your body with its restrictions. Y our video describing your symptoms and how they affect you will help others to identify this problem that was not easily recognized years ago. I am sorry for the humiliation you have suffered as a result of others not being compassionate or having understanding, you didn't deserve that. Can you explain more of your symptoms and how you dealt with them? Your personal testimony carries authenticity. With so many complications in your life, to do a video takes a strong character and vision beyond yourself. Thank you so much for sharing.
My 2 year old son has Pachygyria and I hope when he is older he can speak as well as you do and attend college.
May I know how is he today? I hope everything is good with him. This week, my lovely 15 months daughter is diagnosed with Pachygyria and my family are very sad now. I cannot imagine how she will be
@@tuannguyenthanh9329 Hi! He is almost 6. He is on an IEP. His education is age appropriate. He can walk, and he can speak well. Our major challenges are behavioral. No seizures so far. He can eat independently.
My daughter 1.5 year old... Her suffering of pachygyria... anybody know about the treatment plz tell me about the same help me...
ma'am please help me...
There is little treatment such as anti-seizure medication. There is also speech therapy that might help. If possible lots of vitamins and minerals. Hang in there.
Contact number plz