Jumping Through Hoops: How I Got My ME/CFS Diagnosis.

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  • Опубликовано: 15 дек 2024

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  • @terrybott6447
    @terrybott6447 6 месяцев назад +8

    Remaining on your feet and moving around your house is exercise! And it’s a miracle! I’ve asked the Lord to increase your discernment and understanding of your boundaries/limits as they change. My son and his wife are Type 1 diabetics who are also Carnivores. Their insulin needs are constantly changing, and they experience a lot of hypoglycemia. God is healing them, but the process is challenging. You’ll get this! You’re smart and strong in spirit. And I thank God for your husband! Carol

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад +2

      Thank you so very much for the prayers and the encouraging words! Glad to hear your family is healing! God is good!

    • @jakecarroll5
      @jakecarroll5 6 месяцев назад +2

      Agreed. The process can be very frustrating but we must know that it takes time to heal. Chronic diseases means we are 3-5 years atleast of a healing phase to really break free again. Getting into deep autophagy in a fast after being fat adapted on Carnivore though leads to cleaning and recycling of these cells and we make new ones with new mitochondrial. It just takes a shit load of time.

  • @anthonycoyer7186
    @anthonycoyer7186 6 месяцев назад +5

    I can sympathize with you completely. Filed for disability 7 months ago and still no word, diagnosed with fibromyalgia 8 years ago and it continued to get worse until I could no longer work, 22 weeks carnivore and my blood tests were great but still tire easily, patiently waiting for my life to come back.

  • @Epona52
    @Epona52 6 месяцев назад +4

    I'm so glad to see that you are experiencing improvement - even gradual improvement beats maintaining or deteriorating by a mile - or a hundred miles! I suspect that hitting that "wall" is difficult to calibrate; for instance, I first thought maybe you could limit your exertion to an hour, or a half-hour . . . but that doesn't factor in the level of effort expended. And if you ARE healing, that envelope of energy might be growing - but not at a consistant pace. I'm praying for your continued healing - your courage is inspiring!

  • @erinmarielee
    @erinmarielee 6 месяцев назад +5

    Thank you, this was so helpful as I am trying so hard to get a diagnosis. My symptoms started in 2000 also, though I don't have a specific event or illness to connect them to. But the PEM episodes are unmistakeable. What really blows my mind is that I have seen literally dozens of doctors over the last 24 years and not a single one ever mentioned this illness. I figured it out on my own, via Google. 🤦🏼‍♀️

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад +1

      It’s so frustrating!

  • @LeapOfFaaaith
    @LeapOfFaaaith 6 месяцев назад +2

    As your energy ebbs and flows, be assured that your story touched my sweetheart and she's following you now. We pray for you often and appreciate the long journey you're on.

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад +1

      Thank you so much for the prayers! That means the world to me!! So happy to have you here!

  • @terrybott6447
    @terrybott6447 6 месяцев назад +4

    I’m hearing that though you definitely have ups and downs - better days and not better - you are overall progressing. I believe and declare that this progress will continue. Many benefits accrue after a year or two on Carnivore. Hold hope!🤗Sixteen months in, for example, I’m finally beginning to sleep. Carol

  • @marccocke9924
    @marccocke9924 6 месяцев назад +6

    Awsome explanation!

  • @adorabelladragondancer
    @adorabelladragondancer 6 месяцев назад +4

    Thank you for this video. It helps me so much to connect so many hitherto unrelated dots.
    I think that I have had mild mecfs since the birth of my eldest daughter 52 years ago. And the flu/pneunomia I experienced a year ago brought me to the severe stage. Though I would need to get a list of what the range of symptoms at each level would be to ascertain that self diagnosis.
    Listening to you is giving me so much comfort and releases the guilt and shame of not doing and being good enough in my role as mother and grandmother, nurturer and provider.
    Thank you. Thank you.❤

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад +1

      I’m glad you found the video helpful. I left a link for that Mayo Clinic paper in the description notes. It has the different severity categories listed and an explanation of each. I wish you the very best! 🙏🫶🏼

    • @adorabelladragondancer
      @adorabelladragondancer 6 месяцев назад +2

      Thank you. I'll get it.

  • @carolhopetyler2178
    @carolhopetyler2178 6 месяцев назад +3

    Thank you so much for all you’re sharing. My daughter is in your situation. She has diagnosis of fibromyalgia and POTS. Now she has shingles. I know she has the ME/CFS too. I’m gonna beg her to try carnivore.
    Did you ever have Co*id. She was hospitalized in 2021 and given the drug no body wanted. Then again in 2022. I think that was just another stressor on her already weak physical condition.
    Information can be paralyzing but it can also be power. Please tell all you have discovered so it might help someone else. Folks can always skip a video that is too much for them in that moment. As you said we have to advocate for ourselves.
    You are a Godsend. I’m so desperate to help her. She is bedridden. Lost her daughter to an ex who had no understanding or sympathy for her illness. Having a child was such a depletion of all her tanks. It’s so unfair.
    God help us all. Have mercy Lord. We surrender ALL to you.
    I’m trying to listen to every video you’ve made. May you soar on wings like an eagle, run and not grow weary, walk and not faint. Live and declare the glory of The Lord. By his stripes you are healed.

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад +3

      Oh my goodness! I am so sorry your daughter is suffering so much. The part about her daughter just rips my heart out. I will keep you both in my prayers.
      Yes, I got Covid in 2021, but it took me awhile to realize it because I already felt so bad everyday anyway. I got suspicious because my pain was different than usual, but other than that I wouldn’t have realized it. It seemed like it made my condition worse.
      Carnivore has given me a lot of relief, but the fatigue and muscle weakness is most persistent. It’s improving, but those symptoms seem to be the most stubborn.
      I do hope your daughter will consider this way of eating. Urge her to ease into though.
      Love and prayers for you both! 💕🙏

  • @truthprevails7085
    @truthprevails7085 5 месяцев назад +1

    Excellent video, thanks so much🌹♥️

    • @The_ME_Lion
      @The_ME_Lion  5 месяцев назад +1

      You are very welcome!!

  • @PowerofCarnivore
    @PowerofCarnivore 6 месяцев назад +2

    Great information 👍

  • @MichaelMyers-jx7qm
    @MichaelMyers-jx7qm 6 месяцев назад +1

    Hi Courtney, I want to thank you for your kind reply to my first comment on your former video. As before, when you talk, it's like just what has happened and is happening in my life. When you said that you liken the body feeling to a sadistic psychopath, I almost fell out of my chair. That's exactly how I have been describing it! There is this other being that got into us and we can't find the way yet to get it the hell out! Uhhh, I keep trying to escape from this internal monster. After all the deep study I've done on the internet and from reading a couple of books on this rabbit hole of a subject, I'm pretty well convinced but not totally, that this is some sort of bio weapon that got out or was let out of a government lab. Are you aware of the Plum Island story? Plum Island is where a government animal disease lab is located. There is a long story about how it got there and what the facility was doing after WWII. The infected ticks in the lab somehow got out and onto the island. The island is located only nine miles off the coast of Lyme Connecticut. The birds that flew out to the island picked up ticks and flew back to the Lyme Connecticut area and began the infection of the people. There is a pretty concise explanation of it on you tube by Truth Stream Media. If you haven't seen that, I recommend it. You probably know all about that, but I wanted to let you know if you don't. I haven't felt very good the last couple of days either, as you said you're not doing very well either. I made it to the gym yesterday and like a goof, I think I over did the work out. I understand what you say about learning your pace with exercise. I'm still learning. I feel pretty weird today, heh, heh. I can feel that burning fire inside that you spoke about. It comes much more after I've done too much activity. I'm hoping to feel more stable in a couple of days. I am a composer of music and I play percussion--majored in music at college, played in many music groups through the years as well as a stint on Broadway in New York back in '72. That was a blast! Anyway, as you have inspired me and I feel fortunate to have become aware of you and your channel, I want to send three of my original music CDs to you for your listening enjoyment during down times. I hope you will find something that you will enjoy from my musical labors. The lyrics are about my experiences and how I see life progressing or rather, regressing on this 3rd Rock from the Sun. I could not get all five CDs on the web page. I was only allowed three unless I wanted to pay a fee, so I just have put up three so far. The years they were released are written just above the songs. The latest CD is Big Blue Mystery, the CD before that is American Dream, and the oldest one is Cosmic Dance. The art work is by my nephew, Andy Spore--quite the artist, and a fellow drummer. I hope you will enjoy and I wish you all good days ahead. I'll keep watching your videos and I'll let you know how it goes for me.
    Just click on this link: soundcloud.com/rmichaelmyers/albums Bye for now. -- Michael

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад

      I’m sorry you have to live with this awful psychopath…lol! Funny that we both say that!
      Yes, I am familiar with Plum Island. There’s definitely something fishy about this illness and how it is so readily dismissed. Doctors actually get weird when you bring it up.
      Thank you SO VERY MUCH for sharing your music with me! I will definitely give it a listen. I love music!
      Hang in there! I wish you the best!

  • @nzadventurefamily3728
    @nzadventurefamily3728 6 месяцев назад +2

    Hi Courtney, thanks for making this video. Just out of interest, have you ever had your reverse T3 level taken? If so, was it normal?

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад +1

      Yes I have. It was normal.

    • @nzadventurefamily3728
      @nzadventurefamily3728 6 месяцев назад

      @@The_ME_Lion Oh that's interesting. I wasn't expecting that.

  • @DeeKay1301
    @DeeKay1301 5 месяцев назад +2

    Hello Courtney. I would like to ask you something. When you say your energy is about 50% better. Do you mean that you are about 50% recovered or do you mean like when you could walk for 5 mins before, now you can walk 7,5 mins. Which would be a 50 % increase. Or do you mean something entirely else? Just started carnivore 5 days ago. Thanks for your openness and honesty.

    • @The_ME_Lion
      @The_ME_Lion  5 месяцев назад +1

      It’s really hard to quantify actually, but what I mostly mean is that my ability to stay upright and my mental energy have improved. I’m still not able to exercise. I still have to be mindful of my heart rate, and I still have to pace. I can totally be up on my feet for most of the day MOST days, not all. I hope that helps. It’s hard to explain, but my overall well being and quality of life have improved by 50 percent. Do I think I’m 50 percent healed? I’m not sure. I know I’ve still got some mountains to move. Great question!

  • @agentanima4649
    @agentanima4649 6 месяцев назад +2

    Here in Switzerland they still recommend Psychotherapy and light excerxise. 🤦‍♀️

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад +1

      Ugh!!! That makes me wanna scream!😱

  • @terrybott6447
    @terrybott6447 6 месяцев назад +4

    Hold onto the peace of Jesus; the joy of the Lord; and the hope of the gospel. And keep talking with God. He loves you and values you. He watches over His word to perform it, and I’m praying. Love ❤️ you. You’re worth everything! Jesus’ victory is your inheritance. Carol

  • @juliapra88
    @juliapra88 4 месяца назад +1

  • @lisaabrusia5930
    @lisaabrusia5930 6 месяцев назад +2

    What might be helpful is to do videos on what helps you overcome this illness. For example, do you use any brain retraining methods, vitamin protocol, do you use music, a certain motivational technique? Can you talk about your faith and how your illness brought you more deeply into your relationship with Jesus. What have doctors done for you or advised you to do that helps you to persevere or obtain greater advantages in your daily struggles or ailments if any?

    • @The_ME_Lion
      @The_ME_Lion  6 месяцев назад

      Thank you for the great ideas! 🫶🏼