Finding a Cure | Eddie Vedder and EB Advocates
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- Опубликовано: 10 сен 2024
- Eddie Vedder of Pearl Jam discusses Epidermolysis Bullosa, a devastating skin condition, along with Dr. Jakub Tolar, a leading researcher, and brave kids and grownups who battle EB every day. Learn more at ebresearch.org and donate at donate.ebresea...
About EB Research Partnership
ebresearch.org
Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder of Pearl Jam, EB Research Partnership is the largest 501c3 nonprofit funding research to find a cure for Epidermolysis Bullosa (EB). EB is a group of devastating and life-threatening genetic skin disorders that affect children from birth.
A special thank you to our EB heroes:
Michael Fullmer
Jennifer Innes
Garrett Spaulding
Dr. Jakub Tolar
Made possible through the generous support from
World Famous
Kara Costa & the team at Microsoft Production Studios
Jill and Eddie Vedder
Music by Eddie Vedder
Wow! I have never seen nor have heard about this before. God bless you all & prayers for you all. Mr. Eddie Vedder thank you for talking about & showing us about this condition & what we can do about it! Keep Kool/Stay Frosty & Love All People! : )
Exactly why I love Owsey..
People, whoever reads this and can donate, please do.
Cassie & The Butterfly Fund.
Blows mine out of the water, but here is the EB awareness video I made this morning. Ah, I love Eddie Vedder.
I hope along with everyone else that there is hope . I pray night and day . For you all.
+Kenny Breaux
*'I do not fucking care* about these individuals,' is what you really want to say.!
*Admit it.!*
Davion Breaux sad that you have Make a fake profile . Sad you took off cause you burnt someone house down . Sad that you disrespect your family the way you have and Sad that you a disappointed me . I was proud of you until you started drinking doing drugs popping pills and for you to disrespect me like this. Nice try but I was there taking care of you and your brother when your mom took off . I fought hard for y'all. Say whatever you want on here but you should be ashamed of your self
#ANTONStrong #IHateEB #NoMoreEB #IRefuseEB #CureEB No more kids should ever go through what Anton-the Brave & Other sweet ones have been through. END THE EB please. Love you Anton Delgado !!!
I have even heard of this genetic disorder. Bless all those 200 babies born with EBR this year. I am hoping this finds a cure. My soul hurts for those hurting bc of this genetic disorder.
Today was the first time I've ever heard of this . I cannot believe that just $5 million and they can cheer these people these children . Where in the hell are the people who have that money to throw away that can donate and save all these peoples lives but instead wasted on crap to make themselves feel better . If I had $5 million and one penny I would donate every single bit of it and be homeless if I had to just to make sure these children never felt another day of pain
maybe it's because everyone must be involved, not only rich people? that's called activism
important
I am really proud on you all helping other kids.
Quanto vorrei aiutarvi... Eddie sei una persona profonda e
decisamente bella
That's awesome!
❤
We spend bilions and billions on diseases and conditions that extend our lives longer and longer,
Why cant we starts spending more on diseases that are less common but impact the quality of life massively.
Think about EB, but also ALS and other rare comditions,
This video is 9 years!I love Pearl Jam. However, the 5 million dollar mark has yet to be met?! They don't need 5 million to "find" a cure. The money is needed for bribing the medical profession, to hand over information, regarding a cure. Not a conspiracy theorist. However, as a Special Ed. Teacher, who has worked with human beings ages 18 month-olds, to 42 year-olds; mainly on the spectrum, im so sick of hearing: we are getting close to finding a cure! If you just donate....... "Evidence of Harm" great book. Oh, until the author was "forced" to profess, his findings were a scam.
I suppose when your family's lives are being threatened, you do not have much choice.