Don’t ever feel like your complaining. Chronic illness is very real and very common among us all. I find it comforting to hear of others stories. It makes you feel not alone.
It is very hard, you never feel hundred percent everyday is a struggle,always struggling with hundreds of side effects of fibromyalgia it is exhausting,I hope they will find a cure for it one day.Very sad that we have to go through this.
im watching this at 03.14 with a fibro flare up. i never comment on youtube but i wanted to say thank you for sharing, i feel a little less alone now:)❤️
This video made my cry in sympathy. I have the exact same symptoms, sometimes I can function, sometimes I can't and the "am I just making it all up" hit me in the gut so hard! Thank you so much for sharing honey, it's so nice to not feel alone with these struggles. I wish you a better week this week coming 😘😘
It took me 12 years before I was diagnosed with fibromyalgia. My own doctor didn’t believe in it and sent me to a psychiatrist. She said I was obsessed with my health. I felt so defeated. Finally I found a doctor who diagnosed me after being in his office for 5 minutes. I have had it for 26 years now and still haven’t found any real relief. Like you said, I try to fight and struggle through every day, but sometimes you just have to give in to it and feel sorry for yourself and give yourself lots of Tender Loving Care. There is nothing wrong with that. Living with chronic pain takes a great deal of strength and energy to get through each and every day. We all deserve to just Let Go once in a while. I find swimming lengths of the pool is the best relief for me. I used to do aqua fitness in the pool, but can’t do that anymore. It just exacerbates my pain. When you get into the water you really don’t feel any pain for a while. The water is so gentle on your body. I hope you get some answers. Take care of yourself. Surround yourself with nice things and things that make you happy. Love and hugs to everyone out there with this awful illness. ❤❤❤
Thank you for sharing this. I can really relate.I’ve been diagnosed with fibromyalgia in 2009 and I am not any better than when I was diagnosed. I was in a car accident at that time. Have been in 7 in total but in general my blood work has been fine. I do have complex ptsd, anxiety and depression due to childhood trauma. I have to work two jobs to support myself and it’s exhausting. I wish I could afford to stay home in rest more often. But drs aren’t even able to give me intermittent fmla for my symptoms to protect my job even though I have over maxed my sick time.
You’ve always been so candid about you’re ‘struggles’. Not something we see all the time and it’s definitely helping someone. Hugs and all the best to you ❤️
I have fibro chronic fatigue and IBS. And I suffered for years u til I went onto the keto diet. No car sat all no dairy no soy. And I basically follow Dr berg on utube and I am a million times better, yes I have flare ups. No coffee and I do Intermittent fasting and lost 13 K and feel like a different person. I am old enough to be your grandma and had these symptoms even younger than you. I hope you find someone who can help you as med doctors do not know. Good luck darling ❤
Thank you. I was diagnosed one month ago. My family says stuff like you just need to be more active. If you try harder. You have to push yourself. You need to shower more. You need to be more active. When are you gonna make dinner. You need to do the dishes. I am 45. My husband is 50 n my daughter is 27. She has aspbergers. I just found your video. I’m in us. I’m glad I found you. ^Hugs*
The doctor you mentioned should be ashamed because giving such information is neglectful at best and very harmful at worst. I'm glad you changed GP's. I've got Fibromyalgia and CFS including IBS. I smiled when I saw you do the stretching exercises. Many of us wouldnt dare do that... we would never be able to get up from the floor. Wishing you a good journey as you navigate your life and take care.
I really loved this video. I suffer from severe endometriosis, and there was definitely a lot of gaslighting in the early days of my diagnosis. Finding the right GP was honestly a life-saver. Nothing ever showed up on scans (although a specialist could see deep endo via an MRI after my first, diagnostic surgery). Endometriosis is an invisible illness too, and sometimes people are amazing about my struggles, but others aren't. I just had surgery from my second surgery, and it has been a very slow, difficult recovery, but I was so lucky to have two top specialists operating on me to excise the disease. It's an incurable disease, but I do have hope now that my future might be a bit brighter. I actually really enjoyed the tea you mentioned in your video about your period during my recovery from surgery. I don't know if you're life me, but flare-ups can be so scary - and I think that a lot of people don't get that, especially when it's something chronic. Chronic pain changes you and it turns up the volume on all pain on the body. I pray that you feel some substantial relief soon. Lots of gentle hugs. xx
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
@G G I know you're not asking me, but in case it helps. I went through multiple gynecologists before I found someone who was knowledgeable about endometriosis. Most GPs only seem to have a basic understanding of it.
It's 3 in the morning and watching you, I suffer to with Chronic pain, my Husband has just suffered a massive Stroke so sleep for the last 2 weeks has been dreadful, just the exhaustion. So thank you for keeping me company at this awful time of the 🌙night. Bless you 🙏♥
Bless you x fellow Chronic illness lady here.. Sending you big hugs.. I think what you are showing others here on your channel is good for people to know they are not alone, well done for being brave to share. I struggle to share, so I have deep respect for you lovely lady x Sending you big hugs, you really are the sweetest and your cute family bless you. Take care fellow Warrior lady! 🤗😇💕
My wife started having TIA’s (mini strokes) 3 years ago, and doctors eventually diagnosed her with Moya Moya, which is a genetic brain disease. Their fix? Intercranial bypass surgery that involves rerouting blood vessels from outside the skull to the inside through a hole cut in the skull. The result of this “fix”? She had a massive stroke while in recovery and hasn’t walked since or regained the use of her left arm. Also greatly affected her mental ability, and has turned her into a mean, nasty disposition type person! Sleep sometimes doesn’t happen, and the overwhelming feeling of knowing that this is how it is! After 3 years there’s no chance that her function will return, or her ability to do anything for herself! I retired last year after 41 years on the railroad, and our retirement is quite different than I had envisioned all those years. I live one day at a time, and always keep in mind each tomorrow is a new start! God never puts more on us than we can handle, but I didn’t realize I could handle this much! Keep your head up, forget yesterday, and look for that brighter tomorrow!
I have fibromyalgia as well and some times i struggle to sleep especially when im in pain n I don't sleep at all due to pain or being sick and watching this made me realise im not alone with chronic pain but it does get hard trying to have a life with this pain because some days i feel like not getting up out of bed at all due to pain.
I was lucky to have a great physiotherapist at my GP practice, who back me up and I had a doctor who actually comunicated and thanks to them I got my fibro diagnosis, pets are amazing my wee dog actually knows when and where my pain is, she'll cuddle in to the pain area and cuddles from fur babies always help x
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
I have similar symptoms, and my doctor kept trying to tell me for 3 years it was in my head - suggested depression (hadn't mentioned any mental symptoms), and to 'just get a massage'. Blood tests fine, ultrasound scan fine also. I've now finally been diagnosed with Celiac disease, seeing a neurologist (may be nerve related) and booked in for an abdominal CT scan. You know when you're not well and exhausted. So frustrating when doctors keep trying to tell you you're ok and not sending you for tests.
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
You dont seem like you're "complaining", i actually found your video so helpful and validating! Im trying to explore whether i have fibro or cfs, and based on your video and some others iv watched today, i think i have cfs. Im in the process of getting diagnosed. It's so difficult when doctors are assholes xx
Cfs 26 years since a fall fybromyalgia n6 but same thing muscle pain.is in me anyways though found out why ADHD now diagnosed with Asperger's since sons diagnosis and heds Dr lenz ADHD fybromyalgia connection
It makes me so mad when doctors say “just lose weight and you’ll be better”…it’s such bullshit and a complete cop out…you’re beautiful and perfect ❤️ and your health symptoms are real and valid ❤️❤️ loved this video and it really helped me!
Actually Excercise is no longer suggested for CFS. It was for many years but recently doctors have been told not to prescribe this as part of a therapeutic treatment. It can do more harm than good. Sending you love and healing 🙏
So just succumb to a wheelchair life? No thank you. Ive heard some stupid shit but that is outstanding. **U know just because a Dr says something doesn't make it right right?
I want to send you a huge hug and wish you all the best. Take your time and don't do a video if it is getting to much for you,i think you need to get a rest whenever you feel like it,or you don't ferl to well...Wishing you all the best and stay safe🥰🌻 Have a happy sunday too🐈🌻
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
You are so not alone ❤ Pain and heat made it really hard for me to sleep this week, and I was feeling really low when I saw that you had made this video. It really helped. Please keep sharing. Love from Sweden ❤
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
@@emmanuellaadjegan9571 sorry pressed the wrong button I was just going to look at the RUclips video you mention. I.have fibromyalgia. Many blessings 🙏
I really feel for you. As someone who also has Chronic Fatigue and fibromyalgia it's an experience few can understand unless they have lived it too. With regards to doctors, I have come to realise that I have to be my own advocate when talking to them. I now only see only one doctor who listens more if it is something I want taken seriously and I just keep chasing and pushing if things don't seem to be happening. I came to realise that seeing any old doctor who I can get a quicker appointment with is just too random and it is better to be patient and speak to the right person instead even if it means waiting a few weeks. Also, that doctor lied to you, there are medications for fibromyalgia, no they don't cure it but they do help with the pain. You don't have to just see the doctor you are assigned by the surgery you can "try" different doctors until you find one you gel with more. Good luck. You are totally within your rights to ask for a referral to a rheumatologist for fibromyalgia
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
❤️ it’s good to be honest about how you are feeling and not hide it from the world. I don’t suffer as bad as you or my friends with fibromyalgia but I do suffer from painful flat feet when I’ve been walking on them for hours. And ibs. It’s great that you are talking about this xx
Thank you for being so honest about your struggles. I have fibromyalgia so can relate a lot to how disruptive and upsetting flare ups can be. I’ve turned a corner recently with lots of trial and error, but it’s still a battle and I’m still learning to understand it better. Sending big hugs 💛
I can totally relate, I suffer from chronic migraine, IBS, endometriosis and have two prolapsed discs in my lower back. I gained twenty kilos over an eighteen month period which I just can't seem to lose. I also suffer from insomnia and wake up pretty much every two hours every night. Life often feels like an up hill struggle. I have just had four months away from work due to my health and am in the process of a slow, phased return to work. I am an emergency and critical care out of hours veterinary nurse. Before I went off sick I was the Principal Nurse Manager of the clinic but have now stepped down and returned as just an out of hours nurse. I'm on my new journey looking after myself and doing all that I can to maintain a good work / life balance. Eating well, staying hydrated, moving my body, stretching, mindfulness and meditation. I now just take things one day at a time. I have started new medication for my migraines which fingers crossed seems to be helping, reducing from an average of 21 attacks a month each lasting up to 48 hours to eleven from 8th June (when I did my first injection) to today (7th July) I'm due to do my second injection tomorrow. I have to inject myself every month. Sending lots of love xx ❤️ PS don't ever apologise, you're not moaning you're sharing and it helps you and so many others. I love your videos xx 😘
I am 58 years old and just have been diagnosed with neuropathy, chronic fatigue, and diverticulitis and I am very active but I have found like today I have to slow down and rest. I am so very tired!! Thank you for sharing your story, it helps to know I am not the only person who has this problem.
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Researchers at the University of Edinburgh - music like the #fresh John Newman combats mental fatigue whilst running ruclips.net/video/kXx9SI4wGZI/видео.html
It's very brave and selfless of you to share your struggles in the hopes of helping other people with their own. I hope you find the answers you're looking for soon, and good for you for advocating for yourself by finding a gp that is a good fit for you. It's clear you have a very solid handle on your own symptoms too. If your doctor has never suggested it, maybe consider having them check for Celiac disease, there is a specific blood marker they can test for. Best wishes to you and thanks for your videos.
Thank you so much for sharing this, Kay. I don't struggle with chronic fatigue or fibromyalgia, so I don't know how it feels to go through flare ups like this, but I just wanted to say that you NEVER come across as complaining or as finding excuses, so please don't worry about that on top of everything 💛 Wishing you many restful nights and more peaceful mornings!
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Hi just came across your channel. I was diagnosed with fibromyalgia just over a year ago. I’m 44. Thank you for your openness and honesty, I can totally relate to everything you said. X
I have been struggling through chronic fatigue and fibromyalgia for over 15 yrs. I went through 6 doctors when I first got sick and they would say your labs are normal, try this antidepressant. It's such a hopeless feeling when you are not seen and heard by your clinician. It was a naturopath that looked at me and said, "you are not crazy" I burst into tears. He diagnosed me with fibro and treated me for food and chemical sensitivities. My primary care physician referred me to rheumatology to rule out other conditions because my symptoms have worsened again as I've entered perimenopause. I'm hopeful for more answers. I've also found an amazing counselor that I can go to when I start to spiral in my head Im not sure how much longer I will be able to work and and as a single Mom that feels really scary. Thank you for sharing your journey. It is so validating and I relate to much of what you are experiencing. Sending you gentle hugs.
We had extreme heat the past week and the past 2 days have just been terrible for me. I’m sitting here on my computer and just not wanting to move because it hurts. I have IBS/Oral Allergy Syndrome/potential Gastroparesis (haven’t gone through the testing for the last one yet - thanks to 2020). I feel you on all that you have shared. My experience as well
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure.
Thank you for sharing I can't always put into words how I feel when I tell my family and friends that I'm not coping with my fibrom symptoms but you expressed exactly how I have been feeling so thank you for that.
Thank you for this. I am 57 years old and have recently been diagnosed with fibromyalgia. I found it was strangely comforting having a diagnosis as it is such a difficult syndrome to explain. However to be free of it would be wonderful. My husband watched this too so I wanted you to know how helpful your sharing has been. Warmest best wishes from New Zealand.
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure.
I feel where you are coming from - I have had IBS and Chronic Fatigue for many, many years and now I am having the body pains etc., so I loved hearing from someone who is in the same boat - let's all heal as much as we can...
Thank you! To be able to identify with others and to be validated is very encouraging and uplifting. I and several family members struggle with invisible disease. The struggle is real. Wishing for you all the best in finding your own path. and it (doesn't hurt to have a beautiful fur baby at your side...they never judge) Keep on keeping on.
Researchers at the University of Edinburgh - music like the #fresh John Newman combats mental fatigue whilst running ruclips.net/video/kXx9SI4wGZI/видео.html
I am sorry to hear you have been struggling with your health. It must be so frustrating not being able to understand why you feel this way. Keep fighting. Don’t give up. Stay strong (but keep getting those hugs). Sending you lots of love and I hope you find relief soon 💓xxx
Thank you for sharing your story and talking so candidly about hidden pain. You have a beautiful smile, shows how strong you are. Sending hugs! ❤️ For years I had sciatica and though I looked young and healthy I found standing too long on trains impossible. I always felt guilty if I didn't give up my seat.
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
Hello lovely Kay, I just wanted to send you a gentle hug and lots of love through this hard time. Taking things slow and just looking after yourself really does help me. Xxx
I also have chronic fatigue and had the corona which resulted in a massive flare up but could not discuss it with anyone. I have mostly done my own research and look after myself the best I can.
Thank you for sharing your journey, and I am sorry you are struggling so much - it is very hard. The single best thing I ever did for my health and mental well-being was to go for genetic testing, in tandem with the professional advice of a well-regarded functional nutritionist practitioner, for my health and diet. It certainly helped me identify certain chemical pathways that are slowed down or ineffective in my body due to my genetic inheritance. This has helped me choose supplements that support certain functions that need help - and not just waste money chasing a one-size fits all solution and loads of expensive pills that do nothing. It also alerted me to certain things that are not going to ever work perfectly, and to start accepting those limitations and work around them. Was not an inexpensive path, but has saved me a fortune chasing castles-in-the-sky answers. Sending blessings 🥰
Take care it’s so sad u r in so much pain I have a lot of your aches and pains it is so hard to get through the days thinking of u lots u are doing well to keep going the way u do ❤️😊
Thanks for sharing your illnesses. I have Persistent Postural Perceptual Dizziness which is a fancy term for chronic vertigo. (a,so a silent illness) , I have debilitating brain fog and crushing fatigue, house bound at 48. One saving grace is that I work for myself from home. I haven’t had a “Good” day in three years. And if that wasn’t enough I’m now going thru horrendous menopause…ahhh the joys! But I’ll take an average day now as a good day and am learning to live with it, but it certainly takes a toll on your mental health, something I’ve never suffered from before. And all these symptoms created a secondary issue of anxiety, also something I’ve never suffered from before. I’ve changed my eating habits dramatically earlier this year and now mostly 90% plant based and find it’s definitely helping me.
💜💜💜 Oh, sweet Kay. Thank you so much for sharing your pain and struggles. I have chronic pain with a back injury and PCOS/endometriosis. I'm constantly fighting with insomnia and anxiety. Everything you've shared resonated with me. Thank you for your honesty and vulnerability. It helps enormously to know others are going through it too xx
Thank you for thinking of others when you are not in a good place yourself. I hope you get things sorted soon and life becomes easier for you. Take care x
Thank you for being so open and transparent. It really helps me. I have struggled with anxiety and insomnia pretty much my whole life, and it always flares up when my life gets too busy. I just put in yet another shift at work today on very little sleep. I was feeling very discouraged and alone in the mental health issues I have and here you are on RUclips sharing your own story, which makes me feel less alone. I wish you all the best and again thank you so much!! Also, forgot to mention, I have had the 4am, birds chirping and I've been up all night many times, I teared up when you shared that.
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Oh bless you I just come across your video. How wonderful it was to hear you speak about how you feel because it's just the same as myself. I feel relieved to hear you. Thank you, thank you. Xx
I am so sorry that you feel bad, I know how you feel I have diverticulitis and nerve damage and I had a cervical fusion in 2005 so I know what it is like to feel pain or can't sleep at night what helps me with my stomach pain is probiotics and for my nerve pain I use ice and a heating pad I only take medication if it gets to hard to deal with. I hope you are feeling better soon don't feel bad about talking about it, you talking about it helps others too!
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Thank you so much for sharing. It is nice that you are open about your experience so we feel like we were not alone. ❤ I can relate to so much as someone with CFS. I get the tingly feeling, from head to toe, I think it feels like my skin is turned inside out! It can take a while for diagnosis but don't give up, the doctors attitude was so insensitive! It does take its toll on you mentally on the tough days, try your best to be kind to yourself. 💕
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
❤️ I can relate so much. 💐 Wishing you more better days. Wishing everyone with chronic pain the understanding we don't always receive. I felt so moved by this, my life is so similar.
I appreciate this video so much. I struggle with proper sleep as well. I have battled anxiety, panic attacks and depression my entire life. I have days where I just cannot get it together. Its so hard when we suffer in silence with a illness or disorder and try to hide it from the world because of commitments, work, and functions. Hiding it is worse than dealing with the symptoms actually. I love that you brought us along on a not so good day. This normalizes silent conditions and helps people understand that not all conditions and disabilities are seen on the outside. Xoxo 💙
From someone who also suffers from FM and CFS, thank you for sharing your story and tips. I don’t know anyone else with these chronic illnesses, so sometimes it can feel like you’re in it alone so I always appreciate running into these type of videos. So grateful I ran across your channel today.
I had some experience with very very veeeery bad help from professionals that always made me feel Guilty for not being ok. Healing always comes when you follow your instincts and move to look for a better experience. Going for a walk can help to think, distract, meditate and get tired, and fall into sleep!
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Hi Kay. I know this us from a year ago, but I'm upto date on your new videos so I'm watching some of your older one's. I know how you feel and what you mean about when you have a flare up. I have complex regional pain syndrome from an accident I had at work back in 2003 which I take many pain killers for and then in 2010 I was diagnosed with chronic fatigue. But because of my CRPS I haven't at a full or decent nights sleep since 2003, it's very heard to get people to understand how you feel when you haven't got the energy to do anything or that you are that tired but you can't sleep in my caes because I am always in pain, but they look at you and say well you look alright or I can't see anything wrong with you. I have missed so many things regarding my children because my accident as left me 45% disabled in my right hand, arm and shoulder, but to look at me you can't see it even though I don't have any use in my arm ect and there are so many things I can't do. I am so glad that you talk about your condition I think it really helps to make people understand. Take care xx
thank you for sharing! I've been struggling for years with drs treating me like I'm crazy since all the blood tests come back negative. I've been able to ease some of my flares but it's still very disheartening knowing what I've seen my mother go through and wanting to get ahead of it myself as much as possible.
Everything you described in this video is exactly how I'm feeling the anxiety the burning sensation all over the body the sleep problems the constant aches and pains all of it I was beginning to think I was going mad thank you so so much I know now I'm not alone and I'm not crazy thank you so much I could cry I really could xx
I can relate to your pain ..Brain fog,lack of sleep etc..It is real!! ..Loved your video .We all do what works for us ..I am older than you 63 yrs ..But had a very stressful,busy life up until I was 55 yrs ..So you are doing the right thing ..Taking care of You .! Healing Spirit ..I hope you feel much better today ..I love your little friend ..they are such a comfort ..and very healing ..Hes beautiful .💞🤗🤩
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure.
I love these videos I suffer with lupus and fybro I wish there was more content like this to be honest its pretty none existent I spend lots of each day resting and watching ur videos x
Remember it's your right to get a GP that listens. My ex GP was struck off I was a victim and now only have use of one leg and although the other leg is paralysed I still have pain. You need to go when your at your worst.
Thank you so much for sharing. I also suffer with many of your symptoms and so totally get the “pregnancy” belly. I call it my basketball 🏀. I actually turned on your video as I was exhausted by noon and needed to lie down with my feet up a bit. Best of luck on your health journey! It so helps to hear of your journey.
Thank you for posting such an honest, open video. I also have fibromyalgia and CFS. When you said that tingling feeling all over my heart jumped because no one seems to understand that. I say I'm vibrating and I know when I get to that point I am really struggling. I also have a fan and a heated throw blanket and the things needed for that nice comforting bath. Sometimes that and rest is all you can do. Gentle hugs to you.
I was happy to see and hear you were feeling a little better by the end of this video. Hugs to you. Keep doing what you know works for you and keep looking for new things to try. 🤗🥰
I'm 19 and was recently diagnosed with fibromyalgia. I relate to how u feel so much bc I have been struggling with my symptoms for years. Thank you for sharing this ❤️
I too hate taking pain meds - my recommendations would be a TENS machine and a plug in electric heat pad - they really help with pain and discomfort when trying to get to sleep with no chemicals or side effects xx
Yes you just mentioned a heat pad - go and buy one! Also when you first lose your health like this you go through the stages of grief - grieving the person you used to be and the life you used to be able to lead, and that’s totally normal and healthy, but very difficult. It’s been 5 years for me now and I’m finally at the acceptance stage and finding my mental state is so much better and I’m able to get on and find adaptations and work arounds to do all the things I really want to do. Having my son (we had been trying for 6 years and I fell pregnant unexpectedly when we had stopped trying due to my health) has been a huge silver lining and has really pushed me to find ways to reconnect with the world and to make those adaptations so that I can be the best possible mum to him. My symptoms and diagnoses are different but the chronic fatigue, brain fog and pain are the same so I really relate to your story! Trying to get to the bottom of the root cause is almost impossible and there is so much medical sexism and gas lighting, unfortunately that is the way of things at this point in history - but definitely make a stink every time it happens because it’s not ok, and you know your own body and that something isn’t right, and deserve to get all the tests to find that cause so you can have a proper treatment plan that tackles the root cause - unfortunately most medical research has been done on men and science has yet to really explore the mechanics of the female body during childbearing years and so they create these bucket diagnoses and try and claim it’s somehow your fault as the patient - but that’s more because they feel like they can’t say “we just don’t know”. Keep fighting to get to your root cause - I will be here cheerleading you from the sidelines! Xx
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
Awwww bless you Kay for sharing. It is hard for people to understand other peoples pain as we can only feel our own. I too have been struggling with pain for the last 2 yrs. I have Arthritis and some days its gets me down. It has effected my mental health too. I just try to plod on regardless which can be a blessing and a curse. Anyway i do hope you are feeling better and have managed to rest. Blessed Sunday to you. x
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
Hello Kay, and thank you for such an honest and real day in your life. You have such a beautiful calm manner, and your spirit really shines through, despite it all. You absolutely do not need to explain yourself, but it was kind of you to share this as it will help many others. I wish you well on your health journey - you know what you need intuitively. Take care my love, Rachel xx
Hi Kay, I have found the pacing guidelines from Mindfulness for Health really helped me to cope with chronic pain (arthritis now and plantar fasciitis in the past). Sorry for giving advice, I am sure you will have tried pacing already, but I know many people with fibromyalgia and chronic pain who have found it transformative.😘
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
Happy Sunday lovely people 🤍
I understand your pain I have multiple problems that being one. Stretching is great and personally I went vegan in 2009 and that helps a lot.
Don’t ever feel like your complaining. Chronic illness is very real and very common among us all. I find it comforting to hear of others stories. It makes you feel not alone.
When the dark thoughts come, don't judge them/yourself, just observe them. Let them pass through you instead of sticking to you.
It is very hard, you never feel hundred percent everyday is a struggle,always struggling with hundreds of side effects of fibromyalgia it is exhausting,I hope they will find a cure for it one day.Very sad that we have to go through this.
im watching this at 03.14 with a fibro flare up. i never comment on youtube but i wanted to say thank you for sharing, i feel a little less alone now:)❤️
This video made my cry in sympathy. I have the exact same symptoms, sometimes I can function, sometimes I can't and the "am I just making it all up" hit me in the gut so hard! Thank you so much for sharing honey, it's so nice to not feel alone with these struggles. I wish you a better week this week coming 😘😘
It took me 12 years before I was diagnosed with fibromyalgia. My own doctor didn’t believe in it and sent me to a psychiatrist. She said I was obsessed with my health. I felt so defeated. Finally I found a doctor who diagnosed me after being in his office for 5 minutes. I have had it for 26 years now and still haven’t found any real relief. Like you said, I try to fight and struggle through every day, but sometimes you just have to give in to it and feel sorry for yourself and give yourself lots of Tender Loving Care. There is nothing wrong with that. Living with chronic pain takes a great deal of strength and energy to get through each and every day. We all deserve to just Let Go once in a while. I find swimming lengths of the pool is the best relief for me. I used to do aqua fitness in the pool, but can’t do that anymore. It just exacerbates my pain. When you get into the water you really don’t feel any pain for a while. The water is so gentle on your body. I hope you get some answers. Take care of yourself. Surround yourself with nice things and things that make you happy. Love and hugs to everyone out there with this awful illness. ❤❤❤
Thank you for sharing this. I can really relate.I’ve been diagnosed with fibromyalgia in 2009 and I am not any better than when I was diagnosed. I was in a car accident at that time. Have been in 7 in total but in general my blood work has been fine. I do have complex ptsd, anxiety and depression due to childhood trauma. I have to work two jobs to support myself and it’s exhausting. I wish I could afford to stay home in rest more often. But drs aren’t even able to give me intermittent fmla for my symptoms to protect my job even though I have over maxed my sick time.
You’ve always been so candid about you’re ‘struggles’. Not something we see all the time and it’s definitely helping someone. Hugs and all the best to you ❤️
I have fibro chronic fatigue and IBS. And I suffered for years u til I went onto the keto diet. No car sat all no dairy no soy. And I basically follow Dr berg on utube and I am a million times better, yes I have flare ups. No coffee and I do Intermittent fasting and lost 13 K and feel like a different person. I am old enough to be your grandma and had these symptoms even younger than you. I hope you find someone who can help you as med doctors do not know. Good luck darling ❤
Just you going outside and doing yoga is more than I could ever do in a year
Thank you for bringing this debilitating disease to the forefront, Its very real!
Thank you. I was diagnosed one month ago. My family says stuff like you just need to be more active. If you try harder. You have to push yourself. You need to shower more. You need to be more active. When are you gonna make dinner. You need to do the dishes. I am 45. My husband is 50 n my daughter is 27. She has aspbergers. I just found your video. I’m in us. I’m glad I found you. ^Hugs*
The doctor you mentioned should be ashamed because giving such information is neglectful at best and very harmful at worst. I'm glad you changed GP's. I've got Fibromyalgia and CFS including IBS. I smiled when I saw you do the stretching exercises. Many of us wouldnt dare do that... we would never be able to get up from the floor. Wishing you a good journey as you navigate your life and take care.
I really loved this video. I suffer from severe endometriosis, and there was definitely a lot of gaslighting in the early days of my diagnosis. Finding the right GP was honestly a life-saver. Nothing ever showed up on scans (although a specialist could see deep endo via an MRI after my first, diagnostic surgery). Endometriosis is an invisible illness too, and sometimes people are amazing about my struggles, but others aren't. I just had surgery from my second surgery, and it has been a very slow, difficult recovery, but I was so lucky to have two top specialists operating on me to excise the disease. It's an incurable disease, but I do have hope now that my future might be a bit brighter. I actually really enjoyed the tea you mentioned in your video about your period during my recovery from surgery. I don't know if you're life me, but flare-ups can be so scary - and I think that a lot of people don't get that, especially when it's something chronic. Chronic pain changes you and it turns up the volume on all pain on the body. I pray that you feel some substantial relief soon. Lots of gentle hugs. xx
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
I have endometriosis too, so I can relate to lots of your comment. X
3 invisible symptoms and life saving treatment for fibromyalgia you need to know therxprescription.com/product/fibromyalgia-support
I had a similar experience in getting diagnosed with Endometriosis. Hope you had a full recovery from your 2nd surgery.
@G G I know you're not asking me, but in case it helps. I went through multiple gynecologists before I found someone who was knowledgeable about endometriosis. Most GPs only seem to have a basic understanding of it.
It's 3 in the morning and watching you, I suffer to with Chronic pain, my Husband has just suffered a massive Stroke so sleep for the last 2 weeks has been dreadful, just the exhaustion. So thank you for keeping me company at this awful time of the 🌙night. Bless you 🙏♥
Bless you x fellow Chronic illness lady here.. Sending you big hugs.. I think what you are showing others here on your channel is good for people to know they are not alone, well done for being brave to share. I struggle to share, so I have deep respect for you lovely lady x Sending you big hugs, you really are the sweetest and your cute family bless you. Take care fellow Warrior lady! 🤗😇💕
My wife started having TIA’s (mini strokes) 3 years ago, and doctors eventually diagnosed her with Moya Moya, which is a genetic brain disease. Their fix? Intercranial bypass surgery that involves rerouting blood vessels from outside the skull to the inside through a hole cut in the skull. The result of this “fix”? She had a massive stroke while in recovery and hasn’t walked since or regained the use of her left arm. Also greatly affected her mental ability, and has turned her into a mean, nasty disposition type person! Sleep sometimes doesn’t happen, and the overwhelming feeling of knowing that this is how it is! After 3 years there’s no chance that her function will return, or her ability to do anything for herself! I retired last year after 41 years on the railroad, and our retirement is quite different than I had envisioned all those years. I live one day at a time, and always keep in mind each tomorrow is a new start! God never puts more on us than we can handle, but I didn’t realize I could handle this much! Keep your head up, forget yesterday, and look for that brighter tomorrow!
I hope your husband is getting better and please look after yourself 🙏
❤
I have fibromyalgia as well and some times i struggle to sleep especially when im in pain n I don't sleep at all due to pain or being sick and watching this made me realise im not alone with chronic pain but it does get hard trying to have a life with this pain because some days i feel like not getting up out of bed at all due to pain.
I know how you feel, life seems to be more of a struggle when we don't get proper sleep. Hope you feel better soon!
I was lucky to have a great physiotherapist at my GP practice, who back me up and I had a doctor who actually comunicated and thanks to them I got my fibro diagnosis, pets are amazing my wee dog actually knows when and where my pain is, she'll cuddle in to the pain area and cuddles from fur babies always help x
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
I used to watch your minimalism and van life videos before I got too sick (ME/CFS). I had no idea you got a chronic illness too. 💙
I have similar symptoms, and my doctor kept trying to tell me for 3 years it was in my head - suggested depression (hadn't mentioned any mental symptoms), and to 'just get a massage'. Blood tests fine, ultrasound scan fine also. I've now finally been diagnosed with Celiac disease, seeing a neurologist (may be nerve related) and booked in for an abdominal CT scan. You know when you're not well and exhausted. So frustrating when doctors keep trying to tell you you're ok and not sending you for tests.
me too! felt so unwell for ages. diagnosed celiac in December
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
You dont seem like you're "complaining", i actually found your video so helpful and validating! Im trying to explore whether i have fibro or cfs, and based on your video and some others iv watched today, i think i have cfs. Im in the process of getting diagnosed. It's so difficult when doctors are assholes xx
Cfs 26 years since a fall fybromyalgia n6 but same thing muscle pain.is in me anyways though found out why ADHD now diagnosed with Asperger's since sons diagnosis and heds Dr lenz ADHD fybromyalgia connection
It makes me so mad when doctors say “just lose weight and you’ll be better”…it’s such bullshit and a complete cop out…you’re beautiful and perfect ❤️ and your health symptoms are real and valid ❤️❤️ loved this video and it really helped me!
Actually Excercise is no longer suggested for CFS. It was for many years but recently doctors have been told not to prescribe this as part of a therapeutic treatment. It can do more harm than good. Sending you love and healing 🙏
BACME and NICE guidelines. Well said 🌻
So just succumb to a wheelchair life? No thank you. Ive heard some stupid shit but that is outstanding. **U know just because a Dr says something doesn't make it right right?
I want to send you a huge hug and wish you all the best. Take your time and don't do a video if it is getting to much for you,i think you need to get a rest whenever you feel like it,or you don't ferl to well...Wishing you all the best and stay safe🥰🌻
Have a happy sunday too🐈🌻
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
You are so not alone ❤ Pain and heat made it really hard for me to sleep this week, and I was feeling really low when I saw that you had made this video. It really helped. Please keep sharing. Love from Sweden ❤
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
@@emmanuellaadjegan9571 0
@@emmanuellaadjegan9571 sorry pressed the wrong button I was just going to look at the RUclips video you mention. I.have fibromyalgia. Many blessings 🙏
@@suespiers9943 Dr okouromi
I really feel for you. As someone who also has Chronic Fatigue and fibromyalgia it's an experience few can understand unless they have lived it too. With regards to doctors, I have come to realise that I have to be my own advocate when talking to them. I now only see only one doctor who listens more if it is something I want taken seriously and I just keep chasing and pushing if things don't seem to be happening. I came to realise that seeing any old doctor who I can get a quicker appointment with is just too random and it is better to be patient and speak to the right person instead even if it means waiting a few weeks.
Also, that doctor lied to you, there are medications for fibromyalgia, no they don't cure it but they do help with the pain. You don't have to just see the doctor you are assigned by the surgery you can "try" different doctors until you find one you gel with more. Good luck. You are totally within your rights to ask for a referral to a rheumatologist for fibromyalgia
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
❤️ it’s good to be honest about how you are feeling and not hide it from the world. I don’t suffer as bad as you or my friends with fibromyalgia but I do suffer from painful flat feet when I’ve been walking on them for hours. And ibs. It’s great that you are talking about this xx
Thank you for being so honest about your struggles. I have fibromyalgia so can relate a lot to how disruptive and upsetting flare ups can be. I’ve turned a corner recently with lots of trial and error, but it’s still a battle and I’m still learning to understand it better. Sending big hugs 💛
I can totally relate, I suffer from chronic migraine, IBS, endometriosis and have two prolapsed discs in my lower back. I gained twenty kilos over an eighteen month period which I just can't seem to lose. I also suffer from insomnia and wake up pretty much every two hours every night. Life often feels like an up hill struggle. I have just had four months away from work due to my health and am in the process of a slow, phased return to work. I am an emergency and critical care out of hours veterinary nurse. Before I went off sick I was the Principal Nurse Manager of the clinic but have now stepped down and returned as just an out of hours nurse. I'm on my new journey looking after myself and doing all that I can to maintain a good work / life balance. Eating well, staying hydrated, moving my body, stretching, mindfulness and meditation. I now just take things one day at a time. I have started new medication for my migraines which fingers crossed seems to be helping, reducing from an average of 21 attacks a month each lasting up to 48 hours to eleven from 8th June (when I did my first injection) to today (7th July) I'm due to do my second injection tomorrow. I have to inject myself every month. Sending lots of love xx ❤️ PS don't ever apologise, you're not moaning you're sharing and it helps you and so many others. I love your videos xx 😘
Glad you have your kitty 😊 animals help keep you distracted sometimes ❤ hope we all get a cure soon. Gentle hugs!
I am 58 years old and just have been diagnosed with neuropathy, chronic fatigue, and diverticulitis and I am very active but I have found like today I have to slow down and rest. I am so very tired!! Thank you for sharing your story, it helps to know I am not the only person who has this problem.
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Definitely agree on your views on doctors, I have health issues and all they're interested in is giving out medication x
Researchers at the University of Edinburgh - music like the #fresh John Newman combats mental fatigue whilst running ruclips.net/video/kXx9SI4wGZI/видео.html
It's very brave and selfless of you to share your struggles in the hopes of helping other people with their own. I hope you find the answers you're looking for soon, and good for you for advocating for yourself by finding a gp that is a good fit for you.
It's clear you have a very solid handle on your own symptoms too. If your doctor has never suggested it, maybe consider having them check for Celiac disease, there is a specific blood marker they can test for. Best wishes to you and thanks for your videos.
💯!! Those who struggle and experience this KNOW you’re NOT making excuses! I understand completely more than you know! Thank you for sharing💗
Thank you so much for sharing this, Kay. I don't struggle with chronic fatigue or fibromyalgia, so I don't know how it feels to go through flare ups like this, but I just wanted to say that you NEVER come across as complaining or as finding excuses, so please don't worry about that on top of everything 💛 Wishing you many restful nights and more peaceful mornings!
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Hi just came across your channel. I was diagnosed with fibromyalgia just over a year ago. I’m 44. Thank you for your openness and honesty, I can totally relate to everything you said. X
I have been struggling through chronic fatigue and fibromyalgia for over 15 yrs. I went through 6 doctors when I first got sick and they would say your labs are normal, try this antidepressant. It's such a hopeless feeling when you are not seen and heard by your clinician. It was a naturopath that looked at me and said, "you are not crazy" I burst into tears. He diagnosed me with fibro and treated me for food and chemical sensitivities. My primary care physician referred me to rheumatology to rule out other conditions because my symptoms have worsened again as I've entered perimenopause. I'm hopeful for more answers. I've also found an amazing counselor that I can go to when I start to spiral in my head Im not sure how much longer I will be able to work and and as a single Mom that feels really scary. Thank you for sharing your journey. It is so validating and I relate to much of what you are experiencing. Sending you gentle hugs.
4:06 that moment when Echo came over to test out the mat for you 🥰😍🤍🐈
We had extreme heat the past week and the past 2 days have just been terrible for me.
I’m sitting here on my computer and just not wanting to move because it hurts.
I have IBS/Oral Allergy Syndrome/potential Gastroparesis (haven’t gone through the testing for the last one yet - thanks to 2020).
I feel you on all that you have shared. My experience as well
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure.
Thank you for sharing I can't always put into words how I feel when I tell my family and friends that I'm not coping with my fibrom symptoms but you expressed exactly how I have been feeling so thank you for that.
Thank you for this. I am 57 years old and have recently been diagnosed with fibromyalgia. I found it was strangely comforting having a diagnosis as it is such a difficult syndrome to explain. However to be free of it would be wonderful. My husband watched this too so I wanted you to know how helpful your sharing has been. Warmest best wishes from New Zealand.
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure.
Absolutely enjoyed this, thank you for sharing. Absolutely excellent video as always, Kay you are such a beautiful person.
I feel where you are coming from - I have had IBS and Chronic Fatigue for many, many years and now I am having the body pains etc., so I loved hearing from someone who is in the same boat - let's all heal as much as we can...
How loving is Echo with you ❣️
Thank you! To be able to identify with others and to be validated is very encouraging and uplifting. I and several family members struggle with invisible disease. The struggle is real. Wishing for you all the best in finding your own path. and it (doesn't hurt to have a beautiful fur baby at your side...they never judge)
Keep on keeping on.
Researchers at the University of Edinburgh - music like the #fresh John Newman combats mental fatigue whilst running ruclips.net/video/kXx9SI4wGZI/видео.html
I am sorry to hear you have been struggling with your health. It must be so frustrating not being able to understand why you feel this way. Keep fighting. Don’t give up. Stay strong (but keep getting those hugs). Sending you lots of love and I hope you find relief soon 💓xxx
Thank you for sharing your story and talking so candidly about hidden pain. You have a beautiful smile, shows how strong you are. Sending hugs! ❤️ For years I had sciatica and though I looked young and healthy I found standing too long on trains impossible. I always felt guilty if I didn't give up my seat.
Also want to add that ibs is horrible. I had like 8 blood tests to work out what was wrong when it was very bad. My heart goes out to you 💖
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
You don't need a diagnosis, you already have one. ❤ This is my life too so totally understand. Take care. Frances x
You are such a beautiful person and soul! Thanks for sharing the full picture.
I have struggling with sleeping and your video helped me to feel less alone ... thank you so much for sharing , and I hope you feel better soon . 💗🌸🌷
Hello lovely Kay, I just wanted to send you a gentle hug and lots of love through this hard time. Taking things slow and just looking after yourself really does help me. Xxx
I also have chronic fatigue and had the corona which resulted in a massive flare up but could not discuss it with anyone. I have mostly done my own research and look after myself the best I can.
Thank you for sharing your journey, and I am sorry you are struggling so much - it is very hard. The single best thing I ever did for my health and mental well-being was to go for genetic testing, in tandem with the professional advice of a well-regarded functional nutritionist practitioner, for my health and diet. It certainly helped me identify certain chemical pathways that are slowed down or ineffective in my body due to my genetic inheritance. This has helped me choose supplements that support certain functions that need help - and not just waste money chasing a one-size fits all solution and loads of expensive pills that do nothing. It also alerted me to certain things that are not going to ever work perfectly, and to start accepting those limitations and work around them. Was not an inexpensive path, but has saved me a fortune chasing castles-in-the-sky answers. Sending blessings 🥰
I have never heard of that, definitely going to look it up.
Take care it’s so sad u r in so much pain I have a lot of your aches and pains it is so hard to get through the days thinking of u lots u are doing well to keep going the way u do ❤️😊
Thanks for sharing your illnesses. I have Persistent Postural Perceptual Dizziness which is a fancy term for chronic vertigo. (a,so a silent illness) , I have debilitating brain fog and crushing fatigue, house bound at 48. One saving grace is that I work for myself from home. I haven’t had a “Good” day in three years. And if that wasn’t enough I’m now going thru horrendous menopause…ahhh the joys! But I’ll take an average day now as a good day and am learning to live with it, but it certainly takes a toll on your mental health, something I’ve never suffered from before. And all these symptoms created a secondary issue of anxiety, also something I’ve never suffered from before. I’ve changed my eating habits dramatically earlier this year and now mostly 90% plant based and find it’s definitely helping me.
💜💜💜 Oh, sweet Kay. Thank you so much for sharing your pain and struggles. I have chronic pain with a back injury and PCOS/endometriosis. I'm constantly fighting with insomnia and anxiety. Everything you've shared resonated with me. Thank you for your honesty and vulnerability. It helps enormously to know others are going through it too xx
❤️ we are always here love. Sending hugs xx
I came across this last night (or rather 2am this morning) when I was in so much pain and couldn't sleep. It really did help, thankyou :)
Thank you for thinking of others when you are not in a good place yourself. I hope you get things sorted soon and life becomes easier for you. Take care x
Thank you for being so open and transparent. It really helps me. I have struggled with anxiety and insomnia pretty much my whole life, and it always flares up when my life gets too busy. I just put in yet another shift at work today on very little sleep. I was feeling very discouraged and alone in the mental health issues I have and here you are on RUclips sharing your own story, which makes me feel less alone. I wish you all the best and again thank you so much!! Also, forgot to mention, I have had the 4am, birds chirping and I've been up all night many times, I teared up when you shared that.
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Sending you love!!! 💖 Wish there was more I could say
Oh bless you I just come across your video. How wonderful it was to hear you speak about how you feel because it's just the same as myself. I feel relieved to hear you. Thank you, thank you. Xx
I am so sorry that you feel bad, I know how you feel I have diverticulitis and nerve damage and I had a cervical fusion in 2005 so I know what it is like to feel pain or can't sleep at night what helps me with my stomach pain is probiotics and for my nerve pain I use ice and a heating pad I only take medication if it gets to hard to deal with. I hope you are feeling better soon don't feel bad about talking about it, you talking about it helps others too!
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
We have a ragdoll cat too and she knows always my worst health days, they are the best x
Thank you so much for sharing. It is nice that you are open about your experience so we feel like we were not alone. ❤ I can relate to so much as someone with CFS. I get the tingly feeling, from head to toe, I think it feels like my skin is turned inside out! It can take a while for diagnosis but don't give up, the doctors attitude was so insensitive! It does take its toll on you mentally on the tough days, try your best to be kind to yourself. 💕
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
💛Thankyou you are truly appreciated.💛
❤️ I can relate so much. 💐 Wishing you more better days. Wishing everyone with chronic pain the understanding we don't always receive. I felt so moved by this, my life is so similar.
I appreciate this video so much. I struggle with proper sleep as well. I have battled anxiety, panic attacks and depression my entire life. I have days where I just cannot get it together. Its so hard when we suffer in silence with a illness or disorder and try to hide it from the world because of commitments, work, and functions. Hiding it is worse than dealing with the symptoms actually. I love that you brought us along on a not so good day. This normalizes silent conditions and helps people understand that not all conditions and disabilities are seen on the outside.
Xoxo 💙
Thank you for sharing, it helps to know you are not alone. ❤
Thank you for being so true! You are right to share all the good with all the bad is important, because everything belongs to our lives.❤️
Oh bless you dear Kay, listen to your body and do what you think is right X
From someone who also suffers from FM and CFS, thank you for sharing your story and tips. I don’t know anyone else with these chronic illnesses, so sometimes it can feel like you’re in it alone so I always appreciate running into these type of videos. So grateful I ran across your channel today.
I know 🙏 me too feeling alone and don't know any body like me with fibro, dep/anx, cfs
❤️. Bless you sweetheart. I hope you start to feel better soon. Xx
Bless you.....lots of love Sue from Melbourne Australia. Xxxx
I had some experience with very very veeeery bad help from professionals that always made me feel Guilty for not being ok. Healing always comes when you follow your instincts and move to look for a better experience. Going for a walk can help to think, distract, meditate and get tired, and fall into sleep!
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Hope you are feeling much better❤
Hello Kay ,I'm sending you a hug , adorable boy 😍
💗💗💗💗💗💗 it's good for you to talk about "you" to others so you don't feed up yourself with negative thoughts💗💗💗💗💗😻
Beautiful relaxing videos, thank you x
Hi Kay. I know this us from a year ago, but I'm upto date on your new videos so I'm watching some of your older one's. I know how you feel and what you mean about when you have a flare up. I have complex regional pain syndrome from an accident I had at work back in 2003 which I take many pain killers for and then in 2010 I was diagnosed with chronic fatigue. But because of my CRPS I haven't at a full or decent nights sleep since 2003, it's very heard to get people to understand how you feel when you haven't got the energy to do anything or that you are that tired but you can't sleep in my caes because I am always in pain, but they look at you and say well you look alright or I can't see anything wrong with you. I have missed so many things regarding my children because my accident as left me 45% disabled in my right hand, arm and shoulder, but to look at me you can't see it even though I don't have any use in my arm ect and there are so many things I can't do. I am so glad that you talk about your condition I think it really helps to make people understand. Take care xx
thank you for sharing! I've been struggling for years with drs treating me like I'm crazy since all the blood tests come back negative. I've been able to ease some of my flares but it's still very disheartening knowing what I've seen my mother go through and wanting to get ahead of it myself as much as possible.
Peace and rest to you. Take care of you, sending warm thoughts.✨💫
Thank you so much for this. I feel less alone now 🙏
Everything you described in this video is exactly how I'm feeling the anxiety the burning sensation all over the body the sleep problems the constant aches and pains all of it I was beginning to think I was going mad thank you so so much I know now I'm not alone and I'm not crazy thank you so much I could cry I really could xx
M
I can relate to your pain ..Brain fog,lack of sleep etc..It is real!! ..Loved your video .We all do what works for us ..I am older than you 63 yrs ..But had a very stressful,busy life up until I was 55 yrs ..So you are doing the right thing ..Taking care of You .! Healing Spirit ..I hope you feel much better today ..I love your little friend ..they are such a comfort ..and very healing ..Hes beautiful .💞🤗🤩
I didn't believe when Dr okouromi on RUclips said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure.
Gorgeous Cat. Hope you feel better soon.
I love these videos I suffer with lupus and fybro I wish there was more content like this to be honest its pretty none existent I spend lots of each day resting and watching ur videos x
Good wishes to you. I have very similar struggles and currently in the middle of a flare. It's good to feel less alone. Take care x
Remember it's your right to get a GP that listens. My ex GP was struck off I was a victim and now only have use of one leg and although the other leg is paralysed I still have pain. You need to go when your at your worst.
Thank you so much for sharing. I also suffer with many of your symptoms and so totally get the “pregnancy” belly. I call it my basketball 🏀. I actually turned on your video as I was exhausted by noon and needed to lie down with my feet up a bit. Best of luck on your health journey! It so helps to hear of your journey.
Thank you for posting such an honest, open video. I also have fibromyalgia and CFS. When you said that tingling feeling all over my heart jumped because no one seems to understand that. I say I'm vibrating and I know when I get to that point I am really struggling. I also have a fan and a heated throw blanket and the things needed for that nice comforting bath. Sometimes that and rest is all you can do. Gentle hugs to you.
Sending you a big hug. And I am excited about 'that" video.xx
I was happy to see and hear you were feeling a little better by the end of this video. Hugs to you. Keep doing what you know works for you and keep looking for new things to try. 🤗🥰
Get well soon x
You have encouraged me so much, your are kind and sweet and I am so grateful for this video today. Thank you! ⚘
I'm 19 and was recently diagnosed with fibromyalgia. I relate to how u feel so much bc I have been struggling with my symptoms for years. Thank you for sharing this ❤️
I too hate taking pain meds - my recommendations would be a TENS machine and a plug in electric heat pad - they really help with pain and discomfort when trying to get to sleep with no chemicals or side effects xx
Yes you just mentioned a heat pad - go and buy one! Also when you first lose your health like this you go through the stages of grief - grieving the person you used to be and the life you used to be able to lead, and that’s totally normal and healthy, but very difficult. It’s been 5 years for me now and I’m finally at the acceptance stage and finding my mental state is so much better and I’m able to get on and find adaptations and work arounds to do all the things I really want to do. Having my son (we had been trying for 6 years and I fell pregnant unexpectedly when we had stopped trying due to my health) has been a huge silver lining and has really pushed me to find ways to reconnect with the world and to make those adaptations so that I can be the best possible mum to him. My symptoms and diagnoses are different but the chronic fatigue, brain fog and pain are the same so I really relate to your story! Trying to get to the bottom of the root cause is almost impossible and there is so much medical sexism and gas lighting, unfortunately that is the way of things at this point in history - but definitely make a stink every time it happens because it’s not ok, and you know your own body and that something isn’t right, and deserve to get all the tests to find that cause so you can have a proper treatment plan that tackles the root cause - unfortunately most medical research has been done on men and science has yet to really explore the mechanics of the female body during childbearing years and so they create these bucket diagnoses and try and claim it’s somehow your fault as the patient - but that’s more because they feel like they can’t say “we just don’t know”. Keep fighting to get to your root cause - I will be here cheerleading you from the sidelines! Xx
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
@@LizzieDeanMakes Well said.
Awwww bless you Kay for sharing. It is hard for people to understand other peoples pain as we can only feel our own. I too have been struggling with pain for the last 2 yrs. I have Arthritis and some days its gets me down. It has effected my mental health too. I just try to plod on regardless which can be a blessing and a curse. Anyway i do hope you are feeling better and have managed to rest. Blessed Sunday to you. x
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
Hello Kay, and thank you for such an honest and real day in your life. You have such a beautiful calm manner, and your spirit really shines through, despite it all. You absolutely do not need to explain yourself, but it was kind of you to share this as it will help many others. I wish you well on your health journey - you know what you need intuitively. Take care my love, Rachel xx
Hi Kay, I have found the pacing guidelines from Mindfulness for Health really helped me to cope with chronic pain (arthritis now and plantar fasciitis in the past). Sorry for giving advice, I am sure you will have tried pacing already, but I know many people with fibromyalgia and chronic pain who have found it transformative.😘
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.