Traumatic Brain Injury: Raw & Real On My Seventh Re-Birthday

Поделиться
HTML-код
  • Опубликовано: 12 авг 2017
  • How do you honor the anniversary of a Traumatic Brain Injury? This is a question most people with brain injuries struggle with. Join Nathalie Kelly, as she explores that question on the 7th bonk-iversary of a sailing accident that led to her brain injury. Please tell us how you honor your bonk-iversary in the comment section below. www.brainrecoverycoach.com

Комментарии • 81

  • @renos1109
    @renos1109 5 лет назад +5

    I get pulsing headaches, tinnitus with pulsing eye aches in my left eye, blood dripping sensations on top of my head, vertigo, neck pain, in a fog/blurry double vision, shoulder pain, lower and mid back pain with sciatica causing my left leg to lock up. Spasm/shocks all over my body. Nightmares almost every night with fever like symptoms. In April 2018 I was in a loaded pickup truck hauling material driving on a 80km/h hwy, When someone decided to veer on to oncoming lane and hit me dead on with another pickup truck. I lost conscience for a few minute and woke up to my truck being in the ditch completely destroyed. I felt an enormous amount of pain in my face and head, glass embedded in my face and head. Iv missed a bunch of my family get togethers, b-day, work and daily activites. Im married and have four children 8, 4, 2 and a year old child, I'm 27 years old. Bin in and out of e.r, I'v tried topiramate, amtripiline, propranolol, nortriptyline, and some sleeping meds. None of them worked and actually intensified all of my symptoms. I kept taking them because of the with draws it gave me after. my neurologist said that it shouldn't give me with drawls, im not a medicine kind of guy, i was going crazy at home. I now go to a chiropractor, therapy and waiting for approvel of phycology.. i know all this is really bad but I'm a survivor and am glad i had my seat belt on that day... Day by day people.. keep your head up

    • @pml712
      @pml712 5 лет назад +1

      Kevin, I sorry to hear of your injuries and wish you the best going forward. 2012 I was minding my own business waiting at a red light looking down at my phone when m car was rear ended. My head snapped back, I was knocked unconscious for an unknown amount of time. For the next 5 1/2 years your symptoms and my symptoms mimic each other. I used to hear the national anthem being played at the beginning of the little league games over at the park that's about a mile away from my house. The tinnitus was so loud I never heard it again after the accident. The pain in my eyes felt like they were throbbing about to pop out of my head. At times I would have to stop and press the palms of my hands into my eyes to make it stop if only for a few minutes. My head pounded so bad that I couldn't put the back of my head against the head rest of my recliner or my bed pillow. The drugs, they had me freaking pickled on all that crap. Somewhere around 22 different meds. How's your blood pressure? My cardiologist had me on 10 mg of lisinopril before my accident. After it went up as high as 40 mg along with other cardio meds added to that. My heart functions were off. Because of what happened to my vestibular system my body functions were all screwed up. My former Neurologist NP laid me down and took my blood pressure 117/78, sat me up 130/98 and stood me up 150/130. I was told that my electrolytes were off and I need to drink Gatorade. HUH? I went to every Doctor and hospital possible for help. I needed to find a doctor who has a Digital Motion X-ray machine. I researched and researched and stumbled upon a Functional Neurologist. This particular doctor has this machine and was the only doctor remotely close to me. I made an appointment with him. He was going to be my last hope. He was so thorough. He found visual and audio problems in the examination which were related to the TBI and my vestibular system. One therapist had made me a supporting collar for my neck for when I drive because my neck hurt and my head pounded so bad while driving which I do for a living. My ears throbbed so bad I couldn't listen to any music or anything louder than a soft conversation level sound, talk radio. After the second appointment with Doctor Robert Bates my symptoms started to reverse. Doctor Bates also did my blood pressure in the same sequence as I mentioned earlier. He says its because of my vestibular system along with TBI being damaged from the accident. Said that the blood pressure fluctuation was dangerous and could result in a stroke. When I told him of the Gatorade reference he was astonished. I had head tilt too. My head was tilted to the side because my brain was trying to compensate for my horizontal imbalance because of the TBI. Doctor Bates had me off all of the medications in less than 3 months with the exception of the Lisinopril which has been reduced to 20mg with no other added cardio meds. My head is no longer tilted. My 6-7 level 24/7 headaches were reduced to a 1-3 level 24/7. I used to not be able to sleep at least 1-3 nights a week because of the headaches. The last time I lost a nights sleep was 11 months ago. I've worked hard with Doctor Bates. Each visit we do multiple visual, coordination and balance exercises which had turn me back into a human being. Even my close friends have noticed the change back. I've told the doctor many times that he saved my life. Has anyone ever checked your eyes? Not just an optometrist but someone checking them for eye motion. That's what Doctor Bates picked up on in my examine, was my eye motion. I couldn't focus. I could see, but I couldn't focus. Not sure if you understand that but I always caught myself squinting to focus rather than just looking. My left eye was drifting to the left and I was squinting to bring it back, TBI. I don't know what part of the world you are in but I believe you and I both share some of the same symptoms. If you live any where near Fitchburg Massachusetts he would be worth the drive. He's 1 hour and 40 minutes from my home and its worth every mile. If not then a Functional Neurologist might not be all the answers but I'm certain he or she will definitely make a difference in your life as it has in mine. Best wishes! Paul

  • @kellydoyle
    @kellydoyle 5 лет назад +5

    Happy anniversary. Yes, as I tell a friend every time I get a flare up, TBI is a living hell. A living damn hell. I just found your channel and it may save my life. I hope you’re ok! Come back! 🐶

  • @merelise5mann781
    @merelise5mann781 6 лет назад +3

    8 years ago at age 12 I had a fall. I slammed a car trunk shut with roller blades on. The momentum flipped me head first into cement below. I was wearing a helmet and dont know if I lost consciousness briefly or not. Yet, it's been a different world since.
    Instantly things were very different: everything in sight looked hazy, far away and surreal, not familiar. I remember realizing my face was numb, my arms and body felt numbed to touch. Dizziness, high sensitivity to light/noise. Voices echoed and seemed distant or slowed, hard to recognize and overwhelming. Extreme tiredness...all I wanted to do was sleep, sleep. I dumbly (a choice I regret to this day) decided not to tell anyone because I was sure after giving in to the urge to sleep, I'd feel better. I was terrified my mom would be angry. I'm not sure how I managed to hide it. I did though (credit that to having many siblings).
    Nothing left after sleep that night (although I do not remember the things that happened soon after). Daily struggles included: having to force myself to sit still during online homeschool lectures when the sun would come pouring in and I felt so highly disoriented to myself, and environment. I was terrified. Id force myself to stay downstairs in the evening to be by my family and not run to my room to hide in the quiet and dark. I would sit and "read" a magazine to fake normality, all the while being entirely unable to tolerate everything screaming at me. I'd be so overwhelmed after even a few minutes, I'd be sick to my stomach, yet I had to plan how to get up and walk all the way across the kitchen to the stairs...and make it up without falling over. Everything spun and looked elongated, lights doubled. I had panic attacks constantly because I couldn't stand everything coming in. I was immediate thrown into a great depression and highly tearful, hiding in the woods each afternoon to sob. I was homeschooled and it was summer. By this age, I was primarily responsible for my work, and I was never the smartest prior, so there wasn't suspicions of anything being wrong by my parents.
    I couldn't stand each day. Yet I was too afraid and didn't know how to ask for help. I felt dead and so out of it. Grocery shopping with my mom, church, family get together became a nightmare. intolerable...yet I wanted them so much. I felt alone and lost. I kept telling myself it would go away if I could just only sleep, oh the fatigue!
    Came to a place of not wanting to live. I did want to live, but I couldn't stand this life. My faith in the Lord is the only thing that spared me. I knew that although nothing seemed the same, that even though everything looked foreign and sounded not present, My Father was with me. I cried out to Him like he was my only hope, my only reason for life...and He was. He brought peace and even joy in the most horrific time of my life.
    A year passed. I grieved. You know how you just long for the previous life...normal?! Finally an overstimulated game at church one day brought me to breaking. I left after two minutes because my vision was breaking up so bad, I couldn't focus, my head was spinning, I was shaking uncontrollably, my ears rang and I just could handle the pressure. I told my mom.
    I didn't know how to explain it. Its so odd. I simply told her I was always tired, always dizzy and couldn't stand lights and noise. It was determined since it'd been a year, there was probably nothing to be done...that I would learn to ignore it (everyone has something they have to live with).
    If I wasn't depressed before, my heart felt crushed then. I just couldn't find the words to convey what was off. And I was too ashamed to admit I was severely depressed.
    I tried to ignore. Daily telling myself to shut up, just do it, nope, no leaving to hide...I will stick it out and get used to it. Did that two years before things did get a little easier to cope with. Yet still different.
    I secretly retook many school classes, particularly math, because I'd forget right after doing it. Pressure was on to go to college early and do well, in following my siblings footsteps. I maintained 3.2 in college through constant studying and sheer repetition. I now work and do well...yet struggle with things still. College was hard and last year I found myself feeling like I was back to square one with things like lights, noise, disorientation and memory issues. But after another year of hard work, I see improvements again. Still different. sigh.
    After 6 years of not ever mentioning this all to my mom or anyone, I told my mom again, with similar response.
    I became frustrated and confided in a teacher after she came to me inquiring why I had failed a visual discrimination test (I'm in the health field) (she thought I'd done so intentionally. no) who consulted a neuropsychologist. I was told probably PCS...but that's supposed to only last 2 years. ha. I went to 4 psychologists...maybe it was just anxiety? They all immediately referred me to neurologists, saying it didn't sound like anxiety was the root, but TBI. A second neurologist was consulted through one with similar assumptions. But I can't know for sure due to my situation of insurance through my parents. And even if I went...scans seem to miss a lot, etc. What does a diagnosis help? well, it would give me clarity. Right Now I never know how to be. I long for normal. So much. Why isn't it here after 8 years? You lose hope after its been so long. Accept and move on. That's painful. I feel like I'm missing out on life. Because I can't get out of the way things look and sound surreal. the fatigue is real. Life is just different and that is okay.
    Does this sound relatable? Or totally not? What about the surrealness and auditory differences? Also, do you find exercise helps to an extent? That helps me to a point, at least feel a little more 'awake'. I also try to eat healthy which I notice a difference.
    Thank you so much for sharing your heart and story! And sorry for the huge comment.

    • @ruthgrace6624
      @ruthgrace6624 5 лет назад

      Sorry you had to go through this and are still, have you watched Natalies other video titled 'how I got my brain back' this has a lot of info about recovering. I also had a tbi, it's difficult but some things help as you have said, prayers. God can put us back together I believe :)

  • @Sean-cb4is
    @Sean-cb4is Год назад +1

    Thank you for sharing all of this Nathalie! My Intake Specialist and Case Manager at the Brain Injury Alliance of Colorado (Fred Hinton) shared a link to your website with me today and I can’t thank him enough for finding this! I’ve had numerous TBI‘s but the last one in 2019 definitely changed my world. So yeah, celebrated the third Birthday of my new life on 19 December! 😜😁👍🏼. Just coming out of the “Grieving and Acceptance” phases but for sure, on a good path now. A good path to a more simple and meaningful life outside of the buzz of the corporate world, the adrenaline of the Global Defense world, and the craziness of trying to be “Everything for everybody all the time”. I look forward to watching the rest of your videos, interviews, etc. but just wanted to say thank you SO MUCH for doing this for us……Sean
    🙏

  • @mikedesposito9715
    @mikedesposito9715 5 лет назад +3

    Feed the joy and beauty of the new life! That's what I try to do. It is really hard though. But the only other choice is to succumb.

  • @gooseballkills
    @gooseballkills 5 лет назад +4

    This was very inspiring, I'm glad I came across your work. Thank you for paving the way.

  • @arabesquearomas
    @arabesquearomas Год назад +1

    Thank you so much for this channel! Listening to your anecdotes is fast shrinking my feelings of alienation and helping to normalize my frightening experience - going on 4 years with a life-changing TBI.

  • @drewp1591
    @drewp1591 6 лет назад +2

    Hey, way to go Nathalie! I’m 3...4 yrs out from TBI (don’t follow my exact date). Got on my outrigger this summer. That was a HUGE goal of mine! Even though I don’t follow TBI stuff much anymore (it gets me too down), I like to check in with you every now and then. Makes me feel good and not alone.

  • @evankraayenbrink3354
    @evankraayenbrink3354 2 года назад

    Thank you for all the encouragement. I liked the statement I couldn't do this a year ago. It took me two years to be able to snap my fingers again. So much concentration to be in a crowd.
    It's been almost 7 years.

  • @debblackmore7460
    @debblackmore7460 4 года назад

    This time 11 years ago I was in rehab after being in coma hypoxia spent weeks months there six months but we are survivors natalie ditto hidden disability keep feeding good wolf so proud of you doing amazing I get everything you are saying so glad you are being strong yes yes kick in butt sending love from headway Nottingham UK xxx

  • @jpujpuwewejpujpuwewe2982
    @jpujpuwewejpujpuwewe2982 5 лет назад +3

    If you have suffered head trauma,things can get better,When I was 14 I suffered a concussion and when I was 15 I suffered a cerebral contusion,I am now 18 and have made much improvement since then

    • @kellydoyle
      @kellydoyle 5 лет назад +1

      jpujpuwewe jpujpuwewe Eight years here. Second concussion. Medically disabled from this thing. But still hoping!

  • @brownsugga1981
    @brownsugga1981 4 года назад +1

    Wow I can relate, my vision is so off I feel drunk and like I'm on a dream. I'm so anxious all the time. Your amazing

  • @angelatrudeau739
    @angelatrudeau739 2 года назад

    Thank you for being a brave and beautiful woman. For sharing the two wolves inside of you. I only discovered you a month ago, such a blessing you are. And already you have given me so much… hope and help. to know that I’m not alone. I have a tribe. ❤️

  • @Sunshinebakingandtbi
    @Sunshinebakingandtbi 5 лет назад +1

    Thank you for posting this

  • @Kristinlou1433
    @Kristinlou1433 5 лет назад +1

    Happy anniversary! Love you!

  • @pohkeee
    @pohkeee 6 лет назад +1

    Just wondering why you haven’t posted in the last year... I hope things are still going well for you. This last post shows the stress of keeping up the struggle over the long haul....ups and downs in all types of recoveries! Best wishes to you!

  • @doireannmulvihill2724
    @doireannmulvihill2724 6 лет назад +2

    You are such an amazing and inspiring person ,thank you so ,so much for all the wonderful videos !!!xx

  • @izuugonoh1343
    @izuugonoh1343 6 лет назад +3

    Happy birthday Nathalie!!!
    Thank you for your videos, they're helping a lot. I hope we all- people with TBI get better! Like you say one step at a time

  • @debJams007
    @debJams007 6 лет назад +1

    You're Awesome! You inspire me!!! Yeah! Wonder Woman! Good Movie!

  • @debblackmore7460
    @debblackmore7460 4 года назад

    Hi natalie hope doing better keep going keep strong stay safe sending love from headway Nottingham UK well done keep going proud of you xx

  • @brianhiggins3379
    @brianhiggins3379 6 лет назад +1

    Thank you for your beautiful thoughts and caring words. I use them to keep me positive and alive to what's possible.

  • @danishmiller7500
    @danishmiller7500 5 лет назад +1

    I'm 9 yrs post diagnoses and feel like I've gotten n I where and meed to find some help and services. today is your ynbirthday. you were undone but now you're on the mend as a new you who has helped at least . me t. just so much.

  • @chriskiley5199
    @chriskiley5199 3 года назад

    Bless you Natile

  • @tamaraseaborough3699
    @tamaraseaborough3699 6 лет назад +4

    Hi Nathalie remember me, I have my one year anniversary coming up on the 23th of this month i don't know how i should celebrate mine's i really can't believe its a year i lose myself i don't know who I am anymore!

  • @graciesabine5647
    @graciesabine5647 3 года назад

    I just found out that I have had a Traumatic brain injury . I'm 65 years and always knew there was something wrong with me but I didn't know what . All this time and now I'm in shock . I feel like I just got punched in the gut and am having a hard time dealing with this news .

  • @ronaldkratz8371
    @ronaldkratz8371 6 лет назад +2

    happy anniversary! I hope someone does something nice for you on this special day, if not you do it even if its juts a bagged lunch in the park! tc thanks for al you do, lol ygg, just saw the wonder woman idea! excellant! I did nothing the first 4 yrs, first yr I forgot completely! yr5 i took all my caregivers out to dinner and toasted them even! tc

  • @junktube4000
    @junktube4000 6 лет назад +1

    Do you have a video on vestibular exercises? I have been interested in this lately.

  • @tahirsiddiqui2153
    @tahirsiddiqui2153 6 лет назад +1

    Hi..Nathalie you are so strong may God bless you I need to talk to you seek your assistance from you for a mild TBI of my younger sister.....
    Will be thankful to you if you cam share some knowledge regarding the issue......please

  • @samsmom400
    @samsmom400 6 лет назад +2

    thank you WONDER WOMAN!

  • @johnbenson222
    @johnbenson222 6 лет назад +1

    Thank you Nathalie. I never imagined I would have to learn about things like anterior orbital gyrus or cingulate gyrus or encephalomalacia. You are an inspiration.

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  6 лет назад

      LOL. That is funny! Proprioception and visual ocular reflex back atcha!

    • @jenniferannfox2316
      @jenniferannfox2316 6 лет назад

      I'm having episodes where I feel gravity pulls me to the left. I canbe sitting and this happens.

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  5 лет назад

      partial siezures with bilateral atonic paralysis. Wow. That is what I've been dealing with. Never heard of it til you. You must have a smart up to date doctor. Thank you! I am in tears here. So many years with a lack of medical answers. This is exactly why we have to help each other. Just wow.

  • @taiweannoona1204
    @taiweannoona1204 3 года назад

    Thank you for this Natalie. I relate to everything you said. My seven year rebirth was on 21 December. I you to have a lot of problems with my eyes not telling me what is going on. I relate to the statement I feel half blind and half deaf.
    Because of Covid I have to wait until I can get more help with my eyes. I need new glasses with different prisms. Yesterday I purchased an apple pro iPad. It was a big step for me because for seven years I have not been able to sit in front of a computer. It was very hard for me too use an iPhone but recently I have been wanting to do research and write emails. I bought the 12 inch screen. I thought I could handle it but all the letters and words let’s backwards and upside down and I got really freaked out thinking i’ll never be able to overcome my vision problems. It was like this giant roadblock staring me in the face.
    There is so much I can do on an iPad. I can get some of the Apple apps for people with disabilities. I can write letters and I’ll kinds of things that I can’t do on my phone. I’m trying to decide if some sort of a colored screen protector would help.
    I wonder if you ever had problems with this yourself. Please let me know if you have and how you overcame it. I don’t want to have to return it. I want to somehow get past this. Thank you for all your videos, they have helped immensely. At least I don’t have to feel so alone in my struggles. I hate to say it but I’m thankful there are others who understand. Now I just have to figure out strategies...
    I know this video was made three years ago but it was extremely relevant to me today. Anniversaries are so bitter Sweet. Sometimes I feel like that one wolf is consuming me. I try not to feed it but it still feels like it’s coming for me. I’m firmly convinced that brain injury is the worst injury a person could have. I know there are probably people who disagree with me but I don’t think they have brain injuries to deal with. Thank you for creating this channel and for sharing your story❤️❤️❤️😘

    • @NathalieKelly
      @NathalieKelly 3 года назад +1

      Go see Dr Zelinsky at Mind-Eye Connection in Chicago. She is taking patients and helped me and many others a lot! There is a FB group called Ghost in my Brain for her patients and you can hear others' experiences there also. Wishing you all the best!

    • @taiweannoona1204
      @taiweannoona1204 3 года назад

      @@NathalieKelly thankyou so much! I will!🤗😘

  • @rccollins8160
    @rccollins8160 3 месяца назад

    Thank you for this. I get it……

  • @fxsti
    @fxsti 6 лет назад +2

    Thanks for your videos. Can we ever get back to where we were before the TBI, or is this a life long change we just have to deal with? It's harder to make others understand the issues we have to handle than just being silent. Now maybe I can just play your videos to them. Thank you.

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  6 лет назад +1

      That is the million dollar question. I wish I had a definitive answer. There will likely always be deficits, but everyone is different and I never say never! ....Unless that gives you greater peace and acceptance, which sometimes it does. Since there is no right answer here, I would go with the answer that gives you greater peace. And by all means feel free to show my videos to your loved ones to explain it, many people do!

    • @jenniferannfox2316
      @jenniferannfox2316 6 лет назад +1

      that was one of my questions too. People think we are normal as they look on the outside but inside it's not the same and I don't feel confident to go back to being a medical provider and being responsible for procedures. Spouse doesn't get it. But I guess he wants the money.

  • @siggeboda
    @siggeboda 5 лет назад +1

    Did you hit the back, the front or any of the sides of your head when you had your accident?

  • @lindalewis8763
    @lindalewis8763 6 лет назад +2

    Mine started in 2005 and no one understands even now.

    • @johnbenson222
      @johnbenson222 5 лет назад +1

      Having not "been there" most people don't have a frame of reference.

  • @Joshuaversa
    @Joshuaversa 6 лет назад

    November 13th, 2015 - November 25th, 2015 where days I was in a coma. On my 1 year anniversary of my accident (last year) all I did was cry. When the 25th came I was happy because it was the day I woke up. So just looking back and seeing how much more capable we are is nice. When I woke up I couldn't walk, talk, bathe or feed myself. I just laid there and I would cry because I couldn't do anything. I went through lots of hospitals and rebabs, and still go for therapy. Its hard because people say: "well aren't you better yet?" I had to learn to talk, walk, feed, bathe, clothe myself again, Pretty much everything. No one knows what its like to have a TBI unless they or their child goes through it and is there the entire time along the way. TBI isn't something I wouldn't wish on anyone to go through because that is the only way someone will truly understand.
    Keep fighting and living your life.
    Happy Birthday,
    Joshua

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  6 лет назад

      Thanks for your comments Joshua, it's like impatiently asking a baby "why aren't you all grown up yet?" It takes as long as it takes and patience with the process is most of the challenge. We want to be better already! It helped me to think about being a little baby all over again, and the second time took as long as the first. You are not even 2! Hang in there, it does get easier and life is worth living.

    • @Joshuaversa
      @Joshuaversa 6 лет назад

      It is like being a baby all over again, thats what my mom would always say tell me. You can watch my videos to see where I started. Its easiest if you watch them in the playlist titled Progression Videos

  • @icraftcrafts8685
    @icraftcrafts8685 5 лет назад +1

    Anyone else here try essential oils for head injuries? I've been using frankincense and also getting some indian sandalwood as they have chemicals that cross the blood brain barrier to oxigenate the brain better. The molecules responsible are called terpines, more specifically sesquerterpines. I've been using it for a while and notice differences in conjunction with therapy but would like to know if anyone else with head injuries is doing something similar?

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  5 лет назад

      I love Young Living's Brain Power! It is on my website products page or contact me if you want some. Frankincense is great also! And peppermint for energy.

  • @charlottebindslev132
    @charlottebindslev132 5 лет назад

    ❤️

  • @DrMusicStarr
    @DrMusicStarr 6 лет назад

    Wonder Woman ! ♡

  • @JennapherLawson
    @JennapherLawson 6 лет назад +3

  • @jenniferannfox2316
    @jenniferannfox2316 6 лет назад +1

    I am new to your channel. I had a car crash, was the driver, totaledmy car, drove 50 miles into a standing still large truck when I though traffic was moving on interstate. I had a concussion and have post concussion syndrome. My question is my first appt I couldn't even get to a rehad doctor at a big hospital until this coming Tuesday. I'm a bit nervous. I have some aphasia. I was in between jobs in the medical field and my question is how do you know when this is going to get better or what you have left is permanent? I don't know how I would be able to work like I did before. I get so fatigued so easy. I haven't driven yet. Last week I got so dizzy with a headahce I fell backwards going downmy harrdwood stairs and banged the back of my head hard again. I still haveahematoma. I get nauseated off and on. Yesterday was the first day no headache but the speech issue is reallyembarrassing. I guess I'm more anxious about what to do with working as I have to make a decision next week with the doctor. Do you think a rehab doctor will understand? I know my spouse doesnt and that is a problem

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  6 лет назад +1

      Hi Jennifer, I am so glad you found me! There is no way to know what symptoms you will be left with and what you will recover. Stay in the moment and do your best to find help to recover. It's a long process and patience is key. Watch these videos with your spouse and let that open up the discussion so he can understand better. Please Email me if you need more help. Best wishes, Nathalie

    • @jenniferannfox2316
      @jenniferannfox2316 6 лет назад +2

      thank you so much. I just might email you one day. I was so dissapointed at my appointment i finally waited so long for at Emory in Atlanta. He was supposed to be good for this problem. He promised all these things, questioned if it was all stress related and made me feel stupid. He was going to set me up for cognitive testing and vertigo testing. My main frustrating thing is speech and they never called back in 4 days and I called daily to checkwhy as they promised they would that day for appointment. Even Friday the nurse said the doctor was to callme that day. He never did. My husband is going to look at a military hospital to see if we can get better help. He is a retired veteran ( 61) and was frustrated by the lack of urgency. The other option was 30 miles from our house and we would gladly go but they said August was first appt. I couldn't believe our healthcare. He said my neck might be causing the problem and gave me a lidocaine patch. but my neck is not causingmy speech slurring and stuttering I know. It's frustrating not being heard.

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  6 лет назад

      This is exactly what happens with us. It is so frustrating to keep hearing this same story! You are not alone. Does your local hospital have a Rehab center? Contact your state Brain Injury Assoc and find out which practioners are actually helpful. Most are not and this will save you a lot of time and energy in the long run. Or try the Carrick Institute or a functional neurologist. They can actually fix this and not just give you compensatory strategies.

    • @johnbenson222
      @johnbenson222 6 лет назад +1

      I've seen so far two neurologists and three radiologists that can't correctly identify a sub-arachnoid hemorrhage. I've written a Dear Dr. Dilettante letter to one of them, with all the images in gray scale and color enhancement. You just can't miss this big dark patch over my left orbit, or can you? It's the least I can do before I make a complaint to the State Medical Examiner.

  • @thenulookatme
    @thenulookatme 6 лет назад +1

    I use this same term and conjured it last year before my 2nd Re-Birthday.
    Happy Re-Birthday, Nathalie! You are a gift to us.
    My 3rd Re-Birthday was 24 August.
    On a similar note, you are a newER version of you. If you think of a Dodge Ram. The oldER version is 2016, and there is going to be a 2018 VERSION. However, it is still a Dodge Ram.
    I suffered missing "the old me" until I discovered WAYS THAT HAVE NOT changed greatly. I am nerdy, love semantics and colorful verbiage, etc.
    You are still you, Nathalie.
    ruclips.net/video/UKjdkdRaj0A/видео.html
    Warm compassionate sisterly hugs,
    Abi

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  6 лет назад +1

      I love that! We are a newer version. Who is to say this is not the upgrade? My kids say it is. ;-)

    • @thenulookatme
      @thenulookatme 6 лет назад +1

      The TBI Coach In many ways, it is for me as well: more compassion, appreciation, and connection to everyone else, understanding we all have faults. That's part of humanity!

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  6 лет назад +1

      Humility comes with this. And that I believe, is good for the soul. :-)

    • @thenulookatme
      @thenulookatme 6 лет назад

      I agree. My story is that my opinion of myself was already six feet under. Then after the fall, there was a discombobulation (in more than one way), and I had gained a voice and feelings I never knew I had. Then I saw what this newer version of my life and me did to those around me.
      Well, about a year ago, I was talking to a young military enlistee. He stated there is a difference between pride and egotism. I never even was taught nor pondered this. Oh, brain injuries of any sort will NATURALLY humble you more likely. However, through my own journey, I am now.... proud and yet humble. I thought one could not have both. I confused pride with narcissism. No, I have never been in love with myself and doubt I ever will be. HOWEVER, to have REACHED THIS FAR and to have survived and NOW EVEN LIVING... I am proud of that as if I were my own child (I only have eight). That mother in me looks at this journey and is proud that I am still here for starters LET ALONE to reach the point of pushing passed BARELY EXISTING.
      I am proud of you, Nathalie and all the other people who tune here to find their ways through their fights and journeys.
      Warm proud sisterly hugs,
      Abi

    • @BrainRecoveryCoach
      @BrainRecoveryCoach  6 лет назад +1

      And I am proud of you too Abi! Bravo! You are a Wonder Woman! That is so true about learning pride and humility. Self-esteem is so important and such another mountain to conquer post-TBI!

  • @jasonstockman3532
    @jasonstockman3532 5 лет назад +1

    IM PAST MY 7TH YR OF MY 1ST TBI AND ABOUT 4 YRS FROM MY SECOND - THERE IS NO JOY - i PRAY TO DIE

    • @willviles7584
      @willviles7584 4 года назад

      Jason this is William don't give up man okay you can do this if I can do it you can do it I've had this all my life you can do this you are a person you have dreams you will you will have your dream app do not give up do not play to die okay don't pray to die Jesus doesn't want you doing that he wants you to be an overcomer you can do this you've got it you can get sued like 7 years you've got it. Okay you got it you can do this I know it's hard but you can do it if you ever want to talk to me my number is 208 602-648-8320 give me a call no matter what day it is do not give up do not die no matter what give it to Jesus okay keep living you can do this I'm a stranger and I'm giving you my phone number because I know that you want to live you're asking for help and you're an overcomer you've done that so you can come and come and seven years you can do another 40 years if I can do 49 years of it you can do it

    • @willviles7584
      @willviles7584 4 года назад

      Jesus what you do that

  • @aminah761
    @aminah761 5 лет назад +1

    It’s a nightmare for me I’m not the same person

  • @danishmiller7500
    @danishmiller7500 5 лет назад +1

    its5trrible to live this way. even my mom said i was in a power struggle because i guess i talked too much. her response was to not end the call just cruelly rurn down the volume to ignore me and tell mr larwr it was a power struggle.....I'm constantly humiliated by my own family. people say i rold you uesterday as if that makes it better when i just feel embarrassed and they yell at me about it. i feel abused in reality. and hurt
    i sent some educational videos that they've ignored. i can't even properly clean my house but the mess bothers me as well. j have a hubby who's working a lot but piles things when he comes in and a,disabled daught er r who can't help much and my mom coming from Illinois on the first. flooding

  • @AREA-51moto
    @AREA-51moto 5 лет назад +1

  • @ruthgrace6624
    @ruthgrace6624 5 лет назад +1

    I need to see wonderwoman

  • @francini5671
    @francini5671 4 года назад +2

    Thank you so much for posting this. I can truly relate. I hope you find further healing as well.