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Permanent Relief From Peripheral Neuropathy with Dr. Tollestrup
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- Опубликовано: 19 авг 2024
- Important Note: Due to the volume of emails received, Dr. Tollestrup can no longer answer questions at the mailbox referenced in the video, patients@tollestrupmd.com. That email is for existing patients.
If you would like to make a new patient appointment please call 702-666-0463.
In this Facebook Live video Dr. Tollestrup discusses how he can offer patients with Peripheral Neuropathy permanent relief with Peripheral Nerve Surgery. If they have nerve compression the success rate of nerve decompression surgery is greater than 80%.
About Dr. Tollestrup
Dr. Tollestrup currently runs his own clinic in Las Vegas, Nevada, focusing 100% of his practice on peripheral nerve surgery, which includes issues stemming from such conditions as diabetic neuropathy, compression neuropathies (carpal tunnel, cubital tunnel, tarsal tunnel, etc.) nerve trauma, chronic joint pain, chronic groin pain and migraines.
Contact Information
Website: nevadanervesur...
Facebook: / timtollestrupmd
Call: 702-666-0463
I'm to the point when I go to sleep at night I don't want to wake up because my neuropathy has gotten so irritating and miserable and I'm only 50 and not diabetic or overweight and my physicals always come back good...I'm coming to the end of my rope...I pray for everyone who suffers from this to find help and healing.
Same with me. Just two months ago I started having heaviness, numbness, tingling and aches/pains in my legs, arms, neck. No doctor has been helpful. I don't want to wake up.
@@DC-qm3nz don't give up...I found out my vitamin D was 16 which is very deficient so I started heavy vitamin D3 and K2 supplements and started eating a ketogenic diet and pretty much cut out sugar and I'm actually starting to feel better... definitely research all you can.
Nights are always worse. Burning, itching, restless skin everywhere. I may fall asleep for 1-2 hours at a time.
I am so upset with neuropathy. Before my hip surgery I had no problems
Do you think it could be the vaccine side effects? I have gotten this out of nowhere too, I don’t feel a fly crawling, sitting anywhere on my body now. The nerve pain in my legs and now needles all over and inside of eyes.
A very rare opportunity for us to observe a true healer in his natural habitat. I thank you for your honesty, time and knowledge sir.
This is an honest, knowledgeable doctor who has spent time to give us a treasure trove of information.
This is more information than what we have been told by the 4 different doctors my step son has been to in the last couple of months. He is only 23 years old, has Type 1 DM, and is suffering from Neuropathy. We have absolutely no treatment plan for him and he has no relief from this pain. It is such an agonizing experience. We are going to continue to fight for him and educate ourselves. Thank you Dr.Tollestrup for sharing your knowledge with us. We might take an out of state trip to Nevada to see if he can finally get some relief.
Have you tried keto or carnivore?
Is he a type 1 diabetic?
I take Lyrica it works good it started from day 1 of taken it Not 30 or more days like some pills
@@txlucky1 a
Im not a Diebitic the Dr.zTold me i had Nerve Ending it is around my Ankle and up aways.
Dear DR Tollestrup I listened to you speak about peripheral neuropathy . Im a 57 year old male and iv suffered with this for a long time . I have been treated like a addict to the point we're I flushed my meds down the toilet . I did this for four months . The never decreased one bit . Infact it got worse an worse and any type of life I had before stopped . I could no longer go outside or to my local coffee house . I had one leg totally stop working an my balance became so bad I'd just fall over . My hands shook so bad that I dropped things I was holding an the shaking was so bad I threw cups,glasses an silverware .I finally had to take the pain meds or it was going to get the better of me . I no longer take any meds for breakthrough pain an I suffer greatly because of this for several years . I know it's to late for me . As I seem to be getting worse . It means a lot to me to hear that there are Dr that are not writing people off such as myself at a young enough age to get help and mabe there life back . I just wanted to say thank you Sir !! When I heard I broke down an cried . That was something i haven't allowed myself to do except when im having a especially painful day or night . Once again thank you SIR from the very bottom of my heart !!!!!!!!!
I'm so sorry you are dealing with it, so scared myself
Please try acupuncture
I pray you get help. Don't give up. You are still young.
I suffer from severe peripheral neuropathy. You even took the time to email and explained everything to me perfectly. I’m on Medicare and you don’t except it. I’m saving my pennies but I will be there for you to save my life
Me too . A lot to save I guess 🤔
What is a general cost? I know everyone is different and so an exact cost isn't realistic, but are there payment plans of any sort?
@dgottobed Do not go to him! I was numb and he decompressed my 3 peroneal nerves and left me with severe pain and tingling!
I take Benfontamine, Alpha Lipoic Acid and B complex. D3k2 and serapeptase.
@@Agapy8888 is that helping
My doc just blew me off saying I had fibromyalgia. Then i found out that I have arthritis throughout my body. Our medical system in Canada is completely broken. I saw a second doc for the periphery neuropahy who prescibed me gabapentin. Couldn’t handle the side effects. After seeing a functional doctor, I was put on EPA/ HPA, Benfotamine, SPM, Vit D & K2 and beef liver capsules. I also take a joint supplement & curumin for the arthritis. I still have bad days, mostly when the barometric pressure bounces up & down. Generally I m doing much better. My functional doctor told me that many people are suffering from peripheral neuropathy due to the poisons in the air being sprayed on us daily from geoengineering aka as chemtrails. I believe her as the skies are being plastered daily where i live. Prayers for all who are suffering from peripheral neuropathy & hope that you find positive solutions to help you. ❤️🤞🏼❤️🇨🇦❤️
I live in Michigan and am a 76-year-old woman. I have one of the best medical insurance plans here in our state, but I doubt it would be good in Nevada. I have heard that at my age the chance of getting better is not possible. I have had sharp pains in my left leg for a couple of years...numbness in my feet..no diabetes, no high blood pressure...I have been checked for blood clots...there were none. My blood circulation was checked and it is normal...so many I will learn to live with it at my age....I have found your video very interesting. Our son works at a huge hospital in Reno, Nevada, as a registered nurse with an additional degree in infectious disease...you are very easy to listen to...thank you for helping people.😊
The cure for most people is eating a whole food or low carb/keto/carnivore diet. I recommend to people when they pick up something to eat ask yourselves a few questions. 1) Is this a whole food? 2) Is it going to nourish me?
3) Am I just emotionally eating?
you are so right, thanks for this. I have been fasting12 to14 hours a day, going for a 21 day, I'm starting to feel better already!
I've read on the keto diet. It is not a long-term diet, and you still need vitamins A,C, and E. Beware, it is best for short-term only.
1:18:46 @@maronichalyles7515
What a great doctor. Thank you so much for taking the time to explain this condition.
What is the chance of cure if your pn is inherited?
He's a scholar! He put out 1 hour & 40 minutes.
Hi Don, I fell in Sept., hurt my hip and now myrightfoot is always cold, tingly, asleep,pins and needles. My toes are crooked up , it hurts. Foot pains all the time.
Thank you for trying to help. You are a very kind and understanding Dr.
Gladys. It could be a blood clot. I had those symptoms, saw a specialist and it was a blood clot. Had a Stent put in and when blood flow returned, with time, all improved.
Oh I forgot to thank Dr.Tollestrup
U ARE just brilliant to explain the problem. So pleased!
Thank you doctor. That was the most illuminating explanation I have ever heard about PN. And I had no idea that some PN could be treated with surgery, but it makes perfect sense once you explained it. I've had PN in both feet for about 20 years. My holistic doctor diagnosed it based upon "walking on cardboard". My MD actually used acupuncture for about 5 years, and I had almost total relief for the first 3 years, and subsequent acupuncture did slow or halt the advance. I just wanted to say that you are a gem among doctors: caring, conservative and brilliant.
I totally agree!
Oh this is great to hear! Just found him
Thank you Dr. for explaining what PN is.
I have been suffering with RLS for over 15 years.
I am not sure if my RLS has led to PN or the other way around. Can they go hand in hand ?
Thank you very much for this informative report. It helped educate me and I understand it so much better.
LG
What is restless legs vs peripheral neuropathy?
Just wondering if I have this PN, can I also have sciatica at the same time? As I have pain in my bum area all the way down to my ankle, the back of my left leg , finery pain from the back of my knee area to my ankle. Also I am a type 2 diabetic. Hope you answer me back, thank you, Lana Scott
You are the first Doc that has explained this clearly. Thank you!
WOW !!! I've wasted almost 2 years at the VA trying to find out why I'm having all these problems, 90 % of what I just heard, is new to me from a doctor !
Thank you Dr. Tollestrup for letting us understand a little more about this complicated matter. You are right some neurologists are not well prepared in regards to this ailment.
Very true
You are the first doc that explained this perfectly.thank you
This video truly is an answer to many months of prayer,
Thank you for putting yourself out there like this where ppl like me can find you. I will be emailing you very soon. Thanks!
I have been searching for YEARS for an explanation. I have seen numerous doctors and nobody had an answer or a treatment. For years it's been an indescribable pain, sort of like having my feet literally on fire. Recently it's gotten more intense and there are the pins and needles as well. I now do not have any insurance, so I am just living with it as best I can. I wish I had found your channel 2 years ago, when I had insurance! Anyway, thanks for making this video and I can at least know what to call it.
Have you tried using a small TENS machine with sticky pads on your feet? It could help..!
Finally, some direct information. Keep up your writing and research. We all appreciate some news … good info.
Thank you 😊 for your kindness ❤️ a breath of fresh air. ❤️
I have idiopathic peripheral neuropathy in my feet that is slowly moving upward. Mostly I have pain like walking on tacks, restless leg syndrome in my right foot, the feeling of wearing compression hose that are too tight, total numbness and a stabbing burning pain like when your foot is asleep and it’s just starting to wake up. I saw a neurologist and had the electric test done which was painful in the areas where I am not numb. The prescription drugs did not work at all. What does work almost immediately is a topical salve with CBD and THC massaged into my feet by Mary Jane’s Medicinals.
Thank you for the video and explaining in detail more information than I have been able to glean elsewhere.
Hi! Thank you very much for your information! :)
I live in Oslo Norway and have the exact same symtoms as you. But I can't find anywhere to buy this product you mention. I will be thankful if you could provide a generic term for the " topical salve with CBD and THC by Mary Jane’s Medicinals." Then I can search for an alternative. I have had periferal sensory neuropaty for 3 years now, and all doctors I have asked say there is no cure...
I liked this video so much that I stayed up til 4 a.m. watching it. I was 99.5% sure that this guy was who I needed to see up until 1:29:00 thru 1:29:20, that's when he said the words that put me at 100% sure! LOL.... Excellent advice. I hope this doctor is still practicing cuz I need his help.
Send an email request to patients@tollestrupmd.com to start the process if you have not already done so.
Thank you
L
@@eyleenjones9288 😮😮😮
Thank you for having this very informative to the public in your thorough explanation in the field of your expertise.
Thank you for this video. This has answered alot of questions for me..I have listen to you several times now..I certainly need your help. My pain started many years ago. It has grown from my toes to hands too..my balance is affected now. Thank you .
I appreciate” the listen to your patient for a bit” , there is so much assuming when your getting in you 60’s and a cubby person. I don’t have diabetes,my cholesterol is low. I had a brain bleed In basal ganglia , which stopped so I survived. I am left with right sided paralyze that leaves me pretty limited. Movement. My heart is functioning well. So I may live to an old age pretty well otherwise. Old nurse so I know that listening is important and there is only so much can be done. This was very clear explanation and I like the good sense approach.
You are very informative never had a doctor explain anything to me just shove medicine that don’t work never found a good doctor thanks for being helpful
Thank you. My symptoms are not painful but still very unpleasant, numbness and a feeling like there is cast encircling my feet and lower legs. They just don’t feel anything like they used to. To express it differently my lower extremities feel trapped. Don’t have diabetes so I guess what I have is Idiopathic neuropharmacologist. I am doing exercises to improve my balance, and they help some, don’t want to use drugs.
Thank you Dr. Tollestrup for explaining the PN problem so well!
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The PN that started in my big toe is now completely gone after 9 months of lchf OMAD. Brought my A1c down from 10.2 to 5.1. my vision is significantly improved, my skin has cleared up, lost 57 lbs and my labs are excellent for first time in 20 yrs. Mostly eat meat, high fat (butter/olive oil only) and a few veggies. (Broccoli, aspary, brussel sprouts, occasional salad,)
That’s wonderful!! What is Ichf OMAD?
Me two ,what is OMDA ?
@@barrylowther8728 One Meal A Day. Google is your friend. You are welcome. Be blessed.
@@makeoversbymeme2077 low carb high fat one meal a day. I do this too lately. Meat, eggs, cream and thats it. In general. I do mix in some carbs or light fruit and veg. Not much. High meat and fat. No seed oils either. Posion
@@scoobtoober2975 thank you for sharing
Now I know what to ask my doctor and will have a better understanding of what the options may be Thanks Doctor.
My doctor was unsuccessful treating my neuropathy. It felt like sunburned road rash. I finally tried with OTCs. It took a while, but with B12 (later, B-complex), turmeric/curcumin, D3, Mg, and CBD, it is quite significantly better.
Sir, Useful information for me. Aged 72 Suffering neuropathy. Please explain what is Mg, CBD, which would be helpful for me. Regards
@@tkevasu989 Mg is magnesium. I take a high absorption, chelated form of magnesium (magnesium bisglycinate).
CBD is cannabidiol, made from hemp.
I took all of the aforementioned (in my previous post). It took a while, but it finally greatly minimized the symptoms.
@@djondjon Sir, Thanks So Much for your timely response. I will follow your advice. I am totally dipressed. NOW I got confidence after seeing your message. Thanks again. High Regards
@@tkevasu989 Be sure your doctor approves. Since he or she should know your health history and/or current blood work results, and would know what is safe for you.
@@djondjon Thanks Sir. I have consulted Senior Neuro physician, and Orthopaedic Doctor. They Prescribed Gabatenin and Mythylcbalamin.. But no relief. My problem due to heavy use of 2 wheeler traveling. My friend also got relief after Magnisium suppliment. Thanks again Sir.
Thank you for this video, I have learned so much , the neurologist that I went to, the only words he say was "you have diabetic neuropathy " after that he kept quite and I asked him like 5 questions and that was it, never he tried to explain what you should do, or what you might feel, or any other information. I felt so overwhelmed and confused.
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I thought I had PN and fibromyalgia. I ended up going to a NAET acupuncturist(s) who told me 95% of the time they were finding it was food allergies. A year later, IT WAS FOOD ALLERGIES. I did multiple treatments ($50 a piece) and I’m 100% better. I do not know if this will work for everyone. I did not believe it would work for me. However after five or six treatments it was obvious.
@@Intoxicanna thank you for telling me i will research this
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Greetings Dr. Tim, I was diagnosed with moderate PN one year ago. Numbness in my feet started 4 years ago. My primary thought no big deal. After 3 more yrs he finally referred me, as walking was getting more difficult thus the diagnosis. My condition is the same. Stiffness , soreness and heavy feet and legs. After walking 10 minutes have to take a break. Have a new neurologist I see next month and will ask about the test you mentioned. It’s the first time I ve ever heard of a possible cure. Thank for an excellent presentation.
Hi Dr Tollestrup, I have to say not sure if I am a candidate, but u have described me in so much of ur video.. that I feel u know me lol .. u have said so much truth about the industry and what they run uthroigh to tell u that there is no hope… good luck.. take care of that sugar. Not saying u shouldn’t take care of ur sugar but u have given hope to many for at least a new Avenue to cross and consider in our journey with neuropathy thank you 😊🙏🏼🙏🏼
Hi Ginny. You need a physical exam no to know if you are a candidate for this type of surgery or not.
I just found your post. I will listen to your information. I am desperate . My neuropathy is in both hands and both feet and both calves, Thank you.
Thank you for such a detailed and vast description of this ailment and what can happen to address it.
I’m so glad I found you. Can it be torn? I’m at a loss and I can’t take this pain any longer. I’m waiting on a call back from your office in Nevada. Thank you for giving me hope!
Have you made any progress, fingers crossed?
Absolutely outstanding video. Thank you for taking the time to explain everything in an easy to understand yet detailed way. I'm am so impressed and will be in good hands with you no doubt. Can't wait for my opportunity to meet you soon.
Outstanding to make more money for the clinic and not to help patients.
How was your surgery ? 🤔✨
So thankful for your very informative video! I’m currently undergoing right foot issues diagnosed as plantar fasciitis, Achilles tendinitis, tibialis tendonitis. Not to mention having had a nerve conduction test 4-5 years ago that was very unpleasant. I have had so many wishy-washy diagnosis and dead end very expensive tests and treatments that I’d literally have 30k more in my bank account. My podiatrist just recently tried putting me on a low dose of lyrica and even at 50mg taken in the evening for only 4 nights I am already getting negative side effects and called to tell him I’m not taking this anymore. I’ve been prescribed SSRIs before and have had horrible effects and told him that but he assured me that lyrica was different. Nope. Exactly the same or close enough that I don’t want it in my system.
Incredible description and translation. Thank you.
Vitamin E , Omega fatty acids like EPA , DHA. Turmeric helps omega fatty acid absorption. Lysolecithin also helps. Vitamin D helps magnesium absorption. Nerve flossing excercises. Vitamin K increases sulfatides in brain for myelination. Choline.
Diagnosed with PN over 25 years ago! Have muscle weakness in my left leg.No pain thank God! Went to PN doctor years ago. At that time didn't seem to have much hope for cure!
Was prescribed years ago also with Amlodipine for blood pressure.still on it! Looking forward to watching the rest of your video!
Just scrolled down and came across your presentation. Thank you for sharing your knowledge.
I need to see you! I’m suffering from something - it’s just sever pain in several areas on one side of my lower body. I need to see you because YOU really sound like you KNOW what’s going on & you sound like You actually CARE! 🙏🏻 yes my quality of life is all but gone- almost to my much to bare to walk. Wake in pain: pain wakes me up. You are very knowledgeable. Seem like a GREAT DR.
Sounds like Fibromyalgia.
@@carolferguson19 no it way worse. The leg feels like a heavy weight. I have numbness started in my toe now it’s moving up my foot and bottom of my leg. Unbearable to walk. Maybe from my spin? But thank you so vm 🙏🏻🙂
There is no pain so severe that surgery can’t make it worse.
Excellent Video! Sorry for the intrusion, I would love your opinion. Have you heard about - Taparton Sturdy Nerves Takeover (search on google)? It is an awesome one off product for Getting rid of Neuropathy minus the normal expense. Ive heard some unbelievable things about it and my friend Sam after a lifetime of fighting got excellent results with it.
Raise the head end of your bed 6 inches, this will help your body repair itself.
@Ilir Cami A British engineer Andrew K Fletcher discovered this and as been studying it for 27 years. Some hospitals are doing it in certain wards.
It is based on proven science.
@Ilir Cami Probably it has to do with keeping blood circulating in the furthest digits from the heart (toes/feet)
What is LRPN?
Wow my dad has been bed ridden for about 6 months and it just hit him after he fell. He has a weak knee and was 2 weeks away from having surgery on it when he fell and then he started losing feeling and tingling. He is being pumped with drugs and the rehab/nursing home just now finally got him an appointment with a neurologist. He don’t have a lot of money and lives off of his s.s so I fear now if he is a candidate they won’t want to do the surgery because he only has Medicaid and little income. Does anyone think he would be a candidate? All we can do is pray but this sure has given some hope at least. Thank you for this video
very informative and professional. At some point I have carpal tunnel syndrome while working in compounding pharmacy (busy hands problem combined with reaction to various meds). I stopped it by eliminating citrus fruits from my food choice. Now I assume that Ph has it's word in the situation. I also switched to old style soap. You show what and how to pull all factors together so patient can analyze lifestyle and better describe it to those who involved in decision making. I still remember EMG test as pointless torture. You return us to reality. Thank you so much, Mr. Tollestrup.
Thankyou explaining this affliction so thoroughly.. have had numb feet for about a year….my right foot in particular. Cannot feel my toes …have to be
Very careful when walking. take b12 …d3 Thought It was from taking statin meds!,,,!
Please look into acupuncture
Dr Tollestrup is a Genius
Thank you so much for this presentation. 5 months ago I was sitting with my leg tucked under me and when I got up, my left leg was entirely numb. Feeling eventually returned in my thigh but have PN from my left knee down, my right foot and ankle AND my groin. Sitting has been almost intolerable (due to strange, odd, pressure-like sensations & sunburn type feeling) and I only sit when I have to drive. Saw a neurologist who obviously didn't know much about this and referred me to a neuromuscular specialist who I won't be able to see for another couple of months. You have given me hope that this may be a compressed nerve somewhere high up and that I may be a candidate for surgery. (They did a lumbar MRI and it's not in the spine.)
Watch out! He decompressed my 3 peroneal nerves and left me with severe pain and tingling!
My boyfriend had mentioned his left leg feeling numb from knee down a couple of times but it went away. About 5 months ago he took me to Las Vegas for my birthday and the day before we were to return home his leg went numb and the left side of his body started to spasm. We went to the hospital by ambulance and after a scan they told us he had a significant mass in his brain. We returned home and the tumor was removed. It was a big, benign menegioma the size of a large lemon that had probably been growing there for 20 years. He has done great but still has numbness in his leg. They said the numbness should improve as the brain fills in the void where the tumor had been. Please check everything.
this sounds more like spinal stenosis or severe pinch nerve. i had serious sciatic nerve problem. i finally had a epidural steriod injections. and i have been pain free for over a year. before I received the shot, I barely could get out of bed.
Thanks for sharing, very helpful info . Excellent lectures/presentations. 💐🌸🌺
Thank you for this in depth discussion.
The basic symptoms you describe of numbness, burning or tingling are the ones I had.
By process of elimination I found the major culprit to be sugar and fructose. This extended to anything refined or processed and is directly correlated in that a few pieces of pineapple would cause a little burning, more than that a lot of discomfort. And no fruit, sugar refined carbs or alcohol and all symptoms disappeared. I also regularly have diabetes tests which so far are clear.
,
Your experience is encouraging for me. I just started the carnivore diet, eating nothing but meat (mostly beef) and water, specifically to address peripheral neuropathy. So far after 4 weeks my blood pressure is significantly lower, depression and anxiety are gone, I sleep the whole night through for the the first time in years, and headaches have disappeared. Look up "carnivore diet" on RUclips and be amazed at what it can cure, from diabetes to gut issues to skin conditions, autism and MS. Amazing. Thanks for posting.
did it cure your neuropathy? I am pre-diabetic and just started getting neuropathy. pins and needles in my feet only. I am willing to try anything at this point. I generally eat very healthy and am not overweight and there is no diabetes in my family.. I did previously have lyme disease and the PN got bad after i took predisone for poison ivy over the summer. now the PN is constant where before i would just get stabbing pains every once in a while.. @@capealiaksin8776
2:20 2:22
Excellent explanations. Clear and concise. Thank you.
This is the first news I saw that offered help beyond the EMG studies, and a battery of tests to confirm that idiopathic Neuropathy was the diagnosis. I have fallen over 25 times with some serious injuries and a tumble down 12 steps
.My active life has ground to a stop. I think my case is beyond help as I have had this for a decade or more. I can’t drive and have to have someone here to help with everyday living. My diminished sensation is on the outside of my right foot and heel and much less on my left foot. I’m 78 and was very active, I’ve had two spinal surgeries that provided complete relief from sciatica. For those that fall within your preview, they are very lucky.
As a fellow sufferer, my 💙 goes out to you, take care :)
Absolutely fantastic this as been the most informative video I have seen, my Neurologist has ever explained it in such detail all he has ever said is you have Peripheral Neuropathy and there is no cure just take pain killers .
I use Theraworxs magnesium foam . after my spinal surgery it took the p ain away within seconds. I do have ms and left me with neuropathy in the right leg and foot . It’s been a real relief and I feel so sad when I know others hurt so much . I used spikenard as a topical and Rosemary internally These also have helped . Also the biggest is prayer 🙏.
My spouse is suffering from Neuropathy due to Failed back surgery. I am interested in your comment regarding spikenard and Rosemary. We will try the theraworxs. Thank you for any insight you can provide!
@@dianelanderson5504 I hope it helps . Spikenard on the feet . Also try sound therapy you tube for binaural beats for neuropathy. This also has helped . Can be painful . Means nerves are reconnecting. It’s a long journey. Take time .
I have an underactive thyroid and take 50 grams of Thyroxine each day. I had this for almost ten years before it was diagnosed. The horrific pain across the top and around my right foot and sometimes my left foot, is exactly as described in this video by you.The absolute tiredness and pain all over my body as though I'd been attacked by something unknown. I thank you for that, as I feel I am not been taken seriously regarding the ferocity of the pain. I am prescribed 30mg Co -codamol for the pain 2 x four times a day. I had a Morton's Neuroma in my right foot, which was removed about four years after the foot problems had begun. Three operations were performed on my foot at the same time. Neuroma excised, a Nerve stretched across my foot from the same point of where the Neuroma had been. A pin was attached and the nerve attached to this. The inside of my foot was (I think) shaved to straighten it as it had a bit of bone protruding which is now even worse. There's a hard lump of bone on top of my foot between the first and second down from Big toe. I didn't have this before my op. I have no idea why all this was performed apart from the removal of the Neuroma, which was causing pain up to my knee too. I think the surgery caused the problems I now have, with the pain I suffer each and every day. . I am so tired of all of this, but sleep is a problem
I also have pain under my left breast, which was infected due to a bout of Shingles, which caused such pain I thought I was having a heart attack. This veers between sudden stabbing and shooting pains. It has been happening for years. I didn't know about the Thyroid and the Shingles until you spoke about today possibly having some effect on the pain. .I also have bouts of Sciatica on my right side at the top of my leg/hip. I know this is a lot of info, and am sorry to lay this at your door. I am not Diabetic. I'd like to know what's best to help. The Consultant Surgeon retired from his post within a month of my operation. Scares me. A lot. The mention of the Mortons Neuroma surgery made me sit bolt upright. I did have XRays You got my absolute attention. I do have all the symptoms of this but whatever this is, I'm in shocking unrelenting pain. I don't drink alcohol. At all. You can tell which part of your video I'm watching, from where I'm now responding to what you say. I am horrified by your opinion regarding the state that the so called Orthopaedic surgeon has left me with. I have little hope left, and I just want to improve the quality of my life. to enable me to enjoy it after all these years.
I hope you found help. Some doctors are good and some don't help at all. I 'very been through that. My chiropractor helped me. I did see a few chiropractors before I found one to help. He did more than ' Crack my back.'
Find a spine and back clinic
I need a walker after last back surgery, years later, foot agony when I try to sleep. Uhhgggg.
@@happynancybear8709 I can relate. I am good without a walker or cane right now. Still in chronic pain. Injections in the back. I can't afford them. Too many cortisone shots. Neuropathy now. Try listening to sound vibration music. I listened to Good Vibes on RUclips. There is many different ones. The Regeneration one Really helped me for 1 day. I need to listen with headphones on. And listen alot even play when I sleep. Most people know not to touch my back. I tap people's shoulders myself when I say hi. Shooting pain. Also takes about 5 -10 seconds sometimes before pain registers when I accidentally burn myself with air fryer. Not good One day I actually felt 1/2 human. My eyes water from pain sometimes.
I should not have needed 5 ankle surgeries. The first doctor put a cast on my broken ankle. Took it off 10 days later and told me to go back to work. Another operated , didn't send me to PT. Standing working and ankle rebroke . The bone called the talus inside ankle. He operated again, then PT. And put me on a test that should not have been given to me for at least a year if at all.... you get the Idea 23 + cortisone injections in 3 -4 years. I Know. I wanted to work and needed to work.
Anyway, try the therapy listening to music with headphones. I listened to Good Vibes the Regeneration one. I could feel the chronic pain getting alot better. I felt almost human for a day. I still hurt bad ( people can't tap my back. ) but I was even standing straight. Nicoli Tesla has music too on RUclips. Won't hurt and it is free. I hope it helps.
I’ve had peripheral neuropathy since 2013 after a mastectomy. Had I.V. Chemo first as there was a tumor like growth the wanted to reduce in size before operating. Then, a partial mastectomy follow by radiology. Legs,,feet have been numb,,numbness wrapped around the back through the rib cage. Feet felt like there was a thick board on each foot. Legs made It difficult to walk as the only feeling was that they were there and had to be taught to re walk, but only severe soreness around the arm of the side of the operation. Not really direct pain. That got better , some relieved, so I could again do driving self to appointments and gardening, moderate housework. Somewhere in late 2019, I began to go backward. Numbness and lameness returning and vertigo with walking imbalances. Then in 2020, I became aware that the formerly numb side was beginning to…’wake’, and I could feel the actual flesh of the arm on the side of the operation. I didn’t notice that my other side was being affected but I could no longer reach down to trim my own toenails on that opposite side. Then I noticed the toes on that opposite side foot had turned under,,claw like. And a toenail fungus had so taken over the nails that I could hardly trim. Pain I’d had in the hip on that side,,switched to a pain in the side of the operation. Have a lot of trouble trying to get socks and shoes on that side now. I am going backwards. Had sessions of Epley maneuvers given until the vertigo stopped. Found online, exercises to relieve the vagus nerve and those muscles surrounding the vagus nerve. Now,,today,,finally, 2 years later, I was assigned a PT because of the vertigo and I managed to get through to them that this neuropathy had taken over but was having the greatest relief from the vagus nerve and muscles ..and eye exercises..that had almost stopped all vertigo and was feeling really as if I’d gone past that paralysis and vertigo…until I started doing gardening. Anything I do,,is body doesn’t seem to adjust and get stronger without muscle pain and vertigo,,it keeps coming back. Thank God,,this PT has finally considered its not all my ears but other..things causing this return to neuropathy, some vertigo,, muscle soreness,,stiff necks,,with great pain there, etc. and has assigned special exercise maneuvers for the affected areas. But..I don’t know what’s going on or has gone on that I understand the going backwards,,back into the neuropathy and muscle pain. Do you,,or Doctor,,have any idea what is happening..? I’m sure I’m not the only person in the world to have had this happen to them too but the doctors I have seem to just skip over any discussions about it. Is the last 2/3 of your teaching the answer? All these years,,the space for the Original nerves have become crowded for the small space left to it by the swelling from the cancer therapy..?? Even after 7-1/2 years..?? Frankly,,that seems to be a lot of answers to the questions I’ve asked.
Given your history of chemotherapy, you are certainly at high risk for having developed mechanical compression neuropathies in your legs/feet. You really need to have a comprehensive peripheral nerve evaluation to know if you would be a candidate for nerve decompression surgery or not.
@@TimTollestrupMD do you need to do this in person, or if you are at a distance, a video consult?
I'm going to contact your office. Glad I came across this.
Raising your bed 6 inches at the head end and see the different's it makes to your health, i think you will be very surprised.
Very comprehensive session
VERY helpful to me. Thankyou for patiently explaining.
Very Informative ~Thank you!
MGUS can cause peripheral neuropathy. Feet and up to the sock line numbness top and bottom of feet. Little bit in finger tip, pins and needles and not much pain.
Are you aware of neurosurgeon who does this surgery in Calgary Ab, Canada
neil. 87..thank you from south Africa. however thr approach as.. electrical cable damage in the wall would explain to non Tec viewers like my self the nerve distribution and interruption .. many may have stopped watching as you commenced very Tec based and they faded. when the roll ball section was explained i immediately forums a ball and rolled it whilst watching. action stations over those who faded earlier. we are privileged to meet you on line and receive advice that our local gp does not give in the 15 minutes he has.... nxt patient please. well done... thanks you tube.
Thank you for sharing this is information I have never heard about any possible cure. Thank you.
Very informative. Thank you. I have fairly well-controlled type II diabetes for a few years now and have only very recently experienced some mild, but clearly PN symptoms. Tingling and heat on the bottoms of my feet. Only for the last month or so. Nothing before that. I assume it will get worse but it's really good to know there may be a surgical resolution. Your solution is very encouraging. Thank you again.
If you look up "carnivore diet" on RUclips you will discover that this diet literally cures Type 2 diabetes in every case. It also has been known to cure PN.
Excellent presentation. Most informative. Thank you
Excellent presentation, Dr. Tollestrup!!
You nailed it! My feet are burning as if on fire now. I just go put my feet in ice cubes…numbs feet…then Lidocaine lotion…then finally stops long enough for me to sleep! Wish I knew the cause. My doc just looks at me like I’m crazy!
I have Peripheral Neuropathy for over 10 years now. Was out on to Gabapentin the first 3 years and as the pain progressed was also prescribed to take Lyrica(Pregabalin) 150 mg a day. Gabapentin 600 mg a day. Ibuprofen (800 mg) as needed for pain.
I have never seen a Neurologist or had any kind of Nerve evaluations done. My doctor is from the county doctors (Medical) I use to have a great Blue cross doctor but no longer can afford him.
My legs and hands are hurting more than usual. My legs have changed color. Red to purplish discoloration. I do have type 2 diabetes. My weight has been up and down over the years.
I’m scared my legs are leading to Amputation.
Thank you doc for the info. I will ask my doc about evaluation and surgery.
Turning colors sounds like start of necrosis. Necrosis in plants means CALCIUM shortage, SEVERE! CALCIUM is the basis of all cell structure!
I suffer from chronic back and neck pain now it has crept to my feet. Please advise what to do. I want to be able to manage it. I am tired of taking pain killers that don't work. Thanks for putting yourself out here.
Peripheral neuropathy classification
Length dependent, sensory > motor
• Diabetes about one third
• Alcohol about one third
• Idiopathic about one third
• Vitamin B12
• Vitamin E
• Thiamine
• Amyloidosis
• Paraprotein related
• Confluent vasculitis
• HIV
• Toxic, chemotherapies, HAART etc.
• Typical workup [starts in his feet, slowly progressive] includes fasting blood sugar or hemoglobin A1c, B12 level, thyroid function tests, serum protein electrophoresis and immunofixation
• Additional studies if atypical: Nerve conduction studies/EMG, creatinine, ESR, ANA, rheumatoid factor, HIV, CMV of HIV positive, LFTs, hepatitis profile for HBV and HCV serology if LFTs and abnormal, vitamin E levels
Diffuse motor > sensory
• AIDP
• CIDP
• POEMS syndrome; osteosclerotic myeloma
• Drugs [amiodarone, gold, perhexilene]
• Inherited [Charcot-Marie-Tooth]
• Acute arsenic
• Lead intoxication
• Diphtheria
• Investigations: Nerve conduction studies, electromyography, spinal fluid, fasting blood sugar, B12, liver function studies, HBV and HCV if LFTs abnormal, serum protein electrophoresis and immunofixation, creatinine, ESR, ANA, RF, ANCA, cryoglobulins, Lyme antibodies, HIV, if HIV positive then CMV antigenemia, 24-hour urine for heavy metals if previous studies unrevealing
• Testing for M protein: Skeletal survey, 24-hour urine for Bence-Jones protein, CBC, serum calcium, renal function tests, biopsy for amyloidosis, bone marrow biopsy
Multifocal, motor & sensory
• Immune mediated: Vasculitis, sarcoidosis, brachial neuritis, mCIDP, multifocal motor neuropathy
• Infectious: Lyme, HIV-associated CMV, leprosy, HZV
• Infiltrative: Diabetic amyotrophy, amyloidosis, lymphoma, leukemia
• Hereditary: CMT X, hereditary neuropathy with pressure palsies HNPP
• Investigations: Nerve conduction studies, EMG, spinal fluid, nerve biopsy, fasting blood sugar, hemoglobin A1c, B12, LFTs, HBV and HCV if LFTs abnormal, serum protein electrophoresis and immunofixation, creatinine, ESR, ANA, RF, Lyme antibodies, ANCA, cryoglobulins, HIV, CMV antigenemia if HIV positive
Neuropathies with prominent dysautonomia
• Diabetes
• Guillain-Barré syndrome, AIDP
• Amyloidosis
• Hereditary sensory and autonomic neuropathy HSAN
• Porphyria
• HIV
• Taxanes, e.g., vincristine
Neuropathies with prominent ataxia
• Paraneoplastic: Anti-Hu, anti-CV 2, malignancy
• Sjogren syndrome, anti-SSA, anti-SSB
• MAG neuropathy
• Vitamin E deficiency
• Vitamin B6 excess
• Syphilis
Thank you your information has been very helpful and your explanations of everything is very helpful and well orated.
You must be joking - this is the most boring BS I have ever heard and completely useless.
Thank you so much I've learned alot I had surgery years ago I'm doing so much better lol🥰
What surgery did you have?
The words I use to describe my pain is a gnawing, burning, on fire all the time pain that never stops!
Very typical symptoms of peripheral neuropathy.
My beloved brother with neuropathy gets some relief from blue emu oil ointment on his feet. It's worth a try. He also uses alpha lipoic Acid, NAC and B12. NAC has saved lives. Tumeric is good for inflammation too.The FDA just banned it it you can still get it.....for now. My brother has MTHFR mutated gene. I have it too. 40-50% of the population has it and don't know it. Please do some research and get the blood test. God bless you.
Jaded Optimist
Thank You for sharing!
Jaded Optimist
Please, put here some dosage!
How much of each stuff you listed did your brother took per day??
So, silly me I took a craving in the last few weeks to making tea with honey. My neuropathy has mostly been under control using slow release tramadol but the honey really flared my neuropathy at the top of my left foot. So off the sweeteners and the carbs. Within two days the tugging pain in my foot is gone. Trust me I've tried everything and you HAVE TO get the blood sugar down.
You are awesome ! I'm 62 . I have been to two heart doctors they say look into nerve problems. When I sit down the back of my thy burns both legs. When I stand up it takes a while for motor function. Burning goes away after 19 min or so..im lossing muscle function in my legs.
Hi Dr. TIM. Great video. Please stay safe and healthy and take care of yourself and your family members. To all members also. Talk to you later my friend. ☺☺☺😇😇😇
Hello tawni Haynie please do you have Dr tims contact a number to reach him please.
I take a simple over the counter supplement, Alpha Lipoic Acid and I find it helps quite a bit.
How long did it take to feel the effect? And do you strictly take the R type?
I have exactly what your talking about I have aches that I can't explain from my ankles up to my calves and sometime my wrists and I often have burning feet.
Gabapentin only made me sick and I would not be able to keep anything down. I've been taking B1 and all the B vitamins, and I'm finally getting some relief.
Also check for your Potassium and Magnesium levels to be good.
I have diagnosed myself with idiopathic neuropathy. Have weird feeling in both feet like the skin is too tight and kind of numb I guess No relief like it is permanent . When I lie down for any length of time my toes and calf muscles will cramp and sometimes RSL syndrome.
Consequently I get little sleep so it is basically ruining my life
My GP has given me Lyrica - didn’t make any difference and had side effects
I have normal cholesterol levels and blood pressure and not diabetic I eat a super healthy diet etc I was diagnosed with PAD but wasn’t severe
My question to the good Dr is could PAD cause my numbness and cramps.
I think your presentation was very comprehensive and excellent
AD
PAD? peripheral artery disease? Well the blood does feed nutrients to the nerves, so sadly we lose nerves/endings/function entirely when lacking circulatory nutritions (and oxygen etc) for long enough.
I am very similar to you. It’s awful, life changing pain
1800 mg of high quality alpha lipoic acid taken three times a day and 600 mg doses after 30 days you will notice an immense positive change in peripheral neuropathy symptoms. If you experience a change after 30 days continue use after 60 days mine was completely gone. And I take 1800 mg a day now for maintenance. Of course proper stretching and exercise along with it. And swimming it will save your life!
That sounds like a lot! I have just began to take it but only 600 mg per day. Is it safe to take more?
Eu tomo 300mg de ácido alfalipoico+ 150mg de benfotiamina+ 400mg magnésio quelado + vitamina D3 com K2. Dieta com baixo carboidrato, cortei glúten, lácteos, álcool e faço caminhadas diárias. Estou completamente assintomática 🙏🙏🙏
👍
You are such a genuine nice person...thank you for all the information... I have diabetic neuropathy...I put a ice bag on..takes the swelling down, then the pain...not fun...balance problems..ehhhh.
First time i hear this,its always bloodsucer or other illnes. No it is my hernia!Thanks dokter.Now i wait for a operation and hope........
I am interested in the surgery.
My life is terribly 🙃 interrupted
By this pain
As someone said, there is no condition that surgery can't make it worse.
Fasting helps me
P
Please do surgery last choice my friend had surgery it helped temporarily now she has more issues pain shifted. Please try to help yourself naturally before surgery.
Vitamin and mineral deficiency can also be a huge part. Processed food can make you have more pain too. I was sick for over 20 years lupus fibromyalgia migraines sinuses sun sensitivity.in pain everyday life was painful. I changed my eating habits unhealthy sugars can contribute to pain. I started a food diary what I ate to see if anything I ate cause me bloating nausea tired and weakness sprouts wheat kale made me not feel well and broccoli in not steamed. So good food can make you feel icky too. I cut out sodas chocolate cookies cakes etc. I thought it was ok to eat since I was thin. I also changed the way I was thinking forgave myself n others I try not to dwell on things that bother me . I try to keep my mind,mouth ears and eyes only on helpful things. We need movement so our blood flows and light stretching. RUclips chiropractor who teach you how to stretch your body. I’m 59 and I feel better then when I was 39. I get pain once in a while but thank God it is not everyday also I notice it’s when I eat junk food or don’t stretch out. RUclips spine care dr Micheal Rowe, Dr Berg, Dr Ben Lynch dirty genes, Henry w Wright - be in health
EOnutrition Elliot Overton. Hope you feel better and find what you need to help yourself and others.
My problem is in my both hands.Niddles and pins in my fingers and sometimes unbearable pains up to the shoulders.
Maybe problems with your lower cervical spine.
I have to save money to go see this doctor. I dont know if he can do anything in my case which I feel it's too late. No feeling in my tigh. So I guess all nerves damage
Thanks doc.
Some relief with Lyrica but had to add a Butran's opioid patch. With that combo I am able to lead a somewhat functional life. Thank you so much for this video. I don't think most people realize what it is like to live with legs that feel like they are covered in 3rd degree burns with tight nylon stockings on. It is freaking horrible. Yes, there is too much snake oil. Companies/people trying to take advantage of chronic pain sufferers.
I very much agree!
Add alpha lipoic acid and Neuro. Mag. Great combo plus omega threes. It really works.
I found lyrica just made it less localised and made me feel claustrophobic...not myself. I got off all meds. I still have it but i do visualisation and try to find point of issue as i have a c6 SCI was quadriplegic. C456 fusion
@@DD-iq8tq yes, everyone responds differently. For me, Lyrica turns down the horrible burning pain. Makes me a little sleepy. That is the only noticeable side effect. It was either suicide or take medications. There was no living with nerve pain up and down both my legs 24./7
@@happytrails699 glad it worked for u. I was in unbearable pain i still have it esp lying down was unbearable in hospital. But yeah ive taught my nerves to turn it off a bit these yrs 😁.
I had severe neuropathic pain in my feet for years due to CMT. My doctor injected botox through out my feet and for the first time in decades my pain is completely gone for over a year.
Cheers for the Video clip! Sorry for butting in, I am interested in your opinion. Have you heard the talk about - Taparton Sturdy Nerves Takeover (google it)? It is an awesome one of a kind product for Getting rid of Neuropathy without the hard work. Ive heard some super things about it and my cousin at very last got cool results with it.
This sounds so wonderful..how can l find out more on this treatment?
Thank you very much for sharing your knowledge ,I am a para as a result of chemo and back surgery . I've been taking gabapentin for about 6 months and have bad neuropathy. Your info is very helpful.
Even when the cause of nerve death is determined early the pain of neuropathy can only be reduced or eliminated leaving numbness that is permanent. Treating a damage nerve by surgery is like treating a broken leg by amputation.
Very informative and interesting. I wish I could see you and get your take on my ongoing issues with PN. Been through many of the treatments you discussed. Thank you for your post!
Lovely Video clip! Excuse me for chiming in, I would appreciate your thoughts. Have you heard about - Taparton Sturdy Nerves Takeover (Have a quick look on google cant remember the place now)? It is an awesome one off product for Getting rid of Neuropathy minus the normal expense. Ive heard some decent things about it and my friend after a lifetime of fighting got cool results with it.
Very informative video. Gave me some hope, but after 20 years of footdrop...however, the neuropathy in both feet ìs new. Sounded like you were describing me. Thank you for making this video.
Know anyone like you around Houston? 😉
@@jonnavalley5471 has
We made good experiences in treating PNP legs with Cayenne pepper foot baths (1 spoon per bath, 15 minutes once a day), vibration treatment (vibrax/ magnetfield+vibration in low tone), foot-/legmassage, including the fascias. Also stretching the muscles to take pressure of muscles on nerves away
If Cayenne pepper treatment doesn't help you could try magnesium baths.
Using Cayenne pepper the skin shouldn't be damaged and you should clean your feet after bathing, otherwise it might cause skin irritation.
@@RoSario-vb8ge
WHERE ARE YOU??
Please help me save my life
All these drs wanna give prescriptions!
I was like this a year after lifting.
Please help me I’m too young for this give me my life back!
WHERE ARE YOU??🙏🏻
I've been hydrating myself over the last two days and my ankles and feet swelling has diminished and so has the nerve pain and tugging at the top of my foot. I believe excess glucose is causing dehydration and swelling and compressing the foot nerves. I've never been a big water drinker and I'm about to start.
Everything you've said I do have PN AND EURYTHMALGIA and red hot hands are feet..tegratol and amytripaline..constant pain
I'm so sorry :(
By the way, 6 months after my 2017 THR, my left hip, leg and incision area didn't feel right, had pain and soreness, incision area at times felt like a tearing pain.. like the incisive area was being pulled apart. Surgeon said the components seemed fine.. Pain Management said, I have Complex Regional Pain Syndrome with no cure to deal with it. Interestingly enough, this year I read an old MRI from the THR.. and it stated, "a bulk of my Piriformis was removed." Since when is this removal, part of the THR procedure?
The reason why I had the THR is bc, I was diagnosed with AVN.. One doctor said RARE for my age, I don't use Steroids or drink Alcohol.. just Folgers. My fall reactivated my pain with my THR, and did something to my whole hip, sacrum and pelvic area and no one can figure it out with all the technology we have.. but I think you do.
Thank you for this really enlightening explanation. I would like to know if PN caused by chemical toxicity years ago (15-20) ago causes any type of swelling that would cause impingement of nerves ?
I am suffering. Toes on fire when I lay down. Not all the time. But when it kicks in. Yamma Hamma pain. High sugar. Other than this great health. No other symptoms.