All About the Biggest ME/CFS Study EVER! | We Need You!
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- Опубликовано: 13 июл 2024
- All About the Biggest ME/CFS Study EVER! | We Need You!
www.decodeme.org.uk - info below!
Take part in DecodeME, the world’s biggest ME/CFS study!
It will collect information from tens of thousands of people with ME/CFS and analyse DNA to see whether the disease is partly genetic and if so, help pinpoint what causes it - which is the path to finding treatments.
The first step is to take the DecodeME questionnaire and then you may also be asked to provide a saliva sample. Both can be done from your home.
Your experience matters.
You can take part at www.decodeme.org.uk/portal.
I hope they do a similar study in the US soon. I was disappointed when I heard that the study was only in the UK.
I hope so too! Disappointing the US hasn’t done it already 😞
I hope this comment helps boost this video! We desperately need more research on ME/CFS
Thank you!! Engagement like ‘liking’ and commenting does help, so this should, in theory, help a lot! Thanks so much ☺️
Love you Georgina, best wishes to you from Minnesota
Same to you! ☺️☺️
I hope Japan follows the same study😢
This happening in the UK is a big help for the rest of the world. Thank you UK for moving a step forward with this! Thank you to all of you who are involved in this in the UK🎉
Bless you, thank you 💕 you’re absolutely right ☺️
Link to sign up! www.decodeme.org.uk
I wish I was living in the uk, as I would have been more than happy to take part! Oh well, never mind I hope that you will give us all an update of the results of the study when they eventually come out!
And thank you for making this video, I had been wondering how you were doing, and I would rather see you in your pyjamas with or without a filter than wonder if you're sufficiently ok!
I spend most of my life in pyjama mode so I totally get it and relate!
I hope more countries follow suit soon 🤞🏽🤞🏽 or that the U.K. study can expand or something 🤞🏽 Judith, that means so much to me, thank you ☺️ I was nervous about posting like this, so that really means a lot 😊 I often find myself wondering how you are too
Love you Georgina!!❤❤❤
Lots of love to you too, Susan!
Big hugs as always!
Thank you ☺️☺️☺️
Hope this comment helps the algorithm. I am not diagnosed with either and I am in the USA.
Thank you so much!!
Hugs from Sissy ❤
☺️☺️☺️ thank you! 🫶🏽🫶🏽
I don't live in the UK so unfortunately can't take part in this but just gonna leave a comment to give this video a boost for the algorithm
Thank you so much!
Absolutely no problem ☺️
I did mine a while back. 😊 I was only chosen second time round!
Ah well done!! I’m really hoping to be well enough to post mine sometime in the next 2 weeks 🤞🏽
(& do it, I’ve not done it as I think it needs to be done & posted on the same day)
Please pardon me if i sound too forward. Your braids are super cute! So pretty! ❤ It is so hard for a male to give a complimment, lol!
Thank you so much!!
@@GeorginasJourneyur cfs improve some in those years