24:00 My orthostatic intolerance symptoms are much worse in the mornings too. What I can do in terms of exercise in the evening, I can't in the morning. I wanted to say a thing about the cold showers. Be careful with taking them in the evening, as they increase body temperature (yes, that's our body's reaction to cold showers), and that can worsen the quality of your sleep. I do my cold showers (for 2 minutes, after taking a warm shower) in the morning.
Thank you so much for this video! my roommate is dealing with chronic fatigue and she doesn’t know what to do and feels hopeless. I will be recommending Jo’s Coaching. 🥰🥰
I’ve had pots for 12 years. I tried Ivabradine at a very small dose and had great results for 6 months in 2020. I had to stop taking it for a couple weeks due to getting a tilt test. When I went back on it at the same dose, it ended up lowering my heart rate so much that I couldn’t get out of bed. Like all meds, it works great for some people and not for others. Just wanted to share my story on that. The only thing that helps my pots is cooler weather (I moved from south FL to north FL and will be moving even further north to NC next year) and keeping my stress low as much as possible (very tough with my job plus just the general state of the world).
Thanks so much for sharing your experience! Much appreciated. Aye, yes people can react to meds differently, and also each individual over time. Sending my support!
Thank you both - Really appreciate your insight Jo - how long did you take the ivabradine for and have your pots completely resolved now or do you still need to be careful? Like can you exercise now?
Excellent information, took lots of notes, and thank you for such great advice. Am interested to know, when one is in the health care industry, and often all day the patients or clients tell negative stories, sad and depressing stories, day in and out, how do you deal or handle that-how do you detach and not allow the sadness and negativity you listen to all day, conflict or affect your own life? how do you let it go? I have often wondered about this. Even when one has family issues or a relative with problems, or perhaps a few friends that have problems and you become their "listening ear", how do you keep it from affecting your emotions and energy? To me it is absolutely draining. I have thought of becoming a coach or counselor because I jokingly say-I should at least be getting paid because so many people have problems, my phone goes off every day, & they just need or want someone to hear them. Understandably, yet youd think they might reciprocate with a "And how are you? Tell me whats going on?" haha~ At least if you are a nurse or health provider you get paid for listening and/or helping. I really Don't meant to sound cold, but It does seem to be epidemic-so many want to tell their health issues and problems then dont want advice or just need someone to dump on then they're done-til the next few days or week! Anyone else deal with this?
Thanks for your comment Jules. Aye. Most of my friends who work in health care get emotional dumps on the regular (besides all the health trauma they help people through). Can't speak for lovely Jo, but wanted to chime in here. On my upward trajectory out of CFS, I actually emailed all my friends and family saying that I only wanted to talk about positive topics and not talk about anything health related -- either their issues or asking about mine. (It was the recommendation on a neural retraining program I did, it actually provided a template.) And I issued multiple verbal reminders. And if they did start talking about their health or drama, I'd say, hey just a friendly reminder I'm focusing on positive topics to support my nervous system an health recovery. You can clarify this includes talking about crime, their/other people's health issues, etc. Own it. Some Will get upset and tell you it's wrong. Stand firm, and tell them again Why (without getting into your own issues). Trust that the right people will come back to you. Also tell them "I really care about you. If you need me to support you just say "I need support" and I can give you that support without getting into the story and details. And then send your friend who says "I need support" a uplifting cute card (rewarding them for following the way you want to communicate, and showing them love in a happy way). Without you having to hear the details of the drama/health issues. Just some ideas to get out of the RESUCER-VICTIM cycle, and support a sustainable, happy life.
Sorry,but I don’t see c.f.s. ,as a symptom,of pots,having have / had both! More the opposite!Mindset ,mmmmm,not that easy,but,thank you ,for this thought inspiring interview, Liz, you’re so good, and loving!
28:59 So important! "Having a good mindset makes all the difference to your health".
24:00 My orthostatic intolerance symptoms are much worse in the mornings too. What I can do in terms of exercise in the evening, I can't in the morning.
I wanted to say a thing about the cold showers. Be careful with taking them in the evening, as they increase body temperature (yes, that's our body's reaction to cold showers), and that can worsen the quality of your sleep. I do my cold showers (for 2 minutes, after taking a warm shower) in the morning.
Thanks for sharing, helpful insights!
39:16 “unnecessary negative energy to keep thinking about that failure” YES huge profound statement. How do you get around it?
Thank you so much for this video! my roommate is dealing with chronic fatigue and she doesn’t know what to do and feels hopeless. I will be recommending Jo’s Coaching. 🥰🥰
I’ve had pots for 12 years. I tried Ivabradine at a very small dose and had great results for 6 months in 2020. I had to stop taking it for a couple weeks due to getting a tilt test. When I went back on it at the same dose, it ended up lowering my heart rate so much that I couldn’t get out of bed. Like all meds, it works great for some people and not for others. Just wanted to share my story on that. The only thing that helps my pots is cooler weather (I moved from south FL to north FL and will be moving even further north to NC next year) and keeping my stress low as much as possible (very tough with my job plus just the general state of the world).
Thanks so much for sharing your experience! Much appreciated. Aye, yes people can react to meds differently, and also each individual over time. Sending my support!
How is ur pots now
Always great Liz! Thanks for your huge contribution to the cause ♥️♥️♥️ Thanks Jo for sharing 👏
Lots of good takeaway! Thank you both for giving so much of yourselves to help others!
Thanks Tammy!!
It took me 6 years for a diagnosis!
Thank you both - Really appreciate your insight Jo - how long did you take the ivabradine for and have your pots completely resolved now or do you still need to be careful? Like can you exercise now?
Excellent information, took lots of notes, and thank you for such great advice. Am interested to know, when one is in the health care industry, and often all day the patients or clients tell negative stories, sad and depressing stories, day in and out, how do you deal or handle that-how do you detach and not allow the sadness and negativity you listen to all day, conflict or affect your own life? how do you let it go? I have often wondered about this. Even when one has family issues or a relative with problems, or perhaps a few friends that have problems and you become their "listening ear", how do you keep it from affecting your emotions and energy? To me it is absolutely draining. I have thought of becoming a coach or counselor because I jokingly say-I should at least be getting paid because so many people have problems, my phone goes off every day, & they just need or want someone to hear them. Understandably, yet youd think they might reciprocate with a "And how are you? Tell me whats going on?" haha~ At least if you are a nurse or health provider you get paid for listening and/or helping. I really Don't meant to sound cold, but It does seem to be epidemic-so many want to tell their health issues and problems then dont want advice or just need someone to dump on then they're done-til the next few days or week! Anyone else deal with this?
Thanks for your comment Jules. Aye. Most of my friends who work in health care get emotional dumps on the regular (besides all the health trauma they help people through). Can't speak for lovely Jo, but wanted to chime in here. On my upward trajectory out of CFS, I actually emailed all my friends and family saying that I only wanted to talk about positive topics and not talk about anything health related -- either their issues or asking about mine. (It was the recommendation on a neural retraining program I did, it actually provided a template.) And I issued multiple verbal reminders. And if they did start talking about their health or drama, I'd say, hey just a friendly reminder I'm focusing on positive topics to support my nervous system an health recovery. You can clarify this includes talking about crime, their/other people's health issues, etc. Own it. Some Will get upset and tell you it's wrong. Stand firm, and tell them again Why (without getting into your own issues). Trust that the right people will come back to you. Also tell them "I really care about you. If you need me to support you just say "I need support" and I can give you that support without getting into the story and details. And then send your friend who says "I need support" a uplifting cute card (rewarding them for following the way you want to communicate, and showing them love in a happy way). Without you having to hear the details of the drama/health issues. Just some ideas to get out of the RESUCER-VICTIM cycle, and support a sustainable, happy life.
One question - what to do if you are on Psychotropic medication, can we fix the side effects through mind?
Sorry,but I don’t see c.f.s. ,as a symptom,of pots,having have / had both! More the opposite!Mindset ,mmmmm,not that easy,but,thank you ,for this thought inspiring interview, Liz, you’re so good, and loving!
Aw thank you Andrew.
@@HealwithLizpeople with this mindset are the people that never recover