I was told I probably had FH since my LDL is 210 making my total over 300. It has been for 15+ years. I have always lived a healthy lifestyle = daily exercise, clean diet, low-weight, etc., etc., etc. My HDL is good, and my triglycerides, too. I also took a CS test and it was 1. I have one eyelid issue, too. My eye doctor said it's nothing. My GP sent me to a cardiologist who also recommended statins, and admitted that everything else in my blood was positive and that the risk of an "event" was quite low. So why should I bother with statins, I thought. They both recommend statins, but after 15 years, I still do not want them. I do not take any other medication. I am 69 and still doing well and will continue taking the risk of not taking statins. I don't know about my parents as they've both passed, but I don't remember high chol. being an issue. I know my grandmother had a stroke very early in her life, perhaps 58, not sure. She died a few years later.
Thanks for sharing your story. I have just taken more specific tests such as LDL fractionation (which came out pattern A, another good marker.) Like you, I'm accepting the risk.
Statins lose their efficacy above 65 anyway as your risk of dying from infections, cancer and type 2 diabetes increases on statins. Congratulations, you made it over the hump 🎉
my LDL is 196, overall cholesterol 293. also healthy lifestyle, good HDL and Triglyceride. im still deciding whether i need statin, so im soaking up on the information i can get online.
C is your answer. Everyone I know that has high cholesterol is just told they have high cholesterol. I’m the only person (other than my siblings) I know that has ever been told (for almost 40 years now) that I have something considered rare (HeFH) because I have had cholesterol as high as 600 since age 21 although my BMI is borderline underweight.
I was told I had HeFH since my LDL was 238 and I have a xanthelasma under my eyelid. I reduced saturated fat and increased fiber and in 3 months my LDL was 77.
Not that I'm a geneticist or anything but seems to me that you beat the conventional wisdom that says you can't "fix" FH on your own. Maybe it went away entirely. 🙂
@@mystatinfreelifeI was shocked it dropped so much through diet alone. The only food I dropped entirely were eggs, but I was only eating 3 of them per day. I still eat beef daily just in smaller amounts than before. I added steel cut oats and salmon.
Sounds like a wrong diagnosis. If you made the changes you did and were able to change your numbers like that, I seriously bdoubt you have FH, or at least not the type I have, which does not respond at all to lifestyle changes.
we are in almost the same situation. i've had high LDL for a few years now, and i religiously eat at least 3 eggs a day. i'm not sure if that's actually what caused it. but all doctors tell me to take statin because this is "genetics" and changing my diet wont matter much. i will try dumping my egg consumption for a while and see if it helps.
@@monikasea that seems a bit low to call for statins, even by conventional medical standards. According to the Cleveland clinic, normal levels are 60-117 mg/dL for women and 66-133 for men. Just a data point.
I was told I probably had FH since my LDL is 210 making my total over 300. It has been for 15+ years. I have always lived a healthy lifestyle = daily exercise, clean diet, low-weight, etc., etc., etc. My HDL is good, and my triglycerides, too. I also took a CS test and it was 1. I have one eyelid issue, too. My eye doctor said it's nothing. My GP sent me to a cardiologist who also recommended statins, and admitted that everything else in my blood was positive and that the risk of an "event" was quite low. So why should I bother with statins, I thought.
They both recommend statins, but after 15 years, I still do not want them. I do not take any other medication. I am 69 and still doing well and will continue taking the risk of not taking statins. I don't know about my parents as they've both passed, but I don't remember high chol. being an issue. I know my grandmother had a stroke very early in her life, perhaps 58, not sure. She died a few years later.
Thanks for sharing your story. I have just taken more specific tests such as LDL fractionation (which came out pattern A, another good marker.) Like you, I'm accepting the risk.
Statins lose their efficacy above 65 anyway as your risk of dying from infections, cancer and type 2 diabetes increases on statins. Congratulations, you made it over the hump 🎉
my LDL is 196, overall cholesterol 293. also healthy lifestyle, good HDL and Triglyceride. im still deciding whether i need statin, so im soaking up on the information i can get online.
C is your answer.
Everyone I know that has high cholesterol is just told they have high cholesterol. I’m the only person (other than my siblings) I know that has ever been told (for almost 40 years now) that I have something considered rare (HeFH) because I have had cholesterol as high as 600 since age 21 although my BMI is borderline underweight.
After all these years, that may be the case. Thanks for sharing your story.
I was told I had HeFH since my LDL was 238 and I have a xanthelasma under my eyelid.
I reduced saturated fat and increased fiber and in 3 months my LDL was 77.
Not that I'm a geneticist or anything but seems to me that you beat the conventional wisdom that says you can't "fix" FH on your own. Maybe it went away entirely. 🙂
@@mystatinfreelifeI was shocked it dropped so much through diet alone. The only food I dropped entirely were eggs, but I was only eating 3 of them per day. I still eat beef daily just in smaller amounts than before. I added steel cut oats and salmon.
Sounds like a wrong diagnosis. If you made the changes you did and were able to change your numbers like that, I seriously bdoubt you have FH, or at least not the type I have, which does not respond at all to lifestyle changes.
we are in almost the same situation. i've had high LDL for a few years now, and i religiously eat at least 3 eggs a day. i'm not sure if that's actually what caused it. but all doctors tell me to take statin because this is "genetics" and changing my diet wont matter much. i will try dumping my egg consumption for a while and see if it helps.
Im 48 and on statins because my ApoB is 116
@@monikasea that seems a bit low to call for statins, even by conventional medical standards. According to the Cleveland clinic, normal levels are 60-117 mg/dL for women and 66-133 for men. Just a data point.