This is so true... my daughter has M.E which was triggered by glandular fever when she was 12. Before this she was in top sets for nearly every subject, she was on every sports team, was a dancer and scouted for netball. Due to how severe her illness was she ended up missing so much school she didn't get any GCSE's and couldn't do any of the things she used to. She's 17 now and at college starting with level 1 but it took so many years to get a handle on it. People don't realise what a huge effect it has on everything in your life...
Thank you Miranda you have said it as it is!! Having ME CFS Fibromyalgia and chronic Menieres Disease myself it has been dreadful and now watching my daughter with the same conditions just breaks my heart. We use humour as much as we can as this lifts your spirits xx
Thank you Miranda, not just because you are highlighting how we feel and validate our feelings. You are also reminding us how much adjusting we do in our every day lives. We should be our own heroes. I have had ME/CFS for 23 years and although I am more mobile and active now it is incremental and still not ‘normal’. I take it for granted that i am going to have to weigh up every day whether to do x or y because both are not possible, knowing that some days not even that choice is available. It is isolating and lonely and learning to be a loving support for ourselves is vital. Then someone like you comes along and offers this rare and beautiful gift of insight and it’s like a huge sigh of relief. We are seen and validated! That’s huge! ❤️❤️❤️
Invisible illnesses are often ignored as they are unseen. Lockdown didn't affect me as I was already isolated. I was a highly functioning person before my chronic pain totally took over. It's best not to have any future plans. I take pleasure in nature. I begged the pain team for a tea group, but was ignored. The medical system refuse to acknowledge us.....so society needs to recognize chronic illness first. Only then will we be less stressed, anxious and depressed and embraced as ourselves. Love you Miranda. Jo, kiwi gal.
Jo your words touched me. You are brave. I cannot imagine what your day looks like. Take care. I went two weeks ago and gathered my best Friend from her home to come with me to my beach house for several months. Her and I walk the ocean beach twice daily. I love to cook and we both love to eat. I was a complete imbecile not to realise how much she was hurting. I am ashamed that it did not occur to me that she was in so much pain after the end of her marriage. I sat outside her door for 9 hours; I had a pillow and blanket and cookies I just stayed until she opened the door. We were talking through the door and I wrote notes and pushed cookies with the notes wrapped up. Jo thank you for making a space for me to talk about my best friend. Australia
Thank you for your videos. I have rheumatoid arthritis. A chronic autoimmune disease. I’m 43 now and have been housebound for most of the past two years. I was diagnosed when I was 2 years of age. But I’m experiencing a major flare and live with constant pain and crippling fatigue. These clips help a lot. Bless you. From Australia 🙏❤️
For the last 2/3 decades I’ve been ill, fibromyalgia. Started with my many health issues including operations. Some day’s us chronic illness peeps look fine after much rest & planning. Most of the time it’s pure struggling & we suffer. I’ve missed out on so much & so have loved one’s because I cannot keep up! Thank you for this video, my son has stayed because of traumatic time’s I’ve had. He’s said omg I seriously didn’t realise how ill you are, I hide it well.
Thank you Miranda for posting this. Bought a tear... as a childhood cancer survivor, I've never known anything other than managing chronic illnesses. I completely empathise 💗
It’s so refreshing to see this. I have POTS, Ehlers-Danlos Syndrome, Fibromyalgia and Endometriosis and humour and smiling every day are my only way through it xx
Miranda, I sure hope you don't personally have a chronic illness. I don't wish that sort of thing on anyone, especially people I love (like you). I've written to you about my own chronic fun stuff on your "future" daily ramblings videos on your official YT channel. This video, Dear Hart (see what I did there? Briliant, wasn't it! Such fun!) is absolutely eloquent and nails chronic illness right to the wall. Bless your sweet Hart! --RoseMarie
Miranda, thank you for explaining so many peoples lives, mine included, I've lived this way for almost half my lifetime., I'm now in my late 60's. I wish you peace, take every day and night as it comes...some days you win..try and hold on to those precious days, you are not alone. Much love 💕
Thank you so much for this topic. I've been housebound for 20 years with 'friend's' disappearing after the first few months. I'm British, living in South Africa with no medical help. I've tried to get back to be on the NHS. Then the virus hit everyone. So what you are saying has given me hope. You are the kindest person . Your 'Miranda' tv shows are still being shown in South Africa and cheer me up no end. Love to you. Amanda. xXxX
Thank you so much. I have fibromyalgia and it’s just bloody awful. There is no cure and it’s completely unpredictable. Thanks for bringing attention to this issue. You do get it. Stay safe and well. Hello from Australia.
Miranda, you show so much compassion toward yourself and others who are struggling,my heart breaks open. Yes, you get it. Love you. Big warm hug to all of you out there.🐌❤️
Thank you so much, someone who understands at last! I have Rheumatoid arthritis, before this I was happy, kept fit and walked almost everywhere, then was struck down by RA, everything in my life changed, its the opposite now! most people don't get it or even believe there's anything wrong! So thank you again! You're a wonderful lady x
An American Miranda super-fan and chronic pain sufferer chiming in. I owe Miranda so much, maybe even my life. When my brother took his own life i thought I'd never smile or laugh again. Then one day I was scrolling through the tv trying to numb, always trying to numb that pain, when I ran across our beautiful princess of clumsy, irrational thinking, damn hilarious, Miranda. I smiled, I laughed, I busted a gut. I knew then that my brother would be sitting beside me doing the same and that I would be okay. I've told people that story for years now, how a British comedian saved me. Now I can share that you not only saved me but you've seen this mass of disease, pain, desire for a fulfilled and happy life and you've held my hand for a brief moment in time. I thank you with every bit of my being for yet again being a part of my healing. You will forever be my hero!
I hear you Miranda. Changing our perspective on illness and the isolation people suffer in silence could be a start in ridding the world of the virus. Lovely to see you 🌹🌹🌹
I think you absolutely nailed this Miranda, thank you. Most chronic health problems are invisible and that makes it hard for others to understand too but yes..to all of it. I went from being an active busy person to having to take an hour to get out of bed in the morning, chronic pain is truly awful. My biggest frustration is not being able to do everything I want anymore, to having to weigh the consequences of doing something to the response I'll get from my hands/arms, feet and back for days sometimes weeks.
I am lucky because my daughter also has chronic disabilities so we talk about the emotional and mental toll that has on you and how little people understand. Because people forget you have issues they become frustrated and annoyed that you are still in pain. They want you get over it but you can’t!
No, no end date, doctors ignore you, and if you're poor, doctors refuse to believe you have such a diagnosis. One thing that would help me, my current doctor ignores, despite me bringing articles from New England Jounal of Medicine, etc.
Thank you Miranda! I have had a chronic illness for the past 15 years that has made me lose my job and friends. Even my family didn’t deal with it well. This neurological disorder has left me with acute chronic pain. Not a lot of people believed me. I still have close family members that don’t really believe that I’m in as much pain as I say and straight up has no compassion. So again thank you so much for caring!
The fatigue is the worse thing. Getting people to realise that you are more than tired! Today is a bad day. I need to be in bed and that's it! The daily disappointment is real. Lockdown has levelled the playing field for a while and definitely reduced FOMO. Also many people are either financial problems that not being able to work brings, as well as the loss of identity. Much like one of your Miranda episodes you feel like the one member of the family who has nothing to introduce themselves as. Thank you for understanding and getting the messages out. X
Anxiety is a condition that can be debilitating. Anxiety attacks are serious reactions for some people and can affect your heart. And they can happen daily.
The Long Haulers - the name given to those that had C-19 - but now suffer symptoms similar to ME/CFS. Congress this week - has passed 1.15 Billion for research. It's a priority down under - European - UK largest genetic into Chronic Fatigue. This is exciting - but I also feel angry - where have they been until now. Jo New Zealand (P.S. Luv you)
Thank you so much Miranda Hart, this made me cry, considerably, for the last twenty years which were mostly “locked down” thanks to a handful of the conditions you name. I can see that you understand and my heart goes out to you and whatever private suffering you have been facing ❤️❤️❤️. For myself, I am not promoting anyone or anything here, But I always like to share any little glimpses of hope I find along the way with others who might benefit. The Gupta Program is one such glimpse and, although it’s early days for me, I would say if you’re reading this, however many pills you may be swallowing and however hopeless (or even hopeful!), you may feel right now, if you can relate to what Miranda says, check it out, see if it’s for you... Whatever path you choose, dear fellow warrior, I wish you all the best and brightest of hopeful moments today. And many thanks again Miranda, you are a brave and beautiful woman and everyone in our tribe thinks you rock! 😊❤️🙋♀️🤩 🙏🏻
I have EUPD, Bipolar and am on the Autistic Spectrum. Am also currently waiting for an ADHD diagnosis too. I get so fatigued mentally and physically that it's often hard to go on.
I used to be housebound with chronic illness. Then, through hard work of regular aquaphysio I got mobility back and a normal life for 6yrs. Then, due to uk gov taking away human rights, in 2020, with no permission to use swimming pool for 7 months out of past 12, I am now crippled and housebound again. I’ve lost everything, including hope. My government, people, not illness, did this to me. They want me and all Disabled people dead 😔
Thank u miranda it all so true. Before my EDS got bad, i despratly wanted to be a midwife and had started ny health care assistance course at the hospital now i cant and i morn it and cry all so often iam 35 and cant work , it hurts. By the way have EDS my fav joke is my Joints go out more than me!!! 🤣🤣🤣 (EDS patients can dislocate joints lol) xx
I have live with this most of my life and other very bad illness with it .l do have two great family people who do under staned and surport and help and one Relishon.in fiserble most peple think and think you are mentley ill .l have two letters to prove l have two with out the rest.l did one time think of stiking it on my forhead .l have a great sens of yomer and a strong will .That and the one'S Who love me .To the rest That's there lose.I am so posertive , careing and a very honest ladey .I Thank you for your talk .very well put.👌❤
Nervous system dysregulation cripples the immune system. Show me a person with chronic pain and I’ll show you a person who's been lugging emotional trauma of some kind around for their whole lives…
I remember Mum always saying, "If you have a broken leg or arm people can see it, but it is the 'hidden' pain that no one sees"
You have such an understanding of chronic illness Miranda. Well done for posting this xx
Miranda kind deeds change lives. The universe was showing off when you were made.
This is so true... my daughter has M.E which was triggered by glandular fever when she was 12. Before this she was in top sets for nearly every subject, she was on every sports team, was a dancer and scouted for netball. Due to how severe her illness was she ended up missing so much school she didn't get any GCSE's and couldn't do any of the things she used to. She's 17 now and at college starting with level 1 but it took so many years to get a handle on it. People don't realise what a huge effect it has on everything in your life...
Thank you Miranda you have said it as it is!! Having ME CFS Fibromyalgia and chronic Menieres Disease myself it has been dreadful and now watching my daughter with the same conditions just breaks my heart. We use humour as much as we can as this lifts your spirits xx
Thank you Miranda, not just because you are highlighting how we feel and validate our feelings. You are also reminding us how much adjusting we do in our every day lives. We should be our own heroes. I have had ME/CFS for 23 years and although I am more mobile and active now it is incremental and still not ‘normal’. I take it for granted that i am going to have to weigh up every day whether to do x or y because both are not possible, knowing that some days not even that choice is available. It is isolating and lonely and learning to be a loving support for ourselves is vital. Then someone like you comes along and offers this rare and beautiful gift of insight and it’s like a huge sigh of relief. We are seen and validated! That’s huge! ❤️❤️❤️
Invisible illnesses are often ignored as they are unseen. Lockdown didn't affect me as I was already isolated. I was a highly functioning person before my chronic pain totally took over. It's best not to have any future plans. I take pleasure in nature. I begged the pain team for a tea group, but was ignored. The medical system refuse to acknowledge us.....so society needs to recognize chronic illness first. Only then will we be less stressed, anxious and depressed and embraced as ourselves. Love you Miranda. Jo, kiwi gal.
Jo your words touched me. You are brave. I cannot imagine what your day looks like. Take care. I went two weeks ago and gathered my best Friend from her home to come with me to my beach house for several months. Her and I walk the ocean beach twice daily. I love to cook and we both love to eat. I was a complete imbecile not to realise how much she was hurting. I am ashamed that it did not occur to me that she was in so much pain after the end of her marriage.
I sat outside her door for 9 hours; I had a pillow and blanket and cookies I just stayed until she opened the door. We were talking through the door and I wrote notes and pushed cookies with the notes wrapped up.
Jo thank you for making a space for me to talk about my best friend.
Australia
Lockdown is our normal. I can't be the only one to have though "Welcome to my world." when all this began last year!
My hero. The fact that she actually mentions ME/CFS is priceless!! 💜
Thank you for your videos. I have rheumatoid arthritis. A chronic autoimmune disease. I’m 43 now and have been housebound for most of the past two years. I was diagnosed when I was 2 years of age. But I’m experiencing a major flare and live with constant pain and crippling fatigue. These clips help a lot. Bless you. From Australia 🙏❤️
For the last 2/3 decades I’ve been ill, fibromyalgia. Started with my many health issues including operations. Some day’s us chronic illness peeps look fine after much rest & planning. Most of the time it’s pure struggling & we suffer. I’ve missed out on so much & so have loved one’s because I cannot keep up! Thank you for this video, my son has stayed because of traumatic time’s I’ve had. He’s said omg I seriously didn’t realise how ill you are, I hide it well.
I'm 5 months late to this video but wow! kudos to you Miranda in highlighting chronic illnesses.
Check out her Instagram page. She's done loads more.
Couldn’t have said it better myself ❤️
Thank you Miranda for posting this. Bought a tear... as a childhood cancer survivor, I've never known anything other than managing chronic illnesses. I completely empathise 💗
It’s so refreshing to see this. I have POTS, Ehlers-Danlos Syndrome, Fibromyalgia and Endometriosis and humour and smiling every day are my only way through it xx
More people need to see this. This is such an important message!!!!!!!
Miranda, I sure hope you don't personally have a chronic illness. I don't wish that sort of thing on anyone, especially people I love (like you). I've written to you about my own chronic fun stuff on your "future" daily ramblings videos on your official YT channel. This video, Dear Hart (see what I did there? Briliant, wasn't it! Such fun!) is absolutely eloquent and nails chronic illness right to the wall. Bless your sweet Hart! --RoseMarie
Miranda, thank you for explaining so many peoples lives, mine included, I've lived this way for almost half my lifetime., I'm now in my late 60's.
I wish you peace, take every day and night as it comes...some days you win..try and hold on to those precious days, you are not alone. Much love 💕
Love everything about you Miranda, stay safe in these difficult times.❤️
Thank you so much for this topic. I've been housebound for 20 years with 'friend's' disappearing after the first few months. I'm British, living in South Africa with no medical help. I've tried to get back to be on the NHS. Then the virus hit everyone. So what you are saying has given me hope. You are the kindest person . Your 'Miranda' tv shows are still being shown in South Africa and cheer me up no end. Love to you. Amanda. xXxX
The understanding and kindness shown by Miranda has touched me greatly ....I feel that I am being validated for the first time
Thank you so much. I have fibromyalgia and it’s just bloody awful. There is no cure and it’s completely unpredictable. Thanks for bringing attention to this issue. You do get it. Stay safe and well. Hello from Australia.
Miranda, you show so much compassion toward yourself and others who are struggling,my heart breaks open. Yes, you get it. Love you.
Big warm hug to all of you out there.🐌❤️
Thank you so much, someone who understands at last!
I have Rheumatoid arthritis, before this I was happy, kept fit and walked almost everywhere, then was struck down by RA, everything in my life changed, its the opposite now! most people don't get it or even believe there's anything wrong!
So thank you again!
You're a wonderful lady x
An American Miranda super-fan and chronic pain sufferer chiming in. I owe Miranda so much, maybe even my life. When my brother took his own life i thought I'd never smile or laugh again. Then one day I was scrolling through the tv trying to numb, always trying to numb that pain, when I ran across our beautiful princess of clumsy, irrational thinking, damn hilarious, Miranda. I smiled, I laughed, I busted a gut. I knew then that my brother would be sitting beside me doing the same and that I would be okay. I've told people that story for years now, how a British comedian saved me. Now I can share that you not only saved me but you've seen this mass of disease, pain, desire for a fulfilled and happy life and you've held my hand for a brief moment in time. I thank you with every bit of my being for yet again being a part of my healing. You will forever be my hero!
Sending love from across the pond.
I hear you Miranda. Changing our perspective on illness and the isolation people suffer in silence could be a start in ridding the world of the virus. Lovely to see you 🌹🌹🌹
I think you absolutely nailed this Miranda, thank you. Most chronic health problems are invisible and that makes it hard for others to understand too but yes..to all of it. I went from being an active busy person to having to take an hour to get out of bed in the morning, chronic pain is truly awful. My biggest frustration is not being able to do everything I want anymore, to having to weigh the consequences of doing something to the response I'll get from my hands/arms, feet and back for days sometimes weeks.
I am lucky because my daughter also has chronic disabilities so we talk about the emotional and mental toll that has on you and how little people understand. Because people forget you have issues they become frustrated and annoyed that you are still in pain. They want you get over it but you can’t!
No, no end date, doctors ignore you, and if you're poor, doctors refuse to believe you have such a diagnosis. One thing that would help me, my current doctor ignores, despite me bringing articles from New England Jounal of Medicine, etc.
Thank you Miranda! I have had a chronic illness for the past 15 years that has made me lose my job and friends. Even my family didn’t deal with it well. This neurological disorder has left me with acute chronic pain. Not a lot of people believed me. I still have close family members that don’t really believe that I’m in as much pain as I say and straight up has no compassion. So again thank you so much for caring!
I have missed you so much in Call the Midwife!
Fibromyalgia and ME here. Diagnosed years ago. I just keep chugging along and enjoy life as much as possible. Good days..bad days.
Thank you so much for this video. You have put into words what many of us have felt for so long. Xx
She really does get it.
I just want to say: Thanks for this💜 (wipes tears because is finally understood)
Thank You Lovely Lady 🙏 Life isn’t easy living this way . It’s a tough way to exist xxx
The fatigue is the worse thing. Getting people to realise that you are more than tired! Today is a bad day. I need to be in bed and that's it! The daily disappointment is real. Lockdown has levelled the playing field for a while and definitely reduced FOMO. Also many people are either financial problems that not being able to work brings, as well as the loss of identity. Much like one of your Miranda episodes you feel like the one member of the family who has nothing to introduce themselves as. Thank you for understanding and getting the messages out. X
thank you Miranda for your understanding and helping others to understand too xx
Thank you, Miranda. Lockdown just showed others how we live alone, isolated with chronic illness.
Anxiety is a condition that can be debilitating. Anxiety attacks are serious reactions for some people and can affect your heart. And they can happen daily.
I so enjoy your talent and my favorite is Chummy, you made Call the Midwife so special.
I’ve also found people have started avoiding me 😢😢
Try not to take it personally. It's those people that have the problem, and not you. Unfortunately it's just human nature that they don't understand.
The Long Haulers - the name given to those that had C-19 - but now suffer symptoms similar to ME/CFS.
Congress this week - has passed 1.15 Billion for research. It's a priority down under - European - UK largest genetic into Chronic Fatigue.
This is exciting - but I also feel angry - where have they been until now. Jo New Zealand (P.S. Luv you)
How did you so well understand how it is: M.E.
Thank you!! ❤️
Thank you so much Miranda Hart, this made me cry, considerably, for the last twenty years which were mostly “locked down” thanks to a handful of the conditions you name. I can see that you understand and my heart goes out to you and whatever private suffering you have been facing ❤️❤️❤️. For myself, I am not promoting anyone or anything here, But I always like to share any little glimpses of hope I find along the way with others who might benefit. The Gupta Program is one such glimpse and, although it’s early days for me, I would say if you’re reading this, however many pills you may be swallowing and however hopeless (or even hopeful!), you may feel right now, if you can relate to what Miranda says, check it out, see if it’s for you... Whatever path you choose, dear fellow warrior, I wish you all the best and brightest of hopeful moments today. And many thanks again Miranda, you are a brave and beautiful woman and everyone in our tribe thinks you rock! 😊❤️🙋♀️🤩 🙏🏻
I have EUPD, Bipolar and am on the Autistic Spectrum. Am also currently waiting for an ADHD diagnosis too. I get so fatigued mentally and physically that it's often hard to go on.
This is one of those videos I wish I could like more than once. When you feel seen. #imnotcryingyourecrying
Yes, just would love a drive thru a park or woodland.
I used to be housebound with chronic illness. Then, through hard work of regular aquaphysio I got mobility back and a normal life for 6yrs.
Then, due to uk gov taking away human rights, in 2020, with no permission to use swimming pool for 7 months out of past 12, I am now crippled and housebound again. I’ve lost everything, including hope. My government, people, not illness, did this to me. They want me and all Disabled people dead 😔
Thank you Miranda.
Miranda Hart, Thank you!
Thank you so much
Thank u miranda it all so true. Before my EDS got bad, i despratly wanted to be a midwife and had started ny health care assistance course at the hospital now i cant and i morn it and cry all so often iam 35 and cant work , it hurts.
By the way have EDS my fav joke is my Joints go out more than me!!!
🤣🤣🤣 (EDS patients can dislocate joints lol) xx
Brilliant said.
I have live with this most of my life and other very bad illness with it .l do have two great family people who do under staned and surport and help and one Relishon.in fiserble most peple think and think you are mentley ill .l have two letters to prove l have two with out the rest.l did one time think of stiking it on my forhead .l have a great sens of yomer and a strong will .That and the one'S Who love me .To the rest That's there lose.I am so posertive , careing and a very honest ladey .I Thank you for your talk .very well put.👌❤
❤❤❤
👏👏👏👏👏👏👏👏👏👏👏👏👏👌💜
❤️
I think this is why she stopped filming Call The Midwife. ??
Nervous system dysregulation cripples the immune system. Show me a person with chronic pain and I’ll show you a person who's been lugging emotional trauma of some kind around for their whole lives…
Where does this come from originally?
Original instagram link is in the details under the video. I just added the subtitles.
Thank you ❤️