I was diagnosed with CF at 38 and it’s been 14 years for me. I’m a patient of St. Michael’s Hospital in Toronto, Ontario, Canada where Dr. Elizabeth Tullis is the hands on Physician/Director in charge. I am unfortunately or fortunately (however you want to look at it) one of less than 5 black (Afro Caribbean) patients. I inhale 7% hypertonic saline solution up until the past month or so Tobramycin, but they’ve since stopped that because I’ve developed tinnitus in my left ear. I’ve now been approved for Trikafta so I’ll be underground a sweat test and a CT scan in the next two weeks before I start those meds. Exciting times. *Just a quick question, what mask have you found effective?*
So beautiful 😍 dear always think positive and look to your bright side dear and always try to smile 😊 like that if I now you from before I’m the one will married you and take care of you because you are really beautiful 😍 and I like it when you are taking care of your health dear and doing some training 💋
I read the book The Power Of Two. These women are an awesome inspiration.
I have a twin brother and we both have CF. Im scared for our future.
So sorry..... Things are looking up every single day, in regards to CF..... God Bless you & your brother!
how are you guys now?
Papillon I hope you can take Trikafta!
Yes..she died the same year as my Papa who died of stomach and esphogeal cancer
Beautiful women. God Bless you both!
I was diagnosed with CF at 38 and it’s been 14 years for me. I’m a patient of St. Michael’s Hospital in Toronto, Ontario, Canada where Dr. Elizabeth Tullis is the hands on Physician/Director in charge. I am unfortunately or fortunately (however you want to look at it) one of less than 5 black (Afro Caribbean) patients.
I inhale 7% hypertonic saline solution up until the past month or so Tobramycin, but they’ve since stopped that because I’ve developed tinnitus in my left ear. I’ve now been approved for Trikafta so I’ll be underground a sweat test and a CT scan in the next two weeks before I start those meds. Exciting times.
*Just a quick question, what mask have you found effective?*
I saw her sister in a video in may of 2014 being interviewed so as of that time she's still alive.haven't found anything on her dying
How are you guy doing today I hope you are in good health
they died in 2013
med.stanford.edu/news/all-news/2013/10/oct-26-memorial-service-set-for-anabel-stenzel.html
kathy mullins so sad to hear that I was hoping they were still living and doing the things they love
I think Isabel Stenzel Bern's is still alive though
@@amandaallen9460 if you look it up she died as well from cancer hon
Isabel sadly has terminal cancer as of Nov 2022 but is positive to live life like a superstar as always.
I know a lady who is living 15yrs after lung transplant , 💕
Os amo....
So beautiful 😍 dear always think positive and look to your bright side dear and always try to smile 😊 like that if I now you from before I’m the one will married you and take care of you because you are really beautiful 😍 and I like it when you are taking care of your health dear and doing some training 💋
Jeremy Recasa, Ana died in 2010-2011 I rember reading a few years ago
Amanda Allen really?
They got cancer 2011 they died in 20 13
Wow