Searching For A Cure: A Patient's View : Selma Blair, Dr. Oz & Dr. David Agus | TIME 100 | TIME
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- Опубликовано: 16 окт 2019
- Searching for a Cure: A Patient's View : Selma Blair, Dr. Oz (moderated by Dr. David Agus)
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Searching For A Cure: A Patient's View : Selma Blair, Dr. Oz & Dr. David Agus | TIME 100 | TIME
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Her speech improved a lot and she is slaying those heels.
Yes.
She definitely improved her speech!
She's so beautiful.
She has a different type of beauty .
I was diagnosed with als last January
I’m about the same age as Selma and have liked her for years
She makes me feel stronger
I AM embarrassed about my diagnosis and what it’s doing to me
I am in a power chair now because walking is very difficult
I am home bound because it’s simply too hard to go out
Unless my husband or son can dismantle and pack my chair into the truck how can I go anywhere? Even to get into the truck is daunting .. and getting out
I fall often, my hand is crippled, I can’t do my hair or nails, and the list goes on and on
Also I’m told it will also get worse and then will surely kill me in a short time
Seeing Selma face what she’s facing so openly gives me courage to be a bit more open and less embarrassed about this whole thing
It never helps when people say
‘You shouldn’t be embarrassed !!’ So please don’t say it
I KNOW I shouldn’t be, but I am
Selma is helping that though
God bless her and all of us
@@jennrallee1557 Awww I am truly sorry for what you are going through, being embarrassed is natural especially if you were a person who was very active.
@@jennrallee1557 I used a collapsible step stool to get into my husband's truck. In fact I have a step in order to get into bed it's much easier for me. My husband has to watch me and sometimes he has to place my legs into the bed because they are to weak. Amazon has a great trailer that isn't to expense that works for my mobility scooter I can easily lower the ramp and get the scooter onto the trailer. I don't want you to be embarrassed or home bond because of MS. But sometimes we can't control how we feel. I hope you don't allow your disease to limit your life. There are tricks to everything. It's like a puzzle figuring out how to enjoy your life with MS. But I have had it for over 17 years so I'm not sitting around my house being sad for 17 years. I go out into the world I flew to Las Vegas. I took my scooter right out to the door of the airplane then used my collapsible cane to get into the plane. I use a shuttle service with a wheel chair lift to get to the hotel. I had an awesome time. I go to concerts and the beach. Please don't let this disease rule your life. I I use wigs instead of coloring and styling my hair. Everyday I do a new hairstyle it's fun and much easier. I joined some groups on facebook to learn about it. My hubby put in a makeup station with a chair so I can do my makeup and brush my teeth sitting down .I use a shower stool because I can't stand for long periods to shower. We also have disabled handles in the shower to get in and out. My hubby put in a kitchen station so I can cook and bake which is something I love. I do pottery classes with my friend. I make quilts with my quilt group. My life is not ended because of this disease. It does suck to have to relay on my hubby for some much. I'm really lucky to have his support. I did see a therapist when my disease progressed and took my legs. I was grieving my old body and what it could do. I was in denial, angry, sad but now I'm in acceptance. I try not to look at what I can't do but what I can still do. It's way more then you realize. I hope you can move forward and get there to. I know you can do it I have faith. BTW canes suck get a nice walker with a seat that way you always have a place to sit when your legs get weak. Also your supported on all side. I don't fall with the walker.
She walked in with a hot pink suit bald head and heels with a debilitating disease... if that’s not confidence I don’t know what is... BRAVO Selma you are one strong, classy broad. 😍 👌
Oh my god Selma’s speech has improved SO much! And she looks radiant!
It sure has! Thank goodness ! Bless her and all MS sufferers .
Looks like she is really taking her therapy seriously. It’s inspiring to see someone sick so happy about life and trying their hardest.
She does look just beautiful!
Beautiful girl she is I see she has great spirits and the will to be heal I know she has strength and her faith am so proud of her and love her very much.❤️
Totally right.
I also have MS but didn't qualify for the treatment. In a twist of fate, I ended up with leukemia and ended up with the treatment (as a cancer patient) and then some. I miraculously survived both the treatment and the leukemia and my MS has stopped progressing. it will soon be two years that I am in remission from BOTH! It's just hitting me now how big of a miracle it is after hearing them describe the treatment ( and that's without having leukemia). If you have MS and this is an option for you then grab it. Hopefully someday they will take it off of experimental status because they have been doing it for so very long now and it works
UPDATE: I'm still on the planet and this Friday (Dec 3, 2021) is my 4 year remission anniversary. Yay! Don't give up!
Lori L God bless you.
Congratulations!! Keep on thriving!!!!
What DMT did you have ?
💜💙♥️ I am glad you are now OK *HUGS*
@@HerHomeschoolHomestead - thanks ☺
I worked at a restaurant in Los Angeles years ago and Selma came in with her son, when he was young. They were at my table and she was the kindest, most humble person. Even though I didn't tell her my name, she must have read it on the bill because when she left the restaurant, she said goodbye and addressed me by name. I hope things turn out okay for her.
Selma is amazing. Her positivity is incredible. She’s a beautiful person inside and out.
CW B indeed, she is everything you wrote.
Isn't she an antivaxxer?
She is such an inspiration! I have never seen her as strong as she is now, but then: she maybe never had to be? Regardless, she has always been strong!! Keep fighting the good fight, Selma...we love you.
Indeed she is in every way possible prayers for a full recovery.❤️🙏🏻
Wow. Just wow. The fact that she dragged her leg into her doctor and he didn't order an MRI. Unreal. She is a hero. Blessings to her.
I went to see my dr once and he said there was nothing wrong with me. I saw someone else and turns out I have an autoimmune disease. I now have damage in my wrists and knees.
That's how majority of doctors are. They don't care.
Oh gosh, I spent 6 years going to my doctor so often with pain, horrendous stomach issues, urinary issues they told me there was nothing wrong and to find another practice. So I did. Turns out I have an autoimmune disorder called ankylosing spondylitis, inflammatory bowel issues and a completely screwed up bladder. Gotta love the NHS. Now I'm concerned I may be diagnosed with MS. I absolutely love Selma, she is a beacon of light
She’s an actress
Yeah well she gets every treatment that most people don't so it's not really THAT sad. Most people with M.S. have it sooooo much worse and either can't afford or don't qualify for treatments that actually work. A few years after diagnosis they end up bed bound and without bladder control or worse. So if you want to feel appalled about people suffering from M.S. it's not Selma Blair's story you should be looking to.
I teared up when she said her dream was to lay next to her son every night...and that it didn't bother her about her hair. I love you for speaking out Selma, stay strong!
Shes AMAZING
Yes Angie same here I also teared up as I have now been suffering with MS now for 24 years but luckily I found a great neurologist who put me on the correct drug which is gylenya and is keeping me relapse free, it brings me so much joy & happiness when I see my now 21 year old daughter laugh & smile that's all I live for is to see her happy & healthy (✌️peace ✌️)
Selma's speech has improved so much!!!
Vileplume 48 cannibus
She had stem cell treatment
Vileplume 48 why was her speech weird?
@@lovesanimalshatesrats6339 When she first talked about M S her speech was really bad, very staccato like, symptom of ms
Proud of her she will make a full recovery she isn’t losing hope she has faith and strength.🙏🏻
She is such a warrior woman.
She's a brave soul to embrace what she has to share with other people.
Annaliza thankful that she did! I’m good with her using her celebrity platform to help triumph over this disease. My moms sister passed with MS and we have a dear friend who also has MS. Thank you Selma!
She’s a warrior no doubt.
Her speech has improved so much💙💙💙
She looks better now than when she gave the first interview after being diagnosed with MS. I hope everything goes well for her.
That's how MS works with some people, it's not always a steady decline. My brother, unfortunately, just continually became worse over his lifetime until his death. Some of his contemporaries had periods when the disease plateaued for, in some cases, years.
@@ThePereubu1710 my condolences
@@ThePereubu1710 My deep condolences...
Yes, the same with my sister. She was diagnosed at 25, in a wheelchair by 28; and now a quadriplegic In a nursing home at 52. It affects people very differently.
@@diannebrett4074 Sorry to hear that...
Selma is a beautiful person inside and out! She is amazing. She is helping a lot of people with MS!
She's actually speaking a lot better! So glad for her
This is a real role model for women. And people in general.
I didn't know she was dealing with this. All the best to Selma Blair and everyone struggling with a disease.
She is so brave
What an amazing woman! Stay strong Selma. She looks 30 instead of 47. Absolutely beautiful! Thoughts and prayers are with you and your family.
Such a classy lady that has become “an icon and hero for so many!”
I really hope she gets better and better every day.
in After 1 and 2 he seemed to be fine, though.
Please answer me. I would like to know more.
As someone with chronic disease and looking into MS as a possibility now because of Selma, thank you you’re a HERO to me!
Her speech has dramatically improved! Good for her, she's fierce.
Iv liked Selma Blair for so long and seeing how she’s handled herself through this makes me have even more respect for her
I pray you'll know your grandchildren, Selma. 🌹
Selma has helped me so much in my own fight with MS. I appreciate her so much for sharing what her life is really like with it.
Dear Lord God we lift up prayers and love for Selma.
She is so positive - beautiful soul - beautiful person
God Bless You Selma Blair. I admire you alot. I have you in my thoughts & prayers. Keep being a Great Spokesperson for MS & Chronic painful diseases. I suffer severe chronic migraines & bad Fibromyalgia. I am in constant pain everyday. I have been diagnosed for 10 years . But, had symptoms years before that with the Fibro. You are Strong Selma. I love you. Keep the Spirit. Keep speaking. Keep standing. Keep voicing. Keep fighting. None of it's in vain. You have people & fans like me. Supporting you & cheering for you. And are with you all.the way. God Bless You & Your Son..I have you both in my prayers & thoughts & heart.
Her speech has improved sooo much
Selma’s speech has improved SO much!
She is such a strong young lady.
god bless her..
She's 46 years young !! Can you believe it?Not that 47 is old, but she looks amazing !
As a hsct vet for MS let me just say- they VASTLY underrepresented how amazing this procedure is. This is a CURE. I have beeen in remission off meds for years. Of course she doesn't feel better right after, she just had chemo. They would never expect a cancer patient to bounce right back. HSCT NEEDS MORE COVERAGE and I wish they would have let her talk about it longer.
Alexa Silvers I am so interested in this procedure!! I was diagnosed last year, It has gotten so bad the last 1-3 years, at 30 I now have a handicap placard, have autonomic dysfunction because of my MS. I have 5 children and so many goals! I don’t want to have to give up and live under the weight of these terrible medications.
@@ToLoveIsToLive89 I had HSCT at Clinica Ruiz in Mexico. It was a life changing experience in many ways, not just physically, and I would highly recommend it to anyone who has MS. They say the sooner you have it done, the better. I had MS for 18 years before having it done. I still have residual symptoms that will probably never go away, but my life has improved when I would still be going downhill if I had not done it. facebook.com/groups/mexicohsct/
Not to sound like a conspiracy theorist but big Pharma is keeping it as "research study." Those of us with Ms now how expensive the meds are- 40 grand and more a year per person. I wouldn't have qualified for Chicago's treatment but instead ended up with leukemia. It's miraculous that I survived the treatment AND leukemia. My MS has been in remission too. I just realized my two year anniversary is coming up and I have been off of all meds and no changes in my MRIS or symptoms. I hope this gives hope to others out there
Alexa Silvers how many years
@@Lori_L where did you get the treatment
“I see so many people get isolated in these chronic diseases”
Truth! The isolation can sometimes be as bad or worse than the actual illness. Being sick has been lonely work. Working on changing that.
Omg. Never truer words said... Chronic pain will never be understood by the 'isolators'.. Of this world.
Often when you get sick you don't want to be out and about, but alone and lonely is not helpful or kind.
So true! I dont have MS but I do have chronic leukemia & lymphoma; RA and autoimmune phenomena. I closed myself off. Have zero social life and leave the house only when absolutely necessary
It’s a very lonely time ♥️
No energy to get dressed, go out and socialize. Even having people over is exhausting and people get tired of my not being able to do anything so everyone disappears.
My mom passed from complications due to MS when I was 23. My firstborn was 5 weeks. My mom was the most active vivacious independent woman who became 100% dependent on others. I was changing her diapers and emptying catheter bags by age 16. It’s such a devastating disease that is rarely caught quickly. My mom donated her body to MS research and I pray a cure is found.
Im so sorry!!! 😥😥 did they discover anything??
Some say it s the epstein bar virus and all kind of critters inside, not the body attacking itself..
Simina Cristian I was never contacted about what exactly they used her for. They actually never even told me when they finally cremated her. I had to do research and find her. It was insane.
@@sarahmoore1430 wow. I am sorry. Think of the beautiful memories you had with her not the physical body.
Sarah Moore wow Saran. That’s effed up. Goes to show how many people don’t know what they are doing.
Regarding them not contacting you, etc.
I remember when the media was saying she was on drugs and she lost the custody of her son, I wonder if anyone had apologised to her now that we know she wasn't on drugs but has a ms. I wish her health and happiness❤
Wow I didn't know that. That is so awful!!
I know. But she's strong.
For sure, it got reversed. I expect she needed help raising her son.
she was on drugs and drinking heavily though. she just also had ms.
@@marijones5661 I think she was sick didn't know what was happening to her and she self medicated. But the early onset of the disease was making her look like she was out of control.
Thank you so much Selma. I admire you so much. You have no idea how many people have are helping.
Wow!! When you compare this to her interview with Robin Robert's a year before, her voice has improved so MUCH. Her treatment is truly working
She’s such a boss! I love her
She’s a brave beautiful person not many people would be public with their disease
Selma, YOU. ARE. EVERYTHING. 👏 👏
WOW. I dont even know where to begin, so i guess I'll start here.... ♡ My mother has been suffering with MS for as long as I can remember. She was diagnosed when I was 7.
She has been through HELL & BACK, then back to hell, then BACK AGAIN.
You are an incredibly strong woman for deciding to share your story. 💜 💖 You will never know how many lives you've touched & saved. God Bless You, angel! 😇
My mom was finally diagnosed with MS a few years ago after a looooong process of visiting a slew of doctors and having different procedures (that possibly made things worse). Since the start she'd brought up the possibility of it being MS but the doctors kept telling her that it couldn't be that. Had she gotten the diagnosis sooner, she might've been able to slow down the progress of the disease earlier and she might be in a better condition today. It pisses me off to this day because things could have been different had the doctors just *listened* to her.
I just needed to rant about that. Selma is such a strong woman and I admire the sense of humor she has about the whole thing :)
Duskripper I am with you! Selma had classic symptoms. A typical patient will present with strange neurological symptoms like numbness in one area, maybe vision issues, weakness in another area, etc. The reason I say “strange” is that symptoms do not make sense if you are trying to find a single lesion causing them. That’s what should absolutely clue you in that there are MULTIPLE lesions. All the cables that start in the brain that are covered with myelin are called “white matter”. MS causes the myelin, which is responsible for speeding up messages down the nerves, to degenerate so messages don’t arrive appropriately to their destination. And because myelin is everywhere, no two patients will have the same symptoms. I think this is an extremely easy diagnosis to make, (at least a demyelinating disease dx.), and I’m only an ER doc. So you feel free to complain. I’m sorry for your mom. Never, ever stick with a doctor because you “like” them. Always keep going after the answer even if it takes a bunch of office visits with different “specialists”.
Kelli Barnhouse I hate to hear what you’ve been through and many times MS cannot be confirmed by the usual tests, and that is why it can take time to diagnose it. But it does sound like all the right tests were performed. Have you sought other opinions and had an MRI repeated? Other diagnoses should also be entertained.
Kelli Barnhouse I would definitely see another neurologist because it’s unclear what your diagnosis is. A doc at a free clinic really cannot accurately diagnose MS. I would hate for you to think you have it and undergo treatment that could be detrimental if you have something else. As far as any dr worried about saving the hospital money, that never happens cause their finances are separate. I would gather all your records and start fresh.
Kelli Barnhouse I agree. The neurologist was terrible, and that’s why I want you to see a really good one. When you said free clinic, you sound like it may have been associated with a hospital with access to testing. The free clinic I volunteered at was like an urgent care place and we really didn’t diagnose complicated neurological conditions on our own, but referred patients to specialists. That’s why I questioned the clinic doc.
Kelli Barnhouse Ive been in practice for 40 years lol
“We go to the same hairdresser”❤️😢✊🏻what a woman!
Chaz Dean?
But why did she lose her hair? She has MS ...
Miami SWL Radio she had a stem cell transplant
@@StRuMzNdRuMz I see. I didn't know hair loss was a by-product of that. Thanks
Miami SWL Radio it’s not, they give you chemo to deplete your own cells and suppress your immune system with the hope that you body will not reject the transplanted cells and turn on the diseased cells that are naturally yours.
So, watching this physically beautiful, funny and talented actress for all these years, and not knowing that she is more beautiful, down to her very soul and core than is imaginable.💕
I’m almost four years post HSCT and feel great!! Stronger than I ever was before MS. 💪💪
Bravo!
I absolutely love her. After injuring my back and getting sciatica but at the same time losing my job and insurance and not being able to get immediate medical attention I started having complications. Now I have been showing symptoms of MS with one leg for a year now and my new doctor pretty much blew me off telling me I am just nervous and nothing is wrong. I had to tell him to test my knee reflexes in my annual checkup because he was so anxious to get me out the door and on to the next patient. When he found no reflex in the leg I asked “don’t you think I should see a neurologist?” I even asked for an MRI but he told me my insurance would never approve it. Three months later after seeing a neurologist and getting MRI denied by my govt subsidized insurance I had to get my neurologist to appeal the denial. I just had the MRI done today so will find out the results in a couple days. When Selma said she dragged her leg into doctor’s office and told him she must’ve pinched a nerve it reminded me of myself in my initial visit with my doctor. It was a month later that I realized it was getting worse that I had to be a better advocate for myself. I am still suffering without a diagnosis and it has been 10 months.
One thing I like about Selma is she has pure talent.
It's nice to see an actress in Hollywood who just is a great actress.
She had been great in everything shes in.
She is up there with Kathy Bates, Angelina Jolie, and the late Brittany Murphy in terms of talent.
She speaks better than months ago . Im happy to see that she is recovering from her illness !
Selma is an awesome woman! God Bless you, Selma 💕.
💪🏽Selma I, too, have MS and I am inspired by your openness. Godspeed!
When did you start noticing a difference in your body? Did you too start feeling like you had pinched nerves?
Selma you have the most beautiful bald head ever! Good luck to you in your journey! You are so brave!
HSCT is not “the most aggressive and almost barbaric “ treatment !!! It’s the complete opposite of that ! It gave me my life back after losing hope of walking again in my 20’s , i’m 3year + post HSCT and i’m 32 and thankfully my MS is halted and i still see improvements till this day !
I agree I had HSCT 2018 in Moscow. I wouldn't call it barbaric at all. The worst part was getting a catheter in your neck, chemo was only 5 days so I only felt ill on the last day. Other than that is was a very pleasant month in the clinic.
ivonna.tinkle I had HSCT in Moscow as well , i had it in March 2016, i agree the neck catheter was traumatizing but it was all worth it in the end ... I wish you all the best in your recovery journey :)
As someone who suffers with chronic pain, I look up to Selma so much, she is an inspiration of how to live life even when we are not 100% comfortable, and also knowing we will never get back to 100%. It is just something you have to live with but you make the most of it. She is an example of thriving, not just living!
True story - SHE is a HERO!!! So beautiful, gracious and powerful! ❤️ Selma
I too have MS and understand fully the devastation of this disease. I am praying for your recovery and I thank you for your courage in opening your personal life fully. You are helping expand MS awareness exponentially. Thank you from the bottom of my heart 🧡🧡🧡
Selma has an incredible force inside her that helps her go through so many difficulties. I truly hope she gets better and better and that we will find cure for MS. Good luck Selma!
My doctors told me for years that nothing was wrong with me. Even after my spinal tap that showed 21 oglioclonal bands and Elevated white blood cells in my csf. Even after my first parietal lesion. They told me that it was in my head. Turns out I had MS and I was finally diagnosed in my twenties last year. And like Selma I was relieved when I found out. I was happy to know what it was.
Sue those doctors
Selma is a straight up badass!!! Her confidence, her attitude and perspective on life even in the face of such adversity, her strength and that sense of style!! Amazing! 👠👊💪❤ I'll be praying for you to get stronger everyday. 🙏❤ #warrior
She was and still is the most beautiful woman I've ever seen I hope and pray for her such a talent
Selma has beautiful, confident eyes. Shes a amazing Woman.
"I have glitches" the BEST description I have ever heard!!! I love it. I will forever use this haha
About 4 years ago, I started having numbness and pain on my left side. And fatigue. At the time I was very worried about having MS. MRI showed some random white patches non specific to MS. With time, doctors realized I was clinically depressed and high dose of antidepressants got rid of the pain and numbness. It took many years to slowly slowly get better. Whatever the illness is, I believe being authentic and open is the best way to move forward.Kudos to Salma for being an advocate showing us a graceful and courageous path to live with a debilitating illness.
She will always be one of my favorite actresses of the last couple decades. She deserves all the prayers and love we fan's can give ♡
Her voice is back. Love her so much ❤
This is heartbreaking.😭
She's a warrior!
A hero!🙏
My blood work came back for MG.
Similar disease.
Thank you, queen.
You're a shining example of what a brave human is.
Killing it like a BOSS!!
So inspiring.🔥
God bless you, and yours.🙏🔥😘
Hashimoto's for 8 years and had to find the diagnoses myself. The medical profession in the United states has a huge problem and insurance is at the root. I didn't have insurance and multiple doctors didn't even offer me diagnoses tools because they thought I couldn't or wouldn't afford it. It's sickening that doctors are waiting for thyroids to die before they medicate... but more so that they actually believe that the only thing to do it medicate. I've been managing my disease on my own for 2 years and seeing positive progress.
Hashimoto is nothing ,it's very mild disease compared to MS
What are you doing for your Hashimoto, I am curious about?
I admire Selma’s courage so much, she is so amazing!! I was shocked when I found out that she had MS.I hope things get better for her.
I’m looking forward to my HSCT and thank you Selma for giving me hope that my neurologist wasn’t all mighty and I could advocate for myself! Stay strong MS warrior!! I can’t wait for Puebla January 6th
Good luck! Trust the process!!
Hope it is life-changing in all positive ways like it was for many of us!
Joe Sagirah Lyoness Where are you getting your treatment?
We love you dearly Selma. Prayers to you and sending you much strength. 💖
Selma you’re such a HERO and WARRIOR God bless you!
I am so happy to see she can communicate without as much hesitation and that her health is improving. She is SO moving!
My father had the same type of MS as Selma.
It unfortunately took his life at 59 years old. It’s a horrible disease and I pray one day to see a cure. My love to her. 😢
Big hugs Anita
Selma, you are the perfect role model for MS. You're a fighter, you're articulate and you'll be an overcomer! God bless you, AND you are beautiful!
I’m SO SO glad to see her like this!! Looking SO much better!! Selma keep fighting! There’s a lot of people bashing you cheering for you!
I honestly cried when Selma said she had MS. I don't think people realize the gravity of how many people get inspired and uplifted when someone famous/iconic is affected by the same issues you have. The sense that we all may be of different positions in society but pain and suffering can be just the same is sometimes hard to wrap our heads around. I didn't want to accept I had MS and stubbornly neglected the things I was not allowed to do, all because I wanted to continue being "normal". But, that's not the way to live, illness doesn't define you but it is a part of your life, and you just have to be calm and learn how to live with it. But, Selma took it to another level, she also is trying to find a cure and that's just amazing and as if I wasnt already grateful.
I hope a cure is found, since there are thousands suffering not just Selma.
try millions.
There is a cure. Look up Dr Lorraine Day and eat an organic plant based diet and stay away from vaccines and medicine that destroy your immune system.
Lauren Emory yes!! My fiends dad also has MS and he almost gave up. But then he switched his ‘normal’ diet to a plant based diet and drank celeryjuice every morning. He is now working again and feeling so much better. He got his life back thanks to good healthy food 🍌🍎🥬🍋🥒🥔🍊🍠🍉🍍🥑. LET FOOD BE THY MEDICINE🙌🏻
The Wahls protocol has helped many! Developed by an MD who had access to all the latest meds etc...and still wasn’t doing very well, the MS kept progressing. She decided to take things in her own hands and do a radical nutritional approach. She went from wheel chair to riding her bike again!
So inspirational. Many people can have the info, but refuse to believe it...or only believe in meds.
So it’s not as easy as having an answer...but in getting society to shift and see that modern medicine isn’t everything!
And I’m a medical professional, I’ve seen modern medicine save lives in cases of emergency and trauma..but in many other realms it’s missing the mark or causing farther harm. Hence my desire to go from hospital medicine to a functional medicine clinic...to help prevent patients from ending up in the hospital! The patients who would come to me, aren’t this kind who just ask for a pill and don’t take responsibility for their own wellness (unfortunately that is encouraged in our society 😢)...but instead the patients who are willing and motivated, sick of being dismissed by other health care practitioners and want to get at the root cause (s).
Autoimmune diseases all need gluten removal (since its effects on the GI tract stimulate inflammation etc) and gut healing for starters... then go from there.
Low dose naltrexone can help too, it’s a generic drug...rarely talked about. Used to be given to HIV patients. And is being shown to improve those with MS, and other autoimmune conditions, due to its immune modulating effects. Low side effect profile. Only compounding pharmacies make it and it’s not a huge $$maker...many docs are super uneducated about it, yet will prescribe way more potent and toxic drugs :(
LDN should only be used in conjunction with a person willing to do the other work. As no med should be relied upon, by itself...nor is it as effective if diet etc aren’t attended to.
Some say that behind MS is the epstein bar virus...
Im so proud of her..Not only is she strong and smart she is gorgeous!! She stands up talks about tthis disease she doesnt hide behind closed doors or walls like most stars would because their afraid someone might judge their looks..Congrats to her and i stand up for her..I pray she gets a cure and so glad the m.s. world has this woman fighting for them they are very lucky...
Her speech seems so much better than her last nbc interview, she’s just so beautiful 💙
WOW I DIDN'T REALIZE HOW BEAUTIFUL SHE IS UNTIL I SEEN THIS AND SHE HAS NO HAIR - BEAUTIFUL
Ms is such an unpredictable desease. It effects everyone so differently. It progresses differently in each person . It also hits in flares an stages . Some days are good , some days are bad. I've had the unfortunatcy of watching my mother progress with this horrible desease. What's sad is alot of people don't qualify for the same treatments as Blair , or don't have access to money to afford experimental treatments etc. An this desease does get to be medication resistant. It's alot of of switching meds , adjusting mgs, adding different cocktails of meds, trying to find the right combo to keep you mobile can be almost exhausting. My mom's had this for 15 years now an it never gets easier. It's so hard to watch her have days where she's so uncoordinated she cannot tie her shoelaces. I have the upmost respect an sympathy for anyone with this illness. I cannot imagine having to accept a loss of control over the one thing we're all suppose to have ultimate control over...our bodies.
Made to
Survive
I have MS yet still fighting.
Stay strong Selma.
Sending you love and strength.
@@Alphacentauri819 thanks. Gonna check her treatment.
@K R thank you so much
@@CharlotteWebb1952 thanks :)
I am sorry for asking if it bothers but what is MS?
I had HSCT with Dr. Burt in 2o15. I'm still in remission. Still have past symptoms though. But so grateful. HSCT works. The sooner you get it the better. Keep hanging in there Selma and other MSers. ❤️❤️😘😘
Selma is a fighter! Love and health to her. Keep fighting!!
I am another MS patient who has had HSCT heading towards 6 years ago in Russia with Prof Denis Fedorenko. If not for my local GP /PCP who as I walked out of her office said "Go home and research stem cells" & I did just that, I quickly moved from just stem cells on their own to HSCT and booked a place internationally to undertake it. In my own country I was not sick enough & too old to get accepted on a trial, so I never started DMDs which scared the beegeezars out of me. I felt that 4 days of chemo "that had better odds of halting it) was a better choice for me than the rest of my life on a DMD that might slow it down. While I have had other health issues I firmly feel my MS is still in remission. PRMS EDSS4 and 58 yrs old at the time of HSCT.
Thank you for your comments, I am of similar MS, age and EDSS to you and I'm intending to get my HSCT treatment done in 4 months... Good luck and I hope your improved health continues
I've had MS since 2010. It's hit you hard but the way you're handling it is out of this world! I don't know if it's possible, but I think you're even MORE BEAUTIFUL THAN EVERY BEFORE!
Selma, you are an inspiration. Thank you!!
She’s so pure of heart she just wants to encourage others
She's such a beautiful positive woman and so strong. Most people don't wanna keep going and enjoy life and she seems to be.Amazing woman.💗
I'm doin some homework for Physical Therapy and neurological diseases -MS in this case and I'm choosing this video because the first thing I've noticed was how much she improved her speech, great job to her Speech-Language therapist
I love that you came forward, Selma, and opened up about your diagnosis. I am very ill and in spite of what my illness is doing to me I am out there talking to others and offering encouragement to others. You are heroic, Selma. I love your humor and optimism. Feel free to reach out any time. Keep on keeping on.💕
I love this woman. Her strength is such an inspiration.
Never envy anyone - you never know what they are going through. I wish Selma the best.
Wow....what a strong and beautiful lady. Prayers for her recovery.
With all she went through look how graceful and beautiful she is!! She rocks the no hair look!! My crush from the 90’s. I am sad to see her struggling but it ultimately makes her stronger ♥️
This makes me so grateful for the NHS and I feel sympathy for anyone that doesn't have access to healthcare. Even some one like Selma could not get the correct treatment and diagnosis for years. I feel so lucky in a way that when I experienced sight loss due to optic neuritis I went to the hospital and was referred for an mri and to see a neurologist within weeks. Hopefully as i was able to start medication early my ms symptoms can be minimized and I have hope for the future medical advances that will be made.
so courageous and the way she talks about it... its like she can articulates so well what I have difficulty coomuncating to people around me about my illness. it is very isolating indeed.. Selma is an inspiration
Her speech is so much better!! You go Selma!! I just love her
Selma Blair is a force to be reckoned with. She is a beautiful woman and a great actress. She also a Michigan native born from Southfield Michigan USA. I am glad to say she is fighting a disease of MS which is treatable but I know people die from MS. Much praises and love and respect to Selma Blair. Much love from Michigan.
Bless her heart. I pray the good Lord watches over her and she can beat this disease. I pray for her and her family. So sad
The same good Lord that I was brought up to worship that let my Mother die a long, grueling death? God is a f-cking fictional character.
@@bradyb8003 Don't let bitterness overtake you, baby. It will eat you up. Trust me. I know personally. I'm sorry to hear about your mom sweetheart. I hope you feel more at peace.
@@iidentifyasayoutubertoday7025 Both my parents died from aggressive forms of lung and breast cancer. And both required large doses of pain killers to help with the horrible pain. For me I didn't believe in any gods before they were diagnosed so going into the worst of it I wasn't bitter at zeus/yahweh/allah any more than I was bitter at batman. However if I found out their doctor actually had the skill and ability to easily cure both of my parents but refused to do so for some silly or even an unknown reason that the doctor refused to reveal I would be bitter towards him. I think any ethical human being would shy away from such a doctor and many would surely sue him into poverty if it could be proven he could help but didn't. If I harbor any bitterness its probably reserved mostly for the insurance companies and fighting them to cover certain treatments. That fight only added unnecessary stress to the whole matter all because they needed maximize their profits for their shareholders.
This is so inspiring. I think people always think I'm drink too. Cause my MS, I'm always droopy eyed tired, I stumble, & can't walk straight.
Just cuz you’re sick doesn’t mean your fashion sense should suffer. Selma, you are amazing, i couldn’t pull those shoes off even in my 20’s! You’re strength inspires me🤟🏽
This is amazing, as I sit here and I’m waiting for Lab work tomorrow to be done to test for RA. I sit here in so much pain in my fingers, knees, hips and can barely walk and I’m so depressed and between crying and sleeping I had to get up and type to Selma Thank you and I will always love you for making me at this time feel at ease and like it will be okay, no matter what it is!! ❤